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How low a PSA? What is the new "normal"?
My PSA is 0.2 after having radiation treatment now just over 2 years ago. Interested also in this metric. Most of my usual body functions are fully changed from "normal" in one way or another after the 27 days of radiation. Almost everything. I am interested in chat with similar men and situations. I am 79. Any men that…
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SCLC, Irinotecan treatment, and Budesonide Advice Requested
You can see from my other post the general situation. I'm asking now if anyone has been on Budesonide and can discuss their experience. I would appreciate it very much. Thanks. Jeremiah
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Breast cancer stage 0
I was diagnosed with ductal carcinoma in situ and had a lumpectomy to remove the tumor. Will be starting 4 weeks of radiation. Concerns about possible radiation burns. Does anyone have suggestions or ideas on the best way to handle this? My Dr gave me a list of lotions to use if I need to. Thank you!!
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LARYNX CANCER
I am on Radiation Treatment for my Larynex Cancer .I took 11 treament and 22 more to go. I have great pain for swolling which was not before. Pain is unbarble.Doctor says you have to bare it.No medicaton prescribed. Is anybody have remady to deal with this throt pain .Even I feel difficulty in swolling water too!
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Looking for clarification about what is a "gray"/Gy?
Hi, I am new here and have been accompanying a relative (mainly for logistical support for him and his wife since treatment is at a location away from both of our homes) as he is going through radio therapy treatment for angiosarcoma, and I have a question about "What is a gray?". From searching, I found that: "Definition…
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Fulvestrant/Faslodex Missed Dose
Hello, The last time I had my shot of Fulvestrant/Faslodex was on 11/27/24. The shot date was going to be on Christmas Day, but the office isn't open on Christmas so they made the next dose scheduled for 12/30/24. Meanwhile, I got COVID on 12/20/24, so I canceled and rescheduled for 01/08/25. I rescheduled it again for…
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Follicular non Hodgkin's lymphoma
My 21 yr old nephew was just diagnosed today. He was told he needs to get an echocardiogram, bone biopsy and pet scan. Plus he needs to see a Dr. In a large town 2 hours away. My question, is there anyone on here with this diagnosis? Anyone who has been through these tests that could tell him what to expect? Someone he…
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Happy Happy New Year Belated And Wishing Everyone A Happy And Wonderful 2025
Hello everyone and I would like to wish everyone a wonderful New Year members and visitors alike on this forum. I am obviously a day late and a dollar short on this one but I am hoping to get a little Grace on this one. I was busy with a few things and the day slipped past me. I apologize. But the old saying is "Better…
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Should I book a vacation? Dad with stage 4 cancer
Hello, My dad was diagnosed with stage 4 gastric cancer in October 2023. It was very traumatizing at first has we were told he would have 6months to a year. It took a huge toll on us, specially me as he was estranged to me. Long story short we’ve gotten closer & I help him as much as I can. It bas been a year & 3 months…
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Autologous stem cell transplants
I'm set to have an autologous stem cell transplant next week. I finished six cycles of chemo and the chemo has beaten the cancer into remission. I have EATL lymphoma which is a T-cell lymphoma. I'd love to hear from anyone who has undergone the procedure. I don't really know what to expect other than the fact that the…
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Synovial Sarcoma in France
Hello I'm french I registered on this forum because in France there is no on Sarcomas My wife (36 old) was diagnosed in September 2022 with a grade 2 synovial sarcoma, she has a 9cm tumor in her calf The protocol is Chimio > Radiotherapy > Operation I wanted to know if other people have gone through this cancer, so I can…
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Adjuvant chemo for Synovial Sarcoma
Hello all, Im 29 and had a high grade large tumor (11cm) in my right thigh that was synovial sarcoma. I did 3 rounds of chemo (dox and fofs), then 5 weeks of radiation and then got the tumor removed. The chemo caused tissue death of the tumor and the radiation further reduced it. I’m now a couple months post surgery and…
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Synovial Sarcoma survivors wanted! Would love to hear stories!
Hello Survivors! My name is Scarlett, I am 19 years old and I live in San Diego, California. This is a long one, but I would really appreciate you reading it! Here is some background...last February I was diagnosed with synovial sarcoma. It was in my left forearm. I don't remember the approx. dimensions, but I remember…
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My nephew has high risk neuroblastoma
Hello everyone, My nephew who is 8 years old has been diagnosed with high risk neuroblastoma stage 4. He needs to start aggressive chemo and radiation treatment as soon as possible, but even with treatment, his prognosis is below 40% chances of survival. His parents are set against starting treatment, and are looking for…
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Question about Ivermectin.
