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Carcinosarcoma Stage 2 & Lynparza
I'm new to CSN, so please forgive me if I have posted this in the wrong place. This is my first post. My name is Nora, I'm 71 years old. In February at my routine mammagram I was diagnosed with Stage 1 IDC Breast Cancer. Praise God it had not spead to lymph nodes. I had a lympectomy. Put on Hormone Replacement Therapy. The…
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Lynparza vs. Zejula
Hi! Has anyone started on Lynparza then changed to Zejula for maintanence therapy? I am having a terrible timewith anemia and low blood counts with Lynparza. We have lowered the dose and I'm much better now but Dr. would like to change me to Zejula 200 Mg. This makes me nervous! Has anyone else done this? My concern is…
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neuropathy
I am on carboplatin/taxol and have been experiencing really bad neuropathy in my hands and feet/legs; especially in my hands.....can't grip things, dropping things, pain and them numbness. As my doctor knows I am not anxious to add to my "draw full of pills" she suggested trying a neuropathy cream for diabetics. Has anyone…
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New Research: for Nancy & others with alleric reaction to carboplatin & other chemo drugs
Successful Outpatient Desensitization of Cancer Patients With Hypersensitivity Reactions to Chemotherapy GR Gottlieb, RE Bordoni, RA Lawhead, BA Feinberg; 2010 Oct 1 ; "Community Oncology" magazine. Abstract Hypersensitivity reactions (HSRs) to chemotherapy agents occur with relatively high frequency with some of the most…
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Waiting for diagnosis and worried
I'm 27 and have been having concerning symptoms for several months that doctors think might be ovarian cancer. I'm waiting for my CA125 results, but I would appreciate hearing if anyone else had similar symptoms that led to their diagnosis. It's been a stressful process getting to the bottom of what's going on, especially…
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Considering a second opinion
Hi, I am looking for general opinions on my ovarian cyst situation and whether I should just let it go or seek a second opinion. I am 58 yrs old and was diagnosed with high grade DCIS (stage 0 breast cancer) in 2016 when I was 53. I had a lumpectomy and radiation. This past March I experienced light post-menopausal…
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Dignosed Perateneal Cancer same as Ovarian Cancer
I am visiting from other boards.As dr. Said it's same as Ovarian Cancer.Several scans ,biopsy.I have had Cancer 6 times.Second time for this one.They are wanting to start me on Trametinib Chemo pill.Has anyone took this before?Its hard to believe a pill can kill Cancer.This May be a silly question but is their anything…
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OncLive Videos
Hello my sisters (and families) of gyn cancer. A lot of good videos regarding OC here - I hope you can pull it up. Very interesting. https://www.onclive.com/view/evolving-concepts-around-systemic-therapy?eKey=ZV9kb2xpbmFyQGF0dC5uZXQ=
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How long til hair loss?
Hi there- typically how long until hair loss begins with carboplatin only? any other side effects that you can share? How long til you typically start to feel side effects? thanks in advance. I'll come back to share my story ASAP, carboplatin starts tomorrow and just trying to get some heads up first hand knowledge!
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Gemzar
Gemzar for ovarian carcinosarcoma?
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bardPort implantable bracelet
Hi everyone, I don't know how long I will have this port, but I wonder if you know how to find a bracelet as a identification I only have a card. Thanks
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Mixed Epithelial Carcinoma - rare?
Hello friends, I have a mixed epithelial carcinoma (stage 1A, already removed) and my surgeon told me it was rather rare but didnt give me any additional information, other than recommending 6 rounds of chemo. He didn't seem particularly concerned since we caught it so early and we left it at that. I had a relative ask me…
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Alt therapies for my mom on hospice
Hi all, It's been awhile since I posted. My mom has metastatic overarian cancer--spread to liver, bowels, with spots on her stomach lining and even spots on lungs. She made a real positive turn-around late last spring and summer and I thought things were going to get better. All of the tumors got smaller or nearly…
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Looking for Suggestions on dealing with Metal Taste in Mouth
Assuming many who have had treatments have suffered from the side effect of the metal taste in the mouth that will not go away. Any suggestions on how you are dealing with that or dealt with this in the past are appreciated!
