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Colorectal Cancer

Oasis of hope experience?
My dad was diagnosed with Hepatocellular carcinoma and given less then a year to live. We are considering Oasis of hope, but have seen multiple good and bad experiences. Nothing recently however. Is there anyone out there willing to speak to us, good or bad regarding your experience? Please and thank you
Boyfriend with Stage IV mCRC - MSI/MSS status until now not performed - what to do
Hi, I am a bit in a bind, to put it gently. So as it turns out I went to a couple of doctors for a second opinion because my boyfriend currently being on Avasting and Xeloda (having previously operated twice on for liver mets) has had a progression in the last three months while on them (5 new lung mets, they were two in…
Avastin
Anyone have experience with Avastin? I will be starting it with Lonsurf soon.
Large Mass
Hi, my husband was recently diagnosed with stage 4 colon cancer. He has 4 nodules in his lungs and a whopping 20cm mass in his liver. We will meet an oncologist on Monday. Can anyone kindly explain the most likely treatment he will receive or if there any long term survivors out there?? Its been a really difficult last few…
Spontantenious CEA drop
Does anybody ever experienced a spontantenious drop of CEA level while not being on chemo? Or this can only happened as a miracle. I have a recurrent CC in abdomenal limph nodes so far, having chemo on and off. CEA level is going down and up again every time I stop the therapy.
fiber and probiotic
i had stage 4 rectal cancer after my reversal surgery and a year followup sigmoidoscopy the surgeon said that I should be on a fiber for the rest of my life. my husband just picked up a fiber with probiotic in it. has anyone else on a fiber and probiotic and how is it going? thanks
Any Recommendations?
Hello, I am new here. My 34 year old niece just got diagnosed with stage 4 colon cancer with met to the liver. We live in Buffalo NY. She has her first appointment at Roswell Park Cancer Institute this Thursday. She will see surgeon Dr. Steven Nurkin. Any recommendations on a good oncologist at Roswell? Thank you so much.
How long to get to the "new normal" after everything is done?
hello everyone. I just registered this account so I could discuss things that others may have already been through as well as share my specific situation. My background: Found a 4 inch tumor (ended up being stage 3) at my very first colonoscopy late October 2020. I was 51 at the time. GI doc immediately set me up with a…
Xifaxan experience
Hello again everyone! Quick background... 10cm stage 3 found two years ago. 8 rounds of chemo, 25 sessions of radiation, surgery (with bag) and then reversal surgery. I'm a year past the last surgery and was NED (yay!) at my last oncology appointment I had been complaining to my oncologist about my bowel functioning for…
Weight Loss
I am new to this site. My 38 year old sister was just diagnosed last week with Rectal Cancer, Stage 3. I am very concerned about her weight loss. She lost over 20 lbs within the last few months, and she was skinny before she lost the 20. She looks so frail. Did anyone else experience a substantial weight loss prior to…
What is going on?
Hi everyone, I decided to post on here because I'm not getting any answers and I feel like I could use some advice from those with experience. So, back in August I started noticing an increase in my bowel movements. I used to have one a day, usually in the morning, and then it started going up to 3-4. I didn't think this…
K
low platelets forever?
After my last lab work 1/12 months of chemo holiday my platelets remained quit low , can I have a permanent damage on my bone marrow? any of you ever had this problem ? any solution for this? Thank you in advence!
Recently diagnosed at 28 years old
Hi everyone, I’m new here… I am currently 29 (diagnosed at 28) and was diagnosed with stage II small bowel cancer. I had the obstruction removed in May and currently on the FOLFOX regimen. My hair is thinning out… I never heard of neuropathy, until I experienced it… metal taste…. I’ve fallen into a depression and not sure…
Cheating wife...
Just wanted to reach out and see if anyone else has gone through infidelity after diagnosis. I am currently separated due to my wife (ill leave calling her by the other 'w' word out of this), cheating on me with someone I called a friend. We have had a 28 year relationship, and married for 25 years at the time that I…
hair loss with folfiri (vs folfox)
Interested in hearing people's experiences regarding hair loss with FOLFIRI, especially as compared with FOLFOX. I had hair thinning with FOLFOX, but not total hair loss. I understand FOLFIRI causes more serious hair loss. Did anyone just have hair thinning with this? I know, I have more important things to think about…
