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Our friend, NewHere, has passed away.
Anyone who has followed NewHere, these many years, will know that his fight was long and hard, but he gave it his all and then some. What a blessing it was to be a part of his world, albeit online. He was a strength and motivation for me, as I continue to survive. I survive to honour NewHere, and all who have gone the way…
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Feeling overwhelmed, can't stop crying.
hello, I was recently hospitalized and had to push my treatment back. Since this happened I cannot stop crying and feeling like a failure. I wanted my treatment to go by as quickly as possible and now I don't know when it will start again. My doctor also told me I should take off work until treatment is finished and now I…
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Pneumonectomy remorse
InFebruary of this year, a large (approximately 6.5 cm) tumor was discovered in my left upper chest. A biopsy performed by Hospital A showed it to be Squamous cell cancer (NSCLC). The surgeon at Hospital A described it as operable, a difficult operation but one he could do. To make surgery easier, it was recommended I…
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Complex kidney cyst in a child?
Hi all, I hope it is ok to post here, but I found this site when searching for info about complex renal cysts. My child has an approximately 1cm complex cyst on his kidney with one or two "areas of septation." It is thin septation but report doesn't say how thin (ie paper thin). The urologist said they don't use Bosniak…
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Boyfriend of 3 years diagnosed last week
my boyfriend was diagnosed last week with esophageal cancer. It’s been a wild ride for all 7 days- Diagnosis, feeding tube, port. This morning he got angry at me for doing too much and that I had my feelings hurt when he didn’t want help. He packed his stuff - driving even though he shouldn’t this coming week. I am…
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Rectal Nodule
Recently had an endoscopy. A single adenomatous polyp was removed, it was pre-cancerous. Part of a rectal nodule was removed but the biopsy did not get deep enough tissue to rule out a carcinoid lesion. The gastro wants to have a EUS done. I'm leaning towards "No" after reading about chances of finding cancer there after a…
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Nutrition after tooth extraction, several years post radiation for BOT Cancer.
I need to have a tooth pulled and a root canal on another tooth (RC shouldn’t matter). Since my radiation, which was four years ago, my main nutrition comes from 2 large smoothies, 4 total servings daily. Now I’m reading that after extraction I should avoid using straws, and avoid seeds. One of my smoothies has blueberries…
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Managing Bone Health Post-Cancer Treatment: Looking for Tips
Hello all, I'm wondering if anyone here has had bone health problems after cancer treatment. I was diagnosed with cancer a few years back, and my treatment went well, but recently I have been experiencing some pain in my bones and joints, particularly in my legs and lower back. I know that chemotherapy and radiation…
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Cured of Edwing Sarcoma 9 years clean scans
Cured of edwing sarcoma, surgery on january 2016 in Moffitt cancer center Tampa FL. Hundred of metastasis on my lungs surgeon toke 14 tumor so I could breathe send home with a prescription for hospice, toke Protocell for one year, no kimo no radiation scans clear for the last nine years. praise God.
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Wishing A Happy And Blessed 2025 Thanksgiving To Everyone
For each new morning with its light, For rest and shelter of the night, For health and food, for love and friends, For everything Thy goodness sends. ~Ralph Waldo Emerson Wishing Everyone A Happy Thanksgiving 2024 Hello everyone on the CSN H&N discussion board. Wishing everyone a Happy Thanksgiving. Inviting everyone to…
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severe mood/endocrine/mental health effects from steroids?
New here- my husband was dx fall 2023 with stage 4 oligometastatic CRC (mets to liver). He is (thank God!) NED as of a couple months ago, after 4 months of CAPOX, LAR/hai pump install, HAI pump chemo + systemic irinotecan, ablation, 4 more months of irinotecan, liver resection, HAI pump replacement. He is now on cleanup…
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Prostate cancer treatment following colon cancer surgery
I am interested to hear from list members who may have experienced prostate cancer treatments on the heals of colon cancer surgery. Ihad a routine PSA test in May 2025, which came back with 13. A urologist sent me for MRI in August 2025, which gave a pirads of 4. The clinic's only biopsy probe was broken, so my biopsy was…
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PSA 4.5 after IRE
i am shocked that my psa is 4.5 three months after IRE procedure. I did have the blood drawn the same day I had sex- not knowing ejaculation could alter the results. But 4.5 is very high…not sure what is next.
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Dental problems after radiation, 2nd time
I had hodgkin disease 22 years ago, and again one year later, then in 2008 I was diagnosed with a malignant tonsil. Radiation again. My teeth were fixed several times through all this, but the radiation has destroyed them this time. They are brittle, breaking, decaying and just falling apart. I have had 5 pulled so far. I…
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Urinary Incontinence after surgery
My partner recently removed his catheter and has essentially no control over his flow — constant dripping, fills 5 maximum-absorbency Depends underwear in 24 hours. We were expecting leaks, but not like this. Based on my research online, he even did Kegels before surgery. Has anyone ever recovered to anything approximating…
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Have you had Radiation Treatment for Prostate Cancer?
