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Multiple Myeloma Stem Cell Transplant
I’ve been recently diagnosed with mm at age 67. Must now decide whether to get a stem cell transplant. My doctor says because of so many new treatments coming out, I could go either way. For those who did or did not get a stem cell transplant… how did it go for you?
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Cars for Cancer patients
I am looking for a free or low cost vehicle to purchase. I am currently homeless and seeking permanent housing as well. Having a vehicle would help me in my housing search as well as being able to get to medical appointments. Would anyone have any information on where I might be able to find this particular resource?…
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Tattoos
Tattoo ink contains known carcinogens, and can be transported around the body and end up in the lymph nodes. However, there is little research into whether or not having a tattoo raises a person’s risk of cancer. Researchers from Lund University Sweden used national registries to identify cases of lymphoma and analyze…
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New Diagnosis and Consumed by Fear
Hi Everyone. First, I want to recognize all of you as warriors. As I start my own journey, I hope to be half as courageous as all of you. But for now, I am just consumed with fear and need help, guidance and words of wisdom. Diagnosis 6/13/24: Stage IVB, Figo Grade 3, dMMR, Endometriod Adenocarcinoma. Had…
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Appointment next week for results of biopsy of prostate
I'm anxiously waiting for the results of the biopsy done for my dad who is facing prostate cancer. He's in his 70s but extremely active, probably the healthiest person in my family. This is quite unreal. I've offered to be there during this appointment and I'm trying to read as much as possible to be able to ask informed…
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My wife
My wife was recently diagnosed with peritoneal cancer. They were suspect of her ovaries, but found her stomach wall had thickened and had a colonoscopy and endoscopy done. A big mass in her stomach was found. Biopsies showed a late stage tumor in her stomach that has spread to her lymph nodes and 2 different linings in her…
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I have questions... new member
I am 53 and might be dealing with prostate cancer. heres my story. I have had my large intestine removed in 2008 from ulceritive colitis. I kept having microscopic blood in my urine and still do to this day. Also in past had a growth on my kidney that they did a cryoablation on 8 years ago and followed up with MRI for 5…
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Leukemia- Adult
Good morning, I was diagnosed with ALL- ph+-bcell in May. I spent a month in the hospital and I am now continuing treatment outpatient. I am struggling to find any active support groups , for adults, online. Can anyone steer me to an active group?
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Tumor found on pelvic bone
My girlfriend had an MRI two weeks ago and a 3 centimeter tumor was found in her pelvic bone. The doctor told her he could not think of it being anything other than cancer. And he ordered another MRI which she had two days ago. We are still waiting for results. The wait is killing us. Why would he want another MRI before…
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Incontinence products guidance
I am a few days away from getting my post-surgery catheter removed. I haven’t been able to find any good comprehensive guidance or reviews of incontinence products - diapers, pads, etc. I was hoping to get feedback on brands that fit better, or are more leakproof, or just what to look for. Guidance on dressing and…
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Ovarian and uterine cancers
I was just diagnosed. Total hysterectomy was done April 23 for endometriosis, pathology came back with stage 3 uterine and stage 1 ovarian diagnosis. I guess you could say that I'm lucky that the ovarian cancer was caught early. I can't get a straight answer from my surgeon about chemo and prognosis. Every cancer website…
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Just received my Prostate Cancer diagnosis
I'm 63 years old and in otherwise excellent health. High PSA prompted a Prostate Biopsy procedure. 3.2 on 1/15/2019 3.6 on 10/14/2022 6.8 on 4/30/2024 5.0 on 5/234/2024 (check on reading from 4/30/24) Did Biopsy on 6/24/24, 14 cores, 2 of the 14 cores showed problems. Below are the summaries: PROSTATE, RIGHT BASE, BIOPSY…
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WHAT TO EXPECT | Throat Cancer | Radiation Treatment To Cure My Cancer | My Reactions Day 28-32
This is a video post from a fellow undergoing treatment and documenting it in a series…throat cancer… He says: once I was diagnosed I wanted to know more and found that YouTube didn’t have anyone documenting their journey. So I am going to do that in hopes it helps someone having to deal with this. WHAT TO EXPECT | Throat…
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Do You Need A New Normal ? Why ? BECAUSE IT IS IMPORTANT FOR OUR SPIRITUAL AND MENTAL HEALTH
Hello everyone, I came across this in my travels and thought it may help someone on the discussion board today or in the future. It is written by a woman named Mandymuff, her (screen Name) This woman's insight is timeless. I take no credit for this just passing it along. I hope this helps or inspires someone today. Please…
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Child Brain tumor
I am Looking for some people who have or are currently going through treatments with their child with a brain tumor. My four year old niece was diagnosed in april this year with a pineoblastoma brain tumor. Has undergone so much and would love to hear from others
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Childhood cancer survivor
I was diagnosed February 14, 1989 with a mixture I’m so brain tumor I was given a 5% chance of living. I am now 43 years old realizing that I’ve had problems all my life with commitment and holding down job. The job part was not that I could not do the job or that I was not good at the job. It’s just something that was…
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Emotional support for 21yr old w. upcoming occipital temporal tumor surgery
Hello, my niece has a tumor on her occipital lobe causing seizures. She is scheduled for surgery the last week this month (July 2024) at MGH Brigham. MRI today indicates tumor has grown 1cm since MRI in April. She is a very level headed and mature person, and was ready to go forward with the surgery, but the latest MRI…
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Rising PSA after 12 years post surgery
Had robotic surgery at Cleveland Clinic in 2010. Gleason 3+3. Nerve sparing surgery and results indicated cancer was contained. PSA undetectable for 12 years. 2023 measured .04. 2024 measures .08. MD says to watch and wait. Don't understand why after 12 years suddenly rising.
