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Non chemo treatment
I am helping my 60 year old friend who has an inoperable tumor the size of a lime. It has not changed size in a year. He has done everything except chemo and radiation. Are we allowed to collaborate with others on here who are trying alternative approaches or will I get censored just for asking?
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Fatigue on hot days
ok. So, I’m 22 days post treatment and have been doing my normal farm chores for past week. Today it’s in the 80’s here and I’ve had to rest about half dozen times Eating normal without issues. Still at 205 lbs. Walked a mile in park yesterday with our min pin. Plan on starting back on the Bowflex next Monday just a heat…
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Ampullary Cancer with ZERRO treatment offered
I had a stint put in to unclog my bile duct. I felt better even in the recovery room. They won’t do a Whipple on me because of my advanced MS. I was told that I would have a high probability of not making it off the operating table. So I have been offered Zero treatment.
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Elligard- Hormone Therapy
I am 7 days post RT, but had an Elligard injection 5 say’s ago. Have been taking Elligard since December. Since start I have horrible painful itching. Narrowed it down to reaction to Elligard. Am thinking of stopping Elligard. I haven’t had the last visit to oncologist or urologist to discuss this yet. Anyone else with…
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Diep flap/breast reconstruction surgery
good morning everybody, It’s been a little over four weeks since I’ve had my diep flap surgery. I seem to be healing OK, but noticed over the past couple of days, I have very bad lower back pain and sleeping has been an issue from when I got home from the hospital. I’m very itchy as well and I think that may be a part of…
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rectal cancer survivors
I am 38 y/o mom of two diagnosed with stage 3 rectal cancer. I went through chemo and radiation. Just had a colonoscopy today. Surgeon says he sees no cancer only scar tissue. That I have had a "good clinical response" to the treatment. The tumor 5-6cm tumor is gone. He is still talking about surgery to remove rectum and…
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Do I biopsy or wait three months
I have an 8 mm lung nodule that grew from 3 in a year. SUV max 2.2 on pet scan. My pulmonologist is meeting with the tumor board. I am a former long time smoker & my mom died from lung cancer. Do I biopsy or wait 3 mths & repeat a cat scan?
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Lower Heart Rate Than Before Surgery
Did anybody experience a lower heart rate after surgery than before it? I am one week post robotic partial nephrectomy and my heart rate is about 15 beats slower than before across the board so my resting heart rate was at low 70 now it’s in the low 60. My sleeping heart rate is a low 50s dipping into the high 40s (was in…
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Partial robotic nephrectomy in two days
Hi everyone, In two days, I’m scheduled for a partial robotic nephrectomy to remove a 3cm mass that my doctors are confident is cancer. I’ve come to terms with the diagnosis, and until recently, I felt relatively at peace about the surgery. But over the past few days, my anxiety has really crept in—especially about…
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Melanoma Cancer
Hello, I am a Melanoma Cancer Survivor. I have been through 3 surgeries, radiation, Yervoy treatments and have fought the battle since 2001. I am looking to be a support to those going through the disease, or family members of the Cancer patient. Please share your thoughts or stories on here. Have a Blessed Day
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New melanoma diagnosis
Hi all. Just signed up for this app trying to read up (it’s a lot) so thank you all and best to those in a worse scenarios. I was diagnosed yesterday 3/14/25, stage 1, “fast tracked” referred by Derm to surgical oncologist for consultation Monday. Probably for wide removal and SLNB. Prognosis more than likely going to be…
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Dental implants post recovery
It's pretty surprising there are no threads on dental implants in this group. Well, here's my situation. Brief backstory - My cancer treatment, radiation and chemo, was a decade ago and successfully treated the cancer with very few long term side effects. Two teeth were extracted as a precaution prior to treatments with no…
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Sincerely Look for some advice for retroperitoneal liposarcoma
My father was diagnosed with retroperitoneal liposarcoma in 2018 and has since undergone three tumor removal surgeries. Over the years, we have tried various treatments, including chemotherapy, radiotherapy, proton therapy, and stem cell immunotherapy. Unfortunately, the tumor has recently recurred. I have attached a…
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Weight Loss
So. I finished my treatments on 4/8/25. At that time I weighed 206 (from initial weight of 222). I’m 6’2” Since finishing the treatments and working my way back to my pre treatment meal schedule, I’ve lost another 5lbs. I’m at 201 today I still drink around 80 ozs of fluid per day I am out on our 9 acres working every day…
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Success with dostarlimab immunotherapy for uterine cancer with mismatch repair mutations
https://www.nytimes.com/2025/04/27/health/cancer-immunotherapy-solid-tumors.html?unlocked_article_code=1.C08.fnfM.3jbPvxka1eGQ&smid=url-share Free link to NYT article. It is showing excellent results in other solid tumors, too. It's approved for uterine cancer with mismatch repair mutations, and in trial for certain other…
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Questions about IMRT and Urinary Urgency
I'm currently into my 14th of 40 IMRTs today. In the last few days I've been struggling to hold my bladder while on the machine. Had two incidences of having to stop the treatment for me to get off and pee. I barely made it to the restroom both times. They're very understanding and after I drink some more water and wait a…
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8 months post radiation and Cyberknife and 3 months post 12 months firmagon
Husband just recently finished treatment for prostate cancer with me. Gleason score was 8. Starting PSA was 2.8 before treatment. 3 months past Cyber PSA was .044. 6 months past Cyber PSA is .064. Does this indicate a concerning rise? And is there a need to worry? Messaged urologist and he said to come back and test in 6…
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CA125 high after 13 years of being fine.
