Thyroid Cancer
Discussion List
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Recurrence of papillary thyroid carcinoma
Hey! I was 21 when I was diagnosed with papillary thyroid carcinoma and underwent a total thyroidectomy followed by RAI. Now after 2 years cancer reoccurred and I had to undergo another surgery. Just wanted to know if anyone is out there experiencing the same thing so I find someone to talk to about how to deal with it.
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Diagnosed with Thyroid Cancer.
I having left side vocal cord palsy since Feb 2023. Then, I was diagnosed with Thyroid Cancer last two week and had Thyroid removed entirely 3 days ago. Doctor looked at the physical form of tumor using ultrasound and it should be malignant. After surgery, doctor describe the tumor was hard to removed, "hard solid". I will…
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Veteran with PTC
I returned from a deployment overseas Dec. 2021. October 2022, I started feeling very tired and unwell. My physical medicine and rehab doctor (from injuries obtained while deployed) finally convinced my PCP to take a look at my thyroid after my PCP kept saying it was my mental state and i was just anxious. They found a…
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Thyroid Cancer ~ Lung Cancer
Hi, Diagnosed with thyroid cancer (papillary) in 2014. Thyroid/cancer successfully removed, one dose of radiation treatment. Have been cancer free since. Has anyone had lung cancer after a history of thyroid cancer? Thanks, Carrie
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3rd recurrence of papillary thyroid cancer with tall cell features
I had my original DX in 2017, a TT and neck dissection 7/2017, second surgery - neck dissection in 3/2021, and now looking a third neck dissection for this so-called “good” cancer🥴🙄I am very scared about a third surgery with all the scar tissue from the first two! It’s hard not research all the terrible post-op…
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Excessive weight gain after thyroidectomy
In 2012 I was in a severe car accident which led to CT scans of my entire body. These scans identified what seemed to be "calcium deposits" in the right lobe of mythyroid gland. Over a period of 3-4 years I noticed a slight pressure sensation in my throat. I assumed the doctor telling me of these "calcium deposits" had my…
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Treatment options for medullary thyroid cancer
I have a cousin who is from Montevideo, Uruguay, with medullary thyroid cancer who after multiple surgeries is still suffering recurrence. This cancer has now spread to the liver and lungs and we are waiting on confirmatory FAPI-PET/CT to know what her next options are. Are there any research or clinical…
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anaplastic cancer of Thyroid
I have a good friend who was just diagnosed with anaplastic cancer, the worse thyroid cancer there is. They don't give her much hope and have evened suggested no treatment. She is desperate to find someone else who has gone through this or maybe a family member who has had the same. Any information would be very grateful.…
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Hurthle Cell Carcinoma
Need help in information for hurthle cell carcinoma. So much different info online, scary, confusing, etc. Do I need a Dr/sugeon that specializes Hurthle Cell Carcinoma?
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Radiated on purpose as an infant in the 1950's, cancer developed years later
I was born in the 1950's and treated with radiation as a newborn. I weighed 9lbs. 6oz. and my mom was told I was too big and had an enlarged thymus and radiation was necessary to prevent me from growing to gigantic proportions. Years later it came out that many babies were treated with radiation. The doctors I've found who…
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Thyroid cancer & Rai Treatment
I was 33 when I got diagnosed with thyroid cancer, had a full thyroid removal (2 masses)and had rai treatment after. The recovery from surgery went well but Rai treatment was hell. I want to know was this hell for anyone else??I was on the no iodine diet for a full month, my hormone level had to drop and then I was able to…
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Just curious what this means while I have to wait a week for my doctor to return from vacation...
So recently I had a CT scan for a cough I have had for months which feels like the same type of cough I had when they found thyroid cancer 2.5 years ago, while there is a lot of things in there that is just like "yeah that makes sense, that is kind of expected" there is one thing that seems like a contradictory statement.…
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thyroid cancer and WEED !
hello everyone. I've been a weed smoker for 2 years(becuse of my anxiety). 8 month ago i startet to feel pain on my throat when i was smoking , and the pain increased over next month. long story short , i had my thydoid removed because of cancer , 3 weeks ago (since it was on early stage the cancer mass was not too big)…
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Thyroid cancer in lungs and spine
My daughter was diagnosed this past August with Thyroid cancer. Her full thyroid was removed, and 2 weeks ago when they did the scan during RAI treatment they found cancer in her lungs and a spot on her spine. They said it is from her thyroid and the RAI is the correct treatment. We have been working with an…
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New Thyroid Cancer Diagnosis
Hey all! So I just received a diagnosis of thyroid cancer that has spread to my lymph nodes. My mom is a 20 year survivor of thyroid cancer but I have also had a saddle pulmonary embolism 7 years ago and I am scared to go through more trials. Any tips or advice? What to do and not to do? Brandi
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Papillary Carcinoma with metastasis status that spread to 2/7ths of lymph nodes
Hello. My girlfriend has been diagnosed with papillary carcinoma at the age of 24 with a metastasis status that has traveled to 2/7ths of her lymph nodes. She has had a hemithyroidectomy a couple of months ago. She recently went in for a checkup and a few noncancerous nodules were found. A complete thyroidectomy has been…
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Daughter Diagnosed with PTC - What is Next?