Hi, I’m new
I’m Dove, My husband has had a tumor and lymph nodes removed (stage 3) He’s in chemo now. I have no one to talk to, even my husband has shut me out. I feel like I’m already losing him or like he’s already leaving me. I hurt so bad. I know it’s not about me, but damn how do I get through this?
ileostomy or not?
I had surgery 4 wks ago, half of my rectum removed and part of my colon. I had no ileostomy. A friend who will be having the same surgery in 2 wks told me their doctor said they have never heard of anyone having this type of surgery without a ileostomy. Is there anyone who has been in my similar situation without having a…
C-Diff
I had colon cancer in my Sigmoid colon in 2020 I didn't have any treatments they did surgery on me and took out 1 and 1/2 feet of my Sigmoid colon. Well, I have yet to have 1 full 30 day month since my surgery on 11/2/2020 that I am not having to stay close to the restroom due to frequent trips throughout the day. And just…
10 years out, really life????
Hi its Helen for those who know me from 2012/13. The boards give me anxiety so I tend to avoid them. I was happy to have beaten cancer. Lost my job of 28 years last year which qualified me temporarily for medicaid. So my new GP runs a test that my old gp didnt. Serum 19-9c. Comes up with a cancer tunor marker. Norm is 30.…
Checking In
A dear friend has recently been diagnosed with cancer and I wanted to share with him the site where I found so much support many years ago. While he doesn’t have colorectal cancer my visit to the CSN page to find the link for him made me think of all the times I would read through each new post in this forum, obsessively…
Kras mutation. Second line of treatment not working
Dear All, As a mentioned in my previous post, my mom was diagnosed with Stage IV colorectal cancer back in December 2022. She started with FOLFOX but after 4 rounds she was fully constipated and had to had surgery to place a stomach bag. After that, she was moved to FOLFIRI and she had already 6 cycles. The sides effect…
Powerful video
While it doesn't happen for all of us, who knows if you could be the one.....or not. I guess, if you act as though you could be the one, then you pass, you've not lost anything along the way. Tru
That evil LARS- Constipation
I've browsed the topics on the discussion boards, and it seems I am something of an anomaly. I survived Stage 3 rectal cancer, chemo, radiation, a bowel resection for Christmas, and an ileostomy reversal for my birthday. Unlike everyone else who struggle with diarrhea, I have serious constipation issues. I eat a reasonably…
Am I still poisonous from chemo?
I just had to drop in and tell you guys about this. Cracked me up!!!! For you newbie’s I live in the back woods. For about 2 weeks I kept scratching my groin area. This is just something guys do. We come out of the womb knowing how. Now we have a lot of ticks this year. So this groin scratching was getting to me. It was…
The 700 Club (IV vitamin C)
My wife has had 700 infusions of IV vitamin C, a rather high cu.mulative number. The past 100 infusions have been with 30-65 grams of vitamin C (30,000-65,000mg), 3 to 7 days apart. Since her infusions are peripheral rather than port based, the nurse's insertion skill becomes more important as she climbs the accumulated…
IV vitamin C, #500
My wife reached her 500th IV vitamin C infusion in September, most of them 60-75 grams each (yes, 60,000 - 75,000 mg). She's been as high as 90 grams. She's had almost 40 months of immunochemotherapy now, all while taking massive amounts of IV vitamin C, 1.5 to 7 times per week. She got IV vitamin C daily for 10-21 days…
New member - stage 4, 5 mets to liver
Thank you for this board. I'm fairly new to this diagnosis but want to share my story. Originally I went to a gp for 6 months of stomach issues I couldn't shake. Tons of blood tests and $$ to find nothing but we will schedule you for a colonoscopy, but it will be 2-3 months....never happened. 2 months later in ER for…
Told primary is colon cancer, then liver biopsy just came back saying primary is pancreas
Hello, We were told in June mom has stage 4B colorectal cancer metastasized to liver, lungs and peritoneum. Doctor called last night leaving a message that liver biopsy came back and shows primary is pancreas with certain percentages of other GI malignancies. We hope to catch the doctor’s call again today to learn more,…
Husband colon cancer returned to liver
Hi everyone, we are a family living in Northern California. My husband (53 years old) was first diagnosed colon cancer in 2020 during a colonoscopy and since underwent colon surgery and 4 rounds of chemo ( last round June 2021). In his follow up with Kaiser last month, his CEA was at 32 and the doctor ordered CT Scan. A…

Colorectal Cancer

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