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What to make of CA 125 in normal range for new diagnosis?
My wife has been diagnosed with 'probable' ovarian cancer with surgery scheduled two weeks out. The surgeon just ordered a CA 125 test which came back at 33 which seems to be in the normal range. What to make of this?
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Chemo or No Chemo - Stage 1C1
Finding myself in the decision making stage for Chemo or No Chemo (Observance) for Stage 1C1. Single ovary cyst with recent surgery to remove cyst, ovaries, fallopian tubes. Spillage during surgery (due to cyst size, needed drainage prior to removal). Cyst results returned as Grade 1 mucinous carcinoma. All post-op CT…
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Pain Management
My biopsy isn't until July 11th. When I was in the hospital because I needed a blood transfusion the doctor gave me pain medication. Now that I am home, I only get Tylenol every 6-8 hours. Sometimes it helps, but usually only dulls the pain. Now it doesn't even seem like the heating pad helps with the pain. Any suggestions…
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Need Advise
My mom was diagnosed of ovarian cancer , we need help. Doctors in Summerlin hospital keep saying she is dying- we feel like it’s not right and humane. Please help us she is fighting, she is in icu right now. Her CA 125 is 1400 . We only went there to drain her asceitis from then on she got weak. She does her chemo at ucla…
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ovarian cancer symptoms
I apprecciate if someone who had suffered ovarian cancer can tell me what symptoms had experienced. Ginelle
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Brain Metastasis - Radiotherapy
My mom (62) initially diagnosed with ovarian cancer in 2021 and underwent surgery/chemo. Now we found there is a metastasis in brain (posterior fossa) and three in abdomen lymph nodes. We were told prognosis doesn't look good (in months- as brain metastasis recurrence is risky) and starting ten whole brain radiotherapy…
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The mental part of it
hi I am 64 and have been healthy (except fertility issues) up until ovarian cancer diagnosis in December. Had full hysterectomy and lymph removed in January. Started taxol and carbo in February. I just completed 5h treatment and will have my last June 6. I am really beat today. Can barely climb stairs. I hope to feel…
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Recurrence from Ovarian cancer
My mom initially diagnosed with ovarian cancer in 2021 and underwent surgery/chemo. Now we found there is a metastasis in brain and two in abdomen lymph nodes. We were told prognosis doesn't look good (as brain metastasis recurrence is risky) and starting ten radiotherapy sessions. Has anyone gone through similar…
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Rest Of The Journey
I was diagnosed with stage 4 Ovarian cancer about 6 months ago. I was not a candidate for surgery and was found to be chemo refractory/ resistant. Although I know everyone’s journey is unique ( to some degree), I’ve been told my life expectancy is about a year. Is there anyone out there that has gone or “walked- with”…
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Recurrence at Brain or Tuberculoma?
My mom diagnosed with high grade serous IIIc in 2021, had a recurrence with ascites in 2023. Lately she felt dizziness and CT scans revealed lesion in brain - though doctor initially said such recurrence to brain is rare if not impossible he want to study further. On the other hand it could be Tuberculoma. Has anyone faced…
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Ovarian Cancer Scare following previous cervical cancer- curious about misdiagnosis stories
Hello, I won't go to into details but I am on a stand still with a mass that is suspected to be ovarian cancer. I am waiting for biopsy. It took me a long time to get here. I'm scared and i've been looking for an answer. I didn't think this was it. Does anyone care to share their diagnosis story (especially if it includes…
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Does treatment location matter?
Hi, Does it truly matter what institution/center I get my treatments at? I live in a somewhat rural area and many ppl are telling me to go to a more urban institute/center. I read that treatment for ovarian cancer is pretty standard so I am wondering about the value in traveling to a more urban/well known center…
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Ultrasound and CT not able to detect if it's a pedunculated fibroid or a mass.
