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Hair not growing back after Cold Capping
I cold capped and managed to keep about half my hair, but 12+ weeks after finishing chemo, I'm not noticing any new growth. I'm worried the cold cap permanently damaged my follicles. Has anyone experienced slow growth after cold capping and/or permanent hair loss?
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First Day of Chemo
how did you prepare for your first day of chemo? Did you have breakfast, did you fast and only have fluids? What did you bring or what was priority to bring? I know to bring ice mitts and booties for my taxol/carboplatin/keytruda. Did anyone have a reaction to taxol and if so what happened? After chemo did you have nausea…
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mRNA vaccines
Much like how the COVID vaccine is based on mRNA there are VERY promising studies going on using mRNA vaccines to treat cancer. Here is just one link but there are many clinical trials going on with early promising results. This may be the next greatest discovery since immunotherapy for cancer treatment! mRNA Vaccine…
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Six years no recurrence after uterine serous/clear cell stage 1a with isolated tumor cells in node
Hi. I'm coming up on the six year anniversary of my diagnosis and treatment for uterine serous/clear cell cancer. Mine was in the upper part of the uterus, and one sentinel node had isolated tumor cells in it. I was treated with hysterectomy, 6 rounds of carboplatin, Taxol, and added in Herceptin, which was not standard at…
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Lymphedema
I had l4 lymph nodes removed (6 had cancer). I was sent to a lymphedema specialist and she gave me exercises, a massage routine, and a sleeve to wear. I'm wondering what other survivors do about the possibility of lymphedema. Somehow, dealing with preventing it is a constant reminder of the cancer.
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Nanoknife my journey
Hello everyone! I had my Nanoknife procedure performed on August 29, 2023 and I am reporting back my experience. To make it easy to follow I will use sequential numbers below. For detailed background check previous postings. On another note, using this site is not an easy task for me. Procedure time about one hour under…
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Gemzar infusion
I’m stage 4 metastatic breast cancer patient. The only treatment left for me is an infusion of Gemzar chemo of which I don’t know anything about. They want to start the infusions in about two weeks. I was told if I choose to do nothing I have about 6 months; I have no idea how long I can survive on the infusion. I want to…
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Stage 4 metastatic breast cancer
My mom (48) was diagnosed with stage III breast cancer two years ago. She finished chemo and radiation treatment 6 months ago and just got results back that it’s now in her brain, lungs, spine and esophagus. She isn’t doing well mentally and every time we talk ( I live 6 hours away) all she does is cry. I’m worried about…
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Emotional Support Recommendations for Newly Diagnosis Young Breast Cancer Patients
Hi, looking for advice and/or suggestions for in-person or virtual breast cancer support groups.
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Treatment Decision
Am 63 and have been dealing with a rising PSA that started at 5.5 over the last couple of years. In 22 I had a Biopsy done with no Cancer cells found. PSA continued to rise and hit 10.5 this year. Biopsy found Cancer cells in 20% of the right side samples. Gleason score came back as 4+4. Options are Surgery without Nerve…
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Complex Regional Pain Syndrome 8 year after head and neck cancer treatment
Hi everyone, I am 8 years after tonsil cancer. About a year ago I started having occational face pain waking me up in the middle of yhe night. Then I lost sensation in my chin and lips on the right side. Pains become part of every day life. It is in my mouth, face,and gums. Burning, pins and needles, aches and stabing all…
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Internal/external radiation for cervical cancer
I had cervical cancer in 2003 and had internal and external radiation. I used a dilator, along with sex, maybe 1-2 times weekly to no avail. Even unsung the dialators 3-4 times weekly didn't prevent me from completely closing 2 years ago. I am devastated and have tried to be grateful for life, but it saddens me to not be…
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A cautionary tale on post-treatment - thyroid
It has now been six years since I was a regular on this forum. I came because I was Stage 3 HPV16 SCC on my tonsil. I did 35 IMRT and 5 carbo. For the last +5 years I have been clear, NED, and no longer see any Oncs. Taste returned, most saliva has returned, I now have to fight to keep weight off. This summer I was doing…
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Robotic surgery versus radiation outcomes
Interesting article about treatment option outcomes. I did not have surgery and was glad I didn't. This is a comparision on survival and symptoms after each treatment. https://www.curetoday.com/view/similar-survival-shown-with-radiation-versus-robotic-surgery-in-hnc
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Breast Cancer new to boards
I beleive i will like this once i get use to moving around. I was a 20 year breastr cancer surviror until a couple weeks ago when diganosed in my left bresat. previous was my right bresat. then i had a lumpectomy, radiation then chemo. had one portion of node maligment. i can not rember what the size was. The current lump…
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Help with Transportation
My sister was just diagnosed with Brain Cancer. She is unable to drive. She has to have treatments 5 times a week for 6 weeks. She lives in Jeffersonville, In. and has to go to Norton’s Brownsboro Rd cancer facility in Louisville, Ky. You can cross the new bridge which only would take 15-20 to arrive from her house. Do you…
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Right Lung GGO
Hello, Annual CT Lung Screen picked up a new "4.6 x 2.2 cm well-defined ground-glass opacity in the right upper lobe abutting the fissure (4; 111), indeterminate, could be inflammatory however neoplastic process cannot be excluded." I am a 59yr old male, with stable prostate cancer in past 3.5 yrs. Case was presented to…
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Needing opinions regarding chemo as an unhealthy 62 year old
Good morning to all. I was diagnosed with IDC on 8/22 and had my lumpectomy on 10/4. My tumor was 2.4cm, HER2 neg, ER+ 100%, BRCA Neg, neg lymph nodes. I was all set to start rad in the next couple of weeks when surgeon called saying I needed chemo because my oncotype came back at 29. 8 years ago, I had a large (7 inch)…
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Teeth problems
I was wondering if anyone has had teeth issues so long after treatment. In December it will be 3 years for me. All of a sudden I am having bad tooth aches and even an abyss after years of no cavities and very healthy teeth. Am I looking for a reason or is it just old age and my teeth are tired? Anyone else out there with…
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Could someone please help me read my daughter's MRI results?
