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Open Partial Nephrectomy Complications
I had a open partial nephrectomy back in May of 2023. Very invasive. Had a rib removed and my kidney had to be reconstructed. I had a rough recuperation but slowly made progress. After 12 weeks I was back to work part time and after 5 months back full time. The problem I am having is that shortly after the 6th month mark I…
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Question for my cousin diagnosed with inoperable tumor
I hope someone can help us understand what is happening to our dear Maria. She was told she has only months to live because she has brain cancer. We are beside ourselves. My aunt doesn't even know how to say the type of tumor she has! What type of tumor makes it hard to walk, hard to talk and makes a patient lose their…
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Anger
Hi. I'm new here. My beloved husband was diagnosed with grade 3 inoperable brain cancer 10/29/25 and began treatment 12/8/25. Our lives have really been turned upside down. I am primary caregiver for my husband, I am working full time, and we have a 15 year old daughter. I expected some brain fogginess…which we have but…
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Ampullary Cancer how should I feel?
I was diagnosed in Nov of 2024. I had no appetite at all losing 15lbs. In early January they opened my bile duct with a stent. Right now I feel great as if I didn’t have cancer I feel that good. Is this normal? Am I just waiting for the shoe to drop? Do I feel this good because my bile duct was opened up? I’m having a CT…
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Recent diagnosis
Hello. I'm new here. My beloved husband was diagnosed 10/29/25 with grade 3 inoperable brain cancer. We started treatment 12/8/25 and it ends 1/27/26. I feel supported as far as his treatment team etc. but I guess where I'm struggling is that people we've shared this with seem to be backing off or away from us. Has anyone…
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RCC in my remaining kidney
12 years ago I lost my left kidney. There have been a few scares along the way but now I have RCC in my right kidney. Partial nephrectomy scheduled for next week. Tumor is in the middle of my kidney and doc says there is a chance this laparoscopic robotic procure turns to an open one and 25% chance things go sideways and I…
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Changes from testicular cancer
I am still attracted to women, but it is different now. It is only a mental attraction. There is no physical urge. I’m a survivor of testicular cancer for six years. I’ve had my testosterone checked and my level is fine but I don’t physically attracted. Is this normal?
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Oral thrush and weak taste buds
hi everyone, my mother had oral thrush a while ago and it has cleared! however, she still cannot taste food as she did before. Is there any treatments or remedies we can try to clear this up?
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Recover from chemo and testicle removed
If anyone else experiences a kind of burning tingle for a few seconds every once in awhile down in the area where they removed my testicle and sperm cord also when I climax it sometimes hurts and feels hot inside that same area please let me know so I know if it is normal thank you
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Hi All!
It's been a long time since I've visited, and I find myself very nostalgic and missing you ladies who kept me company on this journey. I'd love to hear from my beautiful "old-timers" who are still here on the boards, and hear news about those who aren't. I also want to encourage y'all that miracles really do happen. I…
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Lupron shots
3 good quarterly PSA test since radiation treatment spring of 24 (after cancer returned following 12/7/23 radical Prostectomy) Urology aptt on 2/8/26 have been given two 6 month lupron shots. He’ll probably recommend a 3rd I don’t like what the shots have done to my body less muscle more fat Comments/recommendation's??
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Feeling deflated and resentful
I am 18 mos post breast cancer treatment for Stage 2B invasive ductal Cancer. Surgery chemo radiation all I attended mostly alone. My spouse in WC family there for first appts and surgery but then work and family took over. I am feeling very deflated and alone right now as my family treats me as if I never had cancer. No…
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Cryoablation and Open Partial Nephrectomy
Hello all, I was diagnosed with RCC about 9 months ago, and with the advice of my urologist had cryoablation done. I am 59 and healthy. All went well. On my second CT scan (6 months after the procedure) an anomoly showed up, so my urologist sent me to the head urologist at the univerisity medical center. The issue my first…
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What does long term survivorship of childhood MB look like?
Hi, I'm new here. I did some searches and found old threads with a similar question to mine, but nothing recent, so I'd thought this could be an update. In 1980 my sister had a medulla blastoma. She had surgery and full brain and spine radiation. I've been her guardian since our mother died. She is now 46, lives with…
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Childhood Medullablastoma
I have a 2 year old nephew that has just been diagnosed with Medullablastoma. I have been desperately trying to find an adult survivor from this cancer that was diagnosed at a very young age (under 3) and have had no luck. I am hoping that someone has some information on dealing with this cancer from this early age. Can…
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just diagnosed
Hello: Just discovered this website and I wanted to join. I was just recently diagnosed with anal cancer and now am going to have more imaging and hopefully in about 2 weeks I will start with my treatments which will include chemotherapy and radiation therapy. Looking for others who have experience with this and have…
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I’m a bladder cancer survivor, i am sharing my journey to help others
Hello everyone, I wanted to share my journey as a bladder cancer survivor in the hope that it might encourage or help someone who is going through a similar phase. My journey began when I noticed symptoms that I couldn’t ignore anymore. Like many people, I didn’t initially think it could be cancer, but after proper tests…
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struggling with survivorship
Diagnosed fall 2024. Had sucessful surgery. Started what was supposed to be 12 rounds of cleanup chemo in November 2024. Unfortunately two adverse reactions and a very conservative oncologist =treatment halt. Struggling with the emotional side of survivorship ever since. In therapy.