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Scared of ovarian cancer
Hi everyone. I recently had a mastectomy for breast cancer and 3 months later I had a vaginal ultrasound. My GYN wants me to get a hysterectomy because I have a thyroid that is big. My fear is ovarian cancer. What if Ive waited to long to get a hysterectomy. The only thing they found on my ultrasound was the fibroid.They…
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Taxotere
Any experiences?
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chemo and nose bleeds
I am new to chemo I have had three so far and will be havingmy four next Thursday. My question is does chemo cause nose bleeds. I have not had a nose bleed since I was a child and today when I blew my nose it started a nose bleed it lasted for about four minutes and I just don't know if it was a simple nose bleed or if it…
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Carcinosarcoma recurring
July 2018 ovarian carcinosarcoma, complete radical hysterectomy 68 years old. Carboplatin paclitaxol August for 12 months, then Avastin for 6 months until experienced hallucinations at night Stopped Avastin, catscan, petscan, biopsy of presacral mass , "sarcomas cells". Started carboplatin and Doxil once per month.
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Pain and itching after hair loss??
My hair is almost all gone now after 2 weeks of chemo. now my head hurts and my scalp is very itchy, I am scrathing my head and leaving marks I can't wear my wigs right now because of this wearing my scarves and chemo caps. Does anyone else have this problem too? Also my eyelahes are almost gone and sometimes my eyes feel…
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Avastin only for maintenance?
Hello, I posted this on the uterine board but only received one reply. I was hoping maybe someone here would be able to help. I'm on Avastin only for maintenance after going through chemo (carbo/taxol) 3x. I received my 11th infusion this week and have been doing well. My onc said my situation is a dilemma because the…
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Avastin and joint pain
I have been on avastin since I started chemo I am on treatment 9 now. Since I have gone on just avastin the joint pain has really gotten bad. I can hardly walk now I use a walker and still move very slowly. Is this normal for the avastin. I just feel like a cripple right now. Anne
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Possible Endiometrioma? Doctor seems
Hi I have been in and out of the ER 4 times in the last year. Every single time they checked My gallbladder, appendix, and other organs. They wouldn't find anything and send me off with pain meds. On my last visit they did say the CT showed what looks like a cyst, he recommended to see my OB. I did just that. The OB did an…
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Endometrioma turned malignant?
Does anyone have experience with an old ovarian endometrioma becoming malignant?
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Young ladies dance for BRCA
I want to share these girls dance for those with BRAC mutation. This group consists of 18-6 graders and 4- 7th graders. https://m.youtube.com/watch?v=9EEcNCJ_Nis&feature=youtu.be
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Posting pictures on discussion board and expressions gallery
For a while it was not obvious to me how to insert pictures into posts, so I thought I would share. If you know it already, please disregard. (1) Picture size needs to be under 150 pixels, larger pictures sometimes get re-formatted and rotated. Right click on your picture, edit size to under 150 pixels and save somewhere…
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In Dire Need of Help Transporting My Mother from Florence, SC to Philadelphia, PA
Hello All, In January 2019, my mother was diagnosed with Ovarian Cancer after a large fibroid was surgically removed and biopsied. After surgery, she underwent chemotherapy treatment and radiation on one of the lymph nodes in her groin area. She completed this regiment on May 2nd. In early September 2019, another blood…
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PARP inhibitors
This is my first post even though that I have been following this site for over six years. A quick history. In April of 2012, my wife was diagnosed at age 61 with PPC 3c. Later changed to ovarian. I think that was done for insurance billing purposes, and also it is easier to get the o.k. For certain tests to be done if the…
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10 years since I was diagnosed and doing good
It has been 10 years since I was diagnosed with late stage ovarian cancer. I am doing great and give all the praise to God
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Rising ca 125 2 years after frontline treatment.
My wife is 2 years past the end of her frontline treatment. Ca 125 at diagnosis was 1700. She was supposed to have surgery, but a day before the surgery, she was diagnosed with blood clot in her lung. So they started her on chemo. 3 months later she had surgery. Complete debulking (better than optimal, no visible cancer…
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BRIP1 Gene Mutation
I have just gone through bilateral breast cancer surgery and in the process had the gene mutation testing completed. I discovered that I carry a BRIP1 gene mutation which research says puts me at a high risk for ovarian cancer. I met with a surgeon who said the newest research is putting the BRIP1 gene mutation 3rd in…