Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Colorectal Cancer

Suggested break during radiotherapy
My dad is currently having radiation for pelvic recurrence and sacral mets. He still have final 5 radiations left of his 5 weeks treatment but he been having continuous cramps from today morning so doc advised to take a break for 2-3 days because they say these cramps are because of radiation. The side effects of…
New to CSN and a little lost
I’m new here and I’m not sure if this is where I should introduce myself (I did look for a category for newcomers but didn’t see one) but I also don’t want to be thought of as a “lurker” so here goes – short story: colon cancer (tumor removed in 2019 along with resectioning) that metastasized in the liver after a few…
Lower Anterior Resection Syndrome
I just found out that the interesting bowel habits I have had since my surgery back in 2012, has a name - Lower Anterior Resection Syndrome. Why did my Oncologist or Radiation Oncologist not tell me that before? It has always just been a side effect, and now I have a name for it. Somehow, it makes me feel good, to be able…
LARS Question/resection with no ileostomy
Looking for some info on what to expect post-op as related to the possibility of dealing with LARS, I am 3 weeks post op, was able to lobby for a laparoscopy, and no ileostomy. That went well and so far so good. I was T3b N1M0, tumor higher in the rectum. Had FOLFOX and radiation pre-surgery. Was told to expect some bowel…
Anyone done an Ion Cleanse?
What's your opinion? Better to let the chemo linger in ya or get it out quickly and completely?
Bad reaction to my last Oxiplatin infusion
I knew beforehand that the last infusion, yesterday, wasn't going to be easy. Had no idea how bad:0( Was only able to take a third of the bag before a few hives, severe lower abdominal pain, and profusely sweating. Took about an hour and a lot of Benadryl and passing out for 30 minutes before I woke and felt better. Hope…
Neuroendocrine tumor
Has anyone had a neuroendocrine tumor of the rectum, anus, or colon? I was diagnosed with rectal cancer, a neuroendocrine type, in 2002 at age 32, and I am told it is a rare type of tumor to occur in the rectal/anal area. I had chemo, a colostomy, radiation in 2002-early 2003, then a recurrence this past Sept. 2003 in my…
y90 is a complete load of crap
Yes that's true, the treatment stinks and it made me even worse. The tumor they went after increased in size and I even have some new tumors. I'm done with the fake promises of wonder drugs. The name of the game is money and they are raking it in.
Devastating update
Hello All, I don't write much here but periodically update here with all our optimistic approaches but now it feels like we may have reached close to the end. Here is my last post where we hoped he get liver surgery and the doctor was super optimistic that he can do it…
Possible recurrence of colon cancer
Hi I was diagnosed at 43 with stage 3 colon cancer back in 2018. All labs and CT scans and colonoscopies were NED. I have had my routine CT scan and they informed me of a small cystic adnexal mass 3.9 cm. I’m so scared! I can’t stop the impending doom that I’m about to walk through. I can’t eat, sleep function. I was…
A big fat update
It's been a while... So, I died. Yep, you read that right. I’ll explain. For those who don’t know, you can read about my previous experiences in my bio (I hope most of it remains there since the site update). In short, I have Metastatic Colon Cancer with spread to the liver. I was “fortunate” to have relatively few mets…
Our friend, abrub, has passed away
I have just found out, that our forum friend, abrub, has passed away, after many, many years of fighting Appendix Cancer. She was doing so well, nine year NED, I believe, and the Cancer returned. She will be truly missed. A great lady! Tru
Pelvic Recurrence with Sacral Mets
My Dad was diagnosed with Adenocarcinoma Rectum in 2017. For which he got LAR and ileostomy bag and then also got 6 months of FOLFOX. But we never had radiation. Then in 2017, PET CT came clear. In Dec 2018, PET CT found some pelvic recurrence with some SUV value but I don't know we also got biopsy done which came out OK…
Treatment ‘options’
I’m just curious if there are others out there who said no to adjuvant Chemo and how you feel about it now. I’m roughly 5 1/2 months post ileostomy take down and 7 1/2 since the LAR. And I’m kinda plagued by the ‘did I make the right decision?’ I’ve apparently got a new chronic anxiety now, thanks to cancer. I was in no…
