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Endometrial SEROUS carcinoma
I was diagnosed with endometrial serous carcinoma 10/21. I had a total hysterectomy, chemotherapy, and brachytherapy ending 6/22. I had a CT and PET scan 7/23 which showed cancer recurring in the retroperitoneal lymph nodes. I have my last radiation treatment today (total of 28) and am wondering if there's anyone else on…
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Have to get a molar pulled
I am a thirteen-year survivor of nasopharyngeal cancer. Through the years, I have spent thousands on my teeth. I had a molar that had a crown on it. It decided to come loose and fall off. Now I need to have the root pulled out. My dentist has put me on two meds. Pentoxifylline and vitamin E to ward off osteoradionecrosis.…
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Webinar: Head and Neck Cancer Survivors - Managing Function and Quality of Life
The National Coalition for Cancer Survivorship (NCCS) hosted a Cancer Policy and Advocacy Team (CPAT) webinar discussing quality of life for head and neck cancer survivors. The treatment of head and neck cancer (HNC) often involves surgery, radiation, and chemotherapy. This treatment is critical for controlling or curing…
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Buckle up, it’s gonna be a bumpy ride…
Had a CT scan a week ago to check out my appendix after a colonoscopy, and the radiologist found that I have a “complex multi septate cystic mass with thickened septations and mural nodularity measuring 9 cm x 6.5 cm exophytic to the mid left kidney.” It’s def Bosniak III, potentially IV. My family has a propensity towards…
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Radical Nephrectomy in Oct 2024 - Unsure of Next Steps
Hello, first off, let me start out by saying that I am grateful for this community and the courage you all display. I am hoping for some guidance on my cancer journey to better help me advocate for myself. In October 2024, I went to the emergency room after a month of seeing small traces of urine in my blood. I was…
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Mohs surgery shock and support
So glad to see this site. Support is so helpful for healing plus tips and advice. Yes I was in shock after seeing the stitches from Mohs on my nose and closure with a plastic surgeon. In my opinion it seems like it may be helpful if a Mohs Dr.’s have actual before and after pictures so that you can be prepared for any…
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Chemo or No Chemo - Stage 1C1
Finding myself in the decision making stage for Chemo or No Chemo (Observance) for Stage 1C1. Single ovary cyst with recent surgery to remove cyst, ovaries, fallopian tubes. Spillage during surgery (due to cyst size, needed drainage prior to removal). Cyst results returned as Grade 1 mucinous carcinoma. All post-op CT…
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Overwhelmed with my proposed treatment plan
Hi everyone, I had an appointment yesterday with a radiation oncologist to go over the treatment plan for my prostate cancer. I’m very grateful my spouse was with me—it was a lot to take in. I have a Gleason 9 diagnosis, and while the cancer is still contained within the prostate, the recommended treatment is androgen…
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4 YEARS OF LIFE!!
Hello all you Rockin' Semi-Colons pals!! August 6 is my four year anniversary!!! I AM ALIVE!! I love those words. As much as I love NED. I have a houseful right now and more coming this weekend so I just wanted to sneak in here really quickly and share this with you. Tomorrow I will be off to the berry patch picking fresh…
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Stage 1 Cancer under left side of tongue front of tongue
Has anyone been diagnosed with tongue cancer under the tongue - will have operation on June 3rd. Is having tongue cancer in the front of your tongue worse than having it in back of the tongue. I never dealt with anything this before and just wondering. Can you all tell me the experiences with tongue cancer and what I…
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Shoulder Pain and Dysfunction After Radiation
Remembering that I have had radiation twice, most will not run into this problem. But some will, and as I've not seen a reference to it before, thought I'd talk about this situaton. It has taken me awhile to figure out I had a problem. Beginning soon after my last radiation, I started having mild bilateral shoulder pain. I…
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Stage 4a rectal with Mets to lung
35 yo diagnosed with rectal cancer last year. Had radiation, chemo and colon resection and had negative CT DNA bloodwork in January. Bloodwork came back positive in April have one spot on the right lung and one spot on the left lung. Have to meet with a thoracic surgeon interventional radiologist but they said no…
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Looking for folks taking repotrectinib for ROS1 mutation
My husband was initially diagnosed in 2016 with non small cell adenocarcinoma. He underwent a right lower lobectomy, chemo, and radiation. Fast forward nine years and it is back, this time it has metastasized. He has the ROS1 mutation, the only option for us is a TKI. He started taking repotrectinib April 2. Anyone else…
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Time of first PSA after treatment
I was under the impression they would wait 3 months to do a PSA. But, I just got a text from my urologist to get it done at 30 days That Sound right to everyone?? Have a Great day 🚜🐝🚜
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zejula question
Hi everyone, This is my first post. I am on zejula for maintenance after Ovarian stage 2b diagnosis, surgery and 6 rounds of chemo.I began Zejula in fall 200 but was hospitalized for low platelets. Now and on 100mg and tolerating accept for sleep issues. I take it at 8 pm. Does anyone take their dose in the morning? I was…
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Q: Cancers in senior citizens from thymus radiation as babies?
