Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Bone Cancers

Some tips from CSN
Welcome to the CSN! Below are some tips to help you get started following and posting on the boards. You can follow your preferred discussion board to get notifications of new topics and comments. To follow a board, navigate to your preferred board and then select the bell at the top, followed by your notification…
Recovery from fatigue after radiation therapy
I completed radiation therapy for a skull cancer--the "mask business" with a Tomograph machine. I had NO chemo. Therapy lasted 7 weeks, 5 days a week. I got the max dose. I was told that the aftermath would be extreme fatigue. Yes, indeed. It was extreme. Also in the mix were hand cramps, coordination and thinking…
Osteosarcoma limb salvaging procedures
We are trying to weigh options for my 9 year old niece who was recently diagnosed with Osteosarcoma of the distal femur. She is being treated at M.D.Anderson and they are advocating rotational plasty as an option due to increased functionality. I am looking for information regarding the "growable"/extendible endoprosthesis…
Confused and really need answers after many years
In 2007 after getting a bone scan done for right leg pain the orthopedic doctor came into the room and showed me the image of my bone scan and told me that I had bone cancer. I was stunned and so scared. I didn't know how to feel or what to think. I wanted answers and have been searching for answers ever since. I had a MRI…
Myelofibrosis, post-ET, lab results?
What's kinda standard or common to see in a cbc/differential lab in someone with Myelofibrosis? Are nRBCs super common? Thanks.
Ribs and coughing
Hi, I’m newly diagnosed metastatic breast cancer and have lesions through my bones (literally head to toe). I had a question about my ribs though which I have lesions there too. Is it supposed to hurt this bad when I cough? I have to use a pillow to brace myself. My breathing isn’t labored or anything it’s just when I…
Jaw pain
Ive got pain in it even when i lay my head on the pillow.
Metastasized Lung Cancer (Osteosarcoma)
Anyone out there who is surviving metastasized lung cancer? My 25 yr old daughter was originally diagnosed with Osteaosarcoma Sep 2018. Had limb salvage surgery to remove tumor in her knee Jan 2019. 2 years later the tumor re-appeared further up her femur. She had a hip disarticulation Sep 2021, to remove her full leg. Feb…
Adamantanoma Help
I was hoping you could point me in the correct direction for information pertaining to treatment. A very close friend of mine was recently diagnosed with Adamantinoma in the top of her tibia. Five weeks ago the tibia along with her knee were removed. On the full biopsy after the tumor was removed the oncologists found some…
Adamantinoma
Do you have Adamantinoma?
Bone Cancer: Adamantanoma
Hi, I am new to this chat group. I am looking for others who have had a rare bone cancer called Adamantanoma. Often, this type of cancer can be found in the jaw. Mine was in my left tibia. If anyone knows where I can get information/research, please let me know! Thanks!
OFD-Like Adamantinoma
My 13 year old son has recently been diagnosed with a Oestro Fibrous Displasia - Like Adamantinoma. He had an operation in Dec 2014 where the surgeon took a shark bite section out of his right tibia about a third of the shin was removed. He had a section of donor bone inserted and the front of the shin has been plated. He…
Osteosarcoma of the Maxilla
Hi, i am currently dealing with my third recurrent osteosarcoma tumor of the maxilla. I will be going in for surgery early May at MD Anderson to remove the tumor, my right eye, and a complete rhinoplasty along with a reconstruction of my upper jaw using my right hip bone. It will be a huge surgery as you can imagine. I'm…
Ewing's Sarcoma
Hi, I am a cancer survivor of Ewing's Sarcoma, AKA Bone Cancer, I am a 19 year old female and would love to share my story with others going through the same or similiar diagnosis of any type of bone cancer. Email Skippy6270@aol.com thanks, Shelly:o)
Bone Cancer Signs & Symptoms
Over the past month, I've been experiencing a dull ache on my left flank area. Went to the doctor to have a urine sample checked. The doctor surprised me with having rib x-rays done. Over the past week have had some shoulder discomfort radiating down my arm. Discomfort is mild. Over the past 11 months, I was diagnosed with…
Guidance and Support new diagnosis..Breast & Bone Cancer
Good afternoon I am writing you begging for help and guidance. My mother is a two time breast cancer survivor and has recently been diagnosed with stage 4 Metastatic breast cancer and Bone cancer, specifically within the Iliac bone. My mom is in constant pain and discomfort. Mom has a wonderful Oncology team in place, my…