Been cancer free for 13 years and even when I had cancer my CA125 never went over 10. Just had a lab test done and now it is 41 and I am scared. Had complete hysterectomy in 2009.Waiting on dr to get with me to find out if he wants any scans done. Have been extra tired lately and now my brain is racing trying to examine…
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Cyst has grown slightly over the past 6 months, other medical issues
Hello, Last September I was diagnoised with a 3.5mm cyst. Had a transvaginal ultrasound and a CA-125 (number was 8). Had another ultrasound 5 weeks later, was diagnosed as a simple cyst. I have had several CT scans over the past several months and the cyst is now 4.2mm In February, had an ileostomy. Seeing my gynecologist…
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Cholangiocarcinoma
My husband diagnosed 12/22/24. Had multiple surgeries on 03/03/25: Diagnostic laparoscopy Exploratory laparotomy Cholecystectomy Extended R hepatectomy En-bloc resection of extrahepatic biliary tree En-bloc portal vein resection and reconstruction En-bloc porta-hepatis lymphadenectomy Roux-en-Y…
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Survivor looking for other limb salvage patients to start a support group
Hi, my name is Corey (female) and I was diagnosed with a rare form of bone cancer in my distal femur at 24, parosteal osteosarcoma. My treatment was limb salvage surgery using a compression implant. After living normally for 24 years, I had 10 days between finding out I had cancer to limb salvage surgery. Although my limb…
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Side effects of Mitomycin
On 1/8/24, I start treatment for Stage 2 Anal Cancer, & I will have 1 dose of Mitomycin along with 5FU for 96 hrs. At beginning of treatment & 96 hrs. At the end of treatment. Also, 30 rounds of Radiation. I have RA & concerned about the potential side effects of this drug. I appreciate everything that I’ve learned on this…
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Thyroid cancer
Hello, I am new here. My sister was diagnosed with thyroid cancer last October. She had a full thyrelodectomy in December and in March of this year she had a RAI treatment. It's been now two months since the treatment and she still feels very very tired,but our main concern is that she has pain from the inside of the…
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RECENTLY DIAGNOSED WITH PAPILLARY THYROID CANCER. THYROIDECTOMY?
Hello everyone, I am a 44 year old female and was diagnosed with papillary thyroid cancer on January 17th of this year. Is a total thyroidectomy the best option for me?! Hoping you can help! Here's my story - In the fall of 2023 I woke up with "frozen shoulder" (adhesive capsulitis is the medical term), in my left…
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Cramps and Waiting for Biopsy
I am scheduled for a biopsy and SIS in about a week due to post menopausal bleeding. The doc prescribed Medoxyprogesterone to stop the bleeding. However, I started experiencing lower pelvic cramps a few days ago, that oddly starting late morning and going on until I go to sleep. When I was bleeding, it also tended to be…
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Are the chat rooms down or just gone from the site? Anyone know?
The few times I have tried to get into the chat rooms, I can't. Is it just me or are they not working again?
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side effects of Folfiri
I found out my colon cancer as migrated to my Rt lung. I was previously on Folfox, and on Folfiri and just completed my 3rd cycle. When did people start noticing hair loss or thinning? Folfox my hair just thinned
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liver cancer
can anybody give me advice? I had my 4th folfox chemo and had breathing issues. I feel like my Dr does not take this seriously, we will see…I was admitted, and they did many tests and said I was ok. I told my lung Dr and she bumped up my asthma inhaler, she dsaid I will not step on your cancer Dr feet, I let him see if it…
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Latest Check-up Results
I had my 3 month checkup today, and the good news is that my PSA is still undetectable, but my Testosterone has only risen to 26. But, by far, the most important test result is that my PSA is still undetectable. Life is good. My Related History and Data: Post-Robotic Prostate Removal Surgery Pathology Report A. Lymph…
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Options when adjunct or salvage radiation can't be used?
I am almost 5 months out from radical prostatectomy. 1st PSA at 3 months was 0.39 (quite high) and 0.40 at 4 months. This suggests a doubling time of about 27 months, although that can change over time. I was Gleason 3+4 (40% 4) with cribiform pattern. The margins were positive at both sides and the base. He only took out…