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Dental implants post recovery
It's pretty surprising there are no threads on dental implants in this group. Well, here's my situation. Brief backstory - My cancer treatment, radiation and chemo, was a decade ago and successfully treated the cancer with very few long term side effects. Two teeth were extracted as a precaution prior to treatments with no…
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Sincerely Look for some advice for retroperitoneal liposarcoma
My father was diagnosed with retroperitoneal liposarcoma in 2018 and has since undergone three tumor removal surgeries. Over the years, we have tried various treatments, including chemotherapy, radiotherapy, proton therapy, and stem cell immunotherapy. Unfortunately, the tumor has recently recurred. I have attached a…
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Weight Loss
So. I finished my treatments on 4/8/25. At that time I weighed 206 (from initial weight of 222). I’m 6’2” Since finishing the treatments and working my way back to my pre treatment meal schedule, I’ve lost another 5lbs. I’m at 201 today I still drink around 80 ozs of fluid per day I am out on our 9 acres working every day…
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Success with dostarlimab immunotherapy for uterine cancer with mismatch repair mutations
https://www.nytimes.com/2025/04/27/health/cancer-immunotherapy-solid-tumors.html?unlocked_article_code=1.C08.fnfM.3jbPvxka1eGQ&smid=url-share Free link to NYT article. It is showing excellent results in other solid tumors, too. It's approved for uterine cancer with mismatch repair mutations, and in trial for certain other…
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Questions about IMRT and Urinary Urgency
I'm currently into my 14th of 40 IMRTs today. In the last few days I've been struggling to hold my bladder while on the machine. Had two incidences of having to stop the treatment for me to get off and pee. I barely made it to the restroom both times. They're very understanding and after I drink some more water and wait a…
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8 months post radiation and Cyberknife and 3 months post 12 months firmagon
Husband just recently finished treatment for prostate cancer with me. Gleason score was 8. Starting PSA was 2.8 before treatment. 3 months past Cyber PSA was .044. 6 months past Cyber PSA is .064. Does this indicate a concerning rise? And is there a need to worry? Messaged urologist and he said to come back and test in 6…
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CA125 high after 13 years of being fine.
Been cancer free for 13 years and even when I had cancer my CA125 never went over 10. Just had a lab test done and now it is 41 and I am scared. Had complete hysterectomy in 2009.Waiting on dr to get with me to find out if he wants any scans done. Have been extra tired lately and now my brain is racing trying to examine…
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Cyst has grown slightly over the past 6 months, other medical issues
Hello, Last September I was diagnoised with a 3.5mm cyst. Had a transvaginal ultrasound and a CA-125 (number was 8). Had another ultrasound 5 weeks later, was diagnosed as a simple cyst. I have had several CT scans over the past several months and the cyst is now 4.2mm In February, had an ileostomy. Seeing my gynecologist…
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Cholangiocarcinoma
My husband diagnosed 12/22/24. Had multiple surgeries on 03/03/25: Diagnostic laparoscopy Exploratory laparotomy Cholecystectomy Extended R hepatectomy En-bloc resection of extrahepatic biliary tree En-bloc portal vein resection and reconstruction En-bloc porta-hepatis lymphadenectomy Roux-en-Y…
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Survivor looking for other limb salvage patients to start a support group
Hi, my name is Corey (female) and I was diagnosed with a rare form of bone cancer in my distal femur at 24, parosteal osteosarcoma. My treatment was limb salvage surgery using a compression implant. After living normally for 24 years, I had 10 days between finding out I had cancer to limb salvage surgery. Although my limb…
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Side effects of Mitomycin
On 1/8/24, I start treatment for Stage 2 Anal Cancer, & I will have 1 dose of Mitomycin along with 5FU for 96 hrs. At beginning of treatment & 96 hrs. At the end of treatment. Also, 30 rounds of Radiation. I have RA & concerned about the potential side effects of this drug. I appreciate everything that I’ve learned on this…
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Thyroid cancer
Hello, I am new here. My sister was diagnosed with thyroid cancer last October. She had a full thyrelodectomy in December and in March of this year she had a RAI treatment. It's been now two months since the treatment and she still feels very very tired,but our main concern is that she has pain from the inside of the…
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RECENTLY DIAGNOSED WITH PAPILLARY THYROID CANCER. THYROIDECTOMY?
