Kidney Cancer
Discussion List
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Some tips from CSN
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Kidney Cancer
My journey started mid-March. In a visit with my PC doctor I mentioned having a tender area in the left kidney area of my back. The ultrasound showed a 1x1 area that was possibly an angiomyolipoma in the upper pole of the left kidney and CT was recommended. CT was done with and without contrast…it showed a small (5mm) area…
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stage 3a RCC at 43
Good morning. I'm new here. Last November i had my right kidney removed due to an 8cm tumor which turned out to be RCC. i have approximately a 10 inch scar. the cancer hadn't spread to my lymph nodes just a tiny bit to some adjacent fat. i am on keytruda as a precaution for a year and already had my first ultrasound 5…
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renal cancer
On Dec. 19 I had a cancerous kidney removed and was given a clean bill. However, a followup CTScan revealed that the renal cancer had infected my lungs. The oncologist ordered a brain MRI which came out normal. I am now waiting for a decision from the doctor as to how we will proceed. Any comments from former or present…
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radical neph March 22. 2023
Good afternoon I felt like I had an obligation to sign up and post for this site helped me tremendously. I didn't have time to do it before surgery but now I am in the position to be thankful, grateful, and willing to help others. Here is my story and some tips for others> 62 years of age, history with uric acid stones…
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My husband was diagnosed with Wilms Cancer, it usually occurs in children, does anyone else have Wil
My husband of 38yrs old was diagnosed w/ Wilms cancer, it is usually found in kids and not in adults... does anyone else have this? He will be starting Chemotherapy next week, hopefully...
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Bone pain- advice sought
Hi there, I had a 1.3 cm chromophobe (eiosinophilic variant) tumor removed by robotic partial neph in early 2021. No sarcomatoid features or lymph node involvement. My scans have been NED and this year my doctor said that I didn't need to do anymore scans or followup because he said it definitely wasn't coming back. Do you…
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Pain and swelling after cryoablation on left kidney
I had a cryoablation on my left kidney on March 24, 2023. A day or two after the procedure I developed a swollen bulge on my left side which was very painful to touch. I also had numbness in that area. The doctor gave me some pain medicine and ordered a CT scan. CT didn't show any bleeding or anything that would be causing…
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Cancer returned
I was looking in the messages here for people I knew back when I first got my diagnosis back in 2012. I don't see a lot of familiar names. Not sure if that is a good sign or a bad sign. In 2012 I had my left kidney removed because of a massive tumor. At the time of of removal they told me that I was stage 3A. It was clear…
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I'm new
Hi, I'm new here. My name is Nancy and I am having my rt kidney out on May 3rd. Dx of 3 cm mass "consistent with renal cell carcinoma." The location is right by the blood supply so a partial is not feasible. I'm looking for camaraderie. All of the local groups meet only once a month, and I need contact with people who have…
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Newly discovered mass behind kidney
Hi - I'm new here. My wife's chest x-ray showed a mass on the back side of her kidney. We live in PA. She's scheduled for a biopsy this week. We don't know where to go - who to trust. WellSpan Ephrata Hospital is where she had the PETSCAN. Not sure if WllSpan Ephrata Cancer Clinic is the best place for her to be treated?…
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My mother had her Kidney Removed
My mother is 80 years old and with good health until after this surgery. The surgery was 4 weeks ago. Since the surgery she has been hospitalized twice and treated at the ER once for unbearable pain. The doctors confirmed everything is normal and no infection. Her doctor recommends extra strength tylenol. Which only works…
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Trace blood in urine
I was diagnosed with RCC, clear cell type, stage 1a, grade 3, in October, 2020, in my right kidney. My only symptom at the time was trace blood in my urine. I had a robotic partial nephrectomy and my CT scans since surgery have shown no evidence of disease. My last CT scan was in April, 2022 and at that time my urologic…
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Just saying HI!
