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Colorectal Cancer

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Unclear Stage
Good evening, I am glad to have found this forum. My mother was diagnosed with colorectal cancer the summer of 2023. She was 76 when formally diagnosed. My parents has have stated the cancer is " aggressive" but said they were not given a stage. She is not a candidate for surgery , has a colostomy/stoma, and has been…
Stage 4 chemo & surgery
Hello everyone. I got diagnosed with stage 4 upper rectal carcinoma with multiple bilobar mets (nearly 15). I had 13 cycles of chemo mainly folfox + cetuximab. My baseline cea was 295. Now it is 1.9 with regression of the tumor into a flat redness in rectoscopy. Liver mets also regressed. Only 4-5 visible scar like lesions…
Chemo treatment experience /help
Hi - I am currently diagnosed with colon cancer. I have just had my surgery and now moving on to Chemo treatment. I had a choice of CAPEOX or FOLFOX. I am wondering if anyone can share their experience? I understand that for FOLFOX, a port needs to be implanted for the infusion. For CAPEOX, a port is not needed. But I am…
Caregiver support needed
My name is Christy and my husband is Javier. Javier was diagnosed with adenosquamous carcinoma of the colon . The tumor grew outside his colon and was the size of a melon when it was removed. It was Stage IV. It is rare and aggressive. 3 weeks after surgery,the cancer has returned. We underwent radiation to the tumor on…
were do i go for finacial help?
I have been waiting for my oral chemo medication (Xeloda)and called the place today and they said that are just waiting for my part of the copay before i can receive the medication but the problem is that they want almost $900 from me which i do not have. I have been trying to find some websites or finacial aid that can…
I'm a "survivor"?
Was diagnosed with rectal cancer in Feb '21. Felt like I died that day and I still haven't recovered. Trying to figure out how to be a survivor after everything that's happened in the last (almost) 3 years. At this point I've lost literally everything but my life, car, and a few possessions. I can't do this alone anymore.…
Ketagenic diet
My oncologist was talking to me yesterday about a "ketogenic" diet -- which (as I understand it) is high fat/protein, low carbs. It's a very old idea for fighting cancer -- and similar to Atkins or South Beach for weight loss, I believe. But apparently there is some new research coming out now, especially from some German…
Pet scans
I’ve had two primary cancers, breast and now s4 lung cancer requiring quarterly ct or pet scans. After about a year of an area in my colon showing persistent focal uptake, my oncologist insisted I have a colonoscopy. Thankfully it was only an advanced precancer, 1.1 cm tubulovillious, fully resected, clear margins, but the…
Recovery from Lower Anterior Resection?
I’m scheduled for a lower anterior resection for my stage 3 rectal cancer. I’ve had 6 rounds of FolFurinox and six weeks of 5fu and radiation. I’m 46 and still working full time. I would like to hear from anyone who has had the LAR and what the surgery recovery is like? When were you able to return to work? Any helpful…
Metastasis to Peritoneum
Has anyone had colon cancer that has metastasized to the peritoneum that can share some positive recovery experience with me? I started immunotherapy yesterday and know it can be effective but feeling a little down and could use to hear some stories of recovery.
Would you?
I am 81 years old. I tested positive for slight blood in my stools. I hate having a colonoscopy because of the prep. I know that the efficiency of screening declines at the age of 75 and is not even recommended at the age of 85. I will not get radiation, nor chemo therapy. Is there even a need to pursue it?
Hello
Hi all. Just popping in to say hello. 12 years NED. I never adapted to the new format so I don't come on much. It used to he user friendly. It's really hard to follow on my phone. I have a lot of post cancer issues, deal with a lot of pain from the botched surgery but I bet a lot of us can sat that. I just keep on trucking…
Stage 3 Rectal cancer Recurrence
Hi I am male with 37 years old I was diagnosed with stage 3 rectum cancer Aug 2023 about 6 cm tumor in my rectum and 8 cm distance to anal verge .I did first CT for checking metastas and it was clear. My oncologist decided 6 rounds of chemotherapy with folfox. After it was ended, I did my second CT and shows that tumor…
9 Years NED Today
Hi all, I've been away and/or occupied most of this summer, so I haven't been by to check on the blog, for what has been the longest period I can recall. Finding out we've lost Abita, and reading some of the new stuff, reacquainting myself with the ongoing heartache and need in this place, is still quite emotional, which…
Tubulovillous adenoma question
