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Superthread (Read only) ~ contributed by Sweetblood22
Welcome new members! This is a read-only post that provides information about resources we, members of the head and neck cancer forum, found helpful as well as our answers to most frequently asked questions in our forum. Please feel free to send Skiffin16 a private message (PM) if you have something you think should be…
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Some tips from CSN
Welcome to the CSN! Below are some tips to help you get started following and posting on the boards. You can follow your preferred discussion board to get notifications of new topics and comments. To follow a board, navigate to your preferred board and then select the bell at the top, followed by your notification…
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Esthesioneuroblastoma; Olfsctory Neuroblaatoma
Hello everyone. I saw that it has a long time that no one post about Esthesioneuroblastoma; Olfsctory Neuroblaatoma here. Does anyone have more experience to share? I was diagnosed in may 2024. Had endoscopic surgery (not clear about clear margins) + 30 RT sessions. Kadish B Hyamis 3 no metastasis. Waiting for 1st MRI next…
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New lump on neck 14 years after treatment Hope its not recurrence Anyone with similar issue?
SCC Base of tongue HPV positive with lymph node involvement, finished treatment Xmas eve 2009 (Radiation, Cisplatin, modified neck dissection to remove mass that was still there- sent to pathology and test came back as dead cancer cells) Everything has been fine since then outside of usual recovery from treatment ,but…
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Low Grade MEC on hard palate
Hi there! I wanted to share my story and ask if someone had similar issue (I read a lot of comments from ekdennie here, I think your case is similar to mine and it would be great if you reply here 😊). I had a lump on my hard palate for about 1.5-2 years. It did not hurt, and it was as smooth as my hard palate, so I thought…
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mRNA vaccines
Much like how the COVID vaccine is based on mRNA there are VERY promising studies going on using mRNA vaccines to treat cancer. Here is just one link but there are many clinical trials going on with early promising results. This may be the next greatest discovery since immunotherapy for cancer treatment! mRNA Vaccine…
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Complex Regional Pain Syndrome 8 year after head and neck cancer treatment
Hi everyone, I am 8 years after tonsil cancer. About a year ago I started having occational face pain waking me up in the middle of yhe night. Then I lost sensation in my chin and lips on the right side. Pains become part of every day life. It is in my mouth, face,and gums. Burning, pins and needles, aches and stabing all…
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A cautionary tale on post-treatment - thyroid
It has now been six years since I was a regular on this forum. I came because I was Stage 3 HPV16 SCC on my tonsil. I did 35 IMRT and 5 carbo. For the last +5 years I have been clear, NED, and no longer see any Oncs. Taste returned, most saliva has returned, I now have to fight to keep weight off. This summer I was doing…
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Robotic surgery versus radiation outcomes
Interesting article about treatment option outcomes. I did not have surgery and was glad I didn't. This is a comparision on survival and symptoms after each treatment. https://www.curetoday.com/view/similar-survival-shown-with-radiation-versus-robotic-surgery-in-hnc
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Problems with teeth after radiation
I was just wondering if anyone could comment on their experiences with teeth issues after radiation. Has anyone been lucky enough NOT to have any teeth problems? If you have had problems, what kind were they? Any experiences with HBO and ORN? I still have all my teeth but will need some dental work soon and am concerned…
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Oral Complications of Radiation Therapy to the H&N Patient - Dr. James Hamilton
Here is a video for your perusal of Dr. Hamilton discussing and explaining the complications of radiation therapy. He covers quite the gamut of effects and complications. Very informative and well presented it is good to hear a presentation that affects us H&N folks by a professional from a professional perspective...Take…
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"I Happened On This Today And Thought Someone Might Be Interested In The Information And Videos."
I happened on this today and thought someone might be interested in the information and videos. Here is a short clip of his experience. Notice his sense of humor. https://odysee.com/@FrontlineCovid19CriticalCareAlliance:c/cancer-practical-solutions-paul-mann-FLCCC-2024:1…
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OSA (Obstructive Sleep Apnea)- Then and Now
A presentation of Sleep Apnea. Otolaryngology-Head & Neck Surgery at Stanford Medicine and Stanford School of Medicine. Take Care, God Bless Russ
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This is all new to us
My husband was just diagnosed with Squamous cell carcinoma of the throat. It's advanced and widespread around his larynx. The doctors had to perform surgery on him, they put in a trach, that was 2 weeks ago, Thursday the 5th. He came home on Thursday the 12th. And now the oral surgeon is talking about removing the benign…
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concerned I have sinus/nasal cancer. opinions suggestions?
