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I am a Christian "but"...... how do some of you do it??
I am a firm believer in GOD, don't get me wrong and know we all have trials in life like in the book of Job, BUT how do you not get so angry with GOD and how can such a rightous GOD give people so much pain? Guess, I am in this depressing and anger state right now. Just like no one wants to see a child suffer, it is SO…
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ER+, HER2+ breast cancer. New here, Nervous, have questions
was diagnosed with Stage 1, grade 2 er+, her2+ breast cancer. No lymph node involvement. Very small. Lumpectomy, 16 rounds of radiation, currently doing immunotherapy (session 9 of 18)and on Letrozole. My reason for being nervous…..although protocol called for me to do chemo, my oncologist felt I would be a good candidate…
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Anxiety?
How do you deal with the anxiety? I am feeling so out of control. I am normally able to face critical issues and deal with it, including my own past medical issues, my husband's critical health issues, and even unexpected deaths in my immediate family. But this time, I am a wreck… I shake constantly. I get angry at the…
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ROBOTIC CHOLECYSTECTOMY Recovery
I have a couple of questions for those who have had this surgery. I will be having ROBOTIC CHOLECYSTECTOMY surgery in a couple of weeks. How long did the surgery take? How long was your hospital stay? How long did recovery take befor you were basically back to your normal self? What advice do you have for others about to…
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It's back!
Diagnosed 6 years ago, many samples Gleason 8 or 9, seminal vesicle involvement. Classified as high risk of course. Was told by several docs that even if I had surgery I would still need the full barrage of radiation treatments also. I chose IMRT and 2 years of ADT and skipped the surgery. Now 6 years later, PSA slowly…
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Fighting Back: How To Tune Up Our Attitude And Outlook
I am a Stage 4 prostate cancer survivor, Gleason Score 9, with the BRCA 1 Gene. I've had surgery, chemo, and radiation. Also…3 PSMA PET scans. What helps me plow through this battle is a focused and determined outlook. If you would like a few tips on how to stay mentally strong as you confront these challenges, please send…
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Muscular pain along incision
I had a partial nifferectomy in May 2024 and the remaining part of my kidney atrophied. I have a 10 inch incision along my left side and I have quite consistent pain along the site. It is most noticeable when I sleep and does wake me up. For example I'm in Australia and it is 445 in the morning and I have been awake for an…
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Brother diagnosed with stage 4 colorectal cancer
My brother was diagnosed with colorectal cancer 2 years ago and had his colon removed. Then 4 or 5 months ago, he was again diagnosed, this time with stage 4 cancer. It has spread to the kidneys and lymph nodes and was given a year to live. He is wasting away so quickly going from 160lbs. to only 114lbs. He hardly eats…
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Can your ca19-9 level go up even though tumors are shrinking?
My husbands, who has metastatic pancreatic cancer (spread to his liver) latest Ct scan showed that his tumors have slightly shrunk. The tumor on the pancreas from 3.7cm to 3.0cm and the liver tumors have also shrunk some. However his CA19-9 level has gone up. He has had 4 rounds of chemo so far. Does that mean his…
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I'm doing a Natural approach instead of Radiation and Chemo... is anyone else doing this too?
I said NO to radiation and NO to Chemo and am doing a Natural approach... has anyone or is anyone doing this too? I had a lumpectomy this past April and had three lymph nodes taken out. The lymph nodes were fine. The cancerous lump was around 1" in size and was a triple positive. After a bunch of research and a divine…
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Church-Based Cancer Support Ministries
Because of my cancer journey, I am motivated to start a Christian cancer support ministry at my church. I would like to hear from anyone who has had experience with a cancer support ministry at their church and get thoughts and reactions about the idea. Thanks for your input!
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Not eating
My husband has been diagnosed with stage 4 non small cell lung cancer that has spread to his bones. He was put on capmatinib. From the last pet scan the drug was working but one of the side effects of the drug was swelling. He went to his family doctor about the swelling and the family doctor advised him to stop taking the…
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Needed to talk
I'm new to CSN. My story is, I was diagnosed with DCIS breast cancer 2002. I rejected the standard of care, chemo, radiation, or HRT. I believed I was 52 years old, when the doctor suggested left breast removal in 2005, with treatment. At that time my husband and I was on our 33rd year of marriage, so I rejected breast…
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Faith talk
I'm new to CSN. About me. I was diagnosed with DCIS 2002. I rejected the standard of care, chemo, radiation, or HRT. I believed I was 52 years old, when the doctor suggested breast removal in 2005. At that time my husband and I was on our 33rd year of marriage, so I rejected breast removal for now, maybe I was a little…
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New to page and Dx
I was Diagnosed 8/4 with Invasive Ductal Carcinoma in my left breast found on a screening mammogram. So thankful for this. I feel like things have taken so long to get going. Screening mammogram was 7/15 follow up 7/22 Biopsies x2 had 3 suspicious areas 7/30 results 8/4. MRI of both breast 8/15. I have seen Surgical…
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Social Security Disability
I just finished my online application for Disability benefits. What an ordeal--I see why people hire attorneys for this. Monday, I filed the Application for Benefits and printed out some instuctions about what information I would need to file the Disability Report. Tuesday, I assembled, compiled, and recapped medical…
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Stage 2 BC Triple negative Tamoxifen 8 yrs Uterine lining 22 mm
Started with intermittent discharge in Sept, had a negative pap. Went to a Gyn in Jan , had an US and measured 22 mm. My oncologist took me off tamoxifen right away and asked for a CT scan to be done before the D&C is completed. Waiting on the CT Scan results and D&C is scheduled for next Tuesday.. Wondering what my…
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Side effects from anastrozole
I started anastrozole about seven weeks ago. I am having leg pain, headaches, and hot flashes. Looking for suggestions on how to deal with these effects.
