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Chemo pill vs pump and how to support body for lessening treatment side effects
Aloha! I've been recently diagnosed with stage 3, 2"rectal tumor, 2cm into the wall, 7 lymph nodes inflammed, at the top of the rectum. I'm headed in for my 3rd biopsy tomorrow to get pathology results to give us a proper plan moving forward. I turned 40 in March, First noted symptoms April this year, found tumor early…
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On_A_Journey's journey
PART ONE Hello all, I joined this forum recently, asked some questions and made some comments, but until now I’ve only given a brief description of what brought me here. I will treat this thread as my own personal blog by telling my story and providing any updates as they happen. I am 59 and from Australia. I have a strong…
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My Journey
I started by donating my lett Kisney to Kidney Cancer in 2002. Naturaly my Uro followed my Prostate each following year. MY psa TOOK A BIG JUMP FROM 2018 TO 2019 and a Biopsy was a Gleeson 8 (9 after surgery.) I saw Dr Patel in Orlando for my robotitic Prostectomy. I have 6 and 1/2 years undetectable PSA. 3 months later I…
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Radiation Fallout
Long time member of CSN, but have been absent several years. 10 years ago husband diagnosed with stage 4 nasopharyngeal tumor. Treatment was successful in eliminating the cancer but radiation effects over the last 10 years have piled up. Hearing loss, no longer able to swallow so PEG tube feeding, tracheostomy, balance…
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Seeking Guidance on Supporting a Child with Cancer: Emotional and Practical Tips
Hello everyone, I’m new here and wanted to reach out to the community for some advice. I have a family member who was recently diagnosed with childhood cancer, and as you can imagine, it’s been a tough time for all of us. I’m looking for some guidance on how to best support them during their treatment journey. What have…
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Looking for others who may be survivors of leiomyoscarcoma of the uterus.
Hi... I was diagnosed with leiomyoscarcoma of the uterus in Sept of 2010. I had a complete hysterectomy, then 28 treatments of radiation to the pelvis. I know it's aggressive and that the statistics for survival is not good. Looking for others in the same situations.
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Daughters Bone cancer
I am new at this so please bear with me. My daughter now has Stage 4 Bone Cancer. She was diagnosed with a rare uterine cancer in 2008. After years of medication, chemo, and radiation and a few years in remission the cancer has returned as bone cancer. When this was discovered she was already at Stage 3. She is a single…
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Biopsy Results
My biopsy test results came this morning and I'm undecided whether to open and read them before speaking with my urology office tomorrow morning. Waiting for the results these last few days caused me a lot an anxiety, and I don't know if taking a look might exacerbate my anxiety. Have others had this debate with themselves?
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Primary Bone Lymphoma, anyone?
Hi all, I have Primary Bone Lymphoma, which is deemed a rather rare occurence of lymphoma. My variety is Follicular (indolent), which is even further off the charts (the "usual" type of PBL is DLBCL (aggressive)). Specific information is hard to come by... So I would love to find other folks with PBL, who would be willing…
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Acupuncture for breast cancer stage 4 patient
hello, did anyone try acupuncture? And did it help?
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Anger
Hello, Just looking for some place to connect with others caring for a dying spouse who is angry, hateful and actually cruel with his words. Been married 45 years, he was a functioning alcoholic and I was the enabler. I am a 10 year Lung cancer survivor who by all means should not be here except by the grace of GOD. He is…
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How low a PSA? What is the new "normal"?
My PSA is 0.2 after having radiation treatment now just over 2 years ago. Interested also in this metric. Most of my usual body functions are fully changed from "normal" in one way or another after the 27 days of radiation. Almost everything. I am interested in chat with similar men and situations. I am 79. Any men that…
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ejaculation and semen flow
So concerned very much here. Have those here that have been treated by radiation for Prostate Cancer and had had any related conditions? ED in any way? How? What is your way of dealing? Please let me know. Thank you.