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"Surgery & Radiation Now" versus "Mammograms every 6 Months"
Happy New Year!! I have DCIS Stage 0 in rt breast, with markers inserted. I am 68 years old. I have lumpectomy surgery scheduled on Jan. 7, 2026 (in 6 days). I made an appointment with my surgeon to discuss everything on Jan. 5, 2026. I would like to ask what people have done in my situation or what people think are the…
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Why is pancreatic cancer considered one of the deadliest and most insidious cancers?
Pancreatic cancer is particularly lethal due to two key factors: Its "stealth" nature & aggressive spread. 1. Silent Progression: In its early stages, pancreatic cancer typically causes no noticeable symptoms, such as pain or discomfort. This silent progression allows the disease to grow undetected for a long time. 2.…
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Alternative and out of country treatments for stage IV NSCLC ALK+ve
In the fall of 2019 my 25 year old daughter stumbled into a Vancouver hospital so short of breath she could barely walk. A week earlier she had been diagnosed with pneumonia and placed on antibiotics and puffers based on low oxygen readings and an xray that the doctor said was "the most unusual xray he had ever seen." I…
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The aftermath of husband's cancer and remission
My husband was diagnosed with cancer last year and is in remission. We are in our 30s and have school-aged children. He is on chemo indefinitely to help prevent a relapse, so our life has changed a lot. Our relationship doesn't feel the same anymore. He is a great person, but I can't seem to connect this cancer patient to…
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Another lymphoma diagnosis
Well the other day I got a biopsy result from a lump on my neck that indicates Large B-cell lymphoma, germinal center type. Don't know much else yet. Scheduling an appointment with an oncologist ASAP to hopefully learn more soon. Also have a full body scan scheduled for next week. Originally went to a ENT doc for the lump…
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Pluvicto (lutetium 177 vipivotide tetraxetan)
Is anyone here been on or is on this radiopharmaceutical treatment for advanced metastatic prostate cancer? Starting this treatment at UCSD Hillcrest on 1/9. Looking for some insight as to what I'm looking at. Thanks Mtop.
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Sore throat still
I know there is no "normal" when it comes to cancer...but...does it seem right, to still have a sore throat after 3 months out of treatment? I do have an appt. for my first MRI on Feb.4. I am anxious, nervous, scared and all the rest:) It's not sore all of the time, and there is no rhyme or reason for when it is sore. Is…
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How to cope the 1st day quimo, what to think about how to control fear?
Hello i am 48 yrs old recently i have been diangnosed right breat cancer type HER-2 positive 3, stage 3. Also my MRI detected a 1cm nodule under my armpit which biopsy can back positivo. Now doctors says requiere quimo 6 seccion every 21 days in 5month cirgury to remove the breast and nodule armpit. Doctors say these are…
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Myelofibrosis and CML 190
My husband Joe has both of these rare blood marrow cancers. Anyone know about Leukemia 190? I can't find much about it. My husband is on Gleevec and it decreased the size of the spleen, but now it is back to its original size. Any comments about bone marrow transplants? They have suggested this at some point in time. So…
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Diagnosed with AML at 35
Hello, new to CSN. Wanting to connect with others who may have similar experiences. I was diagnosed with AML 6/17/25. I am 35 yrs old, married with two toddlers. I went through 4 rounds of chemotheraphy (cytarabine). I have had 5 biopsies. Currently waiting for results from my last biopsy.. The one before that was “weakly…
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PROSTATE CANCER AND LOW HEMATOCRIT
12-24-2025 I’m the new guy here after accidentally finding this site and I would like to share my experience with prostate cancer( PC ) . I am 79 in very good physical condition (I still play a mean racketball game for 1 hr ) and without problems with blood pressure ,chole- sterol , diabetes . However , I was diagnosed…
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Stage IV metastatic breast cancer
This is my first post. I have been following this site for a couple of months now, but don't seem to find many metastatic survivors out there. I'm trying so hard to find some encouragement and hope. It's been a year and a half since my diagnosis and I just want to reach out to someone who is going through this also. Your…