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Introduction: Getting Started with the Uterine Board - Updated 4/12/2022
You've found your way here because you or a loved one either has uterine cancer or there are initial indications that cancer might explain the symptoms now being experienced. This Board is a good place to learn more about what you can expect as there are initial appointments with doctors, tests, test results, and if…
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Some tips from CSN
Welcome to the CSN! Below are some tips to help you get started following and posting on the boards. You can follow your preferred discussion board to get notifications of new topics and comments. To follow a board, navigate to your preferred board and then select the bell at the top, followed by your notification…
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Uterine Board Frequently Asked Questions (FAQ) and Other Information - Updated 4/12/2022
While any member can create a new forum topic or respond to an existing topic, this page was created to provide members with quick links to certain posts on topics that others have found useful or informative. It also includes links to outside references and help on using certain features of this site. Here are the main…
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Recently Diagnosed and Adjusting
I was diagnosed with endometrial cancer on July 2nd. Had radical hysterectomy on July 18th. They thought it was going to be a simple day procedure but discovered that cancer had spread to a lymph node which they couldn’t removed because it was too close to a major blood vessel. I ended up staying a night in the hospital.…
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Stage 1 Endometrial Cancer - Now what
Hello everyone, I am new here. I just had surgery for Endometrial Cancer. The pathology report came back as stage 1. The GYN oncologist said I am cancer free and that I should return every 3 months for 3 years and then every 6 months for 2 years and then once a year for life. That is all he said. I feel like there should…
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Everolimus, Anastrozole, & Metformin for ER+ PR+ HER2- PIK3CA EC/UC
Anybody on this combo? What side effects are you having? This may be the next treatment for me. I know that I am just a voice in the wind, but I figured I'd ask here for the fun of it. The answers of course will come when I talk to people with breast cancer who have my molecular profile. BTW about 30 to 40% of ec/uc…
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First Visit
Hello, I had my first meeting with the oncologist today for my endometrial cancer. She was very thorough and personable. My best friend and sister were with me. I do not have a husband or children. My one daughter passed away in 2020. I was happy to have their love and support. It was a very long day that started at 4:00…
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4th Recurrence
Hello, I'm Marchu from Buenos Aires. I have cervix cancer since 2017, when I had an histerectomy, then I had recurrences in 2018 and 2020 in which I received radio and chemotherapy. Then in 2023 I had a 3rd recurrence, and I received chemo and inmunotherapy which at first worked, but now that I'm receiving only…
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Annual checkups
I am right at 6 years post surgery and almost 6 years from the end of chemo, and brachytherapy with no recurrence. I still go for annual checkups with my oncology GYN. How many of you continue to do this? I really love my Dr but she is retiring at the end of December. I will still go to the same oncology center and the PA…
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Six years no recurrence after uterine serous/clear cell stage 1a with isolated tumor cells in node
Hi. I'm coming up on the six year anniversary of my diagnosis and treatment for uterine serous/clear cell cancer. Mine was in the upper part of the uterus, and one sentinel node had isolated tumor cells in it. I was treated with hysterectomy, 6 rounds of carboplatin, Taxol, and added in Herceptin, which was not standard at…
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Do I have to take steroids after doxil
S teroids
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dietary suggestions during pelvic radiation
Does anyone have suggestions for me related to good nutrition during pelvic radiation for uterine cancer, post hysterectomy.
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Endometrial SEROUS carcinoma
I was diagnosed with endometrial serous carcinoma 10/21. I had a total hysterectomy, chemotherapy, and brachytherapy ending 6/22. I had a CT and PET scan 7/23 which showed cancer recurring in the retroperitoneal lymph nodes. I have my last radiation treatment today (total of 28) and am wondering if there's anyone else on…
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Nine years later recurrance in lung
I had stage 1a grade 1 endometrial cancer 9 years ago. I had a full radical hysterectomy, and the Dr.s felt there was virtually no chance it would return. No chemo or radiation was suggested or offered. Nine years later I started to cough blood and after loads of tests, it has been determined that I have an endometrail…
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Recurred once again
I'm back at what someone on this board called, "Whack a Mole" after finding another tumor in my abdomen, near my navel. Nuts! I almost made it to two years NED> Biopsy and resection followed. The tumor had invaded the mesh that was installed after a prior resection took much of the muscle and my omentum. So new mesh for…
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Does Remission mean it’s really gone?
