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Verzenio
Has anyone had experiene talking Verzenio?
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Stage 4c colon cancer
I’m new to this forum and looking for information regarding my daughter, now 41, who is 22 months into treatment for colon cancer that had metasticized to her ovaries, 8 of 38 lymph nodes, omentum and peritoneum. She had a successful cytoreductive surgery initially with colostomy, followed by 12 chemo treatments of…
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Rising ca125 recurrence?
My mom diagnosed with high grade serous ovarian cancer stage 3c in October 2021 and went through neoadjuvant chemo and surgery. Her ca125 levels are now at 30 compared to 5 three months back. Should we be concerned about relapse?
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64 yr old with stage IIIc serous ovarian cancer
Hi, My mother has been diagnosed with stage IIIc serous ovarian carcinoma, which has spread to the peritoneal cavity, nearby lymph nodes, spleen, and possibly the liver. We have started chemotherapy, and the doctors have recommended three cycles of chemo combined with Avastin. After evaluating her condition, they suggested…
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First Chemo maybe this will help others
I Went through my first chemo Sept 10th. I had my pre meds, taxol/carbo/keytruda. I did have a small reaction to taxol but I was ok after 30mins. The Infusion was easy but uncomfortable I got flushed, hot, light nausea, cramps. •Chemo every Tuesday •Steroids Monday through Thursday (Tuesday through IV) •Fluids every…
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When You Think Of Head & Neck Cancer Recovery, Think Of The Sloth
H&N Cancer Recovery is the Sloth of recovery. It's not the Jaguar of recovery it's the Sloth Sloths have an extremely low metabolic rate, which means they move at a languid, sluggish pace through the trees. On average, sloths travel 41 yards per day—less than half the length of a football field! And that is exactly what…
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Non-Ostomy... healing journey?
Hey there, new here trying to learn the Forum thang…and still navigating the Survivor thing- 3yrs clear of Cancer/ treatment. If you've not had an Ostomy, does anyone else deal with mucus/ moisture leaking throut the day, leaving you feeling damp? My sphincters are both (internal 0/ external 1/3) mostly gone & scar tissue…
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Cancer journeys
Reading someone else's post (don't ask for names, my chemo brain sucks) about how everyone's journey is different, that is true. I didn't get sick, not once. Was I lucky or were my Drs that good? I'd go with 50/50 Cancer, if you don't have it, you've heard about it, or you know someone who has it. Heard about it. If, like…
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Choices
Is anyone over 70, have alzeheimer's in family, and decide not to combat 3negative breast cancer? Not sure I want the battle and end up with alzeheimer's down the road. Dad had five sisters who had alzeheimer's end of life.
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Angry partner
I have been diagnosed with breast cancer for the second time. The first time I was told it will never come back but here I am 12 years later just had a double mastectomy at the time I had cancer on the left side and the right was being removed prophylactically. Come to find out the right has cancer too, was told it was…
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Radiation after single mastectomy
is it protocol to do radiation after single mastectomy ..asking fir a friend ..maybe he doesnt know the extent of the situation,it is his mother ..i knew he is wondering what is there to radiate if the breast was removed
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Stage spread to many parts of my body stage 4
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Encephalitis from cancer or meds?
I've just joined here. My husband has non-small cell lung cancer, diagnosed a year ago last month and staged at IV even though it's not metastasized. The targeted med he was on and/or the cancer itself have caused him a very rare auto-immune encephalitis called Bickerstaff brain stem encephalitis. They beat it last month…
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Endocrine disorders in Rhabdomyosarcoma patients
Hi! I am a childhood cancer survivor who was diagnosed at 4 months old. I am now in my 20s and have recently been diagnosed with Hashimoto’s disorder, which is an extreme type of hypothyroidism. I am messaging here to ask if anyone else has experienced this same path of diagnosis, as I know endocrine disorders are…
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No engery
Hello all. Thank you for reading my post. I was diagnosed with lung cancer a few months ago. Just had my last chemo last week. Any advice on how to keep my engery up. Seems to be impossible. Is that normal?
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MPNST Sarcoma
Im new to this. I would like some thoughts on mpnst sarcoma.
