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What a journey!
I was diagnosed 9/11/2018. After two rounds of chemo and one radiation, my cancer has neither grown nor disappeared. I am now again, six years and three months later, seriously considering an esophagectomy. I am fearful, yes. But more than that, I consider such as invasive procedure to be an affront to my body. Does anyone…
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Prostate Treatment Post Radiation BCR
I just wanted to share some knowledge should anyone out there have a PCA recurrence in the prostate after radiation. I am post Proton and listen in on topics with my local specialists who are involved in various research. I heard from a Brachytherapist who is engaged in level 2 trials on what sounds like a terrific salvage…
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Uterine papillary serous carcinoma
I was diagnosed with USPC in August 2024. Had total hysterectomy (stage 1b, no metastasis or lymph node involvement). I have had 3 rounds of taxol/carboplatin and should be starting external radiation after first of year. Other than neuropathy and some short term muscle pains, I handled the first three rounds of chemo ok.…
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5-year ACC parotid survivor ---
Well, I've almost made it to my 5-year post op 'all-clear' status....question is....I had NO treatments after surgery, only 1 PET scan.....should my ENT have exercised more options of CT/PET/MRI to finalize my '5-year, all clear' status?
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HLRCC or type 2 papillary??
Hi, I’m new and looking to see if there is anyone else with HLRCC or type 2 papillary kidney cancer on this forum. It’s rare and difficult to find research, information, or others to connect with for advice so I thought I’d give this a try. I had surgery 3.5 years ago to remove tumor, kidney, adrenal gland, and part of…
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Pca information updates
Hey everyone, I am sure there have been past threads with good information for newly diagnosed, post treatment, recurrent disease,..., I have seen many questions regarding stage, grade, risk group, etc. In doing recent research I came across the NCCN Guidelines for Pca advanced and early stage. There is a lot of great…
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Ureter Stents - My experience
Hello Everyone! Just thought I put a post out there because recently I have noticed that more and more of you are required or in need of a ureter stent so I thought I would share my experience with you. My experience with this started in February of 2014 when my CT Scan showed that I had moderate left-side hydronephrosis.…
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Lung Mets
Has anyone been diagnosed with lung metastases ? I am stage 3C serous. They only do scans once a year here for some reason. I had some bleeding that they shrugged off and then my next visit they tried to but I basically insisted on a scan. The scan in December showed no issues in abdominial region, but found a new 6mm…
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Avastin only for maintenance?
Hello, I posted this on the uterine board but only received one reply. I was hoping maybe someone here would be able to help. I'm on Avastin only for maintenance after going through chemo (carbo/taxol) 3x. I received my 11th infusion this week and have been doing well. My onc said my situation is a dilemma because the…
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Erectile dysfunction ED conditions after Prostate cancer radiation treatment
Are there many? Or a few? Is there a resource for improvement? I am dealing with so many situations and experiences. Radiation treatment related? What are yours? Thank you.
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Have you been ghosted?
I feel like I have lost so many people since I told them about my cancer diagnosis. Friends and family both. I wish I could go back in time and not even tell them. It’s so painful to process that they haven’t even texted me a “how are you doing”. Cancer without any support is really horrible. Thanks for reading.
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Weight loss from recovery ?
