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HER2 POSITIVE SMALL TUMOR
I underwent lumpectomy for what was thought to be a 1.2 CM tumor but only 4 mm was cancer. It was HER2 positive and I have been offered chemo with Herceptin by one doctor and radiation only by another. Not sure what to do. Does anyone know anyone who used Herceptin only without the chemo? Thank you.
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Endometriod Adenocarcinoma Recurrance to the liver
Hi everyone. It’s been a good long while since posting here. I was diagnosed with endometriod adinocarcinoma Stage 1 Grade 1A eight years ago in 2017. That May, I had a complete, Davinci robot assisted, hysterectomy. I remained NED for 6 years. It wasn’t until we went 1 year in between checkups that it was discovered that…
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Treatment for HER2 Positive Small Tumor?
I was wonderinfg and hoping that someone might have thoughts for me about treatment for HER2 positive but very small breast cancer tumor? I had a mastectomy 1 week ago for what was originally diagnosed as complex DCIS, but the biopsy just came back as invasive, ER positive, PR negative, HER2 positive tumor along with the…
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Diagnosed with serous endometrial carcinoma early June 2025
Hi all, I was diagnosed with serous endometrial carcinoma in the first week of June, 2025. There was a normal amount of time between biopsy, pathology, referral to a Gyn oncologist and meeting the highly recommended and qualified surgeon. But there was a glitch in the before hysterectomy imaging, so I’m now scheduled for a…
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Living Well With Cancer
I have developed a nine point plan that I follow faithfully. This plan has enabled me to feel healthier (both mentally and physically!) at 69 than at any time since I stopped playing hockey at age 28. Following these eight steps has made a dramatic impact on my physical and mental health. 1) Get the best medical care…
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Acute cholinergic syndrome on Irinotecan
Has anyone experienced this? I had a pretty intense adverse event involving flushing, sweating, disorientation/dizziness, low heartrate and hypotension during my first infusion that was controlled in the clinic with Atropine but recurred periodically for the next 12 hours at home. Going in tomorrow for my next infusion and…
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They Don't Get It***
Do you have someone in your life who, unfortunately, when you speak with them, makes you feel worse about your condition or your life in general? It's tough isn't it? Instead of providing support, encouragement, and a kind listening ear, their words just create anxiety, panic, and sorrow about the current conditions of…
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Vaginally stenosis
No one has talked about vaginal stenosis which is scar tissue from the radiation. This made any kind of penetration painful. My radiologist gave me vaginal dilators in different sizes.
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cbd topical cream
Has anyone tried cbd cream to help manage nerve pain, and did it work?
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Erections
I am four years out from radiation therapy for prostate cancer. I am unable to achieve an erection sutable for intercourse. I am able to obtain ejaculation by watching my wife and self stimulation. What is the experience of others regarding this issue?
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My wife won't kiss me
Hello everyone, I am 64 years old. Excellent health. 1 month ago I was diagnose with tonsil cancer with HPV-16. I have been for 4 weeks on 100% strick diet, no sugar, no processed food and maximum 20 grams a day of carbohydrates. no radiation no chimo. My wife is very supportive. But I notice that when I tried to kiss her…
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Looking for Honest post-surgery ED expectations / feedback
Hi members- I'm new and this is my 1st post…I had DaVinci assist radical prostatectomy…I am 14 months out and still no firm erections even though I check off all the boxes on someone who should be up and running by now (healthy, not overweight, 57 at time of surgery, doc said both nerves were spared, non-smoker, not a big…
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GIST and Gleevec
Does anyone have or had Gastrointestinal Stromal Tumors?
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And so my Journey Begins . . .
My journey is about to begin so I figured I'd set it down and tell it as it goes. As it goes I will update and try to answer any questions. Symptoms: In June 2022 I had my yearly physical and my blood work came back as good so no indications of anything. Felt great. Started August with a sore throat and a full left sinus.…
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"Baroreflex" Failure" A Rare Late Effect Of Radiation Treatment
I came across this article written by a Gentleman on another forum about late-term post-radiation effects which can give you a condition where your blood pressure swings wildly from high to low or low to high without notice. There is no cure but some control can be realized with meds. I just wanted to let the group know…
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Lung cancer survivor
Diagnosed with NSLC in 2019, staged 3d . After oral chemotherapy, Alecensa to shrink cancer spread, followed by radiotherapy , chemotherapy and immunotherapy I have been cancer free for 6 years now. Stay positive and hopeful.
