Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Ovarian Cancer

Some tips from CSN
Welcome to the CSN! Below are some tips to help you get started following and posting on the boards. You can follow your preferred discussion board to get notifications of new topics and comments. To follow a board, navigate to your preferred board and then select the bell at the top, followed by your notification…
Apricot seeds
Have any of you ever taken apricot seeds? I am curious to hear your comments. I know of one young man at our church who had brain cancer stage III seven years or so ago and he said the seeds attributed to his health now. Then another lady I know just was told her dad was done with treatments so she is going to start him on…
CA125
I am 68. I had a hysterectomy seven years ago...ovarian cancer was not found!!! My CA 125 was between 125 and 145. I have continued to get this blood test every year. Usually ranges around 125. It went down to 109 last year but it is now at 131. I can't understand why my numbers are so high? When I Google CA 125, I don't…
Cravings?
Ok...so this weird and a bit light hearted, but we all need to think of something weird and wacky from time to time! I have found that since my diagnosis, I have experienced a range of cravings...have you experienced the same thing? Initially, after diagnosis, I really wanted wine and chocolate..lots and lots of wine and…
Normal CA125
Quick background: I’m 30 yrs old, 5’8 and 140lbs i noticed chronic bloating back in August and scheduled an appointment with my gynecologist. I had a 14cm cyst but radiology and CA125 were normal. It was a suspected dermoid cyst. I had the cyst removed and pathology came back stating it was 15% malignant (germ cell). i’m…
3 vs 6 chemo?
My oncologist says 3 to 6 chemo are needed and I am thinking to just end it at 3. I will be going on letrozole afterwards though for a long time. My cancer is highly hormonal, and I am hoping that the letrozole keeps it away (ca 125 is down since surgery 12 then 11 after 1 round of chemo). Has anyone here with endometroid…
Hair loss/re-growth
Hello! I just joined CSN for ovarian cancer. I’m preparing for a total hysterectomy in a few weeks. That hopefully will be the last big hurdle. My question is about hair loss & re-growth. I realize everyone’s different but how long did it take for your hair to really grow back? I have peach fuzz & some stronger hairs…
Alternative Doctors or Medical doctors who use natural medicine too
Hi, I just had a radical hysterectomy and now need to decide on the next course of action. My latest CAE showed 0.5 and my CA-125 showed 19. However, it is still recommend that the “standard of treatment” is 6rounds of Chemo. Taxol and Carbo? I was diagnosed with Stage3 Ovarian Cancer-clear Cell I would like a second…
How to get rid of the worry and dread
Hi. I'm new. I've been struggling with opening up since Nov 2020. I was hit with lung cancer nov 2020, had a lobotomy. Thought I was in the clear, then in March 2021, was hit with ovarian cancer. I went from stage 1 to stage 4 in three weeks. Doctors were blown away I had 9 rounds of chemo, then put on rubraca . My hair…
Grandulosa Cell Tumor Cancer.
On New Years I found that I had ovarian cancer for the 2nd time. In 2017 I was diagnosed as high risk Stage I GCTC patient. My left ovary, fallopian tubes, and lymph nodes were removed. Now I have multiple tumers a few, in my adrenal gland, nested between my kidney and my ureter and impacting my pancreas that are not a…
Radiation for recurring endometriol ovarian cancer
In Dec 2018 I had a complete hysterectomy for endometriol ovarian cancer, and 6 rounds of chemo in 2019. Happily I was in complete remission. Unfortunately in 2022, a small tumor was found in my groin in front of my colon. I just finished 6 rounds of chemo, doxil was really hard on my body. Surgery is not an option, and…
Blood Draw Results
To those who are new to the maintenance after chemo, here are some tips to watch out for that I have experienced: Subscribe to your lab website so you can monitor and compare your lab results from time to time and see how your trending, are the markers improving, needs close monitoring? Or heading towards a catastrophe? My…
How to live through remission without being afraid all the time?
Hi I am not to sure how to start this of but I guess here goes nothing. First off I am 25 currently and was 21 when I was diagnosed with ovarian cancer on my right ovary. They found a 25 pound tumor in my abdomen attached to the ovary. I am currently in remission but I do carry a gene mutation for being predisposed to…
Maintenance Drug After 6 Chemo Treatments
I am about to get my fifth out of six chemo treatments for ovarian cancer and am told I will be put on a maintenance drug for 18 months following my last treatment. Can anyone who has had maintenance drugs tell me how soon they were put on it after their last treatment, what side effects they had, etc.? Also, did your hair…
Clear Cell
Has anyone been diagnosed with Stage 3A1 Clear Cell Carcinoma of the ovary. If so, what was your treatment, how long ago and did it work. Also has there been any reoccurrence? Thanks and experience with clear cell would help.
