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Thyroid Nodule 4 1/2 years post radiation. It never seems to stop.
I’m back! July 25, 2021 I was diagnosed with cancer at the base of my tongue. 31 radiation treatments took out the cancer. Of course I went thru all the after effects of the radiation, but things have been ok I guess though my main nutrition still come from smoothies. Been having a weird cramping sensation and some…
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PSA results
Well, I had my prostate removed 8 years ago. Today, my PSA is .014 ng/ml. I feel pretty good about that. As far as, this site shutting down in May 2026. I would like to give a cheer to all the folks who have contributed by telling about their journeys. All of you are winners. You conquered a hurdle that many in our arena…
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Cancer Network shutting down?
Hi, Just received an email about this help message board being discontinued? Hope it was a hacked email and not true. Anyone else get the same email? Dave 3+4
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anal cancer
I just found out that I have cancer in my rectum. Last week, coloscopy; next week, CAT scan & surgeon meeting. I don't have family; my husband died in 2013; friends don't know much about cancer & neither do I. I'm afraid and anxious, trying not to get depressed. I'm looking for conversation to help me thru this process.
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Decision time - Treatment Plan for HPV + Squamous Cell Carcinoma.
Hi, I’m a 61 year old man in the UK with a 3 cm tumour in one of my lymph nodes on R/H side of neck. Biopsies confirm HPV+ (P16+) metastasis. Had both tonsils removed 3 weeks ago and other biopsies done during the surgery and all back clear. Surgeon said she could not see or feel anything abnormal. Also had MRI, CT and PET…
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Skiffin16 - Farewell to CSN
Not many of us around from back in the old days (years of 2009 to present). We've definitely lost a few along the way, but some of us are still kickin it, and doing well. Unfortunatley, I received an email that all of this history is going to be lost in a month or so as they're shutting down the forum. That sure is a hard…
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Thank you all for everything
Hi all I am based in Ireland and have been lurking on this site without posting since my tonsil cancer diagnosis back in 2021 aged 48. It was so useful in the dark old days of treatment when eating was such a struggle and my mouth was such a mess (God, you just forget, don't you?), and even since, from time to time as new…
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Any survivors of signent ring cell colorectal cancer
Hi my name is cheri my husband is 26 was diagnosed with signent ring cell colorectal cancer stage 4 in june 2012. He had surgery then to remove a foot of his colon when he was diagnosed along with several lymphnoids, the margins were clear so he started radiation in july along with chemo pills. One eek after starting that…
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Essential thrombocytosis
Hi there. I am looking for anyone else who has this disease/cancer (depending on who you talk to). It is very rare. Any fellow ET'iers out there? It would be nice to compare notes… :]
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Q: Cancers in senior citizens from thymus radiation as babies?
It's well known that those of us who misguidedly had their thymus glands irradiated as babies developed thyroid cancer in early adulthood. Now that I'm 69, I'd like to consider how many of us have developed other cancers in the area of the neck, chest, mouth, etc., as senior citizens. I've seen a few people, in this forum,…
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Recurrence Anxiety
Hello. My name is Jeff and I was diagnosed with Rhabdomyosarcomo at age 9. I underwent a little over a year of chemo and a short stint of radiation therapy. I've been cancer free ever since. I am now a husband and a father to 3 beautiful little kids. When I think about how well my treatment went and how trivial the long…
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What Else Can We Do For The Pain?
My 81 year Father was recently diagnosed with metastasis prostate cancer. It was shocking news and such a blow to us all. He completed a few radiation sessions and continues to take all his medications well. We are awaiting the start of his hormone therapy in a few weeks. Although he has prescription meds for his pain,…
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PTSD?
hello I’m new here today and the reason for me joining was wanting to know how people have dealt with their PTSD when it comes to your scans and bloodwork coming back normal for the last year and a half after stage three colon cancer six months of chemo every time I get a bump or don’t feel right I have my mind just goes…
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Sore throat return after 8 months?
