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RECENTLY DIAGNOSED WITH PAPILLARY THYROID CANCER. THYROIDECTOMY?
Hello everyone, I am a 44 year old female and was diagnosed with papillary thyroid cancer on January 17th of this year. Is a total thyroidectomy the best option for me?! Hoping you can help! Here's my story - In the fall of 2023 I woke up with "frozen shoulder" (adhesive capsulitis is the medical term), in my left…
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Cramps and Waiting for Biopsy
I am scheduled for a biopsy and SIS in about a week due to post menopausal bleeding. The doc prescribed Medoxyprogesterone to stop the bleeding. However, I started experiencing lower pelvic cramps a few days ago, that oddly starting late morning and going on until I go to sleep. When I was bleeding, it also tended to be…
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Are the chat rooms down or just gone from the site? Anyone know?
The few times I have tried to get into the chat rooms, I can't. Is it just me or are they not working again?
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side effects of Folfiri
I found out my colon cancer as migrated to my Rt lung. I was previously on Folfox, and on Folfiri and just completed my 3rd cycle. When did people start noticing hair loss or thinning? Folfox my hair just thinned
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liver cancer
can anybody give me advice? I had my 4th folfox chemo and had breathing issues. I feel like my Dr does not take this seriously, we will see…I was admitted, and they did many tests and said I was ok. I told my lung Dr and she bumped up my asthma inhaler, she dsaid I will not step on your cancer Dr feet, I let him see if it…
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Latest Check-up Results
I had my 3 month checkup today, and the good news is that my PSA is still undetectable, but my Testosterone has only risen to 26. But, by far, the most important test result is that my PSA is still undetectable. Life is good. My Related History and Data: Post-Robotic Prostate Removal Surgery Pathology Report A. Lymph…
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Options when adjunct or salvage radiation can't be used?
I am almost 5 months out from radical prostatectomy. 1st PSA at 3 months was 0.39 (quite high) and 0.40 at 4 months. This suggests a doubling time of about 27 months, although that can change over time. I was Gleason 3+4 (40% 4) with cribiform pattern. The margins were positive at both sides and the base. He only took out…
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long term survivors
Are there any other long term childhood cancer survivors out there ? Does anyone need to talk to a long term survivor.
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Treatment breaks and STD/LTD
hey there! I am a caregiver for my boyfriend who was diagnosed with stage 3 rectal. He is hopefully finishing chemo tomorrow and then will start radiation+oral chemo and finishing up with surgery. You all know how that works. Prior to surgery we are told he will be on a break to give his body time to recover and heal from…
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TritonMaxx For Ed In Today's Men Not Good!
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Taste - Post Treatment
So, I am now 13 days post treatment. Everything seems to be healing well. I think I may be one of the lucky ones, as I have been seeing signs of improvement for about a week now. my concern is with taste. I've had no changes regarding my taste... still taste nothing! I was reading some posts and have become confused as to…
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Scared & Emotional
After waiting 16 days, without my PCP giving me any info except a referral to a Hemotologist, I was told I have CLL. I now have to wait 7 more days to find out "specifics". The lack of communication with my health care providers is frustrating. I'm staying positive with my family & friends, but silently I'm freaking out.
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Using Zinc for Return of Taste?
Hi All Again, I forgot to add in my last post of several days ago that at some point near the end of my husband’s base of tongue SCC treatment (ended 10/24/23) that I was searching on this Board about taste returning. Someone mentioned they took Zinc supplements and it helped them. Scientific I don’t know but we asked his…
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Sleepy, tired, exhausted, forgetful, yes sometimes depressed
Hi Everyone, Does anyone have a suggestion, or the best trick besides healthy lifestyle, I personally follow, on how to alleviate TIREDNESS when taking Revlimid as maintenance therapy or plain therapy as it's for me? I won't give up writing (and reading) since they are my preferred indoor activities. Chemotherapy…
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Vectibix Rash
Just started on Vectibix last week. Acne rash started yesterday. I called my oncology Doctor today and he called in a prescription for Doxcyline, but only gave me enough for 7 days with no refills. I have read past discussions that other people has taken this and it has helped, however, what I gather from the posts is that…
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Advocate for Yourself!