Hello about 2 months ago I had an odd feeling, like the start of a cold in my left sinus area and a burning sensation( like a hot poker) in the left sinus the area behind my nose. dr.examined me, said sinuses were extermely swollen. he gave me a course of antibiotics, a week later I went back not much better.. another…
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Otology For The Head And Neck Cancer Patient
Mar 26, 2024 STANFORD UNIVERSITY by Lindsay Moore, MD This is a very informative talk on the hearing issues that can arise with head & neck cancer treatment. It is about Otology. What is the definition of Otology? See below… Otology is a branch of medicine that studies normal and pathological anatomy and physiology of the…
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Husband’s Taste After Radiation/Cisplatin 10/23
I recently posted about a scare we got from my husband’s new dental hygienist who thought he had another swollen lymph node on the opposite side of his neck from where he was diagnosed with left base of tongue and 2 nodes on the left last July 2023 with 7 weeks of radiation and 7 weekly Cisplatin chemos. Saw his Oncologist…
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Kidney function - terrified (again)
hi everyone. First off, I so appreciate your support over the past year as my husband’s diagnosis and treatment. He received fantastic report from his first pet scan after treatment at the end of June. Since then, he has steadily improved with his energy, taste and finally the pain when swallowing is subsiding.…
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Question About New Neck Lymph Node After Radiation/Chemo in 9/2023
Hi Russ and All, Only because I tend to be a little more pragmatic and intuitive instead of initially panicking, here I am again. My husband was diagnosed with Stage 1 base of tongue cancer (HPV+) in July 2023 (so a little over a year ago). He had 7 weeks of radiation to his left base of tongue and left 2 affected lymph…
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NavDx test
I am aware of for a lot of people NavDx test is a great help but unfortunately my husband has not been lucky enough to be one of them. He got diagnosed with HPV+ T2N1M0 squamous cell carcinoma(SCC) on his left tonsil in June 2023. He went through surgeries, 33 sessions of radiation plus 6 sessions of low dose cisplatin. He…
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NavDX positive test
Hello, I have HPV related head and neck cancer. I've had three surgeries....a biopsy, radical tonsillectomy and a full neck dissection. I'm currently undergoing radiation treatments. I was told after removing the tumor from my tonsil that the margins were good and the cancer was removed. I recently had a NavDX test done…
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TORS larynx surgery
I am a 74 yera old female. I was originally diagnosed in September 2023 with squamous cell carcinoma HPV positive +16 and had 6 cisplatin chemo treatments and 35 radiation treatments that ended on November 22, 2023. My CT scan in February, 2024 was good as was my pet scan in May, 2024. In August, 2024 my pet scan showed…
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Throat Cancer Advice From A Survivor-How to Swallow Liquids Without Choking or Coughing Aspiration
Do you cough and choke every time you try to swallow liquids? So did I! Here are a couple of tips to prevent it. Aspirating liquids into your lungs is dangerous, especially as we get older. Here is a simple way to prevent aspirating liquid into your lungs when drinking liquids, especially thin liquids like water. Take…
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Styes on eyelids
Any evidence of styes being a late effect of radiation for head and neck cancer? I completed my chemo and radiation in October 2020. I have trouble with dry mouth, but have been doing well. For the last several months I've had recurring styes on my eyes. Sometime upper lid and sometimes lower lids on both eyes. Just…
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Radiation for tongue cancer
My dad will be doing radiation for his tongue cancer and he and my mom are scared out of their mind. My mom is terribly afraid that my dad won't be able to eat anything at all, is this true? They are going to put in a feeding tube so he will be able to get nourishment but he still needs to be using his tongue so he won't…
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Joe Tippen Cancer Story-Recently Shared With Me-For Your Consideration
Joe Tippen's personal story of battling cancer. He was given 3 months to live. His story is certainly different let's say but when your life is in the balance that changes things. I am just going to leave a link to his blog covering the whole story and my friends you can draw your own conclusions. It is a worthwhile read.…
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Hello
IS anybody there?? Or is this another waste of time?
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cold hands, shaky right hand and tingling pain
Hello folks, I am a 15 year survivor of Stage 2 nasopharyngeal cancer diagnosed at age 40. I had concurrent cisplatin chemo along with 30 radiation course back in 2009. Still in remission thankfully. One issue, however, that's bothering me the most and getting worse year over year is cold intolerance, especially in the…
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Looking for psychologist or therapist Nashville Tn area
my wife has finished surgery, radiation and chemotherapy for jaw cancer. I am trying to find a counselor in my area who has experience with cancer survivors. Any recommendations would be greatly appreciated. Spring Hill, Columbia, Franklin Tennessee area
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taste buds after radiation
My radiation treatments were over last tuesday. Does anyone know how long it generally lakes to get tasts buds back? This id my first time on here.
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Liquid Biopsy in H&N Cancer: From Diagnosis to Survivorship: Dr C.Holsinger, MD, Head & Neck Surger
Hello everyone I think you will find this interesting. It is either similar to or including the NavDx test concept that has been discussed on here before. Stanford Otolaryngology — Head & Neck Surgery Liquid Biopsy in H&N Cancer: From Diagnosis to Survivorship: Dr C.Holsinger, MD, Head & Neck Surgery Take Care, God Bless…
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Glial Dysregulation and Cognitive Impairment Following Cancer Therapies
STANFORD UNIVERSITY by Michelle Monje, MD, PhD Take Care, God Bless Russ