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My 35-year-old husband has cancer, and I don't look at him the same way anymore
My 35-year-old husband of 10 years was diagnosed with leukemia five months ago. We have been together since we were teenagers and have had a borderline perfect marriage up until his diagnosis. I have always loved him deeply, and he is a great man. The first few months were extremely traumatic for me, and I had to bear the…
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Blood test to detect HPV+ SCC - NavDX
I haven't read a lot of the posts.. however, in the ones that I have read, I haven't seen anything about the NavDX blood test. I just went in for my 9 month post treatment check-up at USC, and my ENT had ordered blood drawn for the NavDX test so that results would be in for my check-up appt. While my initial cancer was in…
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Looking for others with NSCL EGFR mutation
Hi I am 43 years old stage 4, Korean. I am looking for anyone going through the same situation. I am super lonely. I need friends. I live in PHX. Please contact me if you know anybody. Thanks advance. Julie
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Low Dose Radiation Treatment for Osteoarthritis ??
After I completed rad & chemo in 12/21 my rad doc said I should avoid all radiation, if possible, going forward. He is now pushing LDRT for my OA in my thumbs (after hearing that while I have OA in my SI & SC joints on the right side - there is no pain in the joints themselves). From what I could find on the the net it…
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scaring on vocal cords - 3 1/2 years post treatment
saw rad doc this month for semi annual check up. (NED) he said he saw some scaring on vocal cords, which has never been previously noted before by him, the ENT surgeon and the speech pathologist. He did not offer any other info about it. I didn't think to ask him about this in more detail (I got distracted by his sales…
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Anal cancer
Hi I’m close to starting my treatment and I’m scared to death! Please tell me what to expect🥹
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Clinical Trials - some general questions
I'd like to make sure I understand the concept of clinical trials correctly. when a clinical trial is available, the whole point of it is to test a newer or emerging therapy or treatment that may or may not be better than 'traditional' or established treatments, is that correct? their might necessarily be increased or…
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Val Kilmer's Throat C, Trachea, and Pneumonia
News just broke about his death, due to pneumonia. Think he was treated in 2015, but uncertain about the details and if surgery was involved. What is certain pertains to aspiration and pneumonia. FT-dependent since 8/2019 because of Rad damage to the top 1/3 of my esophagus, everything I swallow goes into my lungs. Thus, I…
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immunotherapy with stage 3 colon cancer
diagnosed in February of 2025 just finished 3 months of chemo (Oxyplatin and 5FU) had treatment every 2 weeks and now doctor suggest immunotherapy (Atezolimaub) because of the new results from the ATOMIC study that came out in June 2025. Has anyone had any dealings with this particular drug? I am MSI High and Lynch…
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Myelodysplastic Syndrome (MDS) Support
I'm looking for anyone who has or knows someone who has MDS. Doctors diagnosed my dad with MDS in 2024. I haven't found much yet in terms of support for MDS patients and their families, and am very interested in connecting so we can share what we find out and support each other. Please let me know if you're interested.
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When you know someone needs you but they will not open up
I first want to thank you for reading my post. I sit on many volunteer boards for Cancer and promote a cancer policy. I don’t do it for monetary value but only to help others from the financial devastation I went through many years ago. I was fortunate that my family member survived. Most recently, I have a few of my…
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Stomach Cancer - Thoughts / Doctors / Etc
Hello, my mom was recently diagnosed with stomach cancer (adenocarcinoma) locally advanced. She just started FLOT and the plan is to do 4 treatments, surgery, and then do another 4 treatments. Starting to learn a bit more (HER2negative / MMR loss on MLH1 / PMS2 (testing for Lynch syndrome now which could change some things…
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Recently diagnosed with stomach cancer FLOT treatment plan
I’m 49 recently diagnosed in Feb 2025 called adnocarcionma. It was regionally advanced to lymph nodes. Borderline at stage 3 or iv. After 4 times FLOT chemo now on PET there is a highly suspected metastasis to bone although tumor has seen internal shrinkage. I have my intral opening blocked to small intestines, I can’t…
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HPV P-16 Throat Cancer Survivor-Am I Putting My Sexual Partners At Risk?
I am NED for over 2 years. I was HPV positive P-16 Stage IV throat cancer. I had a tonsillectomy, 35 radiation treatments, chemo, and a modified radical neck dissection. Then the wife filed for divorce. Now, I'm now out on my own entering into my first sexual relationship, post-divorce. The Drs told me I could've been…
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False positive PET
So in December I had a PET scan with Deauville score 5. One of the nodes where my original diagnosis in 2017 showed SUV uptake of 20. Local oncologist sent me to University Hospital in state. They looked at PET scan and begin talking about clinical trial CAR T. This was second relapse after RCHOP first line of treatment…
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Cravings?