It's well known that those of us who misguidedly had their thymus glands irradiated as babies developed thyroid cancer in early adulthood. Now that I'm 69, I'd like to consider how many of us have developed other cancers in the area of the neck, chest, mouth, etc., as senior citizens. I've seen a few people, in this forum,…
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Rib pain
hi, anyone has any home remedies for rib pain? My mom has breast cancer with bone and liver mets, and she has been feeling pain in her right rib. If you guys could give me some home remedies or treatments for rib pain other than radiation that would be good! Thanks
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Inability to ejaculate
I finished treatment a year ago (radiation). My orgasms now are very weak and, of course, I don't ejaculate anymore. I did at first but it's gradually gone away. This has made me damaged goods. All I hear is "did you ****?" or "are you ever going to ****?" or "why can't you ****?" I dread having sex but (not bragging) I'm…
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The Silent Anxiety After Remission: When the World Thinks You’re Fine
By Linda Athanasiadou Remission is supposed to be the happy ending. The word everyone longs to hear. And I was grateful—truly. But what no one tells you is that after remission, a different kind of battle begins. It’s quieter. Less visible. But just as real. And it lives in your chest like a tight knot: the anxiety of…
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Overactive bladder from ADT and IMRT
Just finished the last of 40 IMRT sessions last week and have been on Orgovyx and Zytiga for about 3 months. Feeling OK with the exception of an overactive bladder including urinary urgency and frequency. I need to pee about every 1-1/2 hours. Very annoying especially during the night. Not getting adequate sleep. I…
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Advice
I'm a 65 year old recently diagnosed. My PSA was 5.34 in April and my urologist recommended an MRI. MRI in June showed showed prostate volume 38cc. T2 hypointense lesion involving the the left posteromedial mid gland peripheral zone measures 0.3cm and demonstrates focal restricted diffusion and low ADC with early focal…
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Thanks all
I want to thank those who tried to help me. I gave my best effort to try to deal with the side effects of treatment from this disease but learned today that ADT damaged my testicles and they are no longer working so I will never recover testosterone. I also learned ADT gave me osteoporosis and heart problems. This is not…
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Breast Cancer and TNF blockers
I am a two time breast cancer survivor (2003 and 2010) facing a difficult decision. In 2008 I was diagnosed with a rare and particularly aggressive form of rheumatoid arthritis, Palindromic Rheumatism that persists today. Unlike regular RA, this one does not cause joint damage but the attacks are more frequent and more…
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Asymmetrical fullness of the right lingual tonsil with effacement of the right vallecula
I am sorry in advance for being a pain I am just worried. CT scan showed Asymmetrical fullness of the right lingual tonsil with effacement of the right vallecula. PCP sent me to ENT. ENT says TMJ and reflux. I have had ear, throat and neck pain and swelling on the left side for over 3 months. Occasionally my lymph nodes…
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Diagnosed at 46 in the UK, curious what US doctors advise on diet & exercise after a prostate cancer
Hi everyone, I'm Mark, writing from the UK. I was diagnosed with prostate cancer (2021) at age 46, and since then I've been digging into the kinds of lifestyle advice people are given especially around diet and exercise after they’re diagnosed. Over here, the focus from medical teams tends to be almost entirely on…
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Is it possible to be told you don’t have cancer without a biopsy?
The gynecologist oncologist that I saw today told me that I do not have cancer. My regular gyno could not get a good sample with an EMB so he had referred me to this GO, thinking he could do a frozen section D&C. But instead, he told me flat out that I do not have cancer and that bleeding is most of the time not cancer.…
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Stage 4 cervical cancer survivor
Hello, I got diagnosed with stage 4 cervical cancer with 7 tumors at the age of 28 and I am 32 now but I went through 4 surgerys and chemo radiation and the cancer still came back so I had a pelvic exenteration and the outcome of it was having to wear a colostomy bag and a urostomy bag the rest of my life. It's been 2…
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Needing support and advice
Hello, I survived stage 4 cervical cancer after 4 surgerys chemo and radiation later I finally made it the outcome of surviving is having to wear a colostomy and urostomy bags the rest of my life and I'm 32 years old. I'm in a depression because I feel like I'm never going to find love again. When I got the cancer and…
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Diep flap reconstruction
how long did anyone who had a physical job (I work in a kitchen) return to work after diep flap reconstructive breast surgery? I’m coming up on my 6 week follow this week at Dr and I’m nervous and having some issues about returning too early. About not being able work due to being on my feet all day plus it’s physical…
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Living with stage IV CRC
Very interested in hearing from those who are living with stage 4 CRC as a "chronic condition". My wife is currently in this situation - receiving FOLFOX and Avastin on an ongoing basis, tweaking the Oxaliplatin concentration and sometimes backing it of entirely when the side effects become too severe. She is currently NED…