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*Abbreviations* for all our Newbies
AC - one of the five most common types of chemo given to women with BC. Iit's probably the MOST common drug combination given to women with node-negative (hasn't spread to your lymph nodes) cancer. AC includes two drugs: doxorubicin (Adriamycin), and cyclophosphamide (Cytoxan). AI - aromatase inhibitors ADH - A benign…
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Some tips from CSN
Welcome to the CSN! Below are some tips to help you get started following and posting on the boards. You can follow your preferred discussion board to get notifications of new topics and comments. To follow a board, navigate to your preferred board and then select the bell at the top, followed by your notification…
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Wife breast cancer
I have been taking care of my wife with stage 4 breast cancer the last 4 years. Is there such a thing as chemo brain. She can be nice to everyone but me. Been married 41 years. anything I do is wrong and we argue often or I just listen to it. am I doing something wrong? Any comments/suggestions welcome.
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Hormone therapy for ILC
stage 1, Grade 1 ILC discovered during a preventative mastectomy. Did not spread. It is estrogen receptive, so hormone therapy is recommended. I started anastrozole 5 days ago. I developed hives. Is there a hormone therapy out there with less side effects? I m 62.
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Just wanting to be happy after cancer
Did You have a full life before you found out? How did you react to the news? Are you feeling defeated now that chemotherapy and radiation treatments are done? Are you struggling with what you used to look like vs how you look after cancer? If you are like me, I wish to talk to you about your journey and what you’re doing…
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Hair loss ten years after chemo
Hi - I am posting this a bit greedy and needy as in I've just found this place and now I'd really like to gather some info I had breast cancer when I was 36. It has been a horrible 10 years but you get there. I don't think anyone really gets that. But anyhow, I can kind of cope with all the depression, anxiety, all that…
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KEYNOTE 522
Is there anyone on the KEYNOTE 522 Regimen, or has been on it? I am searching everywhere to find someone to communicate with on this. I am recently diagnosed with TNBC and the KEYNOTE is now apparently the Standard of Care. Please answer if you can. Thank you. (Jan. 2025)
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Tram Flap and Complications
TRAM FLAP RECONSTRUCTION AND ABDOMINAL BULGE/PAIN I had the Bilateral Pedicle Tram Flap in 2012. Less than 3 months later, my abdomen began to grow larger and, very painful. After chemotherapy finished, I began to investigate...being an RN, it’s in my nature to look at online journals. I knew something was wrong, but what?…
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ER+ HER2+ breast cancee
hello all, I was diagnosed with ER+, HER2+ breast cancer this past September. 1A, grade 2. No lymph node involvement. Lumpectomy. I qualified for a trial that my oncologist recommended. No chemo, 20 rounds of radiation, Phesco shots every 3 weeks for approx a year, and Letrozole estrogen blocker for 5 years. I’ve completed…
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Worst fear come true
hello, My mom has just been diagnosed with IDC this week. She is my best friend and my only parent I have left. This has been one of my worst fears and I can’t believe it’s happening. Just looking for some support and/or advise on how to cope and also support my mom on this journey. I literally wanna break down but I know…
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Mental Health for Breast Cancer
What types of mental health therapy(ies) have helped you?
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Hematomas after a double mastectomy
I had a double mastectomy two weeks ago, They put the prevena plus wound vac on me and when they took it off 6 days later I had developed hematomas! I got instructions to wash with soap and put silvedene cream on them twice a day. Can anyone give me any suggestions????? If this happened to you!
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Proton Therapy for Breast Cancer
Anyone know of any proton therapy for early stage breast cancer?
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New-IDC with Triple Negative
I recently got diagnosed with IDC with triple negative. Trying to wrap my head around all this. Waiting for genetics results too. I have less than 2 cm lump in my right breast. I am doing a lumpectomy early Nov. What is the triple negative? I understand it means the tumor does not grow from estrogen, but what are the other…
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Dry sinesus
The latest symptom from chemo is dry nasal passages. Not sure if it the change in weather or the heater that kicks up at night. This is new for me as I have never had this problem before. Has anyone ever had this happen? If so, what did you do for the problem. Any suggestions would be appreciated. Thank you, in advance,…
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Help with medical expenses
looking for help making payments for medical bills
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Mammo callback for right breast micro calcifications-scared
Hello everyone. I am a 50 something year old who just had routine mammogram and got a call back last week for right breast calcifications. I am going in for a closer look 3-D mammography and ultrasound in 10 days. I read that micro calcifications can be normal with age , but sometimes can point to cancer. I read that if…
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HR+ Her2-/Menopause Treatment Options
Hello, I have HR+/Her2- beast cancer, and the treatments have thrown me into instant menopause. Are there any non-estrogen-based over the counter meds/foods/natural things I can use to help? I'm in a lot of pain with the menopause itself on top of the cancer. At the same time, I don't want to take something that will feed…
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Breast cancer stage 0
I was diagnosed with ductal carcinoma in situ and had a lumpectomy to remove the tumor. Will be starting 4 weeks of radiation. Concerns about possible radiation burns. Does anyone have suggestions or ideas on the best way to handle this? My Dr gave me a list of lotions to use if I need to. Thank you!!
