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Myxofibrosarcoma
Hello I'm new here. Sitting at home recovering from surgery to remove a lump from my hip. It came back to be high grade myxofibrosarcoma. I'm 41 and worried, not going to lie. Anyone else know what my family and I have ahead of us or going through it?
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disclosure
thanks in advance… I'm about to put my house on the market - planned before my diagnosis. but… I wonder if I should disclose it to my realtor. I don't know any legal requirement, but?
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Is it possible to be told you don’t have cancer without a biopsy?
The gynecologist oncologist that I saw today told me that I do not have cancer. My regular gyno could not get a good sample with an EMB so he had referred me to this GO, thinking he could do a frozen section D&C. But instead, he told me flat out that I do not have cancer and that bleeding is most of the time not cancer.…
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Rare cancers
I’m searching for someone with a similar experience and looking for outcomes or impact on children due to any genetic components. Has anyone had two DIFFERENT primary breast cancers at the same time? I’m 37, diagnosed with invasive mucinous adenocarcinoma in my right breast and invasive ductal carcinoma with micrometastic…
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Later onset incontinence after initial continence
Has anyone experienced sudden onset urine leakage (completely unprovoked—no lifting, straining, coughing, etc) after being completely dry after surgery? Prostatectomy was nearly 3 months ago. There was a single episode of incontinence overnight around 2 weeks after surgery. Then completely dry even with exertion until two…
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Cancer center experiences
Anyone else experiencing micro aggression at your cancer center? Informing our cancer team about Trauma informed radiation was a hurdle to jump over in the beginning. Experiencing homophobia 5 days a week for another 5 weeks seems to be just another part of the treatment. We plan to address this issue with the hospital as…
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Looking for others with NSCL BRAF mutation
Hello, I was just wondering if anyone is on Braftovi and Mektovi and how is your experience with these medications. I have been on them for 1 month now and have had quite an improvement in my symptoms. I do have fatigue and some muscle pain in the evenings, but not enough to stop my day. Just wanted to connect with people…
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Suggestions for sleep positions after lumpectomy
I'll be having a lumpectomy in 2 weeks, left side. I usually sleep on my stomach or left side. That's not going to work! Will I need to sleep on my back? Maybe sleep on a recliner? Any suggestions?
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L-Glutamine for Neuropathy
Hello again ladies, Can anyone tell me how many milligrams to take of L-Glutamine and B-6 to help neuropathy?? I tried Lyrica, and it didn't help. Thank you; and God Bless all of you!! ~Susan xoxo
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Anxiety/Stress Post Treatment
Hello all, I am a 39 year old man who was diagnosed with Stage IIIb colon cancer in August 2024 (at the age of 38). I had surgery to remove a portion of my colon and then six months of chemo (oxaliplatin and capecitabine) that finished at the end of February this year. Post a late March CT scan and I was told there was no…
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Caregiver for husband
My husband has Myelodysplastic Syndrome which is a blood cancer. We have been married 47 years. He has turned into a totally different person. I cannot carry on a conversation with him. He never laughs. He talks to me like I am a dog. He cannot say anything nice to me. He has been given 1-3 years. I am dealing with his…
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Jaw issues
My jaw started popping about 10 days ago. Only when I chew Is this a lupron side effect??
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Cervical cancer diagnosed now renal cancer- can I have two surgeries at once?
hi - I was diagnosed with cervical cancer in April after getting an IUD. I’ve recently undergone a LEEP procedure and am just recovering. After my follow up I was sent to get a CT scan to check for any other possible complications before getting a partial hysterectomy, leaving only my ovaries . They have found a mass on my…
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Stage IVB endometrial adenocarcinoma.
