Neuroendocrine tumor

georgeanns

Has anyone had a neuroendocrine tumor of the rectum, anus, or colon? I was diagnosed with rectal cancer, a neuroendocrine type, in 2002 at age 32, and I am told it is a rare type of tumor to occur in the rectal/anal area. I had chemo, a colostomy, radiation in 2002-early 2003, then a recurrence this past Sept. 2003 in my liver, with a good respose to chemo so far.

Any responses with information would be appreciated.

nanuk

did you try word searching neuroendocrine? I came up
with about 10 hits.. Bud

georgeanns

nanuk said:

did you try word searching neuroendocrine? I came up
with about 10 hits.. Bud

I will try that. Thank you very much

JoshC

I have neuroendocrine but on my pancreas. Spread to my liver

Trubrit

My goodness, the date on this post is OLD - as in 18 years old.

The other posters haven't been on the forum for almost that long, so there will be no replies from them, I'm thinking

But, hello JoshC. I hope you are doing well - or as well as can be expected.

Tru

JoshC

So this was your post from 18 years ago???

JoshC

I guess you are doing ok if you’re still here 18 years later!!???

Trubrit

https://csn.cancer.org/discussion/comment/1695909#Comment_1695909

No, someone called georgeannes. Looks like they only posted eight times, and then didn't come back on the forum.

Tru

catisha

I was diagnosed with this type of tumor. They tried chemo as a treatment it didn’t work and the mad on my bladder grew 1cm and the others along with the mass in the rectal area remained the same. My physician just switched me to immunotherapy and I am praying that it works. Has anyone had success with immunotherapy?

JoshC

I know someone who had amazing results on immunotherapy. My doctor confirmed it is very successful many times.

good luck!!

catisha

https://csn.cancer.org/discussion/comment/1696036#Comment_1696036

Thank you. I am praying for the best. I have 4 more rounds on it.

JoshC

I am on my third round of oral chemo. Lmk how yours goes. Best of luck!

josh

catisha

https://csn.cancer.org/discussion/comment/1696106#Comment_1696106

How is your oral chemo coming along? Any side effects?