-
Sulforaphane
Hi, is anybody or has anybody taken sulforaphane? If so what is your experience with this please?
-
Hand cramps and tremors
Hello all. Does anyone have any recommendations for managing hand cramps and tremors? My mother suffers from these side effects and the meds she’s been given create side effects of their own of course, which she does not need. Has anyone had any luck with any natural remedies?
-
MRI insurance denial
Not sure how to manage this- I waited for an MRI for 7 weeks and now at the last minute the insurance is saying they won’t pay for it- they need a peer to peer. They waited till the last hour to contact me- and now we have only 48 hours to get a peer to peer- it took me a long time to get a doctor to listen meanwhile my…
-
Tahini
Hi there. I just want to share with you all a snapshot of an article I came across. Because of my low platelets, I always research what I eat to make sure that I’m not hurting myself. I just got done with 2 bags of platelets transfused and still working on my diet to further boost the level. Attaching the snap shot for…
-
Blood work for Ovarian cancer.
I had low sodium of 28 in my blood work. The normal is 37. Based on the other blood work the doctor told me I was drinking to much water but low sodium is a sign of dehydration. Also they tell you to drink water to get the chemicals out of our system. My bun/creatinine ratio was very high. 10 points above the normal range.…
-
Concerned for my daughter. Ovarian cysts/cancer?
Hello, I’m writing out of concern for my daughter (22yrs). I apologize if this ends up being long. Mydaughter has always suffered from “difficult” periods. I wouldn’t call them out of the ordinary but she was always dealing with heavier flows and a lot of bad cramps right before starting and during the first couple days.…
-
Ketogenic Diet for cancer
Is there anyone that uses a ketogenic diet for cancer treatment along with chemotherapy to lessen the side effects? I'm 66, was diagnosed with stage III serous ovavian cancer. I surgery to remove the cysts, ovaries and fallopian tubes removed. I had already had a hysterectomy. I had a port for chemotherapy installed…
-
Hair return after chemo
I was diagnosed with Stage 3C ovarian cancer last February (while in the USA) when a tumor perforated my colon during a colonoscopy. Luckily I responded extremely well to Taxol/Carboplatin. My CA125 went from 1587 to 41 after 3 rounds, and I was able to have the debulking surgery at that time. (BEST of all the emergency…
-
My Sex Drive and Period, Wishing For Their Return.
Hello Everyone, I am new to this site so please forgive me if this question has been asked many times but I need to ask it. I am a 35 year old woman. Last year September 2021 I had surgery for stage three ovarian cancer, a rare form of it called a teratoma. Almost a year later after chemo and another surgery, I am very…
-
Oh how I wish for my life back...
Hello all, I'm new here. I was diagnosed with ovarian cancer stage 1 back in May of 2021. I had surgery in early June 2021 (full hysterectomy, etc), then a breast biopsy (turned out okay) and a port put in. I started 6 rounds of chemo with the carboplatin and taxol in July 2021, and I had my last round Nov 17, 2021. I am…
-
Initial scans
I’ve posted here before so forgive me for posting again if this seems like a repeat. Has anyone ever gone to an outside scanning service because they didn’t have time for all the hoops you have to jump to get someone to take your symptoms seriously. I just can’t do this anymore… I’m beginning to feel like I’m making this…
-
Power Port
Ok, this is a wimpy question considering everything many of you have been through and my own surgery but..... My power port was installed yesterday...is it supposed to feel like I've been punched in the shoulder and neck by Superman? OY! Leesa
-
How to find the best doctor/surgeon
I am thinking positive, and hoping my mother will be ready for her debulking surgery in a few months. I keep reading how important the skills of the surgeon are for this operation. She has chosen a surgeon based on nurses recommending her because she is 'so nice'. I want to make sure she is the best one for the job though.…
-
Questions Before Surgery
I was diagnosed with Stage 3 Ovarian cancer. I have had 3 chemo treatments. The plan is to have surgery next and to follow that with 3 more chemo treatments. I have a pre-surgery appointment next week. What questions should I ask?
-
Should I be Worried?
