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Colorectal Cancer

hair loss with folfiri (vs folfox)
Interested in hearing people's experiences regarding hair loss with FOLFIRI, especially as compared with FOLFOX. I had hair thinning with FOLFOX, but not total hair loss. I understand FOLFIRI causes more serious hair loss. Did anyone just have hair thinning with this? I know, I have more important things to think about…
Hi, I’m new
I’m Dove, My husband has had a tumor and lymph nodes removed (stage 3) He’s in chemo now. I have no one to talk to, even my husband has shut me out. I feel like I’m already losing him or like he’s already leaving me. I hurt so bad. I know it’s not about me, but damn how do I get through this?
ileostomy or not?
I had surgery 4 wks ago, half of my rectum removed and part of my colon. I had no ileostomy. A friend who will be having the same surgery in 2 wks told me their doctor said they have never heard of anyone having this type of surgery without a ileostomy. Is there anyone who has been in my similar situation without having a…
C-Diff
I had colon cancer in my Sigmoid colon in 2020 I didn't have any treatments they did surgery on me and took out 1 and 1/2 feet of my Sigmoid colon. Well, I have yet to have 1 full 30 day month since my surgery on 11/2/2020 that I am not having to stay close to the restroom due to frequent trips throughout the day. And just…
10 years out, really life????
Hi its Helen for those who know me from 2012/13. The boards give me anxiety so I tend to avoid them. I was happy to have beaten cancer. Lost my job of 28 years last year which qualified me temporarily for medicaid. So my new GP runs a test that my old gp didnt. Serum 19-9c. Comes up with a cancer tunor marker. Norm is 30.…
Checking In
A dear friend has recently been diagnosed with cancer and I wanted to share with him the site where I found so much support many years ago. While he doesn’t have colorectal cancer my visit to the CSN page to find the link for him made me think of all the times I would read through each new post in this forum, obsessively…
Kras mutation. Second line of treatment not working
Dear All, As a mentioned in my previous post, my mom was diagnosed with Stage IV colorectal cancer back in December 2022. She started with FOLFOX but after 4 rounds she was fully constipated and had to had surgery to place a stomach bag. After that, she was moved to FOLFIRI and she had already 6 cycles. The sides effect…
Powerful video
While it doesn't happen for all of us, who knows if you could be the one.....or not. I guess, if you act as though you could be the one, then you pass, you've not lost anything along the way. Tru
That evil LARS- Constipation
I've browsed the topics on the discussion boards, and it seems I am something of an anomaly. I survived Stage 3 rectal cancer, chemo, radiation, a bowel resection for Christmas, and an ileostomy reversal for my birthday. Unlike everyone else who struggle with diarrhea, I have serious constipation issues. I eat a reasonably…
Am I still poisonous from chemo?
I just had to drop in and tell you guys about this. Cracked me up!!!! For you newbie’s I live in the back woods. For about 2 weeks I kept scratching my groin area. This is just something guys do. We come out of the womb knowing how. Now we have a lot of ticks this year. So this groin scratching was getting to me. It was…
The 700 Club (IV vitamin C)
My wife has had 700 infusions of IV vitamin C, a rather high cu.mulative number. The past 100 infusions have been with 30-65 grams of vitamin C (30,000-65,000mg), 3 to 7 days apart. Since her infusions are peripheral rather than port based, the nurse's insertion skill becomes more important as she climbs the accumulated…
IV vitamin C, #500
My wife reached her 500th IV vitamin C infusion in September, most of them 60-75 grams each (yes, 60,000 - 75,000 mg). She's been as high as 90 grams. She's had almost 40 months of immunochemotherapy now, all while taking massive amounts of IV vitamin C, 1.5 to 7 times per week. She got IV vitamin C daily for 10-21 days…
New member - stage 4, 5 mets to liver
Thank you for this board. I'm fairly new to this diagnosis but want to share my story. Originally I went to a gp for 6 months of stomach issues I couldn't shake. Tons of blood tests and $$ to find nothing but we will schedule you for a colonoscopy, but it will be 2-3 months....never happened. 2 months later in ER for…
Told primary is colon cancer, then liver biopsy just came back saying primary is pancreas
Hello, We were told in June mom has stage 4B colorectal cancer metastasized to liver, lungs and peritoneum. Doctor called last night leaving a message that liver biopsy came back and shows primary is pancreas with certain percentages of other GI malignancies. We hope to catch the doctor’s call again today to learn more,…
Husband colon cancer returned to liver
Hi everyone, we are a family living in Northern California. My husband (53 years old) was first diagnosed colon cancer in 2020 during a colonoscopy and since underwent colon surgery and 4 rounds of chemo ( last round June 2021). In his follow up with Kaiser last month, his CEA was at 32 and the doctor ordered CT Scan. A…
