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Confused
I was diagnosed with bc 4 months after 2 brain surgeries to correct essential tremors. My feelings are all over the map. One minute I'm still in shock, the next I'm convinced I'm superwoman and can handle anything, the next all I can think is "damn, I've got cancer". Has anyone else experienced this? How long did it last?…
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Living with stage IV CRC
Very interested in hearing from those who are living with stage 4 CRC as a "chronic condition". My wife is currently in this situation - receiving FOLFOX and Avastin on an ongoing basis, tweaking the Oxaliplatin concentration and sometimes backing it of entirely when the side effects become too severe. She is currently NED…
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Stage 4 rectal cancer with lung and lymph node involvement - radiation and chemo
I am new to this site. I was diagnosed last week with stage 4 rectal cancer and given one year to live with no treatment or 3 tops with treatment. They say it has spread to my lungs but the nodules are very small right now. The tumor in the rectum is huge. Ironically other than rectal pain that is manageable with Advil I…
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Need a second opinion
Hello, I'm a 30-year-old woman, and I'm sorry to ask my question on this forum, but I need a second opinion. I've been having yellow and light brown diarrhoea for three weeks and for just over a week I've had severe back pain (middle/upper back, central and left) and I sometimes have pain under the solar plexus and the…
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Time of first PSA after treatment
I was under the impression they would wait 3 months to do a PSA. But, I just got a text from my urologist to get it done at 30 days That Sound right to everyone?? Have a Great day 🚜🐝🚜
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Post vaginal brachytherapy side effects
Diagnosed with stage 1a after total hysterectomy and will meet with radiologist next week. I was told it is up to me if I want to do further treatment as my pathology was very clean. I would be interested in any potential side effects that you may have experienced with this therapy. The limiting factor is my age (68);…
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Newly diagnosed Stage III 1A
My daughter-in-law (M) was diagnosed with endometrioid adenocarcinoma after finding it in her ovary and fallopian tube while undergoing infertility treatments. My son, her husband, is a testicular cancer survivor (he also had stage 3 cancer). We are beginning this awful journey once again and these boards and advice from…
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Side effects of chemo
Stage 4/gleason 9/metastatic prostate cancer. Mets in 6 lymph nodes and 2 in bones. Due to genetic testing results my Oncologist went right to a triple blast of dartulimide/doxitaxel/carbitol for 7 treatments, along with Zuniga/Eliguard. I was 4 treatments in before the side effects got to me. Pretty bad nausea and the…
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Endometrial SEROUS carcinoma
I was diagnosed with endometrial serous carcinoma 10/21. I had a total hysterectomy, chemotherapy, and brachytherapy ending 6/22. I had a CT and PET scan 7/23 which showed cancer recurring in the retroperitoneal lymph nodes. I have my last radiation treatment today (total of 28) and am wondering if there's anyone else on…
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Metastatic TNBC
My cancer has metastasized to the left lung. I just completed 6 months of chemo and had a mastectomy last October. I was on Xeloda from December 2024 through April 2025. A biopsy last April of the nodule found in my left lung indicated that the breast cancer has metastasized. I am looking for information on what I…
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Entrectinib now for about 1 month...
In late 2020 they found stage 3 lung cancer. Did chemo, radiation and followed up with immunotheraphy. On March 27th this year I had surgery to remove a tumor pushing against my brain. Has anyone else been prescribed entrectinib. Just wondering about side effects. Thanks.
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Ovarian and uterine cancers
I was just diagnosed. Total hysterectomy was done April 23 for endometriosis, pathology came back with stage 3 uterine and stage 1 ovarian diagnosis. I guess you could say that I'm lucky that the ovarian cancer was caught early. I can't get a straight answer from my surgeon about chemo and prognosis. Every cancer website…
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Muscle and ligament issues
So, this is a query for anyone who is post treatment I lost 20 lbs during my 7 weeks of treatment. Mostly from not eating anything but chicken and rice My question is - The ligaments above and below my hips give me issues unless I take 3 ibuprofen in the morning and my middle and lower back are weak and I’m always a bad…
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Are we no longer having a Roll Call?
Didn't see it but may have missed it. Jim K
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Buckle up, it’s gonna be a bumpy ride…
Had a CT scan a week ago to check out my appendix after a colonoscopy, and the radiologist found that I have a “complex multi septate cystic mass with thickened septations and mural nodularity measuring 9 cm x 6.5 cm exophytic to the mid left kidney.” It’s def Bosniak III, potentially IV. My family has a propensity towards…
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I'm trying to cope.
