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Prostate Cancer

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New member
Hello everyone, glad to be able to join the group. Brief history, 70 year old, just had robotic RP, biopsy of 12 cores showed 5 have gleason score of 6, and 3 with score of 7. Today is my 4th day after RP, and pathology reported I have Extraprostatic extension of neoplasm is present. Which I understand that the cance has…
Post TURP
Hi, Thanks for allowing me to join the group. I'm 76 and diagnosed with a Gleason 10 and PSA of 51. Comorbidities are COPD and CHD. My first treatment was 10 rad treatments, palliative, followed by daily Erleada and Orgovyx. What can I expect with that regimen?
Cialis?
Hi folks. First time posting, but have read several of the comments and replies over the past few weeks. July 10 I had a Robotic Laparoscopic Prostatectomy plus the removal of two lymph nodes. Surgery went as planned although my prostate was like double the normal size, so I had to wear a catheter an extra week. Upon…
September 2024 PSA
Well, it has been around 6.5 years since my RALP. My latest (09/03/2024) PSA results: <0.1ng/ml. To best of my knowledge that is still undetectable. I get tested once a year. I will be 74 years old this month. This is a journey for us. I am still continent. I still enjoy trying to catch my wife every once in a while, but…
After Lupron and Radiation
I need help recovering strength and energy after completion of radiation and Lupron (2 x 3 months). I don't lnow where to turn. My Urologost is no help. He says his only concern is keeping my PSA down. Can anyone give me suggestions? Thank you.
Work up complete - headed for surgery
I had a PSA done in June which was 15 (outpatient Quest lab drawn on a Friday, sample run on Monday in a different state. I followed up at a close by regional cancer center who repeated the test 1 month later (24) - different lab in house. MRI, followed by fusion biopsy - showed 2 lesions 1.9 CM ( rt. peripheral) and 0.7…
Biopsy Scheduling Wait Time?
57 y.o. male: My MRI showed a Pi-Rad Lesion 3 and my urologist scheduled me for a biopsy. It is not scheduled until Nov 1. My concern is how long the wait time. My PSA rose to 6.78 in early July, was referred to urologist and had MRI on 8/27. Now two months wait until biopsy on Nov. 1st. Is this normal? I tried to get…
Pads
Do pads get definitely noticeably wet in the beginning or could you be unsure if you are leaking much?
Prostate, need to get Biopsy.
47 year old. PSA kept rising, highest 3. MRI (2 lesions), it doing well mentally, planning a transperneal Biopsy: CLINICAL INDICATION: Prostate screen, PSA > 3, post repeat (PSA, DRE, benign workup) Encounter for screening for malignant neoplasm of prostate Z12.5; TECHNIQUE: Using a body phased array coil small…
Post catheter Urine stream slowing
On Monday my catheter came out and my urine stream seemed stronger than before but not because of any enlarged prostate issues previously. I had always for the last 15 years just had a slow stream. So initially I was wow this is great. Now over the last three days my urine stream is slowing down again and the last time it…
Interpreting Surgical Pathology Report
I have my follow surgery discussion with my surgeon 9/4. He did call me after he got the report and said he had good news , clean margins, clean lymph nodes, etc…everything looked good. But I want to make sure I can ask proper questions regarding my report. My initial Gleason score in February was 3+4+7, intermediate…
Treatment advice
I'm I 58 year old male healthy, non smoker no drugs in very good shape on active surveillance for 1 year. My PSA has been stable for last 9 months at 6.0. Original Biopsy (1year ago) I had 3 cores 3+3 and grade 1. Recent Biopsy I had 5 cores 3 at 3+3 and 2 at 3+4. I'm seeking treatment advice from anyone who would like to…
Proton Treatment
I have been on this site previously. Been on AS for 3 years. Continuing growth in positive cores and appearance of 3+4 in two cores are moving me to treatment. I am committing to Proton believe the following Cost is much higher than SBRT/IBRT Curative power for PCA is equal to other radiation types and RP Lower secondary…
Biochemical reoccurrence
Underwent a prostatectomy on 9/7/2022, pathology showed: adenocarcinoma, Gleason 7 (4+3); focal extraprostatic extension present (right anterior, right lateral), positive margin (left apical), involves 6-10% of prostate; 0/10 right pelvic, 0/5 left pelvic LNs involved; pT3aN0Mx. PSA on first test was .07, second test 3…
Cancer Journey
First of all thank you to everyone here that shares their experience and expertise. I have learned so much from this forum. Like many wives of husbands diagnosed with prostate cancer we become their biggest advocates and cheerleaders. Here is our ongoing story which started 13 years ago. My husband was diagnosed with…
Proton vs Photon therapy
