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NEED HELP RE CA 125 Blood Test
on Dec 2021, my primary ran routine bloodwork and included a CA 125. My mom, now 88, had OC when she was 75 so Dr decided to run test. It came back elevated at 83. I went to my GYN and he did a pelvic exam and vaginal ultrasound and advised me I had 2 small cysts that didn’t concern him but he referred me to an oncologist…
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Newly diagnosed
Hi, I have recently been diagnosed with Stage 1A Ovarian clear cell carcinoma. I've had a total hysterectomy due to a fast growing cyst, which is how it was found. Does anyone else have this type? I'm 3 weeks post-hysterectomy and have my appointment on the 15th to schedule my chemotherapy.
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BEP chemotherapy
Has anyone else experienced this type of chemo and if so any tips or advice on things to be prepared for? This is all extremely new and scary. Thank you
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Newly diagnosed Immature Teratoma
Hi All, i am posting on here in hopes for some hope and answers from anyone else going through this horrible experience. I am a 25 year old women and was recently diagnosed with Stage 1A immature teratoma grade 3 (high grade) germ cell cancer after having a 22cm tumor removed, along with my right ovary and Fallopian tube…
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confused...
Hello, my mom was diagnosed in September with metastatic cancer -- ovarian to peritoneal. She was not a candidate for surgery and had one round of chemo, following that the oncologist advised that given her weakened state the option to pursue was palliative management, therefore, no further chemo treatments following the…
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book: "memoir of a debulked woman " by Susan Gruber
I'm tryting to read this - my brother sent it to me - I'm finding her very maudulin & negative - just wondering if anyone haas read it & opinions? tks Susan P from Alberta Canada & TX & WY
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What is the normal treatment for Stage 1 Ovarian Cancer?
Hello....my sister had a huge mass removed from her stomach in October 2019 and it turned out to be Stage 1 ovarian cancer. They got it all out and no other major organs seemed affected. Long story short...They started her on chemo treatments (December 2, 2019) as a preventative measure without getting a PET scan. Her one…
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Treating CA-125 versus Pet Scan
Hello, when I moved to WI , I started seeing an oncologist not specific to ovarian cancer in 2018. There isn't an OB/GYN oncologist in my area. I was diagnosed in Dec 2011 with stage 3c fallopian tube cancer and have had many recurrences since then. Every time I do treatment, the pet scan has showed activity. Now, my…
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Scary Sonogram Result
Hi, I am new on here and hoping to find out more about Endometrial Cancer, testing, testing results, questions I should ask doctor, etc, etc. I have spent hours and days researching online and all I can do is cry, Im scared of dying and scared about the pain the treatments will bring. I spotted a few times before COVID, I…
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Preventative surgery
Hi! I am 37 years old. I have not been diagnosed with cancer, but do have lynch syndrome, which puts me at a higher risk for ovarian (colon, uterine, and brain) cancer. As a result I get a colonoscopy every year, and a uterine biopsy. I also have my CA125 levels checked annually and get an ultrasound of my uterus annually.…
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Elevated Tumor Markers and 10cm Cyst-- terrified
Hi I'm 30 and in an ultrasound recently found a 10cm cyst. Gyno immediately referred me to MRI, but then I found I have elevated tumor markers. I'm not sure which, but it was more than one. Everyone keeps telling me I will be ok, but I don't think multiple tumor markers can lie. I am really scared. I go for an MRI monday.…
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Recurrent Ovarian Cancer
Good evening, I am new to CSN and my mother just started chemo again for a reoccurrence of her ovarian ca. I am looking for suggestions on how to best help her through her therapy since this time she seems to be having a very difficult time. 2 years ago she had Carbo/Taxil combination and she did very well throughout the…
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Nightshades and Neuropathy
Hi all, Currently NED and want to stay that way so I am focusing on healthy eating. I am curious if anyone has done any reading about the pros and cons of the nightshade vegitables and their interaction with cancer cells and the digestive system. I am also having issues with neuropathy in my right foot. No pain just…
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Stage 3 c ovarian cancer with mass
Hello all i am a newbie to this site. In late January 2021 I was diagnosed with ovarian 3c cancer currently receiving 3 months of chemo entering my 9th week long road ahead once chemo complete then they will take out my girlie bits then another 3 months of chemo yuk my cancer was very aggressive love to hear your stories…
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Support and prayers.
