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Some tips from CSN
Welcome to the CSN! Below are some tips to help you get started following and posting on the boards. You can follow your preferred discussion board to get notifications of new topics and comments. To follow a board, navigate to your preferred board and then select the bell at the top, followed by your notification…
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Referral to Oncology based on this PET…..
Hello! Sorry for the long post. I would just like some help sorting through this report. ( I am an RN- but don’t routinely have much clinical day to day experience in this area) I understand no-one here is able to give medical advice :) Just looking for some real life input to help our swirling thoughts right now. Quick…
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Ibrutinib or Imbruvica, my apologies for the duplicate post
In September 2021 my wife started having headaches that progressed to balance issues etc. In October 2021 she had brain surgery to remove 75% of the tumor that was pathologically determined to be primary central nervous system lymphoma, diffuse large b cell lymphoma. She was emphatic that she was not going to do the HDMTX…
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Follicular non Hodgkin's lymphoma
My 21 yr old nephew was just diagnosed today. He was told he needs to get an echocardiogram, bone biopsy and pet scan. Plus he needs to see a Dr. In a large town 2 hours away. My question, is there anyone on here with this diagnosis? Anyone who has been through these tests that could tell him what to expect? Someone he…
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Losing Your Smile
Did anyone's teeth start to break so easily after receiving intensive radiation? I have completely lost most of my teeth and I get excruciating pain in my teeth for days and since I was homeless I didn't have the means to go to a dentist and check them out and I'm so afraid my smile is horrible I hate speaking to people I…
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Just Diagnosed Advanced Nodular lymphocyte predominant Hodgkin's lymphoma (NLPHL)
Hello, I am really happy I found this site. After being sick for 3 1/2 years, I had a myph biopsy and was diagnosed with SUSPICIOUS for Nodular lymphocyte predominant Hodgkin's lymphoma (NLPHL). The doctor says he contacted the pathologist and Stanford Medical to confirm. He says I most likely have had it a long time…
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NLPHL Diagnosis-Just wanted to say HI
Good morning!! I just recently got diagnosed, still going through staging, but it looks good so far. Seeing Dr. Jeffrey Barnes out of MA Gen in Boston!!! Hope everyone is doing good. A lot of the time I feel great, other times I get down in the dumps for a few minutes, then bounce back, LOL
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No diagnosis yet--
It is a long story but 10 months ago I had a chest ct scan, it showed enlarged mediastinal and hilar nodes 1.5cm on the short axis. I was not able to do the post f/u due to an injury and surgery that had me non weight bearing, my PC received the results but never followed up until I had my check up in Oct and I mentioned…
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Abnormal path report-skin biopsy
hello I am wondering if anyone has any insight… my son had a skin biopsy from his arm (non itchy bumpy area under skin). Initial report says “ebv positive with t/nk cell proliferation”. They are sending it for further testing. He has no other symptoms but I’m just very very worried about this. Thank you
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Follicular lymphoma transformation experience
Hi all, I am posting this as a response to a request in a different thread instead of hijackin that one. The request was for me to share my experience with transformed FL and treatment etc. Some bullet points for background knowledge: Male, 56 Lives in Denmark Kidney cancer survivor since 2010 Diagnosed with FL in 2019.…
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Urgency incontinence
Has anyone else dealt with bladder issues during chemo? How did you manage it
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NON-HODGKIN MARGINAL ZONE
WHAT CAN MY BROTHER-IN-LAW TAKE FOR THIS. ASKING TIM TIPPENS
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R-EPOCH
Looking for anyone who has been through R-EPOCH chemo. My fiancé was just diagnosed. He will have six cycles of this chemo. He completed his first round a few weeks ago. Starts his second round on Friday. He will go 5 days in a row. Looking for personal experiences with this type of treatment - side effects, tips/tricks,…
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New here.
