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Maling porocarcinoma
Anyone out there who have any experience with this rare diagnose? My dad got his diagnosis 7 month ago. It has now spread all over and there is nothing more they can do for him. But no one can tell me what to expect because no one knows anything about this type of cancer in Denmark, where i'm from. So if you know anything,…
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7 year follow up
Last week I went up to Cleveland Clinic for my 7 year follow up. I met with 2 different NPs (3, if you count the one that was shadowing). It was pretty routine - lots of questions, say ahhh, scope through my nose and down to the original BOT site, say other syllables, etc. Everything looked good and I once again proved to…
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Hello
I just read my blood test results and my thyroid is through the roof at 9.30. I was diagnosed in 2021 with brain,spine and lung cancer. September of 2022 I ended up in the hospital for 30 days with pneumonia. I wasn't supposed to make it out. I was told to prepare for end of life. Well, I did make it out. But,…
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Any one had a rare side effect called Triple M overlap syndrome (TMOS
I’m looking for any one who’s has had a rare side effect from immunotherapy called Triple M overlap syndrome (TMOS) Patient is stage 4 NSCLC with metastasis to bone.
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Myelofibrosis and CML 190
My husband Joe has both of these rare blood marrow cancers. Anyone know about Leukemia 190? I can't find much about it. My husband is on Gleevec and it decreased the size of the spleen, but now it is back to its original size. Any comments about bone marrow transplants? They have suggested this at some point in time. So…
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Lung biopsy
http://Hello everyone, I'm a 51 yr old female. And I'm having my first lung biopsy on Friday 25. For the last couple of years I have been having problems with my legs and feet swelling. Sometimes they swell so bad it feels like my skin is going to burst and I can barely walk. My knee's are swollen months at a time . I was…
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Choosing NOT to treat
I decided decades ago, after watching several generations of women die of cancer, that I would not be treated when (not if) I developed cancer. That decision has never wavered; what I've seen since has made me more determined and content with my choice. So here I am. But it turns out that doctors don't particularly…
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Question on endometrial cancer stage 1A Figo grade 2 nuclear grade2 endometrioid adenocarcinoma
I just had a hysterectomy on 11/11 with large fibroids. I was unexpectedly diagnosed with endometrial cancer stage 1A FIGO grade 2 nuclear grade 2 endometrioid adenocarcinoma. I met with my gynecology oncologist today, and he said he wants the radiology oncologist to determine if radiation is needed. Since this was not an…
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Deciding to end treatment or not?
My husband has been through a lot over the last 5 years ( he is currently 63) but we are now at the point where we really need to decide if focusing only on comfort care is best. Since February things suddenly became very bad with spinal metastasis, which then turned into fractures one pressing on his spinal cord putting…
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My mothers Permit hair loss
Hello too all C.S.N , THIS IS A POST ABOUT MY MOTHER OF 74 A HEART, BREAST,AND STROKE CANCER SERVIVAL THAT WAS A VICTIM OF PERMANENT HAIR LOSS DO TO A DRUG GIVING TO HER UNDER THIS COMPANY TAXOTERE-14 YEARS SHE HAS BEEN DEALING WITH THIS ISSUE AND NOW SHE IS DEVASTATED OVER THE FACT THAT SHE WAS CORSE IN A MDL CASE AGAINST…
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Newcomer here
I have been diagnosed with cancer of the tonsil that has spread to the lymph node. I am faced with the decision to go with just radiation or radiation with chemotherapy. I am 78 years old so I am leaning toward just radiation. If anyone would share their experiences with me it would be very helpful.
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Scar Tissue on Lungs
Hello all, Got my CT results on Monday. Everything was good except for a couple small spots on lungs. These were very small, about 2 mm. The onc. says he is not worried but ordered a CT scan in three months to see if anything changes. I have read it is not uncommon for people to have scar tissue on the lungs for any number…
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Has Prostate Cancer Been Cured?
Geez! Several days without anyone posting. Seems unusual. Maybe my computer is acting up?
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Keeping cool in the summer on Oxaliplatin
Last time I did Oxali was in the fall to winter so with the cold sensitivity I had to worry about keeping warm, but that was manageable. This time I am having the toughest time because it is 90 degrees out every day, but you can't stand too close to the air conditioning or drink or eat anything cold. How do you all stay…
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port removal
I am having my chemo port removed on Monday after two years. Anyone had this done? What can I expect? The nurse told me that it basically is "the reverse of when they put it in," which isn't very helpful.
