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Pancreatic Cancer

New Pancreatic Cancer Discussion Board
Welcome to the new Pancreatic Cancer discussion board. Previously, pancreatic cancer was part of the Rare and Other Cancers board, which is where you will still find all of the previous pancreatic discussions. We've moved over two discussions to help launch the new board. Thank you, Your CSN Support Team
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Mental Health Help and General support.
Hi All, First post! I was diagnosed with Pancreatic adenocarcinoma Stage 1A - Valentines day 2020, age 48 Male- so I just passed 3 years! I got lucky and had jaundice eventually, the CT scan the prior week missed my tumor. I had 6 rounds of Folforinox, & had a Whipple at AdventHealth Orlando. I have really bad PTSD,…
Pancreatic Cancer Survivors
Hello, I am wondering if there is a place to find out the longest surviving Pancreatic Cancer survivor. I am doing great myself since 1/2005 Whipple. I thank God for my blessing. I am looking forward to getting through five years, only 3 1/2 years to go, so I was wondering if anyone has contact or knows any Pancreatic…
Chemo meds and body/joint aches/pain
Hi, new here. My fiancé was diagnosed late September ‘22 with pc and just started chemo this past Thursday due to need for clearing of other health issue. Since 1st chemo treatment he has begun to experience total body and joint pain (from his neck to the bottoms of his feet). Our question is: Does this pain get worse or…
Does Folfirinox works and how to deal with the side effects
My husband was diagnosed with PC late last year, he had a central pancreatectomy to removed all the tumors. However had some positive margins on the splenic vein. Now the oncologist put him on the Folfirinox regimen. He had 2 cycles, but each one worst than the other. His stomach is growling non-stop, unable to eat for a…
Folfirinox failed to shrink my tumor
I had a scan on the 23rd after 2 months on Folfirinox and the tumor scarcely shrank--while inching closer to encasing the mesenteric vein. My oncologist did not give me my 5th Folfirinox on Monday but switches me to Gemcitabine/Abraxane tomorrow. My question is, why would Folfirinox not work? Did anyone else have that…
Can't get a conclusive diagnosis
Hello, I've had esophageal cancer three times and have beaten it back successfully each time. But now I have a mass on the head of my pancreas that is suspicious for cancer, but it can't be definitively stated what it is. I've had a CT scan, a PET scan, an MRI (my second MRI is later this morning) and THREE endoscopic…
My dad has pc
My dad is in his last stages of pc and I am not sure how to handle this. I am a daddy's girl and if anyone has any supportive words or anything. I am looking for anything to help me through this. Thanks
Stage 1B - Maybe stopping chemo
Hi - My mom, age 83, was diagnosed with Stage 1B pancreatic cancer in May 2021. She decided to not have the Whipple surgery because her COPD (non-smoker) is a complication. She is still in Stage 1B. She has completed 18 treatments of Abraxane and Gemzar at 80% followed by 3 shots one day at a time to stimulate white blood…
Father was just diagnosed - I'm confused
Hello, and thank you for reading. My father was just diagnosed, but with zero symptoms. We don't have a "stage" just yet and are also still waiting on liver biopsy results. Doctor was surprised at how well he looked and active he was along with no weight loss....per what was found in his pancreas. This doesn't make sense…
Pancreatic cancer and symptoms that lead to a diagnosis
Can some please give me some advice, I have had stomach problems for the past year, and pain in my back. What was your symptoms before being diagnosed with cancer? What city was your diagnosis and did you need insurance? Can someone please help?
Losing weight
I'm post surgery and chemo. Still weak and can’t do too much without tiring I’ve been using Creon for a while and still losing weight. My next visit to my oncologist is in August. Would like to discuss timeline with someone who has gone through similar situations. In Seattle/Tacoma area. Just turned 77
Humbly Asking for Guidance - Stage 4 Adenocarcinoma
On March, 24th, I sat with my dad at his oncologist's office. My dad sat in the patient's chair, and I sat next to him on a cold steel chair. My hands were sweaty and clammy...I was anxious, nervous, hopeful, scared, but all I could do was look back at my dad and ask, "Are you okay?" My dad was like always, calm & cool,…
Any Pancreatic Neuroendocrine Cancer Patients in active surveillance?
If this is not the right forum, please excuse my post. For Pancreatic NC people: How long have you been scanned and how often? Do you worry about the radiation needed to scan or the dyes needed? This is my third cancer, but it is so different from my rcc. It is a subset of pancreatic cancer and a subset of neuroendocrine…
Feeling very scared
I am a survivor of stage 1 colon cancer since 2007. It'll be 14 years in November. And now, a CT scan has shown a large mass on my pancreas. Tumor markers for colon and pancreas are very elevated. my PET scan is scheduled for this coming Monday, and a biopsy will follow shortly after that. Trying not to hit the panic…
