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Vaginal estrogen and its alternatives
Hello! This is my first post. I am in my 60's and had stage 1a, grade 1 endometriod adenocarcinoma, and am currently 8 weeks post op recovering from total hysterectomy. Nothing found in lymph nodes, so no further treatment. My doc told me that 95% of endometriod cancer has estrogen receptors, but unfortunately I don't know…
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Incontinence, Pads & Underwear
Hi, I had a radical prostatectomy about 3 weeks ago. I'm leaking some urine when I cough, sneeze and sometimes with standing up. Not major. I'm currently using Depend Incontinence Guards (diapers) with a pad. What I'm wondering is if anyone has suggestions for regular underwear that works well with pads. I've always worn…
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How to move on post head and neck cancer
Hi Everyone, Hoping for some advice for my husband. He had mouth and tonsil cancer the end of 2021, he was 43 at the time. He had surgery to remove 1/3 of his tongue, the tissue on floor of his mouth, all his teeth and 4 lymph nodes. This surgery included skin graphs from his arm and thigh to replace the tissue in the…
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neck swelling after radiation
I had HPV-tonsil cancer in 2016 and had 35 rounds of radiation and 7 chemo treatments with cisplatin. I finished the radiation treatments in October of 2016. I have the lingering effects of no taste and no slaiva but deal with that. My neck started swelling in the past few weeks and I went to my ENT doctor and they…
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Looking for success stories
Unfortunately, like most discussion boards, I find the majority of posts here are about the problems we are all having and about looking for answers to resolve those problems. It's perfectly natural. We are all looking for answers, myself included. Once people feel their problems have been solved, they stop coming to the…
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Post surgery camisole
My BS has given me a prescription for 2 post surgery camisoles, She has said they will help with drain management and to hold dressings in place. I believe I have to take them to the shop at Dana Farber and they will bill my insurance for the cost. Has anyone used these camisoles? Did you find it useful or would you…
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post liver resection treatment
Im 72 years old. On 12/2022 I has colonoscopy and CT scan was diagnosed with isolated colon cancer. A 9" section of my lower colon was removed on 1/23. After the surgery, my oncologist told me "I was cancer free" (no treatment) and come see him in a year. I noticed on the pathologist report I also had a small (1.2 cm) mark…
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Custom Wigs that nobody can tell is a wig
So I searched high and low for this and seems the best I have found is from a company called High Definition Hair. They have some pretty unbelievable content where they show the quality of their wigs on their website along with their instagram (IG: high.definition.hair) and was curious if anyone has experience with them. I…
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Masses on Liver?
Hello, I am 40 years old. I had a routine Ultrasound about 3 weeks ago just because my workplace gives us free annual medical checkups. anyway, the lady doing the US told me she could see a 3cm mass on my left lobe, but that she thought was an hemangioma. I asked a friend (doctor) what did he thought about this and he went…
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This April marks Oral, Head, and Neck Cancer Awareness Month
There are many support groups and some are having special activities. Check out some of the groups you may find something helpful in one of them. Support for People with Oral and Head and Neck Cancer (SPOHNC) pronounced "Spunk" is a nonprofit organization involved in the development of programs of support. As such it can…
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New PET scan
I had lung cancer in 2020. I had a lobe removed and have been cancer free since. I have never looked at my PET scan results before but just waited to discuss with oncologist. Had a scan on Thursday and did look online it does recommend a biopsy on left lung now but talked about blood pooling and suv max. Never heard of…
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Treatment Complete - Let the Healing Begin
Hi everyone. My husband completed his last of 7 chemos last Monday and his last of 35 radiation treatments on Friday. It was a very emotional week as it was as taxing as everyone describes. know that this first week after treatment can be the worst and it is shaping up to be so. We were lucky in that he did not have any…
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Two year Hormone treatment
Do most high risk stage 3, Gleason 9 prostate cancer patients start long term hormone theropy right after radiation treatments?
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robotic surgery for prostate cancer
I had the robotic laparoscopic removal of my prostate in 2010 and it went fantastic. I was 58 years old and some doctors had recommended radiation but on a second opinion, they said I was too young for radiation when I was done everything worked. No ED no incontinence. No bowel problems 10 years later, it has come back a…
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Bladder Cancer
Having a hard time excepting the fact that I have stage 4 bladder cancer!!
