Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Pancreatic Cancer

New Pancreatic Cancer Discussion Board
Welcome to the new Pancreatic Cancer discussion board. Previously, pancreatic cancer was part of the Rare and Other Cancers board, which is where you will still find all of the previous pancreatic discussions. We've moved over two discussions to help launch the new board. Thank you, Your CSN Support Team
Some tips from CSN
Welcome to the CSN! Below are some tips to help you get started following and posting on the boards. You can follow your preferred discussion board to get notifications of new topics and comments. To follow a board, navigate to your preferred board and then select the bell at the top, followed by your notification…
Looking for a little little advice for my older brother
my older brother who will be 67 in a few weeks went in for an MRI on his back about a year and a half ago. They accidentally saw a cyst in his pancreas. It was very small about only 2 mm. So now 14 months later, he went for another MRI this time they’re telling him it has grown. I don’t know exactly how much but they want…
Can your ca19-9 level go up even though tumors are shrinking?
My husbands, who has metastatic pancreatic cancer (spread to his liver) latest Ct scan showed that his tumors have slightly shrunk. The tumor on the pancreas from 3.7cm to 3.0cm and the liver tumors have also shrunk some. However his CA19-9 level has gone up. He has had 4 rounds of chemo so far. Does that mean his…
After Whipple
I had the Whipple in May and they cut my artery so the surgery lasted 15 hrs instead of 8. I was doing ok until chemo I was taking IV once a week and taking 18 pills a day . The pills made me coma kinda sick So I stopped. I still get IV. The Dr said chemo is protocol after having the surgery and is upset I won't take the…
Why is pancreatic cancer considered one of the deadliest and most insidious cancers?
Pancreatic cancer is particularly lethal due to two key factors: Its "stealth" nature & aggressive spread. 1. Silent Progression: In its early stages, pancreatic cancer typically causes no noticeable symptoms, such as pain or discomfort. This silent progression allows the disease to grow undetected for a long time. 2.…
Late recurrence in ovary?
Hi all, My mom (68, in excellent health) had a distal pancreatectomy/splenectomy in August 2020 for pancreas adenocarcinoma thought to have originated in a mucinous cyst. Had 12 rounds of FOLFIRINOX. Clear scans every 3 months/6 months up until last month when a new 7cm left ovarian cystic lesion showed up. She had surgery…
Mental Health Help and General support.
Hi All, First post! I was diagnosed with Pancreatic adenocarcinoma Stage 1A - Valentines day 2020, age 48 Male- so I just passed 3 years! I got lucky and had jaundice eventually, the CT scan the prior week missed my tumor. I had 6 rounds of Folforinox, & had a Whipple at AdventHealth Orlando. I have really bad PTSD,…
Whipple Attack
I've only had 3 episodes that i think are Whipple attacks... And only recently (within the last month). I was whipped June 2, 2020 and I have been NED since Oct 2. Last month, i was asleep during the day, in my recliner, and had a sharp pain in my abdomen that awakened me & only lasted about 30 seconds. The second two…
New to this group
I’m new to this group and am looking for information for my husband’s pancreatic cancer. He had a partial Whipple but now has spots on his liver so will not finish the Whipple but will have chemo!!!
Getting Diagnosed
my spouse has muscle invasive bladder cancer which was found accidentally due to abdominal pain, back pain, significant weight loss. He has had scans which showed a cyst then a second scan a month or so later showed the cyst doubled in size and a. We one formed and the tail of the pancreas had necrotic tissue. He has had…
Pancreatic What treatments work best
So my mom was diagnosed with Stage 4 pancreatic and it's in her liver. She started with only gallstones but they didn't want to remove her gallbladder because they were bigger and not going any where. All of a sudden she was having issues eating food. Each time caused severe pain in upper abdomen and doubling her over. CT…
Non chemo treatment
I am helping my 60 year old friend who has an inoperable tumor the size of a lime. It has not changed size in a year. He has done everything except chemo and radiation. Are we allowed to collaborate with others on here who are trying alternative approaches or will I get censored just for asking?
Having difficulty with caretaking
Hi. My mom was diagnosed with stage 1b pancreatic cancer in December and underwent chemotherapy almost immediately after and had a total pancreatectomy in April. She has bounced around from care facilities to hospitals and is now home. She is unable to walk on her own, use the restroom alone, and constantly needs someone…
Sister Has Pancreatic Cancer
Hi. My sister has pancreatic cancer. She lives in Western Canada and I live on the East Coast of the U.S. I went to visit her in October for a week to help her while she was getting chemo. The challenge I’m facing is that I don’t really know what is happening. She is being very optimistic about “kicking cancer to the…
Liver Lesions
Wondering if anyone else has been through this. Had my whipple beginning of April (2024). My first scan showed a few lesions (scan was done when I was re-admitted due to an infection the same month of the whipple). 3 month scan showed a few more lesions but they're too small for them to biopsy. I'm now waiting a month to…
