-
Some tips from CSN
Welcome to the CSN! Below are some tips to help you get started following and posting on the boards. You can follow your preferred discussion board to get notifications of new topics and comments. To follow a board, navigate to your preferred board and then select the bell at the top, followed by your notification…
-
For men in their 50s or 60s who chose brachytherapy or external beam
I'm 56 but one of my lesions is near a nerve and I don't think surgery is going to both preserve sexual function and get all the cancer, so I am leaning towards radiation. Yes yes, I know I might die sooner. For those in their 50s and 60s who chose radiation, did you choose brachytherapy or external beam, and why? How…
-
85 Year old with metastatic prostate cancer... chemo or hospice...
Hey i had been on here awhile back about our 85 year old dad who has prostate cancer that metasticized and was also in the bone... Since then it has spread to the liver and lungs... He still drives, plays the guitar, cooks, cleans and is very full of life... The doctor has now told us that the only choice left is Chemo...…
-
Perneal pain pre-erection, post orgasm
Diagnosed with prostate CA in November 2024. PSA over the past 2 years were 4.49, 5.12, 5.8. Diagnosed with stage 1 after biopsy. Will complete rad therapy next week. Mild symptoms thus far…urinary retention, burning with urination. My primary concern is severe pain 6/10 after ejaculation. Ibuprofen 800 mg helps with…
-
New Member / First Post
Hello all, I'm 59 years old and just diagnosed with stage 2c, gleason 7, grade group 3 prostrate cancer. My last PSA test was 3.0 or 6.0, I say this because I've been taking 1mg Finasteride for many years to help stop hair thinning. They say you should double PSA even when only taking 1mg vs the standard 5mg for BPH. Out…
-
how long does chemo keep the cancer stable typically?
My husband now 62 is in a clinical trial, which doesn't seem to be working after becoming castrate resistant. The next step is likely chemo, how long does this usually help? He has metastatic prostate cancer since 2019, metastatic to bladder, lungs and lymph nodes. Lung mets and lymph nodes in para-aortic area are growing…
-
Shoot i am back after 5 years
Some of you old timers will know who I am.anyway, five years ago at age 57 I was diagnosed with prostate cancer. My PSA level went up to 7.8. After a long, draining decision and chose to do radiation therapy with the booster. I still think I made a wrong decision but I have to live with it. PSA dropped down to 0.8. But…
-
Prayers out to all!
I just wanted to thank everyone here for sharing the scary thing called CANCER it really makes you take your inventory of life. I have an old saying you gotta live to die!
-
On_A_Journey's journey
PART ONE Hello all, I joined this forum recently, asked some questions and made some comments, but until now I’ve only given a brief description of what brought me here. I will treat this thread as my own personal blog by telling my story and providing any updates as they happen. I am 59 and from Australia. I have a strong…
-
How low a PSA? What is the new "normal"?
My PSA is 0.2 after having radiation treatment now just over 2 years ago. Interested also in this metric. Most of my usual body functions are fully changed from "normal" in one way or another after the 27 days of radiation. Almost everything. I am interested in chat with similar men and situations. I am 79. Any men that…
-
I have questions... new member
I am 53 and might be dealing with prostate cancer. heres my story. I have had my large intestine removed in 2008 from ulceritive colitis. I kept having microscopic blood in my urine and still do to this day. Also in past had a growth on my kidney that they did a cryoablation on 8 years ago and followed up with MRI for 5…
-
Latest on IRE Nanoknife Focal experience
Thought I'd start a new post and update my Pca journey. Condensed history: First diagnosed November 2023 with 4+3=7 tumor within gland. Confirmed by 2 biopsies, bone scan, and PSMA PET scan. No metastasis. After local urologist suggested surgery or radiation I got a second opinion from Fox Chase Cancer Center in…
-
Orgovyx vs. Eligard
Been on Bicalutimide (Casodex) for almost a week now. Haven’t noticed any effects except some bouts of flatulence. Had an appointment with Fox Chase medical oncologist yesterday. Very professional, she’s offered me a choice for step 1 of Orgovyx pills or Eligard injections. She mentioned that Orgovyx can be cost…
-
Penis Rehab after Prostatectomy
The most recent posts I could find on this topic are ten-plus years old, so I thought I’d start a new thread. I am 6 weeks post-surgery. Fortunately, incontinence has been minimal. “Penis Rehabilitation “ (I know, I thought it was a hilarious term, too, but it’s quite serious) was recommended for sexual health. A penis…
-
Advice needed
First off, I'm shocked to be here. My heart goes out to each and every one of you. I'm here for support to my husband and to gather information. A little history: My husband is 52. He had a physical a month ago that showed a PSA of 4.1. The doctor sent him to a local urologist. The only symptom I've noticed is going to the…
-
My Latest MRI and Back Story
Figured I'd share the journey… Just had my first MRI while on Active Surveillance. My history is had rising PSA in Fall 2021 (from 4 in 2020 to over 5 in 2021), had an MRI then which identified a PIRADS 4 lesion, had a biopsy with 12 samples on a grid and 3 in the lesion. The 12 on a grid were normal, the lesion samples…
-
6 months post salvage surgery
most of you know my story for those of you that don’t was first diagnosed at age 57 glarson score 7 PSA 8.1 decided to do radiation not a good thing. The cancer was of Cribiform and apparently Cribform is radiation resistant don’t let anybody tell you different, .. 1 year ago PSA creeping up three straight test to 1.7 from…
-
Rise in PSA
Pushing 79. Have been getting semi-annual PSA's. Until the last 18 months, PSA was "virtually undetectable". Then .04, .06 and this week .07, (sans the <). Not worried, but wondered if there was a formula or something that could predict where my PSA might be in two or three years.
