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Some tips from CSN
Welcome to the CSN! Below are some tips to help you get started following and posting on the boards. You can follow your preferred discussion board to get notifications of new topics and comments. To follow a board, navigate to your preferred board and then select the bell at the top, followed by your notification…
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Milestones Reached
ok. I’m 11 days post last treatment (#35). I’ve reached a couple of milestones 1 - zero diarrhea. BM’s are solid (making timber😎) 2 - I can stand up and pee 🎉🎉🎉. That’s because I can now trust a fart 😜🤣😜 3 - I can eat “normal” food without my wife hearing my stomach growl in the next room 🤓 4 - Haven’t had to take a nap in…
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biopsy results
Hi everyone...I would like to share the results of my biopsy which I did on April 14th 20025 Biopsy URONAV MRI fusion ultrasound transrectal and I have cancer. If anybody needs details how biopsy goes… you can ask me Diagnosis K Prostate (ROI 1), core biopsy: Prostatic acinar adenocarcinoma, Grade Group 2, Gleason score…
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Impending surgury
Ok this is the story. Diagnosed in Jan. after annual physical showed psa 28.1. 58 years old first psa, not sure why I just never asked and DR never requested. Biopsy first of Feb 5/14 cores all 3+3=6 all bottom left side. % of cores, 100,98,95,90,35. Psma pet end of feb. No metastases, DR wants to do sergery and remove…
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New to Reluctant Brotherhood
Thanks to this great forum as I am learning lots about things I wish I never had to learn. 65-yr old living with my wife on Cape Cod. I am recently diagnosed with 7 of 15 cores malignant, (6 cores 3+3 and one 4+3 at target lesion found on MRI, plus two cores list “High-grade PIN”), in left mid core “Perineural invasion is…
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Looking for Honest post-surgery ED expectations / feedback
Hi members- I'm new and this is my 1st post…I had DaVinci assist radical prostatectomy…I am 14 months out and still no firm erections even though I check off all the boxes on someone who should be up and running by now (healthy, not overweight, 57 at time of surgery, doc said both nerves were spared, non-smoker, not a big…
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Hope for erections after prostate surgery-3yrs 2mos later!!
Here's some good news! After 3yrs 2 months right out of nowhere in the middle of the night I was awakened by the first ever nighttime Erection since my surgery. Now , I have been getting okay erections for the last 2 years, but I haven't had a spontaneous erection in my sleep since my surgery. It actually amazed me and I…
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Post Radiation Proctitis
I am hoping for some good feedback for those of you who had challenges recovering from RT. I had a very easy treatment with a Proton 28 fraction schedule. Typical improvement of limited symptoms until my second month, then I started to have some diarrhea once a week or so. Condition has not improved and maybe gotten a…
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Post week 2
just a note for anyone in or through treatment I’m on day 3 of 2nd post week. Feeling better every day. No nap yesterday. Just worked through the fatigue. Doing same today. Disappointed that I have to wait 90 days for first PSA. But, is what it is As I said before, 20 yrs in navy so I have no boundaries. Feel free to ask…
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Post Week Updates
post Week 1 completed For recap, during the weekend between treatment 34 & 35 I had some alcohol on Friday and ate baby back rib meal. I ate whatever my wife cooked for meals Saturday and Sunday I went back to my chicken and rice diet Monday morning 🚜😎🚜 I was fine Friday and Saturday. However, starting Sunday morning at…
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Dr. Onik's Immunotherapy
I have prostate cancer with extracapsular extension and am considering Dr. Onik's immunotherapy treatment. Does anyone have any experience with his immunotherapy?
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Treatment options - IRE / Nanoknife Experiences
Hello All, I was recently diagnosed with Prostate cancer. I'm 44 years old and otherwise in great shape. Gleason 3 + 4 in 8 of 32 cores. It's all located on one side of the gland. My urologist and Oncologist both recommend removal. Pretty standard of care and well documented. I'm not opposed to this treatment as a last…
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On_A_Journey's journey
PART ONE Hello all, I joined this forum recently, asked some questions and made some comments, but until now I’ve only given a brief description of what brought me here. I will treat this thread as my own personal blog by telling my story and providing any updates as they happen. I am 59 and from Australia. I have a strong…
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The little stuff (hints and tips): life after surgery
How about sharing practical tips for post surgery life. Look forward to reading everyone’s tips. Here is what is working for me 8 weeks out dealing with incontinence. Doing my Kegels and pretty happy with my progress but I occasionally leak or have a small squirt of urine when I cough, sneeze, laugh, stand up, bend down,…
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My Journey
I started by donating my lett Kisney to Kidney Cancer in 2002. Naturaly my Uro followed my Prostate each following year. MY psa TOOK A BIG JUMP FROM 2018 TO 2019 and a Biopsy was a Gleeson 8 (9 after surgery.) I saw Dr Patel in Orlando for my robotitic Prostectomy. I have 6 and 1/2 years undetectable PSA. 3 months later I…
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Biopsy Results
My biopsy test results came this morning and I'm undecided whether to open and read them before speaking with my urology office tomorrow morning. Waiting for the results these last few days caused me a lot an anxiety, and I don't know if taking a look might exacerbate my anxiety. Have others had this debate with themselves?
