The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Thank you for being a part of the Cancer Survivor Network community. Survivors and caregivers like you have played a unique role in fostering an online environment that encourages connection among those needing support, community, and education. On May 28, the Network will be discontinued. More details are available here . If you have any questions, contact CSNSupportTeam@cancer.org. Thanks again for the support you’ve provided each other over the years. We remain committed to supporting you in other ways throughout your cancer journey.

Cyst has grown slightly over the past 6 months, other medical issues

lhhillman
lhhillman CSN Member Posts: 10 Member
in Ovarian Cancer #1

Hello,
Last September I was diagnoised with a 3.5mm cyst. Had a transvaginal ultrasound and a CA-125 (number was 8). Had another ultrasound 5 weeks later, was diagnosed as a simple cyst.

I have had several CT scans over the past several months and the cyst is now 4.2mm

In February, had an ileostomy. Seeing my gynecologist today-she is ordering another ultrasound and a C-125.
If the results show that a biopsy and ovary removal is indicated, does anyone here have experience with an ileostomy? Also, what about requesting a biopsy and subsequent removal of the ovaries if the cyst turns out not to be cancer.

Thank you

Like Care

Comments

  • larcon3922
    larcon3922 CSN Member Posts: 31
    edited April 2025 #2

    Hi there, I hope you’re feeling well. My first question is : are you of childbearing age? If not, my advice is to get a total hysterectomy for prevention from ovarian cancer. I had a similar situation like you and because I was younger back then my gynecologist did not want to do a hysterectomy, 40 years later I ended up with stage 2A ovarian cancer that could have been prevented if I had a hysterectomy. I had the surgery in 2021 then I had a recurrence in 1 year, 2022 then had another surgery with a total of 2 year’s worth of chemo. I went through a lot but will be in 3 years remission in October. Do ask your gynecologist recommendation, they have a lot of experience in situations like this. Keep the faith and take good care. I’ll pop in once in a while to chat.
    Connie L. Crowe

    Like Care

Discussion Boards