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2 time cancer survivor!
HELLO EVERYONE!!! I’m so happy I found this site and am excited to share my story and get others opinions! so this all started about 10 years ago, my OB/GYN felt my neck and discovered numerous lumps on my thyroid after scans and biopsies. I was found to have papillary thyroid carcinoma. When they remove my thyroid, they…
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Stories of Beating Stage 4 Cancer???
Hello all. I’m wondering if any of you would be able to share any documented accounts of someone beating stage 4 cancer (either no evidence of disease or long term remission) Preferably colon cancer but any cancer story would be appreciated. I would like to know what that person did to beat it and maybe I can do the same…
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New here, stage 1a upsc
Hello to all of you amazing ladies, My mom at 63, was diagnosed with upsc stage 1a. She had post menopausal bleeding and with an ultrasound a polyp was found. After D&C and hysterectomy, she was surgically staged at 1a, no lymph node involvement, no myometrial involvement, just in the polyp and some in the top layer. She…
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An update and a question on treatment plan
I first posted last month when I was initially diagnosed with prostate cancer. The comments from everyone were very helpful. I finally saw the oncologist this past Friday (3/21/2025). I wanted to give an update on where I stand and ask what you all think of my oncologist's proposed treatment plan (knowing that you are not…
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Transperineal Biopsy and ED
I'm a 55 year old male scheduled for a TPB next week for MRI findings of two PIRADS 4 lesions 7 mm each on the right side, but I also have a trip scheduled the week after with a new girlfriend. Anyone have any experiences with side effects after, specifically erectile dysfunction and how long it lasts? Thanks!
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Week 5 of SRT
Greetings all Radical robotic Prostectomy 12/8/23. Subsequent PSA’s went from 0 to .42 over next 12 months. Doubling every 3 months So, I just finished week 5 of my SRT treatment. No issues first week. Lots of bathroom visits end of 2nd week at one point I was positive that my anus had blown off and I would see it floating…
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Insight on Permanent colostomy
Hello, I was looking to see if some folks here could provide me some information on living life with a permanent Colostomy. I was diagnosed back in 2020 with Rectal Cancer. Since having treatment and an Ileostomy + reversal I have struggled with rectal incontinence. Not having a rectum and the area where my tumor was…
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New here
I was diagnosed with stage 1b adenocarcinoma of the upper right lung. Tumor was 1.3 cm, poorly differentiated with visceral pleural invasion, no nodes involved. I had a segmendectomy 2 weeks ago. I was told by my surgeon I will need to have chemo and or immunotherapy, haven’t seen the oncologist yet. In my research for…
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New PSA level was only a 0.54 as of yesterday;
Greetings all; I was officially diagnosed with an enlarged prostate, and approximately 3 mths later, prostate cancer. My PSA level went up to over 400 points (yikes), but I absolutely felt 100% normal as if nothing was wrong. Immediately, I was enrolled in Cancer Treatment, with only meds, which was to follow up with chemo…
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Hormone therapy for ILC
stage 1, Grade 1 ILC discovered during a preventative mastectomy. Did not spread. It is estrogen receptive, so hormone therapy is recommended. I started anastrozole 5 days ago. I developed hives. Is there a hormone therapy out there with less side effects? I m 62.
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HPV positive
My husband had throat cancer due to HPV 16 stage 4 in 2014 he survived it but recently is having throat and sinus issues as well his taste buds seem to be going again:( … at the time we were told by the doctors that he would be unlikely have a recurrence of the same strain we also had asked if I should be tested and were…
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Time for some support
Long time member of CSN, but have been absent several years. 10 years ago husband diagnosed with stage 4 nasopharyngeal tumor. Treatment was successful in eliminating the cancer but radiation effects over the last 10 years have piled up. Hearing loss, no longer able to swallow so PEG tube feeding, tracheostomy, balance…
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LONG TERM THRIVER HERE!
Hi everyone! Most of you are not going to know me as I haven't been active on these boards for about 12+ years. For some reason I felt compelled to come on here today and check in and see if there were any names I remember from back in the days of our Colonpaloozas and such. I was dx'ed Stage 3 adenocarcinoma of the…
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Update on 2010 diagnosis and treatment
In 2010 at the age of 59, I had Da Vinci surgery with a Gleason 4+5=9 and PSA of 9. Post surgical biopsy showed all margins clear with no seminal vesicle involvement and Gleason post-op score was changed to a 4+3=7. Subsequent PSA was non-detectable as tested every three months for the first two years. Five years after…
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dietary suggestions during pelvic radiation
Does anyone have suggestions for me related to good nutrition during pelvic radiation for uterine cancer, post hysterectomy.
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Live from The Blue Room!
