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Radiated on purpose as an infant in the 1950's, cancer developed years later
I was born in the 1950's and treated with radiation as a newborn. I weighed 9lbs. 6oz. and my mom was told I was too big and had an enlarged thymus and radiation was necessary to prevent me from growing to gigantic proportions. Years later it came out that many babies were treated with radiation. The doctors I've found who…
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Post RALP PSA
So, on a whim, I got a PSA test ahead of yearly scheduled due in Feb. Normally at labcorp, my results were < 0.1. I did this one out of pocket at Quest and got 0.09. So, its still < 0.1 and I'm not sure if Quest normally reports value or < #? Guess my question would be how long to wait for a retest? I'm thinking a month…
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Tips for managing side of effects Oxycaliplatin infusion
Hi, I stage 3 colon cancer and the tumor was removed by surgery. I am now undergoing CAPEOX treatmetnt. I am posting this question in hope that you might share insight on managing side effects. I have read all the patient education information about the cold sensity after oxaliplatin infusion, but I believe those of you…
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17 Years Ago
Hello everyone. It's been awhile since I've been on, but I hope that you all had a very Happy Thanksgiving. My back story for those of you newer members that don't know me. I went in for my first colonoscopy the day before Thanksgiving in 2008 because of finding blood in my stool. My doctor thought it was hemorrhoids but…
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Choices with AML
I was diagnosed in 12/23 with AML I am 102 days out from my stem cell transplant at UVA. I am about to go on maintenance chemo for 1 to 2 years to help avoid a relapse. Wondering if there is anyone that has been down this road and would love to hear how they are doing with it. My schedule will be every 8 weeks 5 days of…
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just diagnosed
Hello: Just discovered this website and I wanted to join. I was just recently diagnosed with anal cancer and now am going to have more imaging and hopefully in about 2 weeks I will start with my treatments which will include chemotherapy and radiation therapy. Looking for others who have experience with this and have…
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SBRT with ADT or no ADT
Hello, I have been diagnosed with localized prostate cancer this past summer . PSA 7.2 Gleason 3+4 .decipher 0.49 My Father died of Prostate cancer 2007 at 72 . I am 66 . I have decided on SBRT rather than Radical Prostatectomy . The oncologist suggested ADT ( Androgen Deprevity Treatmant ) or I can decline at this time .…
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anal cancer
I just found out that I have cancer in my rectum. Last week, coloscopy; next week, CAT scan & surgeon meeting. I don't have family; my husband died in 2013; friends don't know much about cancer & neither do I. I'm afraid and anxious, trying not to get depressed. I'm looking for conversation to help me thru this process.
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AML and IDH1 and Tibsovo
Hello, My wife was diagnosed with AML possibly caused by a mutation in the IDH1 gene (it may not be the only one, EZH2 as well?). Prescribed Tibsovo which works great for now. I have questions to members that may be using this drug: How long have you been using it with or w\o side effects? Any advise on reducing the dose…
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Perineural Spread?
Hi all, I am wondering if anyone has had experience with perineural spread? My fiance had two good scans January and April of this year following surgery, radiation, and chemo for SCC base of tongue. Post-surgery and in the radiation planning process there still appeared to be spread along V3 nerve. January MRI and PET/CT…
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Anyone had Artificial Sphincter/Penile Implant at same time?
Over a year later still struggling with incontinence and ED. Saw my Urologist a couple weeks ago for an unrelated issue but brought it up during the visit and he said to give it til February and we’d talk then about one or both procedures. I’ve read it’s beneficial to do both at once since it’s one surgery and one…
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liver canser metastasized from colorectal canser
My sister has stage 4 colon cancer that has metastasized to her liver and has been undergoing chemotherapy for about 8 sessions. After 3 sessions, the masses in her liver shrank, but later, according to the CT scan results, the volume of the masses in her liver has not decreased any more, and the chemotherapy has caused…
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Testosterone
Ladies - I posted asking about HRT after this cancer in uterus is gone - I read it is safe because everything is removed - but I’ve been reading it’s not true - what about testosterone ?
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Awake Trach Procedure - Quite An Experience - Experiencing A New Phase Of H&N
I am writing to give you an update on my health situation. I have been having difficulty breathing on and off now for several months or more. I was usually better as the day went on, and in the evening till I went to bed, I was breathing fine. But in the morning, when I woke up, breathing was difficult. Finally on Monday…
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Will HBO do the trick?
