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Anybody familiar with Dr. Dattoli's center in Sarasota, FL ??
Due to PSA rising after RRP in Dec. 2010, I am looking for the best follow-up radiation. Any info will be appreciated. As well as other recommendations. After checking his website, I'm not sure about the advantages of his different tests including "color flow doppler ultrasound" and "DART (Dynamic Adaptive Radio Therapy)".…
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Sexual Health and Life with Cancer
My husband was diagnosed with Stage III Testicular Cancer almost two years ago and underwent four rounds of chemo and an RPLND (among other surgeries like the initial orchiectomy and a lung wedge ressection) over the second half of 2012. 2013 was all about recovering from surgery and he's still in a lot of pain every day…
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On-line ostomy forum
For those with an ostomy because of cancer (like me), you may want to also join meetanostomate.org. I think this site has been mentioned on this site before but its been several years. Like this site, people with ostomies (for any number of reasons) share advise, encouragement. Having recently joined both sites, I have…
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Port removal
the doctor surprised me at my last visit. In April of last year I had a tumor removed from my colon and a met just on the outside of the same area. 12 treatments later including 5fu pump Two positive lymph nodes after surgery of removing both I have not had a positive test. Two CT scans and tumor markers have all been…
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Ivermectin/fenbendozole
Has anyone seen any discussion on the use of both of these. With cll there is no tumor to attack. Am i wasting my time?
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How long did chemo curls last?
How long did your chemo curls last? I was done with chemo last Aug and thought they would last about 6 months, but they are still here. Trying to decide if I should keep it short or let it grow. Don't want to suffer through the fro, only to have it start coming in straight again, and have to cut off the curls. My hair…
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Cancer of the Ear Canal
I was recently diagnosed with invasive squamous cell carcinoma of the ear canal. I had an initial surgery to remove the visible tumor and to biopsy it (which led to my diagnosis). The first pathology report was inconclusive so they sent it on to experts for their interpretation, which resulted in a diagnoses of SCC. They…
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I want to quit treatments
I am struggling! I am teetering on if I should quit my treatments and get the only kidney I have removed and go on dialysis. The treatments seem to be killing me faster than the cancer. I can’t eat because my mouth is very sore. I have no appetite and when I do have an urge to eat, I’m in pain. I struggle with getting…
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Radical Nephrectomy in Oct 2024 - Unsure of Next Steps
Hello, first off, let me start out by saying that I am grateful for this community and the courage you all display. I am hoping for some guidance on my cancer journey to better help me advocate for myself. In October 2024, I went to the emergency room after a month of seeing small traces of urine in my blood. I was…
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4 Years NED
Had my 4 year follow up in June. Wanted to check in because it has been a minute. I was stage 1a and grade 1 clear cell RCC. My tumor was also partially cystic which I have been reading can be predictor for recurrence. Mine is unlikely to return. I like to post so hopefully if people are looking for info and have the same…
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Lower Heart Rate Than Before Surgery
Did anybody experience a lower heart rate after surgery than before it? I am one week post robotic partial nephrectomy and my heart rate is about 15 beats slower than before across the board so my resting heart rate was at low 70 now it’s in the low 60. My sleeping heart rate is a low 50s dipping into the high 40s (was in…
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Started to research kidney transplant
Today I took a huge step in calling the hospitals that do kidney transplants that are within my insurance network. There were only 2. My oncologist is not on board with me looking into a transplant. They aren’t sure yet (it’s been a year) if the nodules on my lung are cancerous. They are too small to biopsy without…
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Good news source
just an FYI - Some people may not like the source, but I’ve found that the GROK3 app gives me good and reliable answers to my questions about my surgeries and treatments Just saying Have a GREAT weekend 🚜🐝🚜
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Battling Chronic Myeloid Leukemia
I had a Brother that was a year older than I am, who passed away from Stage IV Liver Cancer in November, 2022, and I'm a 72 year old female, living with Chronic Myeloid Leukemia.. I was Diagnosed with Leukemia on: April 27th, 2023, which was 5 month's after I lost my Brother... I stayed in the Hospital for about a week,…
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Hepatocellular liver cancer
Hi, my husband of 41 years died of HCC on January 20, 2024, 26 days after being diagnosed with liver cancer. He had both a CT Scan and MRI in March 2023 which showed no masses or nodules. We are heartbroken and devastated about how fast and aggressive this cancer spread. He was a non smoker, drank an occasional beer on…
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da Vinci robotic single port surgery using the Trendelenburg position
Are there many prostrate cancer patient treated using this technique? How to you find doctors that can do this? Can anyone share their experience if they were treated like this? Please forgive my rambling (see below) and thanks for listening (reading). Greetings. This is my first post. I was diagnosed with a small (.3 cc)…
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Need help for my mother's Cholangiocarcinoma
I am posting on behalf of my mother. She is 63 years old and was diagnosed with Cholangiocarcinoma (Bile Duct Cancer) 20 months back. When we detected it, the cancer had already spread a lot. She underwent whipples surgery, followed by 6 cycles of Gemcitabine + Capecitabine. Then another 15 rounds of radiation. We thought…
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Post chemo issues and severe foot neuropathy
I am nine months post radiation and chemo and still have hand tingling and finger numbness along with severe foot neuropathy (albeit somewhat better than five months ago). A month after chemo my feet (and left leg up to my knee) got severely worse from just the pins and needles feeling that developed after the fourth chemo…
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OSCC of the tongue, heading into chemoradiotherapy...
