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newly diagnosed lung cancer
please. i need someone to talk to. i just found out that i have lung cancer. im scheduled for a pet scan on 11/7/24. to determine what phase. am i dying?
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Dizziness after bone marrow transplant multiple myeloma
I had my bone marrow transplant 2 weeks ago and am home starting the long recovery now. My blood numbers are slowly going up which is great but the biggest issue now aside from the fatigue and the terrible metallic sour taste in my mouth due to the intense chemo is dizziness. Sometimes it is just background and other times…
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Treatment Options
New member: 73, living in Texas, diagnosed Thanksgiving week 2024 after significant PSA increases (2>4, 4>6) in the past two years. Biopsy showed two lesions in the prostate, Gleason 7 (3+4 and 4+3). PET scan followed, revealing three spots in the prostate and activity in right and left iliac lymph nodes. Diagnosis…
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Pads and chaffing
Three months post op. About a month ago I switched from the full Depends briefs to the Depends Pads. I am using 2-3 pads a day which aren’t completely saturated when I change them. However, in the last couple days I’ve noticed the pads seem to be chaffing both sides of my straddle/groin. Anyone else had this problem and…
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Advice
I'm a 65 year old recently diagnosed. My PSA was 5.34 in April and my urologist recommended an MRI. MRI in June showed showed prostate volume 38cc. T2 hypointense lesion involving the the left posteromedial mid gland peripheral zone measures 0.3cm and demonstrates focal restricted diffusion and low ADC with early focal…
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Latest on IRE Nanoknife Focal experience
Thought I'd start a new post and update my Pca journey. Condensed history: First diagnosed November 2023 with 4+3=7 tumor within gland. Confirmed by 2 biopsies, bone scan, and PSMA PET scan. No metastasis. After local urologist suggested surgery or radiation I got a second opinion from Fox Chase Cancer Center in…
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For men in their 50s or 60s who chose brachytherapy or external beam
I'm 56 but one of my lesions is near a nerve and I don't think surgery is going to both preserve sexual function and get all the cancer, so I am leaning towards radiation. Yes yes, I know I might die sooner. For those in their 50s and 60s who chose radiation, did you choose brachytherapy or external beam, and why? How…
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85 Year old with metastatic prostate cancer... chemo or hospice...
Hey i had been on here awhile back about our 85 year old dad who has prostate cancer that metasticized and was also in the bone... Since then it has spread to the liver and lungs... He still drives, plays the guitar, cooks, cleans and is very full of life... The doctor has now told us that the only choice left is Chemo...…
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Pain and swelling after cryoablation on left kidney
I had a cryoablation on my left kidney on March 24, 2023. A day or two after the procedure I developed a swollen bulge on my left side which was very painful to touch. I also had numbness in that area. The doctor gave me some pain medicine and ordered a CT scan. CT didn't show any bleeding or anything that would be causing…
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Mohs surgery for squamous cell in ear - extremely dry skin afterwards.
I’ve had several (4) squamous cell skin cancers removed over the past +/-20 years. The most recent was in my left ear so it required Mohs and subsequent small skin graft. Surgery went well, margins clear on the first pass. Stitches for donor site and bolster were removed in one week. Roughly 3 weeks of twice daily cleaning…
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BMT unsuccessful
I was diagnosed with AML in May 2024 just before my 26th birthday. After 3 rounds of chemo and a bone marrow transplant in October, we were notified 2 days before Christmas that I had relapsed. I currently am being treated for gvhd as well and if they are able to get that under control I may need to go to MD Anderson in…
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What if radiotherapy fails
Just about everything I've been reading indicates modern radiation treatments properly administered are statistically superior to Radical Prostatectomys concerning quality of life issues. Sounds like they're equally effective. I've now been advised by two different radiologists that 5 weeks IMRT is a good first course of…
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BAM Bile Acid Malabsorption from Revlimid (lenalidomide)
Aloha.... I was in the Accent clinical trial for multiple myeloma, which was a four cocktail (DKRD) or Daratumamab (Darzalex); Carfilzomib (Krypolis), Lenalidomide (Revlimid), and Dexamethasone (steroid). This was 24 month clinical trial and about 8 months in I started having #2 (bowel movement) issues. I developed Bile…
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Newly Diagnosed Stage 3C1 endometrial cancer grade 1... what to expect?
Hi There, Well just a short 3 1/2 yrs ago I was my husband's caregiver for his colon cancer which he did pass away early 1021. Now I find myself in the same situation dealing with cancer but now I am living alone. One would think cancer would jump over me since I already had to deal with it so long prior . Started spotting…
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Ivermectin
Hi I'm in Northern Ireland and trying to find dosage for Ivermectin and Fenbendazole. Can anyone please point me in the right direction?