Hello everyone, I am a 44 year old female and was diagnosed with papillary thyroid cancer on January 17th of this year. Is a total thyroidectomy the best option for me?! Hoping you can help! Here's my story - In the fall of 2023 I woke up with "frozen shoulder" (adhesive capsulitis is the medical term), in my left…
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Cramps and Waiting for Biopsy
I am scheduled for a biopsy and SIS in about a week due to post menopausal bleeding. The doc prescribed Medoxyprogesterone to stop the bleeding. However, I started experiencing lower pelvic cramps a few days ago, that oddly starting late morning and going on until I go to sleep. When I was bleeding, it also tended to be…
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Are the chat rooms down or just gone from the site? Anyone know?
The few times I have tried to get into the chat rooms, I can't. Is it just me or are they not working again?
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side effects of Folfiri
I found out my colon cancer as migrated to my Rt lung. I was previously on Folfox, and on Folfiri and just completed my 3rd cycle. When did people start noticing hair loss or thinning? Folfox my hair just thinned
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liver cancer
can anybody give me advice? I had my 4th folfox chemo and had breathing issues. I feel like my Dr does not take this seriously, we will see…I was admitted, and they did many tests and said I was ok. I told my lung Dr and she bumped up my asthma inhaler, she dsaid I will not step on your cancer Dr feet, I let him see if it…
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Latest Check-up Results
I had my 3 month checkup today, and the good news is that my PSA is still undetectable, but my Testosterone has only risen to 26. But, by far, the most important test result is that my PSA is still undetectable. Life is good. My Related History and Data: Post-Robotic Prostate Removal Surgery Pathology Report A. Lymph…
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Options when adjunct or salvage radiation can't be used?
I am almost 5 months out from radical prostatectomy. 1st PSA at 3 months was 0.39 (quite high) and 0.40 at 4 months. This suggests a doubling time of about 27 months, although that can change over time. I was Gleason 3+4 (40% 4) with cribiform pattern. The margins were positive at both sides and the base. He only took out…
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long term survivors
Are there any other long term childhood cancer survivors out there ? Does anyone need to talk to a long term survivor.
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Treatment breaks and STD/LTD
hey there! I am a caregiver for my boyfriend who was diagnosed with stage 3 rectal. He is hopefully finishing chemo tomorrow and then will start radiation+oral chemo and finishing up with surgery. You all know how that works. Prior to surgery we are told he will be on a break to give his body time to recover and heal from…
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TritonMaxx For Ed In Today's Men Not Good!
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Taste - Post Treatment
So, I am now 13 days post treatment. Everything seems to be healing well. I think I may be one of the lucky ones, as I have been seeing signs of improvement for about a week now. my concern is with taste. I've had no changes regarding my taste... still taste nothing! I was reading some posts and have become confused as to…
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Scared & Emotional
After waiting 16 days, without my PCP giving me any info except a referral to a Hemotologist, I was told I have CLL. I now have to wait 7 more days to find out "specifics". The lack of communication with my health care providers is frustrating. I'm staying positive with my family & friends, but silently I'm freaking out.
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Using Zinc for Return of Taste?
Hi All Again, I forgot to add in my last post of several days ago that at some point near the end of my husband’s base of tongue SCC treatment (ended 10/24/23) that I was searching on this Board about taste returning. Someone mentioned they took Zinc supplements and it helped them. Scientific I don’t know but we asked his…
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Sleepy, tired, exhausted, forgetful, yes sometimes depressed
Hi Everyone, Does anyone have a suggestion, or the best trick besides healthy lifestyle, I personally follow, on how to alleviate TIREDNESS when taking Revlimid as maintenance therapy or plain therapy as it's for me? I won't give up writing (and reading) since they are my preferred indoor activities. Chemotherapy…
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Vectibix Rash
Just started on Vectibix last week. Acne rash started yesterday. I called my oncology Doctor today and he called in a prescription for Doxcyline, but only gave me enough for 7 days with no refills. I have read past discussions that other people has taken this and it has helped, however, what I gather from the posts is that…
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Advocate for Yourself!
Hi all! I previously posted about the problems I have 9 yrs post chemo. What i wanted to say was that when I started having side effects during chemo, my Oncologist and the pharmacist said they had never heard of those side effects and it couldn't be from my treatments. After chemo when my neuropathy really started kicking…
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Happy Easter Wishes to All 2025
This year I am wishing everyone a wonderful Easter as best as I can on here.. I had posted this message in a different form, and this site policy caused it to be removed. I cannot tell you the truth, or my post will be removed. For that matter this one may well be also I am not allowed to post XX xx xxxxx, xx xx xxxxx…
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Long term Chemo induced neuropathy
Hi. I was diagnosed with 2 types of Ovarian Cancer in 2015. After chemo I became disabled with peripheral neuropathy and my entire life as I knew it changed. Fast forward, I noticed pain and neuropathy symptoms worsening about a year ago and now I have pain, burning, extreme muscle tightness and pain if I'm touched on my…