Dad has Pancreatic adenocarcinoma stage 1b, and MDS
My Dad, 79yo has had Myelodysplastic Syndrome del 5q for a little under 2 years now. 3 weeks ago, he was diagnosed with stage 1b Pancreatic Adenocarcinoma. He cannot have chemo, but they did approve him to still have a Whipple Surgery. I am very concerned with the risk of cell spread during surgery. Does anyone have any…
Any Pancreatic Neuroendocrine Cancer Patients in active surveillance?
If this is not the right forum, please excuse my post. For Pancreatic NC people: How long have you been scanned and how often? Do you worry about the radiation needed to scan or the dyes needed? This is my third cancer, but it is so different from my rcc. It is a subset of pancreatic cancer and a subset of neuroendocrine…
Pancreatic Cancer
I am 85 years old, have inoperable pancreatic cancer that has spread to other areas, and I just started my first chemo treatment of Fluorouracil (5-FU) on September 25th. It has been eight days and I have had absolutely no significant side effects. My second round of chemo will be on October 9th with the addition of…
Whipple procedure for 70plus
my father is facing the tough decision of weather or not to undergo the Whipple procedure this month. He has completed two rounds of chemo and the doc says that the tumor has shrunk enough to remove it surgically. He is 70 years old and in good health otherwise. He was diagnosed with stage 2 pancreatic cancer in July 2023.…
Gaining weight after chemo
My dad is struggling to gain weight after his chemo & pancreatic surgery (he had the Whipple procedure). He is deemed cancer free, is eating all the time but cannot seem to gain weight. He is eating lots of protein, drinking an ensure, adding calories wherever he can and still cannot gain. He is somewhat limited in what he…
Pancreatic Cancer Survivors
Hello, I am wondering if there is a place to find out the longest surviving Pancreatic Cancer survivor. I am doing great myself since 1/2005 Whipple. I thank God for my blessing. I am looking forward to getting through five years, only 3 1/2 years to go, so I was wondering if anyone has contact or knows any Pancreatic…
Pancreatic Cyst 1.2 cm - what next?
I’ve just been through Ct/MRI and found a lesion/ cyst 1.2 x 1.2 on the head of the pancreas, close to duct. The cyst is a IPMN. I’m reading much to get up to speed for my gastroenterologist appointment on next steps. Can anyone advise as to how to proceed from here for optimal health outcome? Do I get into a specialist…
PC Symptoms Questiona
Hello My sister has been having pain under/below her left breast for about 4 weeks now and thinking it was the ribs. Feels tender to the touch. Pain when breathing. Going for a CT Scan next week. X-Rays showed no rib issues. Don't want to jump to conclusions but maybe someone can post pain symptoms of PC. Thank you.
Cancer Antigen 19-9
Hello, My husband was recently diagnosed with pancreatic cancer. He presented with bad gastritis and quickly became jaundice. He was admitted to the emergency room where several tests revealed a mass at the head of his pancreas. There does not seem to be evidence of spread. The recommendation is for 3 months of chemo (on 3…
Pancreatic and Gastric cancer simultaneously
Has anyone else been diagnosed with pancreatic cancer as well as a totally unrelated gastric cancer at the same time? Were you given any hope?
Just short of 5 years, Pancreatic Cancer returned. It is small, but I don't want to wait until Dec
December 13, 2018: I was diagnosed with Stage 3 Pancreatic Cancer. After Whipple surgery and Chemotherapy, the Pancreatic Cancer did not return until now, just a few months shy of 5 year anniversary (which they say is the red line for the recurrence of Pancreatic Cancer). June 30, 2023: I just underwent 2 weeks of…
waiting on admission
I'm going to preface this with I do not have confirmed diagnoses. I'm not looking for advice. just venting to people who will get it.🤢 The scans I have had so far show very severally atrophied pancreas, 11 mm bile duct dilatation (I've had both my spleen and gallbladder already removed). I live very remote. Angel Flights…
Fever from Oxaliplatin
My husband's second Folfirinox treatment was Wednesday, 9/27. A few hours later, he had a fever of 101.2 with intense pain throughout his body. The on call nurse instructed him to take 2 Tylenol and he still had a fever in the morning, so he had to go to MSK for a fever workup. They did a whole bunch of tests, including a…
Hi there
I was informed 72 hours ago by my doctor that it was " extremely likely" I had pancreatic cancer in the tail of my pancreas. I had been given an urgent referral to UVA in Charlottesville VA and having spoke to them have been told I should have my first appointments with them later this week, I'll be honest I'm still…
Modified Appleby Procedure
Husband is a Stage 4 pancreatic cancer patient. Currently going through treatments. Drs are now recommending the Appleby procedure. I have read about it but looking to connect with anyone who has had this procedure.
Has anyone had the "WHIPPLE " (PPPD) procedure completed?
Hello, My name is Jayda. I'm a 26 year old MBA student who works full time. My mother, who is 54 years old, is currently lying next to me at North Side Hospital in GA and has completed the CT, MRI, and MRCP scan. For the past week she is showing all the positive symptoms of pancreatic cancer. Grey stools, dark urine, itch…

Pancreatic Cancer

Discussion List

Discussion Boards