Is Lonsurf a "last option"
To make this short, my dad was diagnosed with metastatic rectal cancer that had spread to his liver with a few Mets on his right lung in July of 2019 at age 59. Fast forward to the end of 2020 lung Mets gone, resection of cancer in rectem done and gone. Liver tumors almost non existence and blood work was at like "7" for…
Just found out
It's difficult for me to position myself as a "survivor" in the context of colon cancer because I just found out a few days ago and I don't even know what stage I'm in, but I am a survivor. I heard the gastroenterologist say the tumor was 2 cm (transverse colon), and the biopsy "shows cancer" (what the GS doctor said) and…
Stage IV Colorectal Cancer
Dear All, On December 31st, 2021, my mom was diagnosed with Stage IV Colorectal cancer ( What a great way to receive the New Year). She has one tumor on her lung, and 7 in her liver( the largest being 3.2cm). She started with FOLFOX, but after her fourth round she was completely constipated, and surgery had to be performed…
Quality of life after ultra low or very low anastomosis?
If you’ve had very low rectal cancer and received Total Mesorectal Excision and a very low colo-anal anastomosis surgery is your bowel emptying function OK, or do you have severe, persistent fecal incontinence and other LAR syndrome symptoms? Are you constantly on a look-out for a toilet? Can you make it on time or are…
Efficiency of reduced CAPOX scheme
Hi all, i was diagnosed for an adenocarcinoma last year September, followed by surgery early October. Chemo started in November following the CAPOX scheme. After second infusion of Oxaliplatin i was left with paralyzed face and hands, so the onco decided to stop Oxaliplatin and go for a 6 month capecitabine (Xeloda) mono…
surgical side effects
I was diagnosed with Stage II rectal cancer in May. The lower pelvic anastomosis was done in early August. I am six weeks past my temporary ileostomy reversal and currently doing the adjuvent therapy. My anastomosis is really low (tumor was 6cm from sphincter) and curious if there are any other men out there who started…
How is everyone holding up?
The world seems a scary place, I try and remember that most of human history has been scary but it’s not a very reassuring thought. More importantly though I always come back to how hard it is for everyone on these boards. I miss when it was easier to navigate but anyway if anyone feels like commenting how they are doing…
Bowel obstruction
How do you know you have an obstructed bowel? I have been having some abdominal pain and constipation and wondered if it could be? when i was diagnosed it was “near obstructing” and I was told it was a concern but never given a “what to watch for” list. thanks
Normal to wait three months for scan?
I haven't been here for a while, so I just thought I'd say hello and hope you are all doing okay. Last week I finished the the last of my 12 infusions. Now I just have to wait three months for my ct scan. Is that normal--to have to wait three months?
Stage IV mCRC... technically - Chemo or no?
Hi everyone! Long time lurker but my first post. Looking for thoughts and perspectives from fellow survivors. About 5 years about I found that I had stage 1B CRC in the Sigmoid - followed by successful resection with clean margins. Based on that the onco did not prescribe chemo. It was a 5-year waiting game, and if clear…
Pat treatment depression
I was strong as nails when told about each cancer (3 at once). Went through treatment and still worked full time. With a lot of time off. Upon hearing I am good I fell apart. Several months ago was told I am cancer free. But now I breakdown and cry and hide often. I look at it as I was strong enough to face the “headwinds…
CEA and CA19-9 levels
Hi, my dad was diagnosed with colon cancer and he’s been undergoing chemo for the past 6 months. He started with a CEA of 29 and a CA19-9 of 97. CEA went from 29, to 10.5 and then started increase to 10.1, then 10.3 and now it’s at 12.9. CA19-9 kept going down and went from 97 to 37, then 38, and now it’s 33 and normal. I…
Hi I'm new to this site
Hi I'm new to this site I'm not sure what to do I'm looking to meet people who are dealing with rectal cancer
Advancing from infusions to pill
First, just dropping in to say thanks to those who welcomed me to this group awhile back. To back up some, I had a cancerous colon tumor removed in 2019 along with part of the colon. Awhile later I was diagnosed with liver cancer (actually “colon cancer” due to the cancer metastasizing to the liver}. The prognosis was grim…
8cm in liver
Just was told my cancer in back in my liver two lesions on 8cm and 1 2 cm. My fourth go around. First time posting could use some advice and support. I just turned 50!!! Ready to battle it out again but know things look up hill!!! We’ll do a biopsy next week!!!! Thanks

Colorectal Cancer

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