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Recurrence
Does anyone know of any one who has only had Ovarian cancer one time? I have met many who have had it more than once. I don't want to scare any one in this group and it has been a long time since I have been here and that is not my intention. I have my next CA125 in 4 weeks and my sister just died of Non-Hodgkins and I am…
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How to live through remission without being afraid all the time?
Hi I am not to sure how to start this of but I guess here goes nothing. First off I am 25 currently and was 21 when I was diagnosed with ovarian cancer on my right ovary. They found a 25 pound tumor in my abdomen attached to the ovary. I am currently in remission but I do carry a gene mutation for being predisposed to…
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Ovarian cancer help for mom?
hello all! I am a breast cancer survivor, as is my mother. Now, at 94 and otherwise very healthy, she's just been diagnosed with probable ovarian cancer with two masses about 8 cm. Her gynecological oncologist at UCSD plans a laparoscopic attempt to remove the masses and her fallopian tubes, during which time he will…
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Medicine Lynparza
Hello my sister has ovarian cancer and has been cleared. So now she needs to take the med Lynparza which is very expensive. She needs to take this med twice a day for 2 years. Her insurance will not pay for this med because her company is less than 50 employees. We need resources. Has anyone gone through this? Any…
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How to get rid of the worry and dread
Hi. I'm new. I've been struggling with opening up since Nov 2020. I was hit with lung cancer nov 2020, had a lobotomy. Thought I was in the clear, then in March 2021, was hit with ovarian cancer. I went from stage 1 to stage 4 in three weeks. Doctors were blown away I had 9 rounds of chemo, then put on rubraca . My hair…
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3 vs 6 chemo?
My oncologist says 3 to 6 chemo are needed and I am thinking to just end it at 3. I will be going on letrozole afterwards though for a long time. My cancer is highly hormonal, and I am hoping that the letrozole keeps it away (ca 125 is down since surgery 12 then 11 after 1 round of chemo). Has anyone here with endometroid…
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Shocked, devastated, and need help with doctors in Atlanta, Georgia
Short: Is anyone here from Atlanta and can recommend a superstar gynecologic oncologist? And other doctors you'd recommend, including primary physician ? Or did you go out of state for your surgery/treatments? Long: A few days ago I got a devastating radiology report - CT/MRI showed ovarian malignancy on right kidney,…
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ACS travel assistance (hope Lodge/hotel)
I am so disappointed in the ACS decision to stop assisting cancer patients who do not need a caregiver with lodging assistance. Now not only do I have to travel out of state alone for treatment (I'm an elder orphan) I have to find a way to pay full cost of lodging. I have no relatives or friends that can travel with me. I…
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Can someone please explain endometrial stromal sarcoma as ovarian cancer?
Obviously, I am new. So new, I haven't yet even got an oncologist. The gynecologist is personally calling around to find one for me. Two pathologists didn't know what I had so they sent it to Mayo clinic and the pathology report just came back this week. I was told this type is very rare. I had a large tumor on one ovary.…
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Low Grade Ovarian Cancer
Hi, I was diagnosed with Stage 3A low-grade ovarian cancer (micro-papillary serous carcinoma) in September, had an optimal debulking surgery (total hysterecotomy) and started chemo at the end of September. So far 3 rounds down, 5 to go. However, low-grade ovarian cancer supposedly means that it grows more slowly than the…
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Doxil and the beach
We had planned to visit the beach next year before we found my wife’s ovarian cancer has reappeared. She is started on Doxil/carboplatin… has anyone had this challenge before?
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Stage 1 Ovarian Cancer Clear Cell
I am trying to research ... In November 09 I had surgery and they removed both ovaries ..the left ovary had Stage 1 Cancer ..clear cell. Nothing in the right ovary or pelvic wash. they recommended I stage the cancer. So in Dec 09 complete hysterectomy...no cancer was found anywhere....lymph nodes clean. Said they cancer…
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Avastin/docile side effects
Hi Everyone, Im new to this site. I was diagnosed last year with advanced ovarian cancer and have had continuous chemotherapy for the past year and a half. Currently on avastin and doxil. Having terrible breakdown of skin on feet. Anyone else have problems with avastin ? If so, how did you treat ? thank you
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Ovarian Cancer
I have to do a project on ovarian cancer for Bryan School Of Nursing and present it to my class. I first need to find someone who has experienced ovarian cancer and interview them. This is really important because i want to be able to give them as much information on this silent cancer so they understand why people may get…
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Mental Health Support
Hello, I’m new here and seeking help. I’m a 28 yr old in remission now from Stage 3C Ovarian Cancer. I was diagnosed November of 2020 @ 26 years old. Is anyone from the Massachusetts area who have or recommends a psychiatrist or therapist who specializes with working with cancer patients/survivors? Any help would be…
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Up all night
Hello. I am a mess! I am 64 and am scheduled for a cardiac ablation on the 18th for svt. Went to the hospital today for pre admission testing ...blood work and ekg. Tonight I get a. Email stating my test results were ready. When I went online, all tests were there Nd looked good. However, one tedt for cbc with automated…
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Any local support groups?
