Peritoneal Cancer
Discussion List
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Some tips from CSN
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Peritoneal\ovarian
Hello! I am writing for any perspective on what my mom is currently going through. In mid-August I took her to ER with a distended belly, after a CT, was told she had metatstatic cancer but as they were not sure of the primary source, ordered a bunch of diagnostic tests. Everything came back fine, aside from a comment…
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Best Hospital or the most success and experience with Peritoneal Cancer
My mom was diagnosed with metastatic ovarian cancer mid last year. She has had 7 rounds of chemo. By the end of last year her c125 numbers had returned to normal range but the ct showed no shrinkage of the "tumors" (Mucinous Adenocarcinomas). She had a consult at MDA. We were hoping for HIPEC. They pegged the cancer as…
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Cancer with a transplant organ
I'm searching out to see of anyone knows or is a transplant recipient with cancer. My husband (56 years old) had a kidney transplant in 2019 and was diagnosed with stage 3 kidney cancer 4 months later and then in 2020 was diagnosed with stage 4 as it progressed to his lungs. As of Feb 2023 it has progressed to his…
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PMP - debulking, omentum,peritoneum,chemo
I was recently diagnosed with PMP (pseudomyxoma peritonei). Only one or two people in a million get this. It basically is a tumor on the appendix that creates a jelly in the abdomen. The tumor can spread to other organs and tissues. I had the debulking and the HIPEC treatment. *Regular chemo does NOT work on this…
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Peritoneal carcinomatosis
I have PC, and have had 2 surgies and countless chemo. Chemo before HIPEC surgery and after, still showing signs of cancer via blood tests, HIPEC surgery completed 10 months ago and they also reconnected my colon, removed spleen, gallbladder, ovaries, uterus, and scraped diaphragm 💙 on FU chemo and MVASI, anyone heard of…
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Dealing
Almost exactly a year ago I was diagnosed with peritoneal cancer. Went to urgent care thinking I might have covid, just feeling blah, and hubby had just finished surgery and chemo for lung cancer. Wanted to make sure I didn't expose him to covid. Sent me to er because I had chest congestion. Had ekg and blood work. Blood…
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Looking for support
Last year I was treated for Stage 4 appendix cancer that metastasized to the peritoneum. I'm in the monitoring stage which, for me, post-cancer has been difficult. Having hard time adjusting back to normal routines & activities. I start work about May 9th & chemo fog & lack of concentration along with memory issues have me…
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Newly dignosed Peritoneal Cancer
Hello,I was just dignosed few days ago.I have had Cancer several times.Three nodoes in stomach was biopsied.All three are Cancer.Waiting to talk to Cancer dr.Any advise on questions I should ask dr would be appriatted.Or someone who has been through this kind of Cancer.That could give me advice.Thank you.
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Encouraging words for you with peritoneal cancer
Hello, My name is Cindy Baker. In May of this year 2017 I was diaganosed with primary peritoneal cancer. Talk about being numb. You see, three years ago, I found out I was diaginosed with the BRAC II mutation. I had another relitive, cousin, and then his daughter die of cancer. In 1979 I had lost my oldest sister who was…
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Bowel obstruction with Peritoneal Cancer
Bowel obstruction with Peritoneal Cancer Hello, My mother has peritoneal cancer and has finished chemo. She is now doing infusions, but they are not eliminating stomach issues and the beginnings of bowel obstruction. These things did get better with chemo. Does anyone have advice about how to deal with the particular…
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Goblet Cell Appendiceal - Stage IV
Since my husband's diagnoses of goblet cell appendix cancer (with abdominal and pelvis spread), on July 3, 2014, I've found it helpful to read about other similar cancer stories. I'd like to provide that same support to others, as well as hear more of others' experiences. This has been our experience, so far: July 3, 2014…
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Peritoneal Cancer - Various Treatments
Hi all: I am collecting, to have on hand for my oncologist (who is an amazingly intelligent man), the various treatments that folks with peritoneal cancer are getting or have had. I am interested in both primary and secondary peritoneal cancer treatments including surgery and various chemotherapy regimes. For example, I…
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My wife is diagnosed with Peritoneal Cancer Stage III - we are scared
Hi all, My wife, age 49, was diagnosed with Peritoneal Cancer Stage III three weeks ago. She had bloating and swelled abdomen, went to family physician for checkup. Physician sends her to ER and after CT scan news was revealed to us. We have four girls and younger is 12 years old. Then she went for surgery for remove her…
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chemo for peritoneal cancer
Went to see the oncologist today to see how my husband was getting on after 3 rounds of chemo, he has decided to continue the chemo a further 3 rounds, as it seems to be keeping the ascites at bay, he will be having a scan in October, with the results 27Th. I wonder how long anyone can stay on chemo? can you have a chemo…
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small cell
Are there any discussions on this topic? I have stave IV small cell from the prostate what has matastized to the peritonea cavity.
