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Lymphoma (Hodgkin and Non-Hodgkin)

 

Discussion List

• 

  Some tips from CSN

  Welcome to the CSN! Below are some tips to help you get started following and posting on the boards. You can follow your preferred discussion board to get notifications of new topics and comments. To …

  Closed

  Announcement

  280 views

  0 point

  Started by CSNSupportTeam

  Dec 1, 2021

  Lymphoma (Hodgkin and Non-Hodgkin)
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  Survivor

  My name is Linda and I finished treatment with chemo and radiation last October, my problem is I am having difficulty living with the new me and the thought that it will come back

  15 views

  3 comments

  0 point

  Started by llbirmie58

  Most recent by PBL

  Apr 9, 2025

  Lymphoma (Hodgkin and Non-Hodgkin)
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  Primary Bone Lymphoma, anyone?

  Hi all, I have Primary Bone Lymphoma, which is deemed a rather rare occurence of lymphoma. My variety is Follicular (indolent), which is even further off the charts (the "usual" type of PBL is DLBCL (…

  97 views

  20 comments

  0 point

  Started by PBL

  Most recent by po18guy

  Apr 7, 2025

  Lymphoma (Hodgkin and Non-Hodgkin)
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  I am new here

  I was diagnosed with diffuse large B cell non Hodgkin lymphoma 12/1/2024. I have just completed my 5 th of 6 RCHOP treatments. I have so many feelings and I just want to curl up and sleep. My family a…

  166 views

  14 comments

  1 points

  Started by lmpeto1971

  Most recent by ShadyGuy

  Apr 4, 2025

  Lymphoma (Hodgkin and Non-Hodgkin)
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  RCHOP side affects with ileostomy

  This week, I completed my 1st RCHOP treatment of 6. I have an ileostomy and catheter to divert stool and urine. Going into treatment, I had good ostomy output (volume & consistency). Since treatment, …

  19 views

  1 comments

  0 point

  Started by mas

  Most recent by PBL

  Mar 30, 2025

  Lymphoma (Hodgkin and Non-Hodgkin)
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  Live from The Blue Room!

  One of the notebooks I brought to the infusion center was my SNL skit writing notebook. The skit I was working on took place in the infusion waiting room, (*ours was called the blue room, because it h…

  30 views

  1 comments

  0 point

  Started by shayshayshay

  Most recent by ShadyGuy

  Mar 20, 2025

  Lymphoma (Hodgkin and Non-Hodgkin)
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  Trust after Cancer

  It seemed to me as I was going through cancer there were really only 2 kinds of people. 1. Outstandingly generous people who were doing everything they could to help and were upset they couldn't do mo…

  209 views

  4 comments

  0 point

  Started by AbogadoAvocado

  Most recent by shayshayshay

  Mar 19, 2025

  Lymphoma (Hodgkin and Non-Hodgkin)
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  how can i move past this

  I just want to know how i can move past this whole cancer thing i been through it twice and im now in remission but its still always in my head i blame things going wrong in my life on it i feel isola…

  122 views

  8 comments

  1 points

  Started by a_chappie

  Most recent by a_chappie

  Mar 15, 2025

  Lymphoma (Hodgkin and Non-Hodgkin)
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  False positive PET

  So in December I had a PET scan with Deauville score 5. One of the nodes where my original diagnosis in 2017 showed SUV uptake of 20. Local oncologist sent me to University Hospital in state. They loo…

  99 views

  8 comments

  0 point

  Started by Sandy Ray

  Most recent by ShadyGuy

  Mar 15, 2025

  Lymphoma (Hodgkin and Non-Hodgkin)
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  CAR-T Therapy - My one year anniversary

  My journey (Currently 46 yo - female) No medical history until…. January 2023 - diagnosed PMBL (diffuse large B Cell NHL) March 2023 - June 2023 : EPOCH R / Moffitt Tampa October 2023 - relapse Februa…

  127 views

  11 comments

  0 point

  Started by awdqt3346

  Most recent by awdqt3346

  Mar 6, 2025

  Lymphoma (Hodgkin and Non-Hodgkin)
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  Nerve pain post chemo

  Hi , I’m a 23 year old female . I was diagnosed with Hodgkin’s lymphoma at 21, did 12 chemotherapy’s in 6 months and finished last February. From last February (2024) until October (2024) I was doing …

  146 views

  7 comments

  1 points

  Started by sarahlillly963

  Most recent by ShadyGuy

  Feb 25, 2025

  Lymphoma (Hodgkin and Non-Hodgkin)
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  T-Cell CNS lymphoma diagnosis

  Male, age 58. Diagnosis is T-Cell CNS LYMPHOMA. Wondering if there is anyone else with the same diagnosis.

