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How to deal with shock of diagnosis
I’m newly diagnosed with advanced uterine and ovarian cancer. I had a full hysterectomy but there is some small nodules of cancer left. I’ll have to do 6 rounds of chemo. I can deal with a go-forward treatment. I don’t know how to reconcile that I feel good, but apparently my body is sick. How do you deal with the fear and…
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Rising ca125 recurrence?
My mom diagnosed with high grade serous ovarian cancer stage 3c in October 2021 and went through neoadjuvant chemo and surgery. Her ca125 levels are now at 30 compared to 5 three months back. Should we be concerned about relapse?
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64 yr old with stage IIIc serous ovarian cancer
Hi, My mother has been diagnosed with stage IIIc serous ovarian carcinoma, which has spread to the peritoneal cavity, nearby lymph nodes, spleen, and possibly the liver. We have started chemotherapy, and the doctors have recommended three cycles of chemo combined with Avastin. After evaluating her condition, they suggested…
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Gastroparesis and post menopausal bleeding
I started having abdominal pain, heartburn, early satiety, regurgitation while sleeping, followed by currently severe epigastric bloating (like an alien is moving around, it’s wild). This all began in February ‘24 and I was recently diagnosed with gastroparesis (GP) “caused by covid infection” in Jan 2024. I’ve been post…
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Do I have surgery to remove the endo even though they think it's a very low chance it's cancer?
My story is that I had a CT scan back in March when I was sent to have due to stomach pains which, at the time, they thought was appendicitis but just wanted to confirm before sending me to the hospital. It ended up being diverticulitis but they found a mass and a fibroid in the CT scan which required further looking into.…
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Anyone have surgery after 6 rounds of chemo/immunotherapies?
Hi everyone. I was diagnosed with stage 4 uterine with spread to omentum and peritoneal carcinomatosis in late Feb 2024. Not a candidate for immediate surgery. I did 3 rounds of carbo/taxol and Jemperli (immunotherapy) then a CT scan that was essentially unchanged but stable. I completed 3 more rounds followed by another…
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Avastin for Maintenance
i am wanting to talk with other survivors that have been on avastin for maintenance. I am having terrible muscle and joint pain. Has anyone had that issue?
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Living Alone during Chemo
Will I be able to manage my chemo treatments living alone? I’m 65 and live in a RV at a beautiful RV resort on the lake. I’m starting 3 rounds 3 weeks apart - surgery- then 3 more chemo treatments. I have a neighbor who works part time so it mainly is me on my own. Anyone else manage? I do have family 2000 miles away and a…
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High CA125 does not mean cancer!
I have had an anxious month. My CA125 has been climbing all month. In May it was 12. In the beginning of August it was up to 295, then 4 days later 460. A CT scan was done and no spots of cancer were found. I was told to get another test in 2-3 weeks. I did that on September 5...my number was 2645. Needless to say I was…
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Volunteer
Diagnosed with Stage 3 ovarian cancer at 31 years old January 2024. Looking to volunteer somewhere helping others going through the hardest time of their lives. Not sure where to start? Hudson Valley, NY.
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Help ease my mind Pet/CT scan results
Hi there i recently had my first pet scan as i haven't been feeling great over the past several months, blood work out of wack, pain, exhausted. I'm 40 yr old female, diabetes, high blood pressure, anxiety, diabetes. I do have fibroids and a history of them for years. But the SUVmax of 5.8 on left ovary has me concerned.…
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I'm new here
My name is Wendi. I have ovarian cancer and am heading into chemo treatment 6x every three weeks for the second time. Will be sure to get a port this time. In 2022 I had HIPEC , complete hysterectomy and underwent chemo. I was clear for almost 2 years. In the last 6 months, my CA 125 has been increasing rapidly. After…
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What can nurses do to better help you?
I am an RN student and I would like to know what the nurses who care for you could do to better help you? I'm anxious to get your feedback! Please reply!
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TERRIFIED - PLEASE HELP ME!!!!!!!
Hello! I am absolutely terrified! ☹ My beautiful 33-year-old daughter went to urgent care due to urinary urgency, lower back pain, and microscopic blood in her urine. She did not have a UTI, so they sent her for a transvaginal ultrasound, and the findings are below. Could someone please give me their input regarding her…
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Ovarian and uterine cancers
I was just diagnosed. Total hysterectomy was done April 23 for endometriosis, pathology came back with stage 3 uterine and stage 1 ovarian diagnosis. I guess you could say that I'm lucky that the ovarian cancer was caught early. I can't get a straight answer from my surgeon about chemo and prognosis. Every cancer website…
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Hemoglobin Level
My biopsy isn't scheduled until July 11. Last week, I was in the hospital getting two blood transfusions. Yesterday, I passed 8 large blood clots within a two hour time frame. Today, I am so weak. Do you think it could of lowered my hemoglobin level or am I just tired from the pain yesterday? I don't want any additional…
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What to make of CA 125 in normal range for new diagnosis?
