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IMRT Low Fiber Diets and Normal Bowel Movements
This coming Tuesday I'm beginning 8 weeks of IMRT radiation treatments. They want me to start eating a low fiber diet to minimize gas in the bowels. Evidently gas can cause the prostate and other organs to move around a bit which could affect the accuracy of the beam radiation. Also they want me to empty my bowels and have…
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Advice needed
First off, I'm shocked to be here. My heart goes out to each and every one of you. I'm here for support to my husband and to gather information. A little history: My husband is 52. He had a physical a month ago that showed a PSA of 4.1. The doctor sent him to a local urologist. The only symptom I've noticed is going to the…
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test result
Received an ultrasound report today. Radiologist wrote "2,1 cm circumscribed low density lesion…" '(he goes on to say) "indeterminate, favored to represent a complex cyst." He suggested an mri with and without contrast. The earliest I can get one is mid March. I am very worried but my gastro doctor doesn't seem overly…
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Ampullary Cancer with ZERRO treatment offered
I had a stint put in to unclog my bile duct. I felt better even in the recovery room. They won’t do a Whipple on me because of my advanced MS. I was told that I would have a high probability of not making it off the operating table. So I have been offered Zero treatment.
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Diagnosed with 3.5 cm ovarian endo, CEA and CA125 normal. Should I get a laparoscopy or watch and wa
I have a 3 month follow up U/S in 3 days since I opted for the watch and wait scenario rather than surgery since the OBGYN I dealt with told me she thinks the chance of cancer is low. I told her my aunt died of OC but that didn't change her mind. I asked a couple of times to get the CA125 test but was told they wouldn't do…
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Nerve pain post chemo
Hi , I’m a 23 year old female . I was diagnosed with Hodgkin’s lymphoma at 21, did 12 chemotherapy’s in 6 months and finished last February. From last February (2024) until October (2024) I was doing well. Suddenly in October I started having nerve pain.. it’s in my hands and feet. It’s a burning painful sensation. Feels…
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Prostate cancer and heart condition
I am currently taking Orgovyx which has lowered my PSA to 0.009. However, I found out I should also be taking an androgen receptor inhibitor (my urologist prescribed Xtandi) along with the Orgovyx, but things have become more complicated as I discovered I also I have a heart condition (my cardiologist told me I had a minor…
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When to consider yourself cancer-free post surgery
Some of you US guys may be familiar with Rick Steves, the travel guru. He has the most popular guidebooks for travel to Europe, as well as TV, radio, podcasts, and tours. He had surgery for prostate cancer last October. Recently, he made an online statement saying he is cancer-free, based on his most recent non-detect for…
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Postmenopausal for 8 years
Hello ladies. I Am 59 years old and started lightly bleeding in late January. I have been having a light colored discharge for months but I wondered if i wasn't leaking pee 🫣. My gyn got me in same day I called. I have been going to the same GYN since I was 25! He did pelvic exam and told me that I had a big polyp coming…
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Very Slight increase in PSA
I had a RALP in 2018. No problems, PSA was low to begin with. I just wanted the cancer gone. PSA tests periodically since all virtually undetectable. First positive reading was in September of 2023, when it was, .04. Noted, but no big deal. September of 2024 .06, then today, February 2025 .09. Question. Do these numbers…
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Stage 2 BC Triple negative Tamoxifen 8 yrs Uterine lining 22 mm
Started with intermittent discharge in Sept, had a negative pap. Went to a Gyn in Jan , had an US and measured 22 mm. My oncologist took me off tamoxifen right away and asked for a CT scan to be done before the D&C is completed. Waiting on the CT Scan results and D&C is scheduled for next Tuesday.. Wondering what my…
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Gleason 8 with PNI
Hi all. I have been diagnosed with Gleason 8 and PNI. I am scheduled for PMSA Petscan and Exactscan in two weeks to see if and where the cancer has spread. The cancer is too big for prostatectomy (unless it can be shrunk) and will get recommended treatment once the tests are done. Anyone had similar diagnosis and any tips…
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38 and diagnosed with stage 4 esophageal cancer
I am a 38 year old male from Minnesota. Non smoker my entire life and pretty much a social drinker until recently. Since essentially Christmas of 2016, all I can say is I have just felt "off". Not really depressed, just unmotivated, undriven, and lethargic. It has happened a few times in the past 2 years that I woke up…
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Granulosa Cell Tumor
Hello is there anyone who has been successful with treatment on this rare cancer?
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CAR-T Therapy - My one year anniversary
My journey (Currently 46 yo - female) No medical history until…. January 2023 - diagnosed PMBL (diffuse large B Cell NHL) March 2023 - June 2023 : EPOCH R / Moffitt Tampa October 2023 - relapse February 2024 - CAR-T Therapy / Moffitt Tampa May 2024 - Remission September 2024 - Clean scan March 2025 - Scan in two weeks I…
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Concerning follow up PSA test. I'm worried this could be bad How concerning is this.
