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NavDX positive test
Hello, I have HPV related head and neck cancer. I've had three surgeries....a biopsy, radical tonsillectomy and a full neck dissection. I'm currently undergoing radiation treatments. I was told after removing the tumor from my tonsil that the margins were good and the cancer was removed. I recently had a NavDX test done…
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Hello all, would you please help me with your pros and cons of IV versus Venous Port
Hello all, first of all, I want to thank those of you who have helped me so far on this frightening experience of endometrial cancer. It is very very comforting and extremely helpful hearing other's stories regarding their experiences. You all have showed great courage faced with this disease. I begin my 6x Chemo sessions…
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CEA level
Has anyone had experience with CEA levels rising exponentially but CT Scans showed no evidence of disease. My oncologist has ordered a PET Scan. What happens if the PET Scan is negative? What are next steps should one take?
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Late stage 3 colon cancer
HI, Very new to this. In March of this year I was diagnosed with late stage 3 colon cancer that has metastised in the liver with three tumors at tge very top periphery of the liver. I have had 8 chemo treatments so far with my 9th tomorrow. They have been using oxyplatin, folfox4 and cetruximab. Oncologist says the tumours…
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No orgasm after radical prostatectomy Davinci Robotic sugery
Hello, I had the radical prostatectomy surgery in August of 2024 so it's been a year since the surgery. I experienced a handful of orgasms which contained regular spasms with the orgasm in the first 6 months that had 40% feeling compared to before surgery. So I was hopeful. Now a year later I don't have only have only…
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anal cancer
I just found out that I have cancer in my rectum. Last week, coloscopy; next week, CAT scan & surgeon meeting. I don't have family; my husband died in 2013; friends don't know much about cancer & neither do I. I'm afraid and anxious, trying not to get depressed. I'm looking for conversation to help me thru this process.
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Side effects from anastrozole
I started anastrozole about seven weeks ago. I am having leg pain, headaches, and hot flashes. Looking for suggestions on how to deal with these effects.
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y90 is a complete load of crap
Yes that's true, the treatment stinks and it made me even worse. The tumor they went after increased in size and I even have some new tumors. I'm done with the fake promises of wonder drugs. The name of the game is money and they are raking it in.
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Will HBO do the trick?
Hi to all, I have received a message from Hunter inquiring how I am doing. And, yes I am in default with a late update from my last entry in this forum. Well, everything seems to be under control. Since my last post (below) in this forum that I had a series of "encounters" with health issues, particularly due to bladder's…
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Seeking Help For My Sister
My sister was just diagnosed with Stage IV Metastatic Ovarian Cancer. They said they can add maybe a year longer to her life with immunotherapy. She had no symptoms and was seemingly completely healthy up until some abdominal discomfort 4 days ago. Is there anything else we can do to fight this and extend her life? Are…
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Update
Well. I reported all clear in June but things change in the blink of an eye. On a completely unrelated scan, an enlarged lymph node was discovered. Not the results we were hoping for from my biopsy: Kidney cancer cells (diagnosis and surgery 9 years ago) have resurfaced. I had a CT scan of pelvis/abdomen tomorrow and a…
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Breast change from radiation one year after treatment
Hi. I have red dots on my breast one year after radiation. I had a bad reaction to the radiation when I had it called radiation burn. Now, I have these things. They kinda stick out, and they itch. I had a mammogram to make sure they weren't cancerous and they aren't. Which is good. Anyway, I was itching at a particular…
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Chemotherapy Ineffective 97% of The Time
I'm not a doctor and I'm not giving medical advice. I found this article interesting: http://www.collective-evolution.com/2013/04/11/study-shows-chemotherapy-does-not-work-97-of-the-time/ "A study published in August 2003 revealed that of adult cancer in the USA and Australia, the use of chemotherapy, when looking at…
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Apricot seeds
Have any of you ever taken apricot seeds? I am curious to hear your comments. I know of one young man at our church who had brain cancer stage III seven years or so ago and he said the seeds attributed to his health now. Then another lady I know just was told her dad was done with treatments so she is going to start him on…
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I wish I could call him or see him
My brother died a few weeks ago from brain cancer. He was taking care of our elderly mother. I had to go get her soon after his death and put her in assisted living. I've been talking to lawyers about her situation and how to afford assisted living. It's insane how much it costs or even how much the lawyers want to even…
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Good and bad days
