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Some tips from CSN
Welcome to the CSN! Below are some tips to help you get started following and posting on the boards. You can follow your preferred discussion board to get notifications of new topics and comments. To follow a board, navigate to your preferred board and then select the bell at the top, followed by your notification…
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Remission
I haven't been on here for a while (maybe a year) and have not had any more symptoms of the EC diagnosed in March 2023. They used to call it remission but I'm not sure if that term is still in use. I'd always been told what an aggressive cancer EC was and was told it was an esophagectomy or bust for me. I didn't opt for it…
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Biopsy today
I am a 55 year old female. I had a EGD done today. They biopsied a spot that they said looked suspicious for squamous cell esophageal cancer. I’m scared to death. Can anyone offer me any information please?
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MSK, Mayo or Sloane? Best Treatment Center
My mom likely has esophageal cancer (waiting on official biopsy) and we are trying to decide the best place for her to go. Does anyone have any advice on the best hospital for treatment? Currently looking at Sloane Kettering, Mayo in MN or MD Anderson. She lives in upstate NY but we are willing to go wherever she will get…
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Is esophageal cancer genetic?
My mother's mom died of esophageal cancer, and now my mother also has esophageal cancer. Is esophageal cancer genetic? What do you think? Do you have relative also has EC?
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Update from France after esophagectomy July 8
I did reach out for support here after a cancer was detected in my lower esophagus in January. Time for an update. Eating became so difficult a J-tube was fitted in my stomach to keep my weight up. I underwent 5 weeks of Radiation and chemotherapy during April/May, which shank the tumour so much I was almost eating normal…
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Agent Orange esophageal cancer
My husband had stage 4 esophageal cancer. He was a Vietnam veteran confirmed to be in agent orange spray zones. He also was VA disabled 70%. When he claimed the esophageal cancer he was turned down by the VA. I feel they let our Vietnam veterans down by denying this as an agent orange disability. He was physically sprayed…
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17 year survivor
may 2024 be a better year for you all. It’s been a long time since I last checked out this site. I wanted to offer hope to any and all that visit. I am an unusual 17 year survivor and you might be too! Please feel free to reach out
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Hi, I'm New Here
Hi, I'm Nan I'm 71 and had surgery for gastro esophageal cancer 6 months ago. It was a rough surgery and I had stomach issues. Finally about 2 wks ago I was feeling like my old self again and was very happy. Now a week ago they did a pet scan and found a suspicious tumor at the gastro esophageal junction again. They took a…
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Recurrence
Hi, Well wishes to all of you. I started chemo yesterday for a recurrence of gastroespohogeal cancer (at and near GE Junction) . First time was caught very early (stage 1) while checking for a minor swallowing probem and was treated with chemo, radiation and immunotherapy (not a candidate for surgery because of other…
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Esophagus cancer
Hi my husband has stage 3 esophagus cancer. He has been spitting up phlem for 3 months now and it is really bad just wondering if anyone else had this. His dr stretched his esophagus two weeks ago it didn't really do much for him. They are going to streach it again next Tuesday and maybe put in a stent. He is very…
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Advice for 84 year old male going through chemo/radiation stage 4 esophageal cancer
my friends father just had his first treatment of chemo for stage 4 esophageal cancer. The side effects are such that he is expressing regret at beginning treatment. He still has more treatments and radiation as well. What advice to you have for both the patient and his family? Do you sympathize and encourage? Do you let…
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Radiation side effects
I just finished this week 30 treatments of esophagus radiation, about 4 inches above my stomach junction. I also went through 30 radiation treatments for neck cancer and 6 weeks of chemo. My question is I have acid reflux bad and the dry heaves that are really misserable, how long before this all goes away. Thanks for any…
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Seeking Long-term Survivors of Esophageal Cancer
Hello everyone, My name is Anna, and I am reaching out to this community for support and information. My husband has been diagnosed with stage 2 adenocarcinoma of the esophagus. After undergoing chemotherapy and radiation therapy, he is now scheduled to have an esophagectomy. I am very anxious about the surgery and what…
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Esophageal cancer spouse
my husband has had 2 chemo treatment rotations and I’m looking for live/in person emotional support groups for spouse or family members trying to provide support and care for patient in San Diego, CA
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“Positive” Esoguard Test
After six months of swallowing becoming more difficult, I had an Esoguard test done January 31, 2024. On February 13, I got the call it came back positive for Barrett’s Disease and/or adenocarcinoma esophageal cancer. It doesn’t specify which one. My PCP gave me a referral to a GI doctor, but most are booked out until…