I haven't been here for a while, but haven't forgotten you. I think I joined in 2010 or 11. In case you remember me, I was Dx'd with Stage 4 renal cell carcinoma in 2006, had surgery to remove R. Kidney, nodes underneath it (3 of 11 +), left lobe of my liver (with + tumor) , multiple biopsies of spots in the right lobe…
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Please Help Me Avoid Dr. Google - small kidney mass
Trying to avoid Dr. Google and understand the CT test results. I have a very small (9mm now, was 8mm on 9-17-2021) on my left kidney. The CT readings indicate "questionable approximately 8mm exophytic lesion, complex, not a cyst). Latest CT scan from 2023 indicates "grossly stable 9mm partially exophytic lesion with…
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56 Year Male Incidental Finding 3CM mass on left Kidney
CT scan showed a renal mass of 3CM on left kidney. I had a biopsy done and they confirmed it was Papillary Renal Cell Carcinoma. I don't have blood in urine; kidney function tests are good; no signs of spreading to lymph nodes or other organs. I am generally healthy with strong heart vitals and blood pressure etc..Doctors…
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Recovering after open radical nephrectomy
Tomorrow will be 3 weeks since I had my right kidney removed due to RCC. Pre-surgery I considered myself to be in relatively great physical shape. Now I’m tired after walking a short distance or even having a long conversation. If I bend over to pick something up I get light headed and I keep having this strange feeling…
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Tumor growth before surgery
Hello, although this is my first post, I've been reading all the posts here for a few months and am very happy to have found this wonderful group of people. In September 2022, a spot was found on my right kidney during an mri series for my MS. I had a CT scan in October which showed that the spot was a 1.0 cm tumor. My…
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Post recovery surgery
Thank you for everyone’s thoughts and prayers and comments. I had my surgery in 2/10 and went home by 2/12. I had the most horrific shoulder gas pain and I thought I was going to die from it., thankfully I made it alive, now I’m dealing with the incision pain and all of the sudden I am feeling kidney pain!! More to continue
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3.2cm Kidney Tumour
Hi, I'm a 29 year old male. For the past few months I have been getting pain in my stomach but especially my side and back. I was also struggling to urinate so went to doctors who done a urine test and gave me cocodomol/tramadol for the pain. My urine test came back normal he said so he referred me for an ultrasound for…
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2.5cm mass in kidney -- Ok to wait 6 months for check?
I'm in my 50's. I just had a check with a urologist. They did an x-ray and noticed a 2.5cm mass on one of my kidneys. He didn't seem concerned, and said he wanted to wait 6 months to do a dye check to get more information. If it is something, wouldn't it make more sense to check it sooner than later? Why wait 6 mos? He…
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First scans after immunotherapy
Hi just had CT scans after 4 treatments of ipi/nivo. I meet with the doctor on Thursday to discuss results. Need wisdom and hope for good results and how to go forward. Thanks for your support.
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Return of Mum's Kidney Cancer - Lung Mets
Hello Everyone, I'm just lost at sea a bit having received some news about my mum (70yr old in the UK) and need some advice. To summarise current status: - mum (70yrs) had CT scan and subsequent right kidney fully removed (adrenal gland not removed) in Nov 2018 and found to be grade II, pt3a, clear cell renal carcinoma at…
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ned
I had my three years scans and was ned one more 6 month. Scans. Then. Yearly
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On Pazopanib for 5 years with Stage 4 Renal Cancer
Hi to you all I was wondering if there are other people using Pazopanib for a longer time, my kidney with tumour was removed April 2011 and I was diagnosed stage 4 in December 2012. My oncologist used to ask me for feedback on my side effects to compare with other people in the USA who had been using the drug about 9…
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Scans coming up
I have my three year scan March 28 then April six I leave for England woo hoo will be there a month I’m not going to let this cancer win
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Does The CT scan w/Contrast Differ Vastly from the MRI?
56 year old man. Summer of 2021, while visiting my brother dying from colorectal cancer, I noticed a stream of blood after urination and stopped. Chalked it up to a possible bruise to kidney. Four months later happen again, briefly. As there was no pain, Thought I would bring it up to my GP next visit. Late 2022, I did.…
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Just had my 6.5 years scan and it is NED!
Can't believe it is another 6 months already. Just want to share that I just had my 6.5-year follow-up. It has been 2 years since my last CT, so I felt more nervous than the last few US/X-ray follow-ups. But it is worth it as it is a NED visit, although it always picks up other issues... Life is uncertain, I wish everyone…
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First week partial robotic had 3/07/23
hi im Jane today is the one week mark of the day I had robotic partial nephrectomy I can’t help but notice this yucky taste in my mouth. Has anybody experienced that? I go for post op appt. On the 20 th I’m 61. What is to be expected? Thank you
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My cytology says: Suspicious for high grade urothelial carcinoma
What does my cytology results mean by : Suspicious for high grade urothelial carcinoma?? I had a TCC in right kidney pelvis. The kidney was removed in Nov 2022. I am on Plavix so my urol doctor does not want to do a bladder scope yet. I am sheduled for a CT next month. All info is helpful. Thanks
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At The Beginning
All this came up really fast, man. In late November I saw the doc because I had a sore shoulder. She suggested a quick blood test since I was there anyway for the shoulder -- she had been keeping an eye on my creatinine levels (but they had not been terribly out of bounds). Fast forward one week, and I'm looking at an…
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