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Just Diagnosed Advanced Nodular lymphocyte predominant Hodgkin's lymphoma (NLPHL)
Hello, I am really happy I found this site. After being sick for 3 1/2 years, I had a myph biopsy and was diagnosed with SUSPICIOUS for Nodular lymphocyte predominant Hodgkin's lymphoma (NLPHL). The doctor says he contacted the pathologist and Stanford Medical to confirm. He says I most likely have had it a long time…
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NEED GUIDANCE AND SUPPORT
I am reaching out to you because I am a recent patient of P16. My radiologist stated my condition is worse than most. He expressed the average level of lymph nodes with P16 cancer infected if 5 to 8. I had 22 lymph nodes with cancer. This means my radiation treatment was 3x (according to them) more inserted = more precise…
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NavDX positive test
Hello, I have HPV related head and neck cancer. I've had three surgeries....a biopsy, radical tonsillectomy and a full neck dissection. I'm currently undergoing radiation treatments. I was told after removing the tumor from my tonsil that the margins were good and the cancer was removed. I recently had a NavDX test done…
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A new battle
We all know what going thru H&N tx is like- a 2-month battle that drags on as long afterwards. A thought occurred to me with where I'm at now, almost 13-1/2 years since my last Rad session: first there was the battle of going thru treatment, and now there's the battle of dealing with the long term side-effects of C…
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Hair loss ten years after chemo
Hi - I am posting this a bit greedy and needy as in I've just found this place and now I'd really like to gather some info I had breast cancer when I was 36. It has been a horrible 10 years but you get there. I don't think anyone really gets that. But anyhow, I can kind of cope with all the depression, anxiety, all that…
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Basal Cell Nasal Reconstructive
I just got the word in 2 weeks i see my Dr to make a plane for my basal cell removal across my nose and then right into reconstructive surgery!!! Iv never been so happy and scared to death at the same time. Do you guys think the flap surgery is the way to go, or get the skin graft surgery. I am so nervous for the process,…
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Mohs on nose horrific
I had a very small spot on the tip of my nose that kept bleeding, so I had it tested and it was squamous. (This is my third, the others were on my wrist and hand.) I just had mohs yesterday and I left in shock. What I thought would be a small removal turned into 12 stitches from the tip of my nose up to the bridge in a…
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what kind of doctor is this
My father, 82, had a gastrectomy last year and was too weak for preventive chemo. Now he is stronger, has put on weight and has been feeling better since May. His recent blood test was OK, but the doctor says that anyway, "as we knew" (!), the cancer had spread and suspects that something is wrong in the patient's urine…
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FOLFOX -- Symptoms seem to get worse
Hello! I hope everyone is doing wonderful today. My Dad is having a really difficult time with his chemo treatments. As time goes on, it seems that each treatment effects him worse than the one before. Luckily, he only has four more to go. What has your experience been? Any encouragement is appreciated. Hugs and Prayers to…
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ovarian 3c 17 yrs. NED
This is my first post. I just want anyone who needs it to know that I was first diagnosed 3c in June 2007, had 13 hours surgery followed by 5 rounds interperitoneal (couldn't take the sixth) & 6 rounds IV, carbo, cis, & taxol. I was 54. Recurred in 2008, surgery again, then 6 rounds gemcitabene. Recurred in 2011, surgery…
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Thank you all
Thanks tom all of the men on here who went through some type of treatment and who are always here to share their views and to share their opinions. Recently, my older brother is having an issue unfortunately with his pancreas he’s going in for a biopsy on February 11. I posted, asking dor some advice in the pancreatic…
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MOHS Surgery Shock
I am hoping to hear from anyone having had MOHS surgery and is willing to share your recovery and healing process, including products and/or procedures used. I had MOHS surgery two days ago to remove a cancerous spot in the area between my upper lip and my nose. The spot is about the size of a pencil eraser…but I ended up…
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Has anybody took Zejula Chemo pills for maintenance.
Has any one taken this for maintenance from recurrence of Ovarian Cancer? If so can you tell me about your side effects? I am having back pain, joint pain in my hip and knee, and nausea. Just wondering is this anything to be concerned about...my doctor says that unfortunately that is the side effects and that’s way he gave…
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Ned 7 th year!
An update about our journey. Its been seven years since surgery. Did CT scan and results came clear. Ned since 7 years.Thank you all for positive vibes here.
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Symptoms after radical nephrectomy
Hi All, I'm new here, so still learning the ropes. I am 36 years old and had my left kidney and adrenal gland removed in October. The margins were clear and I understand that I am very fortunate in that regard. I have had follow up appointments with the urologist, and my first follow up CT is in two weeks, but I was not…