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Stomach Cancer - Thoughts / Doctors / Etc
Hello, my mom was recently diagnosed with stomach cancer (adenocarcinoma) locally advanced. She just started FLOT and the plan is to do 4 treatments, surgery, and then do another 4 treatments. Starting to learn a bit more (HER2negative / MMR loss on MLH1 / PMS2 (testing for Lynch syndrome now which could change some things…
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Recently diagnosed with stomach cancer FLOT treatment plan
I’m 49 recently diagnosed in Feb 2025 called adnocarcionma. It was regionally advanced to lymph nodes. Borderline at stage 3 or iv. After 4 times FLOT chemo now on PET there is a highly suspected metastasis to bone although tumor has seen internal shrinkage. I have my intral opening blocked to small intestines, I can’t…
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HPV P-16 Throat Cancer Survivor-Am I Putting My Sexual Partners At Risk?
I am NED for over 2 years. I was HPV positive P-16 Stage IV throat cancer. I had a tonsillectomy, 35 radiation treatments, chemo, and a modified radical neck dissection. Then the wife filed for divorce. Now, I'm now out on my own entering into my first sexual relationship, post-divorce. The Drs told me I could've been…
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False positive PET
So in December I had a PET scan with Deauville score 5. One of the nodes where my original diagnosis in 2017 showed SUV uptake of 20. Local oncologist sent me to University Hospital in state. They looked at PET scan and begin talking about clinical trial CAR T. This was second relapse after RCHOP first line of treatment…
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Cravings?
Ok...so this weird and a bit light hearted, but we all need to think of something weird and wacky from time to time! I have found that since my diagnosis, I have experienced a range of cravings...have you experienced the same thing? Initially, after diagnosis, I really wanted wine and chocolate..lots and lots of wine and…
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Childhood Cancer Survivor Late Effect /Understanding the Battle
Joe Perusic is not just fighting for survivors—he’s illuminating the battle they’ve already endured. A battle of long-term side effects, systemic silence, erased records, and overlooked pain. Too often, advocacy is flattened into noise, and survivors are seen as “difficult” for daring to speak the truth.
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Summer Temps
So, it’s 93F here today with about 60% humidity I was working outie from 9a-2p and had a pretty serious hot flash while cutting some 4x8 plywood panels in half i Was okay until the flash started. Then I found that I couldn’t concentrate. Managed to get inside say something cross to the kids and grandkids and hopped into a…
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CarboTaxol - Has anyone taken this?
The oncologist at MD Anderson diagnosed me cancer unknown primary secondary liver. I start CarboTaxol on Friday first time. The dr told me my prognosis is 9-12 months. How could he possibly say this? I have no comorbities and I'm 55. I have Hypertension and a history of Endometriosis but uterine was ruled out. I have mets…
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My Welcome
Just turned 50 this year and went to the ER for a pain in my left shoulder thinking I had something going on with my heart. After the CT scan, come to find out all was good with my heart but found a 9cm mass in my pelvic area. Next came the Ultrasound and MRI. Then the appointment with a Gynecology Oncologist and a full…
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Newly diagnosed with clear cell uterine cancer
Hi, My sister was just diagnosed with clear cell uterine cancer. She just got the biopsy results yesterday. She will be meeting with two oncologists this week. Can anyone help with a list of questions to ask the oncologist? She is totally overwhelmed and needs some help right now. (I am her brother, I also have a very…
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Will United HC drop me eventually because of my expensive meds?
I am 70 years old andhave stage four prostate cancer, which is metastasized to my bones. I was diagnosed one and a half years ago, have been through four months of chemotherapy, and then was started on Nubeqa which I took for about four months before it stopped working. My oncologist recently started me on Lynparza, which…
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📌 1. Summary Explainer – “Survivorship at 60: A Record They Never Measured”
Who I Am: Joseph Perusic, diagnosed with Wilms tumor in 1965. Treated at Texas Children’s Hospital. No long-term survivorship follow-up provided. Now 60 years post-treatment and documenting systemic neglect, long-term complications, and unacknowledged survivorship. What I’ve Experienced: Multiple medical complications…
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Boston support
My name is Paul. I am an anal cancer survivor (4 yrs). My partner, Peter, is also an anal cancer survivor. We are available to any gay men in the Boston area for support with cancer treatments and recovery. Especially anal-rectal cancer. I will check here periodically to see if there is anyone interested in support.…
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Should I have surgery sooner???
I am a seven-year-old diagnosed with aggressive prostate cancer, this is my situation am I waiting too long to have surgery July 30, 2025 when I was diagnosed after the biopsy May 12, 2025? May 12, 2025 Biopsy reported PROSTATIC ADENOCARCINOMA. GLEASON'S SCORE 9 (GRADES 4 + 5) NOTED IN 1 OUT OF 1 SUBMITTED PROSTATE CORE…
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IDC breast cancer 1B and upcoming colonoscopy
Hi 👋 I’m full of anxiety and fear. Just wondering if anyone else here has had a colonoscopy as during the testing phase of determining how to treat the cancer. Any advice or stories will be greatly appreciated. Thank you in advance!
