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Our dear CSN member, Danker, has passed away.
For those of you who have been here many years, I wanted to let you know that dear, sweet friend, Danker, passed away in January. AND, he passed away at a grand age, and not from Cancer. I have kept in touch with him, all these years, and when his recent birthday card was returned, I knew that he had gone to be with his…
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Late relapse of DLBCL Facing R-ICE and ASCT
After a long absence, and without invitation, it is back. Late in 2012, I felt something on my neck that kept growing. It was diagnosed as DLBCL and in early 2013, I went through R-CHOP followed by radiation. All was clear until early June, 2020 when I felt a similar lump on the other side of my neck. After 2 months of…
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Non detectable to detectable PSA
I believe I'm experiencing a slight rise in PSA? I finished 40 IMRT treatments 3 months ago and have been on ADT for almost six months. My PSA 3 months ago was considered undetectable at <.04. Just got my current PSA result now at .04 without the less than sign. Might this be a concern?
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Diagnosed with Stage 3 Rectal Cancer – Beginning TNT
Hi Everyone, My wife was recently diagnosed with Stage 3 rectal cancer at 10 cm. The surgeon has recommended TNT and a “watch and wait” approach. We are very worried and want to get started with TNT as soon as possible. We have appointments with the medical oncologist and radiation oncologist this coming Tuesday. As we…
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Has Anyone Explored Ivermectin for Cancer?
Hi everyone, I’ve been reading about off-label drugs like ivermectin in cancer research. I came across a few small studies and survivor stories. Has anyone here explored or heard about this? Curious to learn from others.
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Eating
I am about 8 weeks post surgery. Does eating get easier?
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Need to Make a Decision
New to the community. 53 years old and intermediate favorable. Gleason 3 + 4. Need to make a decision but going through the same struggle as everyone else. Three main comments/questions that I would appreciate any insight or commiseration. Everyone says do your research. I am finding all that does is lead to a circular…
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Fiancé left me due to the pressure and the future
Hi, I am new here. My name is STUART and I just had surgery to remove my prostate cancer on July 16. Since then, my recovery is going well, but 2 days ago my fiancé has decided it was too much for her to handle and left me. I don’t know where to reach out to or who else to speak to about the constant depression and feeling…
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Caregiver
I am trying to find out how to be my little sisters caregiver she was diagnosed with stage four melanoma brain cancer metastatic a week after her 48 bday in November 2024 and since then she can’t work drive or be alone so I have had to quit my job and she now lives with me in my camper, and I have been told be several…
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Recurrence Anxiety
Hello. My name is Jeff and I was diagnosed with Rhabdomyosarcomo at age 9. I underwent a little over a year of chemo and a short stint of radiation therapy. I've been cancer free ever since. I am now a husband and a father to 3 beautiful little kids. When I think about how well my treatment went and how trivial the long…
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When to Override Parent?
My mom, 74, was very unexpectedly diagnosed with stage-4 lung cancer in October 2024. The cancer is in her lungs, liver, bones, brain, and a few other fun spots. The bone and brain lesions scare her the most. Anyway, she's been on Tagrisso and responded really well, but her most recent PET scan and MRI (last week) show…
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Stage 4 Signet Ring cell adenocarcinoma
Hi good night, I know this is a late post but I am petrified for my mom. She has been diagnosed with stage 4 signet ring cell adenocarcinoma since April of this year. She was completely healthy until she complained about pain in her stomach and not being able to eat much. Is there anyone with this prognosis out there? I am…
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Smoldering multiple myeloma
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Lung adenocarcinoma with lung metastasis stage 4
Hello all haven’t posted a new post since March. I was diagnosed with stage 3a lung adenocarcinoma in January 2025, I had chemo/ radiation in March then had my follow up in May. My lung tumor shrank considerably and my lymph nodes were clear, but there were several growths in my liver. I just had an MRI on July 23, and…
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anyone decline hormone therapy after surgery and radiation?
I had a lumpectomy in November for stage 1 (.8cm) ILC with sentinel node biopsy (no spread). That was followed by 21 sessions of whole breast and targeted radiation. My Onc score was a 6 so no chemo needed. My tumor was HR+, HER-. My oncologist told me my chance of recurrence with the hormone therapy is 3% and doubles to…
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New to site bit new to battling cancer
hello everyone Am new to this site. Not sure how everything works yet. Will say to those who are curious to please check the summary in my profile Am happy to answer any and all questions on my battle and journey Peace and love to all my cancer battling sisters and brothers :)
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Hallelujah diet
I found a question from back in 2012 about this diet. I wanted to note my experience with it. I was found to have Hashimoto‘s thyroiditisH level of 115 which is comatose, and many tumors which turned out to be atypical. The to remove my thyroid. A coworker told me about the hallelujah diet. Back then we could visit the…
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What is physiological FDG uptake on a PEt scan?