One of the notebooks I brought to the infusion center was my SNL skit writing notebook. The skit I was working on took place in the infusion waiting room, (*ours was called the blue room, because it had exclusively blue chairs). In the blue, blue room (the walls were also blue), every 2 weeks, I wrote down 100s of…
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79 year old with Advanced PC to L-1 & Pelvic
Always have enjoyed the wonderful testimonials from Forums! I Went to ER with Urinary Retention on this past December, 2024. Inserted Cathether due to Very large Gland First Urologist visit confirmed PC, CT couple of weeks later confirmed APC Then PSA with a high Gleason of 4+5.. Had first HT Firmagon injections a month…
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When to consider yourself cancer-free post surgery
Some of you US guys may be familiar with Rick Steves, the travel guru. He has the most popular guidebooks for travel to Europe, as well as TV, radio, podcasts, and tours. He had surgery for prostate cancer last October. Recently, he made an online statement saying he is cancer-free, based on his most recent non-detect for…
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Osteosarcoma Metastases to Lungs
My wife was diagnosed with Osteosarcoma in her right upper arm last August. She went through 6 rounds of chemo and limb salvage surgery. A CT scan determined that it had metastasized to both lungs. She had 13 spots in her left lung and around 20 in her right lung. These were tiny sub centimeter nodules that were barely…
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Good News Received-Recent Scans
Hello, everyone, I just wanted to drop by and post some info on my recent yearly scans. I had 2 CT scans recently, one of the chest (No Contrast) because it is found that many times an H&N cancer will go to the lungs next, so they give me a scan each year as a precaution to watch the area, and I had a CT scan of the soft…
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Decision Time RP or ADT/HDR/EBRT
After waiting 8 weeks for my MRI Fusion biopsy the results are in and not great mostly Gleason 9 (4+9) and one Gleason 9 (5+4). Have Bone Scan and CT Thursday and Friday of this week. Hoping it hasn't metastasized but concerned. I have appointments set up at Memorial Sloan Kettering with Medical Oncologis, Radiaiton…
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Young and postmenopausal
I was diagnosed with cancer at 33 and completed my treatment when I was 34. I am now 35 and confirmed to be postmenopausal due to treatment. There is no undoing it. I am wondering if anyone knows of a support group for young cancer survivors who are menopausal/postmenopausal due to treatment.
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Rising CA-125 No Reason Given
Hello and thank you for reading. My CT and PET show NED but my CA-125 is now 530. It was 81 post surgery in October and started going up in January. I have had constant swelling in both feet since surgery with no diagnoses. (Doctors say they are unsure why.) In January I went on 200mg Niraparib but after severe anemia and…
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colon cancer met to sacrum
Hi I had a resection 2.5 years ago after dr. found a 5cm tumor with no lymph node involvement. everything was going ok until 5 months ago when i started having a nagging sacral/coccyx pain. I thought i just pulled a muscle or strained it. my doctor just told me it might be mets?! I am getting an MRI soon. I just can't find…
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Germinoma brain tumor survivor Question
I was diagnosed with a brain tumor at seventeen years old. I am thirty seven now. The tumor was erradicated with radiation and chemo. My doctors said the tumor could never return. Does anyone know what this prognosis could be based on? Can germinoa brain tumors appear twice in a person's life. What are the statistics for…
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New to this group
I'm 55 and I've diagnosed with MM (plasma cell leukemia) stage 4 about 5 months ago and am in round 3 of my chemo treatment, about 2 months in. I was told 5-6 months of weekly treatment then I will need a stem cell transplant but I'm on the fence on which route to take. I'm not liking the idea of going back to ground zero…
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Anyone have an Incisional Hernia?
I had an appt with my oncologist yesterday and she sent me to a specialist right away due to a large incisional hernia. Apparently my stomach port incision did not hold and now the hernia has gotten quite large. I am going for surgery within the next two weeks or so. Or course, after having ovarian cancer all the red flags…
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52yo Gleason score of 3+4 in San Diego
I have a follow up call from my doctor about treatment, surgery, radiation or continued surveillance. I'm a firefighter and in good health, workout almost every day. Anyone receive treatment in San Diego? I've read about other protocols; anyone try them during active surveillance? Thank you in advance for any response.…
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False positive PET
So in December I had a PET scan with Deauville score 5. One of the nodes where my original diagnosis in 2017 showed SUV uptake of 20. Local oncologist sent me to University Hospital in state. They looked at PET scan and begin talking about clinical trial CAR T. This was second relapse after RCHOP first line of treatment…
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My 22 yo daughter has cancer & long history of mental illness.
My daughter who has struggled with mental issues- depression, self harm, feelings of worthlessness, suicidal ideations etc, half her life, is now going through treatments for Hodgkin Lymphoma. As if life isn’t hard enough for her as it was. Can somebody please tell me how to cope? I too suffer with her. I feel like I’ve…