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Wilms Tumor Survior
Hi. I'm 25 and I was diagnosed with a wilms' tumor at the age of 4 through a series of events. I was hospitalized for a routine appendectomy. My appendix was removed but after recovery I still had severe abdomonial pain. I was again hospitalized and had an exploritory operation. They discoverd that my intestine had twisted…
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Have any childhood cancer survivors experienced mental difficulties in their adult years?
I've had this overwhelming depression on my shoulders ever since I hit my late teens. A lot of simple conflict situations in social environments give me a life or death feeling like I need to either escape or my life is in danger. I have anxiety at times that seems to make the people around me feel uncomfortable. They'll…
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Long lasting chemo effects.
Hello, I came to ask a question and get input from other survivors and see what you all say. I am a 26 year cancer survivor of Wilm’s Tumor dx at the age of 5. I under went chemotherapy and radiation and had a left nephrectomy. My answer to a question that my mother told me growing up was questioned today and my mother…
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long term survivors
Are there any other long term childhood cancer survivors out there ? Does anyone need to talk to a long term survivor.
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Adults that had Wilms Tumor as a child
Hello My name is Elizabeth and i am looking for anyone else, who had wilms tumor as a child or know anyone that did? I am 28 years old right now, I have been cancer free for 22 years.
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I felt unwell today and I got a little scared. I’m recovering from chondrosarcoma.
I’ve only had one CT scan since my surgery to remove my bone cancer and the scan came back pretty good. So I’ve just been going about my normal routine and trying not to worry much. But today I was tired all day and I had a terrible headache. All in all I felt terrible and weak. I can’t say I have ever felt this particular…
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Oral Complications of Radiation Therapy to the H&N Patient - Dr. James Hamilton
Here is a video for your perusal of Dr. Hamilton discussing and explaining the complications of radiation therapy. He covers quite the gamut of effects and complications. Very informative and well presented it is good to hear a presentation that affects us H&N folks by a professional from a professional perspective...Take…
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8 months post radiation and Cyberknife and 3 months post 12 months firmagon
Husband just recently finished treatment for prostate cancer with me. Gleason score was 8. Starting PSA was 2.8 before treatment. 3 months past Cyber PSA was .044. 6 months past Cyber PSA is .064. Does this indicate a concerning rise? And is there a need to worry? Messaged urologist and he said to come back and test in 6…
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Osteosarcoma Metastases to Lungs
My wife was diagnosed with Osteosarcoma in her right upper arm last August. She went through 6 rounds of chemo and limb salvage surgery. A CT scan determined that it had metastasized to both lungs. She had 13 spots in her left lung and around 20 in her right lung. These were tiny sub centimeter nodules that were barely…
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I think my ewing is back I have a inguinal hernia
I had ewing with a hernia before now I have a different kind of hernia inguinal hernia plus my leg is getting realy big like the first time. Hope fully they wont allow me to go into coma this time. But I do think I have ewings again has any one else herd of this happening with them or any one they know?
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New and a bit scared
I’m new to cancer. I was diagnosed with high grade Chondrosarchomas (grade 3). It was a huge lump on my collarbone. My doctor removed my collarbone and the pathology report says it didn’t spread. But the CT shows a small nodule in my lung and scattered lucencies on my sternum. I’m no doctor but that sounds like it spread.…
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Esophagus cancer
Hi my husband has stage 3 esophagus cancer. He has been spitting up phlem for 3 months now and it is really bad just wondering if anyone else had this. His dr stretched his esophagus two weeks ago it didn't really do much for him. They are going to streach it again next Tuesday and maybe put in a stent. He is very…
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increase in PSA post seeding
Had seeding done 8 years ago here in Atlanta (no radiation-PSA 3.75) Cancer confirmed with biopsy. Post seeding PSA was.5. Has gradually risen until last test 3 weeks ago showed 1.47 (Oct 2024) (Mar of 2024 was 1.14). I will be 87 in Dec-should I be concerned?
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Fenbendazole
has anyone hears of this or tried it to fight cancer ,i have read it has helped many cancer patients
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New to this group
I’m new to this group and am looking for information for my husband’s pancreatic cancer. He had a partial Whipple but now has spots on his liver so will not finish the Whipple but will have chemo!!!