I was diagnosed and treated for stage one endometrial cancer. The day I found out was after a D & C procedure about less than a week after the procedure and when I got the “call” my heart sank. After the visits I remember trying to explain to my mom who was with me during the visit about the cancer. Flash forward to now…
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How to Get Over Hurry Up and Wait
Hello. My odyssey with cancer started back in November when I had what I thought were UTI's. They were treated, but never cleared up. On a hunch, my doctor did blood work and sent me to the ER due to very high kidney numbers. I mentioned the bleeding to the hospitalist at the time, and he did a quick pelvic exam and…
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Anyone have debulking after 6 rounds of chemo? (Cross posted in Ovarian group)
Hi everyone. I was diagnosed with stage 4 uterine with spread to omentum and peritoneal carcinomatosis in late Feb 2024. Not a candidate for immediate surgery. I did 3 rounds of carbo/taxol and Jemperli (immunotherapy) then a CT scan that was essentially unchanged but stable. I completed 3 more rounds followed by another…
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Travel or no travel?
I just had my D and C and hysteroscopy this morning. I have four days to wait for results and I plan to keep busy and not dwell on the possibilities. But I feel knowledge is power so I am prepping myself with info. If I need treatment, ( and I do expect at least a hysterectomy), I am wondering if I should go to the local…
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Newbie - trying to put it all together
Had a D&C and Hysteroscopy on Friday and awaiting results, I guess in a few more days. This procedure followed a biopsy that said I had endometrial atrophy. Endometrial thickening was 5 mm on ultrasound. I have a great gyn/onco. I’m concerned because I have also been having a work up with my Endocrinologist over the past…
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Mid-chemo CT scan question
Hi everyone. I’ve completed 3 out of 6 chemo cycles and my CA125 continues to trend downward but my CT scan is unchanged. How is that possible? I was so certain I’d see at least SOME tumor shrinkage so I’m feeling very disappointed and concerned…has anyone gone through this? Quick background: Dx: uterine adenocarcinoma…
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CT Scan of Vaginal Cuff
I had a hysterectomy in 2016 do to Complex Atypical Hyperplasia. While experiencing ovarian torsion I had a CT Scan and an ultrasound done. The CT Scan showed thickening and enhancement of the vaginal cuff. My doctor says it looks okay so it’s fine. Should I get a second opinion or is it okay?
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Asymmetrical soft tissue on vaginally cuff
My CT scan shows an asymmetrical soft tissue mass on the right vaginally cuff. Now, my doctor has ordered an ultrasound of the area. Could this be indicative of cancer?
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Spotting
I am 13 months past my hysterectomy. Two weeks ago I had some blood in my underwear. Is this common this long after surgery?
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Article about new treatment protocol
It's always nice to see a new article about endometrial cancer.
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Recommendations for wigs or hat/cap wigs?
Trying to prepare for the upcoming hair loss and could use any recommendations or tips you all have. Any advice for buying a wig? I hear the hat/cap wigs are a good choice too - any particular brand recommendations? Also, any other brand recommendations for scarves, hats, etc.?
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New here. Unexpected biopsy
Hi all. Me: 55 yrs old, on hrt since menopause began, been about 4 years. started having a period. Full blown, major bleeding cramps, some urinary dysfunction (urge incontinence). I just figured this was part of menopause, made an appt for annual. After exam, doctor says “we need to do a biopsy” and blammo I was having a…
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Link to MD Anderson endometrial cancer treatments
I like to share this link once in awhile for updates. Sue
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Thickened endometrium & nervous
Hi everyone. I’m a post menopausal mom who had a little bit of spotting and as soon as I told my GP, she kindly ordered a transvaginal and pelvic ultrasound. That showed thickened endometrium of 8 mm and the endometrial biopsy is in 3+ weeks. So I’ve been reading all about it… and trying to understand what lies ahead. If…
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Does endometrial thickness correlate with malignancy
Hi. I put a comment in the wrong spot a couple of days ago when I was panicking and I still got a couple of kind answers. I had a TVUS a month ago and it found an over 20 mm endometrial stripe. Ovaries clear. Post menopausal at 67. In one week I am having a D and C and hysteroscopy. Petrified of the anesthesia and of the…
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New Here and Biopsy Tomorrow
hello everyone, I’m new here, and have endometrial biopsy tomorrow I had an ultrasound and the results are my endometrial stripe is too thick I don’t have the exact measurement as I haven’t seen the doctor since the ultrasound and was called to schedule biopsy Im 51 yrs old. Over 22 yrs ago I had mild endometriosis,…
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Uterine Carcinosarcoma, any survivors out there?
Hi everyone, My mom was diagnosed with carcinosarcoma in Dec '08, she had a total hysterectomy and removal of pelvic lymph nodes (cancer was found there). Since then has done chemo and radiation, finishing in the summer of '09. She's doing ok now, but I was just wondering if there was anyone out there with a similar…
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New Diagnosis and Consumed by Fear
Hi Everyone. First, I want to recognize all of you as warriors. As I start my own journey, I hope to be half as courageous as all of you. But for now, I am just consumed with fear and need help, guidance and words of wisdom. Diagnosis 6/13/24: Stage IVB, Figo Grade 3, dMMR, Endometriod Adenocarcinoma. Had…