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My mothers Permit hair loss
Hello too all C.S.N , THIS IS A POST ABOUT MY MOTHER OF 74 A HEART, BREAST,AND STROKE CANCER SERVIVAL THAT WAS A VICTIM OF PERMANENT HAIR LOSS DO TO A DRUG GIVING TO HER UNDER THIS COMPANY TAXOTERE-14 YEARS SHE HAS BEEN DEALING WITH THIS ISSUE AND NOW SHE IS DEVASTATED OVER THE FACT THAT SHE WAS CORSE IN A MDL CASE AGAINST…
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Newcomer here
I have been diagnosed with cancer of the tonsil that has spread to the lymph node. I am faced with the decision to go with just radiation or radiation with chemotherapy. I am 78 years old so I am leaning toward just radiation. If anyone would share their experiences with me it would be very helpful.
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Scar Tissue on Lungs
Hello all, Got my CT results on Monday. Everything was good except for a couple small spots on lungs. These were very small, about 2 mm. The onc. says he is not worried but ordered a CT scan in three months to see if anything changes. I have read it is not uncommon for people to have scar tissue on the lungs for any number…
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Has Prostate Cancer Been Cured?
Geez! Several days without anyone posting. Seems unusual. Maybe my computer is acting up?
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Keeping cool in the summer on Oxaliplatin
Last time I did Oxali was in the fall to winter so with the cold sensitivity I had to worry about keeping warm, but that was manageable. This time I am having the toughest time because it is 90 degrees out every day, but you can't stand too close to the air conditioning or drink or eat anything cold. How do you all stay…
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port removal
I am having my chemo port removed on Monday after two years. Anyone had this done? What can I expect? The nurse told me that it basically is "the reverse of when they put it in," which isn't very helpful.
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Long-Term Hodgkin's Survivors- Late Effects
I have been a member of this group for about 10 years. My user name should now be "50 years and counting!" I just want to reach out to my fellow long-term survivors to find out how you are doing. I'd like to know if you have had any of the "Late Effects" from the kind of radiation and chemotherapy that we received decades…
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Breast Cancer 10 years later
Well it’s been a long time since posting. I was diagnosed 10 years ago in June 2015 with Stage IIIC1, High Grade 3, 50/50 Mix EAC and USC. I was just diagnosed with Breast Cancer. For several years every 6 months I’ve gotten Mammograms, Ultrasound and MRI’s. And 2 large tumors emerged since December. Diagnosed with…
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Survivor
My name is Linda and I finished treatment with chemo and radiation last October, my problem is I am having difficulty living with the new me and the thought that it will come back
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Post Radiation/Chemo - Pre surgery consideration? / Post severe foot neuropathy
I was diagnosed with stage 3 colorectal cancer in Feb-2024 with the cancer extending into a few lymph nodes. Did five weeks (25 sessions) of radiation & oral chemo then 16 weeks of chemo (6 hours in the chair and 2 days connected to at home pump infusions). The tumor shrank 98+%, no longer in the lymph nodes, had a…
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HER2 POSITIVE SMALL TUMOR
I underwent lumpectomy for what was thought to be a 1.2 CM tumor but only 4 mm was cancer. It was HER2 positive and I have been offered chemo with Herceptin by one doctor and radiation only by another. Not sure what to do. Does anyone know anyone who used Herceptin only without the chemo? Thank you.
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Endometriod Adenocarcinoma Recurrance to the liver
Hi everyone. It’s been a good long while since posting here. I was diagnosed with endometriod adinocarcinoma Stage 1 Grade 1A eight years ago in 2017. That May, I had a complete, Davinci robot assisted, hysterectomy. I remained NED for 6 years. It wasn’t until we went 1 year in between checkups that it was discovered that…
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Treatment for HER2 Positive Small Tumor?
