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Bone Cancers

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Survivor looking for other limb salvage patients to start a support group
Hi, my name is Corey (female) and I was diagnosed with a rare form of bone cancer in my distal femur at 24, parosteal osteosarcoma. My treatment was limb salvage surgery using a compression implant. After living normally for 24 years, I had 10 days between finding out I had cancer to limb salvage surgery. Although my limb…
Concern About Bone Health After Cancer Treatment
Hi everyone, I’m reaching out because I’ve been feeling a bit concerned about my bone health after going through cancer treatment. I was diagnosed with, and after undergoing treatment (chemo/radiation/surgery), I’ve noticed some unusual aches and pains, particularly in my joints and bones. I’ve read that cancer treatments…
Daughters Bone cancer
I am new at this so please bear with me. My daughter now has Stage 4 Bone Cancer. She was diagnosed with a rare uterine cancer in 2008. After years of medication, chemo, and radiation and a few years in remission the cancer has returned as bone cancer. When this was discovered she was already at Stage 3. She is a single…
Osteosarcoma Metastases to Lungs
My wife was diagnosed with Osteosarcoma in her right upper arm last August. She went through 6 rounds of chemo and limb salvage surgery. A CT scan determined that it had metastasized to both lungs. She had 13 spots in her left lung and around 20 in her right lung. These were tiny sub centimeter nodules that were barely…
Myelofibrosis
I was diagnosed at 32 in 2002,and have had a splenectomy and I am currently in remission.is there anyone else out there that has this rare bone marrow disease? its also has other names one being Agnogenic Myeloid Metaplasia ,another is Idiopathic Myelofibrosis or Primary Myelofibrosis...I would like to meet other with…
I felt unwell today and I got a little scared. I’m recovering from chondrosarcoma.
I’ve only had one CT scan since my surgery to remove my bone cancer and the scan came back pretty good. So I’ve just been going about my normal routine and trying not to worry much. But today I was tired all day and I had a terrible headache. All in all I felt terrible and weak. I can’t say I have ever felt this particular…
I think my ewing is back I have a inguinal hernia
I had ewing with a hernia before now I have a different kind of hernia inguinal hernia plus my leg is getting realy big like the first time. Hope fully they wont allow me to go into coma this time. But I do think I have ewings again has any one else herd of this happening with them or any one they know?
New and a bit scared
I’m new to cancer. I was diagnosed with high grade Chondrosarchomas (grade 3). It was a huge lump on my collarbone. My doctor removed my collarbone and the pathology report says it didn’t spread. But the CT shows a small nodule in my lung and scattered lucencies on my sternum. I’m no doctor but that sounds like it spread.…
Ewing's Sarcoma
Hi, I am a cancer survivor of Ewing's Sarcoma, AKA Bone Cancer, I am a 19 year old female and would love to share my story with others going through the same or similiar diagnosis of any type of bone cancer. Email Skippy6270@aol.com thanks, Shelly:o)
Tumor found on pelvic bone
My girlfriend had an MRI two weeks ago and a 3 centimeter tumor was found in her pelvic bone. The doctor told her he could not think of it being anything other than cancer. And he ordered another MRI which she had two days ago. We are still waiting for results. The wait is killing us. Why would he want another MRI before…
Osteosarcoma limb salvaging procedures
We are trying to weigh options for my 9 year old niece who was recently diagnosed with Osteosarcoma of the distal femur. She is being treated at M.D.Anderson and they are advocating rotational plasty as an option due to increased functionality. I am looking for information regarding the "growable"/extendible endoprosthesis…
Radiologist report says bone marrow uptake and metastasis.
So the radiologist report for my wife's Pet/ct scan says the following: "Mild focal FDG uptake within the proximal left humerus SUV 2.0 Differential includes physiologic marrow uptake and metastasis." Our doctor says don't worry about that. He says it's nothing. We'll we are worried! Should we be? Can anyone give us some…
chondrosarcoma
Has anyone suffered from the above? I was diagnosed in July, and the location of the tumour was in my shoulder blade. I would like to make contact with anyone with similar problem.
femur replacement
I've had 17 surgeries trying to give or save my hip. I had two surg as a teen.june 2002 to feb 2003 a dr gave me 8 surgeries and my present dr 7. six were total hip replacements & 1 for reconstructure of the fractured femur after their 2nd attempt.My femur has crumbled about 3 inchines & the july surg did not take either.…
