-
Hair loss/re-growth
Hello! I just joined CSN for ovarian cancer. I’m preparing for a total hysterectomy in a few weeks. That hopefully will be the last big hurdle. My question is about hair loss & re-growth. I realize everyone’s different but how long did it take for your hair to really grow back? I have peach fuzz & some stronger hairs…
-
Alternative Doctors or Medical doctors who use natural medicine too
Hi, I just had a radical hysterectomy and now need to decide on the next course of action. My latest CAE showed 0.5 and my CA-125 showed 19. However, it is still recommend that the “standard of treatment” is 6rounds of Chemo. Taxol and Carbo? I was diagnosed with Stage3 Ovarian Cancer-clear Cell I would like a second…
-
Grandulosa Cell Tumor Cancer.
On New Years I found that I had ovarian cancer for the 2nd time. In 2017 I was diagnosed as high risk Stage I GCTC patient. My left ovary, fallopian tubes, and lymph nodes were removed. Now I have multiple tumers a few, in my adrenal gland, nested between my kidney and my ureter and impacting my pancreas that are not a…
-
Radiation for recurring endometriol ovarian cancer
In Dec 2018 I had a complete hysterectomy for endometriol ovarian cancer, and 6 rounds of chemo in 2019. Happily I was in complete remission. Unfortunately in 2022, a small tumor was found in my groin in front of my colon. I just finished 6 rounds of chemo, doxil was really hard on my body. Surgery is not an option, and…
-
Blood Draw Results
To those who are new to the maintenance after chemo, here are some tips to watch out for that I have experienced: Subscribe to your lab website so you can monitor and compare your lab results from time to time and see how your trending, are the markers improving, needs close monitoring? Or heading towards a catastrophe? My…
-
Maintenance Drug After 6 Chemo Treatments
I am about to get my fifth out of six chemo treatments for ovarian cancer and am told I will be put on a maintenance drug for 18 months following my last treatment. Can anyone who has had maintenance drugs tell me how soon they were put on it after their last treatment, what side effects they had, etc.? Also, did your hair…
-
Clear Cell
Has anyone been diagnosed with Stage 3A1 Clear Cell Carcinoma of the ovary. If so, what was your treatment, how long ago and did it work. Also has there been any reoccurrence? Thanks and experience with clear cell would help.
-
Falling through the cracks
Not sure what board to post this question… but I’m really worried I may have something serious- my periods have been very regular but in the last year they abruptly stop after 2 days- never any clots anymore and I feel super bloated- with nausea. I never finish meals anymore. We’ll it’s humiliating to explain this again…
-
Waiting for diagnostic ovarian
Hi I am just trying to get myself together. I had a ct scan done 2 weeks ago due to left side lower back pain. Had the ultrasound yesterday waiting for dr to see results but I have a 9 cm tumor on left ovary. I am 58 with 2 adult children. Have FAP hereditary condition. Had my colon removed due to high risk of cancer. The…
-
What type of dr for ovarian surgery
Hi I see a lot of confusing stories . I am waiting on my ultrasound reading from my dr did the test on Friday morning results and imaging is in imaging website. Images show highlights in blue and red areas in some of the images. Again like most of you my brain is not letting me relax. My left ovary has a 9 cm complex…
-
Possible ovarian cancer, prior endometrial cancer
I had endometrial cancer last year, low grade and stage, only hysterectomy needed, and my ovaries looked great, so they left those in and took the tubes (pre menopause). Since then, I have had a lot of discomfort and even tried PPT which didn't help all that much, but overall, I felt pretty good by early fall except for…
-
Ovarian Cancer
Hi all, new member here. A summary of what I have been through so far. My doctor sent me to get a ct scan after complaining of a slight discomfort in my tummy. Scan confirmed a 5cm cyst. From there my gp referred me to a gynaecologist who recommended removal of ovaries and Fallopian tubes. Firstly she sent me for a blood…
-
Sulforaphane
Hi, is anybody or has anybody taken sulforaphane? If so what is your experience with this please?
-
Hand cramps and tremors
Hello all. Does anyone have any recommendations for managing hand cramps and tremors? My mother suffers from these side effects and the meds she’s been given create side effects of their own of course, which she does not need. Has anyone had any luck with any natural remedies?
-
MRI insurance denial
Not sure how to manage this- I waited for an MRI for 7 weeks and now at the last minute the insurance is saying they won’t pay for it- they need a peer to peer. They waited till the last hour to contact me- and now we have only 48 hours to get a peer to peer- it took me a long time to get a doctor to listen meanwhile my…
-
Tahini
Hi there. I just want to share with you all a snapshot of an article I came across. Because of my low platelets, I always research what I eat to make sure that I’m not hurting myself. I just got done with 2 bags of platelets transfused and still working on my diet to further boost the level. Attaching the snap shot for…
-
Blood work for Ovarian cancer.