-
Husband just diagnosed with prostate cancer
Good afternoon, we just received the results from the biopsy, and I'm concerned for my husband. Gleason Score 7 (4+3) grade group 3, cores with cancer 8 (out of 12), prostate biopsies Adenocarcinoma, perineural invasion seen. PIRAD 5, PSA 9.5. Prostate measures 4.0 x 4.9 x 4.0 cm with volume of 41 cc. Large right…
-
sky high psa
New diagnosis of PC. 72yo and worried. Had Biopsy 4 areas 3+3, 2 areas 3+4 but psa >30. Not much info on patients with psa > 30. difficult to stage with that number. PET scan scheduled Really nervous . Any thoughts?
-
New to Reluctant Brotherhood
Thanks to this great forum as I am learning lots about things I wish I never had to learn. 65-yr old living with my wife on Cape Cod. I am recently diagnosed with 7 of 15 cores malignant, (6 cores 3+3 and one 4+3 at target lesion found on MRI, plus two cores list “High-grade PIN”), in left mid core “Perineural invasion is…
-
Working out
I'm coming up on two months after my Prostatectomy and I see my Urologist on Jan 10th, 2025. My questions for you guys. 1. Have any of you been riding your bicycles any issues? 2. Do Any of you ride dirt bikes with any issues? I've only been walking and NO GYM at all! Note: I'm 66
-
PSA now present first time 9 yrs after radical prostatectomy
Robotic prostatectomy in 2015; PSA 14, Gleason 4-3, no lymph or seminal vesicle involvement, clean PET scan. Serial blood tests every year no PSA detected. In 2023 PSA 0.1, this year 0.44. Haven't had urology consult yet. Looking for comments from others who had an uneventful course for years, then raising PSA. What…
-
PSA after surgery interesting
From John Hopkins Study Explores AccuPSA Test During one study, Dr. Partin and his colleagues examined blood samples from 31 patients whose PSA level had been undetectable for at least five years after radical prostatectomy. All these patients had PSA levels less than 0.1 ng/ml after surgery. However, one third of them…
-
Incontinence
prostatectomy Nov 21 2024 cath removed 1 week later. Doing kegels but incontinence is significantly worse now 4 weeks after cath removal. Is there anybody who can offer positive experience regarding this type of issue?
-
smelly urine after prostate surgery
-
AMS800 Recommendation
Long story short - RALP 6 years ago. Big time incontinent since. Six (typically) Depends a day. I actually think the incontinence is getting worse and am reconsidering my aversion to an AUS. But, I'm worried about who, locally, could perform the surgery. I don't want someone who does a few a month. My urologist, that did…
-
Upcoming Prostatectomy
-
Just found out I have stage three prostate cancer.
hello I am 56 and just diagnosed with prostate cancer and was told that I my stage is considered stage 3c so I have a pretty good size tumor on the end of one of my prostates about a half inch diameter and they think it might have encroached into the Seminole vessels. Was really hoping I was stage one , because I had no…
-
Considering postponing my remaining prostate radiation treatments
Hello! This is my first post. I was diagnosed with prostate cancer and had a slight urinary problem ( not an infection) before I started my first treatment. My treatment plan calls for 44 days of radiation therapy. After only two treatments, I began to experience some pretty bad burning every time I urinate ( 8 on a scale…
-
Prostate Cancer Diagnosis
Have had previous bladder cancer. Had surgery because of suspect areas of bladder — so worried about reoccurrence. During procedure, biopsies of prostate taken and cancer found. Gleason 3+3=6. Previous turp done. No Psa score yet. Waiting 2 more weeks. Still having frequent urination (3-4 times a night) ,blood and…