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I Need Advice for My Child Recently Diagnosed with Leukemia
Hello everyone, This is my first post here, and I'm reaching out with a heavy heart. My beautiful 6-year-old daughter was just diagnosed with ALL (acute lymphoblastic leukemia). It's been a whirlwind of emotions, and our whole family is trying to find our footing. I'm hoping to connect with other parents who have walked…
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Statistics of PCa left untreated?
I've had no trouble finding statistics on survivability of various levels of PCa after treatment. They'll typically show percentages for 10 and 15 years. What I haven't seen is the equivalent stats for the various levels of PCa when left untreated. Or even statistics of various levels of untreated PCa metastasizing over 10…
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sky high psa
New diagnosis of PC. 72yo and worried. Had Biopsy 4 areas 3+3, 2 areas 3+4 but psa >30. Not much info on patients with psa > 30. difficult to stage with that number. PET scan scheduled Really nervous . Any thoughts?
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15 months post robotic prostatectomy and no erections
Hi, just looking for a bit of encouragement and to see how others may have done when erections post prostatectomy continue to be absent. I had surgery 15 months ago and my surgeon expected all nerves had been spared. I have been using a pump daily and did regiments of first tadalafil and then sildenafil. Both were maximum…
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Pain Management
My biopsy isn't until July 11th. When I was in the hospital because I needed a blood transfusion the doctor gave me pain medication. Now that I am home, I only get Tylenol every 6-8 hours. Sometimes it helps, but usually only dulls the pain. Now it doesn't even seem like the heating pad helps with the pain. Any suggestions…
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Update
I decided to start a new thread. I finally have some answers on treatment plan. cT3a, cN1, cM0, PSA: 29, Grade Group: 5 is the staging. It also says stage 4a. So, i take it these numbers are not good but it is regional. Pelvic lymph node involved. We are doing brachytherapy followed by 5 weeks of external beam radiation.…
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Head and Neck Cancer | Frequently Asked Questions
Head and neck cancer surgeon, Wayne Koch, answers frequently asked questions about head and neck cancers, including symptoms, risk factors, treatment and quality of life issues.. Learn more: http://www.hopkinsmedicine.org/otolar... Take Care, God Bless Russ
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Flowmax (Tamsulosin)
I'm currently taking 0.4 mg of Tamsulosin every 12 hours prescribed by my surgeon that performed a Focal IRE Nanoknife ablation 3 weeks ago. He wants me to do this for a month then cut back to once daily after that. I'm still peeing a bit of blood at onset of urine stream, but otherwise doing well during the day. At night…
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Here's my story
I'm 61. I was on active surveillance for two years. When my 3+4 turned to 4+3 and my PSA went to 10, they told me I was no longer a candidate for active surveillance. I had a prostatectomy in early March. I wore Depends for at least six weeks, most of the time with a pad inside the Depends and sometime even with toilet…
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Waiting on first PSA after salvage surgery
everybody knows my story. I just want to thank everybody here for the support… I will be finding out today. I got to admit him I’m a bit nervous… otherwise things have been going so so incontinence is pretty rough during the dayb... so I’m also been dealing with a month-long UTI looks like I got some type of restriction…
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Prostatectomy with an AUS (artificial urinary sphincter) in place
I have been diagnosed with prostate cancer. I will likely need radical prostatectomy surgery in the near future. I have an AUS (artificial urinary sphincter) already in place. Have any of you had this surgery with an AUS? Might such surgery result in damage to the AUS or its control reservoir, which is located in the…
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2024 --Is anyone currently treating for UPSC?
I'm starting chemotherapy January 8th, and not sure how many cycles -- perhaps only three. Since I just turned 82 and my hysterectomy showed no disease, it is questionable how much therapy I should get balanced against the toxicity of the chemotherapy. I had an exploratory hysteroscopy in October (as a result of spotting…
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Starting my own journey with Hodkin's Lymphoma
I'm a 56 year old male, diagnosed last month. I've had one chemo treatment so far, and (my first?) unexpected hospital stay as a result of dealing with the side effects. So much still for me to learn! Glad to meet everyone today!
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Hey Guys Remember One Of Our Alumni Who Graduated H&N University
I was going through some older bookmarks and sorting yesterday and came across one for Beagledad and the videos he made. Now almost 4 years ago. Head & Neck Cancer Hacks Take Care, God Bless Russ
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Post radical prostatectomy sex.
