-
Port placement issues
today, they were going to put a port on the left side, but after 3 incisions said the catheter was too short?! WHAT? How is it too short? They put the port on the right. The left side of my neck is really hurting and swollen. I know it will be tender because they were in there, but the swelling has me concerned. of course…
-
Diagnosed with mcrnlmp
who else is diagnosed with the same? Multilocular cystic renal neoplasm of low malignant potential
-
Suggestions for sleep positions after lumpectomy
I'll be having a lumpectomy in 2 weeks, left side. I usually sleep on my stomach or left side. That's not going to work! Will I need to sleep on my back? Maybe sleep on a recliner? Any suggestions?
-
Ovarian Cancer Scare following previous cervical cancer- curious about misdiagnosis stories
Hello, I won't go to into details but I am on a stand still with a mass that is suspected to be ovarian cancer. I am waiting for biopsy. It took me a long time to get here. I'm scared and i've been looking for an answer. I didn't think this was it. Does anyone care to share their diagnosis story (especially if it includes…
-
Does treatment location matter?
Hi, Does it truly matter what institution/center I get my treatments at? I live in a somewhat rural area and many ppl are telling me to go to a more urban institute/center. I read that treatment for ovarian cancer is pretty standard so I am wondering about the value in traveling to a more urban/well known center…
-
New to hear and have alt of concerns
ADENOCARCINOMA; Gleason Score 7(4 + 3); Grade Grcup 3: 15% of the needle core tissue involved by tumor: 1/ of 1 core involved. (Confirmed by PIN4 IHC-G) | Benign seminal vesicle/ejaculatory duct tissue. ADENOCARCINOMA: Gleason Score 9(4 + 5); Grade Grcup 5: 90% of the needle core tissue involved by tumor; 1 of 1 core…
-
Starting PT pre Prostate Surgery - not what I expected
My Dr suggested that I do some pre-surgery PT to help shorten the incontinence period after surgery, and then continue with therapy aftwwards. Going into PT I thought I was going to get tips on how to do Kegel excersises properly. But instead the focus was on strengenthing the Pelvic Floor. The therapist first checked my…
-
The Power Of A Hug In Caring For Head And Neck Cancer Patients
The power of a hug cannot be underestimated especially during a time like a cancer diagnosis and treatment. It says more than any words and with words added goes far beyond anything imaginable in strengthening, supporting, and caring. Many of us on here have had our first cancer long before covid and social distancing and…
-
biochemical recurrence
I just joined and was wondering Is there already a discussion of this? My husband had stage 4 prostate cancer but radiation and Hormone T has resulted in a five year remission with undetectable PSA. In the last six months PSA is up several times and is going for PSMA-Pet in three weeks and I'm wondering what all this…
-
So God Made a Mother: A Beautiful Mother's Day Poem-Happy Mothers Day Everyone!
I have come across this wonderful poem to share Mother's day with each and every one of you today. God's Blessings to you all. At the dawn of time, God needed someone He could trust to love His precious children. And so, God made a mother. God said, “Life will often be harsh, so I need someone with a gentle touch. Someone…
-
Recently Diagnosed
Hi. I am 50 years old and I recently learned I have cancer in 4 areas. I am amazed how slow the medical field is but then I have no patience. I came here to get advice and help me keep sane. I am reading posts. I am not handling the news very well. I am not sure how long I have had the cancer but I was sick for 10 weeks…
-
Throat Cancer Symptom Advice From A Survivor,Things Doctors Don't Tell You Once You Start Treatmen
Advice from a throat cancer patient for people who are about to go through radiation and chemo treatments. Things I wish my doctor had told me. Take Care, God Bless Russ
-
Humane treatment for cancer patients
My mom was diagnosed of ovarian cancer , we need help. Doctors in Summerlin hospital keep saying she is dying- we feel like it’s not right and humane. Please help us she is fighting, she is in icu right now. We only went there to drain her asceitis from then on she got weak. She does her chemo at ucla but c/m she live in…
-
My Last Days Follow-Up: How Are They Doing Now?
