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Newbie! Tiny 1.7 mm triple negative w/amended lymph report needs help choosing right treatment plan
Hi all, My best friend recommended this site as a resource for making a huge decision in the next couple days. You guys helped her through a very rough ovarian cancer treatment. She suggested that you may help me too. This site looks great! I need to decide this weekend which treatment plan to go with as I am scheduled to…
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TNBC Survivors Who Skipped Chemo
Hi! I’m 47, diagnosed with small (5 mm), grade III, node-negative, LVI-negative TNBC. I am choosing not to have chemo and am looking to connect with others who have had similar experiences. I had lumpectomy and will be doing radiation. Would love to hear about your journey, follow-up, and how you navigated life after…
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Having a good day!
Good morning! My last AC infusion knocked me on my ****, but this one I'm doing ok. I made my child breakfast, had some coffee, and even got to my 9am doctor appointment early enough to post here. I think today's going to be a good day. Happy Thursday everyone!
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I’m a bladder cancer survivor, i am sharing my journey to help others
Hello everyone, I wanted to share my journey as a bladder cancer survivor in the hope that it might encourage or help someone who is going through a similar phase. My journey began when I noticed symptoms that I couldn’t ignore anymore. Like many people, I didn’t initially think it could be cancer, but after proper tests…
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How to minimize neuropathy
Please resend this out to every chat group you can I still suffer from neuropathy after my chemo treatments were finished 3 years ago and I jus read the other day to help minimize it you should keep your hands and feet wrapped in cold packs while they are juicing you at the hospital with your chemo meds if I only knew then…
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Stage 3b Colon Cancer with FOLFOX Treatment 12 vs. 6
I have completed 3 FOLFOX treatments with most of the expected side effects. Mouth sores, nose sores and bleeding, rash on neck and arms, diarrhea, and overall tired and weakness. My goal at this time is to make it through 6 treatments and then discuss with doctor about quitting chemotherapy. Has anyone discussed this with…
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anal cancer
I just found out that I have cancer in my rectum. Last week, coloscopy; next week, CAT scan & surgeon meeting. I don't have family; my husband died in 2013; friends don't know much about cancer & neither do I. I'm afraid and anxious, trying not to get depressed. I'm looking for conversation to help me thru this process.
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just diagnosed
Hello: Just discovered this website and I wanted to join. I was just recently diagnosed with anal cancer and now am going to have more imaging and hopefully in about 2 weeks I will start with my treatments which will include chemotherapy and radiation therapy. Looking for others who have experience with this and have…
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Looks like it’s the end of the line. I went into Hospice two months ago.
https://youtu.be/C2owEGUNas4?si=TJy23OUankauJMD_
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Recently diagnosed glioblastoma
Hi I was just recently diagnosed with glioblastoma after having a craniotomy to remove a mass that was life threatening on my occipital lobe and spent 8 days in icu. I have two other masses, one on my frontal lobe and one midbrain. I am getting ready to see the radiation oncologist on wed (dec 16) and as soon as my chemo…
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Side effects of radiation and chemo for treatment of NECK cancer.
Hey all. I am new to this forum, but I have questions. I am 7 weeks post radiation and chemo treatments for HVP small cell squama's carcinoma. I knew most of the side effects going into my treatment plan. They all sucked but I knew. I lost my taste after week 2. Needed a feeding PEG tube after week 5. The horror show had…
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Surgery scheduled at MD Anderson… cancer suspected
5 years ago my local GYN found a 4cmx4cm tumor on ovary. I’ve already had Non Hodgkins and Breast cancer so she did CA 125 and ultrasounds every 6 months. Grew to 7.1cmx6.8cm. CA 125 raised but still normal. She refused to do surgery to remove. Went to MD Anderson and had tests The radiologist and the surgeon agrees,…
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What specialist is in charge?
