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Leukemia Survivor
I am an Acute Lymphoblastic Leukemia survivor! I was diagnosed at 26 years old in June of 2022 and had a Bone Marrow Transplant in May of 2023. I’m still currently battling some health issues and would love to connect with others!
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Synchronous primary tumors
Hello! I’m writing about my husband. His story—he had a partial nephrectomy at MD Anderson in February 2024 for Stage 1 kidney cancer. At that time he had a CT scan that showed a thickening of the ascending colon wall at 4.9. This March, he had another scan that showed the thickening had increased and there were suspicious…
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My survival journey through anal cancer
I was diagnosed with stage 3b anal cancer in Sept 2022 and while I consider myself a survivor, my experience was difficult, I'm sorry to say. In Aug 22, I started noticing that I was passing blood in my bowels movements. I was 59 at the time and I've certainly had plenty of hemorrhoids where there was bright red blood, but…
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Journey and what next
Hi there, I'm 41 years old and in October 2024 I'm diagnosed stage 4 anal cancer and liver and anterior lower abdomen wall metastesis. At first, I almost got chemoradiation but after found out that it has spread so the treatment has changed. I got 6 chemo (Paclitaxel/ Carboplatin) and testing PET scan soon (now 4 weeks…
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Coping Tips forTaste Destroyed
Hi. I'm on Entrectinib and it is reaking havoc with my taste of food. It has made many things taste terrible. It might be those things that are sweet or have sugar in them. Not totally sure yet. This morning eggs tasted 'almost' normal. And white toast w/spray non butter stuff tasted okay. Any thoughts/suggestions. Any…
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Work - Blacklisted
I'm was diagnosed in June 2024. Completed first round of Chemo. I'm a Private Equity Lawyer (20 yrs) - M&A and Securities. Now, I can't find a position at any law firm. I don't offer why I took such a long hiatus from practicing, but also can't lie when pressed. My career has been a huge part of my life and now I am…
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NavDX positive test
Hello, I have HPV related head and neck cancer. I've had three surgeries....a biopsy, radical tonsillectomy and a full neck dissection. I'm currently undergoing radiation treatments. I was told after removing the tumor from my tonsil that the margins were good and the cancer was removed. I recently had a NavDX test done…
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Turned down for cytoreductive/HIPEC surgery
My husband was diagnosed in early October 2024 with peritoneal and colon cancer (Stage 4). Tumor was obstructing colon (partial) and he started chemo in late October. Had 7 rounds (48 hours each time) and never got sick from chemo and it made him feel 90percent better after a few treatments. Its almost like I have to…
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Unilateral breast reconstruction
Hi, I am a breast cancer surviver and I am trying to make my mind about reconstration or not. I had a radical mastectomy 2 years ago and i am 44yo. I am too thin so the only option would be using an expansor and silicone implants. The thing is, i cannot find any restimonials of people wjo are actually happy with unilateral…
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Alcohol Consumption after Cancer Treatment
Hello, I am a cancer survivor, I had a large tumor on the rear of my tongue and 7 weeks of aggressive radiation and chemo. I just passed my 5 year treatment anniversary and thankfully healthy. Has anyone heard anything about the effects of drinking alcohol after treatment? I'm not a big drinker but I can no longer feel the…
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Continuing bachelor's degree after ALL diagnosis.
