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Diagnosis: Kidney Cancer (ccRCC)
Hi everyone, My name is Halil, I am 51 years old and I live in Belgium. I’m joining this community to share my journey with kidney cancer and find support. I’ve had a long road with two kidney cancers, and I’d love to connect with others who’ve been through similar experiences. Here’s my story: • January 26, 2010 – First…
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Kidney Cancer (ccRCC)
Hi everyone, My name is Halil, I am 51 years old and I live in Belgium. I’m joining this community to share my journey with kidney cancer and find support. I’ve had a long road with two kidney cancers, and I’d love to connect with others who’ve been through similar experiences. Here’s my story: • January 26, 2010 – First…
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Vagal Nerve Damage from Radiation
Hi folks - it's been a long time. My husband had tonsil cancer over a decade ago and got the full chemo and rad treatment. I was active here for a while, but after a few years, I saw that others could provide any info I could, and it was hard to relive the bad days. Now, I'm learning about something that might be new to…
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What do you do to prevent recurrence?
Hello, I’m looking into what can I do to minimize recurrence risks other than eating healthy etc. and found this article suggesting that one should attack these specific types of cancer cells to ensure non-recurrence. Anyone care to comment? Do you know about this topic or do you follow a preventive regime that you can…
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Face Discoloration
Howdy! I'm new here so please bear with me. I am currently on the oral Ibrance (Paxlovid) and have been for over 3 years. My face, ugh! There's an uneven tone and age spots. I've spent a fortune on face creams, etc. but nothing works. My hubby says it's due to the medication. I always had a nice face and never had pimples!…
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Tonsillar cancer scanning
I was treated for Tonsillar cancer stage 1 the fall of 2023 now recently I was diagnosed with stage 4 cancer that was metastatic from tonsil to lungs and bones. I had a scan 3 months after my tonsil cancer treatment and it was clear, my doctor elected to scan me once a year after my first 3 month scan. 10 months in I had…
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Iliostomy ahead
Aloha, I'm coming to the end of my treatment plan with Robotic LAR (lower anterior resection) in 2 weeks. They told me they'll be setting up an iliostomy bag. I'm sure they'll tell me all about it after surgery. I understand what it is. I'd like more info on: care tips, can I leave it off for any time, what are good food…
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Do you tell people?
I’ve never been one to share a lot about my personal life with friends or family. I’m the one that asks questions and get others to talk about themselves. I have only known for a week that I have stage 3 colon cancer. I’ve told my husband, my mother, my mother-in-law, and a good friend. I’m guessing that at some point I…
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Caregiver for husband who is a totally different person now.
My husband has Myelodysplastic syndrome. He has been given 1-3 years. He talks to me so mean now. He never smiles or laughs. He sits in his recliner with the heated blanket and sleeps or stares at the blankly at the tv. I have tried to hold it together and ignore the mean and hateful thinks he says to me but it is really…
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18 years out after Stage 4 Dx
Hello all, This disease is so unfair and unpredictable but I did want to throw a chance of hope out there. It is now 18 years out from the initial diagnosis. Stage 4, mets to liver and lungs. Took long time but I'm still here and doing fine. I know the long term people who I first followed meant a lot. I have no magic…
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Chemo pill vs pump and how to support body for lessening treatment side effects
Aloha! I've been recently diagnosed with stage 3, 2"rectal tumor, 2cm into the wall, 7 lymph nodes inflammed, at the top of the rectum. I'm headed in for my 3rd biopsy tomorrow to get pathology results to give us a proper plan moving forward. I turned 40 in March, First noted symptoms April this year, found tumor early…
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On_A_Journey's journey
PART ONE Hello all, I joined this forum recently, asked some questions and made some comments, but until now I’ve only given a brief description of what brought me here. I will treat this thread as my own personal blog by telling my story and providing any updates as they happen. I am 59 and from Australia. I have a strong…
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My Journey
I started by donating my lett Kisney to Kidney Cancer in 2002. Naturaly my Uro followed my Prostate each following year. MY psa TOOK A BIG JUMP FROM 2018 TO 2019 and a Biopsy was a Gleeson 8 (9 after surgery.) I saw Dr Patel in Orlando for my robotitic Prostectomy. I have 6 and 1/2 years undetectable PSA. 3 months later I…
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Radiation Fallout
Long time member of CSN, but have been absent several years. 10 years ago husband diagnosed with stage 4 nasopharyngeal tumor. Treatment was successful in eliminating the cancer but radiation effects over the last 10 years have piled up. Hearing loss, no longer able to swallow so PEG tube feeding, tracheostomy, balance…
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Seeking Guidance on Supporting a Child with Cancer: Emotional and Practical Tips
Hello everyone, I’m new here and wanted to reach out to the community for some advice. I have a family member who was recently diagnosed with childhood cancer, and as you can imagine, it’s been a tough time for all of us. I’m looking for some guidance on how to best support them during their treatment journey. What have…
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Looking for others who may be survivors of leiomyoscarcoma of the uterus.
