Post AMS 800 recovery pain

DC10man

I had the AMS 800 implanted on January 14 and it is now January 31. My perineum incision healed well but my incision across my lower stomach, though it looks good on the surface, gives me shooting pains if I do anything other than lay on my back all day long. Is this to be expected? My surgeon said I should walk but that only aggravates the problem. Any idea how long this will go on? I only stayed on narcotics for a week. Should I ask for a refill?

jc5549

You should not feel like you have to lay on your back all the time 17 days after the procedure.

Does it hurt right over the incision or down in your testicles where the pump is? If you’re still swollen, you might have your look at make sure nothing is infected.

jc

Josephg

IMO, at 17 days, you should not feel any acute pain associated with the surgery. Something is not right, and it should be looked at by the surgeon. I was up and walking around on the second day, following my AUS 800 surgery, and I've had 2 surgeries for this implant (first one failed after six years). I was off narcotics on the third day following surgery.

I've seen instances (not on AUS800 surgeries) where a piece of stomach muscle got caught in the incision closure process, which caused acute pain, until it was repaired.

I recommend demanding a visit and consult with the surgeon.

DC10man

https://csn.cancer.org/discussion/comment/1720683#Comment_1720683

I am usually pain free when I first get up after laying flat all night but through the day sitting, bending, twisting etc. aggravates the subsurface of the incision. I see the doc on next Wednesday and will stress that this ‘recovery’ seems to be more than what others have experienced. Thanks for the response.

DC10man

Though my scrotum is still sensitive I can tell it is lessening. The pain is gone when I get up in the morning but resumes through the day. I will advise my doc on next Wednesday that others have healed much faster. Thanks for the response.

liver_puncher

https://csn.cancer.org/discussion/comment/1720695#Comment_1720695

Greetings DC10man! After DaVinci surgery in Nov 2015, then six weeks of radiation and one year of Lupron in 2020, my incontinence has gotten to the point where it is affecting efforts to live my current cancer-free life. In spite of struggling to wrap my head around the idea of having to push a button in my sack to pee, I consulted the genitourology dept at MD Anderson last week about receiving an AMS 800 AUS. Now leaning heavy in that direction, but would like to ask some questions of someone who is actually using such a device.

Would you (or any AUS user reading this) be willing to chat with me about your experience?

Thanks

DC10man

https://csn.cancer.org/discussion/comment/1722467#Comment_1722467

I would be pleased to chat with you as I am now many weeks into using the device with no problems. Let me know when is convenient. My email is ronrudnick@gmail.com. Ron

Josephg

I am also willing to chat. I've used an AMS 800 for over a decade. My email address is josephg304@gmail.com, and we can arrange a chat date/time.