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The little stuff (hints and tips): life after surgery
How about sharing practical tips for post surgery life. Look forward to reading everyone’s tips. Here is what is working for me 8 weeks out dealing with incontinence. Doing my Kegels and pretty happy with my progress but I occasionally leak or have a small squirt of urine when I cough, sneeze, laugh, stand up, bend down,…
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Hello & welcome to the club
Hi all - I’ve been lurking here for a few days, finally joined yesterday, and I just wanted to say hello and give some details. Let’s see…presented with >4.0 PSA in 2021, had first biopsy and MRI then, done locally. Everything came back good and it just looked like enlarged prostate. Monitoring every several (then every…
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DCIS
I was diagnosed with DCIS January 2. From my first mammogram in November to surgery in March, I have struggled. I hear that DCIS is not cancer because it’s non invasive. I read that it’s pre cancer. Anyone else with DCIS struggle with this? My treatment has been the same, to some extent, as if it was cancer. I even feel…
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Stopping two of the three adt drugs.
In 2018 had cyber knife treatment for prostrate. PSA was 8.2. Everything fine until last summer when my PSA went from .4 to 3 in a short period. PET scan showed no prostate activity but one spot on lung. Was put on Relugolix by my urologist and also abiraterone and prednisone by another cancer lung doctor. PSA is 0.0. Had…
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Lupron shots
3 good quarterly PSA test since radiation treatment spring of 24 (after cancer returned following 12/7/23 radical Prostectomy) Urology aptt on 2/8/26 have been given two 6 month lupron shots. He’ll probably recommend a 3rd I don’t like what the shots have done to my body less muscle more fat Comments/recommendation's??
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LHRH agonists versus LHRH ANTAGONISTS
prostate cancer hormone therapy drugs
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Need Advice - RCC Stage 3 - Adjuvant therapy - Clinical Trial - Pazopanib v/s Active Monitoring - An
Diagnosed 11/2011 - Open Partial 01/2012 - Pt3a - 2.5 cm clear cell, Fuhrman grade 2, renal vein invasion, am a high risk - with prognosis of 40% recurrence probability - Early 40's, with generally OK health (some back pain from a disc herniation - well managed, asthma - well managed) Options being given to me are (1)…
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males with peritoneal cancer diagnosis
My brother has recently been diagnosed with peritoneal cancer, not positive of its origin. Should be given his final diagnosis and treatment plan within the next couple of days. Ascites has been one of his biggest issues along with severe loss of appetite, weight loss, nausea and pain. Would be interested in hearing…
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What do I do?
My mom was diagnosed with stage four pancreatic cancer early last year. She had one tumor in her pancreas and four or five in her liver. She was on 5 different chemo treatments and the one that was actually shrinking her tumors started giving her an allergic reaction so they changed her to a different one after pausing for…
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anal cancer
I just found out that I have cancer in my rectum. Last week, coloscopy; next week, CAT scan & surgeon meeting. I don't have family; my husband died in 2013; friends don't know much about cancer & neither do I. I'm afraid and anxious, trying not to get depressed. I'm looking for conversation to help me thru this process.
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Ned after 5 years.
5 years ago a kidney stone blessing came into my life. It found kidney cancer in my left kidney. Since then I have been well and continue to be Ned after successful surgery! Wanted to let u all know. Keep fighting and staying positive.
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Peritoneal Cancer Chemotherapy
Good morning, I was officially diagnosed with Peritoneal Cancer on 10/04/2024 so I am new to this and it is terrifying. I have a primary tumor and it has spread to a portion of my liver. The plan is to do three rounds of chemo Carbo and Taxol plus Avastin and then have surgery. My first chemo was scheduled for October 18,…
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Technology tips for memory
I have had brain cancer in 2010 and with that I have memory loss. I wanted to share a couple tips I use to help that using technology. These were done using an iPhone SE. I make a calendar date and remind myself to check my calendar every morning. https://us.v-cdn.net/6035652/uploads/6WJ0OFW77FFT/adding-a-reminder.pdf…
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New turp 12/8/2025 couldn't void/diagnose ca
I just know too much as a nurse and I'm scared to have rectal biopsy in april
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Cancer shock
I’ve had a heck of a few weeks. I’m 49 years old and had an infection develop in my right toe. Being a diabetic I went to get it checked out. The infection was spreading rapidly and amputation was the only option. While preparing for the surgery, a CT scan was performed. A mass in my kidney was found, an incidental finding…
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Bosniak 3 cyst and a lung nodule
Hello everyone! This is a group I never ever thought I would be posting in, but here I am. I was diagnosed with a Bosniak 3 cyst, highly suspicious of renal cell carcinoma at the end of December. I have seen 1 specialist who really dismissed a lot of my worries but said I did need surgery. I agree. I’m waiting for a second…
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2026 Ocular melanoma (eye cancer)
My husband was diagnosed with choroidal melanoma December 9, 2025. He completed plaque brachytherapy January 2026. His biopsy came back Class 1A, PRAME Negative. He's is in a clinical trial studying sight preservation .
