-
Sharing my Stage 3 journey
I posted the following in response to another thread but since there are those that my not see that thread I will repost on a thread of my own and try to comment to those just starting this journey. I think the best that I can contribute is to tell my battle with Stomach Cancer and let you pick what information is helpful…
-
My husband was diagnosed with Wilms Cancer, it usually occurs in children, does anyone else have Wil
My husband of 38yrs old was diagnosed w/ Wilms cancer, it is usually found in kids and not in adults... does anyone else have this? He will be starting Chemotherapy next week, hopefully...
-
Financial assistance
hello my daughter’s boyfriend is a survivor of this type of brain cancer. I am trying to help them find financial assistance to help pay the bills. Are there help out there he could apply for?
-
I am new here
I was diagnosed with diffuse large B cell non Hodgkin lymphoma 12/1/2024. I have just completed my 5 th of 6 RCHOP treatments. I have so many feelings and I just want to curl up and sleep. My family and friends have been praying for me which I appreciate, I just don’t know what to say. I am primary care provider and work…
-
Well Differentiated Liposarcoma of Left Thigh
I was diagnosed with a Well Differentiated Liposarcoma that measured 18 X 10 X 4.5 cm. In September 2011, I noticed a strange lump in my left thigh and went to a doctor, I was told I had a pulled muscle. My leg didn't hurt, it just had this bulge was squishy and moved around in my thigh. Since I was told that the lump was…
-
Have to get a molar pulled
I am a thirteen-year survivor of nasopharyngeal cancer. Through the years, I have spent thousands on my teeth. I had a molar that had a crown on it. It decided to come loose and fall off. Now I need to have the root pulled out. My dentist has put me on two meds. Pentoxifylline and vitamin E to ward off osteoradionecrosis.…
-
Webinar: Head and Neck Cancer Survivors - Managing Function and Quality of Life
The National Coalition for Cancer Survivorship (NCCS) hosted a Cancer Policy and Advocacy Team (CPAT) webinar discussing quality of life for head and neck cancer survivors. The treatment of head and neck cancer (HNC) often involves surgery, radiation, and chemotherapy. This treatment is critical for controlling or curing…
-
Radical Nephrectomy in Oct 2024 - Unsure of Next Steps
Hello, first off, let me start out by saying that I am grateful for this community and the courage you all display. I am hoping for some guidance on my cancer journey to better help me advocate for myself. In October 2024, I went to the emergency room after a month of seeing small traces of urine in my blood. I was…
-
Mohs surgery shock and support
So glad to see this site. Support is so helpful for healing plus tips and advice. Yes I was in shock after seeing the stitches from Mohs on my nose and closure with a plastic surgeon. In my opinion it seems like it may be helpful if a Mohs Dr.’s have actual before and after pictures so that you can be prepared for any…
-
Overwhelmed with my proposed treatment plan
Hi everyone, I had an appointment yesterday with a radiation oncologist to go over the treatment plan for my prostate cancer. I’m very grateful my spouse was with me—it was a lot to take in. I have a Gleason 9 diagnosis, and while the cancer is still contained within the prostate, the recommended treatment is androgen…
-
4 YEARS OF LIFE!!
Hello all you Rockin' Semi-Colons pals!! August 6 is my four year anniversary!!! I AM ALIVE!! I love those words. As much as I love NED. I have a houseful right now and more coming this weekend so I just wanted to sneak in here really quickly and share this with you. Tomorrow I will be off to the berry patch picking fresh…
-
Shoulder Pain and Dysfunction After Radiation
Remembering that I have had radiation twice, most will not run into this problem. But some will, and as I've not seen a reference to it before, thought I'd talk about this situaton. It has taken me awhile to figure out I had a problem. Beginning soon after my last radiation, I started having mild bilateral shoulder pain. I…
-
Q: Cancers in senior citizens from thymus radiation as babies?
