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Pain in the Butock
Hi lovely people newbie here 😀 I have been 3 years out for Gynae cancer and last week suddenly started to get aching butt pain with tenderness in my pelvic area. The butt ache is the same side my tumour was on, GP thinks it’s Sciatica and I’m due to have bloods taken. My cancer nurse is aware and will come back to me once…
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any stage 4 signet ring cell survivors out there
Would love to talk to someone who has this type of cancer, I am pretty scared of what I am reading and what my Dr says about this cancer. Feeling pretty lonely right now Pat
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Dad has Pancreatic adenocarcinoma stage 1b, and MDS
My Dad, 79yo has had Myelodysplastic Syndrome del 5q for a little under 2 years now. 3 weeks ago, he was diagnosed with stage 1b Pancreatic Adenocarcinoma. He cannot have chemo, but they did approve him to still have a Whipple Surgery. I am very concerned with the risk of cell spread during surgery. Does anyone have any…
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Searching this Site (with Examples)
The site redesign in December, 2021, included a number of welcome improvements in searching. You can now search for a combination of words such as "carboplatin and leg pain" and get results that include all three key words, unlike in the past when the system would only find items that matched the exact phrase. And you can…
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Newly diagnosed with endometrial cancer….
Hello! So, here I am on the journey no one wants to take. I’ve recently been diagnosed at the end of February 2024 with Endometrial Cancer. I’m 57 and had some spotting and bleeding, which led to a biopsy and the cancer diagnosis. Saw my ONC/GYN at the beginning of April, and just had my radical hysterectomy robotically…
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ovarian cancer symptoms
I apprecciate if someone who had suffered ovarian cancer can tell me what symptoms had experienced. Ginelle
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A long wait
I was diagnosed with stage 3 colon cancer in March and was supposed to start chemo a couple of weeks later. Wrong. Covid put me in the hospital for 21 days and then to a rehab center to fight a staff infection until 2 weeks ago Wed I came home. I have been ok to start chemo with a nurse, pt and ot coming to visit and…
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Great News!
I've been busy travelling for work, and haven't been on here, as much as I used to be. But, I had my regularly scheduled ENT visit, yesterday - and he scoped my nose again (I had NPG origin). He told me ALL CLEAR, and since I'm 5 years out, I no longer have to see him - as it is very unlikely it will return at this point!…
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Cancer - Motivational video [The V Foundation] Feat Jim Valvano
Cancer - Motivational video [The V Foundation] feat Jim Valvano I hope this video can help someone that is battling cancer. The V Foundation for Cancer Research was founded in 1993 by ESPN and the late Jim Valvano, legendary North Carolina State University basketball coach, and ESPN commentator. The V Foundation has funded…
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How many of you have colostomy due to cancer?
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Bilateral mastectomy with onco type 20
My name is Michele. Back in 2006 when I was 53, I was diagnosed with stage 1 aggressive cancer. Surgeon did a lumpectomy and 6 weeks of radiation. Took Tamoxifen for 10 years, and I’ve been clear for 17 years. Then Covid hit. My husband had pulmonary embolisms, so I took the vaccine to help protect him. Then, this past…
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After surgery
I had my prostate removed on May 16th a week later I had the Catherine out. I think I'm having a real problem with urinary control I'm doing the exercises which I know I should have started before surgery probably at least a month before surgery but didn't because I really didn't understand them. I think I'm gaining a…
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Hospital Choice
Newly diagnosed and live in northeast. Which hospitals did you receive treatment at?
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Newly diagnosed
4 year ago my husbands PSA started to go up..He's 69..From June of 2020 to November it went from7.6 to 11.3..Dr didn't order a biopsy. Finally in 2023 they did a biopsy..said there was no cancer. Recently his PSA hit 15.8. My husband was having trouble urinating and up all night. He asked his Dr about having an Aquablation…
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WHAT TO EXPECT | Throat Cancer | Radiation Treatment To Cure My Cancer | My Reactions Day 10-14
Throat cancer…once I was diagnosed I wanted to know more and found that YouTube didn’t have anyone documenting their journey. So I am going to do that in hopes it helps someone having to deal with this. NEGU (Never Ever Give Up) Take Care, God Bless Russ
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Robotic surgery problems arising from internal abdominal scar tissue
I have a recent diagnosis of prostate cancer, psa 5.74, Gleason 4+3=7, 2.2 cm in size, located in lower right half of prostate. Cribriform glands present, nerves not involved. I am 73 years old, active and otherwise healthy. Doctors have ruled out HIFU treatment, due to no safe margins near rectum. Options are proton beam…
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RHABDOMYOSARCOMA 1953 survivor
Diagnosed in 1953 just before my third birthday. The only treatment I received was surgery. My eye and eye lids were removed. From this point, I have had to deal with the disfigurement of my face. Great family support but once I entered school the trauma began. Diagnosed with PTSD as an adult after a car accident and the…
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Colorectal Cancer
My father was dx with colorectal cancer in 2019. He has gone through chemo, lonsurf in March 2024 which did not work. Was told only had weeks to months to live? Im scared!!