Bone Mets from Breast Cancer
I'm having a 5th time repeat (active cancer) of cancer. It started in 1997 w/Breast. It happened again in 98 in my right pelvis, again in 2000, 2002 and now. It's back in my right pelvis, my right thigh,etc. and that's a large 'etc.' My oncologist wants me to see a bone specialist and I've seen many in the past. In my…
hotels with 'hospital type' adjustable beds
My sister has metastatic breast cancer in spine, pelvis and lining of her brain. We are in Southern California and I'm looking for a hotel, condo or home from Newport Beach - to Dana point, CA that is wheelchair accessible and has hospital style adjustable bed. Any suggestions on how to find a resource for this request?…
I think my ewing is back I have a inguinal hernia
I had ewing with a hernia before now I have a different kind of hernia inguinal hernia plus my leg is getting realy big like the first time. Hope fully they wont allow me to go into coma this time. But I do think I have ewings again has any one else herd of this happening with them or any one they know?
Myelofibrosis
I was diagnosed at 32 in 2002,and have had a splenectomy and I am currently in remission.is there anyone else out there that has this rare bone marrow disease? its also has other names one being Agnogenic Myeloid Metaplasia ,another is Idiopathic Myelofibrosis or Primary Myelofibrosis...I would like to meet other with…
sacrum cancer mets
Hi has anyone got any information on secondary sacrum cancer after colon cancer
secondary sacrum cancer
Wondering if anyone has any information about secondary Sacrum cancer.
porta cath pain
Do any one have pain in your chest from there porta cath. Especialy when your given injections or even touching it. I have had this for at least 20 years now and when I use to get injections it would hurt. Now when I mess with it my chest hurts the same way. I havent been able to get my doctors to find it in me when they…
total femur replacement
My husband is 38 and was diagnosed with osteosarcoma in May. He is set to have a total femur replacement (knee, femur, hip) in August. Is there any one out there that has had this surgery with success?
Metastatic stage IV bone cancer
Dear fellow members, My father has been diagnosed with metastatic bone cancer from liver. He has undergone radiation therapy. He still has lot of pain in his back bone. He is 66 years old and weak condering his medical history. I wanted to know whether APRICOT SEEDS are actually helpful in fighting cancer? Is there any…
What blood tests indicated your cancer?
Can anyone share which particular blood tests indicated the presence of bone cancer? I am asking for my mom who is in very poor physical condition without any diagnosis yet. She has bruising that will not go away, weakness, has lost 15 pounds, has severe pain in left hip and says her legs feel so weak and she falls a few…
pain in forearms
I have developed pain mainly in my forearms. I have a limb that has developed on my right forearm and my arm feels like the bond is breaking. Now the pain I'd in my left forearm. It is breath taking it hurts so bad. The doctor said she thought it was a cyst pushing on nerves, bit it is the bond that hurts not nerve pain.…
Deformed posture
Hello, My histology is as a survivor of adenocarcinoma 3B lung that had metastaticized to my chest above my heart (plueural space). My recurrence is neuroendocrine tumors (NETs) throughout my skeleton. As the bone pain increases, I've noticed that I slouch to alleviate the pain. Should I have this looked at as…
Signet Ring Cell Carcinoma of Unknown Origin metastasized to bone marrow
Hi, My son, 39, was diagnosed 3 and a half months ago with signet ring cell carcinoma of unknown origins, metastasized to the bone marrow. We are really afraid because there is so little information about this cancer and presentation and what is on the internet is not optimistic. He was told he had from 3 months to 3 years…
chondrosarcoma
Has anyone suffered from the above? I was diagnosed in July, and the location of the tumour was in my shoulder blade. I would like to make contact with anyone with similar problem.
Fibroblastic osteosarcoma metastasized to bones
Hello everyone, My younger brother (23yrs) has been diagnosed with Fibroblastic osteosarcoma which has metastasized to his bones. He is undergoing chemotherapy (Etoposide and Ifosfamide) and is due a PET Scan next week. He has also been administered a dose of Zol acid. My question is, are there any specific treatment…

Bone Cancers

Discussion List

Discussion Boards