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Lymphoma (Hodgkin and Non-Hodgkin)

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New Dx -- Reaching Out For Support
Hi, I'm Tom, and I'm very scared. So, I've just got the initial diagnosis of CLL yesterday, and I'm reeling. I'm alternating between depression ("what's the point? I'm just going to get sicker and sicker, until I die...") and anxiety ("oh god, every new ache and pain is the cancer taking over!"). I am not religious, but I…
Fourth cancer
Pathology report states squamous cell carcinoma. Not a blood cancer, but posted here as fellow blood cancer patients are my second family. Apparently confined to the skin. So an excision and topical chemo (my 21st!) for 2 weeks then watch and wait. At least I'm tapering off. 🙄
Any survivors of follicular lymphoma out there
Hi Any survivors of follicular lymphoma and for how long? I was diagnosed last april and have since been in remission. Do the doctors know if they can retreat the disease if it relapses? Real life experiences mean more than what statics say. Thanks Richard
Past members
Had some time last night so I looked at some old post that go back quite a few years. I came across a member I kinda forgot about. The name was cobra 666. He helped keep the forum going. Anybody know what happened to him. I had a glitch in my computer back then and then I noticed I did not see any more post from him. Also…
Issues again
6 months ago I started running low grade fevers nightly and a hacking cough. Lost 50 lbs over a 3 month period. I go for a pet scan today. I worked in the printing industry since 1989 and been exposed to that. Back in 2012 my adranline grand was removed for being enlarged. After 4 CT test said postive for cancer and pet…
Side effects from RCHOP a year after treatment
Hi I'm new to posting but here goes. Last April through July I went through 6 rounds of RCHOP for non Hodgkin's lymphoma. The treatment was effective and as of last scan no active disease present. I'm grateful for that but for several months now I have been dealing with occasional waves of nausea, joint pain that doesn't…
Update Hodgkin’s Lymphoma
Hi all, I cannot remember how to navigate through this site, as I have not been on here in at least a year. Anywho, for those I had conversations with during my initial diagnosis of Hodgkin’s, and throughout chemotherapy I just want to give an update. I had my most recent PET scan in April after finishing chemo in December…
Looking for someone who understands
This is my first time using this website but I just wanted to make a post to see if there was another 21 year old with stage 3 lymphoblastic lymphoma out there who can understand what I’m going through and maybe needs someone to talk to as well.
Pet scan results
Can some please help me understand my husbands pet scan?
Why do we still differentiate between Hodgkin's and Non-Hodgkin's?
How many indolent lymphoma relapses is enough?
My history: Oct 1996: Diagnosed and treated for nodular lymphocyte predominant Hodgkin's lymphoma* in abdomen and pelvis. NED after six cycles of ABVD. June 2018: Diagnosed with NLPHL again, treated with Rituximab. NED Sept 2020: Relapsed, treated with Bendamustine with Rituximab. NED March 2023: Relapsed, treated with…
hubby waiting for a diagnosis? Incidentally found Multiple enlarged lymph nodes in abdomen
Hello to all, my husband (only 40 years old, normally super healthy, thin, eating organic, stopped smoking 10 years ago, but wasn’t smoking much anyway, had yearly blood check-ups…) had 2 months ago an MRI for an unrelated reason and it showed “enlarged mesenteric lymph nodes” in the stomach. of course he went to his GP…
When is a bone marrow biopsy necessary?
Dave's bloodwork shows slightly low levels of RBC, hemoglobin, hematocrit, platelets, and monocytes... his WBC dips in and out of low/normal range. His LDH and beta 2 microglobulin and most all the other numbers are within normal range. We are in the process of getting diagnosed right now (retroperitoneal biopsy done…
Still waiting on my results... terrified
2 months ago i had a ct which showed an 8 cm(3.1 inch) mass in my mediastinum and two other smaller 2 cm lymphoadenopaties ( i assume these are swollen lymph nodes ) I also can feel pea sized lymph nodes under my jaw. I am 31 and been losing a lot of weight in the last few months, i look really skinny now. No real other…