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Long-Term Hodgkin's Survivors- Late Effects
I have been a member of this group for about 10 years. My user name should now be "50 years and counting!" I just want to reach out to my fellow long-term survivors to find out how you are doing. I'd like to know if you have had any of the "Late Effects" from the kind of radiation and chemotherapy that we received decades…
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Breast Cancer 10 years later
Well it’s been a long time since posting. I was diagnosed 10 years ago in June 2015 with Stage IIIC1, High Grade 3, 50/50 Mix EAC and USC. I was just diagnosed with Breast Cancer. For several years every 6 months I’ve gotten Mammograms, Ultrasound and MRI’s. And 2 large tumors emerged since December. Diagnosed with…
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Survivor
My name is Linda and I finished treatment with chemo and radiation last October, my problem is I am having difficulty living with the new me and the thought that it will come back
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Post Radiation/Chemo - Pre surgery consideration? / Post severe foot neuropathy
I was diagnosed with stage 3 colorectal cancer in Feb-2024 with the cancer extending into a few lymph nodes. Did five weeks (25 sessions) of radiation & oral chemo then 16 weeks of chemo (6 hours in the chair and 2 days connected to at home pump infusions). The tumor shrank 98+%, no longer in the lymph nodes, had a…
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HER2 POSITIVE SMALL TUMOR
I underwent lumpectomy for what was thought to be a 1.2 CM tumor but only 4 mm was cancer. It was HER2 positive and I have been offered chemo with Herceptin by one doctor and radiation only by another. Not sure what to do. Does anyone know anyone who used Herceptin only without the chemo? Thank you.
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Endometriod Adenocarcinoma Recurrance to the liver
Hi everyone. It’s been a good long while since posting here. I was diagnosed with endometriod adinocarcinoma Stage 1 Grade 1A eight years ago in 2017. That May, I had a complete, Davinci robot assisted, hysterectomy. I remained NED for 6 years. It wasn’t until we went 1 year in between checkups that it was discovered that…
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Treatment for HER2 Positive Small Tumor?
I was wonderinfg and hoping that someone might have thoughts for me about treatment for HER2 positive but very small breast cancer tumor? I had a mastectomy 1 week ago for what was originally diagnosed as complex DCIS, but the biopsy just came back as invasive, ER positive, PR negative, HER2 positive tumor along with the…
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Diagnosed with serous endometrial carcinoma early June 2025
Hi all, I was diagnosed with serous endometrial carcinoma in the first week of June, 2025. There was a normal amount of time between biopsy, pathology, referral to a Gyn oncologist and meeting the highly recommended and qualified surgeon. But there was a glitch in the before hysterectomy imaging, so I’m now scheduled for a…
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Living Well With Cancer
I have developed a nine point plan that I follow faithfully. This plan has enabled me to feel healthier (both mentally and physically!) at 69 than at any time since I stopped playing hockey at age 28. Following these eight steps has made a dramatic impact on my physical and mental health. 1) Get the best medical care…
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Acute cholinergic syndrome on Irinotecan
Has anyone experienced this? I had a pretty intense adverse event involving flushing, sweating, disorientation/dizziness, low heartrate and hypotension during my first infusion that was controlled in the clinic with Atropine but recurred periodically for the next 12 hours at home. Going in tomorrow for my next infusion and…
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They Don't Get It***
Do you have someone in your life who, unfortunately, when you speak with them, makes you feel worse about your condition or your life in general? It's tough isn't it? Instead of providing support, encouragement, and a kind listening ear, their words just create anxiety, panic, and sorrow about the current conditions of…
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Vaginally stenosis
No one has talked about vaginal stenosis which is scar tissue from the radiation. This made any kind of penetration painful. My radiologist gave me vaginal dilators in different sizes.
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cbd topical cream
Has anyone tried cbd cream to help manage nerve pain, and did it work?
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Erections
I am four years out from radiation therapy for prostate cancer. I am unable to achieve an erection sutable for intercourse. I am able to obtain ejaculation by watching my wife and self stimulation. What is the experience of others regarding this issue?
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My wife won't kiss me
Hello everyone, I am 64 years old. Excellent health. 1 month ago I was diagnose with tonsil cancer with HPV-16. I have been for 4 weeks on 100% strick diet, no sugar, no processed food and maximum 20 grams a day of carbohydrates. no radiation no chimo. My wife is very supportive. But I notice that when I tried to kiss her…