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Life Update w/ Stage 4 Adrenal Cortical Carcinoma
Hi guys, My name is Cassandra as some of u know my story I was diagnosed in 2021 while being 5months pregnant w/ my son. I had surgery to remove the tumor as well as my right adrenal gland. After surgery I recovered then in late January of 2022 I had my son. Once I was cleared I did 25 rounds of radiation & thought I was…
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Adrenal carcinoma cancer
Just wondering if anyone out here knows much about this cancer. I have been diagnosed, but I think I still have a chance at a good outcome.
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Can anyone relate to these symptoms? Possible colon or stomach cancer?
A little history..I've had a little stomach issues in the past. Has a couple of small ulcers that healed. GERD, acid reflux, been on meds for all that. But, now I have had diarrhea for 4 months straight, bowel movements tend to have a lot of mucus. Recently I started taking Metamucil, it has helped but 1 day without it and…
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Husband’s Taste After Radiation/Cisplatin 10/23
I recently posted about a scare we got from my husband’s new dental hygienist who thought he had another swollen lymph node on the opposite side of his neck from where he was diagnosed with left base of tongue and 2 nodes on the left last July 2023 with 7 weeks of radiation and 7 weekly Cisplatin chemos. Saw his Oncologist…
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What's Joe Tippen protocol
I'm 54 living in Omaha NE, in good health. My routine blood test brought out a PSA 7.3. Ending up to be a prostate cancer Gleason 7. I'm yet to decide what to do. My urologist is suggesting a surgical removal of prostate. I'm just doing my homework. Anyone can instruct me about "joe tippen protocol "? Thanks
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Ewing's Sarcoma
Hi, I am a cancer survivor of Ewing's Sarcoma, AKA Bone Cancer, I am a 19 year old female and would love to share my story with others going through the same or similiar diagnosis of any type of bone cancer. Email Skippy6270@aol.com thanks, Shelly:o)
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Pt1b ccRCC in Nov 23 & (pre-existing) Thyroid nodule
My father underwent a partial nephrectomy last November. The pathology report showed a pT1b Fuhrmangrade II tumor, measuring 4.2 cm. Right after surgery, another CT scan of the abdomen and thorax was done (also before surgery; everything clear with just a small 4 mm lung nodule), and the radiologist noted a 15 mm hypodense…
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MOHS Surgery Shock
I am hoping to hear from anyone having had MOHS surgery and is willing to share your recovery and healing process, including products and/or procedures used. I had MOHS surgery two days ago to remove a cancerous spot in the area between my upper lip and my nose. The spot is about the size of a pencil eraser…but I ended up…
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Kidney function - terrified (again)
hi everyone. First off, I so appreciate your support over the past year as my husband’s diagnosis and treatment. He received fantastic report from his first pet scan after treatment at the end of June. Since then, he has steadily improved with his energy, taste and finally the pain when swallowing is subsiding.…
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Won't schedule surgery because I'm paying cash
Hi All, I was diagnosed with colon cancer in April, It took until June to have the colonoscopy done. The tumor is located in the ascending colon and Dr requested a surgical consult on June 28. Tomorrow is August st and the appointment is still not scheduled. When I asked why they said it was because I was paying cash…
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Pancreatic What treatments work best
So my mom was diagnosed with Stage 4 pancreatic and it's in her liver. She started with only gallstones but they didn't want to remove her gallbladder because they were bigger and not going any where. All of a sudden she was having issues eating food. Each time caused severe pain in upper abdomen and doubling her over. CT…
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A Wake-Up Call
Let me share something personal that happened in my family recently. I wanted to share this because it might help someone else out there. A few months ago, my cousin Mike, who is in his early 50s, started experiencing a lingering cough and shortness of breath. At first, he chalked it up to allergies or maybe a mild…
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DaVinci Recovery Question
I had a successful prostatectomy via the DaVinci robotic assisted method (7 hours) in July of this year. My first PSA test post surgery was a non-detect and I'll test again next week. The incontinence has all but disappeared with the exception of occasional spotting but I'm wearing a pad so there hasn't been any issues. My…
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Breast radiation and headaches
I had a lumpectomy Feb 2024, I had to wait too long for an oncologist so chemo would only be effective 1.2% for my triple negative breast cancer- I finished radiation Aug2 and 4 days after the constant shooting headaches have been nonstop and terrible- the cancer clinic and staff will not acknowledge that these are from…
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CT scan says the following..
