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Follicular non Hodgkin's lymphoma
My 21 yr old nephew was just diagnosed today. He was told he needs to get an echocardiogram, bone biopsy and pet scan. Plus he needs to see a Dr. In a large town 2 hours away. My question, is there anyone on here with this diagnosis? Anyone who has been through these tests that could tell him what to expect? Someone he…
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Happy Happy New Year Belated And Wishing Everyone A Happy And Wonderful 2025
Hello everyone and I would like to wish everyone a wonderful New Year members and visitors alike on this forum. I am obviously a day late and a dollar short on this one but I am hoping to get a little Grace on this one. I was busy with a few things and the day slipped past me. I apologize. But the old saying is "Better…
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Should I book a vacation? Dad with stage 4 cancer
Hello, My dad was diagnosed with stage 4 gastric cancer in October 2023. It was very traumatizing at first has we were told he would have 6months to a year. It took a huge toll on us, specially me as he was estranged to me. Long story short we’ve gotten closer & I help him as much as I can. It bas been a year & 3 months…
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Autologous stem cell transplants
I'm set to have an autologous stem cell transplant next week. I finished six cycles of chemo and the chemo has beaten the cancer into remission. I have EATL lymphoma which is a T-cell lymphoma. I'd love to hear from anyone who has undergone the procedure. I don't really know what to expect other than the fact that the…
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Synovial Sarcoma in France
Hello I'm french I registered on this forum because in France there is no on Sarcomas My wife (36 old) was diagnosed in September 2022 with a grade 2 synovial sarcoma, she has a 9cm tumor in her calf The protocol is Chimio > Radiotherapy > Operation I wanted to know if other people have gone through this cancer, so I can…
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Adjuvant chemo for Synovial Sarcoma
Hello all, Im 29 and had a high grade large tumor (11cm) in my right thigh that was synovial sarcoma. I did 3 rounds of chemo (dox and fofs), then 5 weeks of radiation and then got the tumor removed. The chemo caused tissue death of the tumor and the radiation further reduced it. I’m now a couple months post surgery and…
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Synovial Sarcoma survivors wanted! Would love to hear stories!
Hello Survivors! My name is Scarlett, I am 19 years old and I live in San Diego, California. This is a long one, but I would really appreciate you reading it! Here is some background...last February I was diagnosed with synovial sarcoma. It was in my left forearm. I don't remember the approx. dimensions, but I remember…
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My nephew has high risk neuroblastoma
Hello everyone, My nephew who is 8 years old has been diagnosed with high risk neuroblastoma stage 4. He needs to start aggressive chemo and radiation treatment as soon as possible, but even with treatment, his prognosis is below 40% chances of survival. His parents are set against starting treatment, and are looking for…
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Question about Ivermectin.
I'm living in Ireland. My mother, 81 years old, who lives in Estonia, EU have a first stage of breast cancer. I'm looking for Ivermectin where I can buy it from Ireland, EU or US? Maybe someone knows and can help me? Also like to know the dosage, how to take it and how long? Thank you so much!
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Cruise ship affect
I completed chemo a couple of weeks ago, when I stand sometimes I feel like I just got off a boat. Is this normal?
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6 months post salvage surgery
most of you know my story for those of you that don’t was first diagnosed at age 57 glarson score 7 PSA 8.1 decided to do radiation not a good thing. The cancer was of Cribiform and apparently Cribform is radiation resistant don’t let anybody tell you different, .. 1 year ago PSA creeping up three straight test to 1.7 from…
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Kidney Cancer - possible nodules in lungs.
Hello All, My father had kidney removed due to a renal mass of size 11cm × 8.2cm, and waiting for biopsy report. Also found multiple lung nodules with small one being 3mm and bigger one to be 7mm. We have a query metastasis, but worrying about the report outcome. As if now doctor have prescribed for immunosuprresant, and…
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Referral to Oncology based on this PET…..
Hello! Sorry for the long post. I would just like some help sorting through this report. ( I am an RN- but don’t routinely have much clinical day to day experience in this area) I understand no-one here is able to give medical advice :) Just looking for some real life input to help our swirling thoughts right now. Quick…
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Rise in PSA
Pushing 79. Have been getting semi-annual PSA's. Until the last 18 months, PSA was "virtually undetectable". Then .04, .06 and this week .07, (sans the <). Not worried, but wondered if there was a formula or something that could predict where my PSA might be in two or three years.
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Did you have warning signs before being diagnosed or was it found incidentally?
