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Superthread (Read only) ~ contributed by Sweetblood22
Welcome new members! This is a read-only post that provides information about resources we, members of the head and neck cancer forum, found helpful as well as our answers to most frequently asked questions in our forum. Please feel free to send Skiffin16 a private message (PM) if you have something you think should be…
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Some tips from CSN
Welcome to the CSN! Below are some tips to help you get started following and posting on the boards. You can follow your preferred discussion board to get notifications of new topics and comments. To follow a board, navigate to your preferred board and then select the bell at the top, followed by your notification…
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Ivermectin
Hi I'm in Northern Ireland and trying to find dosage for Ivermectin and Fenbendazole. Can anyone please point me in the right direction?
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NEED GUIDANCE AND SUPPORT
I am reaching out to you because I am a recent patient of P16. My radiologist stated my condition is worse than most. He expressed the average level of lymph nodes with P16 cancer infected if 5 to 8. I had 22 lymph nodes with cancer. This means my radiation treatment was 3x (according to them) more inserted = more precise…
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NavDX positive test
Hello, I have HPV related head and neck cancer. I've had three surgeries....a biopsy, radical tonsillectomy and a full neck dissection. I'm currently undergoing radiation treatments. I was told after removing the tumor from my tonsil that the margins were good and the cancer was removed. I recently had a NavDX test done…
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A new battle
We all know what going thru H&N tx is like- a 2-month battle that drags on as long afterwards. A thought occurred to me with where I'm at now, almost 13-1/2 years since my last Rad session: first there was the battle of going thru treatment, and now there's the battle of dealing with the long term side-effects of C…
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LARYNX CANCER
I am on Radiation Treatment for my Larynex Cancer .I took 11 treament and 22 more to go. I have great pain for swolling which was not before. Pain is unbarble.Doctor says you have to bare it.No medicaton prescribed. Is anybody have remady to deal with this throt pain .Even I feel difficulty in swolling water too!
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Happy Happy New Year Belated And Wishing Everyone A Happy And Wonderful 2025
Hello everyone and I would like to wish everyone a wonderful New Year members and visitors alike on this forum. I am obviously a day late and a dollar short on this one but I am hoping to get a little Grace on this one. I was busy with a few things and the day slipped past me. I apologize. But the old saying is "Better…
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Wishing Everyone A Blessed And Joyous Christmas 2024 And Great Hope For Tomorrow
Hello and Blessings to all on CSN and especially to our group in the H&N section Please feel free to leave your own well wishes and Christmas Blessings here, all are welcome. We are all in the same club here so cheers to everyone. Christmas time is one of the highlights of the year. It’s a time of gathering with family and…
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Orpheangeal Cancer due to HPV Virus
I have been in remission since July 2023. Cancer free do far. I am so worried about the Cancer coming back. Is there anyone out there had this Cancer? Did it come back?
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Learn About The Treatment Options Available To You-Sharing This From Local Support Group
Hello everyone. These Head and Neck Cancer handouts were given at our local cancer center support group. I would like to share it because I think it may be helpful. If you find the print a bit small you can increase the size of the print in your browser, I know with Firefox Browser if you push "ctrl +" on your keyboard it…
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SCC of the tongue.Almost finished with radiation.
Hello. This is my first time reaching out. I am 54 and was diagnosed with SCC of the tongue in mid August of this year. On September 9th, I had the pleasure of enduring a 12 hour surgery to remove about half of the left side of my tongue, removal of 34 lymph nodes, and reconstruction with a flap twice (first did not have…
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Any information about de-escalated adjuvant radiation therapy (DART)
This is a follow-on to an earlier topic that I started, but since this is focused on the de-escalated adjuvant radiation therapy (DART), I thought I would make this a new topic. I was diagnosed with early stage HPV+ cancer on my right tonsil. After conferring with my surgery, chemo and radiation doctors it was recommended…
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Tinnitus due to chemotherapy (cisplatin) and radiation to cure NPC
I had radiation and chemotherapy (Drug:cisplatin) in 2021 to treat my nasopharyngeal carcinoma. My treatment ended in Aug 2021. I had side effects that came with the treatment and had handle them well. However, recently (early Aug 2022), one year after the treatment, i suddenly develop tinnitus and it’s effecting me very…
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Has anyone had HPV+ TORS surgery without follow-up radiation?
I was diagnosed with early stage HPV+ cancer on my right tonsil. After conferring with my surgery, chemo and radiation doctors it was recommended to have TORS surgery. The surgery went well, and fortunately the lymph nodes that were removed tested negative. But now the radiation doctor is recommending 5 weeks of "clean up"…
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Follow up of stage 4a laryngeal cancer
hi! I am new to this site . I have a question regarding follow up care. My husband has stage 4A Supraglottic cancer. We had first 3 month appt with pet scan and scope yesterday and all looks good. At first the oncologist said fu care would be ct and scope every three months for a while . Then we saw ent and he said scope…
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Esthesioneuroblastoma; Olfsctory Neuroblaatoma
Hello everyone. I saw that it has a long time that no one post about Esthesioneuroblastoma; Olfsctory Neuroblaatoma here. Does anyone have more experience to share? I was diagnosed in may 2024. Had endoscopic surgery (not clear about clear margins) + 30 RT sessions. Kadish B Hyamis 3 no metastasis. Waiting for 1st MRI next…
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Squamous cell Carcinoma Recurrency Nasal cancer
I would like to meet p[eople having recurrence of SCC
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And so my Journey Begins . . .