  80 views

  10 comments

  0 point

  Started by Chambersm

  Most recent by po18guy

  Feb 23, 2025

  Lymphoma (Hodgkin and Non-Hodgkin)
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  R-EPOCH

  Looking for anyone who has been through R-EPOCH chemo. My fiancé was just diagnosed. He will have six cycles of this chemo. He completed his first round a few weeks ago. Starts his second round on Fri…

  335 views

  11 comments

  0 point

  Started by cbb411

  Most recent by patriciaburnett

  Feb 16, 2025

  Lymphoma (Hodgkin and Non-Hodgkin)
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  Car T Cell Therapy

  Hi everyone, My mom (61 years old) was recently diagnosed with DLBCL stage 4 and has undergoed 5 lines of chemo. Since it is so aggressive, she is no longer a candidate for a stem cell transplant. We …

  123 views

  10 comments

  0 point

  Started by Brlennon812

  Most recent by dtomakrose

  Feb 15, 2025

  Lymphoma (Hodgkin and Non-Hodgkin)
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  Heart Rate Increase

  Hi I’m 25 years old and was diagnosed with High Grade B-Cell Non-Hodgkins Lymphoma stage 2. I recently completed cycle 4 and have 2 more to go. My PET scan showed no active cancer. I’ve experienced fa…

  70 views

  1 comments

  2 points

  Started by anavdiaz99

  Most recent by po18guy

  Feb 11, 2025

  Lymphoma (Hodgkin and Non-Hodgkin)
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  Stage 4 NHL in remission. Palliative care concerns you should talk with your doctor about.

  Everybody is different in their diagnosis and treatment. My NHL spread to my spine, where I had a spinal fusion from a significant burst fracture in 2019. I was diagnosed stage 4 NHL February 2023. Th…

  63 views

  1 points

  Started by bobinashoe

  Jan 30, 2025

  Lymphoma (Hodgkin and Non-Hodgkin)
• 

  Just Diagnosed Advanced Nodular lymphocyte predominant Hodgkin's lymphoma (NLPHL)

  Hello, I am really happy I found this site. After being sick for 3 1/2 years, I had a myph biopsy and was diagnosed with SUSPICIOUS for Nodular lymphocyte predominant Hodgkin's lymphoma (NLPHL). The d…

  2707 views

  87 comments

  0 point

  Started by Ed_Encinitas

  Most recent by ShadyGuy

  Jan 26, 2025

  Lymphoma (Hodgkin and Non-Hodgkin)
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  Urgency incontinence

  Has anyone else dealt with bladder issues during chemo? How did you manage it

  91 views

  2 comments

  0 point

  Started by Notbet

  Most recent by Beta13

  Jan 20, 2025

  Lymphoma (Hodgkin and Non-Hodgkin)
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  Pluvicto Therapy

  Husband getting ready to receive Pluvicto Radiation Therapy and wondering what to expect during the three days of isolation. He cannot walk without walker and am worried how he can manage on his own f…

  33 views

  0 point

  Started by Veggie

  Jan 19, 2025

  Lymphoma (Hodgkin and Non-Hodgkin)
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  Strength and balance issues

  Hello all, I was diagnosed with large t-cell lymphoma in May 2023. Spent 3 weeks in the hospital and have been undergoing Chemotherapy ever since. Being that I'm getting close to the two year mark, I …

  65 views

  1 comments

  1 points

  Started by celldweller454

  Most recent by Beta13

  Jan 19, 2025

  Lymphoma (Hodgkin and Non-Hodgkin)
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  Losing Your Smile

  Did anyone's teeth start to break so easily after receiving intensive radiation? I have completely lost most of my teeth and I get excruciating pain in my teeth for days and since I was homeless I did…

