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Kidney scan
Hi All, It has been a while since i have been on the site, I am going for my 1 year scan/check up at the end of the month. I know it will be fine. I have healed welled no problems since my surgery.. Amazing how i haven't thought or had any fear until now the thought just eats at me was wondering if anyone goes through this…
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1st post Prostatectomy PSA after sixty days
I just received my first PSA 2 months after my prostatectomy. It was .04. Is it normal so soon after the prostatectomy for it to be at that level and will it continue to fall more. What were others 1st PSA and subsequent one. Thanks Wheel
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Recently Diagnosed Husband
Hello, My husband was diagnosed with stomach cancer on July 10th. This diagnosis started with back pain in early June which progressively got worse over 12 days, when he went to the doctor the pain was initially diagnosed as kidney stones and he was to await a CT scan. The next day 6/16 he was in such extreme pain he could…
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Incontinence question
Four weeks post RARP today. I know there is no identical timeline, but just wondering at what point those of you who have been through this started noticing significant improvement in incontinence. I'm to the point now I'm good sitting down, even if I cough or sneeze most of the time. However when I stand it's pretty non…
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Wishing A Happy And Blessed Thanksgiving 2024 To Everyone-Please Add Your Greetings & Comments
Well, here we are, and another Thanksgiving has snuck up on us. Where did all the days go since the last one? They went so fast; it seems like only yesterday. Blessing to everyone. Wishing Everyone A Happy Thanksgiving 2024 For each new morning with its light, For rest and shelter of the night, For health and food, for…
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Recently Diagnosed and Adjusting
I was diagnosed with endometrial cancer on July 2nd. Had radical hysterectomy on July 18th. They thought it was going to be a simple day procedure but discovered that cancer had spread to a lymph node which they couldn’t removed because it was too close to a major blood vessel. I ended up staying a night in the hospital.…
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Agent Orange esophageal cancer
My husband had stage 4 esophageal cancer. He was a Vietnam veteran confirmed to be in agent orange spray zones. He also was VA disabled 70%. When he claimed the esophageal cancer he was turned down by the VA. I feel they let our Vietnam veterans down by denying this as an agent orange disability. He was physically sprayed…
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Pet scans
I’ve had two primary cancers, breast and now s4 lung cancer requiring quarterly ct or pet scans. After about a year of an area in my colon showing persistent focal uptake, my oncologist insisted I have a colonoscopy. Thankfully it was only an advanced precancer, 1.1 cm tubulovillious, fully resected, clear margins, but the…
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Treatment option in Mexico?
Does anyone know of a reputable place in Mexico where they perform nipple-sparing mastectomies with immediate, pre-pectoral reconstruction?
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New to this group.
Hi. I first got melanoma in 2016. Surgically removed from my lower leg and 3 more surgeries for new spots that popped up. Been on immunotherapy for 12 months. Combo now of OPDIVO and Yervoy. Side effects are not too bad. Had big problems with pills prescribed before. My last surgery was in October 2021. I ask myself if I…
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Gallbladder Cancer 2023 (All Stages)
(I've started this topic because the most recent annual forum I could find was for 2018.) I have gallbladder cancer, discovered during what was anticipated to be a routine laparoscopic removal of my gallbladder, based on the presence of gallstones. As is the case in "Western" countries, gallbladder cancer is most…
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Gallbladder cancer stage IV with liver metastasis
My mom, who is 66, was diagnosed with stage IV GBC. Two oncologists stated that an operation is not feasible at this time. She is on Gemzar and Cisplatin (2 weeks on and 1 week off). A few questions for the board... At what point during treatment was a follow up CT scan done? How long did treatment last? Was surgery ever…
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Gallbladder Cancer Stage 4
Hi, A week ago my mom was diagnosed with gallbladder cancer stage 4. I am looking for survivors. Anyone who knows a survivor. I know the statistics, the doctor has already given us a time frame, and the oncologist has told us to go for "quality of life". If there are any survivors or if you are having successful treatments…
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Gallbladder cancer that metastasized to liver & Abdomen
Hello, My 73 year old mom had lung cancer in 2019, they did a resection and she went into remission. We found out in August she has gallbladder cancer that metastasized to her liver, abdomen and lymph node. They told her it is palliative care at this point and she started Chemo & immunotherapy to shrink the tumors. She…
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anyone heard of this person?
Has anyone ever heard of a Dr. Mark Stengler? Is he for real or another scamer? Thoughts anyone?
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Chemo & Prostate Cancer-Any experience?
my cancer has spilled outside of my prostate to my lymph nodes. I have gone to chemotherapy and and have gone from one chemo to taxotere. It appears that the cancer is growing. Does any one have anyone have any experience with chemo and prostate cancer?
