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17 year survivor
may 2024 be a better year for you all. It’s been a long time since I last checked out this site. I wanted to offer hope to any and all that visit. I am an unusual 17 year survivor and you might be too! Please feel free to reach out
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Topic for Newbies and Radiation
With all the new people coming to the breast boards here on CSN, I thought it would be helpful for us to give hints, tips, basic information on how to handle radiation and the related drugs given during radiation, side effects tips, nutritional information etc. I have been seeing quite a few new people coming into the chat…
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Angiosarcoma
38yrs old diagnosed with Angiosarcoma in my breast , NEVER had any cancer, radiation exposure before , (which In Most cases is the cause) . I had a full mastectomy then week later had a re excision in chest wall … with this cancer being so rare and aggressive and doctors not having enough knowledge with treatments and all…
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Breast cancer
hello, I was recently diagnosed with breast cancer back in August. I’ve went through all the tests biopsies MRIs ultrasounds. I wound up having a 2.2 nodule in my left breast that was malignant. We spoke but being I have a history of cancer in my I opted immediately to have a double mastectomy. Fast-forward to November 5…
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Endometrial Biopsy
Hello there, In 30 days I will be having an endometrial biopsy. I have no symptoms, but my endometrium is 6mm and I'm postmenopausal. Not only am I scared about the possibility of having cancer but I'm read so many horror stories about how painful the biopsy is and now I'm terrified. I can't stop thinking about it. My…
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Remission
I haven't been on here for a while (maybe a year) and have not had any more symptoms of the EC diagnosed in March 2023. They used to call it remission but I'm not sure if that term is still in use. I'd always been told what an aggressive cancer EC was and was told it was an esophagectomy or bust for me. I didn't opt for it…
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Another newbie here!
Hey all! I just joined and I know my wife Lin and I are glad to be here. I was having problems eating on my 75th birthday on 9/17. Somehow, homemade mac and cheese just would not go down! That's not like me — the old person who could eat anything. So, after the usual going to my PCP and having the barium swallow and the…
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Kisqali side effects
I was diagnosed with stage four NBC earlier this year and just started a combination of anastrozole and Kisqali. I am three weeks on with one week off. I have experienced some persistent nausea, but most concerning is my serious fatigue. I’m wondering if this improves over the months as you continue with the Kisqali? I’m…
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1 year out after radiation for re-occurence
Just got the ultra sensitive psa all undetectable. Happy New Year to all
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Everyone around me EXTREMELY begrudgingly deals with me
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Wishing Everyone A Blessed And Joyous Christmas 2024 And Great Hope For Tomorrow
Hello and Blessings to all on CSN and especially to our group in the H&N section Please feel free to leave your own well wishes and Christmas Blessings here, all are welcome. We are all in the same club here so cheers to everyone. Christmas time is one of the highlights of the year. It’s a time of gathering with family and…
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Orpheangeal Cancer due to HPV Virus
I have been in remission since July 2023. Cancer free do far. I am so worried about the Cancer coming back. Is there anyone out there had this Cancer? Did it come back?
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Learn About The Treatment Options Available To You-Sharing This From Local Support Group
Hello everyone. These Head and Neck Cancer handouts were given at our local cancer center support group. I would like to share it because I think it may be helpful. If you find the print a bit small you can increase the size of the print in your browser, I know with Firefox Browser if you push "ctrl +" on your keyboard it…
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New Member Undergoing Treatment Currently with Questions
Hello - new member (50 y/o male) to this site, so hello everyone! I was diagnosed with Papillary Thyroid Cancer (Follicular Variant) two months ago. They discovered this because a CT scan uncovered I had a 9.5 cm mass in my chest that was squeezing my trachea down to an opening the size of just 3 pencil tips. Within two…
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I’m new here & so scared!!!
