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Pain in Jaw- 8 years after radiation treatment
Hi everyone, I had SCC in my left tonsil. I had surgery of tonsil and lymphnodes from righ side of my neck 2 camepositive for SCC and than had 70 Gy radiation treatment in 2016. I had severe osteoradionecrosis in my maxilla (uper jaw) started in 2018, two teeths came out on their own as the bone was not able to support…
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Sinus Area Cancer And Skull Base Surgery Information
Here is some information and links on sinus cancers and their types and treatments. AHNS Skull Base Surgery Section---Sinosal Patient Information INTRODUCTION Cancers of the nose and sinuses are a rare group of diseases that make up 3% of head and neck cancers and affect about 1-3 per 100,000 people per year. There a many…
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Side Effects from Medication Adjustment
I was diagnosed with papillary thyoid cancer in 2022, and had my thyroid removed in December of 2022. My TSH has been suppressed since my surgery, hovering around .03, for about a year. About 3 weeks ago, my levothyroxine dose has finally been decreased enough that my TSH is starting to rise a bit. My issue is that while…
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Stress and its affect on our immune system - hpv+
Approximately one year, or more, prior to my diagnosis, I experienced an extremely stressful time that lasted for some duration. I have always felt that this extraordinary stress was the trigger that started my whole ordeal. The doctors don't seem to want to engage in speculation as to the cause... other than asking about…
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Did your nodules hurt?
Id be really grateful for thoughts on this please. I'm awaiting surgery on a nodule that's suspicious for follicular cancer but obviously as we know, they can't be certain until its taken out. What i want to know is, has anyone had a painful nodule that can be really sore consistently (8 months now), radiating up behind…
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Leiomyosarcoma
Looking for people that have beat this rare cancer and what worked for treament etc. My sister is 30yrs old and had surgery to remove a large mass on her right ovary thinking it was ovarian cancer sarcoma. Pathology came back yesterday and it is leiomyosarcoma. She was able to keep her left ovary and uterus which seems odd…
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Leiomyosarcoma Surgeon
Hello Team, Can someone give me the information on surgeons that are crazy enough to do the surgery? Some doctors won't even try and I'm seeing ppl with tumors larger than a football having them removed. I need real surgeons' names, California preferably but I will go anywhere.
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Need advice
I am 71 years old. For the last 3 years my PSA fluctuates between 3.8 and 5. Last PSA was 4.9 in January 2024. On February 28 had mpMRI. The results are: IMPRESSION: Prostate hyperplasia PIRADS 2 - Low (clinically significant cancer is unlikely to be present). Nonspecific bilateral external iliac adenopathy (1.0 cm short…
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For those of you with Leukemia
I just wanted to survey and find out how old you all were at diagnosis and what were your labs like? WBC? neutrophils? anything else abnormal? I don't really have any symptoms but I am seeing a hematologist/oncologist at the moment and recently had some elveated labs which is unusual for me as I never get sick, not even a…
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supplements and AI
I am currently on anastrozole and have chose to use natural supplements to combat some of the side effects. I have shared with my oncologist my choice and he didn't express concern. I honestly don't know that he really heard me so I am going to follow up. My question is has anyone been told specifically not to take certain…
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Anastrozole and vision
Does Anastrozole cause eye floaters and vision problems , I feel like You take the anastrozole you won’t have cancer for five years but your bones are going to get week you could lose your teeth and it affects you eye sight now I may have to take fosamax
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Triple Negative Breast Cancer
I have recently been diagnosed with triple negative breast cancer-grade 3. I am presently waiting on a genetic test to come back and expect the results today or tomrorow. If my test is negative from what I understand I can choose to have a lumpectomy with six weeks of radiation or a mastectomy. Chemo was not discussed with…
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Bc
Hi I just wanted to see how people did with radiation. I just am 3 weeks post mastectomy. I will be starting at the end of the month. I was told it will be 5 wks since it was invasive. Left breast only. I have been told it's nothing like chemo but then heard or read that sometimes taste can go again. Also should I buy a…
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Essiac Tea
Has anyone heard about Essiac Tea and how it’s cured NHL …I was diagnosed in February for the third time with NHL …..well if you haven’t I’m cancer Free from taking it for the last couple months without chemotherapy
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Adrenal carcinoma cancer
Just wondering if anyone out here knows much about this cancer. I have been diagnosed, but I think I still have a chance at a good outcome.
