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Colorectal Cancer

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Welcome to the CSN! Below are some tips to help you get started following and posting on the boards. You can follow your preferred discussion board to get notifications of new topics and comments. To follow a board, navigate to your preferred board and then select the bell at the top, followed by your notification…
Two months in
Hi all! 30 yo female with current diagnosis of stage 4 rectal with metastasis on liver as well as bone. Just finished round 3 of 12. I’ve done 5 rounds of radiation on Mets on my hips. Currently on irinotecan, fluorouacil, and oxaliplatin for my chemotherapy. How do you guys cope with everything? I feel like time is moving…
UPDATE
My surgery is scheduled for this coming Monday. There was a cancellation so I am able to get it done sooner. A big thanks to all of you for the encouragement. Will update from the hospital.
Rectal cancer on sacrum
Hi! I am a new poster here. My father was diagnosed in May 2021 with rectal cancer stage 3 with involvement on the sacrum. Radiation didn’t do much and he has been stable on panitumumab and folfiri for the past two years. It has been frustrating as we are based in Ontario, Canada and no surgeon is willing to consider…
Recently diagnosed
Hello all. Hope everyone is staying healthy and taking care of them selves. I’m a 48 year old male. Had my first colonoscopy on 04/17. During the procedure a 2x2cm polyp was discovered in my Sigmoid colon. Biopsy and CEA blood work completed. CEA results were a 2.65. Biopsy returned as a well differentiated invasive…
First CT results mid-chemo--what to make of this?
My husband got his first CT scans since starting chemo--he has Stage IV with peritoneal mets. Everything is clear--he originally had lymph involvement and some suspicious lung spots, and he had an emergency colon resection for a primary tumor in January--except the following: "Some nodularity within the omentum and…
Just saying hi. Terrible format, can't navigate like before
Hi all my 10 year just came and went. Just a reminder that YOU CAN DO THIS. Change your diet, exercise, talk to your body during treatments, fight for those trials, tell yourself theren is an end goal when you hit that why is this my life, I hate chemo wall. Whatever you have to do to help yourself. Tell yourself YOU CAN…
Just Tuning In - Still Going ;)
Like a couple of others, I am not around here as much with the new format. I take a look now and again but not do sign in often. Anyway, still in drug trial and it is still working. No more major reductions in tumors, but basically they are all stable, with the tumors that are being monitored with slight reductions. Since…
Guardant Reveal
Has anyone had any experience with Guardant Reveal? For those not familiar, its a blood test after your done with treatment that will tell you if your cancer is likely to return. I finished chemo at the end of March (Folfox). I went to my post chemo appointment a couple weeks ago and my oncologist wanted to try the blood…
Finger Neuropathy
Hello to everyone! I came across something that has helped me and I wanted to share. I have stage 4 colorectal cancer. I had my tumor removed and went though 12 rounds of FOLFOX. I was only able to do 6 rounds of the oxaliplatin due to the severity of my neuropathy. I have found my hands are healing from the neuropathy a…
Vitamin D & Omega 3 in CRC
Here is a very small study that found Vitamin D and Omega 3 fatty acid (such as found in fish) supplementation can be helpful for those with colorectal cancer (abstract only): https://www.ncbi.nlm.nih.gov/pubmed/31106659 [P]atients who received combined vitamin D3 and omega-3 fatty acids supplements compared with omega-3,…
Surgery
I was diagnosed with colon cancer in early March. I had surgery on April 24. Recovery is going well. I am still waiting for results to see what stage this is. The waiting is giving me anxiety.
Psoas/Colon Abscess with JP drain
Hi everyone, new to the boards. Thanks for sharing your knowledge. My husband had an infection that on initial diagnosis, turned out to be either a psoas abscess or diverticulitis. They have placed a JP drain in his Lower left abdomen (and it is very uncomfortable) which he has had for 3 weeks. Drains ~20 ml every 12…
Another cancer diagnosis
i have just been diagnosed with uterine cancer. I’ve had skin, colon and kidney cancer…..started in 2008. Have been Ned for 5 years. I’m trying so hard to be positive but this has really upset me. Hopefully in a few days I’ll get over the shock and be my optimistic self again. My doc says this is vey curable. I’ll be…
Colostomy 6 years ago and cancer recurrence in neck and chest.
Hello, I am hoping for some advice from anyone who has been given less than a year to live. My brother-in-Law had a colostomy 6 years ago and the hospital have been too slow in my opinion to do scans and the proper investigations for a lump in his neck and a further one in his chest. The pain has become very strong and…
New Diagnosis - Colon Cancer Stage IV