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Recently diagnosed
I was diagnosed many weeks ago with pertioneal cancer. I am finally having surgery this Monday, 9/14/20 at Stanford Hospital. The stage/severity, etc. will be known thereafter. I am writing this to express my appreciation for this site and specifically this "board”. I know so little of what to expect and have been…
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Chemo allergic reaction
Has anyone taken chemo pill called Mekinist.I am have allergic reaction.Pimples and swelling of face.seen dr Friday.told me to use lotion without acohol.And benadrle.not helping.Does anyone have advice please.i will be calling her Mon.Thank you
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Cancer pill
I done genetic testing today.will be doing pet scan soon.may be able to take Cancer pill.Have any of you taken Cancer pill?Did you have side effects?Did it work?Thank you.
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Appendix Cancer
Hi, I'm new to this. I am 58 years old and in January of this year I experienced some unusual pain beliw my belly button, severe acid reflux with no fever. A CT showed I had diverticulitis and a mass in my appendix. In February my appendix was removed and I was told I had mucin that spread through out my abdominal cavity…
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Breathing issues
Hello all. I was recently diagnosed with peritoneal cancer which originated as ovarian cancer in my omentum. In addition I have been dealing with ascites, blood clots in my lung and moderate plural effusion in my left lung. My oncologist says these are all related. I have completed 2 rounds of chemo, and my question is…
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HIPEC wasn’t possible, now what?
Hi folks, New member here. I had full hysterectomy in January, and the pathologist report indicated the cancer originated in my appendix (which was also removed). I had 13 FOLFIX treatments and 1 FOLFIRI, then went in for debulking and HIPEC on Nov 14. When they opened me up, there was too much “plaque” and my PCI was 22…
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Gallbladder cancer and peritoneal
hello everyone- my dad just diagnosed with stage 4 Gallbladder cancer. He had gallbladder removed with thin slice of liver and biopsy as no cancer suspected. Since then (and after an abandoned liver resection completion attempt) it has been restaged as 4, with spread to liver, peritoneal and lymphs. Surgeon extremely…
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CEA and Crohns
My CEA is 169. My oncologist ordered a CT scan of abdomen and chest. The results showed several masse in the peritoneal cavity and the oventum. He told me I would need aggressive chem. He set me up an appoinment to get a port which I did not get yet. My GI doctor called me a few days later and told me he does not think it…
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Loretta is Home
To all who ever benefited from Loretta’s postings, and I know many of you have, our dear friend has gone on to be with her Lord and loved ones. Her Homecoming day was yesterday morning, 3-5-19, around 1:30 AM. She is at peace and at rest, and enjoying her rewards. This Bible verse is most fitting: 2 Timothy 4:7-8 I have…
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Primary Peritoneal Cancer & Treatment
Hello, My mom, age 67, was diagnosed last month with Primary Peritoneal Cancer. It started with bloating and abdominal discomfort. She was then sent for an ultrasound, blood test, and tapping (5 Liters drawn). Then her CA numbers were tested and found to be 536. She was diagnosed as Stage 3 PPC based upon this information.…
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Peritoneal Carcinoma Questions to ask doctors?
Hi Everyone, I've read Loretta's information and it was so educational and helpful, so thank you to Loretta! My mother who is 68 went into the hospital on Friday bc she had fluid in her belly, she had bloating and pain when eating, the typical Peritoneal symptoms I keep reading about. She had a full hysterectomy in 2009…
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Update & Farewell from Loretta Marshall~stopping treatments~ It's time to WALK AWAY
February 23, 2019 Update &Farewell letter to all my friends here on the CSN site Hello to all dear friends dealing with a cancer diagnosis- As you can see by the date on the bottom of this article by MAYO Clinic – February 20, 2006, I have kept this on file since then. And rightly so, since my husband, William Marshall,…
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Not sure if I belong here
This has all happened just within the past month. My GP ordered a CT scan three weeks ago because my pancreatic enzymes were off. The CT revealed a golf ball sized mass in the small bowel mesentary, which is part of the peritoneum that supplies blood to the small intestine. He referred me to a gastroenterologist who…
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BSO SURGERY
After having BSO surgery, has anyone experience cancer in the peritoneal area later?
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slow increase in CA125?
Long time in remission and getting scarier. Anyone with experience of slow increasing CA125's?
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