40 year old male. Last year and a little before I had some macro (a hand full of times over about a year) and micro hematuria. I haven't had any visible blood since. About 6 months ago I went and had an ultra sound, blood work, DRE, and a cystoscopy. My PSA was 3.2ng/ml and my prostate was slightly enlarged but otherwise…
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Ovarian cancer worries with negative tests
Hello, I'm 39 years old with really no medical history at all to speak about. I have never had gynecologic problems. I have never experienced any of the problems below, it's all very new and very abnormal for me. In the first week of December I started having what I would call bladder aching, I thought I was getting a…
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Turned down for cytoreductive/HIPEC surgery
My husband was diagnosed in early October 2024 with peritoneal and colon cancer (Stage 4). Tumor was obstructing colon (partial) and he started chemo in late October. Had 7 rounds (48 hours each time) and never got sick from chemo and it made him feel 90percent better after a few treatments. Its almost like I have to…
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Ampullary Cancer how should I feel?
I was diagnosed in Nov of 2024. I had no appetite at all losing 15lbs. In early January they opened my bile duct with a stent. Right now I feel great as if I didn’t have cancer I feel that good. Is this normal? Am I just waiting for the shoe to drop? Do I feel this good because my bile duct was opened up? I’m having a CT…
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Stories of Beating Stage 4 Cancer???
Hello all. I’m wondering if any of you would be able to share any documented accounts of someone beating stage 4 cancer (either no evidence of disease or long term remission) Preferably colon cancer but any cancer story would be appreciated. I would like to know what that person did to beat it and maybe I can do the same…
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Vulvar Cancer 2024
my mother who I care for underwent reconstructive surgery for this type of cancer and would like to know if anyone can relate and we can connect and my mother can connect with someone who has suffered the same change she has please reach out [Edited by CSN Support Team]
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Taking a break from Lupron
just finished a 3 month Lupron shot and now PSA and testerone are virtually 0. This after prostrate removal, radiation and ADT over the past couple of years. When PSA started to rise Lupron was prescribed. It seems to have worked for now. My oncologist recommend continuing Lupron along with something additional. Is it…
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Undifferentiated Pleomorphic Sarcoma
Hello All! My name is Alyssa. I am 30 years old. I am new here, and honestly wish I had known about this website earlier. It would have been a great extra support system. I am currently struggling emotionally and physically as a recent cancer survivor of Stage III Undifferentiated Pleomorphic Sarcoma. The large tumor that…
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Work - Blacklisted
I'm was diagnosed in June 2024. Completed first round of Chemo. I'm a Private Equity Lawyer (20 yrs) - M&A and Securities. Now, I can't find a position at any law firm. I don't offer why I took such a long hiatus from practicing, but also can't lie when pressed. My career has been a huge part of my life and now I am…
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Asking for info / Venting a bit before tomorrow's appointment
I first posted back in December when I was getting scheduled for a biopsy. Here is my story so far. I should probably just wait for tomorrow's appt with my urologist, but want to go into that appt with some knowledge of what to expect. My wife is the worrier. I am supposed to be the rock. Need to know a few things so I can…
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T-Cell CNS lymphoma diagnosis
Male, age 58. Diagnosis is T-Cell CNS LYMPHOMA. Wondering if there is anyone else with the same diagnosis.
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Choices with AML
I was diagnosed in 12/23 with AML I am 102 days out from my stem cell transplant at UVA. I am about to go on maintenance chemo for 1 to 2 years to help avoid a relapse. Wondering if there is anyone that has been down this road and would love to hear how they are doing with it. My schedule will be every 8 weeks 5 days of…
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Choroidal Melanoma
Hello everyone, I was writing to find anyone else who may have this cancer. I was just diagnosed with this cancer after going to my eye doctor. I woke up one morning and noticed an increased amount of floaters in my vision. I blew it off for months and also because I didn't have insurance or money to pay for an eye visit.…
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colon cancer met to sacrum
Hi I had a resection 2.5 years ago after dr. found a 5cm tumor with no lymph node involvement. everything was going ok until 5 months ago when i started having a nagging sacral/coccyx pain. I thought i just pulled a muscle or strained it. my doctor just told me it might be mets?! I am getting an MRI soon. I just can't find…
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robotic partial nephrectomy in my future
ct scan says i have a 3.4 mass on right kidney probably RCC. No biopsy was done. kidney function is good. they found it by accident looking for kidney stone in the ER. That pain was stupid nasty! The dr. says it's a piece of cake to take it out. I'd love to hear from you guys what i can really expect. How long will i be in…