(Vent) My mom has bone cancer and is acting differently
I’m 19 years old, I watch over my mom, 49, who has bone cancer. She has diabetes and multiple issues with her lungs and heart, and many surgeries with unclogging arteries, removing a hernia, and has survived a diabetic coma in the past. Whats worse is, people had given her COVID 3 times. My mom survived each time she…
Metastasized Lung Cancer (Osteosarcoma)
Anyone out there who is surviving metastasized lung cancer? My 25 yr old daughter was originally diagnosed with Osteaosarcoma Sep 2018. Had limb salvage surgery to remove tumor in her knee Jan 2019. 2 years later the tumor re-appeared further up her femur. She had a hip disarticulation Sep 2021, to remove her full leg. Feb…
Recovery from fatigue after radiation therapy
I completed radiation therapy for a skull cancer--the "mask business" with a Tomograph machine. I had NO chemo. Therapy lasted 7 weeks, 5 days a week. I got the max dose. I was told that the aftermath would be extreme fatigue. Yes, indeed. It was extreme. Also in the mix were hand cramps, coordination and thinking…
Confused and really need answers after many years
In 2007 after getting a bone scan done for right leg pain the orthopedic doctor came into the room and showed me the image of my bone scan and told me that I had bone cancer. I was stunned and so scared. I didn't know how to feel or what to think. I wanted answers and have been searching for answers ever since. I had a MRI…
Myelofibrosis, post-ET, lab results?
What's kinda standard or common to see in a cbc/differential lab in someone with Myelofibrosis? Are nRBCs super common? Thanks.
Ribs and coughing
Hi, I’m newly diagnosed metastatic breast cancer and have lesions through my bones (literally head to toe). I had a question about my ribs though which I have lesions there too. Is it supposed to hurt this bad when I cough? I have to use a pillow to brace myself. My breathing isn’t labored or anything it’s just when I…
Jaw pain
Ive got pain in it even when i lay my head on the pillow.
Adamantanoma Help
I was hoping you could point me in the correct direction for information pertaining to treatment. A very close friend of mine was recently diagnosed with Adamantinoma in the top of her tibia. Five weeks ago the tibia along with her knee were removed. On the full biopsy after the tumor was removed the oncologists found some…
Adamantinoma
Do you have Adamantinoma?
Bone Cancer: Adamantanoma
Hi, I am new to this chat group. I am looking for others who have had a rare bone cancer called Adamantanoma. Often, this type of cancer can be found in the jaw. Mine was in my left tibia. If anyone knows where I can get information/research, please let me know! Thanks!
OFD-Like Adamantinoma
My 13 year old son has recently been diagnosed with a Oestro Fibrous Displasia - Like Adamantinoma. He had an operation in Dec 2014 where the surgeon took a shark bite section out of his right tibia about a third of the shin was removed. He had a section of donor bone inserted and the front of the shin has been plated. He…
Osteosarcoma of the Maxilla
Hi, i am currently dealing with my third recurrent osteosarcoma tumor of the maxilla. I will be going in for surgery early May at MD Anderson to remove the tumor, my right eye, and a complete rhinoplasty along with a reconstruction of my upper jaw using my right hip bone. It will be a huge surgery as you can imagine. I'm…
Bone Cancer Signs & Symptoms
Over the past month, I've been experiencing a dull ache on my left flank area. Went to the doctor to have a urine sample checked. The doctor surprised me with having rib x-rays done. Over the past week have had some shoulder discomfort radiating down my arm. Discomfort is mild. Over the past 11 months, I was diagnosed with…
Guidance and Support new diagnosis..Breast & Bone Cancer
Good afternoon I am writing you begging for help and guidance. My mother is a two time breast cancer survivor and has recently been diagnosed with stage 4 Metastatic breast cancer and Bone cancer, specifically within the Iliac bone. My mom is in constant pain and discomfort. Mom has a wonderful Oncology team in place, my…
Bone Mets from Breast Cancer
I'm having a 5th time repeat (active cancer) of cancer. It started in 1997 w/Breast. It happened again in 98 in my right pelvis, again in 2000, 2002 and now. It's back in my right pelvis, my right thigh,etc. and that's a large 'etc.' My oncologist wants me to see a bone specialist and I've seen many in the past. In my…
hotels with 'hospital type' adjustable beds
My sister has metastatic breast cancer in spine, pelvis and lining of her brain. We are in Southern California and I'm looking for a hotel, condo or home from Newport Beach - to Dana point, CA that is wheelchair accessible and has hospital style adjustable bed. Any suggestions on how to find a resource for this request?…

Bone Cancers

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