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HELP
Good morning, someone knows where you can help me with this month's rent, we haven't asked for help anywhere, during the process, but our savings have already been exhausted 🙈thank you
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American Head & Neck Society - Self-Examination of Neck Lymph Nodes
Short Video and explanation of Lymph Node self-exam. If you feel anything unusual get to your ENT or doctor right away. American Head & Neck Society - Self-Examination of Neck Lymph Nodes Take care, God Bless Russ
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Caregiver-question about husband 8 weeks post radiation for tongue cancer
My husband is 8 weeks post radiation after having 37 treatments and 5 chemo treatments for a tumor on his tongue. He seems to be in more pain now than weeks ago. He is on a Fent. patch, gabapentin, and 30 ml of oxy every 4 hours. He has lost 65 pounds and currently does not have a feeding tube. He is very nauseated and…
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Radiation or no radiation
I just had my third surgery since May 2017. First surgery was to remove a liason on the floor of my mouth under my tongue. 2nd surgery (June 2018) was to remove my right neck lymph nodes. 3rd surgery (August 2018) was to remove my left neck lymph nodes. CT scan results were the reason for the right removal. Of 27 nodes…
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Small Renal Lesion - Very Nervous
49M. Had abdominal issues (likely unrelated) in October 2023. Abdominal/Pelvic CT w&w/o contrast showed 11mm (1.1cm) indeterminate renal lesion on right kidney. Follow up with Renal Ultrasound in December 2023 revealed no renal lesion (though US report stated it was limited study due to bowel gas). Going for MRI…
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ovarian cancer - overwhelmed
hi, my wife is presumably to have ovarian cancer. big belly, bloating and loss of appetite started about one month ago. Went to primary doc, then did an Ultrasound about 3 weeks ago, it showed 3cm pancreatic tumor and ascites. Scheduled for a CT scan the following week. Then her bloating/cough got much worse so we checked…
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Palliative care, Advance Directive, End of Life Options, Hospice
Warm hello to all, I'm new to this website. I was diagnosed with uterine papillary serous carcinoma (UPSC) stage 4B in 2017 (age 58). At the time, the statistics gave it 15% survival after 5 years. This statistic prompted me to almost immediately start to figure out what/how should I address things to start "wrapping up my…
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Encouraging words for you with peritoneal cancer
Hello, My name is Cindy Baker. In May of this year 2017 I was diaganosed with primary peritoneal cancer. Talk about being numb. You see, three years ago, I found out I was diaginosed with the BRAC II mutation. I had another relitive, cousin, and then his daughter die of cancer. In 1979 I had lost my oldest sister who was…
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Thoughts on Muse or Penile Injection
I was diagnosed with prostate cancer in the summer of 2022 at the age of 62 not because of symptoms but a doubling in PSA over a year. At the time of diagnosis I had a PSA of 3.8. Biopsy results came back with Gleason scores of 4+4 on both sides and scans showed a slightly enlarged prostate and a lesion with a PIRAD of 5…
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Incontinence fix – ATOMS, AUS or AdVance?
After my RP in 2015 and follow-up salvage RT in early 2016, I gradually became dry and life was sweet. A few years ago, due to complacency I began to slacken off with Kegels and became used to the idea of wearing a shield during the day while still being dry overnight. A little over a year ago, I hurt my back and it is if…
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High Suspicion of Malignancy
Hello, I am a young(er) survivor of childhood cancer (now 25 went into remission at 13). I previously had Ewing's Sarcoma in my right hip socket. For years I've had a high WBC count, and just recently am having it checked out. Via a CT an enlarged lymph node was found and via an ultrasound the results said there is a "high…
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Artificial sphincter
Hi. I had a prostatectomy in 2020. Earlier this year I had the Proact balloons for incontinence put in and it was a disaster. It took 4 months of poor Healthcare and pain before I got them removed. I'm currently going through 6 pads a day and use a clamp at times. Now I'm looking at getting the artificial sphincter. I…
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Helping my mom find a wig
Hi all! My mom has stage 4 lung cancer and had her first chemo treatment yesterday. I’m going down to see her in FL for her next treatment in March. She said she will probably lose her hair by then and wants to go wig shopping. I’ve heard there are places to go for free or discounted wigs. Does anyone know anything about…
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From the American Head & Neck Society - May is Skin Cancer Awareness Month
Hello, friends and fellow H&N folks. I have come across this reminder video that May is skin cancer month. Skin cancer mostly affects the head and neck because of the common exposure. Also recently I found something I had not known before and that is melanoma, a skin cancer that can invade the underlying body. I read a…
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Intamal Sarcoma
My husband was diagnosed with Intamal Sarcoma - which is a soft tissue sarcoma of the blood vessels surrounding the lungs, 2 years ago. This is a very rare form of sarcoma and I was wondering if there is anyone who knows about this kind of sarcoma or who unfortunaely is going through it. Plus, due to the radition and…