-
radical prostatectomy after HOLEP - Is it possible?
I had a partial HOLEP after I was not able to urinate, and they found cancer - Gleason 3+4. An MRI showed that there was still cancer in my prostate. Everyone wants me to have radiation, but I would rather have another HOLEP operation and remove the rest of my prostate. My radiologist says that no surgeon would do this do…
-
Husband survivor of HPV throat cancer
My husband underwent intense treatment for HPV Throat cancer in may 2023 and while the cancer is gone, the after effects have been brutal:unable to swallow solids without choking, swelling due to radiation necrosis and lymphedema, sleep apnea. He’s become so discouraged and it’s so hard to just watch him give up. He won’t…
-
HIFU in Phoenix area
I had a partial HOLEP after I was not able to urinate, and they found cancer - Gleason 3+4. An MRI showed that there was PI-RADS category 4 suspicious mass, right posterior lateral basilar peripheral zone. I will get a biopsy in March. Everyone wants me to have radiation, but I would rather have HIFU. I would like to hear…
-
Car T Cell Therapy
Hi everyone, My mom (61 years old) was recently diagnosed with DLBCL stage 4 and has undergoed 5 lines of chemo. Since it is so aggressive, she is no longer a candidate for a stem cell transplant. We are going to Dana Farber in Boston next week to talk about Car T cell therapy. Insurance is becoming a challenge and the…
-
I've been fighting insurance and medical bills not cancer
In August 2024, I was diagnosed with renal cancer that had spread and attached itself to my spine. I work for myself, so I got private health insurance. They would only insure me for one year at a time. My insurance expired on November 7,2024, but that's alright because I got on my wife's company's plan. My old insurance…
-
Gleason score of 7
In 3 of 12 biopsies Dr wants to remove prostate ? Should I ? Or better options ?
-
newly diagnosed prostate cancer
I am 71 yo male in fairly good physical shape. Had an MRI done after an elevated PSA of 11.3 on early January 2025. The diagnosis as per UCLA was a Locally Advanced Prostate Cancer. I am scheduled for a biopsy on February 11th. I have visited with several different urologists to learn about my options. I am also looking…
-
Looking for Kaiser MDs, Bay Area if possible
Hi, My husband, Jim has 4+3 Gleason score, PSA 10.4 (11/2024), PSMA PET is negative for spread, MRI showing the tumor is on the left side and "extracapsular". The treatment options presented to Jim are surgery or ADT/brachytherapy/external beam radiation. I've seen posts here from 2010 and 2014 naming some surgeons at…
-
Passing
Have had the hardest couple of months, my father unfortunately lost his battle on September 2024. He was a strong man, who fought till the end. My heart is aching and broken. Currently battling with sadness, grief, anger, and guilt . I miss him everyday! Rip daddy!
-
Working out
I'm coming up on two months after my Prostatectomy and I see my Urologist on Jan 10th, 2025. My questions for you guys. 1. Have any of you been riding your bicycles any issues? 2. Do Any of you ride dirt bikes with any issues? I've only been walking and NO GYM at all! Note: I'm 66
-
What follow-up tests are done after chemo?
Hi OC Sisters: I finished 6 rounds of Carboplatin/Paclitaxol for ovarian endometriod carcinoma stage 2 a few weeks ago, and I am wondering what tests/scans are usually done to monitor recurrences. I am on a 3-month follow-up schedule for 2 years, then 6 months if I remain NED. What sort of follow-up have you had (PET, CT,…
-
Six weeks post chemo: Hair report
Just a hair report for future chemo grads ;) Ok..I have about 1/4 of inch of fuzz all over my head. It's white and soft, but I can feel stubble that is also growing in that I think is darker. It appears to growing in at a consistent length, so I guess that's good. Although, I have noticed about a dozen hairs that are…
-
Early Bladder Cancer Diagnosis & Feel Great
My 84 year old dad had not been feeling well, sickies, weak, coughing. Then, went to the hospital with lots of bleeding/clots and terrible pain almost two month ago. Had a cyso and TURBT in hospital and stayed about a week and a half to recover. Diagnosis of bladder cancer, high grade T2N1. Two urologists have explained as…
-
Father starting chemo soon, any advice?