I'm living in Ireland. My mother, 81 years old, who lives in Estonia, EU have a first stage of breast cancer. I'm looking for Ivermectin where I can buy it from Ireland, EU or US? Maybe someone knows and can help me? Also like to know the dosage, how to take it and how long? Thank you so much!
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I'm a "survivor"?
Was diagnosed with rectal cancer in Feb '21. Felt like I died that day and I still haven't recovered. Trying to figure out how to be a survivor after everything that's happened in the last (almost) 3 years. At this point I've lost literally everything but my life, car, and a few possessions. I can't do this alone anymore.…
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Cruise ship affect
I completed chemo a couple of weeks ago, when I stand sometimes I feel like I just got off a boat. Is this normal?
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My 35-year-old husband has cancer, and I don't look at him the same way anymore
My 35-year-old husband of 10 years was diagnosed with leukemia five months ago. We have been together since we were teenagers and have had a borderline perfect marriage up until his diagnosis. I have always loved him deeply, and he is a great man. The first few months were extremely traumatic for me, and I had to bear the…
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6 months post salvage surgery
most of you know my story for those of you that don’t was first diagnosed at age 57 glarson score 7 PSA 8.1 decided to do radiation not a good thing. The cancer was of Cribiform and apparently Cribform is radiation resistant don’t let anybody tell you different, .. 1 year ago PSA creeping up three straight test to 1.7 from…
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Kidney Cancer - possible nodules in lungs.
Hello All, My father had kidney removed due to a renal mass of size 11cm × 8.2cm, and waiting for biopsy report. Also found multiple lung nodules with small one being 3mm and bigger one to be 7mm. We have a query metastasis, but worrying about the report outcome. As if now doctor have prescribed for immunosuprresant, and…
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Referral to Oncology based on this PET…..
Hello! Sorry for the long post. I would just like some help sorting through this report. ( I am an RN- but don’t routinely have much clinical day to day experience in this area) I understand no-one here is able to give medical advice :) Just looking for some real life input to help our swirling thoughts right now. Quick…
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Stage 3 Rectal cancer Recurrence
Hi I am male with 37 years old I was diagnosed with stage 3 rectum cancer Aug 2023 about 6 cm tumor in my rectum and 8 cm distance to anal verge .I did first CT for checking metastas and it was clear. My oncologist decided 6 rounds of chemotherapy with folfox. After it was ended, I did my second CT and shows that tumor…
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Rise in PSA
Pushing 79. Have been getting semi-annual PSA's. Until the last 18 months, PSA was "virtually undetectable". Then .04, .06 and this week .07, (sans the <). Not worried, but wondered if there was a formula or something that could predict where my PSA might be in two or three years.
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Did you have warning signs before being diagnosed or was it found incidentally?
I am a post-menopausal 52 y/o and a mass on my ovary was found incidentally when I was sent for a CT scan after a visit to urgent care for stomach pain. The pain ended up being diverticulitis, but a fibroid and mass showed up on the scan. They couldn't be sure it was a mass so went for an ultrasound and they still weren't…
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Husband just diagnosed with prostate cancer
Good afternoon, we just received the results from the biopsy, and I'm concerned for my husband. Gleason Score 7 (4+3) grade group 3, cores with cancer 8 (out of 12), prostate biopsies Adenocarcinoma, perineural invasion seen. PIRAD 5, PSA 9.5. Prostate measures 4.0 x 4.9 x 4.0 cm with volume of 41 cc. Large right…
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Peritoneal carcinomatosis
Hi, I have a dear friend who has just been diagnosed with Stage IV peritoneal carcinomatosis. The original cancer was ovarian but is now in the stomach lining. She has started chemo, consisting of a combo of carboplatin and Doxorubicin. Unfortunately the Doxo caused an instant allergic reaction, so they continued on with…
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Welcome long-term survivors!
Some of you who have been living with cancer for a number of years (in or out of treatment) have asked for a board dedicated to the discussion of long-term survivorship issues. I hope it is helpful. Best to all, Greta (Your CSN staff)
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sky high psa
New diagnosis of PC. 72yo and worried. Had Biopsy 4 areas 3+3, 2 areas 3+4 but psa >30. Not much info on patients with psa > 30. difficult to stage with that number. PET scan scheduled Really nervous . Any thoughts?
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Irinotecan and diarrhea - Any advice?
I previously had irinotecan treatment but it caused a lot of damage with diarrhea and then colitis. We took 2 moths to recover. Lower dose irinotecan was thought to be still benenificial and we had a second opinion on that from Mass General Brigham. I'm on lomotil but I'm still having regular diarrhea. Any advice on what…
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Anastrazole
looking for people’s thoughts on anastrozole. Also thoughts on ivermectin/fenbendazole and is ivermectin/fenbendazole used only if you have cancer or can it be used for preventative purposes as well? Thoughts on soursop?thanks very Much.