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Pathology Report
Got a call from my surgeon today. He said it was chromophobe RCC. I looked that up and it's apparently a rare form of RCC, diagnosed in only 5% of cases. What's strange is that it seems to be hereditary, but neither of my parents, nor any of my four grandparents had (to my knowledge) kidney cancer. Of course, since the…
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New to this platform
Hi All my name is Anthony of 48 years old. I was diagnosed with stage 3 clear cell carcinoma in December 2024. I had a radical nephrectomy in January 2025 and am currently under Immunotherapy treatment every 6 weeks (9 treatments in total). I also have a suspicious nodule in my right thyroid and other "benign" nodules in…
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Has anyone had a chromophobic kidney tumor?
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caregiver
My husband was diagnosed in December, 2009 with stage three lung cancer which metasisized to the brain and is now stage 4 in both lungs. He has never been in a hospital, was in great health and is not a good patient at all. He has received chemo and radiation and was put on steroids which caused diabetes and a lot of other…
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Anyone with hemagiopericytoma?
My mom has hemangiopericytoma. She has it in her heart (they think-can't do an MRI to tell for sure). She has two mets in her lungs and a few in her liver. She's tried Gemcitabine & Docetoxal, Doxil and now is starting temador & avastin. I've joined a hemagiopericytoma group on Yahoo groups but am curious if there are…
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Base of tongue cancer
They discovered I had cancer in Tonsil, base of tongue, lymph node, same side Last Treatment was Chemo and radiation finished Jan 27 2025 CT in 6 weeks post treatment MRI at 3 months post treatment Everything looked the same Then Last MRI a week ago showed a 5 mm increase at Base of tongue Now 1.6 cm Was 1.1 cm 3 months…
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Web chat on HPV/Head and neck cancer
Hello everyone, Saw this on cancerquest. It will be on January 24th at 12:00 p.m. A Dr. Mark El-Derry of the Emery Winship Cancer Institute will be having an online web chat about HPV and H/N cancer. Sounds like there will be a chance for asking questions and getting them answered. The link is below…
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Mother in Law with extensive colon scarring and poor quality of life
hello all I've come to this forum as we are at our wits end as a family. I'm trying to find some advice/guidance on what i can do to help my mother in law who is suffering more and more from the effects of colon scarring due to radiotherapy. She has extensive nerve and muscle damage meaning she can't really keep anything…
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I have questions... new member
I am 53 and might be dealing with prostate cancer. heres my story. I have had my large intestine removed in 2008 from ulceritive colitis. I kept having microscopic blood in my urine and still do to this day. Also in past had a growth on my kidney that they did a cryoablation on 8 years ago and followed up with MRI for 5…
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Bowel frequency after reversal
My husband had stage three colorectal cancer. He had a resection and a temporary colostomy bag. He has since had his bag reversed but, ever since then he has been dealing with frequent bowl movements. He will need to use the bathroom up to 15 times a day and each time he will pass just a small amount of stool. Has anyone…
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Ampullary cancer
I was diagnosed with ampullary cancer in July 2024, had a whipple procedure August 2024 and then 12 rounds of chemo. Are there others out there with a similar treatment plan?
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Bone Marrow Transplant
Hello I'm new to this community, I have finish 3 rounds Chemo (chop) for T cell Lymphoma i have 3 more to go i just had a Pet scan done and i am being told i am in remission but i am being told after the next 3 treatments I will need the bone marrow transplant because of the aggressive t cell Cancer I am am told i will…
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Looking for comments about Jemperli/dostarlimab
I am a 73-year-old female, diagnosed with an aggressive form of endometrial cancer (EC), type IIIC1 dMMR. I had a complete hysterectomy last fall with no obvious signs of spread to nearby organs but did have one lymph node show microsized cancer cells. I've since received 7 infusions of Jemperli (6 infusions with paxitaxil…
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Chemo Teaching
Had my chemo teaching today…and of course one of the most important things is to eat… Any suggestions that worked well for y’all? I’m extremely overwhelmed!! How about mouth sores? Anyone prescribed Letrozole? This was something that my doctor may want to add to my plan.
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Malignant plural effusion from lung met colorectal cancer origin
My husband's scan today revealed a plural effusion highly suspect for malignancy from colorectal cancer lung met. Has anyone had experience with this? Trying to figure out what to expect. Thanks so much.
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Squamous Cell, Stage 4- Surgery / Radiation?