Ok...so this weird and a bit light hearted, but we all need to think of something weird and wacky from time to time! I have found that since my diagnosis, I have experienced a range of cravings...have you experienced the same thing? Initially, after diagnosis, I really wanted wine and chocolate..lots and lots of wine and…
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Summer Temps
So, it’s 93F here today with about 60% humidity I was working outie from 9a-2p and had a pretty serious hot flash while cutting some 4x8 plywood panels in half i Was okay until the flash started. Then I found that I couldn’t concentrate. Managed to get inside say something cross to the kids and grandkids and hopped into a…
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CarboTaxol - Has anyone taken this?
The oncologist at MD Anderson diagnosed me cancer unknown primary secondary liver. I start CarboTaxol on Friday first time. The dr told me my prognosis is 9-12 months. How could he possibly say this? I have no comorbities and I'm 55. I have Hypertension and a history of Endometriosis but uterine was ruled out. I have mets…
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My Welcome
Just turned 50 this year and went to the ER for a pain in my left shoulder thinking I had something going on with my heart. After the CT scan, come to find out all was good with my heart but found a 9cm mass in my pelvic area. Next came the Ultrasound and MRI. Then the appointment with a Gynecology Oncologist and a full…
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Newly diagnosed with clear cell uterine cancer
Hi, My sister was just diagnosed with clear cell uterine cancer. She just got the biopsy results yesterday. She will be meeting with two oncologists this week. Can anyone help with a list of questions to ask the oncologist? She is totally overwhelmed and needs some help right now. (I am her brother, I also have a very…
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Will United HC drop me eventually because of my expensive meds?
I am 70 years old andhave stage four prostate cancer, which is metastasized to my bones. I was diagnosed one and a half years ago, have been through four months of chemotherapy, and then was started on Nubeqa which I took for about four months before it stopped working. My oncologist recently started me on Lynparza, which…
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Boston support
My name is Paul. I am an anal cancer survivor (4 yrs). My partner, Peter, is also an anal cancer survivor. We are available to any gay men in the Boston area for support with cancer treatments and recovery. Especially anal-rectal cancer. I will check here periodically to see if there is anyone interested in support.…
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Should I have surgery sooner???
I am a seven-year-old diagnosed with aggressive prostate cancer, this is my situation am I waiting too long to have surgery July 30, 2025 when I was diagnosed after the biopsy May 12, 2025? May 12, 2025 Biopsy reported PROSTATIC ADENOCARCINOMA. GLEASON'S SCORE 9 (GRADES 4 + 5) NOTED IN 1 OUT OF 1 SUBMITTED PROSTATE CORE…
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IDC breast cancer 1B and upcoming colonoscopy
Hi 👋 I’m full of anxiety and fear. Just wondering if anyone else here has had a colonoscopy as during the testing phase of determining how to treat the cancer. Any advice or stories will be greatly appreciated. Thank you in advance!
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Inability to ejaculate
I finished treatment a year ago (radiation). My orgasms now are very weak and, of course, I don't ejaculate anymore. I did at first but it's gradually gone away. This has made me damaged goods. All I hear is "did you ****?" or "are you ever going to ****?" or "why can't you ****?" I dread having sex but (not bragging) I'm…
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i feel so pretty now :)
I've kind of been wanting to get my ears pierced to add a little feminitity lately, but I asked my husband last week and he told me he doesn't like pierced ears, so I said, "oh, okay, no biggy. I won't do it". Well, yesterday we got out of the truck at Cici's Pizza, and this old guy asked my husband, "is that your boy…
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Carotid body tumors need help finding specialist!
My husband is 40 years old and doctors just found 2 carotid body tumors on a ct scan, one on right side of neck and one on the left. Surgeon that requested ct scan told us today to do our research and get him to a specialist in these tumors as he is not and doesn’t know anyone around here that is. We are south of Buffalo…
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Skin care around the PEG
Any tips on care of the skin around a peg? The dressing got wet with drainage and in no time the skin around the peg became quite reddened and raw. I have been cleaning with a baby wipe and drying the area then applying aquaphor ointment.
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Free LE ( lymphedema ) Alert Bracelet
I have seen several posts on here about lymphedema and remembered that there was a site that many of us got free le bracelets. They were really bright pink, almost neon, for your wrist, but, you want it to get attention. They also have neon green for your ankle. I ordered one awhile back when I went in for some outpatient…
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Insurance
I got married late last year, just after hitting two years of clean scans, and lost my insurance since it was income-based. I have tried every insurance, and I just can't afford more than 100-200 a month, and the ones I did find had such a high deductible that it's the same as not having insurance. I feel defeated. I had…