Hi, I'm 52 and received a stage IV colon cancer diagnosis at the beginning of April. I'm on a three month Oxaliplatin and Capecitabine combination regiment. This is all been a shock and learning curve to me. I'm be interested to hear from anyone in same situation or had experience.? Thanks
Brain surgery
Anybody had met to cerebellum removed by surgery? Wondering why some do radiation and why some surgery.
where to buy Vitamin C IV drip / injections???
Hi. I need to buy for my grandfather some Vitamin C Intravenous drip or injections...his health is critical... The doctor prescribed him but it is so hard to find here in NY... the doctor will do the procedure... Does anyone know where to buy it online??? Thanks in advance! Carla
Side effect year or two from surgery
Colorectal survival including surgery and chemo. What kind of day to day things should I expect with my body and mind? Cause I think every time I sneeze, I’m dying.
hospitalized for COVID with stage 3 colorectal cancer
shortness of breath, pain, fever..... he is at the hospital in isolation, no one can enter, I am devastated. my first question have anyone with cancer here survived covid? I am terrified. he is stage 3 colorectal cancer, just completed 1 stage of chemo and going through radiation . I just want to know if there is hope for…
When Was Your Port Removed?
My oncologist just advised yesterday that if my scans and bloodwork look fine next spring she will recommend that my port be removed. That would be about the four (4) year mark from my DX and surgery. When was your port removed - or how long have you had it if not removed? I am a Stage 3 colon cancer patient with lesions…
Vegetable- Produce
Hi new here & I have colorectal cancer with a rare disease Corticobasal Degeneration.I have many questions but for right now with insomnia wondering which vegetables & produce is easy on the digestive system for others reading this. Lately I have been eating watermelon and then cucumbers no seeds or skin is ok. For some…
Newly diagnosed and looking for support!
Hello everyone, I have been lurking for a few days and have finally decided to post. My name is Kirstin.. I am 47, diagnosed with stage 3b (T3N1M0) CRC on 1/19/23. The week prior, I had been experiencing sudden bloody diarrhea and unusual colicky pain (which was minimized by my PCP and GI for over a week until I insisted…
colonoscopy
I have been cancer free for over 1 1/2 years from colorectal cancer I am due for my first colonoscopy since and I am looking for suggestions on how to stop the anxiety I am having for my upcoming test on May 24th. I just keep remembering the surgeon coming to me telling me I had rectal cancer. Thanks
After coloctomy
My surgery is May 3rd and we are trying to figure out the after. We live on 3rd floor apt and have 40 lb pit puppy. I know I can't walk dog but will I be able to get up to our apt?my boyfriend thinks I should stay at my parents immediately after. I really don't want to but open to advice. Any other advice for immediately…
(CAPEOX) capecitabine-pill vs. 5FU IV
Looking for anyone that has input on treatment with CAPEOX in pill form vs. 5FU over two day period via a take home pump. The Med Star Georgetown University Hospital treats with the CAPEOX pill due to the studies that have shown it to be more effective that 5FU and they only treat 3 months vs. 6. My husband would much…
CEA explained, please!
Can someone please give me a very simplistic explanation of CEA levels. My husband had an emergency colonectomy in January and was diagnosed with Stage IV colon cancer. CEA was 6.7. He started Xelox (1 3-week cycle and not tolerated), and it was 6.6. Then switched to Folfox. After 1 round, CEA was 5.8. Now, just before his…
Xeloda and nausea, please help!
My husband, recently diagnosed with Stage IV colon cancer, has been put on the Xelox regimen with 1 oxipalatin infusion every three weeks (he has only had 1 so far and it was well tolerated) and 2000mg of Xeloda AM/1500mg PM 5 days on/2 days off. He is only on his 3rd week of the Xeloda and he is having terrible stomach…
Newly diagnosed - looking for help and support
I am a 52yo single female just diagnosed with probable stage 3 colon cancer (adenocarcinoma that started in appendix). I'm told it's rare and aggressive. I'm still in the process of testing to determine stage and scope (CT today and Colonoscopy Friday), but trying to line up resources because I know things will need to…
Old Timer check in...
It's been a long time so I am poking my head in to say stage IV survival is possible. I was diagnosed with colon cancer 15 years ago at the age of 39. I had liver mets and ovary mets and two colon surgeries. With a total of 4 surgeries including HIPEC and a year and half of chemo in a five year time period. My youngest who…
Lonsurf
My husband was diagnosed with stage stage 4 signet ring cell colon cancer January of 2018, he has had chemo folfox along with other chemo meds. His cancer has spread to the lymph nodes around his spine and his neck area. He started lonsurf a few days ago . He has done nothing but sleep and he has no appetite. The Dr said…

Colorectal Cancer

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