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CAR-T Therapy - My one year anniversary
My journey (Currently 46 yo - female) No medical history until…. January 2023 - diagnosed PMBL (diffuse large B Cell NHL) March 2023 - June 2023 : EPOCH R / Moffitt Tampa October 2023 - relapse February 2024 - CAR-T Therapy / Moffitt Tampa May 2024 - Remission September 2024 - Clean scan March 2025 - Scan in two weeks I…
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Poly-MVA-----Any experience with this?
Hello All... I am generally not a person that would investigate alternative supplements. I shared with my acupuncturist that my tumors had increased in size and number and she became very concerned. She paused for a moment and decided to tell me about a product by the name of Poly-MVA. She has been researching it and is…
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Now what?!?
I had radiation for G7. Doctor wanted six months of ADT. He told me it would wear off. It's now six months past the last time I took Orgovyx and my T only went from 7 to 26. My doctor said I'm the first patient under 60 he had on Orgovyx who did not get their T back. I don't trust him. Now he wants to do a cardiac workup,…
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Neck Burns Poll
Merry Christmas first of all! I don't want to jinx myself here, but I have been doing searches, and I'm having a hard time locating what I am looking for. I'm only really locating when the burns have gotten really bad for some people. What week/s for you did your neck noticeably start to turn red and burn on the outside?…
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Gleason 8 with PNI
Hi all. I have been diagnosed with Gleason 8 and PNI. I am scheduled for PMSA Petscan and Exactscan in two weeks to see if and where the cancer has spread. The cancer is too big for prostatectomy (unless it can be shrunk) and will get recommended treatment once the tests are done. Anyone had similar diagnosis and any tips…
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Grandulosa Cell Tumor Cancer.
On New Years I found that I had ovarian cancer for the 2nd time. In 2017 I was diagnosed as high risk Stage I GCTC patient. My left ovary, fallopian tubes, and lymph nodes were removed. Now I have multiple tumers a few, in my adrenal gland, nested between my kidney and my ureter and impacting my pancreas that are not a…
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Spontaneous regression of cancer
I was diagnosed with Ampullary Cancer in Nov. 2024 after an Endoscope tissue sample showed it was Ampullary Cancer. My bile duct was blocked by the cancer so a stent was placed. I lost my appetite losing about 15 lbs. In early February I started getting my appetite back and I started feeling much better. A CT scan with…
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RADIATION FOR BRAIN CANCER
Hello to all of you Survivors out there! I began my blog back in 2000 with OVCA, and continued through 2006 with another bout with OVCA and in 2013 with breast cancer. This forum is invaluable for information, support and making new friends. And now I have some questions regarding my sister-in-law who is dealing with stage…
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Choices with AML
I was diagnosed in 12/23 with AML I am 102 days out from my stem cell transplant at UVA. I am about to go on maintenance chemo for 1 to 2 years to help avoid a relapse. Wondering if there is anyone that has been down this road and would love to hear how they are doing with it. My schedule will be every 8 weeks 5 days of…
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Nuclear Navy Submariners and Blood Cancers
My father served in the nuclear Navy from 1968-1974. During those years of enlistment, he was exposed to ionizing radiation daily during the years of 1970 – 1974. He received these exposures as a Machinist Mate 2nd Class (Nuclear) and job responsibilities at Naval Nuclear Protype S1C, Winsor Locks, Connecticut, which is a…
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BCR what to do? Prostate cancer feedback
Hi, I was diagnosed in Nov. 2002 with Grade 1 Gleason 6. Had RP Feb 2003. For 10 years my PSA was 0. In the 11th year my PSA went to 0.3 then dropped to 0 a year or two latter. Started going up again. The last 9 years it was stable at 0.3 ish up and down 0.34, 0.36,0.3 etc. In 2025 it went to 0.48 then down to 0.42. PSMA…
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newly diagnosed lung cancer
please. i need someone to talk to. i just found out that i have lung cancer. im scheduled for a pet scan on 11/7/24. to determine what phase. am i dying?
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Basal Cell Nasal Reconstructive
I just got the word in 2 weeks i see my Dr to make a plane for my basal cell removal across my nose and then right into reconstructive surgery!!! Iv never been so happy and scared to death at the same time. Do you guys think the flap surgery is the way to go, or get the skin graft surgery. I am so nervous for the process,…
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HiPEC procedure
Hello, i am trying to help a friend in regards of more informations regarding the hipec procedure. Her husband had colon cancer and they are fighting together for over 2 years with this illness. Can you please provide me with more info about, people who had recent procedure of hipec? God bless all!