After a car accident in September of 2024, scans revealed brain swelling from a 3.4cm tumor in my right frontal lobe. Further scans revealed a 5.3cm tumor in my lung. The lung tumor was identified as small cell neuroendocrine cancer. I had a craniotomy in October of 2024 to remove the brain tumor. Following a brief…
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Looking for folks taking repotrectinib for ROS1 mutation
My husband was initially diagnosed in 2016 with non small cell adenocarcinoma. He underwent a right lower lobectomy, chemo, and radiation. Fast forward nine years and it is back, this time it has metastasized. He has the ROS1 mutation, the only option for us is a TKI. He started taking repotrectinib April 2. Anyone else…
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Battling prostate cancer
I am 63 years old diagnosed with prostate cancer in October 2024 my psa went from 43.43 to 0.28 in 4 months on orgovyx with lymph node and a couple of ribs involvement my doctor just prescribed nubeqa and now I'm wondering what's next
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Pregnancy
Has anyone that was diagnosed with Stage 4 breast cancer able to go into remission and able to have more children without the cancer coming back? This would mean taking the chance of stopping all medication to be able to carry the baby yourself. Or is it better and safer to go surrogacy route?
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PSA rising after SBRT
I am 65, Gleason 4+3, localized 2 tumors. PSA 6.7; Had SBRT (4 sessions, 9.5 gray each) in early August 2024. Minimal GI and GU side effects; took 4 month Orgovyx. In 11/24 I had first psa test, result was < .01, testosterones was 13. 2/25 test shown psa rose to 0.4 and testosterone level rose to 384; 5/25 psa rose to 0.8…
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zejula question
Hi everyone, This is my first post. I am on zejula for maintenance after Ovarian stage 2b diagnosis, surgery and 6 rounds of chemo.I began Zejula in fall 200 but was hospitalized for low platelets. Now and on 100mg and tolerating accept for sleep issues. I take it at 8 pm. Does anyone take their dose in the morning? I was…
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Trust after Cancer
It seemed to me as I was going through cancer there were really only 2 kinds of people. 1. Outstandingly generous people who were doing everything they could to help and were upset they couldn't do more. 2. People who didn't care at all. Maybe they would do a low effort thing, like a box of cookies in the mail for…
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My 28 year-old daughter had to leave us13 years ago. It’s still so painful.
(I also posted this in a reply to a woman whose husband developed Wilms tumor) Hello, I am a retired physician; now in a second marriage, after my first wife of 38 years left 2 years after the death of our daughter, Miriam. Her departure was also devastating. Miriam was a freshman in high school, age 15, when she was…
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Support Needed
Hi, I’m new here. I was diagnosed with metastatic adenocarcinoma with liver mets. The biopsy showed TTF-1 positive, so they first thought thyroid, but scans haven’t found a primary tumor anywhere—lungs, brain, pelvis, and bones are all clear on PET. I’m waiting six weeks for a second opinion at MD Anderson, and it’s been…
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Stage 4 cervical cancer survivor
Hello, I got diagnosed with stage 4 cervical cancer with 7 tumors at the age of 28 and I am 32 now but I went through 4 surgerys and chemo radiation and the cancer still came back so I had a pelvic exenteration and the outcome of it was having to wear a colostomy bag and a urostomy bag the rest of my life. It's been 2…
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The Unknown
Hello, I'm new here. I do not know where to begin. Last year, I did my pap smear, and it came back abnormal. I also did a family cancer screening that showed if I had a family history of cancer. That came back positive, and it stated that I had the BRIP1 gene, which is a higher chance of getting ovarian cancer, and I also…
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11.4 mm endometrium and worried
Hi everyone. I'm glad there are platforms like these to sound off on. I hope it's ok to post here although undiagnosed. I've been reading around and found some helpful posts. Ultimately, we just have to get checked the best we can and not take diagnosis online. I understand that. Purpose of this post, is to hear your…
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Any information about de-escalated adjuvant radiation therapy (DART)
This is a follow-on to an earlier topic that I started, but since this is focused on the de-escalated adjuvant radiation therapy (DART), I thought I would make this a new topic. I was diagnosed with early stage HPV+ cancer on my right tonsil. After conferring with my surgery, chemo and radiation doctors it was recommended…
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4.5 cm posterior left lower lung nodule
I am a 5 year tongue cancer survivor recently had a CT scan on abdomen and pelvis. 63 year old female findings on lower chest. The lower bases reveals centrilobular emphysema. Mild subsegmental atelectasis is seen in the lingula. Of 4.5 cm posterior left lower lung subpleural nodule is present. I don't know what all this…
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Fasting in conjunction with chemotherapy treatment
Hello, I am a colon cancer patient who is about to undergo folFox chemotherapy treatment. I've been doing a lot of research on chemotherapy and have found that fasting before during and after the chemo can negate a lot of the nasty side effects and also make the chemotherapy more effective. My question is has anyone had…