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Introducing myself, a spouse caregiver
My husband has HNC that originated in his tongue. He had half his tongue and a lot of lymph nodes removed. 7 weeks of radiation with cisplatin adjunct therapy. 3 month PET was ~clear but areas to watch under his tongue. 6 month PET, plus punch biopsy (that I pushed for) revealed radiation didn't get it all. He has a mass…
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NEW PSA SCORE; WENT FROM OVER 400+ DOWN TO 0.88 IN LESS THAN 1 YEAR!
Greetings; It's been a while since I've vistited this site. I originally was diagnosed with metastatic prostate cancer approximately 1 year ago. My original PSA score went up over 400 points. I immediately started cancer treatment at the VA in Southern Calif and also was treated by a Natural Holsitic Practitoner from West…
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Bronchoscope result
8mm spiculated nodule identified on CT Feb 2025. RLL. Also 4mm fissural nodule LUL. Bronchoscope at Mayo Feb 2025 on 8 mm nodule performed. CT spin technology confirmed needle in left inferior edge of lesion. All path results from procedure showed no evidence of malignancy nor lymphadenopathy. no other source of nodule…
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Hello all, would you please help me with your pros and cons of IV versus Venous Port
Hello all, first of all, I want to thank those of you who have helped me so far on this frightening experience of endometrial cancer. It is very very comforting and extremely helpful hearing other's stories regarding their experiences. You all have showed great courage faced with this disease. I begin my 6x Chemo sessions…
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Depression and anxiety
anyone experiencing depression and anxiety after double mastectomy, and after chemotherapy is over. I should be happy but I am more depressed and anxious now than I was at the earlier treatments. Anyone feeling like me??
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Brenner Tumor
Can anyone give me some information on a malignant Brenner Tumor? I would like to find someone who has been diagnosed with this type of tumor.
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2nd Lupron shot
I’m 6 months out from last radiation treatment and in 6th month of first lupron shot Still Getting 6-12 hot flashes daily and a few chills a week. Lost at least 10% of my muscle mass and my joints and tendons are always sore I see my urologist in 2 days. Have had 3 blood draws since April. All PSA’s less than detectable…
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Completed 6/12 rounds of FU5 chemo (and surgery) - now DOC says I need to add immunology therapy?
Hello all and thanks for taking the time. I was diagnosed with 3c colon cancer in JAN 2025. Went through initial four rounds of chemo, followed by surgery to remove a 10 cm tumor (shrunk to 6 cm after 4 treatments, but then increased to nearly original size before surgery. Pretty feisty) . cancerous. It was a 10 hour…
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Incredible pain 8 weeks after brachytherapy
Hello - I am a 79 year old male who got diagnosed with prostate cancer in August of 2018. My scores were Gleason 6, Grade group 1. PSA was 6.78. In December 2024 MRI showed a slight increase in lesion on one side. Subsequent biopsy showed Gleason 7 (3+4) Group 2 in two cores and all others remained Gleason 6 Group 1. PSA…
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Enzalutamide, has anyone been on this?
My husband has now been told that he should take Enzlutamide tables. Lots of side effects with it. He has to sign to say that he has given his permission to use this. Has anyone on this discussion board been on this drugs?
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Immunotherapy for Squamous Cell Carcinoma, base of tongue
Brief recap: 2007, SCC left tonsil/lymph gland, minor surgery, 35 rads, 7 Cisplatin Chemo, still all clear last PET 3/2025. 2022, SCC right tonsil, TORS for tumor, RND of the neck. No chemo, 30 rads. PET 2025 shows reoccurrence near base of tongue. Surgery and radiation not an option. Waiting on appt to discuss…
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Wills tumor 38yr old surviving
My name is Christy Light I am 43 years as a child at three months old developed a Wilm tumor. It was on my left kidney. Well I went to UK University of Kentucky for all of my care and in 1982 they removed my left kidney and said the size of the tumor was about equivalent to the size of a grapefruit, so that’s pretty big on…
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Fighting Back: How To Tune Up Our Attitude And Outlook
I am a Stage 4 prostate cancer survivor, Gleason Score 9, with the BRCA 1 Gene. I've had surgery, chemo, and radiation. Also…3 PSMA PET scans. What helps me plow through this battle is a focused and determined outlook. If you would like a few tips on how to stay mentally strong as you confront these challenges, please send…
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NavDX positive test
Hello, I have HPV related head and neck cancer. I've had three surgeries....a biopsy, radical tonsillectomy and a full neck dissection. I'm currently undergoing radiation treatments. I was told after removing the tumor from my tonsil that the margins were good and the cancer was removed. I recently had a NavDX test done…
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PSA Results
Well, just got my PSA results. .05ng/ml. I am 7.5 years post RALP. Generally speaking, I guess that means I am disease free and still in remission. Early birthday present as far as I am concerned. Smile, I am.