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Feeling lonely and isolated
My husband was recently diagnosed with non Hodgkin’s lymphoma. He is being treated at Gibbs Cancer Center in Pelham, SC. I am his caregiver. The prognosis is good. We lost our daughter to breast cancer 7 years ago. My husband does not want his diagnosis to be public; only a few close friends know. We are new to the area…
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Week 6 of 7 SRT complete
Week 6 and 7 I’m told they are concentrating on prostate bed. Only difference is about 3 hours after treatment, I run out of gas and need a 1-2 hour nap Still on same boring diet 😩. No diarrhea. Can’t wait for that first pizza a month from now 🎉🎉 hope everyone has a GREAT weekend I still have 3 more acres of grass to cut…
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CEA rising but no cancer detection
Hello im new to this board and I really hope you can help me. I never had cancer before and my CEA level was consistently below 2 for past 10 years. However suddenly this year my CEA was increased to 11.3. Then two weeks later, it increased to 14.1. We did colonoscopy, PET, and CT but no tumor is detected. I know smoking…
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First chemotherapy treatment today
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UPSC - Any survivors greater than 5years?
Hello Fellow UPSC sisters.. I would like to start a discussion on looking at recurrance rates and survival from the USPC group. This may sound depressing, but I think it would be positive to put light on this "Rare Agressive Cancer". I had surgery (TAH + BSO and pelvic node clearance Aug 2010). Surgical staging IIIC. (Node…
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I'm new here, this is my story
Hello everyone! I have had right flank pain for many years, like 15 or so. every scan and diag test has been normal. I also have a painful inflammatory disease in my bladder called interstitial cystitis for 22 years. In the past few years I have had a few UTIs and more severe right flank pain which has led me to have more…
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Nine years later recurrance in lung
I had stage 1a grade 1 endometrial cancer 9 years ago. I had a full radical hysterectomy, and the Dr.s felt there was virtually no chance it would return. No chemo or radiation was suggested or offered. Nine years later I started to cough blood and after loads of tests, it has been determined that I have an endometrail…
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Has anyone heard from CMB?
I have not heard from CMB in a very long time. I hope she is okay.
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Chemo
Does Anyone know if you can use nicotine replacement products during chemo? Thanks.
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Cancer of the Ear Canal
I was recently diagnosed with invasive squamous cell carcinoma of the ear canal. I had an initial surgery to remove the visible tumor and to biopsy it (which led to my diagnosis). The first pathology report was inconclusive so they sent it on to experts for their interpretation, which resulted in a diagnoses of SCC. They…
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diagnosed with congestive heart failure with reduced lung function and clogged arteries after treatm
I was diagnosed with stage 3 Squamish nsclc in my right lung may of 23. After an aggressive treatment plan chemo with Keytruda 1 7hr treatment once a month for 4 months then 30 days radiation with chemo and Keytruda once a week then immunotherapy that attacked my lungs had to be sterorided off three times i was…
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My one year post salvage surgery
most of you know my story but if you don’t 2018 Gleason 3+4 Cribiform found 7.8 PSA opted for radiation and Breakytherapy . I was good until 2023 around September. My PSA started to climb. I was fortunate enough to still have it contained to the prostate and I opted right away for salvage surgery ..today It’s been one year…
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Cancer of the Ear Canal
I was recently diagnosed with invasive squamous cell carcinoma of the ear canal. I had an initial surgery to remove the visible tumor and to biopsy it (which led to my diagnosis). The first pathology report was inconclusive so they sent it on to experts for their interpretation, which resulted in a diagnoses of SCC. They…
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TRUTH Can't hold a hard-on after Prostatectomy
So I'm 6 months out from having my Prostatectomy, and I can't get a hard-on even taking Cialis. I'm 66. The little fella won't rise to the occasion. At this age, I'm just happy to be cancer-free! Just sharing.
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Emotionally struggling, looking for suggestions
Sorry, this is a long post… I just had a radical hysterectomy on 1/21/25 after having had a biopsy on 12/27/24 that showed some cells that suggested endometrial adenocarcinoma. The final pathology found the tumor provided a diagnosis of FIGO Stage 1A2. While I am 41yo, my logical brain is what said to do the radical…
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Perineural invasion
Looking to see what others have been advised about the prognostic value of perineural invasion (PNI) seen on prostatectomy pathology. Some articles indicate that it portends metastases and higher risk of biochemical recurrence, while others (more recent) seem to say more research is needed because by itself, PNI doesn’t…
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Sbrt question about how low psa dropped
Finished up my 5 doses end of Dec. I was wondering how low did your psa drop to? I was psa 8.5 Gleason 4+3 initially. Went on orgovyx 6 weeks prior to radiation, 4 months total. At last treatment session, psa was 3.8. Next blood work beginning of May. Was hoping for some real life statistics. Thanks in advance guys.