Hi all! I previously posted about the problems I have 9 yrs post chemo. What i wanted to say was that when I started having side effects during chemo, my Oncologist and the pharmacist said they had never heard of those side effects and it couldn't be from my treatments. After chemo when my neuropathy really started kicking…
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Happy Easter Wishes to All 2025
This year I am wishing everyone a wonderful Easter as best as I can on here.. I had posted this message in a different form, and this site policy caused it to be removed. I cannot tell you the truth, or my post will be removed. For that matter this one may well be also I am not allowed to post XX xx xxxxx, xx xx xxxxx…
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Long term Chemo induced neuropathy
Hi. I was diagnosed with 2 types of Ovarian Cancer in 2015. After chemo I became disabled with peripheral neuropathy and my entire life as I knew it changed. Fast forward, I noticed pain and neuropathy symptoms worsening about a year ago and now I have pain, burning, extreme muscle tightness and pain if I'm touched on my…
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HR+ Her2-/Menopause Treatment Options
Hello, I have HR+/Her2- beast cancer, and the treatments have thrown me into instant menopause. Are there any non-estrogen-based over the counter meds/foods/natural things I can use to help? I'm in a lot of pain with the menopause itself on top of the cancer. At the same time, I don't want to take something that will feed…
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Update on my esophageal cancer
I had an esophagectomy on Oct 2 to remove a squamous cell carcinoma tumor. I was stage 2 with no metastasis. I had a complication after my surgery (an Anastomotic leak) and spent an extra month in the hospital. It was a rough time and I was pretty ill. I lost 37 pounds. I am doing better now, thankfully. I have recently…
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ER+, HER2+ breast cancer. New here, Nervous, have questions
was diagnosed with Stage 1, grade 2 er+, her2+ breast cancer. No lymph node involvement. Very small. Lumpectomy, 16 rounds of radiation, currently doing immunotherapy (session 9 of 18)and on Letrozole. My reason for being nervous…..although protocol called for me to do chemo, my oncologist felt I would be a good candidate…
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Looking for information regarding immunotherapy infusion : keytruda
I am looking for some information regarding immunotherapy treatments . I am inquiring for my husband. He had prostate cancer & bladder cancer. Prostrate removal & cystectomy in 2023. Now the cancer is back & the Dr would like to try immunotherapy & possible chemo. I would like to know about reactions & any other advice for…
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Milestones Reached
ok. I’m 11 days post last treatment (#35). I’ve reached a couple of milestones 1 - zero diarrhea. BM’s are solid (making timber😎) 2 - I can stand up and pee 🎉🎉🎉. That’s because I can now trust a fart 😜🤣😜 3 - I can eat “normal” food without my wife hearing my stomach growl in the next room 🤓 4 - Haven’t had to take a nap in…
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Radiation for refractory PMBCL: proton v photon
I have Primary Mediastinal Large B-cell Lymphoma and the chemo didn't work. Started working and then quit responding. Now I am in between Photon and Proton therapy and not sure what to do. Has anyone on here had any experience in this? The Proton would be at 60Cy and the Photon at 20cy. CAR-T as well. Anyone have any input?
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Impending surgury
Ok this is the story. Diagnosed in Jan. after annual physical showed psa 28.1. 58 years old first psa, not sure why I just never asked and DR never requested. Biopsy first of Feb 5/14 cores all 3+3=6 all bottom left side. % of cores, 100,98,95,90,35. Psma pet end of feb. No metastases, DR wants to do sergery and remove…
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Battling Chronic Myeloid Leukemia
I had a Brother that was a year older than I am, who passed away from Stage IV Liver Cancer in November, 2022, and I'm a 72 year old female, living with Chronic Myeloid Leukemia.. I was Diagnosed with Leukemia on: April 27th, 2023, which was 5 month's after I lost my Brother... I stayed in the Hospital for about a week,…
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Choosing not to do Hormone Therapy after Lumpectomy
Two months ago I had a lumpectomy to remove Grade 1, Stage 1 Estrogen Progesterone positive mucinous cancer. My oncologist wants me to take Aromatose as I am 74. This drug is known to cause bone loss. I am .1 point away from osteoporosis. A Mammoprint test was done and the outcome shows a possible 98% non recurrence with…
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Hope for erections after prostate surgery-3yrs 2mos later!!
Here's some good news! After 3yrs 2 months right out of nowhere in the middle of the night I was awakened by the first ever nighttime Erection since my surgery. Now , I have been getting okay erections for the last 2 years, but I haven't had a spontaneous erection in my sleep since my surgery. It actually amazed me and I…
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Post week 2
just a note for anyone in or through treatment I’m on day 3 of 2nd post week. Feeling better every day. No nap yesterday. Just worked through the fatigue. Doing same today. Disappointed that I have to wait 90 days for first PSA. But, is what it is As I said before, 20 yrs in navy so I have no boundaries. Feel free to ask…
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Young Esophageal Cancer Patient
Hi everyone, my name is Emily, and I was diagnosed with Stage 3A Adenocarcinoma of the Esophagus at the age of 26. I wanted to share my story with those who might find it helpful, or just insightful in the journey of someone going through this cancer treatment at this age. In May of 2021, I ended up in the ER with upper…