-
Some tips from CSN
Welcome to the CSN! Below are some tips to help you get started following and posting on the boards. You can follow your preferred discussion board to get notifications of new topics and comments. To follow a board, navigate to your preferred board and then select the bell at the top, followed by your notification…
-
Diet topic
so I had salvage surgery done little over a year ago going on 14 months. Cancer was still contained tomthe prostate ..pathology report came back good except for one I thing perineural invasion present. Surgeon said nothing to worry about probably 80% of all surgeries come back with that being said in my head the cancer is…
-
Jaw issues
My jaw started popping about 10 days ago. Only when I chew Is this a lupron side effect??
-
high risk (4+4) diagnosis with moderate PSA (4.2)
hey y'all, I'm a month in to this journey (since biopsy), and just found this forum while searching for info on a particular patented treatment (that's not pertinent to my question) … so, what is typical treatment for a high risk (4+4) grade group 4 diagnosis with moderate PSA (4.2) I'm just past getting a good PSMA-PET…
-
Alcohol
I am a rum drinker. Nothing from February thru May. But had some beginning of this month Next few days were rough. That’s a new thing for me. Any others experience same Hate to have to stop doing the one thing that gives me a little pleasure. Love having an aged rum on ice. I’m a neat sipper of anything over $100 Thoughts…
-
Body Changes
Hmm. Well. Few years ago I would have been embarrassed to even mention this But, I got to know 😳 The hormone shot effect on my body. I’ve lost muscle mass (10-20%), My joints hurt a lot at times, I get dizzy spells, and … When I look down I’m like WTH. Losing hair down there and gaining what? fatty tissue above my main…
-
biopsy coming
-
Incontinence
Hello Everyone, I had prostatectomy on April 15th at UCLA. Fortunately, the cancer had managed to stay local and they were removed along with some nerves and muscles. The recovery hasn't been that bad aside from damn catheter and now the incontinence. Do you all have any suggestions as to how deal and improve the…
-
Can’t decide course of treatment… help!
Hi everyone- I’m writing as support for my husband who was recently diagnosed with PC. So much info has been thrown at us yet at the same time it feels like this treatment decision is just up to us without much guidance. The “gray areas” are killing us. My hubby’s info: 68 years old, very fit and active (runner, physical…
-
PC treatment after age 70
I'm 73, White male, diagnosed Nov. '24 with lesions in the prostate (Gleason 7: 3+4 and 4+3) and PET scan indications of activity in right and left iliac nodes. I am in my fourth month of daily Orgovyx and yesterday completed my 32nd of 44 radiation treatments for prostate and pelvis. Urologist and radiation oncologist are…
-
biopsy results
Hi everyone...I would like to share the results of my biopsy which I did on April 14th 20025 Biopsy URONAV MRI fusion ultrasound transrectal and I have cancer. If anybody needs details how biopsy goes… you can ask me Diagnosis K Prostate (ROI 1), core biopsy: Prostatic acinar adenocarcinoma, Grade Group 2, Gleason score…
-
Inability to ejaculate
I finished treatment a year ago (radiation). My orgasms now are very weak and, of course, I don't ejaculate anymore. I did at first but it's gradually gone away. This has made me damaged goods. All I hear is "did you ****?" or "are you ever going to ****?" or "why can't you ****?" I dread having sex but (not bragging) I'm…
-
New to Reluctant Brotherhood
Thanks to this great forum as I am learning lots about things I wish I never had to learn. 65-yr old living with my wife on Cape Cod. I am recently diagnosed with 7 of 15 cores malignant, (6 cores 3+3 and one 4+3 at target lesion found on MRI, plus two cores list “High-grade PIN”), in left mid core “Perineural invasion is…
-
Advice
I'm a 65 year old recently diagnosed. My PSA was 5.34 in April and my urologist recommended an MRI. MRI in June showed showed prostate volume 38cc. T2 hypointense lesion involving the the left posteromedial mid gland peripheral zone measures 0.3cm and demonstrates focal restricted diffusion and low ADC with early focal…
-
11 month update
I thought I would provide an update since I have been quiet for a while. (I feel I owe all of you who helped answer my questions earlier) Brief recap ...gleason 3+4 1/5/24...gleason 4+3 at time of surgery 7/11/24...Nerve sparing surgery deemed successful. Continence returned at 2 months. But I ended up having a stricture,…
-
Prostate Treatment Post Radiation BCR
I just wanted to share some knowledge should anyone out there have a PCA recurrence in the prostate after radiation. I am post Proton and listen in on topics with my local specialists who are involved in various research. I heard from a Brachytherapist who is engaged in level 2 trials on what sounds like a terrific salvage…
-
Pca information updates
Hey everyone, I am sure there have been past threads with good information for newly diagnosed, post treatment, recurrent disease,..., I have seen many questions regarding stage, grade, risk group, etc. In doing recent research I came across the NCCN Guidelines for Pca advanced and early stage. There is a lot of great…
-
Looking for Honest post-surgery ED expectations / feedback
Hi members- I'm new and this is my 1st post…I had DaVinci assist radical prostatectomy…I am 14 months out and still no firm erections even though I check off all the boxes on someone who should be up and running by now (healthy, not overweight, 57 at time of surgery, doc said both nerves were spared, non-smoker, not a big…
-
Erectile dysfunction ED conditions after Prostate cancer radiation treatment
Are there many? Or a few? Is there a resource for improvement? I am dealing with so many situations and experiences. Radiation treatment related? What are yours? Thank you.