My name is Stephanie, I am a 44 year old wife & mother of 3 AMAZING boys…men, they are 25, 22 & 19. I have been married to my husband for 25 years, January 2, 2025 we will celebrate 26 years of marriage!!! My husband Bob, 46 years old was diagnosed in May of 2021 with stage VI renal cell carcinoma. They immediately removed…
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Annual checkups
I am right at 6 years post surgery and almost 6 years from the end of chemo, and brachytherapy with no recurrence. I still go for annual checkups with my oncology GYN. How many of you continue to do this? I really love my Dr but she is retiring at the end of December. I will still go to the same oncology center and the PA…
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What to do when you get a recurrence of Endometrial Cancer In 6 months
My mom is my everything. She was diagnosed with endometrial cancer. She had a hysterectomy, & chemotherapy with paclitaxol & carboplatin. Was in remission for only 6 months post 5 cycles, she was supposed to have 6 cycles, but could not have her last cycle due to neutropenic fever putting her in the hospital, & since her…
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Childhood Medullablastoma
I have a 2 year old nephew that has just been diagnosed with Medullablastoma. I have been desperately trying to find an adult survivor from this cancer that was diagnosed at a very young age (under 3) and have had no luck. I am hoping that someone has some information on dealing with this cancer from this early age. Can…
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After Whipple
I had the Whipple in May and they cut my artery so the surgery lasted 15 hrs instead of 8. I was doing ok until chemo I was taking IV once a week and taking 18 pills a day . The pills made me coma kinda sick So I stopped. I still get IV. The Dr said chemo is protocol after having the surgery and is upset I won't take the…
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SCC of the tongue.Almost finished with radiation.
Hello. This is my first time reaching out. I am 54 and was diagnosed with SCC of the tongue in mid August of this year. On September 9th, I had the pleasure of enduring a 12 hour surgery to remove about half of the left side of my tongue, removal of 34 lymph nodes, and reconstruction with a flap twice (first did not have…
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After Lenalidomide Resistance
Anyone have any experience with treatments after becoming resistant to lenalidomide? What does the treatment course look like?
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Peritoneal cancer
Hi. My husband was diagnosed end of may 2023 with stage 4 peritoneal cancer. After tests and immunotherapy he kept getting weaker. Not eating and throwing up. His sodium kept dropping. He passed away on July 2023. I am heartbroken. Today is his birthday. He would of been 71. Thank you for letting me tell his story
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Newly dignosed Peritoneal Cancer
Hello,I was just dignosed few days ago.I have had Cancer several times.Three nodoes in stomach was biopsied.All three are Cancer.Waiting to talk to Cancer dr.Any advise on questions I should ask dr would be appriatted.Or someone who has been through this kind of Cancer.That could give me advice.Thank you.
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Just Diagnosed with Melanoma - I have had it for 2-3 Years at least.
I showed my general practitioner during an office visit this large black area behind my left ear. He said, "don't worry about it." This was 2-3 years ago and I had pointed it out three other times with the same response. The result of a biopsy was that it was melanoma and that I needed to have a surgery very soon, but I…
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Scared-Need Help Stage 1 Lung Cancer diagnosis possible
Recently had a low dose CT screening. 8MM nodule in right upper lobe with Mat Lymphs enlarged, largest 7mm. Going for a C Pet Scan next week. I am scared to death of the disease. I am wondering if I am diagnosed and surgery is an option. What is can I expect? What was the surgery like, the recovery, the setbacks, the…
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New diagnosis of melanoma
I just got a diagnosis of melanoma and am up to my neck in tests and appointments with oncology surgeon and oncologist. I have had the mole removed and the lab report, which took 11 weeks, is very upsetting. It seems I have an aggressive cancer with a very poor survival rate of 8 to 13 months. I am still in denial at the…
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Lymphocele
Just got diagnosed with lymphocele today 3 months after surgery. Anyone else dealt with this? If so, please share your experience so I'll know what to expect. Thanks, David
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Reduced chemo radiation clinical trial for early detected anal cancer
I am wondering if anyone has been offered this option for treatment. This is a 2 arm study, randomized selection of standard treatment or trial group. Qualifications; T1 or T2, no lymph node or Mets detected. The purpose of this study is to determine if reduction of treatment in early stage anal cancer provides similar…
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Some of my more recent numbers
Data table Date Value Normal Range Dec 12, 2024 0.53ng/mL 0 - 4 ng/mL Jul 18, 2024 0.51ng/mL 0 - 4 ng/mL Apr 22, 2024 0.5ng/mL 0 - 4 ng/mL Jan 2, 2024 0.6ng/mL 0 - 4 ng/mL Sep 12, 2023 0.4ng/mL 0 - 4 ng/mL Previous1 - 5 (of 10)Next I'm trying to figure out if this is good, bad or okay. Hitting a dead end with my…
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Cribriform Pattern 4
I've recently been diagnosed with Stage 2 Prostate cancer (Gleason 3+4= 7) with evidence of Cribriform pattern 4 (5% & 10%) in 5 areas of my prostate. I had twenty core samples taken in my biopsy and there is no evidence of intraductal carcinoma. My urologist strongly recommends radiation treatment and feels confident that…