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Entrectinib now for about 1 month...
In late 2020 they found stage 3 lung cancer. Did chemo, radiation and followed up with immunotheraphy. On March 27th this year I had surgery to remove a tumor pushing against my brain. Has anyone else been prescribed entrectinib. Just wondering about side effects. Thanks.
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NRI tonsil adenoids in 1960’s I was shocked Radiation oncologist I have respect was not aware
I was flabbergasted the a highly skilled emphatic radiation oncologist was not aware of NRI being performed on children in 1940-1970’s!! I called to see if he could determine if what I am experiencing today is related to NRI late effects ! One month later his nurse called me “ Dr A was shocked this was being used he…
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Seeking Opinions on UCLA & USC surgeons for Colorectal LAR Surgery
Hello Everyone, I'm preparing for Lower Anterior Resection surgery in the Los Angeles area. I'm interested to know if anyone has opinions about surgeons. I hear the the colorectal surgeons at UCLA and USC are quite good. If you have any personal experience with UCLA or USC surgeons, especially if you've had surgery…
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Secondary Cancer
I have been anemic for 2+ years now and there are multiple lymph nodes under my jaw that have been swollen for 6+ months. Labs have shown low RBC, low Hemoglobin, and low Hematocrit every CBC lab for almost 3 years now - my WBC is currently low, but hovers around normal (never above low normal). My iron panels have all…
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RECENTLY DIAGNOSED WITH PAPILLARY THYROID CANCER. THYROIDECTOMY?
Hello everyone, I am a 44 year old female and was diagnosed with papillary thyroid cancer on January 17th of this year. Is a total thyroidectomy the best option for me?! Hoping you can help! Here's my story - In the fall of 2023 I woke up with "frozen shoulder" (adhesive capsulitis is the medical term), in my left…
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Thyroid cancer - advice for recurrence and medications
Hi all, I have a couple of questions I'd love some insight on from the community. First, some background, I was diagnosed with papillary thyroid cancer in July 2023 at 43 years old. The main tumor was on the right side and it was 2.5cm, there was spread to the left side, but no apparent spread to the lymph nodes. I had a…
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Second round of Chemo and I already have neurpathy
I didn't know about icing during my first round of chemo (including Oxaliplatin) during 2023. And I did develop neuropathy. I'm getting ready to start a second round of chem. I was wondering if trying icing this time will help at all? Maybe keeping the neuropathy from getting worse?
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18 month post surgery update
I just wanted to share about good post Radical Prostatectomy surgical results. We often hear about the unfortunate post side effects and not enough when everything just goes well. I am doing terrific. I see my Doctor next month on a follow up. My PSA has been unmeasurable. I turn 73 this year. I have no incontinence and…
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New here
Just diagnosed with Eye Cancer. Currently using Chemotherapy eye drops. Anyone else have experience like this?
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Coping With Stress of Cancer
Hi. I just turned 82 (1/28/44). I was diagnosed in Oct 2020. Early on I attended a support group for a couple of weeks. There was another man in the group, and he shared that he wrote poems and shared one with the group (only 4-5 ppl). I thought to myself that I could probably do that. As my kids were growing up we had…
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Ocular melanoma
Hello, I'm new here. Trying to figure things out. My husband was diagnosed with chorodial melanoma on December 9, 2025. He has completed his plaque brachytherapy. We have an appointment Thursday, February 5 th to get the results of his biopsy. They will tell us at that time if his tumor is very likely to spread or low risk…
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Long term swallowing issues
Hi, Before I begin, I just want to offer some encouragement and hope to anyone recently diagnosed. It was my second cancer, the first being unrelated colorectal cancer. I began my NPC journey in 2011. I underwent both radiation and chemotherapy at MSKCC (highly recommended). But have been NED since. Recently, I have…
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I need some advice please
I have started developing many medical issues since my cancer treatment. I have neuropathy everywhere. I have cranial pressure and now I have cardiovascular disease. I looked at all the tests that they gave me before during and after cancer treatment and my heart was perfect. I started having issues about two years ago. I…
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Cervical cancer
I am curious if any woman were diagnosed with both anal and cervical. Did you have either one of them first and discovered you had the other cervical or anal, one right after the other?
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Family members/friends that just don't seem to care.