Hello, I’m looking to understand if there are any local community support groups for a caregiver. I am struggling with lack of anyone to talk to about what its like to watch someone you love in so much pain. I’m the daughter of a mother with ovarian cancer. Welcome any advice on where to go or resources I can reach out to.…
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hair loss with Avastin?
My mother (3c/4 Feb 09) received two infusions of carbo for recurrence, which made her hair thin a little but didn't make it fall out. Last week Avastin was added -- she got her first infusion of it, along with carbo #3 and a neulasta shot on Friday. Today she read that hair loss is on the list of side effects experienced…
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Financial Assistance
Does anyone have any referral for resources for financial assistance?
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Skin problems during/after chemo
Just wondering if anyone else had this experience and could offer some tips. Once chemo began and I lost my hair I discovered a few pimples along the hair line in the back of my neck. A couple of days later my entire head was full of pimples. Not only was I a bald woman, I was a pimply bald woman. grrrr !!! Anyway, once…
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Recurrent Ovarian Cancer
Hello, here are some studies I came across and experience with recurrence. I would like to share them with you: Recurrence of Ovarian cancer— according to many studies has the highest recurrence rate and very aggressive. If you have a recurrence—stay with chemo if you had success with it. Daily maintenance— I was in PARF…
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2-year Update
Hello everyone. It’s been a long while since my last post. This is because (I’ll cut to the chase) I had a recurrence on my 13th month after pronounced in remission. To recap, I had my first diagnosis of ovarian cancer stage IIA on 8/27/21. I had surgery and 6 rounds of chemo then was placed on Zejula. On my last blood…
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Recurrent Ovarian Diagnoses
If someone could give me their thoughts I would really appreciate it very much. I am so worried and hoping to hear from others. In 2020 I was diagnosed with ovarian cancer and had a full hysterectomy and six rounds of chemotherapy. My CA 125 score was reduced to 18 and for two and a half years I was in remission. In April…
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Diagnosed with endometrial cancer---18 years post hysterectomy
Would be helpful to hear from others who have experienced with type of cancer, and especially from those who have had a full hysterectomy years before the diagnosis.....
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Constipation
Starting first chemo next week. So in preparation trying to get all possible supplies so I can avoid stores as much as possible. Wondering about the constipation side effect and what everyone's trick was. I never really had an issue before so not alot of experience for what works.
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New here and so afraid
Hello. New to this group. Have not been diagnosed yet but fear the worst. I am 60, post-menopausal. Saw a doctor a month ago after two bouts of sharp pain on my right side while running. CT shows 9.4 cm “soft tissue mass.” No other symptoms but today I got blood work back - CA 125 of 287 though CEA and CA 19-9 were at…
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Apricot seeds
Have any of you ever taken apricot seeds? I am curious to hear your comments. I know of one young man at our church who had brain cancer stage III seven years or so ago and he said the seeds attributed to his health now. Then another lady I know just was told her dad was done with treatments so she is going to start him on…
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CA125
I am 68. I had a hysterectomy seven years ago...ovarian cancer was not found!!! My CA 125 was between 125 and 145. I have continued to get this blood test every year. Usually ranges around 125. It went down to 109 last year but it is now at 131. I can't understand why my numbers are so high? When I Google CA 125, I don't…
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Cravings?
Ok...so this weird and a bit light hearted, but we all need to think of something weird and wacky from time to time! I have found that since my diagnosis, I have experienced a range of cravings...have you experienced the same thing? Initially, after diagnosis, I really wanted wine and chocolate..lots and lots of wine and…
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Normal CA125
Quick background: I’m 30 yrs old, 5’8 and 140lbs i noticed chronic bloating back in August and scheduled an appointment with my gynecologist. I had a 14cm cyst but radiology and CA125 were normal. It was a suspected dermoid cyst. I had the cyst removed and pathology came back stating it was 15% malignant (germ cell). i’m…