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Problems they don't tell you about
Hello, new here and just diagnosed with thyroid cancer while undergoing eye cancer treatment. The endocrinologist recommends complete removal of the thyroid and does not expect needing any further treatment for the thyroid cancer after surgery. Many people say you can live without a thyroid, no problems. I'm looking for…
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Thyroid cancer survivor imposter syndrome.
My husband works with hospice, and I only underwent a surgery and thyroid replacement hormone. I'm left feeling it difficult to express my many emotions (diagnosed less than a week ago) because my cancer isn't as bad as what hospice patients go through. Husband says he is supportive, but I can sense some resistance to…
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New Diagnosis of Stage 4 Metastatic Uterine Cancer
Hi, I’m new here and wanted to introduce myself. My name is Heather. I’m 42 years old. After many trips over the years going to the ER over pain and being pushed away as they accused me of being a drug seeker, I found out in May of this year that I have stage 4 metastatic uterine cancer. After many tests and appointments,…
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Lymphedema after surgery
I have been reading about all the side effects of incontinence and ED after RALP but not much about swelling in legs after a RALP with lymph node dissection. My background: Age: turning 71 in Sept, My RALP Surgery scheduled mid August, nerve sparring estimated 100% one side 75% other side Biopsy early Feb. 24, 5 Gleason 6…
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Getting help after 30yrs of radiation treatment
Hello everyone, I am new to this site. This has been a crazy time for me because I am a 30-year cancer survivor. The radiation treatment that I have received during my treatment is kicking my butt. Six months after receiving radiation treatment, My small intestants became fused together. surgery was performed. Since then,…
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Surveillance Visits By NP?
Hi All - I hope this finds everyone doing well. I am not on here often anymore due to a million other life things but I am always grateful to all the support and knowledge here. Currently 3 years NED. I am curious about whether or not your GO has a NP do surveillance check-up exams? I was told by a nurse that my GO office…
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My Voice: Laryngectomy and Head and Neck Cancer Information Site Blog By Itzhak Brook MD
Here is a new find, a Blog by a doctor who is a physician and a laryngectomee and has information on it and also covers the whole H&N cancer spectrum Itzhak Brook MD. This is loaded with info about H&N cancer and Laryngectomy info. I think it is worth a look and you will find something here I'm sure. Check the menu on the…
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Wishing Everyone A Happy And Safe 4th Of July Independence Day.
I would like to wish everyone a safe and happy July 4th holiday. While celebrating remember our original founding fathers who put their lives and everything they owned on the line to start this new nation. Their lives were especially on the line because if they didn't succeed high treason was punishable by death. And since…
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2nd opinion anal cancer
I have recently been diagnosed with SCC anal cancer. Right now, it’s stage 2, CT and MRI didn’t indicate nodes or Metz. I had my first meeting with the Radiology Oncologist yesterday. I can’t stand her. No bedside manner, spoke to my husband more than me, and wouldn’t answer my questions until she was done with her schpeel…
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Cancer center experiences
Anyone else experiencing micro aggression at your cancer center? Informing our cancer team about Trauma informed radiation was a hurdle to jump over in the beginning. Experiencing homophobia 5 days a week for another 5 weeks seems to be just another part of the treatment. We plan to address this issue with the hospital as…
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Scar tissue and anal fissure
I'm 2 years remission , does anyone else have issues when passing a hard stool ,there is some blood, my Dr said that is the scar tissue causing that from a harder stool and I have a fissure , I guess I'm looking for reassurance . My last CT scan was normal , and I see my GI doctor today for my 6 month visit .
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Bladder / Ureter Cancer
I am posting this under Bladder Cancer but I have Ureter Cancer. Diagnosed 5/29/2024 with Ureter Cancer. 70 yrs male—mass found in left ureter—Had Kidney and Ureter robotically removed (but had to be switch to open surgery lasting almost 7 hrs.) 6/13/24. Had complications and in ICU for the day after surgery. Hospital for…