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Peritoneal Cancer

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Post Chemo Neuropathy Pain
My wife has had 2 surgeries: an emergency colostomy for an endometrial mass that blocked her descending colon at the sigmoid loop, and a successful reversal surgery 5 and a half months later to remove @ a third of her colon along with the mass which was believed to be benign based on blood tests. It wasn't. Cancer cells…
Peritoneal Cancer Chemotherapy
Good morning, I was officially diagnosed with Peritoneal Cancer on 10/04/2024 so I am new to this and it is terrifying. I have a primary tumor and it has spread to a portion of my liver. The plan is to do three rounds of chemo Carbo and Taxol plus Avastin and then have surgery. My first chemo was scheduled for October 18,…
Severe Tightness and swallowing discomfort after chemo
My mom is getting 6 rounds of chemo for Primary Peritoneal Cancer and it is on the Omentum primarily. Dr said it looks like someone threw wet sand at a wall. The goal is chemo to reduce it as much as possible and then surgery. We are in the last of 6 chemo treatments ( paclitaxel and carboplatin). The last 3 chemo…
Looking for support
Last year I was treated for Stage 4 appendix cancer that metastasized to the peritoneum. I'm in the monitoring stage which, for me, post-cancer has been difficult. Having hard time adjusting back to normal routines & activities. I start work about May 9th & chemo fog & lack of concentration along with memory issues have me…
Hamzah_mohd~Here R web links 2 help U find answers 4 Mum's rare cancer~hope it helps!
Have chosen to create a new forum topic since "hamzah_mohd" has entered into a discussion that took place in 2011. More than likely many of those are no longer posting, but if they are, they can still answer but I doubt that many replies will come from people who posted in that particular time frame. Nevertheless, I would…
Peritoneal carcinomatosis
Hi, I have a dear friend who has just been diagnosed with Stage IV peritoneal carcinomatosis. The original cancer was ovarian but is now in the stomach lining. She has started chemo, consisting of a combo of carboplatin and Doxorubicin. Unfortunately the Doxo caused an instant allergic reaction, so they continued on with…
My wife
My wife was recently diagnosed with peritoneal cancer. They were suspect of her ovaries, but found her stomach wall had thickened and had a colonoscopy and endoscopy done. A big mass in her stomach was found. Biopsies showed a late stage tumor in her stomach that has spread to her lymph nodes and 2 different linings in her…
Encouraging words for you with peritoneal cancer
Hello, My name is Cindy Baker. In May of this year 2017 I was diaganosed with primary peritoneal cancer. Talk about being numb. You see, three years ago, I found out I was diaginosed with the BRAC II mutation. I had another relitive, cousin, and then his daughter die of cancer. In 1979 I had lost my oldest sister who was…
update on chemo
Hi to all, my husband Ian had his 2nd round of iv chemo on thurs, and this time he is coping much better, no reaction! he has started to eat and has gained weight, the ascites has not returned, so all in all not too bad. He has 2 more rounds of chemo, ( he also takes tabs at home xeloda ) to do then a scan, we both wonder…
Peritoneal cancer
Hi. My husband was diagnosed end of may 2023 with stage 4 peritoneal cancer. After tests and immunotherapy he kept getting weaker. Not eating and throwing up. His sodium kept dropping. He passed away on July 2023. I am heartbroken. Today is his birthday. He would of been 71. Thank you for letting me tell his story
Biopsy Sample Delivery
I had a biopsy of a retroperitoneal mass 8 days ago (7/18/23) in Southwest Florida. That was a Tuesday. The discharge notes stated that results are expected in 3-5 business days. This past Monday I called to check on them. That would have been 4 business days. The person I spoke with said they received the results and…
Peritoneal carcinomatosis
I have PC, and have had 2 surgies and countless chemo. Chemo before HIPEC surgery and after, still showing signs of cancer via blood tests, HIPEC surgery completed 10 months ago and they also reconnected my colon, removed spleen, gallbladder, ovaries, uterus, and scraped diaphragm 💙 on FU chemo and MVASI, anyone heard of…
Peritoneal\ovarian
Hello! I am writing for any perspective on what my mom is currently going through. In mid-August I took her to ER with a distended belly, after a CT, was told she had metatstatic cancer but as they were not sure of the primary source, ordered a bunch of diagnostic tests. Everything came back fine, aside from a comment…
Best Hospital or the most success and experience with Peritoneal Cancer
My mom was diagnosed with metastatic ovarian cancer mid last year. She has had 7 rounds of chemo. By the end of last year her c125 numbers had returned to normal range but the ct showed no shrinkage of the "tumors" (Mucinous Adenocarcinomas). She had a consult at MDA. We were hoping for HIPEC. They pegged the cancer as…
Cancer with a transplant organ