I am a post-menopausal 52 y/o and a mass on my ovary was found incidentally when I was sent for a CT scan after a visit to urgent care for stomach pain. The pain ended up being diverticulitis, but a fibroid and mass showed up on the scan. They couldn't be sure it was a mass so went for an ultrasound and they still weren't…
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Husband just diagnosed with prostate cancer
Good afternoon, we just received the results from the biopsy, and I'm concerned for my husband. Gleason Score 7 (4+3) grade group 3, cores with cancer 8 (out of 12), prostate biopsies Adenocarcinoma, perineural invasion seen. PIRAD 5, PSA 9.5. Prostate measures 4.0 x 4.9 x 4.0 cm with volume of 41 cc. Large right…
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Peritoneal carcinomatosis
Hi, I have a dear friend who has just been diagnosed with Stage IV peritoneal carcinomatosis. The original cancer was ovarian but is now in the stomach lining. She has started chemo, consisting of a combo of carboplatin and Doxorubicin. Unfortunately the Doxo caused an instant allergic reaction, so they continued on with…
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Welcome long-term survivors!
Some of you who have been living with cancer for a number of years (in or out of treatment) have asked for a board dedicated to the discussion of long-term survivorship issues. I hope it is helpful. Best to all, Greta (Your CSN staff)
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sky high psa
New diagnosis of PC. 72yo and worried. Had Biopsy 4 areas 3+3, 2 areas 3+4 but psa >30. Not much info on patients with psa > 30. difficult to stage with that number. PET scan scheduled Really nervous . Any thoughts?
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Anastrazole
looking for people’s thoughts on anastrozole. Also thoughts on ivermectin/fenbendazole and is ivermectin/fenbendazole used only if you have cancer or can it be used for preventative purposes as well? Thoughts on soursop?thanks very Much.
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Anxiety and panic over third mammogram
I had a lumpectomy on April 27, 2022, triple negative, 22 treatments radiation. opted for no chemo. Margins clear and no lymph node involvement. Last 2 mammograms were clear. I know I am blessed. I just can't get over the anxiety and panic of my third mammogram this Thursday. Before my cancer I had some anxiety but now I…
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PSA now present first time 9 yrs after radical prostatectomy
Robotic prostatectomy in 2015; PSA 14, Gleason 4-3, no lymph or seminal vesicle involvement, clean PET scan. Serial blood tests every year no PSA detected. In 2023 PSA 0.1, this year 0.44. Haven't had urology consult yet. Looking for comments from others who had an uneventful course for years, then raising PSA. What…
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PSA after surgery interesting
From John Hopkins Study Explores AccuPSA Test During one study, Dr. Partin and his colleagues examined blood samples from 31 patients whose PSA level had been undetectable for at least five years after radical prostatectomy. All these patients had PSA levels less than 0.1 ng/ml after surgery. However, one third of them…
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Hi! Newbie here! Just wanted share, a lil'
Nice group! I joined for information and to tell my strange story. Its been 2 Yrs later I feel like I'm still in the Twilight Zone, still waiting to wake up (that isn't going to happen.) still scratching my head. OK, in 2018 I felt two lumps on the very far right side of breast, Told doctor, went for a mammogram. They did…
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Recurrence - Fistula
My mom is undergoing immunotherapy (keytruda) after radiation therapy for her brain metastasis due to recurrence of endometrial cancer last may. Today they found she have bowel fistula and samples have been sent for biopsy (doctor suspect its cancer). Have any one experienced fistula due to cancer progression? They…
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moms diagnosis process and peritoneal mets
hi there, my mom (53) is currently in the process of receiving a stage 4 crc diagnosis. its a little confusing and very scary right now but i want to share the story up until today, looking for advice. she went in for a ct scan about 3 weeks ago for abdominal pain, they located a 4.3cm mass on her colon and "extensive…
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Anastrazole
I recently just received my second Lupron shot. Had dm on 11-5. 8 lymph nodes removed all tested negative. Cancer free as per my breast surgeon. Onco score was 26. Onco recommended chemo and/or estrogen blocker shots as my cancer was er positive. I opted out of chemo. Obviously if it was in my nodes I would’ve definitely…
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My Battle with Ewing’s Sarcoma
I was diagnosed with metastatic Ewing’s Sarcoma at 18yo in 2022. The primary tumor was wrapped around my sciatic nerve in my upper left leg. It had also spread to my lungs. I had one month left of my senior year in high school and started treatment immediately. I underwent chemotherapy, proton bean radiation, surgery,…
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Great news
I went for my appointment and have some really good news to share all my scans and X-Ray came back clear. Doc said see you next year. Thank you to all those for your response and support. Best wishes to all And a very Happy Holidays
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Metastasis to Peritoneum
Has anyone had colon cancer that has metastasized to the peritoneum that can share some positive recovery experience with me? I started immunotherapy yesterday and know it can be effective but feeling a little down and could use to hear some stories of recovery.