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How low a PSA? What is the new "normal"?
My PSA is 0.2 after having radiation treatment now just over 2 years ago. Interested also in this metric. Most of my usual body functions are fully changed from "normal" in one way or another after the 27 days of radiation. Almost everything. I am interested in chat with similar men and situations. I am 79. Any men that…
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ejaculation and semen flow
So concerned very much here. Have those here that have been treated by radiation for Prostate Cancer and had had any related conditions? ED in any way? How? What is your way of dealing? Please let me know. Thank you.
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Erectile dysfunction ED conditions after Prostate cancer radiation treatment
Are there many? Or a few? Is there a resource for improvement? I am dealing with so many situations and experiences. Radiation treatment related? What are yours? Thank you.
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Week 6 of 7 SRT complete
Week 6 and 7 I’m told they are concentrating on prostate bed. Only difference is about 3 hours after treatment, I run out of gas and need a 1-2 hour nap Still on same boring diet 😩. No diarrhea. Can’t wait for that first pizza a month from now 🎉🎉 hope everyone has a GREAT weekend I still have 3 more acres of grass to cut…
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PC treatment after age 70
I'm 73, White male, diagnosed Nov. '24 with lesions in the prostate (Gleason 7: 3+4 and 4+3) and PET scan indications of activity in right and left iliac nodes. I am in my fourth month of daily Orgovyx and yesterday completed my 32nd of 44 radiation treatments for prostate and pelvis. Urologist and radiation oncologist are…
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My one year post salvage surgery
most of you know my story but if you don’t 2018 Gleason 3+4 Cribiform found 7.8 PSA opted for radiation and Breakytherapy . I was good until 2023 around September. My PSA started to climb. I was fortunate enough to still have it contained to the prostate and I opted right away for salvage surgery ..today It’s been one year…
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Advice
I'm a 65 year old recently diagnosed. My PSA was 5.34 in April and my urologist recommended an MRI. MRI in June showed showed prostate volume 38cc. T2 hypointense lesion involving the the left posteromedial mid gland peripheral zone measures 0.3cm and demonstrates focal restricted diffusion and low ADC with early focal…
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TRUTH Can't hold a hard-on after Prostatectomy
So I'm 6 months out from having my Prostatectomy, and I can't get a hard-on even taking Cialis. I'm 66. The little fella won't rise to the occasion. At this age, I'm just happy to be cancer-free! Just sharing.
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Perineural invasion
Looking to see what others have been advised about the prognostic value of perineural invasion (PNI) seen on prostatectomy pathology. Some articles indicate that it portends metastases and higher risk of biochemical recurrence, while others (more recent) seem to say more research is needed because by itself, PNI doesn’t…
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Sbrt question about how low psa dropped
Finished up my 5 doses end of Dec. I was wondering how low did your psa drop to? I was psa 8.5 Gleason 4+3 initially. Went on orgovyx 6 weeks prior to radiation, 4 months total. At last treatment session, psa was 3.8. Next blood work beginning of May. Was hoping for some real life statistics. Thanks in advance guys.
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Concerning follow up PSA test. I'm worried this could be bad How concerning is this.
40 year old male. Last year and a little before I had some macro (a hand full of times over about a year) and micro hematuria. I haven't had any visible blood since. About 6 months ago I went and had an ultra sound, blood work, DRE, and a cystoscopy. My PSA was 3.2ng/ml and my prostate was slightly enlarged but otherwise…
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AUS 800
I am in my 13th year dealling with incontinence after prostate surgery. The last 2 years has been much worse (6-8 pads per day). I have considered the AMS 800 since the onset of incontence and recently had the procedure 5 days ago and am very concerned with the outcome. first I noticed a weak stream and trouble empting my…
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Biopsy without any bleeding
I'm not complaining, just curious. Had transrectal targeted biopsy (5 sites) with no blood in urine or semen. After all I've read about blood lasting for weeks, has anyone not experienced much bleeding? A pre-cancerous HG_PIN neoplasia was found. So cancer free for now!
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SRT after RALP - Centering CTscan execution
Good morning, I just had a centering CT scan because I have to undergo SRT (I had a robotic radical prostatectomy in 2019, and the PSA slowly rose to values around 0.200-0.250). The preparation for the centering CT scan included a full bladder and an empty rectum. Everything was OK for the rectum, but, probably having…
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I have questions... new member
I am 53 and might be dealing with prostate cancer. heres my story. I have had my large intestine removed in 2008 from ulceritive colitis. I kept having microscopic blood in my urine and still do to this day. Also in past had a growth on my kidney that they did a cryoablation on 8 years ago and followed up with MRI for 5…