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Testimonial on how phototherapy helped this patient with Follicular Lymphoma
I was diagnosed with Follicular Lymphoma in 2015 and after chemo and Rituxan treatments I went into remission. This past year my PET scan showed that the disease had returned. My doctor put me on a two year plan of Rituxan every three months of which I am half way through. I'm thankful that these treatments continue to…
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35 year old husband just received diagnosis
I'm beyond devastated. It was only 2 weeks ago we were living the most full, happy, loving life. We've been married for only 9 months now and never anticipated he'd be diagnosed with Stage IV stomach cancer. The horrific prognosis we've seen all over the internet are making our worst fears feel more realistic. I feel like…
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Cancer Survivorship – Patient Education on Post-Treatment Care
Hello everyone. Survivorship is not always easy but we persevere. There is help out there in many places these days. Here is something I found on the American Head and Neck Society (AHNS). It is a long list of post-treatment issues you can click on and it takes you to a page covering that subject, explaining how to…
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Loss of swallowing after radiation therapy
Welcome, I hope you are fine, Ask about the veterans who lost swallowing after IMRT, and how long did the problem last? What are the solutions before us? My father, after 5 months of IMRT, completely lost his ability to swallow and fluids began to come out of his nose. And now we are very disappointed Loss of swallowing…
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Update on throat cancer journey.
I posted some info about my throat cancer journey and the potential for neuropathy in my hands. I play several instruments and I was very worried. Luck was with me and I had no neuropathy at all. I did use cold therapy every time I had chemo. I don't know if that is what helped but it's how I dealt with it. I did have an…
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prostate cancer recurrence
10 years after prostatectomy the psa has gone from 0 to 0.4 (from 0.2 to 0.4 in last 6 months). The pet/ct test was negative. To be safe my urologist feels I should get radiation in the area where prostate was removed. He does caution about quality of life issues after the treatment. I am athletically active at 75. I am…
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New Life, New Dad, New Cancer
Hi there. My Dad moved in with my Husband and I back in June. We knew he was sick and that he was moving out here to be with us towards the end of his life. It's been touch and go emotionally, but until recently it's been manageable. His lung cancer has doubled in size since September and he also has severe centrilobular…
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Pancreatic Cancer
I am 85 years old, have inoperable pancreatic cancer, and I just started my first chemo treatment of Fluorouracil (5-FU) on September 25th. It has been eight days and I have had absolutely no significant side effects. My second round of chemo will be on October 9th with the addition of oxaliplatin. I am scheduled for 11…
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22 years later still Cancer Free!
Good Morning CSN Family, Just wanted to share hope and inspiration to anyone just starting this journey. Brief History: Surgery March 20,2002. Stage3C Rectal Cancer, 10 out 14 positive lymph nodes. Treatment: Chemo & Radiation. At the time my young son was 10 years old, today he is a 32 year old school teacher. I have been…
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Chest Port and Exercise Concerns
has anyone had any concerns about exercising their upper body with the chest port in place? Are there any restrictions to activity?
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Decision time following decipher
I was Dx with high grade prostate cancer 01/05/24. I had one of twelve biopsied sections showing 2% with a 4+4, leading to a Gleason 8. I'm 53, single, 3 kids. My PSA started at 7.4 in November of 2023 and is now 10.4. My PMSA shows no spread, fully contained, as of February 2024. I just got my Decipher test back and it…
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Choosing where to get treatment
So it's getting real. Yesterday I met with the medical oncologist, today I meet the radiation oncologist. As I had thought, it is a stage 3 cancer. Yesterday I decided to get a second opinion next week. I am fortunate to have easy access to two academic medical centers. While the diagnosis won't change, and I doubt the…
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Whole Body PET CT scan vs. PSMA PET scan
I asked my urologist to write a script for a PSMA PET scan. Which he said he did. I went for the scan, but upon viewing the results it was listed as Whole Body PET CT scan using F-18 FDG radiotracer. After reading a bit, sounds like I should of had 68GA-PSMA-11 radiotracer? I'm trying to be absolutely certain of no…
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High TG 6 months post-op
I’m mid 40s, had severe hypothyroid symptoms for about a year, then a partially obstructed airway which led me to this diagnosis: papillary thyroid cancer (follicular variant) diagnosed post-op. Thyroidectomy in September 2023 and just got my TG results. It’s 5620 ng/dL, which is much higher than expected range. I don’t…
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Is this it or there is hope? Treatment resistant cancer and mutations CHECK2, ESR1 and more.
I am new here. Stage 4 MBC. HR+/ HER2-. Double mastectomy w reconstruction. Mutations CHECK2, ESR1 RNA fusion gene, PD-L1 =10, TP53. Mets in bones, liver, breast, lymph nodes. 11 month on Palbociclib + Fulvestrant and Zometa - progression, 5 month on Ribociclib + Letrozole - progression to liver, currently on Elacestrant.…