LUNGS: Redemonstration of a posterior right lower lobe subpleural nodule measuring 9 cm, and a linear bandlike opacity likely representing scarring in the posterior middle right lower lobe, which are both stable from prior. My question is are lung nodule's measured in centimeters? Thanks
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Question About New Neck Lymph Node After Radiation/Chemo in 9/2023
Hi Russ and All, Only because I tend to be a little more pragmatic and intuitive instead of initially panicking, here I am again. My husband was diagnosed with Stage 1 base of tongue cancer (HPV+) in July 2023 (so a little over a year ago). He had 7 weeks of radiation to his left base of tongue and left 2 affected lymph…
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Pathology Report Question
Good afternoon, My father had robotic surgery to remove the prostate following a PIRAD 5 Prostate MRI (No lymph involvement) and a postitive biopsy showing Gleason 3+3 and Gleason 3+4. Surgery on 9/23/24, deceived the unfortunate news last week that there were positive margins. Conversation with the surgeon was a 2 minute…
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NavDx test
I am aware of for a lot of people NavDx test is a great help but unfortunately my husband has not been lucky enough to be one of them. He got diagnosed with HPV+ T2N1M0 squamous cell carcinoma(SCC) on his left tonsil in June 2023. He went through surgeries, 33 sessions of radiation plus 6 sessions of low dose cisplatin. He…
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Profession of childhood cancer survivors
Hello, I wonder whether having had cancer as a child, makes people want to be doctors, nurses, lab technicians or any other health profession. I had leukemia as a child and am now working in a lab doing medical analysis. I chose that job because I wanted to learn more about leukemia (what it was exactly, how it was treated…
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Absolutely TERRIFIED
HHi folks, I must say, it really hurts to have to join this forum. MMy situation looks bad because what I THOUGHT was an ingrown whisker is obviously cancer. My nurse yesterday knew as soon as she saw it. She said unfortunately, the waiting line to see the dermatology doctor is around 2 months. PProblem is, I assumed this…
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Port Removal
Hi, just curious after port removal how long it takes for the spot to heal. I am still have a small lump where the port was 8 weeks out.
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Incontinence
Hi Everyone, I hope all is well, or at least doing better. In 2 days I will be 4 weeks post-op, and all seems to be going good. In fact, the incontinence is less then what I believed it would be. My question is, for those that are 3, 6, 12+ months post-op, does it get less, stop, more, or is it a mixed bag (with/without…
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Prostate cancer stage4 metastatic
where to begin ….. Made a big move from beautiful Oregon coast to Henderson NV, to be close to his family (and mine in San Diego). His cancer isn’t curable and how much time he has ? No one knows. Did it for him to be close to his family for me moral support and help down the rd. It has backfired he is angrier then ever…
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Power Port and Chiropractic care
Has anyone had any experience with getting Chiropractic adjustments with a power port? Safe? Not safe? How do you know if something's wrong?
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Advice for 84 year old male going through chemo/radiation stage 4 esophageal cancer
my friends father just had his first treatment of chemo for stage 4 esophageal cancer. The side effects are such that he is expressing regret at beginning treatment. He still has more treatments and radiation as well. What advice to you have for both the patient and his family? Do you sympathize and encourage? Do you let…
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Signet ring cell cancer - timely treatment
A couple of weeks ago, my mom was diagnosed with stomach cancer. After a series of follow-up scans and a laparoscopy (which felt like a rollercoaster ride with torturous waits!!), the doctor diagnosed her with T2N0 - still relatively early stage. However, her endoscopy results were already suspicious of cancer back in July…
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CAREGIVER REMINDER
As a caregiver, we know how difficult it is to watch a loved one battle cancer. It is terrifying to watch the person you care about so deeply grow weak, lose their hair, not be able to eat, and in worse times lose all of their independence in the world. Often times, you as the caregiver feel helpless. There is nothing you…
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neoadjuntive chemo
Has anyone else with hr+ and HER2- lymp node positive started with chemo and then surgery. I still not understanding why. surgeon says this is how its done and it will help shrink lymp for better removel. Onoco. says its protocal and the best way to do it???
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Pain around penis, testicles, anus, like prostatitis pain after prostate surgery Is this normal?
I had prostate surgery around 2 years ago. So far my PSA is still undetectable. However I now have pain that comes and goes, like a burning sensation / spasms sometimes around my penis, testicles, anus. ……Like pain from prostatitis (but no prostate now so that's not possible) They did a test for an urinary tract infection…
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Anyone have debulking after 6 rounds of chemo? (Cross posted in Ovarian group)
Hi everyone. I was diagnosed with stage 4 uterine with spread to omentum and peritoneal carcinomatosis in late Feb 2024. Not a candidate for immediate surgery. I did 3 rounds of carbo/taxol and Jemperli (immunotherapy) then a CT scan that was essentially unchanged but stable. I completed 3 more rounds followed by another…