Seeking information on Colorectal cancer and CDiff infection regarding surgery
My husband's pathology report just confirmed colon cancer. He was also battling CDiff infection, lab test recently came back, he is negative for CDiff after treating. My husband has consult with surgeon to discuss surgery and treatment. I am needing guidance in this area.
New warrior
I went in during the beginning of the covid pandemic thinking at age 44 i had my first hemorrhoid. Turns out it was stage 4 rectal cancer. Chemo, radiation, and surgery has me 8 months cancer free. 90% of my rectum was removed. Illeostomy for healing and now reconnected. Having a hard time back at work with frequent BM.…
Switch from Folfox to Folfiri
My mother just had her pre-op consult for the HAI pump placement, primary tumor and lymph node resection. They found that the lesions in the liver had also grown in size and number just since she paused treatment to prepare for the surgery(1 month). Now HAI is off the table as is the rest of the surgery. Another 6 months…
Sending love and light
Just sending hugs to everyone here.
So about intimacy
How long do you usually wait after being disconnected from the chemotherapy before you feel safe about sharing kisses or being close? Thank you 💖
Anybody here with Mets to both lungs and peritoneum?
Hello everybody! Just wanted to know if there is anybody here with stage 4 colon cancer with Mets to peritoneum and lungs? What treatment options are there?
Three weeks since scans - no more tumor!
In July of 2021, I was diagnosed with Stage II colorectal cancer. I was 48. Prior to my diagnosis, I was exercising daily and eating a very “clean” diet (no grains which was bad!). The doctors were talking about surgery which was either reconstructive or a bag. I was terrified! The oncologist said they would have a better…
Pain
Hello I have been diagnosed with stage 3B colorectal cancer I’m on my 5th cycle of chemo will be finished April 7 then have a 4 week break. Then will have radiation and chemo pills 5 days a a week for 6 weeks then another 4 week break then the want to remove the tumor by surgery they’re trying to get it to shrink first!. I…
Bariatric surgery
Has anyone had gastric bypass surgery and after gotten colorectal cancer? I would like to know if any correlation? Thanks
Importance of vitamin D3+K2
It's Official: Vitamin D Reduces the Incidence of Autoimmunity: And a brief review of the growing body of knowledge of vitamin D (orthomolecular.org)
Recurring as something different.
My dad was diagnosed with colorectal cancer in 2017. During that we were suggested a surgery to remove the surgery by the biggest hospital in my country and my dad had to carry an ileostomy bag for couple months and the surgery also gave him some infections which lasted for months. Then doctor suggested him folfox which we…
Rectal Cancer, Stage 2, almost 41 yrs old...hating the chemo!
Just saying hello. Hating the Oxiplatin infusions...they are creating serious panic! Xeloda pills effects aren't as bad, but worry about long term damage. Am I a big baby or is chemo painful as hell to anyone else???
Irinotecan
Anybody had this. My husband will be starting Irinotecan with Xeloda. Two surgies, radiation, Chemo and still my husband is on the CEA Rollercoaster
Is it true or not that we are drawing near to the end?
I'm new to this yet I want somebody to either console me that things could improve or now is the right time to plan for losing my better half. My significant other was analyzed on March 5, 2018 with stage 3 rectal disease and he did radiatin and chemo before medical procedure to eliminate rectal cancer and lymph hubs.…
cea jump
I was diagnosed with stage 4 colon cancer with 15 metastases in my liver. The oncologist didn't give me much of a chance. During the course of my chemotherapy, my mets disappeared from mri scans and my cea continued to drop 24.0>21.6>11.1>10.1>8.5>5.7>2.7>1.8. It appeared my cancer was in remission though the oncologist…
Need some guidance
Hello I am new to this board. I have been looking for support groups in my city but due to covid they are limited or non operational at this time. A nurse referred me to ACS. My boyfriend was recently diagnosed with colon cancer. He told me they had caught it at early stages this was in January when he went in to the…

Colorectal Cancer

Discussion List

Discussion Boards