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National Institutes of Health Trial participant HPV16 Tonsil cancer
Without a lot of medical technical details I am a 71 yr old male. Diagnosed with HPV tonsil cancer in May 2025 and received a recommendation to join a trial at the NIH in Maryland designed to change the common treatment protocol - Three rounds of Chemo first 7 weeks apart (June and July 2025) to reduce the tumor of the…
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Late stage 3 colon cancer
HI, Very new to this. In March of this year I was diagnosed with late stage 3 colon cancer that has metastised in the liver with three tumors at tge very top periphery of the liver. I have had 8 chemo treatments so far with my 9th tomorrow. They have been using oxyplatin, folfox4 and cetruximab. Oncologist says the tumours…
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CEA level
Has anyone had experience with CEA levels rising exponentially but CT Scans showed no evidence of disease. My oncologist has ordered a PET Scan. What happens if the PET Scan is negative? What are next steps should one take?
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No orgasm after radical prostatectomy Davinci Robotic sugery
Hello, I had the radical prostatectomy surgery in August of 2024 so it's been a year since the surgery. I experienced a handful of orgasms which contained regular spasms with the orgasm in the first 6 months that had 40% feeling compared to before surgery. So I was hopeful. Now a year later I don't have only have only…
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anal cancer
I just found out that I have cancer in my rectum. Last week, coloscopy; next week, CAT scan & surgeon meeting. I don't have family; my husband died in 2013; friends don't know much about cancer & neither do I. I'm afraid and anxious, trying not to get depressed. I'm looking for conversation to help me thru this process.
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Side effects from anastrozole
I started anastrozole about seven weeks ago. I am having leg pain, headaches, and hot flashes. Looking for suggestions on how to deal with these effects.
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y90 is a complete load of crap
Yes that's true, the treatment stinks and it made me even worse. The tumor they went after increased in size and I even have some new tumors. I'm done with the fake promises of wonder drugs. The name of the game is money and they are raking it in.
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Will HBO do the trick?
Hi to all, I have received a message from Hunter inquiring how I am doing. And, yes I am in default with a late update from my last entry in this forum. Well, everything seems to be under control. Since my last post (below) in this forum that I had a series of "encounters" with health issues, particularly due to bladder's…
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Seeking Help For My Sister
My sister was just diagnosed with Stage IV Metastatic Ovarian Cancer. They said they can add maybe a year longer to her life with immunotherapy. She had no symptoms and was seemingly completely healthy up until some abdominal discomfort 4 days ago. Is there anything else we can do to fight this and extend her life? Are…
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Update
Well. I reported all clear in June but things change in the blink of an eye. On a completely unrelated scan, an enlarged lymph node was discovered. Not the results we were hoping for from my biopsy: Kidney cancer cells (diagnosis and surgery 9 years ago) have resurfaced. I had a CT scan of pelvis/abdomen tomorrow and a…
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Breast change from radiation one year after treatment
Hi. I have red dots on my breast one year after radiation. I had a bad reaction to the radiation when I had it called radiation burn. Now, I have these things. They kinda stick out, and they itch. I had a mammogram to make sure they weren't cancerous and they aren't. Which is good. Anyway, I was itching at a particular…
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Chemotherapy Ineffective 97% of The Time
I'm not a doctor and I'm not giving medical advice. I found this article interesting: http://www.collective-evolution.com/2013/04/11/study-shows-chemotherapy-does-not-work-97-of-the-time/ "A study published in August 2003 revealed that of adult cancer in the USA and Australia, the use of chemotherapy, when looking at…
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Apricot seeds
Have any of you ever taken apricot seeds? I am curious to hear your comments. I know of one young man at our church who had brain cancer stage III seven years or so ago and he said the seeds attributed to his health now. Then another lady I know just was told her dad was done with treatments so she is going to start him on…
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I wish I could call him or see him
My brother died a few weeks ago from brain cancer. He was taking care of our elderly mother. I had to go get her soon after his death and put her in assisted living. I've been talking to lawyers about her situation and how to afford assisted living. It's insane how much it costs or even how much the lawyers want to even…
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Good and bad days
Hello everyone, my mother has stage 4 breast cancer that has spread to her bones and liver. She has some good days but also bad days, i wanted to ask if its normal that she feels good one day and the other day she's super tired and in pain? She is on enhertu and her last dose was on September 1 its more than 10 days , the…