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Calling all Gay, Lesbian, Bi, Transgender cancer survivors and caregivers
Hi everyone, I have been watching this board for a long time and see very little activity. I have to believe that in all of america there are more than a few glbt people dealing with cancer. I would love to see this board an active board like many of the others I see on this site. One possibility is to combine and make a…
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Side effects
So, I’m 22 months out from prostate removal and 5 months out from 35 prostate bed radiation treatments Received my 2nd and last lupron shot a month ago 1 - Haven’t had an erection since December of 2023. I guess I can kiss that goodbye 🧐 2 - Only issue I still have from the prostate removal is some minimal leakage during…
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Just wanting to be happy after cancer
Did You have a full life before you found out? How did you react to the news? Are you feeling defeated now that chemotherapy and radiation treatments are done? Are you struggling with what you used to look like vs how you look after cancer? If you are like me, I wish to talk to you about your journey and what you’re doing…
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need infor about high-dose IV vitamin C
Hi dear all, I read a few articles about high-dose IV vitamin C, I believe it will at least help with reducing the side effects from chemo. Since my husband will start chemo soon, I would like to have him give a try. So if you had experiences with high dose IV vitamin C, please help me with these questions: 1, what dosage…
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where to purchase / buy Vitamin C IV mega dose?
Hello, Due to the pandemic, all clinics in Illinois ran out of Vitamin C IV. Now all patients have to look for other solutions to find Vitamin C Intravenous to continue the therapy. So we can call it a humanitarian case. Question to the members of this forum ... does anyone know the distributors of Vit C IV (contact and…
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State Disability, Social Security, Social Security Disability
Just thought I would pass this info on to anyone who might find it helpful. I may have mentioned some of this before. My last day of work was 2/26/2010. I was ill but didn't know the horrible truth yet. After literally begging my doctor for more tests I was given the CT scan which forever changed my life. I applied for…
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NHL Large B-cell--I want feedback on bone marrow transplants!
The scoop: Diagnosed with Diffuse large B-cell aggressive NHL with bulky tumor in lung in May. Received 6 treatments of CHOP-R. Lymphoma responded very well at first. Now the follow up PET scan on Oct. 22 showed greatly increased cancer activity in part of original tumor. Had that area biopsied on Oct. 25 to verify that…
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Lhermitte's Symptom or Sign
Hi All, We have discovered a common symptom among a few of us here (D'Ware Jim, Skiffin John & I) called 'Lhermitte's Symptom'. Please read below to see if you think you get this sensation and can anyone who has, please post a brief note re: when it started, where you get it and if you have had any medical opinion etc.…
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11 month post RARP
Just had what is considered my one year visit post surgery by my Dr. PSA still undetectable at 0.014 which is where it has been since my surgery a year ago. We are now moving to six months appointments vs 3 months and if still undetectable in a year will go to annual PSA testing and visit. Still slightly incontinent. Had…
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Hearing loss/ side effects of R-chop or methotrexate?
Hello everyone, I had 2 cycles of R-Chop ( but instead of doxorubiciin I get epirubicin), 2 cycles of intrathecal methotrexate and I am experiencing increased tinnitus ( buzzing in ears) and mild pain. I have had tinnitus for years but I believe the chemo regime is increasing it. Or I may have an ear infection. I need to…
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I am new here
I was diagnosed with diffuse large B cell non Hodgkin lymphoma 12/1/2024. I have just completed my 5 th of 6 RCHOP treatments. I have so many feelings and I just want to curl up and sleep. My family and friends have been praying for me which I appreciate, I just don’t know what to say. I am primary care provider and work…
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Decision time on Surgery & Radiation, all test done
Thanks again for all the help in these past few weeks, my PSMA Pet Scan Results have arrived. At this point (waiting on Decipher Test) I am done with testing. At this point I am leaning towards SBRT & Hormones for 6 months. I meet with my urologist tomorrow and then Radiologist, Oncologist on Thursday and Friday to hear…