My daughter just found out Halloween 2022 she has PTC. Endo has referred her to surgeon in Miami with recommendation for removal of thyroid. My daughter just moved to Florida a few months ago and so we don't have a lot of knowledge of the medical community here. I'm looking for advice and guidance on what to think about,…
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Vitamins
I had thyroid cancer (Papillary and Follicular) 17 years ago. I was told to go on this regime of vitamins following the radioactive iodine treatment. I am taking fish oil, calcium, multi, and Vit D. Is anyone else doing this? I often wonder if there is any real benefit.
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Just got diagnosed with Papilary thyroid cancer - what should I expect...How long is recovery after
Last week, I was diagnosed with Papilary thyroid cancer, and I have a mass on my thyroid, the size of a ping pong ball. I am scheduled to have a complete removal of my thyroid on the 14th of September. I have always been very healthy, and this has been a complete shock. I started doing some research, but I wanted to chat…
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Microcalcifications post thyroidectomy
I was diagnosed with PTC in March of 2021, did RAI in May 2021 and July 2021 with uptake only in the thyroid bed. Went in for a follow up US in December because my levels were still high with nothing significant to report. Just had an ultrasound last week that shows a 1 cm hypoechoic area with multiple macrocalcifications…
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Q: Cancers in senior citizens from thymus radiation as babies?
It's well known that those of us who misguidedly had their thymus glands irradiated as babies developed thyroid cancer in early adulthood. Now that I'm 69, I'd like to consider how many of us have developed other cancers in the area of the neck, chest, mouth, etc., as senior citizens. I've seen a few people, in this forum,…
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Muscle Recovery after Neck Dissection
If you had a neck dissection, I'm interested in learning how you are dealing with the muscle recovery. I had TT and LND surgery 1.5 years ago and my neck is STILL not back to normal, and I spent the first year doing neck stretches and PT movements until I just couldn't keep up the regimen. How long did it take before the…
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Chyle leak- Complication
HI- i just wanted to post about my Thyroidectomy experience- Because it was rare and there was hardly any information out there for me. last April I had my thyroid removed do to a small cancerous tumor. I also had 80 lymph nodes removed- 8 were cancerous. At the age of 29 it was a pretty rough experience, especially…
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Omega-3 prescription ok with low Iodine diet?
Is my omega-3 prescription ok to take while on my 3 week low iodine diet? I started diet today and Dr is away.
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Papillary Thyroid Carcinoma - Stage 1
I had a total thyroidectomy in March 2019 followed by 1-131 ablation therapy in June 2019. I was started on Levothyroxine the day after my thyroidectomy. Since then I am constantly tired and have sleep problems, irritable, constant brain fog, day/night sweats/hot flashes (where I used to be cold all the time), sensitivity…
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Radiated as infant
Just discovered this site. My thymus was irradiated shortly after I was born in 1944 in western Pennsylvania. In the 60s or 70s my parents saw a 60 Minutes story on the incidence of thyroid cancer in people so treated in infancy and notified me. I immediately had a doctor check it (negative), but in 1978 when undergoing a…
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New
I'm 45, I'm from Ukraine, I brought my son to school in January. And I couldn't fly home in February. The war has begun. I've been very worried all these months, as I stayed with the child myself. The other day I was diagnosed with cancer, I'm preparing for surgery. I really need your support.
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Side effects of repeat RAI and SBRT
Hi, has anyone had a repeat RAI and SBRT for metastatic Follicular thyroid Ca. I was initially diagnosed in 2007 at age 26, had total thyroidectomy and RAI. I was doing ok till 2021 when lesions were noted in lungs , hip and spine. Had repeat RAI and SBRT to hip and spine lesions. 6 months later started having very severe…
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Need direction with Hurthle Cell carcinoma diagnosis
My wife (42 years old) was just diagnosed last week. She had a mass on her thyroid for a total of about 18 months. Her endocrinologist did 2 biopsies over that time and both were inconclusive. Each time we were told "We'll keep an eye on it". She finally went to an ENT who said the affected lobe should be removed. That…
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They don't know if it is Cancer... guessing because of PET SUV.. please read
Let me cut to the chase in this correspondence. Thyroid Ultrasound performed- indicate several spots -L/S 2.8cm – R/S 1.5cm. PET performed indicated activity midpole of the right thyroid lobe with SUV of 9.1 and inferior left thyroid lobe with SUV of 20.1 - FNA performed w/ several samples L/S results Benign NEG. R/S…
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