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Radiation treatment choice
My wife has some hot spots on her PET scan. She has to decide between having a few pin point high dose treatments,(which is promised to have less side effects)or to go with a 5 week combination treatment of hitting those spots with high radiation and using low radiation in the surroundings. Has anyone dealt with this?…
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ovarian cancer - overwhelmed
hi, my wife is presumably to have ovarian cancer. big belly, bloating and loss of appetite started about one month ago. Went to primary doc, then did an Ultrasound about 3 weeks ago, it showed 3cm pancreatic tumor and ascites. Scheduled for a CT scan the following week. Then her bloating/cough got much worse so we checked…
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Avastin
Any of you ladies taking Avastin for maintenance therapy??? My Dr wants me to start using it and im scared. Im tired of the IV's.
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Advice for just starting my Ovarian Cancer journey
Hello Everyone, Let me say thanks in advance for any and all advice or comments. It is very kind of you to share your stories and opinions. I may not be able to respond right away. Sorry for such a long post. I just want to get all of my info and questions out there. I will update with new information as I get it. My…
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Doxil & Stomach Cramps - Anyone?
There have been a few different conversations on here about doxil and side effects - most recently the rash which I do have. However my main problem now seems to be with severe stomach cramps. The kind where you curl up in a ball and hold your breath until the pain subsides. Ugh! I have had four rounds of Doxil. I first…
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Anyone Had hair loss with Doxil?
Avastin giving me nose bleeds and headaches.
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Ovarian cancer after breast cancer
Have any of you developed ovarian cancer after you already had breast cancer. And if so did it happen during chemo, after, long after? Thank u and God bless
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He4 and roma index
Hi. Can you please help me. Due longer to misssed periods and pain doctor sent me to blood tests. The marker Ca125 was within limits, and He4 was elevated to 270 pmol. It has been 9 months since then. Ca 125 remains below the limit, He4 increased to 335 pmol, free fluid is present. Ct showed no changes in the abdominal…
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CT showing doubling of size of complex adnexal cyst, additional adnexal; need to get past call cente
The doubling is since 9/23. Radiologist suggests MRI with contrast. Size is 4.2 and 4.0, one with high density. I simply cannot get local upstate NY doc to respond to even get order. If needed I can travel albeit with hardship to Sloan Kettering. After reading prior posts, I believe, if need be, I’d be in better hands. At…
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Mediport
I am having chemo on Monday and I still have steristrips on my port. How do I put on the numbing cream?
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CA125 11.718 U/ml :(
hi I'm from Indonesia. I didn't have any symptoms until last week I felt bloated in my stomach and it was followed by my stomach suddenly getting bigger like a pregnant woman. I immediately went to the doctor and an ultrasound revealed cysts on the right and left ovaries. It is said that cysts are liquid and solid. The…
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Avastin
Hello to my favorite ladies! I haven't updated lately, so thought I would check in. I just had another PET/CT to see if I qualify for avastin. I have been on doxil since September, and then doxil/carbo for 3 cycles, and it is holding the cancer at bay but not putting me into remission. Been doing a lot of processing about…
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Rare reaction to taxol
73 yo recenty diagnosed with peritoneal cancer. Was taking Ozempic and the side effects I was having I believe masked my cancer symptoms. Underwent 1st chemo with carbo and taxol on august 8. 2 days later had some trouble breathing. Went to the er and admitted on 16 liters of oxygen. Rare reaction to taxol. In hospital for…
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Tahini Butter for platelet counts
Okay Ladies, Upon the recommendation of someone on this board I ordered through Amazon.com tahini butter. How much am I to eat of it daily, and how? Like a big dummy I ate a spoonful right from the jar. Thought I was going to get sick, but forced it down :) What's a pleasant way to get this in me daily. LOL! I do love…
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Recurrence
Does anyone know of any one who has only had Ovarian cancer one time? I have met many who have had it more than once. I don't want to scare any one in this group and it has been a long time since I have been here and that is not my intention. I have my next CA125 in 4 weeks and my sister just died of Non-Hodgkins and I am…
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How to live through remission without being afraid all the time?