I was wonderinfg and hoping that someone might have thoughts for me about treatment for HER2 positive but very small breast cancer tumor? I had a mastectomy 1 week ago for what was originally diagnosed as complex DCIS, but the biopsy just came back as invasive, ER positive, PR negative, HER2 positive tumor along with the…
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Diagnosed with serous endometrial carcinoma early June 2025
Hi all, I was diagnosed with serous endometrial carcinoma in the first week of June, 2025. There was a normal amount of time between biopsy, pathology, referral to a Gyn oncologist and meeting the highly recommended and qualified surgeon. But there was a glitch in the before hysterectomy imaging, so I’m now scheduled for a…
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Living Well With Cancer
I have developed a nine point plan that I follow faithfully. This plan has enabled me to feel healthier (both mentally and physically!) at 69 than at any time since I stopped playing hockey at age 28. Following these eight steps has made a dramatic impact on my physical and mental health. 1) Get the best medical care…
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Acute cholinergic syndrome on Irinotecan
Has anyone experienced this? I had a pretty intense adverse event involving flushing, sweating, disorientation/dizziness, low heartrate and hypotension during my first infusion that was controlled in the clinic with Atropine but recurred periodically for the next 12 hours at home. Going in tomorrow for my next infusion and…
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They Don't Get It***
Do you have someone in your life who, unfortunately, when you speak with them, makes you feel worse about your condition or your life in general? It's tough isn't it? Instead of providing support, encouragement, and a kind listening ear, their words just create anxiety, panic, and sorrow about the current conditions of…
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Vaginally stenosis
No one has talked about vaginal stenosis which is scar tissue from the radiation. This made any kind of penetration painful. My radiologist gave me vaginal dilators in different sizes.
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cbd topical cream
Has anyone tried cbd cream to help manage nerve pain, and did it work?
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Erections
I am four years out from radiation therapy for prostate cancer. I am unable to achieve an erection sutable for intercourse. I am able to obtain ejaculation by watching my wife and self stimulation. What is the experience of others regarding this issue?
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My wife won't kiss me
Hello everyone, I am 64 years old. Excellent health. 1 month ago I was diagnose with tonsil cancer with HPV-16. I have been for 4 weeks on 100% strick diet, no sugar, no processed food and maximum 20 grams a day of carbohydrates. no radiation no chimo. My wife is very supportive. But I notice that when I tried to kiss her…
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Looking for Honest post-surgery ED expectations / feedback
Hi members- I'm new and this is my 1st post…I had DaVinci assist radical prostatectomy…I am 14 months out and still no firm erections even though I check off all the boxes on someone who should be up and running by now (healthy, not overweight, 57 at time of surgery, doc said both nerves were spared, non-smoker, not a big…
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GIST and Gleevec
Does anyone have or had Gastrointestinal Stromal Tumors?
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And so my Journey Begins . . .
My journey is about to begin so I figured I'd set it down and tell it as it goes. As it goes I will update and try to answer any questions. Symptoms: In June 2022 I had my yearly physical and my blood work came back as good so no indications of anything. Felt great. Started August with a sore throat and a full left sinus.…
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"Baroreflex" Failure" A Rare Late Effect Of Radiation Treatment
I came across this article written by a Gentleman on another forum about late-term post-radiation effects which can give you a condition where your blood pressure swings wildly from high to low or low to high without notice. There is no cure but some control can be realized with meds. I just wanted to let the group know…
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Lung cancer survivor
Diagnosed with NSLC in 2019, staged 3d . After oral chemotherapy, Alecensa to shrink cancer spread, followed by radiotherapy , chemotherapy and immunotherapy I have been cancer free for 6 years now. Stay positive and hopeful.
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Keytruda side effects
My mom is in 10th cycle of keytruda for ovarian cancer recurrence. Last month her PET scan showed initial all lesions in brain and inguinal lymph nodes resolved. Doc said to continue treatment for six more cycles. However she is extremely fragile, lost 20 kilos, could take only fluids via tube and nervous all the time. Has…
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Post radical prostatectomy sex.
Six weeks ago, I had a radical prostatectomy due to prostate cancer. After my resent doctor's appointment (over the phone) he gave me the green light to have sex. My question is, what will it be like? Will having an orgasm be painful? Will getting and maintaining an erection be a problem? What consideration should I bestow…
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Blood in stools...kind of scared
I'm 5 months post treatment. I've had a colonoscopy and there was no more cancer. I've been on a vegan diet for 5 months. Things were going well until this morning. I had a "normal" stool and it kind of hurt, but there was bright red blood in it. I'm not in pain but it really scared me. I see my general onc next week.…
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Fissure after biopsy
Hi! New to this site, please bare w me... I got diagnosed 2022 w squamous cell approx 2" in the anal canal. Finished treatment 12/22. Had port taken out along w final 6 mon biopsy. 2 weeks later, in debilitating pain, had to go back out on disability. I go to all my docs. They went to go back in for botox. They do a…