I (post-menopausal 52 y/o) went in to urgent care about a month ago with stomach pains. Doctor thought it was a ruptured appendix, but sent me for a CT scan to verify. Turns out it was diverticulitis, but on the CT scan they noticed a a complex cyst on my left ovary, however they couldn't be sure if it was a pedunculated…
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CA 125
I was concerned because of my CA 125 went from 7 to 44. It had been over 7000 before 3 rounds of chemo and debunking. After 3 more rounds of chemo it went to 7. Then with the blood work following all of that the marker was going up. The doctor explained that the marker will fluctuate for any number of reasons and stress…
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Radiation treatment choice
My wife has some hot spots on her PET scan. She has to decide between having a few pin point high dose treatments,(which is promised to have less side effects)or to go with a 5 week combination treatment of hitting those spots with high radiation and using low radiation in the surroundings. Has anyone dealt with this?…
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ovarian cancer - overwhelmed
hi, my wife is presumably to have ovarian cancer. big belly, bloating and loss of appetite started about one month ago. Went to primary doc, then did an Ultrasound about 3 weeks ago, it showed 3cm pancreatic tumor and ascites. Scheduled for a CT scan the following week. Then her bloating/cough got much worse so we checked…
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Avastin
Any of you ladies taking Avastin for maintenance therapy??? My Dr wants me to start using it and im scared. Im tired of the IV's.
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Advice for just starting my Ovarian Cancer journey
Hello Everyone, Let me say thanks in advance for any and all advice or comments. It is very kind of you to share your stories and opinions. I may not be able to respond right away. Sorry for such a long post. I just want to get all of my info and questions out there. I will update with new information as I get it. My…
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Doxil & Stomach Cramps - Anyone?
There have been a few different conversations on here about doxil and side effects - most recently the rash which I do have. However my main problem now seems to be with severe stomach cramps. The kind where you curl up in a ball and hold your breath until the pain subsides. Ugh! I have had four rounds of Doxil. I first…
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Anyone Had hair loss with Doxil?
Avastin giving me nose bleeds and headaches.
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Ovarian cancer after breast cancer
Have any of you developed ovarian cancer after you already had breast cancer. And if so did it happen during chemo, after, long after? Thank u and God bless
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He4 and roma index
Hi. Can you please help me. Due longer to misssed periods and pain doctor sent me to blood tests. The marker Ca125 was within limits, and He4 was elevated to 270 pmol. It has been 9 months since then. Ca 125 remains below the limit, He4 increased to 335 pmol, free fluid is present. Ct showed no changes in the abdominal…
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CT showing doubling of size of complex adnexal cyst, additional adnexal; need to get past call cente
The doubling is since 9/23. Radiologist suggests MRI with contrast. Size is 4.2 and 4.0, one with high density. I simply cannot get local upstate NY doc to respond to even get order. If needed I can travel albeit with hardship to Sloan Kettering. After reading prior posts, I believe, if need be, I’d be in better hands. At…
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Mediport
I am having chemo on Monday and I still have steristrips on my port. How do I put on the numbing cream?
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CA125 11.718 U/ml :(
hi I'm from Indonesia. I didn't have any symptoms until last week I felt bloated in my stomach and it was followed by my stomach suddenly getting bigger like a pregnant woman. I immediately went to the doctor and an ultrasound revealed cysts on the right and left ovaries. It is said that cysts are liquid and solid. The…
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Avastin
Hello to my favorite ladies! I haven't updated lately, so thought I would check in. I just had another PET/CT to see if I qualify for avastin. I have been on doxil since September, and then doxil/carbo for 3 cycles, and it is holding the cancer at bay but not putting me into remission. Been doing a lot of processing about…
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Rare reaction to taxol
73 yo recenty diagnosed with peritoneal cancer. Was taking Ozempic and the side effects I was having I believe masked my cancer symptoms. Underwent 1st chemo with carbo and taxol on august 8. 2 days later had some trouble breathing. Went to the er and admitted on 16 liters of oxygen. Rare reaction to taxol. In hospital for…
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Tahini Butter for platelet counts
Okay Ladies, Upon the recommendation of someone on this board I ordered through Amazon.com tahini butter. How much am I to eat of it daily, and how? Like a big dummy I ate a spoonful right from the jar. Thought I was going to get sick, but forced it down :) What's a pleasant way to get this in me daily. LOL! I do love…
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Recurrence
Does anyone know of any one who has only had Ovarian cancer one time? I have met many who have had it more than once. I don't want to scare any one in this group and it has been a long time since I have been here and that is not my intention. I have my next CA125 in 4 weeks and my sister just died of Non-Hodgkins and I am…
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How to live through remission without being afraid all the time?
Hi I am not to sure how to start this of but I guess here goes nothing. First off I am 25 currently and was 21 when I was diagnosed with ovarian cancer on my right ovary. They found a 25 pound tumor in my abdomen attached to the ovary. I am currently in remission but I do carry a gene mutation for being predisposed to…