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Seeking Help For My Sister
My sister was just diagnosed with Stage IV Metastatic Ovarian Cancer. They said they can add maybe a year longer to her life with immunotherapy. She had no symptoms and was seemingly completely healthy up until some abdominal discomfort 4 days ago. Is there anything else we can do to fight this and extend her life? Are…
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Avastin and Avastin/Doxil Side Effects
Hi Everyone, I am contemplating either Avastin alone or Avastin/Doxil as my next step along this journey. The published side effect look awful. I am looking for first hand information from you ladies that you might be willing to share on how well tolerated these drugs are......thanks.
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Seeking help
my wife was diagnosed with an aggressive form of ovarian cancer on June 21st 2025. She had a 20 cm mass removed, full hysterectomy and bowel resection done on July 20th. Her first round of chemo was this past Wednesday and needless to say this weekend was awful. What I really need is caregiver support. I’m looking for an…
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Bone Marrow Transplant
Hello I'm new to this community, I have finish 3 rounds Chemo (chop) for T cell Lymphoma i have 3 more to go i just had a Pet scan done and i am being told i am in remission but i am being told after the next 3 treatments I will need the bone marrow transplant because of the aggressive t cell Cancer I am am told i will…
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Will HBO do the trick?
Hi to all, I have received a message from Hunter inquiring how I am doing. And, yes I am in default with a late update from my last entry in this forum. Well, everything seems to be under control. Since my last post (below) in this forum that I had a series of "encounters" with health issues, particularly due to bladder's…
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VIN Partial Vulvectomy Aftercare
hello ladies… I had a partial vulvectomy March of this year. It was VERY painful, stitches did burst, but I made it….. now months later I am still not where I want to be in nowhere near as comfortable as I thought I would be. Other areas are itchy, and the surgery site has also began to itch. I’ve gone back to my…
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Major post-LAR gains after switching anti-depressant
Here's an FYI that I hope can help others. Stage 3 rectal cancer, had LAR eight weeks and on temp ileostomy, severely suffering, unable to stand up and walk for the last 3 weeks due to tenesmus, pain and incontinence. It turns out the anti-depressant given by my family doc was a stimulant and it neither helped me mentally…
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CRC lung nodule..... chances can be Mets?
I was diagnosed (40yo female) 3c rectal tumor July 2024, did chemo and radiation august 2024 through Feb 2025, LAR in April, iliostomy reversal this past June. My CEA in May 3.8, July: 38. Just had CT scans done yesterday and found a 1.4x1.5cm spot on lower left lung. (A spot was noted in June 2024 petCT 3mm lower left…
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I'm trying to cope.
After a car accident in September of 2024, scans revealed brain swelling from a 3.4cm tumor in my right frontal lobe. Further scans revealed a 5.3cm tumor in my lung. The lung tumor was identified as small cell neuroendocrine cancer. I had a craniotomy in October of 2024 to remove the brain tumor. Following a brief…
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Bowel frequency after reversal
My husband had stage three colorectal cancer. He had a resection and a temporary colostomy bag. He has since had his bag reversed but, ever since then he has been dealing with frequent bowl movements. He will need to use the bathroom up to 15 times a day and each time he will pass just a small amount of stool. Has anyone…
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11 month update
I thought I would provide an update since I have been quiet for a while. (I feel I owe all of you who helped answer my questions earlier) Brief recap ...gleason 3+4 1/5/24...gleason 4+3 at time of surgery 7/11/24...Nerve sparing surgery deemed successful. Continence returned at 2 months. But I ended up having a stricture,…
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Still have neuropathy from Folfox/Oxy chemo
Hi, I am new to the forum, I was diagnosed Nov 2015 with a tumor in the rectum. Had 28 traditions, 6 weeks of 24/7 chemo, surg resection of tumor with temp illiostomy (for 12 weeks) then take down, then 12 sessions of Folfox/Oxy plus others that I don't remember currently. I had many of challenges others have experienced…
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Update
Well. I reported all clear in June but things change in the blink of an eye. On a completely unrelated scan, an enlarged lymph node was discovered. Not the results we were hoping for from my biopsy: Kidney cancer cells (diagnosis and surgery 9 years ago) have resurfaced. I had a CT scan of pelvis/abdomen tomorrow and a…
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Base of tongue cancer
They discovered I had cancer in Tonsil, base of tongue, lymph node, same side Last Treatment was Chemo and radiation finished Jan 27 2025 CT in 6 weeks post treatment MRI at 3 months post treatment Everything looked the same Then Last MRI a week ago showed a 5 mm increase at Base of tongue Now 1.6 cm Was 1.1 cm 3 months…
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Burning Burn Tongue After Radiation Please Help
I am 4-1/2 months post chemo and radiation for tongue cancer. I had the cancer excised from the left side of my tongue 16 months ago. T1N3 The problem that I have is a burning and painful tongue. The burning feeling extends from the point of excision on the left, all the way around to the right side of my tongue along the…
