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No bloating and pain?
Hello. I apologize for posting questions - I'm sure this is asked a lot. I've spent the last 2 days reading through posts here and I'm finding that most had symptoms of bloating and pain prior to diagnosis. I'm desperate for help and I've been passed from doctor to doctor. I'm going to a second GI doctor this week. They…
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New here
It started out with a routine screening for lung cancer since I'm a long time smoker and was feeling a lot of fatigue. They decided to do a CT/PET scan and it turned out my left ovary was highly suspicious. Ultrasound shows an enlarged ovary with a 6x6x5 cm solid tumor surrounded by a larger fluid sac. It's highly likely…
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Abdominal pain 3 days into first chemo
Has anyone else had stabbing pains in bladder area, urethra, vagina and general abdominal cramping after taking these drugs: Taxol, Carboplaten, Dexamethasone, Neulasta and home-administed Zofran (Ondansetron)? Something in this cocktail has cause me to be in a lot of pain for over 24 hours. Doctor consulted, and he thinks…
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Iron is a cancer promotor?
I know the subject of iron supplements has come up on the discussion board before. I think it is worth having a discussion with the oncologist about iron supplementation--especially, once anemia has resolved. I found the following at this web site: http://www.howcurecancer.com/…
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Long Term Survivors Maintenance
It’s wonderful to hear such wonderful stories of long term Survivors hoping you can help I had a successful debunking April 2021 Stage 3B grade 1 followed by 6 Carbo/Taxol CA125 before Surgery was 4200 after last chemo 6 this week at 3 month follow up it was 7. Also saw Gyno/Onc CT scan clear but he ranted to put me on an…
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HALLWANG clinic in Germany
Please I am searching desperately to find anyone who treated in this clinic and have any success. I am a 12 years cancer survivor with 142 rounds of chemo and 6th recurrence. Looking if I can combine my new treatment with vaccines, as there are not available to me here at home.
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Providing some hope
Hi everyone My name is Alicia. I am 32 years old. Mid May I began with a mild pain on my back and stomach it slowly starting getting worse to the point where my stomach was huge and with a lot a pain. My pain was so horrible that I asked the Lord to take me out of this world. I would cry every night due to the pain and the…
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Ovarian cancer staging
My mom was diagnosed with CA endometrium stage IIIc and recently had staging laprotomy with radical hysterectomy, omenoctomy and node dissections. In the following biopsy results the stage is marked as T1bN2aM1. Could some one clarify is it still stage 3?, asking this because some have said M1 always means stage 4?
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NEED HELP RE CA 125 Blood Test
on Dec 2021, my primary ran routine bloodwork and included a CA 125. My mom, now 88, had OC when she was 75 so Dr decided to run test. It came back elevated at 83. I went to my GYN and he did a pelvic exam and vaginal ultrasound and advised me I had 2 small cysts that didn’t concern him but he referred me to an oncologist…
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Newly diagnosed
Hi, I have recently been diagnosed with Stage 1A Ovarian clear cell carcinoma. I've had a total hysterectomy due to a fast growing cyst, which is how it was found. Does anyone else have this type? I'm 3 weeks post-hysterectomy and have my appointment on the 15th to schedule my chemotherapy.
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BEP chemotherapy
Has anyone else experienced this type of chemo and if so any tips or advice on things to be prepared for? This is all extremely new and scary. Thank you
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Newly diagnosed Immature Teratoma
Hi All, i am posting on here in hopes for some hope and answers from anyone else going through this horrible experience. I am a 25 year old women and was recently diagnosed with Stage 1A immature teratoma grade 3 (high grade) germ cell cancer after having a 22cm tumor removed, along with my right ovary and Fallopian tube…
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confused...
Hello, my mom was diagnosed in September with metastatic cancer -- ovarian to peritoneal. She was not a candidate for surgery and had one round of chemo, following that the oncologist advised that given her weakened state the option to pursue was palliative management, therefore, no further chemo treatments following the…
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book: "memoir of a debulked woman " by Susan Gruber
I'm tryting to read this - my brother sent it to me - I'm finding her very maudulin & negative - just wondering if anyone haas read it & opinions? tks Susan P from Alberta Canada & TX & WY
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What is the normal treatment for Stage 1 Ovarian Cancer?