Hi. My name is Gary Chau. I am a 40 y/o male diagnosed with OSCC of the tongue back in May 2025. My story begins almost a half a year ago after I bit the left side of my tongue. After a day or two it healed up like most tongue bites do, however, in the following weeks it had formed into what I thought was a canker sore.…
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opinions and experience? time of day taking Relugolix (Orgovyx)
Hi y'all. I had a heckuva time deciding on treatment, having had several options. I settled on ADT, HDR brachy and photon radiation. If I recall correctly I'll get 65 gray total radiation. and I'll start with ADT - Orgovyx for 6 weeks before radiation starts. I was advised to take the pills any time of day I choose, but be…
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Leaukimia
Any one tell about lekuma how to survive from this
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tram flap and pregnancy
I am 32 yrs. old & I recently had a bilateral mastectomy and tram flap reconstruction. Have any of you become pregnant after having this procedure? I need advice...will it be difficult...did you deliver vaginally...was there really enough room for the baby the develop properly? How long did you wait before becoming…
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An Inspiring Lady Trying To Help And Inspire Others
Below are a couple videos of a very inspiring lady who, like all of us on here, suddenly had head and neck cancer to deal with. And like many of us, it changed her life forever. But she fought on and is now a motivational speaker. I found her very inspiring and just wanted to share this with the rest of you on here. Maybe…
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Tram Flap and Complications
TRAM FLAP RECONSTRUCTION AND ABDOMINAL BULGE/PAIN I had the Bilateral Pedicle Tram Flap in 2012. Less than 3 months later, my abdomen began to grow larger and, very painful. After chemotherapy finished, I began to investigate...being an RN, it’s in my nature to look at online journals. I knew something was wrong, but what?…
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Right hemicolectomy in a couple weeks. Looking for info on hospital and recovery experiences
Hi. Newly diagnosed with ulcerated invasive moderately differentiated adenocarcinoma (boy I hope I got those words in the right order…). Surgery coming up in a couple weeks. I'm getting and seeing inconsistent info on how long I might be in the hospital and what I should be prepared for coming home. I know it's different…
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Treated for follicular 3B in 2017, now dlbcl
hello, my husband had aggressive follicular lymphoma 3b in 2017 which he was treated with rchop. Now, he was just diagnosed with DLBCL which they believe is closely related to the one he had in 2017. im just looking for similar experiences. We have two very little kids and I am currently pregnant, so we are worried sick…
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my wife just diagnosed with breast cancer
I finished surgery, chemo & rads in 12/21 for cancer on my tongue. NED so far. My wife had biopsy last week and MRI yesterday. We see the surgeon tommorrow. It appears based on what she has been told so far by the nurse navigator that it's either a lumpectomy w/ radiation & hormone treatment OR a full mastectomy and no rad…
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Irinotecan and diarrhea - Any advice?
I previously had irinotecan treatment but it caused a lot of damage with diarrhea and then colitis. We took 2 moths to recover. Lower dose irinotecan was thought to be still benenificial and we had a second opinion on that from Mass General Brigham. I'm on lomotil but I'm still having regular diarrhea. Any advice on what…
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Sertoli-Lydig Stromol cord Ovarian Cancer
Its supposedly the most rare type of ovarian cancer. It affects the connective tissue in your ovaries and makes your hormones go out of control. The tumors grow huge and rupture causing you to bleed internally. Most of the doctors Ive seen have never treated a case. Has anybody else had it or know somebody who does and if…
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Shoulder Pain and Dysfunction After Radiation
Remembering that I have had radiation twice, most will not run into this problem. But some will, and as I've not seen a reference to it before, thought I'd talk about this situaton. It has taken me awhile to figure out I had a problem. Beginning soon after my last radiation, I started having mild bilateral shoulder pain. I…