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Superthread (Read only) ~ contributed by Sweetblood22
Welcome new members! This is a read-only post that provides information about resources we, members of the head and neck cancer forum, found helpful as well as our answers to most frequently asked questions in our forum. Please feel free to send Skiffin16 a private message (PM) if you have something you think should be…
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Some tips from CSN
Welcome to the CSN! Below are some tips to help you get started following and posting on the boards. You can follow your preferred discussion board to get notifications of new topics and comments. To follow a board, navigate to your preferred board and then select the bell at the top, followed by your notification…
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Site Shutdown-Pictures of Members Do You Remember
I think this is the last batch unless I find some odds and ends… Sonja.K… sonyk728… staceya… Tekonta… thennies61… Tim6003… Tinadink… tommyodavey… TracyLynn 72… txpipeliner… Viilik70… WMC-Bill… Wolfen… And—Wolfen & Phrannie meet 2-22-15 Wolfen lost husband, then daughter Johneybegood 7-27-14… Johnnybegood Is FreeIn the wee…
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Site Shutdown-Old Pictures- Pictures
Here are a few more from the past times on here… pinquin yippie… PJ47… ratface… robswife87-Sandy… Here is an image of a ceiling fan with members names on it made up by civilmatt saying "Room For One More". Phrannie always used to joke around while waiting for the results of a scan saying she had scanxiety and was hanging…
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8 year follow-up concluded
It's hard to believe it's been 8 years since my diagnosis and treatment. But then, it's kind of hard to believe that I'll be turning 70 in a little over a week. Harder yet to believe is that this site will be shutting down at the end of the month. I haven't helped as I've not been very active for several years, but there…
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Site Shutdown-Old Pictures-A Few More Pictures
A few more members' pics as we get closer to the shutdown, so sad a time. Jim & I Apr. 2014… Joanielo… Johnnybegood… jtl… Kritter-Passed 2-28-16… Laryalyn… Lewis… Longtermsurvivor is MD-RIP 2-10-15 Anita Sandlin (Wagner) Dr. Dunlap was the precious man who saved my life a week after my 16th birthday. I came into the ER…
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Site Shutdown-Old Pictures-A Few More Folks
A few more from past times, do you remember any of them, please comment… We had our friendly admins…always helpful and did all they could to be sure the site ran smoothly and safely… I am not sure of the name of this admin… CSN_Hillary-Admin CSN_LauraE… And some more of the members-some are listed by their handle and…
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Site Shutdown-Old Pictures-Do You Recognize These Folks
As I said, I had some old pics from the years on this site. There was a lady by the handle of Wolfen. If I remember correctly, she lost her husband to cancer, then her daughter, and I believe she also passed from cancer. We have had many fine people go through here; some went on to live full and thankful lives, and we’ve…
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Site Shutdown-May 28, 2026-Hello CSN Members, Friends, Survivors-Final Words
Hello CSN members and friends. As you know, this forum is shutting down on May 28th 2026. I don’t know about you, but this is not good news in my opinion because it is a good place to get help and advice and look things up anytime, day or night. It was a huge help to me, especially during my first cancer, throat cancer,…
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Cancer came back in the ear
My ENT did a biopsy in my ear because of granulations near ear drum. The result came back positive. Seems like NPC from last year has extended to ear area. I have to go see the oncologist again. Don't feel like going through another radiation and chemo which most probably will be suggested by the onco. Don't know what to…
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Ear cancer
my dad was having a lot of ear infections and kept taking antibiotics drops and it would go away and then come back. The doctor finally decided to go open him up and clean the infection out. The tissue he took out was sent to the lab and it came back positive for cancer cells. This is what they diagnosed him with: Final…
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Thyroid Nodule 4 1/2 years post radiation. It never seems to stop.
I’m back! July 25, 2021 I was diagnosed with cancer at the base of my tongue. 31 radiation treatments took out the cancer. Of course I went thru all the after effects of the radiation, but things have been ok I guess though my main nutrition still come from smoothies. Been having a weird cramping sensation and some…
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Decision time - Treatment Plan for HPV + Squamous Cell Carcinoma.
Hi, I’m a 61 year old man in the UK with a 3 cm tumour in one of my lymph nodes on R/H side of neck. Biopsies confirm HPV+ (P16+) metastasis. Had both tonsils removed 3 weeks ago and other biopsies done during the surgery and all back clear. Surgeon said she could not see or feel anything abnormal. Also had MRI, CT and PET…
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Skiffin16 - Farewell to CSN
Not many of us around from back in the old days (years of 2009 to present). We've definitely lost a few along the way, but some of us are still kickin it, and doing well. Unfortunatley, I received an email that all of this history is going to be lost in a month or so as they're shutting down the forum. That sure is a hard…
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Thank you all for everything
Hi all I am based in Ireland and have been lurking on this site without posting since my tonsil cancer diagnosis back in 2021 aged 48. It was so useful in the dark old days of treatment when eating was such a struggle and my mouth was such a mess (God, you just forget, don't you?), and even since, from time to time as new…
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Sore throat return after 8 months?