It's well known that those of us who misguidedly had their thymus glands irradiated as babies developed thyroid cancer in early adulthood. Now that I'm 69, I'd like to consider how many of us have developed other cancers in the area of the neck, chest, mouth, etc., as senior citizens. I've seen a few people, in this forum,…
-
Rib pain
hi, anyone has any home remedies for rib pain? My mom has breast cancer with bone and liver mets, and she has been feeling pain in her right rib. If you guys could give me some home remedies or treatments for rib pain other than radiation that would be good! Thanks
-
Overactive bladder from ADT and IMRT
Just finished the last of 40 IMRT sessions last week and have been on Orgovyx and Zytiga for about 3 months. Feeling OK with the exception of an overactive bladder including urinary urgency and frequency. I need to pee about every 1-1/2 hours. Very annoying especially during the night. Not getting adequate sleep. I…
-
Thanks all
I want to thank those who tried to help me. I gave my best effort to try to deal with the side effects of treatment from this disease but learned today that ADT damaged my testicles and they are no longer working so I will never recover testosterone. I also learned ADT gave me osteoporosis and heart problems. This is not…
-
Breast Cancer and TNF blockers
I am a two time breast cancer survivor (2003 and 2010) facing a difficult decision. In 2008 I was diagnosed with a rare and particularly aggressive form of rheumatoid arthritis, Palindromic Rheumatism that persists today. Unlike regular RA, this one does not cause joint damage but the attacks are more frequent and more…
-
Asymmetrical fullness of the right lingual tonsil with effacement of the right vallecula
I am sorry in advance for being a pain I am just worried. CT scan showed Asymmetrical fullness of the right lingual tonsil with effacement of the right vallecula. PCP sent me to ENT. ENT says TMJ and reflux. I have had ear, throat and neck pain and swelling on the left side for over 3 months. Occasionally my lymph nodes…
-
Needing support and advice
Hello, I survived stage 4 cervical cancer after 4 surgerys chemo and radiation later I finally made it the outcome of surviving is having to wear a colostomy and urostomy bags the rest of my life and I'm 32 years old. I'm in a depression because I feel like I'm never going to find love again. When I got the cancer and…
-
Diep flap reconstruction
how long did anyone who had a physical job (I work in a kitchen) return to work after diep flap reconstructive breast surgery? I’m coming up on my 6 week follow this week at Dr and I’m nervous and having some issues about returning too early. About not being able work due to being on my feet all day plus it’s physical…
-
Thick Lining
Almost 52 over 2 years post menopausal and have been bleeding very infrequently until about 5 months ago. It comes and goes . Sometimes clear discharge, brown, red, etc and usually light. sometimes when i urinate i do have some discharge (assuming some lining). The last 4-6 weeks i had period type cramps in lower…
-
Anyone told they have a endochondroma and it was chondrasarcoma in femur??
I have a 10cm tumor in my femur and am scheduled to have it removed. The doc said he is going to test it while im under to look for cancer. I have Thinning of the cortex and remodeling.I also have bone damage (chipping away).My bone scan came back with a very intense uptake and cell changes. I am sick to my stomach over…
-
Pluvicto
I just finished first of six Pluvicto treatments. Out of isolation and haven't noticed any real bad side effects (yet). I recently finished a clinical study with Xtandi and a part inhibitor. PSA was 115 at beginning, went down ton3.2 then trended upwards. Doctor immediately got me on Pluvicto so we'll see how it goes. I…
-
Bladder cancer MIBC T2, with prior diffuse large B cell lymphoma
Hello. My Dad had the above lymphoma last year went through 6 rounds of rchop and had a clear pet scan in Fall of 2024. Feb 2025 dad was diagnosed with bladder cancer, had two turbt procedures. He has elected bladder preservation treatment which means keeping his bladder and doing immmunotherapy through his existing port.…
-
Still have neuropathy from Folfox/Oxy chemo
Hi, I am new to the forum, I was diagnosed Nov 2015 with a tumor in the rectum. Had 28 traditions, 6 weeks of 24/7 chemo, surg resection of tumor with temp illiostomy (for 12 weeks) then take down, then 12 sessions of Folfox/Oxy plus others that I don't remember currently. I had many of challenges others have experienced…
-
My Update since HIFU treatment August 2024
Last year, I met with numerous specialists to explore all treatment options for my prostate cancer diagnosis. I consulted with experts in radical prostatectomy, radiation, TULSA, and HIFU, and I wanted to share a brief update on how I navigated these decisions and where I am today. 🧑⚕️ Consultation Highlights Dr.…
-
Just found out yesterday
Of all days to get results of cancer was on April 1st! My Oral Surgeon told me that my biopsy came back with cancer. Keratinizing squamous cell carcinoma on the side of my tongue. About 2 years ago a bump appeared on my tongue and my dentist told me that he thought it might be from HPV so he removed it and biopsied it. It…
-
MRI guided surgery and Endo Ablation
I have my first appt with a gynecologist oncologist today and have been researching alternatives to hysterectomy for fibroids. I am post menopausal so if the doctor is adamant about that route, I’m fine with it. However, I’m wondering if anyone has ever had MRI guided surgery that is apparently non-invasive and destroys…
-
Positive Cologuard Test - Opting for Virtual Colonoscopy
Hello all. First time posting here. A few days ago, I received the dreaded positive Cologuard result. After reading a number of internet forums about Cologuard being notorious for false positives, my anxiety about the test result has all but disappeared. I'm a 45-year-old white male. No symptoms. Normal stools. No family…
-
Searching for Treatment Feedback / Supplements
Hello I am age 51 (in great shape aside from this) recently diagnosed PCA and biopsy showed combination of 3+4 and 4+3 Gleason so definitely intermediate risk. PET scan on 4/19/24 showed cancer is on left side of prostate only has not spread. No symptons aside from PSA level 4.3 and get up pee 1 or twice at night. I am…