My journey is about to begin so I figured I'd set it down and tell it as it goes. As it goes I will update and try to answer any questions. Symptoms: In June 2022 I had my yearly physical and my blood work came back as good so no indications of anything. Felt great. Started August with a sore throat and a full left sinus.…
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Wishing A Happy And Blessed Thanksgiving 2024 To Everyone-Please Add Your Greetings & Comments
Well, here we are, and another Thanksgiving has snuck up on us. Where did all the days go since the last one? They went so fast; it seems like only yesterday. Blessing to everyone. Wishing Everyone A Happy Thanksgiving 2024 For each new morning with its light, For rest and shelter of the night, For health and food, for…
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New lump on neck 14 years after treatment Hope its not recurrence Anyone with similar issue?
SCC Base of tongue HPV positive with lymph node involvement, finished treatment Xmas eve 2009 (Radiation, Cisplatin, modified neck dissection to remove mass that was still there- sent to pathology and test came back as dead cancer cells) Everything has been fine since then outside of usual recovery from treatment ,but…
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Low Grade MEC on hard palate
Hi there! I wanted to share my story and ask if someone had similar issue (I read a lot of comments from ekdennie here, I think your case is similar to mine and it would be great if you reply here 😊). I had a lump on my hard palate for about 1.5-2 years. It did not hurt, and it was as smooth as my hard palate, so I thought…
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mRNA vaccines
Much like how the COVID vaccine is based on mRNA there are VERY promising studies going on using mRNA vaccines to treat cancer. Here is just one link but there are many clinical trials going on with early promising results. This may be the next greatest discovery since immunotherapy for cancer treatment! mRNA Vaccine…
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Complex Regional Pain Syndrome 8 year after head and neck cancer treatment
Hi everyone, I am 8 years after tonsil cancer. About a year ago I started having occational face pain waking me up in the middle of yhe night. Then I lost sensation in my chin and lips on the right side. Pains become part of every day life. It is in my mouth, face,and gums. Burning, pins and needles, aches and stabing all…
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A cautionary tale on post-treatment - thyroid
It has now been six years since I was a regular on this forum. I came because I was Stage 3 HPV16 SCC on my tonsil. I did 35 IMRT and 5 carbo. For the last +5 years I have been clear, NED, and no longer see any Oncs. Taste returned, most saliva has returned, I now have to fight to keep weight off. This summer I was doing…
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Robotic surgery versus radiation outcomes
Interesting article about treatment option outcomes. I did not have surgery and was glad I didn't. This is a comparision on survival and symptoms after each treatment. https://www.curetoday.com/view/similar-survival-shown-with-radiation-versus-robotic-surgery-in-hnc
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Problems with teeth after radiation
I was just wondering if anyone could comment on their experiences with teeth issues after radiation. Has anyone been lucky enough NOT to have any teeth problems? If you have had problems, what kind were they? Any experiences with HBO and ORN? I still have all my teeth but will need some dental work soon and am concerned…
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Oral Complications of Radiation Therapy to the H&N Patient - Dr. James Hamilton
Here is a video for your perusal of Dr. Hamilton discussing and explaining the complications of radiation therapy. He covers quite the gamut of effects and complications. Very informative and well presented it is good to hear a presentation that affects us H&N folks by a professional from a professional perspective...Take…
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"I Happened On This Today And Thought Someone Might Be Interested In The Information And Videos."
I happened on this today and thought someone might be interested in the information and videos. Here is a short clip of his experience. Notice his sense of humor. https://odysee.com/@FrontlineCovid19CriticalCareAlliance:c/cancer-practical-solutions-paul-mann-FLCCC-2024:1…
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OSA (Obstructive Sleep Apnea)- Then and Now
A presentation of Sleep Apnea. Otolaryngology-Head & Neck Surgery at Stanford Medicine and Stanford School of Medicine. Take Care, God Bless Russ
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This is all new to us
My husband was just diagnosed with Squamous cell carcinoma of the throat. It's advanced and widespread around his larynx. The doctors had to perform surgery on him, they put in a trach, that was 2 weeks ago, Thursday the 5th. He came home on Thursday the 12th. And now the oral surgeon is talking about removing the benign…
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concerned I have sinus/nasal cancer. opinions suggestions?
Hello about 2 months ago I had an odd feeling, like the start of a cold in my left sinus area and a burning sensation( like a hot poker) in the left sinus the area behind my nose. dr.examined me, said sinuses were extermely swollen. he gave me a course of antibiotics, a week later I went back not much better.. another…