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Ovarian Cancer

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Has anybody took Zejula Chemo pills for maintenance.
Has any one taken this for maintenance from recurrence of Ovarian Cancer? If so can you tell me about your side effects? I am having back pain, joint pain in my hip and knee, and nausea. Just wondering is this anything to be concerned about...my doctor says that unfortunately that is the side effects and that’s way he gave…
CA-125 rose to 82
my wife (54 y.o.) was diagnosed with high grade stage 4 OC 09/2023, went thru 3 cycles of chemos (carbo/taxol) , had debulking surgery 12/2023, then another 3 cycles with last cycle in 02/24. She's been on maintenance since 02/2024 (Avastin every 3 weeks and daily pills of Lynparza.) Her CA-125 has been rising every month,…
Could someone please help me read my daughter's MRI results?
Hello! Could someone please help me read my daughter's MRI results? Impression: 1. Exophytic left ovarian cystic lesion with thin internal septations, suspicious for cystic ovarian neoplasm. 2. Small left ovarian cystic lesion with thin internal septations, correlate not detected on prior ultrasound exams, MR appearance…
Insurance Question
I live in PA and I was just diagnosed with Ovarian Cancer. I have my health insurance through IBX directly. It will be open enrollment soon for the affordable care act. Does anyone know if i can get a new plan during open enrollment with a pre existing cancer diagnoses?
14 Years NED
It's been 15 years since my diagnosis of stage 3c papillary, serous adenocarcinoma of the ovary. 15 years since my suboptimal debulking (tumors left in lymph nodes, on my bowel and on my liver that could not be removed). 15 years since I developed ascites so chronically and severely that I had to have it drained every 3…
Diagnosed with 3.5 cm ovarian endo, CEA and CA125 normal. Should I get a laparoscopy or watch and wa
I have a 3 month follow up U/S in 3 days since I opted for the watch and wait scenario rather than surgery since the OBGYN I dealt with told me she thinks the chance of cancer is low. I told her my aunt died of OC but that didn't change her mind. I asked a couple of times to get the CA125 test but was told they wouldn't do…
Gatorade on Doxil/carboplatin
If you folks have had this happen how did you go... my wife's ovarian cancer has reemerged... She has had her first round of Doxil/carboplatin and now she is saying that using distilled water for proper hydration is a problem become it is starting to taste bad... We are going to try apple juice but I was wondering if…
Six weeks post chemo: Hair report
Just a hair report for future chemo grads ;) Ok..I have about 1/4 of inch of fuzz all over my head. It's white and soft, but I can feel stubble that is also growing in that I think is darker. It appears to growing in at a consistent length, so I guess that's good. Although, I have noticed about a dozen hairs that are…
After Chemo
Monday was the sixth cycle of chemo for me- the last one. We have a follow-up plan for the next five years, at which time, I guess if I am still cancer-free, we can call it remission. For those of you who have been in this place, in remission, on surveillance, how do you not worry every day that it will come back? I…
What diagnostic tests did you have done?
I had my vaginal ultrasound on Friday, waiting on the results. I am 70 yo, had a CT scan 1 week ago for another issue and they discovered that the 3.0 cyst on my ovary had grown to 3.6 in size. During the ultrasound, the technician measured the cyst and told me it had shrunk to 3.2. No history of ovarian cancer in my…
Meeting with doctor today
For the past 3 years I've been suffering from pelvic floor issues including constipation, bloating and lower back pain. Have had several pelvic CT scans since 2021 and nothing showed up until 2 months ago: a lesion/cyst in the left adnexa (3 cm). Yesterday I had another CT scan and it's now 3.7 My previous gynecological…
How to deal with shock of diagnosis
I’m newly diagnosed with advanced uterine and ovarian cancer. I had a full hysterectomy but there is some small nodules of cancer left. I’ll have to do 6 rounds of chemo. I can deal with a go-forward treatment. I don’t know how to reconcile that I feel good, but apparently my body is sick. How do you deal with the fear and…
Rising ca125 recurrence?
My mom diagnosed with high grade serous ovarian cancer stage 3c in October 2021 and went through neoadjuvant chemo and surgery. Her ca125 levels are now at 30 compared to 5 three months back. Should we be concerned about relapse?
64 yr old with stage IIIc serous ovarian cancer
Hi, My mother has been diagnosed with stage IIIc serous ovarian carcinoma, which has spread to the peritoneal cavity, nearby lymph nodes, spleen, and possibly the liver. We have started chemotherapy, and the doctors have recommended three cycles of chemo combined with Avastin. After evaluating her condition, they suggested…
Did you have warning signs before being diagnosed or was it found incidentally?
