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New to the group, ovarian cancer without ovaries
Hi, I was diagnosed in Dec. 2000 with ovarian cancer which was a real shock since I didn't have any ovaries! I had a partial hystorectomy in 1985 and the remaining ovary removed in '93 after my mother died of ovarian cancer. I thought I was home free...nobody bothered to tell me that it was still possible to get ovarian…
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Desperately need resources for newly diagnosed
Hi all, I'm a breast cancer survivor who is needing info for a friend of a friend just diagnosed with Stage III ovarian. I'm waiting for more info on her diagnosis but she's in her mid 40s with kids and has been asked to participate in a clinical trial. I picked up a bunch of brochures at my hospital and mailed to her as…
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first timer
I've read all the messages and now wonder if some symptoms I'm experiencing are chemo related--although oncology says not. Completing four of six treatments of Cytoxan and carboplatin for stage II C ovarian cancer, I'm dealing with joint swelling and facial swelling particularly between my eyes but also skin…
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New to the Group
Hi, I just located this support group. I was diagnosed with ovarian cancer on 1/23/99 and had surgery on 1/25/99. This was five months after my husband was diagnosed with colon cancer, so I was not only a caregiver, but also someone who needed care. I lost my husband in 5/99. I had nine months of chemo, Taxol and…
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Chemo-Radiation Necrosis
Brain metastasis is a rare complication of ovarian cancer with only 67 well documented cases in literature. A multi-institutional study of 4027 ovarian cancer patients over 30 years identified only 32 cases while an autopsy study of ovarian cancer reported an incidence of 0.9%. Leptomeningeal metastasis is also a rare…
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CA 125
Frequently Asked Questions (FAQ) about the CA-125 Test from OVARIAN PLUS INTERNATIONAL Newsletter What is a CA-125 test? CA-125 is a test done on a blood sample drawn in a laboratory. The assay (analysis) assesses the amount of an antibody that recognizes an antigen in tumor cells. What does the test entail? A blood sample…
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I'm new to this place!
Hello everyone. Anyone out there deal with a germ cell tumor? I finished treatment in November 2000. I'm just now starting to deal with all that I've been through. Anyone else find it hard after treatment?
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Introduction
Hi, my name is Elaine. I am new to the network. I was diagnosised with Ovarian and Uterine cancer on July 22nd. I had surgery and chemo. I am doing very well now. I am looking for a few fellow surviors who will understand my fears and worries, who need to share their fears and worries as well. If anyone here needs any…
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hopeful2
Dear Lorna: Thank you for your response. I do not know why my cancer reocurred, I did have a complete hyster. at the age of 29, I was fortunate enough to have one child already, some both my husband and I feel very blessed to have her. I hope your last treatment went well and you are feeling good now. You are in my…
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i am new here!
I hope everyone is doing well today, or when you read this message. I am a 37 year old with recurrent ovc, reocurred in December. Currently I am taking topo(sp?), only one treatment so far. My dr. switched me from tax/carbo as it was not bringing down my CA125 as he was looking for. Hopefully this will work. Beat once, can…
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Documentary on Overian Cancer
My name is Kerry and I am a graduate student from Boston currently working on a degree in Philanthropy and Media. For my thesis project, I am working on a documentary profiling a newly formed ovarian cancer support group here in Boston nicknamed OCEAN. The goals of OCEAN are: to provide support for families and survivors,…
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On-line cancer support study
Hi- My name is Kevin Wright, and I am a researcher at the University of Memphis who is conducting a survey about on-line support groups for cancer patients and caregivers. At this time, relatively little is known about on-line support, so your input would be extremely helpful. If you would like to participate in the…
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looking for guidance to help
I am trying to support a caregiver, that at this point feels as though she is watching her mother die. Gail's surgery took place on June 22, 2000. The doctor sent her home still bleeding from the complete hysterectomy. The bleeding finally slowed with much bed rest and it started to smell very bad. We advised Jennifer to…