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Lenvima dosage
Hello all! I've been on Lenvima 18mg since Oct. 2023 for stage 4 renal cancer. I've had 2 surgeries where I had to stop the medicine for approx. 3 weeks. Cancer grew during those times. Once back on Lenvima it knocked it back some. My question is, has anyone reduced their dosage (ex. 18mg to 14mg) and continued to have the…
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CNS Lymphoma Newly diagnosed need advice and where are doctors with this specialty - HELP
Hi, I asking for 25 yr old. it looks like he may have CNS Lynphoma. Can survivors tell me how you are doing, and where are the Lymphoma specialist. We are in the Philadelphia area but can travel. Can you tell us the questions we should be asking doctors ? There is some existing comprise to the ammune system. fluid on the…
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PC health cost
so I just had Salvage surgery and PSMA scans and biopsies and the whole 9 yards.. surgery was one night in the hospital at UCLA the whole thing was $59,000. PS MA scan back in July $46,000 biopsy $17,000 MRI $12,000 every video visit I had with all the different doctors no more than twelve minutes six hundred to a thousand…
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Financial Relief?
Hi all. In short, I was diagnosed with Multiple Myeloma in 2018. I am insured by Blue Cross Blue Shield of Michigan through my workplace. ($3,000 deductible and 6 to $7,000 max out-of-pocket. My biggest struggle is financial. Since my diagnosis (2018) I have incurred co-pays for treatment that reach Maximum out-of-pocket…
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Oasis of Hope in Mexico?
I guess I made the subjet line of my last post too long. I was wondering if anyone has had experiences with Cancer Treatment Centers of America or a coworker just told me today about a place in Mexico called Oasis of Hope? Thank you
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Salvage surgery path report update
Things are going as planned I am leaking a bit, but not a big deal. Waited for The doctor to call me to go over the report. He told me the report was good margins were clear cancer was embedded in the prostate. But my curiosity got the better of me and I looked at the report. Was not happy that he only took out one lymph…
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New Urine Test Spots Head-and-Neck Cancers Earlier
Interesting but still in testing stage . . . https://www.newsmax.com/health/health-news/at-home-urine-test-cancer-head-and-neck/2024/04/18/id/1161498/
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Colon rectal Cancer Stage 4
My husband at 39 years old was diagnosed with stage 4 colon rectal cancer in Oct 2023. He had Mets behind his aorta, left breast, and ilium. He was told these Mets would never go away and they’re just here to help him live a little longer. After colon resection Nov 1st, he then went on to start chemotherapy in Dec. During…
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CA 125
I was concerned because of my CA 125 went from 7 to 44. It had been over 7000 before 3 rounds of chemo and debunking. After 3 more rounds of chemo it went to 7. Then with the blood work following all of that the marker was going up. The doctor explained that the marker will fluctuate for any number of reasons and stress…
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Radiation treatment choice
My wife has some hot spots on her PET scan. She has to decide between having a few pin point high dose treatments,(which is promised to have less side effects)or to go with a 5 week combination treatment of hitting those spots with high radiation and using low radiation in the surroundings. Has anyone dealt with this?…
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Post treatment PET scan turns up new cancer cells in my lungs
I went in today for my 90 day Post treatment PET scan and it tured up new cancer cells in my lungs. I’m 64 years old and prior to this episode had never spent the night in the hospital. My original diagnosis was likely tonsil cancer, HPV related, that spread to the lymph nodes on the right side of my neck. I completed the…
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diagnosed 6 months ago with small cell lung cancer
Hello, I was diagnosed in Oct with sclc which was contained to my right lung. I had the chemo and radiation and in Jan scans showed it had shrunk considerably in the lung but I had some mets in my brain. Was put on Imfinzi and had gamma knife for the brain mets. The gamma knife took care of the brain mets but I now have 3…
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Lupron - living with the side effects
I am 76 and underwent 28 radiation treatments last summer - after starting on Lupron androgen deprivation therapy. I have had two (6 month) Lupron shots with the third (and last) scheduled for early April this year. My urologist and radiation oncologist both felt I was too old for surgery and that the radiation/ADT was the…
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psa 4 months after radiation and 6 months into Orgovyx
Had PSA last Thursday to see progress of treatment and appears to have went well. PSA <.006. I finish my 6 months of HT via Orgovyx on Friday and then wait and see if anything comes back. HT was not horrible . Some side effects but nothing life altering. Thanking God for my progress.
