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Anorectal Squamous Cell Cancer
Hello, I am a new here, 64 yr old female diagnosed with Anorectal Squamous Cell Cancer back in February of 2026. By report, my tumor is localized to anorectal region with inguinal/rectal nodes that are being treated with radiation. No signs of metastatic disease. I am one week from completing my chemo/radiation treatment.…
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UPDATE to "Surgery & Radiation Now" versus "Mammograms every 6 Months"
A month ago I was trying to decide whether to proceed with the recommended lumpectomy and radiation treatment or let it ride and see what the status was after six months. Thank you for your responses and suggestions. I did do the surgery. In the end, I thought that if I waited there was a good possibility that the cancer…
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Sacral Stimulation for Fecal Incontinence
High everyone, I received treatment for squamous cell anal cancer 18 years ago, so knock wood I have been cancer free since. Recently I have had issues with fecal incontinence; somehow, even though I had frequent irritation and occasional "leaks," it wasnt until about 2 years ago that I started experiencing "accidents." I…
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For those recently diagnosed....
There is hope. I was diagnosed last February, had surgeries in March and October, and am currently on the path to recovery. One thing I learned: Cancer is not a "ME" disease, but a "WE" proposition. WE CAN ALL HELP EACH OTHER. I detailed my journey in this 10 minute read. I hope this helps YOU, whether you are a patient or…
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Another Test
At this point, I wasn’t sure how to feel about all the tests and the many offices I had been to. An MRI is an easy test for me though. I remembered having one a long time ago. Inside the MRI machine I had to be very still. With the week I’d had, I thought I could do that. I just hoped I didn’t snore! MRIs are so much…
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Staying In Touch With Other CSN Members - Post CSN Shutdown - H&N Cancer Members
Since this site is due to shut down on May 28th, there is a limited time to connect with other members in some other way after the shutdown. If you want to stay in touch with me or any other member of this forum after May 28th, you will need to send them a Private message, or as some folks call them, a Direct Message, and…
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Vulvar Cancer
Are there others in this community who are living with vulvar cancer?
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EMPD Extramammary Vulvar Paget’s Disease
Is there anyone out there with EMPD??
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Radiation Concerns
New guy here. Had brachytherapy in 2019 and psa stayed low at 1.2 ish until about 2 years ago and started to creep. Now at 4.1 with a 24 month doubling time. New urologist now since old guy retired and the recommendation is to do external beam radiation on the prostate and full pelvic region as a salvage as they call it. I…
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Site Shutdown-Pictures of Members Do You Remember
I think this is the last batch unless I find some odds and ends… Sonja.K… sonyk728… staceya… Tekonta… thennies61… Tim6003… Tinadink… tommyodavey… TracyLynn 72… txpipeliner… Viilik70… WMC-Bill… Wolfen… And—Wolfen & Phrannie meet 2-22-15 Wolfen lost husband, then daughter Johneybegood 7-27-14… Johnnybegood Is FreeIn the wee…
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Sneaky ****
Sometime early the next year… It snuck up on me. I didn’t know it was coming. I’m not sure that THEY told me it would. The first time, I thought it was just me. I wore something that I had to ask about wearing. That was my first mistake. It was a little shift dress that would have been considered long in the ’60s. Now,…
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Muncoepidermoid carcinoma
looking for other teens with this
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Jelly Belly and farewell
I’d like to thank everyone who has helped me these past 2 yrs. Good luck and as Spock would say - Live long and prosper 😎 Half way through my 3rd 6 month lupron shot. Have the jelly belly now. Ugly fat on my waist 😩 Any suggestions?
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Updated 4/29 - SRT or other Options
Update: I performed a search on SRT and psa levels after surgery. A lot of information. Appreciate your comments if you still care to leave them. Thanks again. Hello Everyone. First off, sad to read this site is closing, the info/support has been very valuable and it will be missed. Now, on to my current status. I had a…
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Site Shutdown-Old Pictures- Pictures
Here are a few more from the past times on here… pinquin yippie… PJ47… ratface… robswife87-Sandy… Here is an image of a ceiling fan with members names on it made up by civilmatt saying "Room For One More". Phrannie always used to joke around while waiting for the results of a scan saying she had scanxiety and was hanging…
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Ear canal cancer?