I am a post-menopausal 52 y/o and a mass on my ovary was found incidentally when I was sent for a CT scan after a visit to urgent care for stomach pain. The pain ended up being diverticulitis, but a fibroid and mass showed up on the scan. They couldn't be sure it was a mass so went for an ultrasound and they still weren't…
Gastroparesis and post menopausal bleeding
I started having abdominal pain, heartburn, early satiety, regurgitation while sleeping, followed by currently severe epigastric bloating (like an alien is moving around, it’s wild). This all began in February ‘24 and I was recently diagnosed with gastroparesis (GP) “caused by covid infection” in Jan 2024. I’ve been post…
Do I have surgery to remove the endo even though they think it's a very low chance it's cancer?
My story is that I had a CT scan back in March when I was sent to have due to stomach pains which, at the time, they thought was appendicitis but just wanted to confirm before sending me to the hospital. It ended up being diverticulitis but they found a mass and a fibroid in the CT scan which required further looking into.…
Anyone have surgery after 6 rounds of chemo/immunotherapies?
Hi everyone. I was diagnosed with stage 4 uterine with spread to omentum and peritoneal carcinomatosis in late Feb 2024. Not a candidate for immediate surgery. I did 3 rounds of carbo/taxol and Jemperli (immunotherapy) then a CT scan that was essentially unchanged but stable. I completed 3 more rounds followed by another…
Parp Inhibitor
Any ovarian cancer ladies here on a Parp inhibitor? I thought I was finished with treatment and had the medicine for 3-5 years bomb dropped on me. I was so shocked I didn’t even write anything down. I was bummed the first week. Now I need knowledge! Me: ovarian cancer, 2a, hysterectomy & 6 rounds of chemotherapy…
Avastin for Maintenance
i am wanting to talk with other survivors that have been on avastin for maintenance. I am having terrible muscle and joint pain. Has anyone had that issue?
Living Alone during Chemo
Will I be able to manage my chemo treatments living alone? I’m 65 and live in a RV at a beautiful RV resort on the lake. I’m starting 3 rounds 3 weeks apart - surgery- then 3 more chemo treatments. I have a neighbor who works part time so it mainly is me on my own. Anyone else manage? I do have family 2000 miles away and a…
High CA125 does not mean cancer!
I have had an anxious month. My CA125 has been climbing all month. In May it was 12. In the beginning of August it was up to 295, then 4 days later 460. A CT scan was done and no spots of cancer were found. I was told to get another test in 2-3 weeks. I did that on September 5...my number was 2645. Needless to say I was…
Volunteer
Diagnosed with Stage 3 ovarian cancer at 31 years old January 2024. Looking to volunteer somewhere helping others going through the hardest time of their lives. Not sure where to start? Hudson Valley, NY.
Help ease my mind Pet/CT scan results
Hi there i recently had my first pet scan as i haven't been feeling great over the past several months, blood work out of wack, pain, exhausted. I'm 40 yr old female, diabetes, high blood pressure, anxiety, diabetes. I do have fibroids and a history of them for years. But the SUVmax of 5.8 on left ovary has me concerned.…
I'm new here
My name is Wendi. I have ovarian cancer and am heading into chemo treatment 6x every three weeks for the second time. Will be sure to get a port this time. In 2022 I had HIPEC , complete hysterectomy and underwent chemo. I was clear for almost 2 years. In the last 6 months, my CA 125 has been increasing rapidly. After…
What can nurses do to better help you?
I am an RN student and I would like to know what the nurses who care for you could do to better help you? I'm anxious to get your feedback! Please reply!
Stage 4 OCCC
My wife was diagnosed with well I guess stage 2 or 3 at the time cancer. (May 3rd, 2024) After seeing the oncologist the following week and them gathering a team to plan how to go about the process. We were told the masses were in the lower abdomen and the oncologist was pleased to see the spleen was in good shape. an…
TERRIFIED - PLEASE HELP ME!!!!!!!
Hello! I am absolutely terrified! ☹ My beautiful 33-year-old daughter went to urgent care due to urinary urgency, lower back pain, and microscopic blood in her urine. She did not have a UTI, so they sent her for a transvaginal ultrasound, and the findings are below. Could someone please give me their input regarding her…
Ovarian and uterine cancers
I was just diagnosed. Total hysterectomy was done April 23 for endometriosis, pathology came back with stage 3 uterine and stage 1 ovarian diagnosis. I guess you could say that I'm lucky that the ovarian cancer was caught early. I can't get a straight answer from my surgeon about chemo and prognosis. Every cancer website…
Hemoglobin Level
My biopsy isn't scheduled until July 11. Last week, I was in the hospital getting two blood transfusions. Yesterday, I passed 8 large blood clots within a two hour time frame. Today, I am so weak. Do you think it could of lowered my hemoglobin level or am I just tired from the pain yesterday? I don't want any additional…

Ovarian Cancer

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