I'm searching out to see of anyone knows or is a transplant recipient with cancer. My husband (56 years old) had a kidney transplant in 2019 and was diagnosed with stage 3 kidney cancer 4 months later and then in 2020 was diagnosed with stage 4 as it progressed to his lungs. As of Feb 2023 it has progressed to his…
PMP - debulking, omentum,peritoneum,chemo
I was recently diagnosed with PMP (pseudomyxoma peritonei). Only one or two people in a million get this. It basically is a tumor on the appendix that creates a jelly in the abdomen. The tumor can spread to other organs and tissues. I had the debulking and the HIPEC treatment. *Regular chemo does NOT work on this…
Dealing
Almost exactly a year ago I was diagnosed with peritoneal cancer. Went to urgent care thinking I might have covid, just feeling blah, and hubby had just finished surgery and chemo for lung cancer. Wanted to make sure I didn't expose him to covid. Sent me to er because I had chest congestion. Had ekg and blood work. Blood…
Newly dignosed Peritoneal Cancer
Hello,I was just dignosed few days ago.I have had Cancer several times.Three nodoes in stomach was biopsied.All three are Cancer.Waiting to talk to Cancer dr.Any advise on questions I should ask dr would be appriatted.Or someone who has been through this kind of Cancer.That could give me advice.Thank you.
Bowel obstruction with Peritoneal Cancer
Bowel obstruction with Peritoneal Cancer Hello, My mother has peritoneal cancer and has finished chemo. She is now doing infusions, but they are not eliminating stomach issues and the beginnings of bowel obstruction. These things did get better with chemo. Does anyone have advice about how to deal with the particular…
Goblet Cell Appendiceal - Stage IV
Since my husband's diagnoses of goblet cell appendix cancer (with abdominal and pelvis spread), on July 3, 2014, I've found it helpful to read about other similar cancer stories. I'd like to provide that same support to others, as well as hear more of others' experiences. This has been our experience, so far: July 3, 2014…
Peritoneal Cancer - Various Treatments
Hi all: I am collecting, to have on hand for my oncologist (who is an amazingly intelligent man), the various treatments that folks with peritoneal cancer are getting or have had. I am interested in both primary and secondary peritoneal cancer treatments including surgery and various chemotherapy regimes. For example, I…
My wife is diagnosed with Peritoneal Cancer Stage III - we are scared
Hi all, My wife, age 49, was diagnosed with Peritoneal Cancer Stage III three weeks ago. She had bloating and swelled abdomen, went to family physician for checkup. Physician sends her to ER and after CT scan news was revealed to us. We have four girls and younger is 12 years old. Then she went for surgery for remove her…
chemo for peritoneal cancer
Went to see the oncologist today to see how my husband was getting on after 3 rounds of chemo, he has decided to continue the chemo a further 3 rounds, as it seems to be keeping the ascites at bay, he will be having a scan in October, with the results 27Th. I wonder how long anyone can stay on chemo? can you have a chemo…
small cell
Are there any discussions on this topic? I have stave IV small cell from the prostate what has matastized to the peritonea cavity.
Recently diagnosed
I was diagnosed many weeks ago with pertioneal cancer. I am finally having surgery this Monday, 9/14/20 at Stanford Hospital. The stage/severity, etc. will be known thereafter. I am writing this to express my appreciation for this site and specifically this "board”. I know so little of what to expect and have been…
Chemo allergic reaction
Has anyone taken chemo pill called Mekinist.I am have allergic reaction.Pimples and swelling of face.seen dr Friday.told me to use lotion without acohol.And benadrle.not helping.Does anyone have advice please.i will be calling her Mon.Thank you
Cancer pill
I done genetic testing today.will be doing pet scan soon.may be able to take Cancer pill.Have any of you taken Cancer pill?Did you have side effects?Did it work?Thank you.
Appendix Cancer
Hi, I'm new to this. I am 58 years old and in January of this year I experienced some unusual pain beliw my belly button, severe acid reflux with no fever. A CT showed I had diverticulitis and a mass in my appendix. In February my appendix was removed and I was told I had mucin that spread through out my abdominal cavity…
Breathing issues
Hello all. I was recently diagnosed with peritoneal cancer which originated as ovarian cancer in my omentum. In addition I have been dealing with ascites, blood clots in my lung and moderate plural effusion in my left lung. My oncologist says these are all related. I have completed 2 rounds of chemo, and my question is…
HIPEC wasn’t possible, now what?
Hi folks, New member here. I had full hysterectomy in January, and the pathologist report indicated the cancer originated in my appendix (which was also removed). I had 13 FOLFIX treatments and 1 FOLFIRI, then went in for debulking and HIPEC on Nov 14. When they opened me up, there was too much “plaque” and my PCI was 22…

Peritoneal Cancer

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