-
Post Radiation Proctitis
I am hoping for some good feedback for those of you who had challenges recovering from RT. I had a very easy treatment with a Proton 28 fraction schedule. Typical improvement of limited symptoms until my second month, then I started to have some diarrhea once a week or so. Condition has not improved and maybe gotten a…
-
Finally I've gotten some good news
After an IRE ablation procedure last year, then a few months of ADT so far, and 40 sessions of IMRT of the prostate and pelvic region for lymph nodes, my most recent blood work indicates a PSA level of .04 ng/ml. Down from over 9 ng /ml about six months ago. If I understand correctly, this is considered undetectable. I'm…
-
Deciding to end treatment or not?
My husband has been through a lot over the last 5 years ( he is currently 63) but we are now at the point where we really need to decide if focusing only on comfort care is best. Since February things suddenly became very bad with spinal metastasis, which then turned into fractures one pressing on his spinal cord putting…
-
The little stuff (hints and tips): life after surgery
How about sharing practical tips for post surgery life. Look forward to reading everyone’s tips. Here is what is working for me 8 weeks out dealing with incontinence. Doing my Kegels and pretty happy with my progress but I occasionally leak or have a small squirt of urine when I cough, sneeze, laugh, stand up, bend down,…
-
Post PSA numbers
My PSA number at 33 days after treatment was .02 (from .42) 🎉🎉🎉 Asked about my hormone shot. It was a 6 month shot (Feb-July). So, sweats and chills to continue 😩 Check PSA again in 90 day 🚜🚜🚜
-
Time of first PSA after treatment
I was under the impression they would wait 3 months to do a PSA. But, I just got a text from my urologist to get it done at 30 days That Sound right to everyone?? Have a Great day 🚜🐝🚜
-
Side effects of chemo
Stage 4/gleason 9/metastatic prostate cancer. Mets in 6 lymph nodes and 2 in bones. Due to genetic testing results my Oncologist went right to a triple blast of dartulimide/doxitaxel/carbitol for 7 treatments, along with Zuniga/Eliguard. I was 4 treatments in before the side effects got to me. Pretty bad nausea and the…
-
Muscle and ligament issues
So, this is a query for anyone who is post treatment I lost 20 lbs during my 7 weeks of treatment. Mostly from not eating anything but chicken and rice My question is - The ligaments above and below my hips give me issues unless I take 3 ibuprofen in the morning and my middle and lower back are weak and I’m always a bad…
-
Battling prostate cancer
I am 63 years old diagnosed with prostate cancer in October 2024 my psa went from 43.43 to 0.28 in 4 months on orgovyx with lymph node and a couple of ribs involvement my doctor just prescribed nubeqa and now I'm wondering what's next
-
PSA rising after SBRT
I am 65, Gleason 4+3, localized 2 tumors. PSA 6.7; Had SBRT (4 sessions, 9.5 gray each) in early August 2024. Minimal GI and GU side effects; took 4 month Orgovyx. In 11/24 I had first psa test, result was < .01, testosterones was 13. 2/25 test shown psa rose to 0.4 and testosterone level rose to 384; 5/25 psa rose to 0.8…
-
Overwhelmed with my proposed treatment plan
Hi everyone, I had an appointment yesterday with a radiation oncologist to go over the treatment plan for my prostate cancer. I’m very grateful my spouse was with me—it was a lot to take in. I have a Gleason 9 diagnosis, and while the cancer is still contained within the prostate, the recommended treatment is androgen…
-
Overactive bladder from ADT and IMRT
Just finished the last of 40 IMRT sessions last week and have been on Orgovyx and Zytiga for about 3 months. Feeling OK with the exception of an overactive bladder including urinary urgency and frequency. I need to pee about every 1-1/2 hours. Very annoying especially during the night. Not getting adequate sleep. I…