Hello! Could someone please help me read my daughter's MRI results? Impression: 1. Exophytic left ovarian cystic lesion with thin internal septations, suspicious for cystic ovarian neoplasm. 2. Small left ovarian cystic lesion with thin internal septations, correlate not detected on prior ultrasound exams, MR appearance…
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Insurance Question
I live in PA and I was just diagnosed with Ovarian Cancer. I have my health insurance through IBX directly. It will be open enrollment soon for the affordable care act. Does anyone know if i can get a new plan during open enrollment with a pre existing cancer diagnoses?
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dietary suggestions during pelvic radiation
Does anyone have suggestions for me related to good nutrition during pelvic radiation for uterine cancer, post hysterectomy.
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Tamoxifen and still want to have children
I’m done with treatment and I’m on tamoxifen for 1 year now. but I want to have kids and I am 34. My period hasn’t come back yet, since i started chemo, I did received the zoladex 10,8mg to protect my ovaries. So because of the zoladex I did not have me period. But now I’m tamoxifen and not sure if that’s the reason my…
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Problems with teeth after radiation
I was just wondering if anyone could comment on their experiences with teeth issues after radiation. Has anyone been lucky enough NOT to have any teeth problems? If you have had problems, what kind were they? Any experiences with HBO and ORN? I still have all my teeth but will need some dental work soon and am concerned…
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Second RA131 treatment 6 months apart
My 20 yr old daugther who has early stage papillary Thryoid cancer with slight lymph node pathology on two of 4 nodes, had RA 131 on 12/18. The uptake way mysterious and they decided it was either thyroid stunning which RARELY (only one docummented case ever)occurred from her RA123 next day R131 (150 mc) OR it was a fast…
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14 Years NED
It's been 15 years since my diagnosis of stage 3c papillary, serous adenocarcinoma of the ovary. 15 years since my suboptimal debulking (tumors left in lymph nodes, on my bowel and on my liver that could not be removed). 15 years since I developed ascites so chronically and severely that I had to have it drained every 3…
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Anyone considering NOT taking hormone therapy?
I just wondered if anyone here said no to the hormone therapy, or, if after taking one or the other, you had too many side effects and just quit. I have read where some of you took breaks, but, didn't know if anyone just didn't take them. I am considering not taking tamox after rads. Thanks!
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Don’t know how I feel
hi all, I’m new and this is the first post that I’ve made. Thanx for your support and ideas. My wife, 5yrs ago had a CT scan and they revealed 2 nodules in her lungs. She had another CT scan on Friday and it revealed 7-8 nodules. They want her to see a cancer specialist in the next 2 days. I’m scared that her tabacco use…
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Hello all, just new & wanted to introduce myself & a little background on me.
So I was diagnosed with stage 4 NSSLC with an egfr mutation on July 4th 2019. (at 35 with no symptoms) This was found in me because I was involved in a bad car accident & through a CT scan that is when they found it. I have been taking a daily pill for targeted therapy since Nov 2019 and I have been through countless…
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60 year old friend with gallbladder cancer and tumors all over
Please bear with me. I'm just looking to help a dear friend any way I can and thought this might be a good place to start. He is 60 years old and has cancer. It started as gallbladder cancer a few months ago. They opened him up to try the Whipple procedure, but discovered it has spread a lot and there are approximately 12…