Results of my biopsy show out of 12 location I have two with 4+3 Gleason and I with 3+4. I am 76 years old and in good shape otherwise. Have talked with Proton Therapy center in Knoxville and would prefer this treatment but my Humana Advantage plan will probably not cover the cost. Now setting up an appt with Photon…
Cryoblation anyone have experience with this?
70 y.o. Gleason 3+4 most likely need to make treatment decision shortly. Hopkins urologist advances cryoblation based on cancer being fairly contained. Thoughts? Experience? How does this measure up compared to other treatments including total removal? Thanks for your comments in advance
Post Surgery Concerns
I am new to the forum and am 3 weeks post robotic prostatectomy. I am having "issues" that I am trying to determine if they are normal or if I should seek some additional help. Specifically, I dribble a few (5-6) drops of blood nearly every time I start to urinate. My urine appears clear after the initial few drops, but it…
Looking for some guidance
Here is my situation: PSA 24.5, up from 15 1 month ago (but a different lab), 2 lesions on MRI (1.9 cm PRAD 4 at right periphery and (0.7) PRAD 5 near left transitional zone. I am due to get a biopsy next week and PSMA scan sometime after that. The MRI showed no extension beyond the prostate, but given the PSA level and…
For new viewers considering Surgery
This post is currently for all the viewers on the site recently diagnosed and considering Surgery as an option but have not yet had one or two consultation’s with Surgeons. Here is what I gave learned are some important factors to consider in choosing your Surgeon during consultation’s. This being said the technologies and…
Received Post Prostatectomy Pathology
just received my post Surgery Pathology report. Lowered my Gleason 8 to unfavorable Gleason 7 (4+3). Also lowered my grade group 4 to grade group 3. At least I feel better I can call myself a 7, but there are caveat’s . The cancer had left prostate capsule. No distinct mass was identified. His initial cuts to Prostate bed…
50 Hours Out of Surgery
I started my procedure at 7:15 Tuesday morning. When I looked at the clock in recovery it was 3 pm. I had a DaVinci XII robotic assisted radical prostatectomy. Before the surgeon had the opportunity to visit, I made two laps around the unit with the assistance of a walker and a kind nurse holding my robe closed. While my…
PET CT SCAN REPORT
Here are some statements from my report. Comments?? There is a physiologic distribution of activity in the brain. If further evaluation of the brain is clinically indicated, PET CT is limited and MRI is the recommended modality. The SUV max in the right parotid gland is 40.02. The SUV max in the mediastinal blood is…
Cyberknife: Is it worth choosing a doctor who uses Cyberknife
From what I have read Cyberknife often results in better treatment. Would you limit your search to doctors who uses it? Thank you
So, so many questions and worries.
First time visitor, first time posting… A bit about my story first. I was diagnosed on 9/28/23 when I was 48 years old. Gleason 9, CHEK2 mutation. Had the prostectomy in November of '23. Prior to the surgery I was having lots of low back and lower body pains and fatigue. Post surgery those pains and fatigue were absent…
Less than 24 hours post Surgery
Wheeled down to operating room at 7:30am yesterday for a Single Port, Nerve Sparring and ligament sparring (non cutting of ligament connected to bladder) Robotic Laparoscopic Prostatectomy. Completed at 1:30pm and sent to recovery and discharged home at 5:00pm. Doctor talked to wife afterwards and she recalled him…
Pain in finger joints - Side effect of Orgovyx
Has anyone had this side effect. And does anyone know how to make it better? I've read that it could be caused by interactions with vitamins and supplements.
Upcoming Appointment - Nervous
So this is my first time posting. Since the first call from my doctor on July 9th telling me I had an elevated 5.02 PSA I have been worried. I finally have my appointment with the urologist tomorrow and I am thinking I'll be having a DRE and may be referred for a biopsy based on my numbers and what I've read online (I know…
Passing gas after surgery
Still trying to pass gas. Usually it was not an issue before surgery in the morning on my side very easily. Can you lay on your side after surgery I heard you needed to stay on back. Just out of surgery day and half.
My story and looking for questions in preparation for surgeon consultation
My doctor has been monitoring my PSA for several years, thankfully. The last several years PSA readings have been relatively stable 3.096, 3.166, 4.231 , 3.826, … then 5.4. The reading of 3.86 was accompanied by a free PSA % of 13. And the free PSA % was the first alert that I need further examination. So off to the…

Prostate Cancer

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