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Kidney Cancer

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Scans stress me out
Do any of you get scanziety. I get very anxious for days before. To make it worse I got one recently with one small thing on it. My doc got another radiologist to read it and he came back with a few areas of concern. To of the tests came out fine for me but Monday I have a triple MRI checking for possible diffused bone…
I’m new here & so scared!!!
My name is Stephanie, I am a 44 year old wife & mother of 3 AMAZING boys…men, they are 25, 22 & 19. I have been married to my husband for 25 years, January 2, 2025 we will celebrate 26 years of marriage!!! My husband Bob, 46 years old was diagnosed in May of 2021 with stage VI renal cell carcinoma. They immediately removed…
New to the group
Hi Everyone, I was dx back in 2021 with stage 4 RCC. Had my right kidney removed. 4 days before going in to have a lung removed they found a small spread in my shoulder. My doc didn't want to put me threw another major surgery if it was spreading so we started Nibovia (sp?) Immunotherapy. Within 6 months the tumor in my…
Massive cramping in the incision area
Hello, Last Feb 2023, I had a nephrectomy (right kidney), cholecystectomy, and a colectomy, all in one go... right after the operation, it was excruciating to put weight on my right foot. I thought it was normal since the nephrectomy incision was on the right side. So many months after, I get camps (muscle knotting) on the…
Great news
I went for my appointment and have some really good news to share all my scans and X-Ray came back clear. Doc said see you next year. Thank you to all those for your response and support. Best wishes to all And a very Happy Holidays
8 years
Hello again! I had my scans yesterday and everything (kidney-wise) came back clear. Just click on my icon to view my history. They did see a little blip in my small intestine and will follow up with GI. I'm glad to see "Bay", "Donna", "Jazzgirl", "Lobbyist" and others still providing wisdom and support. Sorry, I've been…
Been awhile
I was diagnose with stage 3 in 2020 here in a couple of months I’ve been clear for five years th only bad news I got and it’s not so bad is I got to have scans for ten years but I’ve been lucky it’s have never come back I kinda just went on with my life didn’t change much but became closer to god he’s watch over me
Hypoechoic Kidney Lesion
Hi everyone, A little background info about myself, I’m 31 years old. I started having upper and mid right abdominal pain last October so I’ve been seeing a gastro fairly regularly to find a cause to my pain. A month ago, I went for ovary pain and my gyno requested an ultrasound. Lo and behold they found this lesion on my…
Ned 7 th year!
An update about our journey. Its been seven years since surgery. Did CT scan and results came clear. Ned since 7 years.Thank you all for positive vibes here.
My experience after having a Laparoscopic Partial Nephrectomy
I had my surgery 2weeks ago. This is what i experienced, Remember we are all different. On day one was stay was in hospital day 2 went home. Wow pain for the first few days was pretty ripe no laughing deep breathing coughing sneezing or yawning. My Shoulders hurt. Did not really eat the first few day slowly started to eat…
Happy
Cancer has touched my life in many ways. In 1980, I lost my mother to ovarian cancer when she was just 28 years old. Her death left a profound impact on me, and I’ve carried her memory with me throughout my life. This year, cancer struck closer to home than I ever imagined—this time, within my own body. On October 2, 2024,…
Feeling fortunate
I had been feeling extremely fatigued for the last year and my primary started doing lots of blood tests. Eventually it was noted that I had slightly elevated liver enzymes so a liver ultrasound was ordered. Turns out that mg liver was fine, but a large mass was seen on my right kidney. A CT scan the following week…
Complex Renal Cyst
Hello All, I found this board a couple months ago when my dad was suddenly diagnosed with a mass on his kidney the size of a baseball. He had a nephrectomy and has been doing well since (pathology was RCC). I have been working to take care of my own body to ensure that if he ever needed a kidney, I would have one to spare.…
Keytruda
keytruda and renal cancer, has anyone started on kektruda after surgery and if so how are you reacting to it?
Kidney scan
Hi All, It has been a while since i have been on the site, I am going for my 1 year scan/check up at the end of the month. I know it will be fine. I have healed welled no problems since my surgery.. Amazing how i haven't thought or had any fear until now the thought just eats at me was wondering if anyone goes through this…
New here and scared