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Stage 4 Esophageal Cancer, Age 40, Australian
Are there any other Australians out there with Stage 4 Esophageal Cancer? This is my husbands story about how he was diagnosed https://mctas.wordpress.com/2015/08/20/diagnosed-with-stage-4-esophageal-adenocarcinoma-esophageal-cancer/
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Recurrent esophageal cancer
Hello to you all. My husband was initially dx w/stage IV EC in April 2018, at age 55. After 2-1/2 years of aggressive chemo, he's been in remission since mid-2020. He was declared NED and we were elated!! Other than neuropathy in his feet which is quite bad, no swallowing problems or other symptoms. He had a routine…
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Intermittent dysphagia
tongue cancer survivor here. Last two weeks on a few occasions I have experienced fairly intense discomfort/ aching pain behind my breast bone when swallowed food. Food feels like it has been stuck or is passing slowly in that area. I have not coughed up food. Most meals I eat fine without these problems, however. I’m…
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Brain radiation side effects
As I posted back in November, it was discovered that the cancer had metastisized to the left frontal lobe of Rickie's brain. Radiation was done for 10 days the end of Oct. This helped greatly with the movement in his right leg and arm. We were told some of the side effects would be hair loss (that happened)Slower cognitive…
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New Guy
I was diagnosed with Esophageal Cancer last Monday. I'm a mess. Nightmare of care co-ordination with providers and insurance. How do I see the entire post of people who post? I see things like, "The most important thing you can do to survive is....." And then gets cut off. Tips, suggestions, advice welcome. Thank you.
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Post Op throat
I had my Esophagectomy on 12/19. They also did a small neck dissection and they had to do that gastro thing… forgot what it was called. I’m doing pretty well and have a great prognosis. My question is has anyone else experienced a raw throat feeling that kind of takes your breath away and makes ya cough quite a bit?
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Hoarse voice and running out of air.
hi! I’m almost 5 yrs in remission from esophageal cancer with heavy doses of chemo and radiation. The radiation left my neck scarred red. That doesn’t matter because I’m here! But…..lately I’ve had a hoarse voice and seem to run out of air when I’m saying something. Has anyone had this happen? I don’t mean long sentences…
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Oncologist and Thoracic Surgeon Seem to Disagree
I was diagnosed with a cancerous nodule in my esophagus in January 2024. It was removed via EMR in April. The pathology report indicated that the cancer cells were moderately to poorly differentiated and there had been lymphatic vascular invasion. I met first with my thoracic surgeon who said given my condition, data…
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Way Post Surgery
Hello, I am a 74 YO, seven year survivor of esophageal cancer. I had an esophagectomy in October of 2017. Now I am experiencing some serious lower back pain. My surgeon is suggesting a spinal cord stimulator. He wants to schedule an MRI but I am wary of lying flat for up to an hour. Further, if I decide to proceed, the…
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Concerned about possible esophageal cancer
Hi All, I'm concerned about esophageal cancer and I have an endoscopy scheduled for next month. My history: I've had GERD since I was 12 years old (I'm 30 now) and took PPI's from 12 yrs old up until a year ago when I switched to the max dose of famotidine because I was dx'd with osteopenia. I have gastroparesis which…
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Lonsurf
Hello there. My husband has been diagnosed with stage 4 esophageal cancer (with metastases near his pelvic bone and some spots on his lung as well). He had 10 chemo sessions since August 2023, unfortunately nothing seems to work at this point. His doctor had suggested for him to take Lonsurf as a "last resort", and they…
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Post Esophagectomy
My husband was diagnosed in February with early stage 1 esophageal cancer. He underwent a transhiatal esophagectomy on May 17th. Lymph nodes and tissue surrounding his esophagus were biopsied and all came back negative and he has been deemed cancer free. What I am dealing with now as his caregiver is his mental state. He…
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Squamous Cell Carcinoma of Esophagus
63 male former drunk and sober since July 23, 1998, since smoking went hand in hand with drinking I also smoke ciggs, you know the little warning that says it causes cancer? they ain't lying, says right there on the box. now I will say that life has been the experience of a life time, learned tons and will never stop…
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Lung issues 10 years after Ivor Lewis surgery
My husband is a 10 year survivor, with minimal negative quality of life issues. He had the Ivor Lewis full removal of his esophagus. However, apparently after intermittent reflux through the years, last year he developed a lung absess (infection) which made him very sick. (They thought it could be lung cancer at first view…
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Proton Therapy Insurance challenges
Has anyone in the group faced challenges with insurnace denying proton therapy? I am with Unitsd Healthcare and they have denied stating its efficacy is not proven. How do I overcome this challenge - my doctor at MD Anderson is appealing second time