I was diagnosed with ALL in the 3rd year of my bachelor's degree. On top of that, my treatment was happening abroad, so I could not physically resume my study during my 36 cycle (36 month) chemotherapy plan. Fortunately, in a post-COVID-19 world, my university was able to offer me a distant learning opportunity to continue…
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Post PSA numbers
My PSA number at 33 days after treatment was .02 (from .42) 🎉🎉🎉 Asked about my hormone shot. It was a 6 month shot (Feb-July). So, sweats and chills to continue 😩 Check PSA again in 90 day 🚜🚜🚜
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I'm so lost and confused
September 2024 I was diagnosed with melanoma and squamous cell carsanoma. I have mohs surgeries and excisions to remove them. Once the biopsies started taking place and the removal started taking place I began to have severe headaches on the left side of my head along with left ear pain,left jaw pain,and pain in the left…
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Confused
I was diagnosed with bc 4 months after 2 brain surgeries to correct essential tremors. My feelings are all over the map. One minute I'm still in shock, the next I'm convinced I'm superwoman and can handle anything, the next all I can think is "damn, I've got cancer". Has anyone else experienced this? How long did it last?…
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Living with stage IV CRC
Very interested in hearing from those who are living with stage 4 CRC as a "chronic condition". My wife is currently in this situation - receiving FOLFOX and Avastin on an ongoing basis, tweaking the Oxaliplatin concentration and sometimes backing it of entirely when the side effects become too severe. She is currently NED…
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Stage 4 rectal cancer with lung and lymph node involvement - radiation and chemo
I am new to this site. I was diagnosed last week with stage 4 rectal cancer and given one year to live with no treatment or 3 tops with treatment. They say it has spread to my lungs but the nodules are very small right now. The tumor in the rectum is huge. Ironically other than rectal pain that is manageable with Advil I…
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Need a second opinion
Hello, I'm a 30-year-old woman, and I'm sorry to ask my question on this forum, but I need a second opinion. I've been having yellow and light brown diarrhoea for three weeks and for just over a week I've had severe back pain (middle/upper back, central and left) and I sometimes have pain under the solar plexus and the…
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Time of first PSA after treatment
I was under the impression they would wait 3 months to do a PSA. But, I just got a text from my urologist to get it done at 30 days That Sound right to everyone?? Have a Great day 🚜🐝🚜
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Post vaginal brachytherapy side effects
Diagnosed with stage 1a after total hysterectomy and will meet with radiologist next week. I was told it is up to me if I want to do further treatment as my pathology was very clean. I would be interested in any potential side effects that you may have experienced with this therapy. The limiting factor is my age (68);…
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Newly diagnosed Stage III 1A
My daughter-in-law (M) was diagnosed with endometrioid adenocarcinoma after finding it in her ovary and fallopian tube while undergoing infertility treatments. My son, her husband, is a testicular cancer survivor (he also had stage 3 cancer). We are beginning this awful journey once again and these boards and advice from…
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Side effects of chemo
Stage 4/gleason 9/metastatic prostate cancer. Mets in 6 lymph nodes and 2 in bones. Due to genetic testing results my Oncologist went right to a triple blast of dartulimide/doxitaxel/carbitol for 7 treatments, along with Zuniga/Eliguard. I was 4 treatments in before the side effects got to me. Pretty bad nausea and the…
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Endometrial SEROUS carcinoma
I was diagnosed with endometrial serous carcinoma 10/21. I had a total hysterectomy, chemotherapy, and brachytherapy ending 6/22. I had a CT and PET scan 7/23 which showed cancer recurring in the retroperitoneal lymph nodes. I have my last radiation treatment today (total of 28) and am wondering if there's anyone else on…
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Metastatic TNBC
My cancer has metastasized to the left lung. I just completed 6 months of chemo and had a mastectomy last October. I was on Xeloda from December 2024 through April 2025. A biopsy last April of the nodule found in my left lung indicated that the breast cancer has metastasized. I am looking for information on what I…
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Entrectinib now for about 1 month...
In late 2020 they found stage 3 lung cancer. Did chemo, radiation and followed up with immunotheraphy. On March 27th this year I had surgery to remove a tumor pushing against my brain. Has anyone else been prescribed entrectinib. Just wondering about side effects. Thanks.
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Ovarian and uterine cancers
I was just diagnosed. Total hysterectomy was done April 23 for endometriosis, pathology came back with stage 3 uterine and stage 1 ovarian diagnosis. I guess you could say that I'm lucky that the ovarian cancer was caught early. I can't get a straight answer from my surgeon about chemo and prognosis. Every cancer website…
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Muscle and ligament issues
So, this is a query for anyone who is post treatment I lost 20 lbs during my 7 weeks of treatment. Mostly from not eating anything but chicken and rice My question is - The ligaments above and below my hips give me issues unless I take 3 ibuprofen in the morning and my middle and lower back are weak and I’m always a bad…
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Are we no longer having a Roll Call?
Didn't see it but may have missed it. Jim K
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Buckle up, it’s gonna be a bumpy ride…
Had a CT scan a week ago to check out my appendix after a colonoscopy, and the radiologist found that I have a “complex multi septate cystic mass with thickened septations and mural nodularity measuring 9 cm x 6.5 cm exophytic to the mid left kidney.” It’s def Bosniak III, potentially IV. My family has a propensity towards…
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Looking for folks taking repotrectinib for ROS1 mutation
My husband was initially diagnosed in 2016 with non small cell adenocarcinoma. He underwent a right lower lobectomy, chemo, and radiation. Fast forward nine years and it is back, this time it has metastasized. He has the ROS1 mutation, the only option for us is a TKI. He started taking repotrectinib April 2. Anyone else…
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Battling prostate cancer
I am 63 years old diagnosed with prostate cancer in October 2024 my psa went from 43.43 to 0.28 in 4 months on orgovyx with lymph node and a couple of ribs involvement my doctor just prescribed nubeqa and now I'm wondering what's next