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BMT unsuccessful
I was diagnosed with AML in May 2024 just before my 26th birthday. After 3 rounds of chemo and a bone marrow transplant in October, we were notified 2 days before Christmas that I had relapsed. I currently am being treated for gvhd as well and if they are able to get that under control I may need to go to MD Anderson in…
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BAM Bile Acid Malabsorption from Revlimid (lenalidomide)
Aloha.... I was in the Accent clinical trial for multiple myeloma, which was a four cocktail (DKRD) or Daratumamab (Darzalex); Carfilzomib (Krypolis), Lenalidomide (Revlimid), and Dexamethasone (steroid). This was 24 month clinical trial and about 8 months in I started having #2 (bowel movement) issues. I developed Bile…
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Just Diagnosed Advanced Nodular lymphocyte predominant Hodgkin's lymphoma (NLPHL)
Hello, I am really happy I found this site. After being sick for 3 1/2 years, I had a myph biopsy and was diagnosed with SUSPICIOUS for Nodular lymphocyte predominant Hodgkin's lymphoma (NLPHL). The doctor says he contacted the pathologist and Stanford Medical to confirm. He says I most likely have had it a long time…
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Mohs on nose horrific
I had a very small spot on the tip of my nose that kept bleeding, so I had it tested and it was squamous. (This is my third, the others were on my wrist and hand.) I just had mohs yesterday and I left in shock. What I thought would be a small removal turned into 12 stitches from the tip of my nose up to the bridge in a…
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FOLFOX -- Symptoms seem to get worse
Hello! I hope everyone is doing wonderful today. My Dad is having a really difficult time with his chemo treatments. As time goes on, it seems that each treatment effects him worse than the one before. Luckily, he only has four more to go. What has your experience been? Any encouragement is appreciated. Hugs and Prayers to…
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ovarian 3c 17 yrs. NED
This is my first post. I just want anyone who needs it to know that I was first diagnosed 3c in June 2007, had 13 hours surgery followed by 5 rounds interperitoneal (couldn't take the sixth) & 6 rounds IV, carbo, cis, & taxol. I was 54. Recurred in 2008, surgery again, then 6 rounds gemcitabene. Recurred in 2011, surgery…
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Thank you all
Thanks tom all of the men on here who went through some type of treatment and who are always here to share their views and to share their opinions. Recently, my older brother is having an issue unfortunately with his pancreas he’s going in for a biopsy on February 11. I posted, asking dor some advice in the pancreatic…
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Has anybody took Zejula Chemo pills for maintenance.
Has any one taken this for maintenance from recurrence of Ovarian Cancer? If so can you tell me about your side effects? I am having back pain, joint pain in my hip and knee, and nausea. Just wondering is this anything to be concerned about...my doctor says that unfortunately that is the side effects and that’s way he gave…
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NEED GUIDANCE AND SUPPORT
I am reaching out to you because I am a recent patient of P16. My radiologist stated my condition is worse than most. He expressed the average level of lymph nodes with P16 cancer infected if 5 to 8. I had 22 lymph nodes with cancer. This means my radiation treatment was 3x (according to them) more inserted = more precise…
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Perneal pain pre-erection, post orgasm
Diagnosed with prostate CA in November 2024. PSA over the past 2 years were 4.49, 5.12, 5.8. Diagnosed with stage 1 after biopsy. Will complete rad therapy next week. Mild symptoms thus far…urinary retention, burning with urination. My primary concern is severe pain 6/10 after ejaculation. Ibuprofen 800 mg helps with…
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HELP
i came here seeking help, but i feel like i'm not getting it. i've seen other people share their test results and get great feedback, yet when i tried to do the same, i was denied help. then, i tried explaining my situation and asking for guidance, but i still didn't get the support i needed. it feels unfair, man!
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Dry sinesus
The latest symptom from chemo is dry nasal passages. Not sure if it the change in weather or the heater that kicks up at night. This is new for me as I have never had this problem before. Has anyone ever had this happen? If so, what did you do for the problem. Any suggestions would be appreciated. Thank you, in advance,…
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Recently diagnosed. What treatment?