I'm new to this site last year just as the pandemic started I thought I was having kidney stone issues again. Come to find out that wasn't the case. After tests and imaging it was determined that the pains I was having was due to the fact I had a 10 plus cm cyst on my ovary. So surgery was done. Everything was removed…
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Ok so we got the dreaded news… inoperable tumors
My wife and I got the results from a recent CT. There are two golf ball sized tumors in her mesentery one by her spleen and the other is by her stomach exit which explains her problems as of late. These were not there three months ago. The Dr said they are inoperable and not curable at this point but they are going to try…
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Chemo Fog and Memory Issues
Hi, I'm new to board, but thought there would be someone that could relate or offer advice. I am currently going through chemo again for Ovarian cancer. I have had chemo through various bouts with cancer over the past 11 years. This time I am 5 rounds in on a Carboplatin/Doxcil cocktail. I had chemo fog before but noticed…
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After 3 years, a recurrence.
Hi everyone. A quick about me and my story. I’m facing a recurrence and it was so out of the blue, I was asymptomatic and thought everything was going great after my original diagnosis in 2014. In 2014 after not having a period for over 2 years, I started spotting and went to my GP. A CA-125 results were 126. An ultrasound…
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Difficulty eating and hydrating
I am a 76 y/o newly diagnosed with ovarian cancer. I will have chemo, then surgery, but haven't started treatment yet (still need to get a PET scan and a port). My tumor (and whatever has spread) presses on (crowds) everything in my abdomen. I feel full almost all the time. I eat very little and have great difficulty…
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Sugar
https://www.mskcc.org/msk-news/spring-2021/sweet-revenge-taking-advantage-cancer-cells-hunger-sugar-and-other-nutrients?utm_campaign=041521SweetRevenge&utm_content=Research&utm_medium=Organic&utm_source=InstagramStory&__FB_PRIVATE_TRACKING__={"loggedout_browser_id":"30890f52d125a3b4d4a3d998d4664aade8142ead"} Sweet Revenge:…
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Zejula
I have a family member who claims to have stage 3 ovarian cancer but yet she says her doctors aren't doing surgery or chemo. That she is going to be on Zejula for 3 months for treatment. I really don't want to call her a liar but does this sound reasonable? I surely thought surgery and chemo would be the best treatment for…
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Roll Call Anyone?
Hi All, We don't have much activity on this board these days, and it appears that over half of the members who do post are visitors from the uterine board. Who do we have here, who received an ovarian cancer diagnosis? I was diagnosed 2009 stage 3c, very aggressive. Suboptimal debulking. NED since 2010.
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Gabapenten neurontinen to Lyrica has anyone made this change?
just got my Lyrica Rx today I had a breast can cer patient tell me is worked wonderfully for her neuopathy doc told me just to stop gabapenten & start lyrica - I haven't talked to Pharmacist yet will try tomorrow Doc said that's what the hosp pharm told him I just am one that hjas to be sure & I cannot trust my stroke…
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Patchy hair regrowth after finishing chemo
I finished my last chemo treatment on May 28th and my hair is growing in very slowly! It is growing in patches all over my head. I have bald spots in various places on about 50% of my head. Mainly top sides and lower back. Has anyone else experienced this? I would love to start going withoout my wig or scarves but I look…
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Covid Vaccine or start Chemo?
I am supposed to start Chemo this Friday, but also just received a Covid Vaccine invite for same day (pushed up from next Tues). does anyone know if best to get the Covid Vaccine (I'm at high risk with very diminished lung capacity and past history of lung cancer) or to go ahead with first chemo treatment then get Covid…
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Avastin and Avastin/Doxil Side Effects
Hi Everyone, I am contemplating either Avastin alone or Avastin/Doxil as my next step along this journey. The published side effect look awful. I am looking for first hand information from you ladies that you might be willing to share on how well tolerated these drugs are......thanks.
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How i can Keep an eye on my Mother Ovarian Cancer Treatment
Dear All, Mother was diagnosed by Ovarian Cancer that has been spread outside the instestines as well. Anyhow Laprotomy taken place in which sugeon took out maximum cancer out of her and suggested to go for Chemotherapy to further melt down the cancer inside her. We then decide to go for treatement: Killing Cancer Cells…
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CA 125 Levels after Removal of Tumor (XELODA)
My mother suffered from Ovarian CA 2 Years back. Since two years we were treating it and two times she had surgery to remove the cancer on the second attempt we are able to remove the tumor and after the removal for 10 to 12 month CA 125 was normal. But after some time it starts to increase and then Doctor prescribed Tab…
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EOL
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Happy Valintines Day to you all
Hope you all have a very nice day. Prayers to you all Dave & Tina