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Recovery from Lower Anterior Resection?
I’m scheduled for a lower anterior resection for my stage 3 rectal cancer. I’ve had 6 rounds of FolFurinox and six weeks of 5fu and radiation. I’m 46 and still working full time. I would like to hear from anyone who has had the LAR and what the surgery recovery is like? When were you able to return to work? Any helpful…
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My 84 yo mother was diagnosised with stage 3 breast cancer what options
She was just diagnosis with stage 3 in her left breast along with 2 lymph nodes. She has calcification lumps in the right. Biopsy is scheduled next Thurs. So we don't know what kind she has. She fears dementia more than anything so I'm thinking she should not get radiation or chemo. My brain is all over the place. She's…
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Interested in speaking to people have had the prostectomy and post op Hormone therapy and radiation
I'm 54 years old. Diagnosed at 52. Had the prostectomy in July 2022. Only to find out ther was still cancer present. 0.22 PSA, followed up treatment with hormone therapy and radiation. Radiation ended in January 2023. My last hormone injection was February of 2024. Looking to connect with people have had the same path.
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Rhabdomyosarcoma survivors
Hello, I'm 22 year old rhabdo survivor (embryonal). Looking to see how many of us there are and to connect!
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PTC recurrence?
I had a ultrasound today and it is showing this: LYMPH NODES: Right level 3 node measures 1.6 x 0.3 x 0.9 cm. A left level 2 node measures 2.7 x 0.5 x 1.1 cm. None of my other past scans say this. It’s also recommending an iodine scan. I haven’t had one in 10 years. This is just the radiology report and all my drs are out…
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Follicular lymphoma transformation experience
Hi all, I am posting this as a response to a request in a different thread instead of hijackin that one. The request was for me to share my experience with transformed FL and treatment etc. Some bullet points for background knowledge: Male, 56 Lives in Denmark Kidney cancer survivor since 2010 Diagnosed with FL in 2019.…
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Lumpectomy Recovery
Hi. I had a lumpectomy on my right breast with some lymph nodes removed on Friday. They did put in a drain as well. I did not handle the anesthesia well. I woke up dizzy, nauseous and threw up all the way home. Three days later, while im not in pain, I am still woozy and get faint by mid day. I feel the best in the morning…
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Triple Negative Breast Cancer
I was diagnosed with a more rare form of breast cancer called "triple negative" which means my cancer is not fed by hormones therefore the only treatment recommended is chemo. I have already had a bilateral mastectomy and all my scans came back clear and my genetic test was negative. I thought with surgery and scans clear…
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Radiation+Lupron: wicked one-two punch
PCa diagnosed 9/2015, LRRP performed 11/2015 at MD Anderson in Houston (the mothership). 50+ lymph nodes removed, with three having cancerous cells. Post-op PSA <.1. Incontinent for about 1 year but then bone dry. Sep 2019 PSA increased to .2. In Feb 2020 doctor referred me to Radiology, where I underwent one year of…
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Dendritic Cell Therapy
Hi. My father has stage 4 high grade urothelial carcinoma with lung metastasis. He had a radical cystectomy in 2013. He also has only 1 functioning kidney. In 2016 we detected a tumor in his lung along with a few small nodes with SUV uptake. He underwent 6 cycles of chemotherapy, which he completed in end of August. The…
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Appointment wait time
My name is Retha and i have a question. My husband recently had an MRI and was told he had 2 lesions with PI RADs of 4 on each and that they needed to be biopsied. That was on the 7th of October, its now the 1rst of November and we haven't heard from anyone about an appointment for the biopsies, is this normal .
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Leg/Hip weakness/stiffness
I am 15 year post anal cancer. The last few years I have been experiencing leg and hip weakness so bad that I can' get up off the floor when I get down to get something out of the cabinets or cleaning the floors. Has anyone experienced or experiencing this also. I really think it's from treatments, I had both chemo and…
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Recurrence Anxiety
Hello. My name is Jeff and I was diagnosed with Rhabdomyosarcomo at age 9. I underwent a little over a year of chemo and a short stint of radiation therapy. I've been cancer free ever since. I am now a husband and a father to 3 beautiful little kids. When I think about how well my treatment went and how trivial the long…
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Diet confusion
I am having my kidney and adrenal gland-removed Dec. 5th because of 9cm cancerous mass. My estimated GFR is 37 Dr said not great but ok. But could go up after the one kidney is removed. My good kidney is smaller. My question is: what is the best reference for a diet. The internet is all over the spectrum I don’t trust it.…