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Ned
Well I had my four year scans yesterday and was Ned went to yearly scans and I thought I would be done after five years but since I was stage three I won’t be done untill my tenth year oh well it’s only once a year now
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50 yo sister diagnosed with cancer of stomach cardia
She had no symptoms except for swollen lymph nodes above the left collarbone and left armpit. Biopsy of lymph tissue showed cancer. Intenstive tests (CAT scan, PET scan, endoscopy, ultrasound, colonoscopy, MRI) did not show any cancer other than the lymph nodes. However, a biopsy of some stomach tissue came back positive…
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Salvage update
well, they said surgery went extremely well a little under three hours. They actually were able to spare the nerves. Will go home tomorrow. I already did some walking and now dinner is coming. Thanks for all the support. I will be in touch.
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Psa test freq following RT
I just finished post-RP salvage RT in January. My first PSA was about 3 weeks ago at 0.13 vs. 0.20 when RT was started. Post RP pathology rated me at a 3+4 Gleason with a few mm of positive margin and some perineural invasion. They have me scheduled for next psa in 6 months on basis that post RT the PSA should move real…
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"Total Metabolic Response to Treatment" :: but questions about recurrence
I'm a guy who likes to know the numbers, although I do completely understand the opposite mindset. 9 months ago I was diagnosed with a late stage SCC (P16+) advanced to local lymph nodes. They gave me 6 months to live. Last week I was given the all clear, completely clear PET scan with a report indicating "total metabolic…
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Cancer Survivor Interview: Oropharyngeal Cancer, Treated With Robotic Surgery
Direct interview with a cancer survivor and his story of treatment and recovery… Cancer Survivor Interview: Oropharyngeal Cancer, treated with Robotic Surgery Take Care God Bless Russ
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Dr Itzhak Brook Keynote Address. “ Back to Life” After Laryngectomy
This is a short video of Dr Itzhak Brook giving the keynote address. He is a Head and Neck cancer survivor who goes over the many aspects of H&N cancer including things like your diagnosis and thoughts that go through your mind like suddenly you are in a major crisis, it shatters your invincibility, and you are suddenly…
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Tonsil cancer stage 4
Hi everyone just wanted to share today that my husband is cancer free for 13 years! Am not saying it’s not been hard but he is alive and with me. Keep the faith Linda
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Hello!
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What to eat to live longer
I have low fat diet food like Nutrisystem, weightwatchers and the list goes on and home made foods Use STEVIA Avoid high fructose corn syrup Keep sugar low Lower salt diet Use mid cough drops Keeps moving Here Seasoning salt sub recipe helps with tast of foods SEASON Salt Ingredients 1/4 teaspoons salt 2 packs Stevia ¾…
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Stage 4 confusion about treatment/results
I am a little confused about treatment and what they can and can't do. Starting out it was made clear Stage 4 Prostate Cancer is not curable, but I could live for some number of years with it depending on how I respond to treatment. I accepted that but the more I learn the less I understand. My chemo if successful is…
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Happy Birthday, if I may...
Today is my beloved husband's 61st birthday. After spending a "relaxing" 8 hours in chemo, our family went to dinner and celebrated him. As some of you on this board know, he is being treated for metastatic head and neck cancer...now in his lungs. His ct scan on the 3rd of July showed SO MUCH improvement. It was a…
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Hot spots on follow up PET scan
My husband has been fighting cancer since January. Tumor on base of tongue and cancer spread to lymph nodes on both sides. After concurrent chemo/radiation treatments ending this past March, he had the follow up PET scan last Thursday. We were called into office for Friday and told that the cancer in his tongue and lymph…
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The Juice
I'm sure most or all of you have learned of OJ Simpson's passing yesterday. What you may not know is that the cancer that took him was PCa.
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Post-Radical Prostatectomy Pathology Results
I'm 4 weeks out from a radical prostatectomy and just received my post-surgery pathology report and it's indicating that cancer's a bit more advanced than pre-op biopsy/pathology/scans/etc. indicated. What I'm wondering is if anyone has experienced a similar situation and if further treatment was required. I'm having to…
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O.J.
All personal opinions about the man aside, do we know his PSA at diagnosis? Is there any other relevant information?