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Some tips from CSN
Welcome to the CSN! Below are some tips to help you get started following and posting on the boards. You can follow your preferred discussion board to get notifications of new topics and comments. To follow a board, navigate to your preferred board and then select the bell at the top, followed by your notification…
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Very Slight increase in PSA
I had a RALP in 2018. No problems, PSA was low to begin with. I just wanted the cancer gone. PSA tests periodically since all virtually undetectable. First positive reading was in September of 2023, when it was, .04. Noted, but no big deal. September of 2024 .06, then today, February 2025 .09. Question. Do these numbers…
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BCR what to do? Prostate cancer feedback
Hi, I was diagnosed in Nov. 2002 with Grade 1 Gleason 6. Had RP Feb 2003. For 10 years my PSA was 0. In the 11th year my PSA went to 0.3 then dropped to 0 a year or two latter. Started going up again. The last 9 years it was stable at 0.3 ish up and down 0.34, 0.36,0.3 etc. In 2025 it went to 0.48 then down to 0.42. PSMA…
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Options when adjunct or salvage radiation can't be used?
I am almost 5 months out from radical prostatectomy. 1st PSA at 3 months was 0.39 (quite high) and 0.40 at 4 months. This suggests a doubling time of about 27 months, although that can change over time. I was Gleason 3+4 (40% 4) with cribiform pattern. The margins were positive at both sides and the base. He only took out…
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Update on 2010 diagnosis and treatment
In 2010 at the age of 59, I had Da Vinci surgery with a Gleason 4+5=9 and PSA of 9. Post surgical biopsy showed all margins clear with no seminal vesicle involvement and Gleason post-op score was changed to a 4+3=7. Subsequent PSA was non-detectable as tested every three months for the first two years. Five years after…
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Advice needed
First off, I'm shocked to be here. My heart goes out to each and every one of you. I'm here for support to my husband and to gather information. A little history: My husband is 52. He had a physical a month ago that showed a PSA of 4.1. The doctor sent him to a local urologist. The only symptom I've noticed is going to the…
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Prostate cancer and heart condition
I am currently taking Orgovyx which has lowered my PSA to 0.009. However, I found out I should also be taking an androgen receptor inhibitor (my urologist prescribed Xtandi) along with the Orgovyx, but things have become more complicated as I discovered I also I have a heart condition (my cardiologist told me I had a minor…
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Prostrate Treatment effects
I had a Brachy Therapy in 2006 performed by a team at the Sunninghill Hospital in Sandton Johannesburg. In 2006. In 2020 my prostate specific antigen reading was 18.1. My GP found this on a routine examination. Sending straight to my Urologist. He said it was necessary to have an Eligard 45 injection to stop and cells…
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Gleason 8 with PNI
Hi all. I have been diagnosed with Gleason 8 and PNI. I am scheduled for PMSA Petscan and Exactscan in two weeks to see if and where the cancer has spread. The cancer is too big for prostatectomy (unless it can be shrunk) and will get recommended treatment once the tests are done. Anyone had similar diagnosis and any tips…
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testosterone supplementation after prostate cancer 83 year old in remission0 testoterone 10 yearslaf
radiation and degaralix
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Orgovyx vs. Eligard
Been on Bicalutimide (Casodex) for almost a week now. Haven’t noticed any effects except some bouts of flatulence. Had an appointment with Fox Chase medical oncologist yesterday. Very professional, she’s offered me a choice for step 1 of Orgovyx pills or Eligard injections. She mentioned that Orgovyx can be cost…
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IMRT Low Fiber Diets and Normal Bowel Movements
This coming Tuesday I'm beginning 8 weeks of IMRT radiation treatments. They want me to start eating a low fiber diet to minimize gas in the bowels. Evidently gas can cause the prostate and other organs to move around a bit which could affect the accuracy of the beam radiation. Also they want me to empty my bowels and have…
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When to consider yourself cancer-free post surgery
Some of you US guys may be familiar with Rick Steves, the travel guru. He has the most popular guidebooks for travel to Europe, as well as TV, radio, podcasts, and tours. He had surgery for prostate cancer last October. Recently, he made an online statement saying he is cancer-free, based on his most recent non-detect for…
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Concerning follow up PSA test. I'm worried this could be bad How concerning is this.