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Fulvestrant/Faslodex Missed Dose
Hello, The last time I had my shot of Fulvestrant/Faslodex was on 11/27/24. The shot date was going to be on Christmas Day, but the office isn't open on Christmas so they made the next dose scheduled for 12/30/24. Meanwhile, I got COVID on 12/20/24, so I canceled and rescheduled for 01/08/25. I rescheduled it again for…
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Question about Ivermectin.
I'm living in Ireland. My mother, 81 years old, who lives in Estonia, EU have a first stage of breast cancer. I'm looking for Ivermectin where I can buy it from Ireland, EU or US? Maybe someone knows and can help me? Also like to know the dosage, how to take it and how long? Thank you so much!
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Anastrazole
looking for people’s thoughts on anastrozole. Also thoughts on ivermectin/fenbendazole and is ivermectin/fenbendazole used only if you have cancer or can it be used for preventative purposes as well? Thoughts on soursop?thanks very Much.
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Anxiety and panic over third mammogram
I had a lumpectomy on April 27, 2022, triple negative, 22 treatments radiation. opted for no chemo. Margins clear and no lymph node involvement. Last 2 mammograms were clear. I know I am blessed. I just can't get over the anxiety and panic of my third mammogram this Thursday. Before my cancer I had some anxiety but now I…
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Hi! Newbie here! Just wanted share, a lil'
Nice group! I joined for information and to tell my strange story. Its been 2 Yrs later I feel like I'm still in the Twilight Zone, still waiting to wake up (that isn't going to happen.) still scratching my head. OK, in 2018 I felt two lumps on the very far right side of breast, Told doctor, went for a mammogram. They did…
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Anastrazole
I recently just received my second Lupron shot. Had dm on 11-5. 8 lymph nodes removed all tested negative. Cancer free as per my breast surgeon. Onco score was 26. Onco recommended chemo and/or estrogen blocker shots as my cancer was er positive. I opted out of chemo. Obviously if it was in my nodes I would’ve definitely…
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Blogging about Cancer
When I was battling stage 3 breast cancer, talking about it was tough, but I still wanted people to understand what I was going through. Since I’m more of a writer than a talker, I started a blog to process everything and keep others in the loop when I didn’t feel like speaking. I also found comfort in reading others'…
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Red light caps for hair regrowth
hi! Does anyone have experience with those hats/helmets/caps that use red light on the scalp to regrow hair after chemo treatments? Most of my hair did not come back after taxtotere chemo treatments (I’m six years out from treatment). If you found one that worked, please share brand! Thanks!!
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Hormone therapy
I was diagnosed with DCIS stage 0. Had lumpectomy in 2023 and 22 sessions of radiation after surgery. I had been on Anastrozole with horrible join aches then I was changed to Letrozole but I did not tolerate it as well. I am going to give my body 2 to 3 weeks off medication and try Tamoxifen 10mg. Any suggestions? Tips?…
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Scared after focal asymmetry found in mammogram and family history
So I had my first mammogram last year and it was normal. This year, I had another one and they found a 1.4cm focal asymmetry in the upper central breast, about 7cm from the nipple but no other suspicious findings at all. There's scattered fibrograndular density. I've read the chance of having cancer with that kind of…
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HER2 NEGATIVE
I have been diagnosed with HER2 Negative breast cancer. This is my second breast cancer diagnosis in 12 years. I stopped chemotherapy for a number of reasons. Is anyone trying any natural remedies to slow the progression of the cancer or kill it all together?
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What is the experience with oncologists' awareness of Vitamin D as a risk factor?
In addition how has been your experience of oncologists' awareness of ketosis (via intermittent fasting) as a way to slow tumor growth
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Alcohol
I was just diagnosed. I’m having surgery next week. I just went to my primary MD for the pre-op and she said I have to quit drinking because it would increase the chances of reoccurrence. I wouldn’t say I’m an alcoholic but there’s a lot of wine at book club, out to eat and various parties every week. What if I just cut…