My father is 67 and recently diagnosed with colon cancer after finding a partial obstruction due to a tumor. He already had the resection but 4 lymph nodes showed some cancer so now he will be getting a port next week and starting folfox soon every other week for 6 months. Any advice on what to do to keep side effects to a…
-
Heart Rate Increase
Hi I’m 25 years old and was diagnosed with High Grade B-Cell Non-Hodgkins Lymphoma stage 2. I recently completed cycle 4 and have 2 more to go. My PET scan showed no active cancer. I’ve experienced fatigue but mostly increased heart rate. I can be walking to the bathroom and my heart rate will reach 120s-160s. Was…
-
67 years old Gleason score (3+4) next
-
Signs of Life
Nearly 16 weeks since RARP and last night out of nowhere there was “a sign of life” as far as the ED is concerned. How or why I don’t know but suddenly had the closest thing to an erection since before surgery and there was pretty good sensation with it. Taking this as a good sign. Incontinence is greatly improving and…
-
Proton vs IMRT
I know many of you have seen the results of the Partiqol study comparing IMRT to Proton. Generally the take away is that the treatments are equivalent. I agree with that assessment . I was reviewing some of the details in that study and the thing that really struck me was how good both treatments were. I personally think…
-
Hair loss ten years after chemo
Hi - I am posting this a bit greedy and needy as in I've just found this place and now I'd really like to gather some info I had breast cancer when I was 36. It has been a horrible 10 years but you get there. I don't think anyone really gets that. But anyhow, I can kind of cope with all the depression, anxiety, all that…
-
Radiation Proctitis Argon Plasma Coagulation treatment
I had radiotion treatments that ended in may of 2017, Started seeing blood clots in my stool. Turned out to be Radiation Proctitis..During Sigmoid oscopy they were able to see the bleading and there was a lot of damage and the Dr he basically lasered the whole area. I saw the photos... Has any one had any side effect from…
-
EMPD Extramammary Vulvar Paget’s Disease
Is there anyone out there with EMPD??
-
Fighting Cancer Essentials
Hello! My mom was "diagnosed" with cancer this past week. Biopsy still to come. However, there is great confidence it is cancer as the PET scan showed hypermetabolic activity. My mom is going to fight! I am looking for a list of supplies every cancer patient should have. Food, items, essential oils, etc.; you name it! She…
-
KEYNOTE 522
Is there anyone on the KEYNOTE 522 Regimen, or has been on it? I am searching everywhere to find someone to communicate with on this. I am recently diagnosed with TNBC and the KEYNOTE is now apparently the Standard of Care. Please answer if you can. Thank you. (Jan. 2025)
-
Urinary Retention from Radiation Therapy
I'll be heading for 5 weeks of Radiation Therapy soon. Having had a bout of acute urinary retention (not being able to pee at all) after my IRE ablation procedure, I'm paranoid that it may happen again with the RT treatment. My doctor thinks it unlikely. He claims the radiation is much less likely to cause the kind of…
-
First Transrectal Biopsy
I'm scheduled for my first prostate transrectal biopsy on Monday morning. I made the appointment months ago, but it’s been on my mind ever since. As an older man, I feel pretty anxious about everything, from the prep to the procedure and the results. Any tips for easing my nerves?
-
Cea rise and covid just last week
CEA now 5.9 normal has been 3.5 to 4.0. My wife just tested positive for covid 2 days ago and yesterday all ok . Also had some stomach issues . Do we have update that recent covid infection cause a uptick in CEA Levels …Thanks for anyones update knowledge
-
What do you wish you'd asked? + ED after more than 3 years
Hi all, I'm 56. Was diagnosed last year Gleason 3+3 and chose active surveillance. That has progressed this year to Gleason 3+4 in 2 cores with some cribriform patterning. Decipher is 46 with intermediate risk. I have to choose a treatment and hate all options. I find that doctors don't give you the whole picture and I am…
-
Pathology Report Question
Good afternoon, My father had robotic surgery to remove the prostate following a PIRAD 5 Prostate MRI (No lymph involvement) and a postitive biopsy showing Gleason 3+3 and Gleason 3+4. Surgery on 9/23/24, deceived the unfortunate news last week that there were positive margins. Conversation with the surgeon was a 2 minute…
-
ER+ HER2+ breast cancee
hello all, I was diagnosed with ER+, HER2+ breast cancer this past September. 1A, grade 2. No lymph node involvement. Lumpectomy. I qualified for a trial that my oncologist recommended. No chemo, 20 rounds of radiation, Phesco shots every 3 weeks for approx a year, and Letrozole estrogen blocker for 5 years. I’ve completed…
-
**** Vitale Cancer-Free After 4th Bout With The Disease In Just Over 3 Years
Head & Neck Cancer Defeated Again https://x.com/DickieV/status/1877012081594990846 **** Vitale said he’s cancer-free after his fourth bout with the disease in just over three years. The 85-year-old ESPN college basketball analyst announced Thursday on social media that he got the news after a morning scan. “SANTA CLAUS…