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Keytruda side effects
My mom is in 10th cycle of keytruda for ovarian cancer recurrence. Last month her PET scan showed initial all lesions in brain and inguinal lymph nodes resolved. Doc said to continue treatment for six more cycles. However she is extremely fragile, lost 20 kilos, could take only fluids via tube and nervous all the time. Has…
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Post radical prostatectomy sex.
Six weeks ago, I had a radical prostatectomy due to prostate cancer. After my resent doctor's appointment (over the phone) he gave me the green light to have sex. My question is, what will it be like? Will having an orgasm be painful? Will getting and maintaining an erection be a problem? What consideration should I bestow…
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Blood in stools...kind of scared
I'm 5 months post treatment. I've had a colonoscopy and there was no more cancer. I've been on a vegan diet for 5 months. Things were going well until this morning. I had a "normal" stool and it kind of hurt, but there was bright red blood in it. I'm not in pain but it really scared me. I see my general onc next week.…
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Fissure after biopsy
Hi! New to this site, please bare w me... I got diagnosed 2022 w squamous cell approx 2" in the anal canal. Finished treatment 12/22. Had port taken out along w final 6 mon biopsy. 2 weeks later, in debilitating pain, had to go back out on disability. I go to all my docs. They went to go back in for botox. They do a…
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undiagnosed could be anything
so i have been struggling with fatigue and my neck felt puffy since last august but then i came down with pneumonia which was diagnosed close to october but started in september. but prior to that in spring i asked a primary care doctor to feel my neck and she couldnt feel anything. i was anemic in november with elevated…
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Just started treatment
Recently diagnosed with anal cancer stage 3 A, and just finished 1st week of chemo and first 4 radiation therapy treatments, and am already experiencing extreme pain from RT. I keep reading it usually takes a few weeks to become painful, and am terrified because it is already so intense, and bound to get worse. I usually…
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Treatment
So I start my treatment for anal cancer Stage T2 N1a. I am just wondering what to expect with chemo/radiation therapy? I have chemo/radiation for two cycles, for five days straight. I will be using the pump. (Had my port place in late February.) Anyone have any thoughts regarding the anal pain, will it ever go away?
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biopsy results
Hi everyone...I would like to share the results of my biopsy which I did on April 14th 20025 Biopsy URONAV MRI fusion ultrasound transrectal and I have cancer. If anybody needs details how biopsy goes… you can ask me Diagnosis K Prostate (ROI 1), core biopsy: Prostatic acinar adenocarcinoma, Grade Group 2, Gleason score…
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still learning and more
Hey all, I was told I was posting on old comments so hopefully this is to a more recent arena. I was diagnosed on 12/2023. Started as 4+3 later changed to 3+4. Have a quite a bit of cores that are cancerous, but low PSA, no symptoms. I've had Prolaris done, came back Intermediate Unfavorable, but very low prognosis for…
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Do Not Want to Take Aromatase Inhibitors
Hi, I had a lumpectomy and am in the middle of radiation treatments. When radiation is complete it is recommended that I take aromatase inhibitors. Stage 1 invasive no lymph nodes. The Oncotype Dx test put me in the low risk category, but there is a percentage of reoccurance that is there. The AI's are suppose to cut that…
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does Eligard ever wear off
Can any body shed some light on how long the side effects of Eligard last. Its been 15months since partners last injection and he is still the person Eligard changed him into. Stll hot flushes fatigue apathy disengaged impotence and zero libido. His PSA and testosterone are both still negligable...I keep trying to find out…
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Life after prostate cancer radiation treatment
My life has changed, then maybe not, just extended? Do you feel the same? My close male friends have asked "how are you doing? Then we just go on. However, I am not the same as in so many recent changes of my past consistent body and expected functions. I will share what happened to those that want to listen. It has…
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TrueBeam radiation treatment system
Is the TrueBeam system accurate enough for treatment if no fiducials and no hydrogel are used as my radiation oncologist recommends. I don’t think it does real time monitoring and adjusting for position changes during a session?
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Stage 3 Rectal cancer Recurrence
Hi I am male with 37 years old I was diagnosed with stage 3 rectum cancer Aug 2023 about 6 cm tumor in my rectum and 8 cm distance to anal verge .I did first CT for checking metastas and it was clear. My oncologist decided 6 rounds of chemotherapy with folfox. After it was ended, I did my second CT and shows that tumor…