Falling through the cracks
Not sure what board to post this question… but I’m really worried I may have something serious- my periods have been very regular but in the last year they abruptly stop after 2 days- never any clots anymore and I feel super bloated- with nausea. I never finish meals anymore. We’ll it’s humiliating to explain this again…
Waiting for diagnostic ovarian
Hi I am just trying to get myself together. I had a ct scan done 2 weeks ago due to left side lower back pain. Had the ultrasound yesterday waiting for dr to see results but I have a 9 cm tumor on left ovary. I am 58 with 2 adult children. Have FAP hereditary condition. Had my colon removed due to high risk of cancer. The…
What type of dr for ovarian surgery
Hi I see a lot of confusing stories . I am waiting on my ultrasound reading from my dr did the test on Friday morning results and imaging is in imaging website. Images show highlights in blue and red areas in some of the images. Again like most of you my brain is not letting me relax. My left ovary has a 9 cm complex…
Possible ovarian cancer, prior endometrial cancer
I had endometrial cancer last year, low grade and stage, only hysterectomy needed, and my ovaries looked great, so they left those in and took the tubes (pre menopause). Since then, I have had a lot of discomfort and even tried PPT which didn't help all that much, but overall, I felt pretty good by early fall except for…
Mental Health Support
Hello, I’m new here and seeking help. I’m a 28 yr old in remission now from Stage 3C Ovarian Cancer. I was diagnosed November of 2020 @ 26 years old. Is anyone from the Massachusetts area who have or recommends a psychiatrist or therapist who specializes with working with cancer patients/survivors? Any help would be…
New here and so afraid
Hello. New to this group. Have not been diagnosed yet but fear the worst. I am 60, post-menopausal. Saw a doctor a month ago after two bouts of sharp pain on my right side while running. CT shows 9.4 cm “soft tissue mass.” No other symptoms but today I got blood work back - CA 125 of 287 though CEA and CA 19-9 were at…
Ovarian Cancer
Hi all, new member here. A summary of what I have been through so far. My doctor sent me to get a ct scan after complaining of a slight discomfort in my tummy. Scan confirmed a 5cm cyst. From there my gp referred me to a gynaecologist who recommended removal of ovaries and Fallopian tubes. Firstly she sent me for a blood…
Sulforaphane
Hi, is anybody or has anybody taken sulforaphane? If so what is your experience with this please?
Rising ca125 recurrence?
My mom diagnosed with high grade serous ovarian cancer stage 3c in October 2021 and went through neoadjuvant chemo and surgery. Her ca125 levels are now at 30 compared to 5 three months back. Should we be concerned about relapse?
Constipation
Starting first chemo next week. So in preparation trying to get all possible supplies so I can avoid stores as much as possible. Wondering about the constipation side effect and what everyone's trick was. I never really had an issue before so not alot of experience for what works.
Hand cramps and tremors
Hello all. Does anyone have any recommendations for managing hand cramps and tremors? My mother suffers from these side effects and the meds she’s been given create side effects of their own of course, which she does not need. Has anyone had any luck with any natural remedies?
MRI insurance denial
Not sure how to manage this- I waited for an MRI for 7 weeks and now at the last minute the insurance is saying they won’t pay for it- they need a peer to peer. They waited till the last hour to contact me- and now we have only 48 hours to get a peer to peer- it took me a long time to get a doctor to listen meanwhile my…
Tahini
Hi there. I just want to share with you all a snapshot of an article I came across. Because of my low platelets, I always research what I eat to make sure that I’m not hurting myself. I just got done with 2 bags of platelets transfused and still working on my diet to further boost the level. Attaching the snap shot for…
Blood work for Ovarian cancer.
I had low sodium of 28 in my blood work. The normal is 37. Based on the other blood work the doctor told me I was drinking to much water but low sodium is a sign of dehydration. Also they tell you to drink water to get the chemicals out of our system. My bun/creatinine ratio was very high. 10 points above the normal range.…
Concerned for my daughter. Ovarian cysts/cancer?
Hello, I’m writing out of concern for my daughter (22yrs). I apologize if this ends up being long. Mydaughter has always suffered from “difficult” periods. I wouldn’t call them out of the ordinary but she was always dealing with heavier flows and a lot of bad cramps right before starting and during the first couple days.…
Ketogenic Diet for cancer
Is there anyone that uses a ketogenic diet for cancer treatment along with chemotherapy to lessen the side effects? I'm 66, was diagnosed with stage III serous ovavian cancer. I surgery to remove the cysts, ovaries and fallopian tubes removed. I had already had a hysterectomy. I had a port for chemotherapy installed…

Ovarian Cancer

Discussion List

Discussion Boards