anyone have a “sore when swallowing” throat appear many months after recovery from radiation and oral surgery? It coincided with a cold sore on my lip; 1st the flooor of my mouth was sore (or the sides of my tongue) as it was hard to tell. Then it moved to when swallowing only. Not sure if it’s tongue or throat. I’m two…
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I would like to chat with other Laryngectomy's ....... * not many of us out there *
Most times I feel so alone and have no one to talk to about being a total Laryngectomy .It would be nice to meet someone with same .I had vocalcord cancer and this June 9 will be my 1 yr surgery date .I have alot of anxiety attaches , which keep me homebound .I am single and use to be fairly active ...So if your out there…
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Cramps (?) on the right side of my neck 4 1/2 years post radiation for BOT Cancer
I’ve been having cramps (not sure if cramps is the right word) on the right side of my neck. If I turn my head a little down or up, it feels like a muscle cramping or locking up. I can move my head back and forth to relieve it but it’ll often ache for awhile afterwards. Sometimes while I’m at a doctor’s office it isn’t…
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Tim6003
Joined the Head & Neck Cancer Club in 2011. 15 years on, still kicking. Had a feeding tube placed in 2017, doing pretty much anything I want Just stopping in for nostalgia and to encourage all who are in this club to keep advocating for yourself, don't be shy to push for your care and what you need... and to remember,…
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TORS, radiation, and chemo—choices
TORS+ vs Radiation/Chemo I’ve been diagnosed with p16 (HPV)-positive oropharynx cancer, stage one (cT2N1M0 p16). I have one positive lymph node infected, a likely second positive node, and a questionable third node—all on the same side as my tumor which is at the base of my tongue. One option is the TORS route. I would…
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So God Made a Mother: A Beautiful Mother's Day Poem-Happy Mothers Day Everyone!
I have come across this wonderful poem to share Mother's day with each and every one of you today. God's Blessings to you all. At the dawn of time, God needed someone He could trust to love His precious children. And so, God made a mother. God said, “Life will often be harsh, so I need someone with a gentle touch. Someone…
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Happy Mothers Day Celebration And Blessings to Everyone
I would like to wish everyone a Wonderful and Blessed Mother's Day. Enjoy this day and celebrate mothers everywhere because we all have one, everybody does. Go visit, send cards, or phone Mom and tell her how much she means to you and how much you love her. And for those of us whose mom has passed on, bask in the memories…
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Teeth problems after radiation treatment
I have been reading on line about teeth pulling after radiation treatments and am scared to death about what I am reading!. I am 40 months out of radiation treatments. One of my teeth is now at the point of needing to be extracted. Prior to the radiation treatments I requested that I have my teeth pulled knowing that there…
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Dental Problems
I am having major dental problems three years post treatment for throat cancer. Already had several crowns and several fillings. Is it true that you have to have hyperbaric oxygen treatment before having teeth removed. Any dental help I can get will be appreciated. My teeth were not very good at beginning of radiation,…
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Chyle Leak Complication
my MIL went in on the 17th to have her Thyroid n some lymph nodes removed due to Cancer. During the surgery you Thoradic Duct got damaged and caused a Chyle Leak. They tried to go in and fix it and thought they did but it still was leaking. The just did a Third procedure that took 8 hrs and still did not fix it. Has…
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56 Year old post Neck Dissection Surgery
I am 8 weeks post surgery to remove the 5cm tumor from my throat. I have in the last 3 days been able to swallow water with little aspiration. But nothing else works yet. My neck and tracheotomy site are a source of endless pain. I eat and drink through a tube mostly. I also can not speak very good yet. I was a…
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free flap reconstruction of gums
Just wondering if anyone else has had free flap reconstruction in mouth. It doesn't seem to be too common and I really would love to discuss with someone who has been through this.
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11 Years Out From Stage III BOT
UPDATE: 1-13-22 Just dropping in to say hello to all my old warrior friends and to encourage all those just beginning or not so long out of the thick of it....there is light at the end! As I posted this tonight, I whispered a prayer under my breath for you all. I teied to put a few new pics on here, but forgive my lack of…
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Recovery from Right Tonsil Cancer
Today was my last chemo session (Cisplatin) and tomorrow is my last radiation treatment (2/4/26). I also had Stage 1 breast cancer in the beginning of 2025! When those radiation treatments ended I was so excited to ring the bell and be done. Now I feel everyone around me is disappointed that I'm not feeling celebratory,…
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The Untold Truth About Mental Health and Cancer
Welcome to our latest video where we delve into the complex and often overlooked relationship between mental health and cancer. Many individuals facing a cancer diagnosis also experience emotional and psychological challenges, which can affect their overall well-being and treatment outcomes. In this video, we explore the…
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Next Monday I get my pake put in my chest 14 days later I'll be starting chemo and radiation
Well I'm getting ready to start my chemotherapy and my radiation treatment on my throat yeah yeah I'm scared to death 5 weeks of chemo therapy and 5 weeks radiation it might not work we don't know they might have to go back in and do surgery or trying not to think about that
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Long term swallowing issues
Hi, Before I begin, I just want to offer some encouragement and hope to anyone recently diagnosed. It was my second cancer, the first being unrelated colorectal cancer. I began my NPC journey in 2011. I underwent both radiation and chemotherapy at MSKCC (highly recommended). But have been NED since. Recently, I have…