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Inability to ejaculate
I finished treatment a year ago (radiation). My orgasms now are very weak and, of course, I don't ejaculate anymore. I did at first but it's gradually gone away. This has made me damaged goods. All I hear is "did you ****?" or "are you ever going to ****?" or "why can't you ****?" I dread having sex but (not bragging) I'm…
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i feel so pretty now :)
I've kind of been wanting to get my ears pierced to add a little feminitity lately, but I asked my husband last week and he told me he doesn't like pierced ears, so I said, "oh, okay, no biggy. I won't do it". Well, yesterday we got out of the truck at Cici's Pizza, and this old guy asked my husband, "is that your boy…
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Carotid body tumors need help finding specialist!
My husband is 40 years old and doctors just found 2 carotid body tumors on a ct scan, one on right side of neck and one on the left. Surgeon that requested ct scan told us today to do our research and get him to a specialist in these tumors as he is not and doesn’t know anyone around here that is. We are south of Buffalo…
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Skin care around the PEG
Any tips on care of the skin around a peg? The dressing got wet with drainage and in no time the skin around the peg became quite reddened and raw. I have been cleaning with a baby wipe and drying the area then applying aquaphor ointment.
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Free LE ( lymphedema ) Alert Bracelet
I have seen several posts on here about lymphedema and remembered that there was a site that many of us got free le bracelets. They were really bright pink, almost neon, for your wrist, but, you want it to get attention. They also have neon green for your ankle. I ordered one awhile back when I went in for some outpatient…
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Insurance
I got married late last year, just after hitting two years of clean scans, and lost my insurance since it was income-based. I have tried every insurance, and I just can't afford more than 100-200 a month, and the ones I did find had such a high deductible that it's the same as not having insurance. I feel defeated. I had…
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PEG tube pain
Had PEG tube put in on June 1st and am healing slowly. Still have some blood on gauze when I clean and change it. I am sore at the location however, the real pain I am having is to the left of the stoma... about five inches away. It is like a muscle spasm that only lasts a few seconds at a time. I called my Gastro doctor…
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Muscle spasms due to Neulasta?
Hey all. I've had my second chemo & will get #3 on Monday. This time around the overall fatigue & the aches & pains from the Neulasta were quite a bit worse. But the real problem is these very intense muscle spasms that I'm having in my back. I had them the 2nd week after treatment #1, but this time they're much worse. So…
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Has anyone had rEPOCH cycles for DLBCL ?
Completed 6 5-day cycles of rEPOCH for Diffuse Large B-Cell Lymphoma earlier this year and have not met anyone with this treatment and I know there must be others with this experience. How are you doing and how long did it take you to start getting things together? Would appreciate your response(s).
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Surgery
they have not offered it to my dad either , after total gastrectomy he was cancer free from from December to April now his routine scan shows it spread to peritoneal cancer and they have not offered the surgery or Hipec …. only chemo which they keep delaying because of his health ( weight ) So they cancer is just…
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secondary peritoneal cancer
Hi, just sending new so far on my husband Ian, he had his last of 8 cycles of chemo today, for colon mets in peritoneum. Next step is ct on 13th and then results on 19th. He has done so well so far, the ascites has not returned while on the chemo, we are hoping that this will be it, and chemo finished for good!! Oh well…
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Peritoneal and colon cancer
My husband was diagnosed in late september 2024 with Stage IV colorectal and peritoneal cancer (lining of stomach). He was very sick and had lost a good deal of weight and had a tumor obstructing the bowel (partially). He was in pain and felt bad or very bad almost every single day. After 6 rounds of chemo (48 hours each…
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CAPEOX v. FOLFOXIRI - comparisons?
I was diagnosed with T4bN1bG2M1 colon cancer with perineural involvement in 2023. RO colon surgery followed by 8 cycles of CAPEOX. Lung met that had remained stable during chemo but started growing again was removed this March because it appeared to be solitary, followed by a swift recovery. We are only 3 months later and…
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Therapist Help
Hello. My husband was diagnosed last November with Stage IV breast cancer. Last Monday, the oncologist told us the tumors are resisting his current medication (Truqap) and he would need to go to a clinical trial or chemo. He's struggling with this news, and I think it would be beneficial for him to talk to a therapist…
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Alcohol
I am a rum drinker. Nothing from February thru May. But had some beginning of this month Next few days were rough. That’s a new thing for me. Any others experience same Hate to have to stop doing the one thing that gives me a little pleasure. Love having an aged rum on ice. I’m a neat sipper of anything over $100 Thoughts…