One year ago we aired My Last Days season 2 on SoulPancake. We checked in with all the participants about updates on their conditions. Take Care, God Bless Russ
-
Webinar: Head and Neck Cancer Survivors - Managing Function and Quality of Life
The National Coalition for Cancer Survivorship (NCCS) hosted a Cancer Policy and Advocacy Team (CPAT) webinar discussing quality of life for head and neck cancer survivors. The treatment of head and neck cancer (HNC) often involves surgery, radiation, and chemotherapy. This treatment is critical for controlling or curing…
-
Breast Reconstruction Education
Hey everyone! I hope you're doing well! My friend is getting a breast reconstruction surgery, as she just had a breast mastectomy. Is there any resource she can refer to learn more about her options for reconstruction. Any leads will be great!
-
Surviving UPSC
In August of 2025, at 63, I was diagnosed with uterine cancer. On September 30, 2015, I had a complete hysterectomy and was diagnosed with Stage III, UPSC. I came to this board a little bit after that looking for answers. I only made it through three chemos of carboplatin and taxotere. In December of 2015, I had a stroke…
-
Radiation as a Child for Enlarged Thymus
As an infant I was radiated in 1946 for an enlarged thymus gland in the mistaken belief that this would prevent SIDS. The amount of radiation I absorbed was equal to ten common CT studies today. This treatment was commonly used in major hospitals and even pediatricians’ offices across the country. Thousands of infants and…
-
I am a Grade 3 Anaplastic Ependymoma Survivor: Survivorship Story
Hello. I learned about this group during my most recent clinic visit. I want to connect with others who have undergone or can relate to my treatment story. In 2016 I turned 18 years old. Three weeks later I was diagnosed with a Grade 3 Anaplastic Ependymoma. I had attributed 6 months worth of daily headaches to being a…
-
Anyone using Fulvestrant or another SERD?
Looks like I may be changing from anastrozole (an aromatase inhibitor) and Ibrance to fulvestrant or imulestrant and staying on Ibrance. I'm in remission after two recurrences, and it looks like I can stay on the lower dose of Ibrance, but all my research points to changing the ai to a serd. I would like to hear the…
-
Decision Process re: radiation Type
Having just received a diagnosis of prostate cancer, my urologist indicated that radiation is his recommended approach and I'm scheduled to meet with radiation oncologist shortly. I'm stage 2, with evidence of Cribriform pattern 4 so active surveillance is not an option. Recognizing that everyone is different and…
-
Follow up
I had surgery and lymph nodes removed and was told all was clear. A year later colonoscopy was clear. I have been wondering about cancer showing up in other places and have tried to get some answers about this but can’t seem to find a way to do it. I had a consult at Sarah Cannon right after surgery and have reached out to…
-
NED UPSC for 10 years!
I joined this board in October 2013 shortly after receiving my diagnosis. In December 2013 I had surgery at Moffiitt Cancer Center in Tampa Fl followed by chemo and internal radiation therapy. I am one of the very few lucky survivors to have never had a recurrence and am still NED today. I don’t think I realized until…
-
Cervical cancer
I have just recently been diagnosed with cervical cancer and I am very scared for what is to come.
-
Anaplastic Large Cell Lymphoma ALK Positive
Anyone on the boards have this besides me?
-
Radiation therapy
Now have PC and plan to take radiation therapy, but have heard of incontinense with radiation when I thought it was more of an issue with removal. Anyone have experience or comments
-
ROLL CALL 2024
How is everyone doing, I hope all is well with each of you. I hope you are recovering nicely from your cancer treatments and are returning to your life as it was prior to your diagnosis. Well, this will be my last time running the entire Roll Call by myself. Over the past few years I have continued to fall further behind…
-
How long to worry about clots and strictures
If I have surgery, how long are blood clots and possible contractures a thing to look out for? Do people still have to pass daily thin catheters through to keep things open for a period of time? I'm wondering if it is advisable to travel overseas within three months of surgery, if all goes well. I know it depends on how…
-
Biofilms: A DEADLY Complication from Implanted Medical Devices. ESSENTIAL Trach Tube Info!
Here is a video from a young lady I follow on her channel. She always has good information in short easy to understand videos. Here is one recently about something I have never heard of "Biofilms", never knew such a thing existed. This may be helpful to some of our members with trachs and it apparently can affect…
-
Effectivity of second RAI treatment without second operation?
Hi! So I was diagnosed with papillary thyroid carcinoma in 2017. Had a total thyroidectomy with bilateral neck dissection for some cancerous lymph nodes in July. RAI (105 mci) in August of the same year. Did a whole body scan in 2018 and it showed that the ablation worked. Haven’t had any symptoms ever since then. However,…