Hi to all, I have received a message from Hunter inquiring how I am doing. And, yes I am in default with a late update from my last entry in this forum. Well, everything seems to be under control. Since my last post (below) in this forum that I had a series of "encounters" with health issues, particularly due to bladder's…
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Total Gastrectomy - Excess Bile Pain Issues and solutions
I would like to share my experience and see if anyone has advice regarding, post stomach cancer Total Gastrectomy w/ Roux-In-Y reconnection, excess bile acid/salts release into the duodenum (gut). I have been living with the somewhat random triggering of excess bile and the acid burning pain, now for almost 12 years ago.…
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AMS 800™ Artificial Urinary Sphincter
has anybody had this done. I’ve heard good things about it. It seems pretty simple but then when I dig deeper, you know it takes six weeks to heal a lot of swelling and needs to be replaced every 7 to 10 need some time and adjustment to get used to but I like to hear it from the horses mouth I mean, I go through a pad or…
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Dental -update
Oncologist gave us a dental surgeon's name to get teeth extrated since they are crumbling. Called insurtance company and said the cover 100 percent and to file under medical. Insurance person at dental surgeon's office said they do not file medical, only dental. I called a regular dentist listed on the insurance network.…
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Abdominal CT Scan without Oral Contrast
Good morning . After being in remission since 2019 , 2 yrs ago some mesentery nodes showed up on my CT scan. Every CT scan I have had since first being diagnosed in 2016 (NH Follicular stage 3B) I have had oral contrast for abdomen and IV contrast for chest. Both at the same time. We have been watching these nodes for…
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CEA level
Has anyone had experience with CEA levels rising exponentially but CT Scans showed no evidence of disease. My oncologist has ordered a PET Scan. What happens if the PET Scan is negative? What are next steps should one take?
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Our friend, NewHere, has passed away.
Anyone who has followed NewHere, these many years, will know that his fight was long and hard, but he gave it his all and then some. What a blessing it was to be a part of his world, albeit online. He was a strength and motivation for me, as I continue to survive. I survive to honour NewHere, and all who have gone the way…
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Stage 3 B/C Colon Cancer
Has anyone here been diagnosed with Stage 3 colon cancer (T4aN1M0 or T4aN2M0) and had a positive outcome? I’d love to hear some success stories or words of hope.
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Side effects of Mitomycin
On 1/8/24, I start treatment for Stage 2 Anal Cancer, & I will have 1 dose of Mitomycin along with 5FU for 96 hrs. At beginning of treatment & 96 hrs. At the end of treatment. Also, 30 rounds of Radiation. I have RA & concerned about the potential side effects of this drug. I appreciate everything that I’ve learned on this…
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Surgery scheduled at MD Anderson… cancer suspected
5 years ago my local GYN found a 4cmx4cm tumor on ovary. I’ve already had Non Hodgkins and Breast cancer so she did CA 125 and ultrasounds every 6 months. Grew to 7.1cmx6.8cm. CA 125 raised but still normal. She refused to do surgery to remove. Went to MD Anderson and had tests The radiologist and the surgeon agrees,…
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Feeling overwhelmed, can't stop crying.
hello, I was recently hospitalized and had to push my treatment back. Since this happened I cannot stop crying and feeling like a failure. I wanted my treatment to go by as quickly as possible and now I don't know when it will start again. My doctor also told me I should take off work until treatment is finished and now I…
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Pneumonectomy remorse
InFebruary of this year, a large (approximately 6.5 cm) tumor was discovered in my left upper chest. A biopsy performed by Hospital A showed it to be Squamous cell cancer (NSCLC). The surgeon at Hospital A described it as operable, a difficult operation but one he could do. To make surgery easier, it was recommended I…
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pain in hips after radiation
five year cancer surviver!!!! But i believe radiation in my hip area has caused me to have pain in my hips ,i cant hardly put on my socks or sit indian style i get charlie horses in that area when in my exersize class.doctors say they dont think it was radiation that caused that but i disagree has anyone else had this…
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Complex kidney cyst in a child?
Hi all, I hope it is ok to post here, but I found this site when searching for info about complex renal cysts. My child has an approximately 1cm complex cyst on his kidney with one or two "areas of septation." It is thin septation but report doesn't say how thin (ie paper thin). The urologist said they don't use Bosniak…
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Boyfriend of 3 years diagnosed last week
my boyfriend was diagnosed last week with esophageal cancer. It’s been a wild ride for all 7 days- Diagnosis, feeding tube, port. This morning he got angry at me for doing too much and that I had my feelings hurt when he didn’t want help. He packed his stuff - driving even though he shouldn’t this coming week. I am…
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Caregiver for husband who is a totally different person now.
My husband has Myelodysplastic syndrome. He has been given 1-3 years. He talks to me so mean now. He never smiles or laughs. He sits in his recliner with the heated blanket and sleeps or stares at the blankly at the tv. I have tried to hold it together and ignore the mean and hateful thinks he says to me but it is really…