Hello all, male in mid 70s here, Have you had Radiation Treatment for Prostate Cancer? What is your current status? History. Outcomes? What has changed? Are you cancer free? What is your PSA? How is your sex life? Have ED? Are your ejaculations the same or have they changed? The color of your semen changed. How? Any blood…
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What Next?
I would appreciate your thoughts and insights on what I might expect: I am a 78 year old who was diagnosed in 2022 with a Gleason score of 8/9. Put on hormone therapy, which lasted for 18 months. Bone scan was clear but lymph nodes were involved. Radiation treatment – 26 in August/September 2022. PSA was almost indictable…
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My biggest fear...
My biggest concern is for my pets. I share my life with an Australian Blue Heeler and a Tuxedo Cat, both around seven years old. We live alone in an RV, and since I rarely have visitors, I’m the only one who looks after them. If—or rather, when—my time comes, I worry I won’t have the chance to alert anyone to collect them.…
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Hello, has anyone had their Taxol infusion reduced by 15% due to extreme side effects?
Hello friends, During my visit with my Onc doc (after my 3rd infusion), I disclosed that I had pretty uncomfortable neuropathy in my feet. I'm an ex snow skier and have had frost bite on my feet/toes about 30 yrs ago. I am now 71. The neuropathy ranged from pins and needles, shock waves up the legs and itchiness. My onc…
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Looking for personal support or to connect with someone who has had papillary thyroid cancer.
Hi, my name is April. I had a complete Thyroidectomy in 2006 for metastatic papillary thyroid cancer. I was 21 years old at the time. I had my next surgery in 2007 and my last one is 2012 to remove more lymph nodes. I was hoping to find someone I could talk to, in person, over the phone and looking for support. I was never…
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Almost 6 years clear
I got kidney cancer during Covid had to have my surgery a partial all by my self family wasn’t allowed in with me I remember being so scared well almost 6 years ago only had scans still have them because I was stage 3 with gods helpi made it so far life is back to normal I’m retired now enjoying life to the fullest my…
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Well it’s been almost 6 years
I had a 4cm tumor and I was stage 3 and had only scans after my partial well it was scary at first it’s not so bad now I still get scans because I was stage three got to have them for ten years but life is back to normal thank god for being with me thur it but outlook looks good
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Vagal Nerve Damage from Radiation
Hi folks - it's been a long time. My husband had tonsil cancer over a decade ago and got the full chemo and rad treatment. I was active here for a while, but after a few years, I saw that others could provide any info I could, and it was hard to relive the bad days. Now, I'm learning about something that might be new to…
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Uterine Carcinosarcoma (MMMT) Survivor – In remission 9 years after diagnosis and treatment
Good morning, all! I’ve been away from the Board for quite a while due to a raft of family issues (although I’m fine personally). I’m hoping that things will be settling down in the near future and that I can finally catch up with everyone here soon. But in the meantime, I did want to provide an update on my own post…
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Moms breast cancer question
Hi all. My mom is 79 years old. YES, 79 years old. She found out she had breast cancer about a year and a half ago. They said stage 2 at the time. She got put on letrozole right away, and took it for about 9 months before any surgery. Rhey said she'll be taking it for 7-10 years. She had a bilateral mastectomy about May of…
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possible aspiration???
I am a year out from stage 3 Throat . Starting in Nov I was getting more hoarse and feel like lungs are inflamed or have some liquid hard to define. Since radiation I have had two swallow studies and they both show some dysphagia. Feels like food just stops on the left side same place all the time and then disappears on…
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Happy Mothers Day Celebration And Blessings to Everyone
I would like to wish everyone a Wonderful and Blessed Mother's Day. Enjoy this day and celebrate mothers everywhere because we all have one, everybody does. Go visit, send cards, or phone Mom and tell her how much she means to you and how much you love her. And for those of us whose mom has passed on, bask in the memories…
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basil cell on lips and above the lip
Just wondering is there any safe sunblock that can be applied while outside that is safe and stays on for a long period of time?? Thank you.
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What did you wear?
I will be having a mastectomy soon & want to buy myself some new pajamas to recover in. However, I find that I can't decide on what style to get and am hoping that some one in here can help. I worry that the T-shirt & bottoms might rub on the drainage tube, the tank & bottoms might be to exposed, anything with bottoms will…
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Follicular Lymphoma - Rituxan and Bendamustine
Howdy - Anyone try this combination with anything close to Stage IV, Grade 2 follicular lymphoma?