Six weeks ago, I had a radical prostatectomy due to prostate cancer. After my resent doctor's appointment (over the phone) he gave me the green light to have sex. My question is, what will it be like? Will having an orgasm be painful? Will getting and maintaining an erection be a problem? What consideration should I bestow…
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Diagnosed with grade 2 PC psa 2.7 Gleason 3+4
Hi updating and confirming PC, 7 out of 13 samples positive . Unfortunately looks like PC on both sides maybe ruling out any focal treatments. Today I start doctor visits for my treat options …My main concern are the LUTS that I am experiencing, LUTS similar to BPH.( tho my prostate is only 21cc and is small according to…
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New to group
I’m Nancy from Chicago. A 2cm solid mass was found on my kidney by CT scan, incidentally. During the past 6 months my creatine has increased to 1.3 and my GFR to 47 with trace protein in my urine. We were keeping an eye on it. I have a history of Hurtle Cell Carcinoma of the thyroid 5 years ago with my thyroid being…
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Lung Nodules after RCC
Hello - i had a 10 CM tumor removed in 2008 that was clear cell renal carcinoma, pathology put as grade 1. In 2021 i had a recurrence in my right solitary kidney of 2 tumors that were noted as grade 3. I have been doing my followup scans with NED but a recent CT for a pain i was having now shows a 6.5mm nodule in my lung…
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Prostate Cancer confirmed 2 years ago - is it normal to wait for cancer to spread?
Over two years ago I was diagnosed with prostate cancer with samples being tested and coming back positive. Since then my doctor is monitoring my PSA levels which seem sporatic … one day I will have an 8 and then upon retesting it drops down to a 4 …. overall my PSA has been slowly increasing but ignoring the sporatic…
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30 year childhood Leukemia cancer survivor
Hi, my name is Rebecca. I was diagnosed with ALL November 15, 1988. I was 12 and in 7th grade. I was treated at the Valerie Center in Summit, NJ. This year will be 30 years since my diagnosis and I'm doing pretty well . I'm looking to chat with fellow childhood cancer survivor and see how everyone is doing in their…
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Treatment
My husband was recently diagnosed with Muscle Invasive Bladder Cancer. He just started a new job less than two months before he got sick so no health insurance. He is 60 years old and is not able to do his job anymore. We did self pay for everything up to the TURBT and now he needs chemo and surgery. We have applied for…
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Just diagnosed
Hello all, TI have just been diagnosed with kidney cancer. My chest CT is on Friday. The following is the MRI results. My doctor said that it is clear cell cancer. KIDNEYS: There is a partially exophytic mass arising from the medial aspect of the upper pole of the left kidney and is well-circumscribed. It measures 4.3 x…
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Mastectomy
Hello: I had Invasive Ducto Carsinoma in 2012, HER2 +. Did 2 months of chemo, lumpectomy then radiation, they also removed 36 nodes. Cancer is back, 2024, same breast only it's HER2 triple negative. They want me to do 3 months of chemo, I've refused. I'm getting a mastectomy and removal of sentenial node on June 10th at…
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Love, Medicine and Miracles
Hey gang... I am reading this incredibly inspiring book by Dr. Bernie Siegel. I know we had mentioned him earlier in a different topic and a lot of you have probably heard of him before. He has written a number of books... but this particular book I'm reading -- Love, Medicine and Miracles (published in 1986) -- is a must…
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Ampullary Cancer stage4
Hello, Still in a bit of shock over here. Hubby went in for Whipple for adenocarcinoma at ampule of cater. Found it in his liver. Did a gastro-jujenostomy so he can keep food down and close him up. Surgeon called our (am being treated for stage 3 RCC) oncologist from the OR and they discussed chemo for 3-6 months then…
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ATM gene
When I had my genetic testing done they told me that I had the ATM gene and I was just wondering if anyone else has heard of this?
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Need Advise
My mom was diagnosed of ovarian cancer , we need help. Doctors in Summerlin hospital keep saying she is dying- we feel like it’s not right and humane. Please help us she is fighting, she is in icu right now. Her CA 125 is 1400 . We only went there to drain her asceitis from then on she got weak. She does her chemo at ucla…
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Stage 4 Signet Ring cell adenocarcinoma
Hi good night, I know this is a late post but I am petrified for my mom. She has been diagnosed with stage 4 signet ring cell adenocarcinoma since April of this year. She was completely healthy until she complained about pain in her stomach and not being able to eat much. Is there anyone with this prognosis out there? I am…
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WHAT TO EXPECT | Throat Cancer | Radiation Treatment To Cure My Cancer | My Reactions Day 15-18
A fellow from Certitude Roofing says: I have throat cancer…once I was diagnosed I wanted to know more and found that YouTube didn’t have anyone documenting their journey. So I am going to do that in hopes it helps someone having to deal with this. WHAT TO EXPECT | Throat Cancer | Radiation Treatment to Cure My Cancer | My…
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Thyroid cancer & Rai Treatment
I was 33 when I got diagnosed with thyroid cancer, had a full thyroid removal (2 masses)and had rai treatment after. The recovery from surgery went well but Rai treatment was hell. I want to know was this hell for anyone else??I was on the no iodine diet for a full month, my hormone level had to drop and then I was able to…