Hi... I was diagnosed with leiomyoscarcoma of the uterus in Sept of 2010. I had a complete hysterectomy, then 28 treatments of radiation to the pelvis. I know it's aggressive and that the statistics for survival is not good. Looking for others in the same situations.
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Daughters Bone cancer
I am new at this so please bear with me. My daughter now has Stage 4 Bone Cancer. She was diagnosed with a rare uterine cancer in 2008. After years of medication, chemo, and radiation and a few years in remission the cancer has returned as bone cancer. When this was discovered she was already at Stage 3. She is a single…
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Biopsy Results
My biopsy test results came this morning and I'm undecided whether to open and read them before speaking with my urology office tomorrow morning. Waiting for the results these last few days caused me a lot an anxiety, and I don't know if taking a look might exacerbate my anxiety. Have others had this debate with themselves?
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Primary Bone Lymphoma, anyone?
Hi all, I have Primary Bone Lymphoma, which is deemed a rather rare occurence of lymphoma. My variety is Follicular (indolent), which is even further off the charts (the "usual" type of PBL is DLBCL (aggressive)). Specific information is hard to come by... So I would love to find other folks with PBL, who would be willing…
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Acupuncture for breast cancer stage 4 patient
hello, did anyone try acupuncture? And did it help?
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Anger
Hello, Just looking for some place to connect with others caring for a dying spouse who is angry, hateful and actually cruel with his words. Been married 45 years, he was a functioning alcoholic and I was the enabler. I am a 10 year Lung cancer survivor who by all means should not be here except by the grace of GOD. He is…
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How low a PSA? What is the new "normal"?
My PSA is 0.2 after having radiation treatment now just over 2 years ago. Interested also in this metric. Most of my usual body functions are fully changed from "normal" in one way or another after the 27 days of radiation. Almost everything. I am interested in chat with similar men and situations. I am 79. Any men that…
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ejaculation and semen flow
So concerned very much here. Have those here that have been treated by radiation for Prostate Cancer and had had any related conditions? ED in any way? How? What is your way of dealing? Please let me know. Thank you.
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Feeling lonely and isolated
My husband was recently diagnosed with non Hodgkin’s lymphoma. He is being treated at Gibbs Cancer Center in Pelham, SC. I am his caregiver. The prognosis is good. We lost our daughter to breast cancer 7 years ago. My husband does not want his diagnosis to be public; only a few close friends know. We are new to the area…
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Week 6 of 7 SRT complete
Week 6 and 7 I’m told they are concentrating on prostate bed. Only difference is about 3 hours after treatment, I run out of gas and need a 1-2 hour nap Still on same boring diet 😩. No diarrhea. Can’t wait for that first pizza a month from now 🎉🎉 hope everyone has a GREAT weekend I still have 3 more acres of grass to cut…
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CEA rising but no cancer detection
Hello im new to this board and I really hope you can help me. I never had cancer before and my CEA level was consistently below 2 for past 10 years. However suddenly this year my CEA was increased to 11.3. Then two weeks later, it increased to 14.1. We did colonoscopy, PET, and CT but no tumor is detected. I know smoking…
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First chemotherapy treatment today
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UPSC - Any survivors greater than 5years?
Hello Fellow UPSC sisters.. I would like to start a discussion on looking at recurrance rates and survival from the USPC group. This may sound depressing, but I think it would be positive to put light on this "Rare Agressive Cancer". I had surgery (TAH + BSO and pelvic node clearance Aug 2010). Surgical staging IIIC. (Node…
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I'm new here, this is my story
Hello everyone! I have had right flank pain for many years, like 15 or so. every scan and diag test has been normal. I also have a painful inflammatory disease in my bladder called interstitial cystitis for 22 years. In the past few years I have had a few UTIs and more severe right flank pain which has led me to have more…
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Nine years later recurrance in lung
I had stage 1a grade 1 endometrial cancer 9 years ago. I had a full radical hysterectomy, and the Dr.s felt there was virtually no chance it would return. No chemo or radiation was suggested or offered. Nine years later I started to cough blood and after loads of tests, it has been determined that I have an endometrail…