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Very old man
My 93 year old uncle received this biopsy fractures of acinar adenomacancer, grade 7, gleason prognostic group 3, interesting 20 mm what (if possible) should be done
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"I Happened On This Today And Thought Someone Might Be Interested In The Information And Videos."
I happened on this today and thought someone might be interested in the information and videos. Here is a short clip of his experience. Notice his sense of humor. https://odysee.com/@FrontlineCovid19CriticalCareAlliance:c/cancer-practical-solutions-paul-mann-FLCCC-2024:1…
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Multiple Myeloma-CAR T Cell Therapy
I am interested in real life accounts of the CAR T cell therapy process. My father is seriously considering this treatment but is worried about Neurotoxicity, specifically memory loss as well as other serious side effects. This is a decision that he has to ultimately make…he is just really having a hard time with the…
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Husband just diagnosed with prostate cancer
Good afternoon, we just received the results from the biopsy, and I'm concerned for my husband. Gleason Score 7 (4+3) grade group 3, cores with cancer 8 (out of 12), prostate biopsies Adenocarcinoma, perineural invasion seen. PIRAD 5, PSA 9.5. Prostate measures 4.0 x 4.9 x 4.0 cm with volume of 41 cc. Large right…
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Another Angry Spouse
My husband was diagnosed with stage 3 melanoma a year ago. During his surgeries and recovery we were closer than ever. He has elected to do the watch and wait option as his follow up. So far, there has been no recurrence of his cancer. Since October, (approximately one year since diagnosis) he has been displaying extreme…
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Biopsy Scheduling Wait Time?
57 y.o. male: My MRI showed a Pi-Rad Lesion 3 and my urologist scheduled me for a biopsy. It is not scheduled until Nov 1. My concern is how long the wait time. My PSA rose to 6.78 in early July, was referred to urologist and had MRI on 8/27. Now two months wait until biopsy on Nov. 1st. Is this normal? I tried to get…
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Pads
Do pads get definitely noticeably wet in the beginning or could you be unsure if you are leaking much?
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Chemotherapy problems with nausea
Hello. How can i make my husband more comfortable. His nausea is terrible. The patch and the ondestraton isnt really helping. He just finished last round. Thank you Lisa
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My nephew has high risk neuroblastoma
Hello everyone, My nephew who is 8 years old has been diagnosed with high risk neuroblastoma stage 4. He needs to start aggressive chemo and radiation treatment as soon as possible, but even with treatment, his prognosis is below 40% chances of survival. His parents are set against starting treatment, and are looking for…
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CT scan
I saw my Oncologist a year ago, he congratulated me, he said I was done with my CT scans. But he said he was going to request one more CT scan . To see if they would approve it and The insurance approved it. Whats the guidelines when in remission, I was done with chemo and radiation on October 19,2019. Im confused I was…
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OSA (Obstructive Sleep Apnea)- Then and Now
A presentation of Sleep Apnea. Otolaryngology-Head & Neck Surgery at Stanford Medicine and Stanford School of Medicine. Take Care, God Bless Russ
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What proceedure did you choose or are considering
Like everyone else at my point in this journey, I'm trying to learn as much as I can about the various proceedures available to treat my prostate cancer. I want the "trifecta", and more. No incontinence, sexual capability intact, good stream and of course the cancer gone. I know this may be unrealistic but I'm pretty sure…
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This is all new to us
My husband was just diagnosed with Squamous cell carcinoma of the throat. It's advanced and widespread around his larynx. The doctors had to perform surgery on him, they put in a trach, that was 2 weeks ago, Thursday the 5th. He came home on Thursday the 12th. And now the oral surgeon is talking about removing the benign…
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husband cheating while sick
I wonder if anyone else has had this experience: it is somewhat embarassing for me to talk about this, but I discovered my husband responding to a personal ad online. From the date of the email, I realized he had been doing this while I was undergoing treatment (or at least while I was at my plastic surgeon's office). I…
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Incontinent 3 Weeks Post RARP Cath Removal
Hi Guys, Just turned 65 and had a RARP on Sept 25th. All went well, Final Pathology indicated negative margins and a total of 1-5% Gleason 3+4. (Despite an MRI guided Pirads 4, Gleason 4+3 in March) Anyway nerves were spared and outcome good. My question, of course, is the incontinence. Sitting and lying down are fine and…