Hello everyone, my mother has stage 4 breast cancer that has spread to her bones and liver. She has some good days but also bad days, i wanted to ask if its normal that she feels good one day and the other day she's super tired and in pain? She is on enhertu and her last dose was on September 1 its more than 10 days , the…
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CEA Levels
Has anyone had experience with rising CEA levels but CT Scans show no new signs of disease (one done after liver ablation and two after CEA levels started rising). My oncologist has ordered a PET Scan. Any advice if the PET Scan is negative as well. Thanks
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Another CEA question
Hi all, Summary: Dx with rectal cancer 4/05, treated with chemo/radiation and then local excision; recurrance 4/06, treated with AP resection/colostomy and 9 cycles of Folfox chemo ending 11/06. All my CEAs had been less than 1 or 1 until 4 weeks ago when it had risen to 3.5. CT scan had questionable area of markings but…
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radiation induced brachial plexopathy
I am now 63 years old. I had oral cancer, and was treated with Cisplatin and radiation. They beat me up pretty good, and I have several residual issues but the cancer is gone. About three months after my last treatment, I started getting numbness and tingling in my finger tips. It spread within a month or so all the way up…
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Radiation Induced Plexopathy
Hi All. I used to be a regular on this board. Diagnosed SCC unknown primary in April 2010. Had surgery only and was considered cured 5 years later. in 2017 I was diagnosed with SCC unknown primary a second time. Ended up finding a tumor on the right BOT. This time I had radiation and chemo and I am still cancer free over…
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Please help me with my therapy decision, thank you all very much in advance
Hello all, I have been reading some of your excellent comments but I have specific questions and hopefully, one of you wonderful ladies out there can help me make a decision, please :-) 5/13/25 Pap smear discovered atypical cells. Further pathology = HIgh-grade serous endometrial adenocarcinoma, P53-Mutated. 6/27/25…
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Side effects of radiation and chemo for treatment of NECK cancer.
Hey all. I am new to this forum, but I have questions. I am 7 weeks post radiation and chemo treatments for HVP small cell squama's carcinoma. I knew most of the side effects going into my treatment plan. They all sucked but I knew. I lost my taste after week 2. Needed a feeding PEG tube after week 5. The horror show had…
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Lakota Sweat Lodge - Women's Retreat following
Those who have been around for a while know that I do a Women's Retreat every 6 months at Ft. Meade (SD) VA. The Fall Retreat will be Oct. 14 - 16. There is an option to start the Retreat by doing an Iniki (Lakota Sweat Lodge) presidered over by a Lakota Elder who is a Veteran (he is such a NEAT guy). I do it as it takes…
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The importance of reducing/eliminating stress in virus-related cancer - study attached
I believe 100% that my cancer was caused by an excessive amount of stress.. brought about by anxiety, worry, and fear about $$ and a whole host of things outside of my control. Stress lowers our body's natural immune system and weakens our ability to fight off sickness and disease.. and it also can activate dormant…
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Fighting Back: How To Tune Up Our Attitude And Outlook
I am a Stage 4 prostate cancer survivor, Gleason Score 9, with the BRCA 1 Gene. I've had surgery, chemo, and radiation. Also…3 PSMA PET scans. What helps me plow through this battle is a focused and determined outlook. If you would like a few tips on how to stay mentally strong as you confront these challenges, please send…
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Bad mental health after surviving cancer
In July 2024 I noticed a swollen lymph node… within 3 months I was stage 3 with ALK negative ALCL. This is a rare form of High grade, Tcell, non Hodgkin’s lymphoma. The VA has stated that they believe it’s possible I was exposed to something in Iraq while I was active duty Army. May 1st 2025 I had a stem cell transplant.…
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Alcohol Consumption after Cancer Treatment
Hello, I am a cancer survivor, I had a large tumor on the rear of my tongue and 7 weeks of aggressive radiation and chemo. I just passed my 5 year treatment anniversary and thankfully healthy. Has anyone heard anything about the effects of drinking alcohol after treatment? I'm not a big drinker but I can no longer feel the…
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My partner may have Cancer because of me.
I didn’t know I had HPV when I was intimate with my partner. After I got the diagnosis, I was in tears. I got my HPV vaccination in my adolescent years. I was scared to let my partner know he might have it as well because of me. After telling him, he said nothing was going to change between us and everything will be ok.…
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Surgery with Gleason 6 and PSA 2.5?
First post here……I'm 50 years old and recently diagnosed. Half of the biopsy samples came back as a Gleason 6 and it's bilateral. I've had my PSA checked for the last 6-7 years and it was always around 1.5. At the last physical it jumped to 2.5. I decided to meet with a urologist and now here we are. The kicker for all of…
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Massive PSA increase!
Hi guys, I'm new to this group. I have been on TRT for the past year, my baseline PSA was .51. I just had my follow up test and today my PSA is 12.93. That is a 2,431% increase in one year. From what I'm reading, that is highly suggestive of cancer! I have seen the results through patient portal and I haven't even talked…