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fallopian tube cancer
Diagosed with fallopian tube cancer 11/25/08. Surgeon removed tubes, ovaries, utereus and followed up with 6 sessions of chemo. Last CT Scan was good CA125 was 2 Follow up CT in 6 months. Anyone out there with this disease, how long ago was surgery and treatment? Can find LITTLE information regarding this form of cancer.…
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Very Slight increase in PSA
I had a RALP in 2018. No problems, PSA was low to begin with. I just wanted the cancer gone. PSA tests periodically since all virtually undetectable. First positive reading was in September of 2023, when it was, .04. Noted, but no big deal. September of 2024 .06, then today, February 2025 .09. Question. Do these numbers…
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Can a ultrasound sometimes not show a mass
hello, This last week I went in to have my mammogram done and I had been feeling a lump in my left breast. So they marked where they could feel it and sure enough on the mammogram there it was a mass right behind my nipple and also microcalcifications cluster together and attached to the mass. Radiologist said ACR BIRADS…
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Boyfriend of 3 years diagnosed last week
my boyfriend was diagnosed last week with esophageal cancer. It’s been a wild ride for all 7 days- Diagnosis, feeding tube, port. This morning he got angry at me for doing too much and that I had my feelings hurt when he didn’t want help. He packed his stuff - driving even though he shouldn’t this coming week. I am…
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Vulvar Cancer
I was first diagnosed with VINIII in Nov. 2016 and I've had surgery every year since. I'm a 73 year old widow amd first found it 6 months after my husband died. It continues to come back but my oncologist watches me closely. Only in 2019 did it come back Stage 1. That year I was there in Feb and when I had surgery in June…
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Advice needed
First off, I'm shocked to be here. My heart goes out to each and every one of you. I'm here for support to my husband and to gather information. A little history: My husband is 52. He had a physical a month ago that showed a PSA of 4.1. The doctor sent him to a local urologist. The only symptom I've noticed is going to the…
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Postmenopausal for 8 years
Hello ladies. I Am 59 years old and started lightly bleeding in late January. I have been having a light colored discharge for months but I wondered if i wasn't leaking pee 🫣. My gyn got me in same day I called. I have been going to the same GYN since I was 25! He did pelvic exam and told me that I had a big polyp coming…
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Losing a second Husband to Cancer
It's crazy to think I will lose a second Husband to Cancer. Surviving a Spouse was hard enough, surviving the lose of two is inconceivable. I lost my first husband to Liver Cancer at 32, waited 14 long years to start dating again, and then married a High School friend just 4 short years ago. He was diagnosed with Bladder…
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Ugly Duckling Moles
Hi, Does anyone know what approx. percentage of moles that are considered "ugly duckling moles" end up being diagnosed as dysplastic nevus or melanoma.
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Is Breast Cancer Overdiagnosed?
My husband wondered if breast cancer is overdiagnosed so I googled it and found these articles. The Norway study is very recent. Has anyone else ever thought about this? I'm going to ask my oncologist if she thinks I might fall into the "overdiagnosed" category referred to in these articles based on my type of cancer and…
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Long-term Avastin use helps keep ovarian cancer in check
Long-term therapy with the blockbuster drug Avastin — already used to treat breast, lung and colorectal cancers — also appears to help women with advanced ovarian tumors, a new study shows. In a study presented Sunday at the American Society of Clinical Oncology, researchers compared the results of giving women standard…
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Child of Ovarian Cancer Survivor Conducting Research
Hello! I am conducting an important research study to better understand the emotional and social experiences of individuals living with ovarian cancer. As someone who has experienced this journey, your perspective is invaluable in helping us: - Identify gaps in current gynecologic cancer care - Develop more effective…
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AML Survivor
Hello all, my name is Ryan. I was diagnosed with AML when I was almost 4 years old. I am now 23, and have some vivid memories of my experiences. Over the past year I have tried to collect as much information and pictures as possible to get a solid understanding of my battle. I am just now getting to the point where I feel…
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Prostate cancer and heart condition
I am currently taking Orgovyx which has lowered my PSA to 0.009. However, I found out I should also be taking an androgen receptor inhibitor (my urologist prescribed Xtandi) along with the Orgovyx, but things have become more complicated as I discovered I also I have a heart condition (my cardiologist told me I had a minor…
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Adenocarcinoma removed but new Ground Glass Opacities Showing
Hi, I'm new here. I had a glass opacity turn into an adenocarcinoma. I had a lower left lobe lobectomy in Sept. of 2024. My new Cat scan this week shows a new glass opacity in my right lung. I worry that this new opacity will also turn into lung cancer. Should I insist on further treatment? I'm not comfortable just…
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Prostrate Treatment effects
I had a Brachy Therapy in 2006 performed by a team at the Sunninghill Hospital in Sandton Johannesburg. In 2006. In 2020 my prostate specific antigen reading was 18.1. My GP found this on a routine examination. Sending straight to my Urologist. He said it was necessary to have an Eligard 45 injection to stop and cells…