Nodule happened to show on an MRI doctor ordered. CT scan, PT scan, interventional radiology biopsy done = upper right lobe cancer. Not metastatic, 1.a - 1.b. I've seen oncologist, radiation oncologist, thoracic surgeon. Luckily I live near a big hospital complex which includes a cancer center. 'Bout time for me to decide…
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Penis Rehab after Prostatectomy
The most recent posts I could find on this topic are ten-plus years old, so I thought I’d start a new thread. I am 6 weeks post-surgery. Fortunately, incontinence has been minimal. “Penis Rehabilitation “ (I know, I thought it was a hilarious term, too, but it’s quite serious) was recommended for sexual health. A penis…
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Recently diagnosed of bladder cancer
Hello everyone. I am 46 and was recently diagnosed of bladder cancer of low grade when I found a voided cauliflower looking tissue in my urine and submitted it for histological appraisal. Following TURBT the second histology shows non-invasive high grade but could provide staging due to absence of muscle tissue in the…
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Long-time Ned since recurrence
hello everyone! I was diagnosed almost 6 years ago at 16yo with retroperitonial liposarcoma. Since then I have had surgeries , radiation and chemos for my recurrences. Luckily I have been responding to chemo from the start and I have been Ned for one year and then for another two. This disease seems chronic and creates…
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Information needed on Multiple Myeloma
My friend's Mother was Diagnosed with Mutiple Myeloma two months back, with 40% plasma cells & Mband was present in Serum protein electrophoresis report. Recently we have got the test done again & this time M Band was absent. Does this means that, Multiple myeloma is cured or should we go for Bone Marrow Biopsy test again?…
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COMFORT KIT FOR RADIATION AND CHEMO PILL
Hello Everyone. Was hoping to receive some responses to my 'Radiation for Brain Cancer' post. But I understand there are a multitude of questions and difficult to help everyone. In the meantime, can anyone suggest some things for a care package for my sister-in-law? I'm a cancer survivor myself, and I'm familiar with some…
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New here and scared
Hello, my name is Kim and I was very recently diagnosed with stage 4 kidney cancer. I have a 12cm mass on my right kidney. I donated my left kidney to my sister back in 2003 (she’s still doing great!). They also found nodules on both lungs but they didn’t light up on the PET scan. I will be going for an educational class…
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Help with medical expenses
looking for help making payments for medical bills
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support Groups
hi I live in Port Orange, Florida and I’m looking for an ovarian cancer support group. Does anyone know of any thanks ahead
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Name that cancer
I was reading another post and someone had "named" their cancer. At first I was a little taken aback, but then I thought that's kind of funny. They said "Harvey is gone and he's not coming back." I have Non-Hodgkin Lymphoma which I will be living with for a very long time, so I thought if I have to share my body with…
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Mammo callback for right breast micro calcifications-scared
Hello everyone. I am a 50 something year old who just had routine mammogram and got a call back last week for right breast calcifications. I am going in for a closer look 3-D mammography and ultrasound in 10 days. I read that micro calcifications can be normal with age , but sometimes can point to cancer. I read that if…
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Urgency incontinence
Has anyone else dealt with bladder issues during chemo? How did you manage it
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Pluvicto Therapy
Husband getting ready to receive Pluvicto Radiation Therapy and wondering what to expect during the three days of isolation. He cannot walk without walker and am worried how he can manage on his own for 3 days? He will receive meals and moral support. Has anyone been thru that? He is 84 yrs old and has mild dementia.
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Caregiver support needed
My name is Christy and my husband is Javier. Javier was diagnosed with adenosquamous carcinoma of the colon . The tumor grew outside his colon and was the size of a melon when it was removed. It was Stage IV. It is rare and aggressive. 3 weeks after surgery,the cancer has returned. We underwent radiation to the tumor on…
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New Member / First Post
Hello all, I'm 59 years old and just diagnosed with stage 2c, gleason 7, grade group 3 prostrate cancer. My last PSA test was 3.0 or 6.0, I say this because I've been taking 1mg Finasteride for many years to help stop hair thinning. They say you should double PSA even when only taking 1mg vs the standard 5mg for BPH. Out…
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how long does chemo keep the cancer stable typically?
My husband now 62 is in a clinical trial, which doesn't seem to be working after becoming castrate resistant. The next step is likely chemo, how long does this usually help? He has metastatic prostate cancer since 2019, metastatic to bladder, lungs and lymph nodes. Lung mets and lymph nodes in para-aortic area are growing…
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Parp Inhibitor
Any ovarian cancer ladies here on a Parp inhibitor? I thought I was finished with treatment and had the medicine for 3-5 years bomb dropped on me. I was so shocked I didn’t even write anything down. I was bummed the first week. Now I need knowledge! Me: ovarian cancer, 2a, hysterectomy & 6 rounds of chemotherapy…
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Pregnancy after Total Gastrectomy
Hello everyone, I'm wondering if anyone has experience with pregnancy after a total gastroscopy. We are planning to conceive soon. I would love to hear your experiences and the challenges you had during pregnancy, and what to expect, what to prepare for. Any advice would be very helpful.Thank you all very much.