40 year old male. Last year and a little before I had some macro (a hand full of times over about a year) and micro hematuria. I haven't had any visible blood since. About 6 months ago I went and had an ultra sound, blood work, DRE, and a cystoscopy. My PSA was 3.2ng/ml and my prostate was slightly enlarged but otherwise…
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Taking a break from Lupron
just finished a 3 month Lupron shot and now PSA and testerone are virtually 0. This after prostrate removal, radiation and ADT over the past couple of years. When PSA started to rise Lupron was prescribed. It seems to have worked for now. My oncologist recommend continuing Lupron along with something additional. Is it…
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Asking for info / Venting a bit before tomorrow's appointment
I first posted back in December when I was getting scheduled for a biopsy. Here is my story so far. I should probably just wait for tomorrow's appt with my urologist, but want to go into that appt with some knowledge of what to expect. My wife is the worrier. I am supposed to be the rock. Need to know a few things so I can…
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biopsy results gleason 6
just got the news. im 69yrs old 6 out of 12 positive all on left side. PSA is 5.8 but have been taking Dut for bph, Psd is .19, gleason 6, T1c, grade 1 ,Dre was normal. im trying to get a quick education in this area. My urologist spent 10 minutes with me , asked me if i was still sexually active and made an appointment to…
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reading bone scan results
Can anyone explain what it means when the bone scan result says there is rounded moderately intense abnormal uptake involving the left posterior mid cervical spine distribution? My husband has been diagnosed with prostate cancer, and I am just trying to understand his bone scan results. Thanks
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Decision on moving forward
Hi! I am a 60yr old gentleman with Prostate Cancer and I have questions on how to move forward with my treatments. Initially I was diagnosed with prostate cancer PSA at 79.7 back in Jan 2024 and have done a biopsy as well as a petscan and they also found out that I had a kidney stone a size of 3mm, which has since been…
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Advice
I'm a 65 year old recently diagnosed. My PSA was 5.34 in April and my urologist recommended an MRI. MRI in June showed showed prostate volume 38cc. T2 hypointense lesion involving the the left posteromedial mid gland peripheral zone measures 0.3cm and demonstrates focal restricted diffusion and low ADC with early focal…
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ADT/breast pain or breast enlargement
would some of the panel members please share with me their experiences with breast pain or breast englargement while taking lupron. i have talked to some men that only had a small increase of breast size while others have gone as far as surgicial reduction.
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18 months post RP
Just got PSA < .1 So far, so good.
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My case high PSA post prostatectomy
Hi I’m 48 years old. Diagnosed with prostate cancer in Oct 2024. Had surgery in Dec 2024. PSA score pre surgery (radical prostatectomy) was 19. Had lymph node involvement. Gleason 3+4. 10 out of 21 nodes that were removed were positive for cancer. Odd thing was the cancer seemed to be near the wall of the prostate and so…
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What's Joe Tippen protocol
I'm 54 living in Omaha NE, in good health. My routine blood test brought out a PSA 7.3. Ending up to be a prostate cancer Gleason 7. I'm yet to decide what to do. My urologist is suggesting a surgical removal of prostate. I'm just doing my homework. Anyone can instruct me about "joe tippen protocol "? Thanks
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radical prostatectomy after HOLEP - Is it possible?
I had a partial HOLEP after I was not able to urinate, and they found cancer - Gleason 3+4. An MRI showed that there was still cancer in my prostate. Everyone wants me to have radiation, but I would rather have another HOLEP operation and remove the rest of my prostate. My radiologist says that no surgeon would do this do…
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HIFU in Phoenix area
I had a partial HOLEP after I was not able to urinate, and they found cancer - Gleason 3+4. An MRI showed that there was PI-RADS category 4 suspicious mass, right posterior lateral basilar peripheral zone. I will get a biopsy in March. Everyone wants me to have radiation, but I would rather have HIFU. I would like to hear…
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Gleason score of 7
In 3 of 12 biopsies Dr wants to remove prostate ? Should I ? Or better options ?
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newly diagnosed prostate cancer
I am 71 yo male in fairly good physical shape. Had an MRI done after an elevated PSA of 11.3 on early January 2025. The diagnosis as per UCLA was a Locally Advanced Prostate Cancer. I am scheduled for a biopsy on February 11th. I have visited with several different urologists to learn about my options. I am also looking…
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My Latest MRI and Back Story
Figured I'd share the journey… Just had my first MRI while on Active Surveillance. My history is had rising PSA in Fall 2021 (from 4 in 2020 to over 5 in 2021), had an MRI then which identified a PIRADS 4 lesion, had a biopsy with 12 samples on a grid and 3 in the lesion. The 12 on a grid were normal, the lesion samples…
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Looking for Kaiser MDs, Bay Area if possible
Hi, My husband, Jim has 4+3 Gleason score, PSA 10.4 (11/2024), PSMA PET is negative for spread, MRI showing the tumor is on the left side and "extracapsular". The treatment options presented to Jim are surgery or ADT/brachytherapy/external beam radiation. I've seen posts here from 2010 and 2014 naming some surgeons at…
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Working out
I'm coming up on two months after my Prostatectomy and I see my Urologist on Jan 10th, 2025. My questions for you guys. 1. Have any of you been riding your bicycles any issues? 2. Do Any of you ride dirt bikes with any issues? I've only been walking and NO GYM at all! Note: I'm 66