Large B-cell lymphoma
HI! My dad is 63 years old today, and last week was diagnosed with NHL Large b-cell lymphoma in stage 3-4. He is currently on CHOP and Rituxin. i was just wondering if there was anyone his age that has survived this specific type of lymphoma.....and any advice on how we can get it into remission fast? :) thanks, I'm just…
Follicular Lymphoma - Rituxan and Bendamustine
Howdy - Anyone try this combination with anything close to Stage IV, Grade 2 follicular lymphoma?
funding
hello new to the group. my son in law is in the hospital with burkitt lymphoma cancer. my daughter will be the only one working now. where on the amc website can she look up to get help for herself and him. thank you god bless you all
Sevondary Cancers
Just wondering if anyone has any experience or knowledge of secondary cancers which may have been caused by their treatment for Lumphoma.
Just Diagnosed Advanced Nodular lymphocyte predominant Hodgkin's lymphoma (NLPHL)
Hello, I am really happy I found this site. After being sick for 3 1/2 years, I had a myph biopsy and was diagnosed with SUSPICIOUS for Nodular lymphocyte predominant Hodgkin's lymphoma (NLPHL). The doctor says he contacted the pathologist and Stanford Medical to confirm. He says I most likely have had it a long time…
Peripheral T Cell - NOS - pctl
I am 49, was diagnosed pctl nos in sept 2021. I have completed 6 chemo sessions (was clear of cancer after 2 rounds - i think thats a positive) - i am so worried about the future - i have autologous stem cell transplant in 1-2 mos and i just always read how bleak the prognosis is for pctl nos. I have a 13 year old boy with…
Lymphoma (N.H.L ) T cell
Hi everyone My son have 2.5 yers old He have lymphoma non hodgkin T cell on stage4 How Can help me? What is this 😭😭😭
Please Share Your Diffuse Large B-Cell Lymphoma Journey
Hello, I was just wondering if anyone would like to share their journey with me and others about having diffuse large b-cell lymphoma. How their treatment went and if they had a relapse or not. If they had a transplant, how long has it been since that happened and how they are doing? If you read the print down below, some…
I need clarification
Dear wonderful people, I am here once again because state health wouldn't assist me. I have taken my mum to the medical unit ever so often and all they do is a full blood count. I had to insist that a private doctor would do a blood test to check out all her organs. Everything else looked fine but her liver has some damage…
First treatment this week (rCHOP) - And Scared
I thought it might be helpful to post here. I am a 35 year old male with 2 beautiful daughters (3.5 and 1.5 Years old) and a most beautiful wife. I am scared that I wont get to see them grow up. I have a really good disposition on life and I am relatively healthy. I haven't had any symptoms from my Nodular Lymphocyte…
Boom Boom Radiation Therapy
What a dumb name and I refuse to use it from now on, but has anyone here had this type of low-dose radiation treatment (4Gy/2), presumably for some form of indolent NHL?
1st time doing Rituxan Infusion tomorrow for Extranodal Marginal B Zone Cell Lymphoma
Hello, I am 31 years old and I was just diagnosed with extranodal marginal zone b cell lymphoma. Noduals were accidently found in my lungs and ended up being cancerous. I am going to start my treatment of rituxan since it is was caught at such an early slow growing stage and I will not have to get chemo. I will be getting…
MCL Facebook Groups
I have read that there are some very active MCL Facebook groups. I do not have a Facebook account. In your opinion, are the Facebook groups helpful enough to justify creating a Facebook account? Thanks
Struggling with a parent’s diagnosis
Hello everyone! Never in a million years did I think I’d find myself here. My mom was recently diagnosed with NHL. Chemo is getting ready to begin. My mom lives alone and I’m out of state. She has my sibling and friends local. I am about a 6 hour drive from my mom. I have a home, a husband, pets, and a job. Unfortunately…
Mantle Cell Lymphoma
Looking for Mantle Cell survivors to talk too
Splenic marginal zone lymphoma
integrative Medicine for SMZL

Lymphoma (Hodgkin and Non-Hodgkin)

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