Abraxane National Shortage
I have stage 4 pancreatic cancer and have had "stable" CAT scans for 6 months on therapy regimenof Abraxane and Gemzar. I went for my infusion on Nov. 3rd and was told there was no Abraxane available for my treatment due to a national shortage. I still have not received any Abaxane. Anyone else a victim of this healthcare…
Pancreatic Cancer Awareness Day 11/6 Program
The Pancreas Center of Columbia Presbyterian Medical Center in NYC will be holding its 16th annual Pancreatic Cancer Awareness Day program open to all. The informative program will feature Pancreas Center Chief-of -Surgery John Chabot along with speakers surgeon Michael Kluger MD and clinician/researcher Gulam Manji MD…
UNKNOWN PRIMARY CANCER
My husband was diagnosed with an Unknown Primary cancer. Lymph node in left side of neck was found malignant, but all CTs cannot detect any cancer. His bloodwork is excellent. But his CA-19 came back today at 203. It was 0 when we started out then climbed as high as 1400 and then dropped to 256 then down to 35. Next is was…
Any good financial advice for spouses who are dealing with metastatic pancreatic cancer
asking in behalf of a friend. They are very proactive and supportive of one another, but finances will be an upcoming discussion. I haven’t been able to find anything that deals with this part of the issue.
Enzymes
How long do you have to take enzymes before they begin to work? My husband is several years out from his Whipple procedure. He did well with the surgery and chemo. However recently he has been getting stomach cramps and diarrhea. He called the doctor and they started him on enzymes. he no longer has cramping but the…
No whipple
I would suggest against Whipple. Once you allow surgery in the organ area it can spread quicker and the cells may divide faster. Whipple also causes great hardship in absorbing any calories much needed. My friend did great until surgery then basically his disease accelerated and he could not recover.
Whipple Attack
I've only had 3 episodes that i think are Whipple attacks... And only recently (within the last month). I was whipped June 2, 2020 and I have been NED since Oct 2. Last month, i was asleep during the day, in my recliner, and had a sharp pain in my abdomen that awakened me & only lasted about 30 seconds. The second two…
New to this board
Hi I just had my CT scan for a kidney cancer follow up. They found a 1.4 cm mass on my pancreas. Just wanting some advice on what to expect. I'm waiting for a call and consult from a gasterentolgist to schedule a biopsy. That's all I know right now. Thanks in advance.
Gaining weight after chemo
My dad is struggling to gain weight after his chemo & pancreatic surgery (he had the Whipple procedure). He is deemed cancer free, is eating all the time but cannot seem to gain weight. He is eating lots of protein, drinking an ensure, adding calories wherever he can and still cannot gain. He is somewhat limited in what he…
Caring for my Mom
Hello, I'm looking for other caregivers of family members who have end stage pancreatic cancer for support. Thank you
Pancreas CT scan question
i read a previous threat where someone was asking whether anyone who has been diagnosed had a clear CT scan. I can relate.. somewhat. My dad has been complaining of excessive burping. It is extreme! We're not sure what's causing it, althoguh he has multiple offenders (hiatus hernia, gastritis, gallstones... all of which…
Well Heck! 12 years out and a CT is needed
Hello To any that know me on the boards here and at Smart Patients. The latter happens to be down at this time. Just a qiuck note. My wife has been doing pretty good as anyone with stage 4 cancer can do. But, now she is a nervous wreck worrying about my situation. Seems this new pain in my abdomin is in my liver and my…
Lutathera
My husband is about to begin Lutathera treatment for neuroendocrine pancreatic cancer. Has anyone else been treated with this drug? Can you tell us what it's like?
Was any ones PC initially missed on a scan?
Hi all - thanks for for your help. I’ve been terribly worried that I could have pancreatic cancer. I have the abdominal pain with the shoulder blade pain, indigestion, excessive burping and gas. The oily stools. The abdominal pain feels like nerve pain (more of a burning feeling). However I had a CT scan and an MRCP scan…
j tube leaking
hi i am new here. i am a stage 4 pancreatic cancer survivor. I am on a jtube feeding tube. a week ago yellow liquid started coming thru the tube. the dr did a catscan and all looks good. it is still draining and now there is black stuff in the drainage. Have any of you seen or heard of this? thank you
Current Stage 2 Inoperable for family member
Hi, so my relative who is over 65 was diagnosed last year. This past weekend we went early to go with them for surgery. It turns out no surgery can be done and the pancreatic cancer has spread. naturally this is a very scary thing to hear. We know the cancer is not curable. They will continue to fight and undergo more…

Pancreatic Cancer

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