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very high PSA after major peripheral artery disease surgery for legs
Hi, I'm a 75 year old man. A week ago I had major surgery: A femoral endarterectomy for PAD. When I was discharged I was scheduled for my check up with my internist. I mistakenly asked for a PSA test. Since I'd been through so much I believe I should have waited. My PSA came out at 9.00. But on the other hand, I had a lot…
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Is it true that you have to get your silicone implants replaced every 10 years?
A woman in the bc support group was talking about the fact that she really hated having to exchange her silicone implants every 10 years. It is what her ps recommended. But, she said if they were saline, she wouldn't have to? Is this true? If you have silicone you have to have a surgery every 10 years? Leeza
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Caregiver financial help advice
Hello, my mom has been diagnosed with terminal lung cancer with spinal metastasis. She was denied Medicare bc she brings in a little over 1k a month, so that disqualified me for caregiver benefits. I have had to leave my job as I did not qualify for FMLA. I have become her caregiver 24/7. I have my own bills and no income…
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hubby waiting for a diagnosis? Incidentally found Multiple enlarged lymph nodes in abdomen
Hello to all, my husband (only 40 years old, normally super healthy, thin, eating organic, stopped smoking 10 years ago, but wasn’t smoking much anyway, had yearly blood check-ups…) had 2 months ago an MRI for an unrelated reason and it showed “enlarged mesenteric lymph nodes” in the stomach. of course he went to his GP…
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6 year checkup
Hello, everyone. Last Wed I had my 6 year checkup, and all is good. A week from Friday I'll have a CT neck scan done for no other reason than I haven't had one since finishing up with treatments. I still have a little dry mouth, but Act dry mouth lozenges as needed during the day, and one XyliMelt tab at night is all I…
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Input on Orgovyx + Zytiga
Hi All....I'm looking for info and advise from folks that have used Orgovyx + Zytiga. I'm probably going to be on it for about 48 weeks or so in the near term...as I await other treatments... Thank you, BD
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Tips for surgery and after?
Dear wonderful people on this discussion list, I so appreciate all the tips I have received so far! I am facing surgery this Friday--laparoscopic and robotic. I should go home the same day. I have every confidence in the surgical team and have been assured by a doctor friend that Kaiser here is the best for this kind of…
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Wife's pathology for endometrial cancer
My wife recently had a D and C because of some post menopausal bleeding which we assumed was because of the diet drug she is talking. Yes, the drug can trick the body into acting younger and having a menstrual period. After the D and C the doc said they removed a polyp as well. We were told the pathology came back…
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Husband has Prostate cancer and other symptoms
Hi all. My husband was diagnosed with PC two years ago with a gleason score 6 and PSA of 4.6. He is on active survelliance. He's only had 1 bisopsy done blind, no MRI. Could his cancer have metastasized with these numbers? His PSA is now at 5.7 and the Dr's aren't worried. But he's lost 25 pounds in the last 6 months, has…
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acute lymphoblastic leukemia
Thank you all for sharing your life stories. As a mother whose 6-year-old son has been diagnosed with ALL, I understand the need to be strong for him. It's natural to question why this happened, especially when we've been so careful. When my son asked me in the middle of the night if he has cancer, I was at a loss for…
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Cervical Cancer and Fatigue
I was diagnosed in April with cervical cancer. I've noticed that I get tried easily and now the past few days my body hurts. Today (5/9) I woke up and my whole body hurts. I'm normally very active and always on the go. I decided to run some errands yesterday and mow my front yard. I felt good till the afternoon when I…
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How is the Gleason score summed?
Hi everyone. I just received a diagnosis of prostate cancer and have a question about how the Gleason score is summed up. Is it the score of your worst biopsy core or the sum of ALL of your cancer-positive cores? For example, in my case I have 3 positive cores. 3 + 3 3 + 4 4 + 3 Would my overall Gleason score be 4 + 3 or 3…