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Lung Cancer (2b) ten years survivorship
First and I guess mostly, my dear mom has survived as stated above. It was a wild ride and there are some really good and still challenging days following her four surgeries, resection, 2 hips, and extensive node verification + 3 rounds of intense chemo workups. I am working to get her involved here eventually. In any…
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grade 4 glioblastoma
i ha ve just had 80% of my tumour removed last week i am told my cancer is treatable but uncurable about to begin 4-6 weeks radiation and chemo i gues my question is is how worse or dibilitating is this likely to make me i have already lost use of right arm and leg slowly coming back but i really dont want to trade what i…
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3 years remission and on zepbound for weight loss
Well my ldh has been hovering around 174 for 3 years, and after an ER visit due to side affects (extreme lightheadness)from zepbound my ldh was 294. I asked for the test because they were running all kinds of blood tests for my heart. Including 2 images of my heart and lungs, All came back normal. Now I'm scared because my…
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Pathology Report
Got a call from my surgeon today. He said it was chromophobe RCC. I looked that up and it's apparently a rare form of RCC, diagnosed in only 5% of cases. What's strange is that it seems to be hereditary, but neither of my parents, nor any of my four grandparents had (to my knowledge) kidney cancer. Of course, since the…
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Loss of parathyroid glands caused what felt like a stroke
I was diagnosed with stage one thyroid cancer. The cancer metastasized outside of the thyroid which means it should be stage two but since I’m under 30, they don’t take it as seriously unfortunately. when I had my thyroid removed, my surgeon did not inform he had to remove two of my parathyroid glands. This caused me to…
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anal cancer
I just found out that I have cancer in my rectum. Last week, coloscopy; next week, CAT scan & surgeon meeting. I don't have family; my husband died in 2013; friends don't know much about cancer & neither do I. I'm afraid and anxious, trying not to get depressed. I'm looking for conversation to help me thru this process.
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Follicular Lymphoma - Rituxan and Bendamustine
Howdy - Anyone try this combination with anything close to Stage IV, Grade 2 follicular lymphoma?
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Seeking Long-term Survivors of Esophageal Cancer
Hello everyone, My name is Anna, and I am reaching out to this community for support and information. My husband has been diagnosed with stage 2 adenocarcinoma of the esophagus. After undergoing chemotherapy and radiation therapy, he is now scheduled to have an esophagectomy. I am very anxious about the surgery and what…
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Anybody familiar with Dr. Dattoli's center in Sarasota, FL ??
Due to PSA rising after RRP in Dec. 2010, I am looking for the best follow-up radiation. Any info will be appreciated. As well as other recommendations. After checking his website, I'm not sure about the advantages of his different tests including "color flow doppler ultrasound" and "DART (Dynamic Adaptive Radio Therapy)".…
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Survivor Dispatch: “Guinea Pig 3 Over and Out (Still Sane)”
To bear witness to institutional harm, survivor grief, and the cost of being studied without being seen, “When will they see what they’ve done to me—physically, mentally, financially? I am a human being with feelings. I’ve spent most of my life being experimented on, paying for it in pain, confusion, and silence. I got…
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Sexual Health and Life with Cancer
My husband was diagnosed with Stage III Testicular Cancer almost two years ago and underwent four rounds of chemo and an RPLND (among other surgeries like the initial orchiectomy and a lung wedge ressection) over the second half of 2012. 2013 was all about recovering from surgery and he's still in a lot of pain every day…
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On-line ostomy forum
For those with an ostomy because of cancer (like me), you may want to also join meetanostomate.org. I think this site has been mentioned on this site before but its been several years. Like this site, people with ostomies (for any number of reasons) share advise, encouragement. Having recently joined both sites, I have…
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Port removal
the doctor surprised me at my last visit. In April of last year I had a tumor removed from my colon and a met just on the outside of the same area. 12 treatments later including 5fu pump Two positive lymph nodes after surgery of removing both I have not had a positive test. Two CT scans and tumor markers have all been…
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Ivermectin/fenbendozole
Has anyone seen any discussion on the use of both of these. With cll there is no tumor to attack. Am i wasting my time?
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Advice/experience for a friend
My dear friend had a total collecting and rectal pouch created as a result of ulcerative colitis when she was young. She received news earlier this year that she had developed adenocarcinoma of her rectal pouch. She was initially told the plan was for radiation chemo then surgery that would leave her with a permanent…