I am 27 years old and have had complaints of smelly discharge from my ear canal with some blood for 2 months. At first I thought it was infection because I extensively used earplugs for a month, but I stopped because they started to hurt my right ear. Eventually the discharge didn’t clear up, and so I went to ENT. They saw…
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8 year follow-up concluded
It's hard to believe it's been 8 years since my diagnosis and treatment. But then, it's kind of hard to believe that I'll be turning 70 in a little over a week. Harder yet to believe is that this site will be shutting down at the end of the month. I haven't helped as I've not been very active for several years, but there…
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Colon cancer ..stage3/4
Hello .. am new here and looking for asvice and support. Last CT, PET , colonoscopy and biospy test confirmed colorectal CA with 2 lympnods activated ..tumor is on the right side. Ocono suggest chemo right away then surgery after checks. CEA is 58 now slowly growing from 30 in Dec 2025. Any advice? Still this 'why me' in…
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Site Shutdown-Old Pictures-A Few More Pictures
A few more members' pics as we get closer to the shutdown, so sad a time. Jim & I Apr. 2014… Joanielo… Johnnybegood… jtl… Kritter-Passed 2-28-16… Laryalyn… Lewis… Longtermsurvivor is MD-RIP 2-10-15 Anita Sandlin (Wagner) Dr. Dunlap was the precious man who saved my life a week after my 16th birthday. I came into the ER…
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Still have neuropathy from Folfox/Oxy chemo
Hi, I am new to the forum, I was diagnosed Nov 2015 with a tumor in the rectum. Had 28 traditions, 6 weeks of 24/7 chemo, surg resection of tumor with temp illiostomy (for 12 weeks) then take down, then 12 sessions of Folfox/Oxy plus others that I don't remember currently. I had many of challenges others have experienced…
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First Time Visited and New
After several blood, etc., tests the Hema/Onc NP sent me a message which I have yet to understand, i.e., diagnostic considerations include marginal zone lymphoma, lymphoplasmacytic lymphoma or CD5-negative B-cell lymphoproliferative disorders. Well, that's as clear as mud. She did say, after I called her, that I most…
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Need some advice...UPSC STAGE IIIC
My mother was diagnosed with UPSC stage 3c in august of 2013. She had 6 rounds of chemo and then radiation. By the end of radiation treatments (March 2014) she started to complain of neckaches. She put it off thinking that she would wait until her radiation was over to see a chiropractor. The neckache continued after…
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Post vaginal brachytherapy side effects - short and long term
Four weeks ago had a total hysterectomy via robot. The fast recovery was amazing compared to long recoveries from open hysterectomies. Now I need to decide on doing four radiation treatments to the vaginal cuff where they say cancer is most likely to return. I had 2.5 mm invasion into the myometrium, less than 50%. There…
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Updates and sad to see the board go
Age old story, always meaning to pop in and update, but always stuff keeping me busy. And now the board is going away. Some of you have been especially dear at times when I needed it most, and all of you have been the best support system. And here I am approaching my 8 year followup after finishing surgery, chemo and…
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Site Shutdown-Old Pictures-A Few More Folks
A few more from past times, do you remember any of them, please comment… We had our friendly admins…always helpful and did all they could to be sure the site ran smoothly and safely… I am not sure of the name of this admin… CSN_Hillary-Admin CSN_LauraE… And some more of the members-some are listed by their handle and…
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Even a Rock Needs a Rock
There were very few times that J needed to be out and get away from the stress of what was going on. One of the first times was a while back when we were hosting the ALS run. We were doing that AND dealing with chemo. I could see J stressing and starting to spin because he needed to take care of me and was in charge of…
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Cobalt radiation as toddler for tonsillitis-Late rffects
I am an MD and practiced Pediatric Oncology. I have a story of my own to tell In the late 1940s and the 1950s, infants and children and teens were given Cobalt radiation for tonsillitis, acne, thymus gland, feet-for proper shoe fitting. All benign conditions I was 4 years old when I had Colbalt radiation to “shrink” my…
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Site Shutdown-Old Pictures-Do You Recognize These Folks
As I said, I had some old pics from the years on this site. There was a lady by the handle of Wolfen. If I remember correctly, she lost her husband to cancer, then her daughter, and I believe she also passed from cancer. We have had many fine people go through here; some went on to live full and thankful lives, and we’ve…
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Trouble with breathing
I just wanted some suggestions, my grandmother was diagnosed with Lung Cancer in April 2004. She was 68. The doctor said it was too close to her heart to operate, said she may not come out of the surgery alive. So they opted for Chemo/Radiation....after treatment she was seen regularly to check her lungs and at the 5 year…
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Site Shutdown-May 28, 2026-Hello CSN Members, Friends, Survivors-Final Words
Hello CSN members and friends. As you know, this forum is shutting down on May 28th 2026. I don’t know about you, but this is not good news in my opinion because it is a good place to get help and advice and look things up anytime, day or night. It was a huge help to me, especially during my first cancer, throat cancer,…