Hello....my sister had a huge mass removed from her stomach in October 2019 and it turned out to be Stage 1 ovarian cancer. They got it all out and no other major organs seemed affected. Long story short...They started her on chemo treatments (December 2, 2019) as a preventative measure without getting a PET scan. Her one…
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Treating CA-125 versus Pet Scan
Hello, when I moved to WI , I started seeing an oncologist not specific to ovarian cancer in 2018. There isn't an OB/GYN oncologist in my area. I was diagnosed in Dec 2011 with stage 3c fallopian tube cancer and have had many recurrences since then. Every time I do treatment, the pet scan has showed activity. Now, my…
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Scary Sonogram Result
Hi, I am new on here and hoping to find out more about Endometrial Cancer, testing, testing results, questions I should ask doctor, etc, etc. I have spent hours and days researching online and all I can do is cry, Im scared of dying and scared about the pain the treatments will bring. I spotted a few times before COVID, I…
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Preventative surgery
Hi! I am 37 years old. I have not been diagnosed with cancer, but do have lynch syndrome, which puts me at a higher risk for ovarian (colon, uterine, and brain) cancer. As a result I get a colonoscopy every year, and a uterine biopsy. I also have my CA125 levels checked annually and get an ultrasound of my uterus annually.…
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Elevated Tumor Markers and 10cm Cyst-- terrified
Hi I'm 30 and in an ultrasound recently found a 10cm cyst. Gyno immediately referred me to MRI, but then I found I have elevated tumor markers. I'm not sure which, but it was more than one. Everyone keeps telling me I will be ok, but I don't think multiple tumor markers can lie. I am really scared. I go for an MRI monday.…
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Recurrent Ovarian Cancer
Good evening, I am new to CSN and my mother just started chemo again for a reoccurrence of her ovarian ca. I am looking for suggestions on how to best help her through her therapy since this time she seems to be having a very difficult time. 2 years ago she had Carbo/Taxil combination and she did very well throughout the…
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Nightshades and Neuropathy
Hi all, Currently NED and want to stay that way so I am focusing on healthy eating. I am curious if anyone has done any reading about the pros and cons of the nightshade vegitables and their interaction with cancer cells and the digestive system. I am also having issues with neuropathy in my right foot. No pain just…
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Stage 3 c ovarian cancer with mass
Hello all i am a newbie to this site. In late January 2021 I was diagnosed with ovarian 3c cancer currently receiving 3 months of chemo entering my 9th week long road ahead once chemo complete then they will take out my girlie bits then another 3 months of chemo yuk my cancer was very aggressive love to hear your stories…
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Support and prayers.
I'm new to this site last year just as the pandemic started I thought I was having kidney stone issues again. Come to find out that wasn't the case. After tests and imaging it was determined that the pains I was having was due to the fact I had a 10 plus cm cyst on my ovary. So surgery was done. Everything was removed…
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Ok so we got the dreaded news… inoperable tumors
My wife and I got the results from a recent CT. There are two golf ball sized tumors in her mesentery one by her spleen and the other is by her stomach exit which explains her problems as of late. These were not there three months ago. The Dr said they are inoperable and not curable at this point but they are going to try…
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Chemo Fog and Memory Issues
Hi, I'm new to board, but thought there would be someone that could relate or offer advice. I am currently going through chemo again for Ovarian cancer. I have had chemo through various bouts with cancer over the past 11 years. This time I am 5 rounds in on a Carboplatin/Doxcil cocktail. I had chemo fog before but noticed…
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After 3 years, a recurrence.
Hi everyone. A quick about me and my story. I’m facing a recurrence and it was so out of the blue, I was asymptomatic and thought everything was going great after my original diagnosis in 2014. In 2014 after not having a period for over 2 years, I started spotting and went to my GP. A CA-125 results were 126. An ultrasound…
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Difficulty eating and hydrating
I am a 76 y/o newly diagnosed with ovarian cancer. I will have chemo, then surgery, but haven't started treatment yet (still need to get a PET scan and a port). My tumor (and whatever has spread) presses on (crowds) everything in my abdomen. I feel full almost all the time. I eat very little and have great difficulty…
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Sugar
https://www.mskcc.org/msk-news/spring-2021/sweet-revenge-taking-advantage-cancer-cells-hunger-sugar-and-other-nutrients?utm_campaign=041521SweetRevenge&utm_content=Research&utm_medium=Organic&utm_source=InstagramStory&__FB_PRIVATE_TRACKING__={"loggedout_browser_id":"30890f52d125a3b4d4a3d998d4664aade8142ead"} Sweet Revenge:…
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Zejula
I have a family member who claims to have stage 3 ovarian cancer but yet she says her doctors aren't doing surgery or chemo. That she is going to be on Zejula for 3 months for treatment. I really don't want to call her a liar but does this sound reasonable? I surely thought surgery and chemo would be the best treatment for…
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Roll Call Anyone?
Hi All, We don't have much activity on this board these days, and it appears that over half of the members who do post are visitors from the uterine board. Who do we have here, who received an ovarian cancer diagnosis? I was diagnosed 2009 stage 3c, very aggressive. Suboptimal debulking. NED since 2010.