I had low sodium of 28 in my blood work. The normal is 37. Based on the other blood work the doctor told me I was drinking to much water but low sodium is a sign of dehydration. Also they tell you to drink water to get the chemicals out of our system. My bun/creatinine ratio was very high. 10 points above the normal range.…
-
Concerned for my daughter. Ovarian cysts/cancer?
Hello, I’m writing out of concern for my daughter (22yrs). I apologize if this ends up being long. Mydaughter has always suffered from “difficult” periods. I wouldn’t call them out of the ordinary but she was always dealing with heavier flows and a lot of bad cramps right before starting and during the first couple days.…
-
Ketogenic Diet for cancer
Is there anyone that uses a ketogenic diet for cancer treatment along with chemotherapy to lessen the side effects? I'm 66, was diagnosed with stage III serous ovavian cancer. I surgery to remove the cysts, ovaries and fallopian tubes removed. I had already had a hysterectomy. I had a port for chemotherapy installed…
-
Hair return after chemo
I was diagnosed with Stage 3C ovarian cancer last February (while in the USA) when a tumor perforated my colon during a colonoscopy. Luckily I responded extremely well to Taxol/Carboplatin. My CA125 went from 1587 to 41 after 3 rounds, and I was able to have the debulking surgery at that time. (BEST of all the emergency…
-
My Sex Drive and Period, Wishing For Their Return.
Hello Everyone, I am new to this site so please forgive me if this question has been asked many times but I need to ask it. I am a 35 year old woman. Last year September 2021 I had surgery for stage three ovarian cancer, a rare form of it called a teratoma. Almost a year later after chemo and another surgery, I am very…
-
Oh how I wish for my life back...
Hello all, I'm new here. I was diagnosed with ovarian cancer stage 1 back in May of 2021. I had surgery in early June 2021 (full hysterectomy, etc), then a breast biopsy (turned out okay) and a port put in. I started 6 rounds of chemo with the carboplatin and taxol in July 2021, and I had my last round Nov 17, 2021. I am…
-
Initial scans
I’ve posted here before so forgive me for posting again if this seems like a repeat. Has anyone ever gone to an outside scanning service because they didn’t have time for all the hoops you have to jump to get someone to take your symptoms seriously. I just can’t do this anymore… I’m beginning to feel like I’m making this…
-
Power Port
Ok, this is a wimpy question considering everything many of you have been through and my own surgery but..... My power port was installed yesterday...is it supposed to feel like I've been punched in the shoulder and neck by Superman? OY! Leesa
-
How to find the best doctor/surgeon
I am thinking positive, and hoping my mother will be ready for her debulking surgery in a few months. I keep reading how important the skills of the surgeon are for this operation. She has chosen a surgeon based on nurses recommending her because she is 'so nice'. I want to make sure she is the best one for the job though.…
-
Questions Before Surgery
I was diagnosed with Stage 3 Ovarian cancer. I have had 3 chemo treatments. The plan is to have surgery next and to follow that with 3 more chemo treatments. I have a pre-surgery appointment next week. What questions should I ask?
-
Rising CA-125 No Reason Given
Hello and thank you for reading. My CT and PET show NED but my CA-125 is now 530. It was 81 post surgery in October and started going up in January. I have had constant swelling in both feet since surgery with no diagnoses. (Doctors say they are unsure why.) In January I went on 200mg Niraparib but after severe anemia and…
-
Should I be Worried?
I had breast cancer 8 years ago....went through sugery, chemo and radiation. I have not had a recurrence. I was 48 at the time, and went into menopause while taking treatment, which became permanent. For about the last month or so, I've been having a lot of abdominal cramping. I feel like I'm going to get my period any…
-
Chemo Rash
I’m 8 days after my first chemo treatment and this morning I woke to a terrible rash covering my entire body. I thought I had mentally prepared myself for most things that could happen, but I wasn’t prepared for this. I’m thankful so far it’s not on my face. I live close to my Dr.’s office so I drove there this morning.…
-
Beet juice and nitric oxide
Does anyone knows if this is good for low platelets? My platelets went down yesterday morning to 10 and had Mediterranean, lots of hummus with lots of tahini. Last night, before the transfusion, platelets went up to 65. I had 2 bags of platelets transfused. Expecting this morning that platelets will be up because of the…