I am reading my mother's report and there is this Physiological FDG uptake in her brain and lungs. I'm thinking this is not very good. ANy thoughts?
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Options when there’s no Primary?
Ever since what was thought to be a benign branchial cyst removal ended up as P16+ SCC lymph node (one) the docs have been searching for a Primary cause of this cancer. My husband has has PET scan, MRI & NAVDX - all come up clean, no “light-ups”, 0% disease. TORS procedure also identified no definitive primary even with…
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NavDx test
I am aware of for a lot of people NavDx test is a great help but unfortunately my husband has not been lucky enough to be one of them. He got diagnosed with HPV+ T2N1M0 squamous cell carcinoma(SCC) on his left tonsil in June 2023. He went through surgeries, 33 sessions of radiation plus 6 sessions of low dose cisplatin. He…
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Mesenteric lymph nodes - growing after stable for years
Hi everyone, This is my very first post, so thank you in advance for reading. My husband recently found a palpable mass in his abdomen, and an ultrasound revealed that one of his mesenteric lymph nodes has grown. The largest measures 30mm. We’re currently waiting for an appointment with the haematology/oncology team, and…
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Stage 4a rectal with Mets to lung
35 yo diagnosed with rectal cancer last year. Had radiation, chemo and colon resection and had negative CT DNA bloodwork in January. Bloodwork came back positive in April have one spot on the right lung and one spot on the left lung. Have to meet with a thoracic surgeon interventional radiologist but they said no…
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Right renal cystic lesion 3.2cm
Hello 48m I was wondering if anyone had any information about my CT w/contrast or US report I have an appointment set with urologist in 20 days, long wait and very worried. US -2 complex cysts, the larger in mid region is 2.8x2.0x3.2 in 2019 it was 1.5x1.1x1.1, margins are irregular. Internal septations noted. No dominate…
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Kidney Cancer returned in my spine
I'm 56 now and had kidney cancer in 2008 and got my right kidney removed. In August 2024, I was diagnosed with stage 4 renal cancer that attached itself to my spine. The cancer was pushing on the bone and my spine was close to fracturing. I had 8 hour surgery to get screws and rods inserted to stabilize my spine. I was too…
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Terms, sizes
Husband 73..survived prostate cancer 10 years ago. In March on vacation he was urinating blood. Went to urgent care ruled out kidney stone. Contacted urologist back home, had ct scan with and without contrast, ultrasound . Findings were nodule on adrenal gland 0.9 cm exhibiting and absolute washout of 39.7%. Along the…
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Looking for information
My MRI shows. heterogeneous complex cyst versus mass 3.8 X 5.6 cm in size. I’m a person that likes to hits things head on and make the best out of them. I have to wait for a few days until I get the CT scan. Be honest with me … what is the likely hood this is cancerous. Thank you Craig
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Checking back in -
Hi Everyone - I wrote that initial June 15 post after good followups from my kidney doc. Then I disappeared and went to ground because… on a completely unrelated scan, something "of concern" showed up in a lymph node behind my sternum. I have a clinic appointment July 31 back in Iowa and a biopsy on August 01. It's been a…
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Happy
Cancer has touched my life in many ways. In 1980, I lost my mother to ovarian cancer when she was just 28 years old. Her death left a profound impact on me, and I’ve carried her memory with me throughout my life. This year, cancer struck closer to home than I ever imagined—this time, within my own body. On October 2, 2024,…
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DCIS
I was diagnosed with DCIS January 2. From my first mammogram in November to surgery in March, I have struggled. I hear that DCIS is not cancer because it’s non invasive. I read that it’s pre cancer. Anyone else with DCIS struggle with this? My treatment has been the same, to some extent, as if it was cancer. I even feel…
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Mental Struggle with Breast Implants
Hi. I had dbl mastectomy late April and reconstruction surgery for breast implants June 6th. Im struggling mentally making the connection with what I see but no longer feel. Im grieving the loss of my own breats. Is anyone having this experience? Any advice on how to cope? Swelling issues dont help. Hoping to connect with…