Hi, hoping to connect with Squamous folks stage 4 that were not eligible for surgery. I did the chemo and now on immunotherapy. Was told initially they might consider radiation but now that I have had a good pet scan (lymph nodes are now not active) oncologist is stating that I am never eligible due to original cancer…
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Newly Diagnosis Endometrial Adenocarcinoma
I am 61 y/o and a mother of 3 wonderful grown children. I had been having some postmenopausal bleeding, and my ultrasound showed an endometrial stripe of 19 mm. My primary doctor referred me to a GYN doctor who completed an endometrial biopsy. Yesterday, I received a call from the GYN doctor stating the biopsy was positive…
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2nd Lupron shot
So, I got my 2nd 6 month lupron shot and am already feeling the effects My knees are now an issue. I got out of bed last night and almost fell over when left one wanted to give out. Also, my right hamstring is sore Just another thing to know and try to work around Any suggestions on what I can take OTC to counter these…
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11 month update
I thought I would provide an update since I have been quiet for a while. (I feel I owe all of you who helped answer my questions earlier) Brief recap ...gleason 3+4 1/5/24...gleason 4+3 at time of surgery 7/11/24...Nerve sparing surgery deemed successful. Continence returned at 2 months. But I ended up having a stricture,…
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Survivor's Anxiety
I am "cancer-free" now, but mentally I feel worse than during all the treatments! Has anyone else experienced this? I have tremendous anxiety over any possible situation and I wake up every morning in a panic attack. I am looking into therapy but does anyone else have any ideas for me? Thank you.
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HPV throat cancer - website for treatment and recovery. "My Throat Cancer Story - 2015"
Hello Everyone, I just finished my HPV throat cancer treatment 8 months ago and recently created a website that discusses all the things that I did to help with treatment and recovery. "My Throat Cancer Story - 2015". DryMouthThroat.com I will be adding more to this website over the next few months. Robert
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Advice/experience for a friend
My dear friend had a total collecting and rectal pouch created as a result of ulcerative colitis when she was young. She received news earlier this year that she had developed adenocarcinoma of her rectal pouch. She was initially told the plan was for radiation chemo then surgery that would leave her with a permanent…
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Still have neuropathy from Folfox/Oxy chemo
Hi, I am new to the forum, I was diagnosed Nov 2015 with a tumor in the rectum. Had 28 traditions, 6 weeks of 24/7 chemo, surg resection of tumor with temp illiostomy (for 12 weeks) then take down, then 12 sessions of Folfox/Oxy plus others that I don't remember currently. I had many of challenges others have experienced…
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Seeking help
my wife was diagnosed with an aggressive form of ovarian cancer on June 21st 2025. She had a 20 cm mass removed, full hysterectomy and bowel resection done on July 20th. Her first round of chemo was this past Wednesday and needless to say this weekend was awful. What I really need is caregiver support. I’m looking for an…
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VIN Partial Vulvectomy Aftercare
hello ladies… I had a partial vulvectomy March of this year. It was VERY painful, stitches did burst, but I made it….. now months later I am still not where I want to be in nowhere near as comfortable as I thought I would be. Other areas are itchy, and the surgery site has also began to itch. I’ve gone back to my…
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Major post-LAR gains after switching anti-depressant
Here's an FYI that I hope can help others. Stage 3 rectal cancer, had LAR eight weeks and on temp ileostomy, severely suffering, unable to stand up and walk for the last 3 weeks due to tenesmus, pain and incontinence. It turns out the anti-depressant given by my family doc was a stimulant and it neither helped me mentally…
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CRC lung nodule..... chances can be Mets?
I was diagnosed (40yo female) 3c rectal tumor July 2024, did chemo and radiation august 2024 through Feb 2025, LAR in April, iliostomy reversal this past June. My CEA in May 3.8, July: 38. Just had CT scans done yesterday and found a 1.4x1.5cm spot on lower left lung. (A spot was noted in June 2024 petCT 3mm lower left…
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I'm trying to cope.
After a car accident in September of 2024, scans revealed brain swelling from a 3.4cm tumor in my right frontal lobe. Further scans revealed a 5.3cm tumor in my lung. The lung tumor was identified as small cell neuroendocrine cancer. I had a craniotomy in October of 2024 to remove the brain tumor. Following a brief…
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Burning Burn Tongue After Radiation Please Help
I am 4-1/2 months post chemo and radiation for tongue cancer. I had the cancer excised from the left side of my tongue 16 months ago. T1N3 The problem that I have is a burning and painful tongue. The burning feeling extends from the point of excision on the left, all the way around to the right side of my tongue along the…
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grade 4 glioblastoma
i ha ve just had 80% of my tumour removed last week i am told my cancer is treatable but uncurable about to begin 4-6 weeks radiation and chemo i gues my question is is how worse or dibilitating is this likely to make me i have already lost use of right arm and leg slowly coming back but i really dont want to trade what i…