I was diagnosed with Stage 4B metastatic endocervical adenocarcinoma in January of this year, surgery/hysterectomy not an option. I have done 2 rounds (6) infusions of chemo. 25 external radiation treatments, and 3 HDR brachytherapy treatments. I'm 43 with 3 grown children and 2 grandchildren. I have hit the stage of post…
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Diet topic
so I had salvage surgery done little over a year ago going on 14 months. Cancer was still contained tomthe prostate ..pathology report came back good except for one I thing perineural invasion present. Surgeon said nothing to worry about probably 80% of all surgeries come back with that being said in my head the cancer is…
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Chemo meds
Hi, I'm new here. I just started chemo for metastasized (to peritoneal lymph nodes) cervical cancer. I had my first series of chemo radiation and brachytherapy treatments Oct-Nov 2024. The drugs I'm getting are Carboplatin, Paclitaxel, and Keytruda. Bevacizumab was originally in the plan, but I decided to decline it due to…
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high risk (4+4) diagnosis with moderate PSA (4.2)
hey y'all, I'm a month in to this journey (since biopsy), and just found this forum while searching for info on a particular patented treatment (that's not pertinent to my question) … so, what is typical treatment for a high risk (4+4) grade group 4 diagnosis with moderate PSA (4.2) I'm just past getting a good PSMA-PET…
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Body Changes
Hmm. Well. Few years ago I would have been embarrassed to even mention this But, I got to know 😳 The hormone shot effect on my body. I’ve lost muscle mass (10-20%), My joints hurt a lot at times, I get dizzy spells, and … When I look down I’m like WTH. Losing hair down there and gaining what? fatty tissue above my main…
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Immunotherapy for Non-Small Cell Lung Cancer using DNA Sequencing?
My mother-in-law who is 84 years old was diagnosese with Stage 4a non-small cell lung cancer. Its in the right lung and in some lymph nodes they tested. Nothing in the bones or brain scans. we are still waiting on DNA sequencing. Does anyone know of a good sources for papers or information about immunotherapy treatments…
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Relationship challenges
I don't have a safe place to talk about this, and I could really use some support and insights from others. This has the potential to turn into a long post so I'll try to stick with the nuts and bolts. I'm 46 and this is my second time in treatment for breast cancer, first time I was 32. Both times the plan was lumpectomy…
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is it wrong of me?
in a few days i go back to my doctor and get the results of my recent pet scan what i want to know is , is it wrong of me to kinda hope to have cancer again? cause i feel like its all i know at this moment and i guess i just feel lost as to how to go on or what to even do. i feel like a monster for hoping it to happen.
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Pre-surgery anxiety & fear
I am 69 years old and recently diagnosed with lung cancer. I don't have a surgery date yet but should find out this week. Or at least I hope so. (This process has moved much more slowly than I imagined.) But in any event, I find myself experiencing waves of intense fear and anxiety that I cannot push past on my own. I seem…
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Elevated heart rate
My resting heart rate has been in the low 50s for many years. In the hospital receiving the first cycle of DA-EPOCH-R it was still in the low 50s. However this week I had an immunotherapy infusion. My resting heart rate is now in the 70s. Still a 'good' heart rate but very high for me. Anyone else experience similar?…
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Support/ghosting
Hello all, I'm kinda new to this forum. I was diagnosed back in 2023 with testicular cancer, I had my testicle removed shortly after finding out. I still needed chemo because there was another mass on my lymph nodes farther up sitting on my urethra which made me have to get another surgery a few months after I got done…
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Chemo treatment experience /help
Hi - I am currently diagnosed with colon cancer. I have just had my surgery and now moving on to Chemo treatment. I had a choice of CAPEOX or FOLFOX. I am wondering if anyone can share their experience? I understand that for FOLFOX, a port needs to be implanted for the infusion. For CAPEOX, a port is not needed. But I am…
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biopsy coming
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cholangiocarcinoma
Just diagnosed with cholangiocarcinoma(bile duct cancer) had first chemotherapy October 30,2023
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Best cancer hospital on the East Coast
I have metastatic pancreatic cancer which has spread to my liver. I have numerous small lesions throughout. Had Whipple surgery 12/24 and cancer was removed from my pancreas. Been through 2 grueling chemo rounds before the surgery and they want to have me do chemo again. Can some one suggest an excellent hospital for liver…
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Am I wrong?
Hello, I hope this message finds you well. I am reaching out for support as I navigate a challenging situation with my dad, who was admitted to the hospital on June 6, 2024, after being diagnosed with basal cell carcinoma. Following a series of tests and consultations, we met with an oncologist whose advice left me feeling…
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Skin care/household products after cancer treatment
Has anyone switched up their skin care and household products? I'm trying to get better about using cleaner products to help reduce the chemicals, if possible. I have very sensitive skin so it takes awhile to switch. My daughter got on me about some of the things I was using, and she was right. Anyway, I switched body…