Hello, my name is Kim and I was very recently diagnosed with stage 4 kidney cancer. I have a 12cm mass on my right kidney. I donated my left kidney to my sister back in 2003 (she’s still doing great!). They also found nodules on both lungs but they didn’t light up on the PET scan. I will be going for an educational class…
Diet confusion
I am having my kidney and adrenal gland-removed Dec. 5th because of 9cm cancerous mass. My estimated GFR is 37 Dr said not great but ok. But could go up after the one kidney is removed. My good kidney is smaller. My question is: what is the best reference for a diet. The internet is all over the spectrum I don’t trust it.…
please interpret my ct scan results
hello all, i'm a 50-year-old male and would appreciate it if someone could help interpret my ct scan results. thanks so much for your time and help. Impression 1. Indeterminate complex exophytic lesion in the lower pole of the right kidney. Recommend renal protocol MRI for further characterization. 2. Punctate calculus in…
Still confused about Creatinine and GFR
This is a quote from the National Kidney Foundation website in answer to a question from somebody whose creatinine level was 1.58: "A creatinine level of 1.58 may be normal after removal of one kidney, especially if you are over 50 years of age. Removing one kidney always results in a decrease in total kidney function and…
Biggest incision swells
hi all, Had a partial nephrectomy 10/23, RCC clear stage 2, feeling pretty good at almost 3 weeks post op, my concern in that my largest incision, one right below my left ribcage swells when I eat. I realize it’s right where my stomach and transverse colon is, could that be why? Should I be concerned? Anyone else have…
Translocation RCC
Hi all, My younger brother ( 33 yo) was recently diagnosed with a 20cm left kidney mass after having a cough for two months and then suddenly night sweats and weight loss in Sept 2024, underwent left open radical nephrectomy. The pathology report showed mixed cell types and spread to nearby lymph nodes. After 4 weeks…
Tumor is back
They found tumors on my left kidney in 2016 and performed a partial left nephrectomy. They’re back. Now they’re removing the entire kidney. My doctor hates me. They scheduled the procedure for March. I called once to ask if I could get an earlier date. I was worried it would spread. I went in to talk to my doctor in…
Stage 4 RCC that has metastasized
My 82yr old Mom was diagnosed with Stage 4 Kidney Cancer that has metastasized in her ribs, liver and spine. Prior to finding out she was living a normal lifestyle at her age and this has been quite a shock. By the time we were figured out what DR’s we need to see and all the tests we are now almost 4mo’s into this and so…
Cabometyx side effects
hi I’m new here. My husband has been living with RCC for seven years. He had kidney removed and at the time they found spots in his lungs. Spots were slow growing so for most of that time he has been symptom free. But over the last year cancer has spread to other areas and tumors in lungs are larger. He was put on Cabo…
Almost 6years RCC free, but my Dad has level 12 PSA BPH
Ok... I had CC RCC and open partial nephrectomy back In Jan of 2018. Found out I have MITF gene mutation which causes melanoma and RCC. I was dx at 32 yrs with 3.2 cm CC RCC on my Right kidney lower pole. Anyway, melanoma runs in my family along with lung, esophageal, pancreatic, ovarian, and other skin cancers. My Dad is…
Pt1b ccRCC in Nov 23 & (pre-existing) Thyroid nodule
My father underwent a partial nephrectomy last November. The pathology report showed a pT1b Fuhrmangrade II tumor, measuring 4.2 cm. Right after surgery, another CT scan of the abdomen and thorax was done (also before surgery; everything clear with just a small 4 mm lung nodule), and the radiologist noted a 15 mm hypodense…
Hello
In January of 2024 I was in an automobile accident. I had a broken back, and my tumor was an incidental find while they did an MRI on my right kidney, and was 1.25 CM. I had to heal from my broken back before beginning this journey. In my surgical evaluation in My, the tumor had grown to 4 CM. The plan was for a partial…
Strong in Faith yet still falling apart...
Falling apart but faith is strong. Having a hard time accepting the "5 year" survival rate diagnosis of my dear loved one, He was diagnosed with Kidney cancer and after removal of kidney tehy found at his next scan it has spread to his lungs (was found quickly) but already on both lungs. So far he just finished is 3rd…
Keytruda, ChRCC, pT3a, pNO(0/8), LO, V1, RO, two doctors, two opposing recommendations
Hi everyone, I need help making a decision. The tumourboards recommendation: one year Keytruda on account of my young age, size of tumour, a lack of studies showing no/negative impact of Keytruda on ChRCC and Keytruda being the only available adjuvant treatment. The oncologists recommendation: no therapy with Keytruda on…
Kidney confusion
So will they just do another scan in 6 months do you think? Thank you

Kidney Cancer

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