  192 views

  5 comments

  3 points

  Started by Sanchez42117

  Most recent by cathyp

  Jan 18, 2025

  Lymphoma (Hodgkin and Non-Hodgkin)
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  48 years survivor of Hodgkin lymphoma and now the side effects

  I wanted to share an update about my mother’s health, as many of you have experienced similar long-term effects from cancer treatments. She is a very pleasant 66-year-old woman who is a 48-year surviv…

  442 views

  4 comments

  1 points

  Started by juanchoboyd89

  Most recent by cathyp

  Jan 18, 2025

  Lymphoma (Hodgkin and Non-Hodgkin)
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  Follicular non Hodgkin's lymphoma

  My 21 yr old nephew was just diagnosed today. He was told he needs to get an echocardiogram, bone biopsy and pet scan. Plus he needs to see a Dr. In a large town 2 hours away. My question, is there an…

  477 views

  18 comments

  0 point

  Started by paramedic

  Most recent by ShadyGuy

  Jan 16, 2025

  Lymphoma (Hodgkin and Non-Hodgkin)
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  Autologous stem cell transplants

  I'm set to have an autologous stem cell transplant next week. I finished six cycles of chemo and the chemo has beaten the cancer into remission. I have EATL lymphoma which is a T-cell lymphoma. I'd lo…

  315 views

  8 comments

  0 point

  Started by Bart T

  Most recent by Missymeadows

  Jan 15, 2025

  Lymphoma (Hodgkin and Non-Hodgkin)
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  Referral to Oncology based on this PET…..

  Hello! Sorry for the long post. I would just like some help sorting through this report. ( I am an RN- but don’t routinely have much clinical day to day experience in this area) I understand no-one he…

  186 views

  11 comments

  1 points

  Started by PipLily

  Most recent by PBL

  Jan 14, 2025

  Lymphoma (Hodgkin and Non-Hodgkin)
• 

  Ibrutinib or Imbruvica, my apologies for the duplicate post

  In September 2021 my wife started having headaches that progressed to balance issues etc. In October 2021 she had brain surgery to remove 75% of the tumor that was pathologically determined to be prim…

  168 views

  8 comments

  0 point

  Started by RetiredChief

  Most recent by ShadyGuy

  Jan 3, 2025

  Lymphoma (Hodgkin and Non-Hodgkin)
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  NLPHL Diagnosis-Just wanted to say HI

  Good morning!! I just recently got diagnosed, still going through staging, but it looks good so far. Seeing Dr. Jeffrey Barnes out of MA Gen in Boston!!! Hope everyone is doing good. A lot of the time…

  38 views

  0 point

  Started by tah188

  Dec 5, 2024

  Lymphoma (Hodgkin and Non-Hodgkin)
• 

  No diagnosis yet--

  It is a long story but 10 months ago I had a chest ct scan, it showed enlarged mediastinal and hilar nodes 1.5cm on the short axis. I was not able to do the post f/u due to an injury and surgery that …

  78 views

  1 comments

  0 point

  Started by Giga4

  Most recent by po18guy

  Nov 28, 2024

  Lymphoma (Hodgkin and Non-Hodgkin)
• 

  Abnormal path report-skin biopsy

  hello I am wondering if anyone has any insight… my son had a skin biopsy from his arm (non itchy bumpy area under skin). Initial report says “ebv positive with t/nk cell proliferation”. They are sendi…

  53 views

  1 comments

  0 point

  Started by kerrianne74

  Most recent by po18guy

  Nov 28, 2024

  Lymphoma (Hodgkin and Non-Hodgkin)
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  Follicular lymphoma transformation experience

  Hi all, I am posting this as a response to a request in a different thread instead of hijackin that one. The request was for me to share my experience with transformed FL and treatment etc. Some bulle…

  307 views

  2 comments

  0 point

  Started by Galrim

  Most recent by kedra22

  Nov 21, 2024

  Lymphoma (Hodgkin and Non-Hodgkin)
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  NON-HODGKIN MARGINAL ZONE

  WHAT CAN MY BROTHER-IN-LAW TAKE FOR THIS. ASKING TIM TIPPENS

  137 views

  1 comments

  0 point

  Started by karen10332

  Most recent by po18guy

  Sep 26, 2024

  Lymphoma (Hodgkin and Non-Hodgkin)