Hi, another question on how much weight might I lose during recovery from cancerous kidney removal ? I am 5' 11" only 140, (I lost 35 lbs this year due to a previous fissure surgery ) and am concermed about losing weight during my recovery. I am not underweight but am very close. Thanks again all, really appreciate all of…
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Aggressive atypical fibroxanthoma
Hello, I’m new here and just wondering if anyone else had a weird skin cancer diagnosis. Long story short I had a long and invasive slow MOHS to remove the tumor (?) and while they felt confident they got it all, they said that it was a cancer that hadn’t been identified before so they couldn’t predict what would happen…
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Mucoepidermoid survivor
Hi! Could you help me? My husband is undergoing intermediate mucoepidermid treatment and I would like to have news about how it is to deal with the treatment, if there is a cure
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New to this C and forum
Had my 3rd TURBT Op. on Monday, Dr. removed 2 Tumors and scraped a suspicious area, then I had 40 minutes of Mitomycin. This was all done at a Regional Urological Center who say they are up to date on C and might be affiliated with the U of Iowa. The bleeping C has come back twice, really, because the Dr. suspected he had…
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Post Radiation Proctitis
I am hoping for some good feedback for those of you who had challenges recovering from RT. I had a very easy treatment with a Proton 28 fraction schedule. Typical improvement of limited symptoms until my second month, then I started to have some diarrhea once a week or so. Condition has not improved and maybe gotten a…
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Cervical Cancer and Fatigue
I was diagnosed in April with cervical cancer. I've noticed that I get tried easily and now the past few days my body hurts. Today (5/9) I woke up and my whole body hurts. I'm normally very active and always on the go. I decided to run some errands yesterday and mow my front yard. I felt good till the afternoon when I…
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Nausea with stint
Hi everyone. Will get final diagnosis this week but I have a resectable tumor at the head of my pancreas. I’ve had a couple of stints placed so far to open up bile duct. First was a larger metal one that caused terrible discomfort, had waves of “contractions “, then they replaced it with smaller plastic one that got…
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NLPHL Diagnosis-Just wanted to say HI
Good morning!! I just recently got diagnosed, still going through staging, but it looks good so far. Seeing Dr. Jeffrey Barnes out of MA Gen in Boston!!! Hope everyone is doing good. A lot of the time I feel great, other times I get down in the dumps for a few minutes, then bounce back, LOL
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Memorial Day May 26, 2025 We Honor and Remember our Fallen
Monday the 26th is Memorial Day, a day set aside to honor our country's servicemen and women who died in service to our country and who gave their all. These are the ones who gave their lives for their country-their last full measure. They deserve no less than the highest honor and respect. Participate in the National…
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Anyone else get triggered like me?
I’ve noticed lately that I’m always seeing on tv shows or movies where they say so and so died of cancer. When they do this I always get a flood of anxiety all over my body like an adrenaline rush. It also happens on social media. I will see someone post about how their relative or this famous actor died of cancer and it…
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Finally I've gotten some good news
After an IRE ablation procedure last year, then a few months of ADT so far, and 40 sessions of IMRT of the prostate and pelvic region for lymph nodes, my most recent blood work indicates a PSA level of .04 ng/ml. Down from over 9 ng /ml about six months ago. If I understand correctly, this is considered undetectable. I'm…
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Biopsy today
I am a 55 year old female. I had a EGD done today. They biopsied a spot that they said looked suspicious for squamous cell esophageal cancer. I’m scared to death. Can anyone offer me any information please?
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38 and diagnosed with stage 4 esophageal cancer
I am a 38 year old male from Minnesota. Non smoker my entire life and pretty much a social drinker until recently. Since essentially Christmas of 2016, all I can say is I have just felt "off". Not really depressed, just unmotivated, undriven, and lethargic. It has happened a few times in the past 2 years that I woke up…
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Faslodex/fulvestrant and tumor markers
hi everyone, my mother has breast cancer that has spread to her bones and liver. She is on enhertu and just recently the doctor has prescribed faslodex injection for her. She is on her third cycle of the injection and she did tumor markers test and it showed very high numbers. She has also finished 5 sessions of radiation.…
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Stage 1 Cancer under left side of tongue front of tongue
Has anyone been diagnosed with tongue cancer under the tongue - will have operation on June 3rd. Is having tongue cancer in the front of your tongue worse than having it in back of the tongue. I never dealt with anything this before and just wondering. Can you all tell me the experiences with tongue cancer and what I…
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Thymoma Survivors/Caregivers?
My fiance was diagnosed with a thymoma 11/21 and has undergon 4 chemo cycles (PAC Regimen), the tumor shrank drastically and he will now be able to have surgery on 4/11. Is there anybody who is has been through or is going through the same journey? Just looking for support and information...Thank you!
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Swelling in Knees and Ankles Following Chemo and Radiation
New to this network and learning so much as I assist my husband recovering from TORS and the 6 week chemo/radiation that followed. TORS was a breeze compared to the trauma of radiation and chemotherapy. His last radiation treatment was April 28, 2025 and while we expected the dry mouth, difficulty swallowing and general…
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Scar tissue or nerve pain
New to site. I was 44, right before my birthday, great party, kidding. On 07/22/2022 gotten diagnosed with stage four EC. I started treatments two weeks later until end of Oct. then went in for knife on dec. 6. I'm wondering about certain feelings (possible nerve or scar). My right chest/ rib area. Just putting my toes in…
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Nodule
just was told 1.3 cm. Right upper lobe nodule was “ nothing, probably just infection “ I had no sign of lung infection ( fever, elevated WBC, etc) I think Dr is being too cavalier about it- what do other people think?