All, in 2019, my gastroenterologist removed a 2cm flat polyp from rectum that was classified as a Tubulovillous adenoma. I know this is a benign polyp but does have a 20% -40% chance of becoming malignant (different % depending on sources). Due to the pandemic and life issues, I did not have another colonoscopy until last…
First Post Stage IV
After reading stories for two years and and talking with people who are in the fight, I was encouraged to share my story. I can only hope it helps someone. After 3 months of testing; blood, stool, urine. Dr.'s were convinced I had IBS and stress induced constipation. A colonoscopy was finally ordered. I was diagnosed…
Won't schedule surgery because I'm paying cash
Hi All, I was diagnosed with colon cancer in April, It took until June to have the colonoscopy done. The tumor is located in the ascending colon and Dr requested a surgical consult on June 28. Tomorrow is August st and the appointment is still not scheduled. When I asked why they said it was because I was paying cash…
Port Removal
Hi, just curious after port removal how long it takes for the spot to heal. I am still have a small lump where the port was 8 weeks out.
How worried should I be from latest MRI results?
4 years ago, was diagnosed with colorectal cancer in a polyp. The lab results showed it was invasive to the edge of the polyp. Had just a rectal excision for the area around the polyp and it showed no cancer. Forward 3 years and I was diagnosed with prostate cancer. Prostate was removed in April and again, the cancer was…
Father starting chemo soon, any advice?
My father is 67 and recently diagnosed with colon cancer after finding a partial obstruction due to a tumor. He already had the resection but 4 lymph nodes showed some cancer so now he will be getting a port next week and starting folfox soon every other week for 6 months. Any advice on what to do to keep side effects to a…
IBS
Hi everyone, I hardly post anymore but I do read everyone's messages daily and pray for all of you. I was just wondering if anyone here has developed Irritable Bowel Syndrome. I would appreciate any input you may have. I am 3 years 2 months NED (thank God) but still have excessive bowel movements, much gas and terrible…
Help me understand
My colorectal cancer went from early (stage 0) to stage IIIc. So all my trust and faith in Mercy medical care has been used up. But their overly optimistic feeling oncologist tried to sell me 80% odds of complete recovery and my own research says 44% odds of complete recovery. I also feel like Mercy would say literally…
TAHEEBO TEA
Doe's anyone know anything about this taheebo tea and it's cancer fighting claims?
Stage 4 Colon Cancer update
It has been quite some time since I have visited this site, mainly becuae I have been very busy. I found out I had stage IV colon cancer November 6, 2011 at the age of 41 after finding a tumor in my colon. They removed the tumor, gave me a colostomy and tested the tumor. December 2011 I had a power port installed in my…
Buster's Story
On Dec 14th, at age 42, I was diagnosed with Stage IV Colon cancer, it had spread to my liver. Several weeks later, after doing some research and talking with a few doctors, I elected to do chemo (folfox)in hopes that my cancer would shrink. After 3 doses of Folfox the three spots I had on my liver were gone and my primary…
Stage 4c colon cancer
I’m new to this forum and looking for information regarding my daughter, now 41, who is 22 months into treatment for colon cancer that had metasticized to her ovaries, 8 of 38 lymph nodes, omentum and peritoneum. She had a successful cytoreductive surgery initially with colostomy, followed by 12 chemo treatments of…
Stable scans but worrisome labs.
Long story short….originally stage iib colon cancer in May 2021. Resection and 4 rounds of Oxaliplatin and NED for 2 years. Now I have mets to liver and lungs. Liver resection, one lung surgery and then 5 rounds of Irenotecan/5FU but disease progressed. Now I'm 12 weeks into a trial drug. Scan at 8 weeks showed "stable"…
Blood work
So I recently had 2 iron infusions for iron deficiency anemia. I just had my blood work redone and now my red blood cell count is high and it was normal before? Also my MCV, and MCH are lower than before and my RDW is higher than before? Anyone know anything about blood work?
A TRUE LOVE STORY
People always talk about true love stories, most of them being fiction, but this is mine and it is true. My name is John and I want to talk about my and my wife's battle with cancer, how it affected both of our lives and how our faith was not broken at all. I met Gail at McDonalds in Winston-Salem, NC where we both lived…
18 years out after Stage 4 Dx
Hello all, This disease is so unfair and unpredictable but I did want to throw a chance of hope out there. It is now 18 years out from the initial diagnosis. Stage 4, mets to liver and lungs. Took long time but I'm still here and doing fine. I know the long term people who I first followed meant a lot. I have no magic…

Colorectal Cancer

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