Hi I am not to sure how to start this of but I guess here goes nothing. First off I am 25 currently and was 21 when I was diagnosed with ovarian cancer on my right ovary. They found a 25 pound tumor in my abdomen attached to the ovary. I am currently in remission but I do carry a gene mutation for being predisposed to…
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Ovarian cancer help for mom?
hello all! I am a breast cancer survivor, as is my mother. Now, at 94 and otherwise very healthy, she's just been diagnosed with probable ovarian cancer with two masses about 8 cm. Her gynecological oncologist at UCSD plans a laparoscopic attempt to remove the masses and her fallopian tubes, during which time he will…
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Medicine Lynparza
Hello my sister has ovarian cancer and has been cleared. So now she needs to take the med Lynparza which is very expensive. She needs to take this med twice a day for 2 years. Her insurance will not pay for this med because her company is less than 50 employees. We need resources. Has anyone gone through this? Any…
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How to get rid of the worry and dread
Hi. I'm new. I've been struggling with opening up since Nov 2020. I was hit with lung cancer nov 2020, had a lobotomy. Thought I was in the clear, then in March 2021, was hit with ovarian cancer. I went from stage 1 to stage 4 in three weeks. Doctors were blown away I had 9 rounds of chemo, then put on rubraca . My hair…
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3 vs 6 chemo?
My oncologist says 3 to 6 chemo are needed and I am thinking to just end it at 3. I will be going on letrozole afterwards though for a long time. My cancer is highly hormonal, and I am hoping that the letrozole keeps it away (ca 125 is down since surgery 12 then 11 after 1 round of chemo). Has anyone here with endometroid…
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Shocked, devastated, and need help with doctors in Atlanta, Georgia
Short: Is anyone here from Atlanta and can recommend a superstar gynecologic oncologist? And other doctors you'd recommend, including primary physician ? Or did you go out of state for your surgery/treatments? Long: A few days ago I got a devastating radiology report - CT/MRI showed ovarian malignancy on right kidney,…
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ACS travel assistance (hope Lodge/hotel)
I am so disappointed in the ACS decision to stop assisting cancer patients who do not need a caregiver with lodging assistance. Now not only do I have to travel out of state alone for treatment (I'm an elder orphan) I have to find a way to pay full cost of lodging. I have no relatives or friends that can travel with me. I…
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Can someone please explain endometrial stromal sarcoma as ovarian cancer?
Obviously, I am new. So new, I haven't yet even got an oncologist. The gynecologist is personally calling around to find one for me. Two pathologists didn't know what I had so they sent it to Mayo clinic and the pathology report just came back this week. I was told this type is very rare. I had a large tumor on one ovary.…
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Low Grade Ovarian Cancer
Hi, I was diagnosed with Stage 3A low-grade ovarian cancer (micro-papillary serous carcinoma) in September, had an optimal debulking surgery (total hysterecotomy) and started chemo at the end of September. So far 3 rounds down, 5 to go. However, low-grade ovarian cancer supposedly means that it grows more slowly than the…
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Doxil and the beach
We had planned to visit the beach next year before we found my wife’s ovarian cancer has reappeared. She is started on Doxil/carboplatin… has anyone had this challenge before?
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Stage 1 Ovarian Cancer Clear Cell
I am trying to research ... In November 09 I had surgery and they removed both ovaries ..the left ovary had Stage 1 Cancer ..clear cell. Nothing in the right ovary or pelvic wash. they recommended I stage the cancer. So in Dec 09 complete hysterectomy...no cancer was found anywhere....lymph nodes clean. Said they cancer…
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Avastin/docile side effects
Hi Everyone, Im new to this site. I was diagnosed last year with advanced ovarian cancer and have had continuous chemotherapy for the past year and a half. Currently on avastin and doxil. Having terrible breakdown of skin on feet. Anyone else have problems with avastin ? If so, how did you treat ? thank you
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Ovarian Cancer
I have to do a project on ovarian cancer for Bryan School Of Nursing and present it to my class. I first need to find someone who has experienced ovarian cancer and interview them. This is really important because i want to be able to give them as much information on this silent cancer so they understand why people may get…
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Mental Health Support
Hello, I’m new here and seeking help. I’m a 28 yr old in remission now from Stage 3C Ovarian Cancer. I was diagnosed November of 2020 @ 26 years old. Is anyone from the Massachusetts area who have or recommends a psychiatrist or therapist who specializes with working with cancer patients/survivors? Any help would be…
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Up all night
Hello. I am a mess! I am 64 and am scheduled for a cardiac ablation on the 18th for svt. Went to the hospital today for pre admission testing ...blood work and ekg. Tonight I get a. Email stating my test results were ready. When I went online, all tests were there Nd looked good. However, one tedt for cbc with automated…