I haven't got alot of energy back yet but noticed that this topic seemed to be coming up a fair amount lately and since that is what I am dealing with, in spades right now, thought I would throw my 3 cents into the pool. Abandonment. It sucks doesn't it? Well take heart, if you can in something like that, in that you are…
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Choroidal Melanoma Survivors
I was diagnosed with a large choroidal melanoma on January 23, 2009. It was discovered during an eye exam. I had visual disturbance which prompted my dr visit. It felt like something was in my line of vision but no matter how many times I wiped my eye or blinked it never moved or disappeared. I had 3 different eye drs look…
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Choroidal Melanoma
Hello everyone, I was writing to find anyone else who may have this cancer. I was just diagnosed with this cancer after going to my eye doctor. I woke up one morning and noticed an increased amount of floaters in my vision. I blew it off for months and also because I didn't have insurance or money to pay for an eye visit.…
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54 y/o post menopausal for 2 years and started spotting
Hi. I am on Climara estrogen patch and 200mg of progesterone, which I've been on for several months. I was on 100mg of progesterone, but my doctor upped it for me about 6 weeks ago. About a month ago I noticed very, very light pink, almost hard to see, spotting when I wiped. Within the next few days it remained the same…
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Trapped Gases
After being diagnosed with adeno carcinoma in the stomach and part of the esophegus I had my total gastrectomy surgery in March 2025. Did anyboy had experience with post surgery painful trapped gases after meals. I get a lot of pain and sometimes I can't sleep. I tried smaller meals didn't work. Any advice from your…
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Signs of Life
Nearly 16 weeks since RARP and last night out of nowhere there was “a sign of life” as far as the ED is concerned. How or why I don’t know but suddenly had the closest thing to an erection since before surgery and there was pretty good sensation with it. Taking this as a good sign. Incontinence is greatly improving and…
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LONG TERM SARCOMA SURVIVORS WANTED
I'd like to hear the stories of some long term survivors. Please tell me your story. I'd like to be able to see that this isn't only a dismal disease. Thanks.
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Any survivors of signent ring cell colorectal cancer
Hi my name is cheri my husband is 26 was diagnosed with signent ring cell colorectal cancer stage 4 in june 2012. He had surgery then to remove a foot of his colon when he was diagnosed along with several lymphnoids, the margins were clear so he started radiation in july along with chemo pills. One eek after starting that…
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Synchronous Signet Ring Cell Carcinoma
Hello all, I see there doesn't appear to be any current post regarding SRCC so I thought I would start a new thread. I was diagnosed with Synchronous Signet Ring Cell Carcinoma in January '25 stage III. At that time the MDC at University of Colorado settled on chemo and radiation. FOL FOX and radiation for the rectal…
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Zytiga (Abiraterone) with Prednisone vs. Nubeqa (Darolutimide)
Just thought I'd share that yesterday I had another 3 month checkup with PSA remaining undetectable. 😀 After Pelvic IMRT and having been on Orgovyx (Relugolix) along with Zytiga (Abiraterone) / Prednisone for about a year it's been working as well as can be expected. 😀 I am however experiencing many of the typical symptoms…
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Poly-MVA-----Any experience with this?
Hello All... I am generally not a person that would investigate alternative supplements. I shared with my acupuncturist that my tumors had increased in size and number and she became very concerned. She paused for a moment and decided to tell me about a product by the name of Poly-MVA. She has been researching it and is…
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Lupron shots
3 good quarterly PSA test since radiation treatment spring of 24 (after cancer returned following 12/7/23 radical Prostectomy) Urology aptt on 2/8/26 have been given two 6 month lupron shots. He’ll probably recommend a 3rd I don’t like what the shots have done to my body less muscle more fat Comments/recommendation's??
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HAI Pump Floxuridine (FUDR) and Panitumumab (Vectibix) - Anyone?
Hi, I am 58, originally diagnosed a year ago with colorectal cancer with extensive liver mets not operable. After a year of Capox, I shrank all of it massively. I recently was able to have a colon resection. I also had an HAI liver pump implanted to go after the liver mets that are left. I have had only one infusion so far…
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Update
Well. I reported all clear in June but things change in the blink of an eye. On a completely unrelated scan, an enlarged lymph node was discovered. Not the results we were hoping for from my biopsy: Kidney cancer cells (diagnosis and surgery 9 years ago) have resurfaced. I had a CT scan of pelvis/abdomen tomorrow and a…
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The next "Step" after robotic prostatectomy
Good Day. I'm 64, and had a robotic Prostatectomy in Oct 2022. The Dr was confident all cancer was encased in the gland, but the 3 month PSA check was .29. Next PSA check 3 months later was up to .65 so a PETScan was scheduled. A tiny hotspot was on the Prostate bed, and Dr. is recommending radiation treatment. I am…
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Calif. teen takes $100K national science prize
Some really amazing news about technological advancements in cancer treatment. Unfortunately, it could take at least 25 years for practical use though. Calif. teen takes $100K national science prize