Hello all, I am a migrant from the Uterine Cancer board. Following a screening colonoscopy I was found to have an invasive moderately differentiated adenocarcinoma in my ascending colon. It is a new primary cancer, not a metastatis of UC. I will be having further diagnostic imaging done soon, and I know that surgery is…
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uterine carcinosarcoma
Hi ladies, I had breast cancer did lumpectomy, chemo and radiation removed 11 lymph nodes. Then it came back 3 yrs later so i did double mastectomy this September. Come November this yr mri of the pelvis showed abdominal mass and when they went i.n to do surgery they found mass spread on my omentum. They came out and got a…
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Survivors where are you
I want to know how long everyone is surviving. I was formally diagnosed at 37, luckily with stage 1a. I had no symptoms and they found my cancer by mistake. I am now in remission for one year and I'm having these thoughts of how long will I live after this? I know there's no guarantee. But I'm curious of how long people…
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bladder cancer and neobladder
I was diagnosed with bladder cancer in february 2007. After chemo on July 5, 2007 my canceros bladder was replaced with a neobladder. The surgery was performed at USC LA by the best doctors Dr. Scinner and Dr. Stain. I am able to urinate normally during daytime. At nite i have to wake up using a time clack two three times.…
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Post op PSA rise
I would like to know if anyone has experience with this. I go to the same provider for lab results to analytical method the same. (quest). My Radical Prostatectomy was in May of 2024. Gleason Score 4+3 = 7. 3 lymph nodes negative and no indication it escaped capsule. Post op PSA was < 0.04 then 0.05 or 0.04 for duration…
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Brachytherapy dilator use
I've just finished my 6 rounds of chemo and am now scheduled for brachytherapy radiation (they had found stage 1A carcinosarcoma (MMMT) and UPSC). I'm now scheduled for 3 brachytherapy sessions. I'm finding that I'm rather anxious particularly about the long term dilator use. I found that research on the effectiveness…
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17 Years Ago
Hello everyone. It's been awhile since I've been on, but I hope that you all had a very Happy Thanksgiving. My back story for those of you newer members that don't know me. I went in for my first colonoscopy the day before Thanksgiving in 2008 because of finding blood in my stool. My doctor thought it was hemorrhoids but…
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New and scared
I was diagnosed with endometrial cancer stage one today. I am being referred to a specialist (my gyno doesn't treat cancer). It feels like standing on the edge of a high, high rooftop and looking down. Any suggestions on managing the anxiety and feelings of being overwhelmed? Thanks for reading
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Tips for managing side of effects Oxycaliplatin infusion
Hi, I stage 3 colon cancer and the tumor was removed by surgery. I am now undergoing CAPEOX treatmetnt. I am posting this question in hope that you might share insight on managing side effects. I have read all the patient education information about the cold sensity after oxaliplatin infusion, but I believe those of you…
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RCC in my remaining kidney
12 years ago I lost my left kidney. There have been a few scares along the way but now I have RCC in my right kidney. Partial nephrectomy scheduled for next week. Tumor is in the middle of my kidney and doc says there is a chance this laparoscopic robotic procure turns to an open one and 25% chance things go sideways and I…
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Will HBO do the trick?
Hi to all, I have received a message from Hunter inquiring how I am doing. And, yes I am in default with a late update from my last entry in this forum. Well, everything seems to be under control. Since my last post (below) in this forum that I had a series of "encounters" with health issues, particularly due to bladder's…
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Reversing treatment resistance in prostate cancer: Study solves longstanding puzzle in tumor biology
My son sent me this article, and I found it to be interesting. So, I'm sharing it. https://medicalxpress.com/news/2025-12-reversing-treatment-resistance-prostate-cancer.html
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Radiated on purpose as an infant in the 1950's, cancer developed years later
I was born in the 1950's and treated with radiation as a newborn. I weighed 9lbs. 6oz. and my mom was told I was too big and had an enlarged thymus and radiation was necessary to prevent me from growing to gigantic proportions. Years later it came out that many babies were treated with radiation. The doctors I've found who…
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Post RALP PSA
So, on a whim, I got a PSA test ahead of yearly scheduled due in Feb. Normally at labcorp, my results were < 0.1. I did this one out of pocket at Quest and got 0.09. So, its still < 0.1 and I'm not sure if Quest normally reports value or < #? Guess my question would be how long to wait for a retest? I'm thinking a month…
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Choices with AML
I was diagnosed in 12/23 with AML I am 102 days out from my stem cell transplant at UVA. I am about to go on maintenance chemo for 1 to 2 years to help avoid a relapse. Wondering if there is anyone that has been down this road and would love to hear how they are doing with it. My schedule will be every 8 weeks 5 days of…
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SBRT with ADT or no ADT
Hello, I have been diagnosed with localized prostate cancer this past summer . PSA 7.2 Gleason 3+4 .decipher 0.49 My Father died of Prostate cancer 2007 at 72 . I am 66 . I have decided on SBRT rather than Radical Prostatectomy . The oncologist suggested ADT ( Androgen Deprevity Treatmant ) or I can decline at this time .…
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AML and IDH1 and Tibsovo
Hello, My wife was diagnosed with AML possibly caused by a mutation in the IDH1 gene (it may not be the only one, EZH2 as well?). Prescribed Tibsovo which works great for now. I have questions to members that may be using this drug: How long have you been using it with or w\o side effects? Any advise on reducing the dose…
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Perineural Spread?
Hi all, I am wondering if anyone has had experience with perineural spread? My fiance had two good scans January and April of this year following surgery, radiation, and chemo for SCC base of tongue. Post-surgery and in the radiation planning process there still appeared to be spread along V3 nerve. January MRI and PET/CT…