My wife has been diagnosed with 'probable' ovarian cancer with surgery scheduled two weeks out. The surgeon just ordered a CA 125 test which came back at 33 which seems to be in the normal range. What to make of this?
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Chemo or No Chemo - Stage 1C1
Finding myself in the decision making stage for Chemo or No Chemo (Observance) for Stage 1C1. Single ovary cyst with recent surgery to remove cyst, ovaries, fallopian tubes. Spillage during surgery (due to cyst size, needed drainage prior to removal). Cyst results returned as Grade 1 mucinous carcinoma. All post-op CT…
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Pain Management
My biopsy isn't until July 11th. When I was in the hospital because I needed a blood transfusion the doctor gave me pain medication. Now that I am home, I only get Tylenol every 6-8 hours. Sometimes it helps, but usually only dulls the pain. Now it doesn't even seem like the heating pad helps with the pain. Any suggestions…
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Need Advise
My mom was diagnosed of ovarian cancer , we need help. Doctors in Summerlin hospital keep saying she is dying- we feel like it’s not right and humane. Please help us she is fighting, she is in icu right now. Her CA 125 is 1400 . We only went there to drain her asceitis from then on she got weak. She does her chemo at ucla…
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ovarian cancer symptoms
I apprecciate if someone who had suffered ovarian cancer can tell me what symptoms had experienced. Ginelle
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Brain Metastasis - Radiotherapy
My mom (62) initially diagnosed with ovarian cancer in 2021 and underwent surgery/chemo. Now we found there is a metastasis in brain (posterior fossa) and three in abdomen lymph nodes. We were told prognosis doesn't look good (in months- as brain metastasis recurrence is risky) and starting ten whole brain radiotherapy…
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The mental part of it
hi I am 64 and have been healthy (except fertility issues) up until ovarian cancer diagnosis in December. Had full hysterectomy and lymph removed in January. Started taxol and carbo in February. I just completed 5h treatment and will have my last June 6. I am really beat today. Can barely climb stairs. I hope to feel…
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Recurrence from Ovarian cancer
My mom initially diagnosed with ovarian cancer in 2021 and underwent surgery/chemo. Now we found there is a metastasis in brain and two in abdomen lymph nodes. We were told prognosis doesn't look good (as brain metastasis recurrence is risky) and starting ten radiotherapy sessions. Has anyone gone through similar…
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Rest Of The Journey
I was diagnosed with stage 4 Ovarian cancer about 6 months ago. I was not a candidate for surgery and was found to be chemo refractory/ resistant. Although I know everyone’s journey is unique ( to some degree), I’ve been told my life expectancy is about a year. Is there anyone out there that has gone or “walked- with”…
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Recurrence at Brain or Tuberculoma?
My mom diagnosed with high grade serous IIIc in 2021, had a recurrence with ascites in 2023. Lately she felt dizziness and CT scans revealed lesion in brain - though doctor initially said such recurrence to brain is rare if not impossible he want to study further. On the other hand it could be Tuberculoma. Has anyone faced…
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Ovarian Cancer Scare following previous cervical cancer- curious about misdiagnosis stories
Hello, I won't go to into details but I am on a stand still with a mass that is suspected to be ovarian cancer. I am waiting for biopsy. It took me a long time to get here. I'm scared and i've been looking for an answer. I didn't think this was it. Does anyone care to share their diagnosis story (especially if it includes…
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Does treatment location matter?
Hi, Does it truly matter what institution/center I get my treatments at? I live in a somewhat rural area and many ppl are telling me to go to a more urban institute/center. I read that treatment for ovarian cancer is pretty standard so I am wondering about the value in traveling to a more urban/well known center…
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Ultrasound and CT not able to detect if it's a pedunculated fibroid or a mass.
I (post-menopausal 52 y/o) went in to urgent care about a month ago with stomach pains. Doctor thought it was a ruptured appendix, but sent me for a CT scan to verify. Turns out it was diverticulitis, but on the CT scan they noticed a a complex cyst on my left ovary, however they couldn't be sure if it was a pedunculated…
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CA 125
I was concerned because of my CA 125 went from 7 to 44. It had been over 7000 before 3 rounds of chemo and debunking. After 3 more rounds of chemo it went to 7. Then with the blood work following all of that the marker was going up. The doctor explained that the marker will fluctuate for any number of reasons and stress…