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My Anal Cancer Experience
Hello fellow anal cancer patients! When I was first diagnosed I visited this forum many times. Although I never posted anything, I gained much knowledge and felt a great deal of support. Now I want to relate my experience with the hope that someone else who is facing the same thing will benefit as I did. (As a point of…
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NRI compensation places I called
I called RECA they told me I am not eligible due to the state Maine where I had surgery at 8 yr old I reside in FL but that also was not RECA eligible! Does it sound ridiculous to all you NRI survivors it does to me as it should not matter what state you had this or state you live it about JUSTICE!! I contacted National…
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Radiated on purpose as an infant in the 1950's, cancer developed years later
I was born in the 1950's and treated with radiation as a newborn. I weighed 9lbs. 6oz. and my mom was told I was too big and had an enlarged thymus and radiation was necessary to prevent me from growing to gigantic proportions. Years later it came out that many babies were treated with radiation. The doctors I've found who…
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Newly diagnosed and looking for support!
Hello everyone, I have been lurking for a few days and have finally decided to post. My name is Kirstin.. I am 47, diagnosed with stage 3b (T3N1M0) CRC on 1/19/23. The week prior, I had been experiencing sudden bloody diarrhea and unusual colicky pain (which was minimized by my PCP and GI for over a week until I insisted…
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I’m a bladder cancer survivor, i am sharing my journey to help others
Hello everyone, I wanted to share my journey as a bladder cancer survivor in the hope that it might encourage or help someone who is going through a similar phase. My journey began when I noticed symptoms that I couldn’t ignore anymore. Like many people, I didn’t initially think it could be cancer, but after proper tests…
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"Invisible" tumor causing pleural effusion
Hi everyone, I am new to this forum. I am the caregiver to my dear 64 year old mom who has stage IV colorectal cancer. In July 2016 she suffered pleural effusion. Adenocarcinoma cells were found in the fluid but there was no visible tumor in her lungs even under PET scan. She then underwent pleurodesis and then 6 rounds of…
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Melanoma
I am a 33 year survivor of melanoma. I was 23 years old. From the beginning, I refused to be defeated by cancer. I have done research, been treated by homeopathic remedies, herbs, and diet. I believe I have survived because I rebuked cancer from my mind and body. I attribute my healing to God, healing scriptures prayed…
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CSN Feedback
Ive been around the organization a bit. I am from a healing community so its a neat fit. I think with respect to brain and lung cancer CSN is doing a disservice. Performs more like a social club than actually getting things done. At best I'd say upkeep is around 2023 and that is like with anticpated donations on par or at…
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Need help with multiple basal cell carcinomas
Hello, A few years ago I had two BCC's removed using the MOHS procedure. But since April 2016 I have had more than 30 spots that my dermatologist has burned off and five that have been biopsied and came back positive for BCC. These five have been treated with the MOHS procedure. Friday I received the results of my sixth…
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Buccal mucosal squamous cell carcinoma
Hello there! I am a 51 year old woman who was recently diagnosed with squamous cell carcinoma right buccal mucosa. Started with what I thought was a cheek bite in Decemeber. It would not heal properly, and in January at my normal dentist appointment he was concerned and sent me on for a biopsy. Got the call Feb 6th that…
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Survivorship After Resection: Learning What Works?
Hello everyone 🤍 I’m really grateful to be here. I’m a 51-year-old mom of two (one in middle school, one in high school), and a colorectal cancer survivor. I was diagnosed with stage IIIA rectal cancer in late 2020. After four rounds of FOLFOX and 30 rounds of radiation, I was declared NED and chose a watch-and-wait…
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Anal Cancer - no one to talk to - does anyone survive this disease and come out with reasonable norm
I am a 43 year old female. I watched the Farrah Fawcett documentary regarding her experience with anal cancer and had never heard of it prior to that. I was shocked when only 3 weeks later I was diagnosed with the same thing - especially because I am the picture of health, other than this disease. I was diagnosed with…
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pain in hips after radiation
five year cancer surviver!!!! But i believe radiation in my hip area has caused me to have pain in my hips ,i cant hardly put on my socks or sit indian style i get charlie horses in that area when in my exersize class.doctors say they dont think it was radiation that caused that but i disagree has anyone else had this…