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Survivors where are you
I want to know how long everyone is surviving. I was formally diagnosed at 37, luckily with stage 1a. I had no symptoms and they found my cancer by mistake. I am now in remission for one year and I'm having these thoughts of how long will I live after this? I know there's no guarantee. But I'm curious of how long people…
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Newbie - trying to put it all together
Had a D&C and Hysteroscopy on Friday and awaiting results, I guess in a few more days. This procedure followed a biopsy that said I had endometrial atrophy. Endometrial thickening was 5 mm on ultrasound. I have a great gyn/onco. I’m concerned because I have also been having a work up with my Endocrinologist over the past…
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resmed airsense 10 and cancer
A couple of my doctors were talking with me about my cml diagnosis, till this day I try to figure how I caught it. The doctor in your office before you was a sleep apnea doctor I can’t remember his name but he did my test there and at the time they prescribed a resumed air sense 10machine It was between September and…
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Hearing Loss: How to Navigate This Side Effect of Cancer Treatments
Video covering hearing loss or compromised hearing after H&N treatment. Cancer treatments, such as chemotherapy, radiation therapy, and certain medications, can sometimes lead to hearing loss or other auditory complications. In this video, we will explore the causes, symptoms, and management strategies for hearing loss…
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Breast cancer and melanoma
diagnosed with breast cancer in march, had mastectomy with breast reconstruction in April. After complications and hospitalizations, I finally healed from open wound in August. On August 6th, I got the call I have melanoma. I recently this week had surgery to remove the tumor. Awaiting pathology report. I’m an emotional…
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Hypoechoic Lesion on Right Kidney
Hi everyone, A little background info about myself, I’m 31 years old. I started having upper and mid right abdominal pain last October so I’ve been seeing a gastro fairly regularly to find a cause to my pain. A month ago, I went for ovary pain and my gyno requested an ultrasound. Lo and behold they found this lesion on my…
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How long have you survived
I think this would encouraging for new and old members to read how long you have survived H&N c (cannot give it a capital) I am a 5 month survivor of Right tonsil c, with 1 lymph node involvement T1N1M0 Cheers Jen xxxxx
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Caregiver (lack of support int he communities + higher education)
I was a caregiver for my mom for about five years whilst she recovered from 2b lung cancer. It took four surgeries and about 6 months worth of really hard treatments. It completely changed her. I did everything from picking up to dropping off and not just the car ( i dont own one) In any event, my alumni suny albany like…
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Keytruda, ChRCC, pT3a, pNO(0/8), LO, V1, RO, two doctors, two opposing recommendations
Hi everyone, I need help making a decision. The tumourboards recommendation: one year Keytruda on account of my young age, size of tumour, a lack of studies showing no/negative impact of Keytruda on ChRCC and Keytruda being the only available adjuvant treatment. The oncologists recommendation: no therapy with Keytruda on…
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Kidney confusion
So will they just do another scan in 6 months do you think? Thank you
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Keytruda immunotherapy
Has anyone had experience with Keytruda infusions? My first infusion is this Friday. Any tips on what to bring/expect? My regimen is planned for every 3 weeks for a year currently.
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Stable scans but worrisome labs.
Long story short….originally stage iib colon cancer in May 2021. Resection and 4 rounds of Oxaliplatin and NED for 2 years. Now I have mets to liver and lungs. Liver resection, one lung surgery and then 5 rounds of Irenotecan/5FU but disease progressed. Now I'm 12 weeks into a trial drug. Scan at 8 weeks showed "stable"…
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Non chemo treatment
I am helping my 60 year old friend who has an inoperable tumor the size of a lime. It has not changed size in a year. He has done everything except chemo and radiation. Are we allowed to collaborate with others on here who are trying alternative approaches or will I get censored just for asking?
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September 2024 PSA
Well, it has been around 6.5 years since my RALP. My latest (09/03/2024) PSA results: <0.1ng/ml. To best of my knowledge that is still undetectable. I get tested once a year. I will be 74 years old this month. This is a journey for us. I am still continent. I still enjoy trying to catch my wife every once in a while, but…