anyone have a “sore when swallowing” throat appear many months after recovery from radiation and oral surgery? It coincided with a cold sore on my lip; 1st the flooor of my mouth was sore (or the sides of my tongue) as it was hard to tell. Then it moved to when swallowing only. Not sure if it’s tongue or throat. I’m two…
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On_A_Journey's journey
PART ONE Hello all, I joined this forum recently, asked some questions and made some comments, but until now I’ve only given a brief description of what brought me here. I will treat this thread as my own personal blog by telling my story and providing any updates as they happen. I am 59 and from Australia. I have a strong…
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2 year update after salvage surgery
I am blessed to say that after having radiation therapy initially even though I had a bad feeling about it and having be used as a guinea pig only to find out that cribiform is radiation resistant which it is, and I will never let anyone tell me otherwise. I was fortunate enough to keep an eye on it have that damn cancer…
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Post vaginal brachytherapy side effects - short and long term
Four weeks ago had a total hysterectomy via robot. The fast recovery was amazing compared to long recoveries from open hysterectomies. Now I need to decide on doing four radiation treatments to the vaginal cuff where they say cancer is most likely to return. I had 2.5 mm invasion into the myometrium, less than 50%. There…
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Check in
Hey REB72 how you coming along with your prostate cancer. We were diagnosed around the same time and was just curious how things are going for you.
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Olfactory neuroblastoma
I was diagnosed with olfactory neuroblastoma and had my tumor removed in November of 2025..since then I have headaches at least 3 times a week..my next post surgical follow up is next week and I plan on discussing the headache issue…I am getting nervous…should I be or am I still recovering and these headaches are just par…
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Osteoporosis
I am a Hodgkins lymphoma survivor having undergone chemotherapy (MOPP) and cobalt radiation 47 years ago. I a DEXA scan every three years to monitor my bone density. The last one I had was three years ago, I don’t recall what my score was, but I was still in the osteopenia stage. My current scan showed a 20% decrease in my…
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Hi All!
It's been a long time since I've visited, and I find myself very nostalgic and missing you ladies who kept me company on this journey. I'd love to hear from my beautiful "old-timers" who are still here on the boards, and hear news about those who aren't. I also want to encourage y'all that miracles really do happen. I…
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Who You Gonna Call
You just get a death sentence. It's never been worse. I've had my challenges, but death - nothing like this before. I never asked anyone questions about death. Now I have tons of them and no one seems to want to talk about how long I've got! So who can you call? I have been able to turn my poems, about my cancer journey,…
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Post surgery supplies and planning events after surgery
I’m a 68 year old newcomer to this group. I am scheduled to have my prostate removed via robot assisted surgery on March 12. What urinary incontinence supplies would the group suggest I have on hand for the early part of my post-surgery recovery period? While I want to be optimistic about incontinence issues after my…
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The Email from CSN
Hi ladies - I am truly remiss in visiting more often here, but when I got the email today that this board was being discontinued soon, it made me panic - where will we go? How will I find you and know you're ok? If this has already been discussed and figured out, will someone include me in the "oldtimers" group? I pray…
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So Much Data and Questions
Felt like a fire hose was opened into my mouth. So much I did not know yet wanted to know. Cancer - other people get that not me. So I had never thought much more about it. Then when they told me I had lung cancer, stage 3, I realized quickly that I knew nothing, nothing at all. And I wanted to know everything, NOW. Later…
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I would like to chat with other Laryngectomy's ....... * not many of us out there *
Most times I feel so alone and have no one to talk to about being a total Laryngectomy .It would be nice to meet someone with same .I had vocalcord cancer and this June 9 will be my 1 yr surgery date .I have alot of anxiety attaches , which keep me homebound .I am single and use to be fairly active ...So if your out there…
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Extrapulmonary small cell carcinoma localized in lymph nodes
Hi, I'm new here and hope to find friends and opportunities for mutual support. I'm a youthful 60 and intend to outlive my mom, who made it to a youthful 98! I was diagnosed in Sept. 2014 with Extrapulmonary small cell carcinoma localized in my left axillary (armpit) lymph nodes. The only study I could find…
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Our friend, NewHere, has passed away.
Anyone who has followed NewHere, these many years, will know that his fight was long and hard, but he gave it his all and then some. What a blessing it was to be a part of his world, albeit online. He was a strength and motivation for me, as I continue to survive. I survive to honour NewHere, and all who have gone the way…
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Best to You All in the Future
I just heard the news and it was kind of sad hearing that this site is closing down, however I hardly ever visited anymore after the format change. I remember the long nights staying up because of the steroids and always finding someone on. This site helped me immensely going through a journey I knew nothing about. Being…
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HER2+ time b/t surgery and chemo
I have HER2+breast cancer and I’m having surgery on April 7 followed by chemo and radiation. 8 years ago had a double mastectomy r/t triple neg cancer. i was told that I need to wait 4-6 weeks after surgery (they have to switch out implants along w lumpectomy) before starting chemo. Does that amount of time sound…