Hi, everyone. I'm new here. For a while, I've been experiencing non painful lymph nodes. After talking to my GP, she referred me to the general surgery people in the practices network of offices (They're all run by a local hospital) They did some sonograms and recently it showed a difference that made them want to do a…
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48 years survivor of Hodgkin lymphoma and now the side effects
I wanted to share an update about my mother’s health, as many of you have experienced similar long-term effects from cancer treatments. She is a very pleasant 66-year-old woman who is a 48-year survivor of Hodgkin lymphoma. Diagnosed in 1976, she received cobalt mantle radiation as part of her treatment. She was only 17…
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Low testosterone
Hi, I just started to take androgel for a very low testosterone count. I was wondering if anyone else has taken or is taken testosterone hormone therapy. How long did it take to see or feel results? Any side effects from the medication? Thanks for the help Matt
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Lymphoma and disabilty
Can someone comment who had experience in this area ? I looked that SS Admin site and there are are hole bunch of items. I think,as I read this, there is no point to apply as you going tru initial treatment. … ? Wife is un-employed for last year or so but had worked for about 30 years paying SS. Before diagnosis, she was…
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In home (CNA/other?) support while going thru chemo
Last Fri wife was diagnosed with non-hodgkin lymphoma. ,, large B-Cell … something… Had one appt in top school cancer program in the area to confirm biopsy… in couple days she is going for pet scan…. and likely for chemo after that. Wife is in middle 50s and so am I. I still need to work. Right now I am working remotely…
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Exercise and fitness after R-Chop is finished
What fitness level and or fatigue can a patient expect after completion of 6 cycles of R-chop? I went into therapy in good physical shape for a 66 year old man, golfing , cycling, skiing etc. I’ve tolerated the chemo fairly well. Mostly just fatigue. Can I expect to regain my pre- therapy activity and fitness level again…
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Llarge and giant platelets
Greetings and Regards My son has been dealing with a drop in platelets and large and giant platelets since birth, and unfortunately, he was diagnosed with Non-Hodgkin's lymphoma at the age of 2 and is currently undergoing chemotherapy. The doctor of blood and pediatric oncology says that one of the reasons for this cancer…
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Symptoms worse after core needle biopsy??
Hi everyone I got the most problematic lymph node biopsied. Now I'm almost constantly itchy, esp after waking up and showers and nighttime, and soooo sleepy. It's so hard to wake up in the morning. Anyone else have this issue? Where it aggravates the symptoms?
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Trust after Cancer
It seemed to me as I was going through cancer there were really only 2 kinds of people. 1. Outstandingly generous people who were doing everything they could to help and were upset they couldn't do more. 2. People who didn't care at all. Maybe they would do a low effort thing, like a box of cookies in the mail for…
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Tattoos
Tattoo ink contains known carcinogens, and can be transported around the body and end up in the lymph nodes. However, there is little research into whether or not having a tattoo raises a person’s risk of cancer. Researchers from Lund University Sweden used national registries to identify cases of lymphoma and analyze…
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My journey as a blog
Each individual's journey through chemotherapy and treatment is unique, of course; and many others have written blogs about their particular experiences. For myself, I've found it helpful to read about others' personal experiences; it reminds me that we're all in this together. Here's my own story, such as it is, as I…
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My daughter 28 has been diagnosed
I need advice on how to cope and be strong for her
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Starting my own journey with Hodkin's Lymphoma
I'm a 56 year old male, diagnosed last month. I've had one chemo treatment so far, and (my first?) unexpected hospital stay as a result of dealing with the side effects. So much still for me to learn! Glad to meet everyone today!
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hubby waiting for a diagnosis? Incidentally found Multiple enlarged lymph nodes in abdomen
Hello to all, my husband (only 40 years old, normally super healthy, thin, eating organic, stopped smoking 10 years ago, but wasn’t smoking much anyway, had yearly blood check-ups…) had 2 months ago an MRI for an unrelated reason and it showed “enlarged mesenteric lymph nodes” in the stomach. of course he went to his GP…
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Hi, new member here. Having issues more than 2 years out.
So, back in Jan '21 I had a cramp in my small intestines area. Got worse over several days and I ended up in Hospital. Turned out to be a large mass 10cm. Surgery was performed, got infection and after about 2 weeks in hospital ,the oncologist came in and stated it was Lymphoma, bulky mass (DELCL). Leaving the hospital,…
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Needing advice/support for my boyfriend
My boyfriend is 24 and was diagnosed with Hodgkin’s Lymphoma. By the time they even started chemo, it was everywhere and stage four. I’ve been with him for ten months total now, eight of which he has been sick for. He’s had 9 out of 12 chemo sessions and his last pet scan came back clean, so technically, he’s in remission…
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Issues and care years after treatment ??
Hello I had Hodgkins back in 2008 and 2012. I was treated with AVBD and ICE and an auto SCT. I also had rituximab in 2008 (study) and in 2019 for what was likely an autoimmune disease ITP or maybe B cell lymphoma. I’m sure there is a case study on that one somewhere. Never had radiation treatment. Since 2020 I have been…
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Help - Just diagnosed with Hodgkin's Lymphoma
58 year old male and was just given the diagnosis a few days ago. Meeting with Hematology and Oncology next week. What should I be purchasing for Chemo visits to make myself more comfortable and to hopefully make the side effects (sores, nausea, pain, hair loss) lessen. Also what should I be purchasing for my home. I live…