I had breast cancer 8 years ago....went through sugery, chemo and radiation. I have not had a recurrence. I was 48 at the time, and went into menopause while taking treatment, which became permanent. For about the last month or so, I've been having a lot of abdominal cramping. I feel like I'm going to get my period any…
-
Chemo Rash
I’m 8 days after my first chemo treatment and this morning I woke to a terrible rash covering my entire body. I thought I had mentally prepared myself for most things that could happen, but I wasn’t prepared for this. I’m thankful so far it’s not on my face. I live close to my Dr.’s office so I drove there this morning.…
-
Beet juice and nitric oxide
Does anyone knows if this is good for low platelets? My platelets went down yesterday morning to 10 and had Mediterranean, lots of hummus with lots of tahini. Last night, before the transfusion, platelets went up to 65. I had 2 bags of platelets transfused. Expecting this morning that platelets will be up because of the…
-
Symptoms, Scared, MRI
I have sharp, stabbing, take me down to the ground pain that started 2 months ago in my left hip. I have Lupus SLE and told my Rheumatologist about the pain. She ordered an xray. The pain got so bad, I went to Urgent Care. They took an xray, it was normal. Doctor thought it was Bursitis. My Rheum and PCP disagreed. Got an…
-
Ovarian Cancer Survivor Depression
-
Dealing with abdomen pain with advance cancer
Hey all, Hoping for some tips on how to relieve pain created by the cancer itself and from ascites. I was diagnosed in 2018 with ovarian stage 3A cancer and have since gone through 4 rounds of chemo, or 39 treatments of chemo. I am currently in a clinical trial just about to start my 3rd cycle. The cancer has spread to…
-
How you felt after 6th round of chemo
My sister wants to visit. Debating on July ( 3rd round of chemo) or October ( a month after last chemo). With gas prices so high can't decide when it would be better. I'm feeling fine so far. More good then bad days. So for those who had all 6 doses ( I know everyone is different, and things can change) but how generally…
-
Fibromyalgia and chemotherapy
I just completed a Gemzar and taxotere chemotherapy regimen with Neulasta. The pain with this chemo has been almost unbearable with no explanation from my doctor. I hurt from my head literally to my toes. (Teeth, shoulders, ribs, pelvis, elbows, knees, etc.) The past 6 weeks I have not been able to walk. I feel like my…
-
Newly Diagnosed and Searching for tips
Hi everyone I guess I got a pass to join the club. My name is Debbiee and I’m searching for women who are going thru or have gone thru Ovarian Cancer. I found this site listed in the back of a book I was reading and thought I’d give it a try. I’m 61 and was diagnosed with OCCC back in April. I’ve had a full hysterectomy,…
-
Need help poss bowel obstruction
we don’t know what to do, since my mom is in hospice care they told us she can’t go to the hospital. A little background my mom was diagnosed with stage 4 ovarian cancer that has metastasized to her abdominal wall. She ended up with a bowel obstruction and they placed a balloon G tube to drain her stomach contents when she…
-
Stage 4 Ovc
I was told 6 treatments, but it wasn't set in stone, of course. I will have my 6th one next month, but now my doctor at Carti is referring me to MD Anderson, which has started all kinds of physical and mental thoughts in my mind. Just thought I would reach out to others in my situation...well, my daughter suggested it.
-
1st chemo treatment, allergic reaction
BeagleKitty Today • 8:13 AM (HGSOC) post debunking. First of 6 treatments. Started 1st Chemo Taxol. Nurse said she would start it for 15min at level one. If no problems 15 mins at level 2 and so on every 15 mins. Level 1 was fine. Level 2 started at first it was fine the at six minute mark the right side of my face started…
-
Chemotherapy without hair loss
Hello everyone! Unfortunately, I have to go through chemotherapy and surgery again. My second opinion surgeon gave me the name of chemotherapy drugs that do not lead to hair loss. Unfortunately, I cannot find these names. Is there anyone here who has been prescribed chemotherapy without hair loss? Thank you for the answer!
-
Ca125 increased significantly after having Bronchitis
Has anyone had a Similar Experience after having Bronchitis or other infections making their CA125 level jump up so much ?.. went from 6,000 to 9,000 ?..
-
Advice on swollen lymph nodes?
Boring question here, not terribly troublesome but annoying thing after my surgery that I’m curious about…. I had my debunking surgery, 21 lymph nodes removed (paralytic and pelvic, thankfully all benign). Now that I’m healing (3 weeks out) my upper thighs/groin swell and so do my armpits… clothes get so painful that I’m…
-
Social Security Disabilty eligibility
I am the wage earner/caregiver in my household and I was recently diagnosed with Ovarian Cancer Stage IV on 5/13/16, my chemo started 6/2/16. I applied for Social Security Disability online on 5/31 as a precautionary measure in case I can't work in the near futire. After starting the online application I decided to finish…