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2-year Update
Hello everyone. It’s been a long while since my last post. This is because (I’ll cut to the chase) I had a recurrence on my 13th month after pronounced in remission. To recap, I had my first diagnosis of ovarian cancer stage IIA on 8/27/21. I had surgery and 6 rounds of chemo then was placed on Zejula. On my last blood…
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Refusing any Treatment for Esophagul Cancer
I'm early stages T1b, but don't fancy the Ivor Lewis treatment and what can come with it, so I know that my chances of survival are low. But how low, I don't know and how long before symptoms. The information out there is shockingly scant.
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I’m New Here And In Search Of Help
Hello, I am a almost 39 year old male who was diagnosed with Barrett’s Esophagus in on St. Patrick’s Day 2011 when I was 27 years old. When I was diagnosed I immediately tried to get ablation surgery but because my spots were some of the smallest another doctor had ever seen it was denied and I instead recommended to do…
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16 months after partial nephrectomy for stage1 PRCC Grade 4
Hello everyone. I hope everyone is doing well. I haven’t been on here since I had my partial nephrectomy April of 2022. I felt like a new person after surgery in regards to my energy level. I felt like I walked out of a fog a few weeks after surgery . I wanted to get as far away as I could emotionally from being told I had…
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I think I have kidney cancer
a few weeks ago I woke up with severe lower left abdominal pain. I almost passed out . Could not stand up and I was sweating profusely and felt like vomiting. It lasted about an hour after that my abdomen was tender. Three days later I went to the ER. They did a CT scan with contrast to rule out diverticulitis. The doctor…
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What's is like after kidney removal
Just told my left kidney has to come out due to a tumor. The only symptoms I've had is the usual blood in urine, fatigue, weight loss and slight back sensation. The actual description is: Left upper tract TCC. Discussed robot left neph-U. Recommend intravesical gemcitabine. The urologist didn't indicate that there was any…
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Need some help for my husband
Hey everyone I was wondering if someone could help me out. My husband has stage 4 Colorectal cancer and his treatments aren't working anymore. New mets have been popping up and also he has a fistula that has formed . So the Oncologist suggested going on Lonsurf.(He has been on FOLFOX and also FOLIRI) Is it a good idea for…
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anxiety
I have alot of anxiety ive tried yoga. Mediation. The Dr did put me on medsfor it but it still comes. How do some of u cope? Its my 2 nd reacurrance since 2003 and I seem to be having a harder time dealing with it then I before. And last time I was stage 3 inflamotry breast cancer with the her2 positive gene. Pregnant with…
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Gleason 7 Active Survellance
Yesterday I had a consult with a very good surgeon at the UNM Cancer Center. He does a lot of prostate removals with a high success rate and low side effects. He said because of my previous TURP and bladder opening scaring he would not recommend surgery, as it was sure to cause incontinence. He thought I should try active…
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Backsliding
Backsliding. I'm 60 days post treatment. I was doing good a couple weeks ago, or so I thought. Getting a little body weight exercises and yoga done, walking the dogs... This past week, and especially today, the exhaustion, and the loss of balance, it feels like it did after a week of treatment. I know some of the…
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Rectal Cancer Newbie
I'm 48 years old and recently diagnosed with stage 3 rectal cancer. I completed 28 rounds of oral chemo & radiation and just had my port placement yesterday. I start IV chemotherapy next week and I'm terrified of the unknown and all the side effects that I may or may not have to experience. I'm just seeking support and…
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Lumpectomy & Radiation
Hello, Newly diagnosed with stage 1 invasive carcinoma in one breast. I have ALOT of questions but wanted to know about having radiation before or after reconstruction/lift surgery. They recommend I have the lumpectomy and at same time reconstruction/lift. Once healed then radiation. Everything I have read says radiation…
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Hospitals and surgeons recommendation
Hope everyone is doing fine on this forum. I am shocked to learn today that my wife is diagnosed with ~ 2 cm Kidney mass which doctors suspect is malignant. Doctor is recommending a partial nephrectomy. We are currently out of USA, plan to return back to US for surgery and need suggestions on good hospitals & surgeons. We…
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Movies (funny or not)
Sally Field is awesome! https://www.imdb.com/title/tt0448166/reviews
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Vehicle Donation
I have a car that I would like to donate to a cancer related charity. Does anyone have any suggestions for such a charity? The American Cancer Society does not accept vehicle donations as of January 2011. Thanks for your help.
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First round chemo
Hello, I am new here. I just had my first dose of "the red devil" and honestly felt like I had been overdosed. Vomiting, dizzy/spinning, rapid heart beat. Did anyone else experience this? Is it normal? I felt like I was going to have a heart attack
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Keytruda and Avastin
Hi, I was wondering if anyone has/did lose weakness on one side due to side effects? I was done radiation last September, June of this year I finished with my chemo. I am receiving immunotherapy every 3 weeks to try and kill off the existing tumor on my brain stem. For about a month now I have no grip or strength on my…
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NED!!
Partial nephrectomy in January 2020 and most recent scans August 31 2023 again show no evidence of recurring disease. Now I can relax for 11 months😁 (also 6 years undetectable PSA for prostate cancer)
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Surgery
I was diagnosed with colon cancer in early March. I had surgery on April 24. Recovery is going well. I am still waiting for results to see what stage this is. The waiting is giving me anxiety.
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My first post-Diagnosed with Breast Cancer April 2023
I have been through 3 scares, but this one was the "CHARM" Cancer broke through and not benign. I have peace of mind and not used to reaching out for support whenever I go through medical issues at all. But I promised my Oncologist to reach out to family, colleagues, and here. I am not sure what steps I need to take and…
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What songs do you listen to when you just need to let yourself feel everything?
I recently found out that my mom has stage IV breast cancer. Music has always helped me work through my emotions, but I’m having trouble finding songs that apply here. They don’t have to specifically be about cancer. I’m not talking about fight songs, but more so songs about grieving the loss of the life we expected,…
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Recurrent Ovarian Diagnoses
If someone could give me their thoughts I would really appreciate it very much. I am so worried and hoping to hear from others. In 2020 I was diagnosed with ovarian cancer and had a full hysterectomy and six rounds of chemotherapy. My CA 125 score was reduced to 18 and for two and a half years I was in remission. In April…
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Radical Prostatectomy Recovery Tips
My 55 YO husband is having RP in early September. I'm looking for any tips, ideas to help him recover. Anything I should/shouldn't do? I'm turning our spare room into a guest room with adjustable bed frame bed and tv (w/Netflix)... Any other ideas of what would help him relax and recover? He's a busy body so being down…
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Parotid Cancer survivor - regaining nerve function?
What experience have others had when it seems like the facial and neck nerves are beginning to function again after 47 years? Read my bio for the background.
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Planning return to work after BMT
I had ALL relapsed and received BMT 2022. Currently, I am under LTD benefit from my company. I have diabetes insipidus, which means I am going bathroom more frequent . Now I am planning to return to work, my position is a service agent, have to stay online all the time once the customer called in. what i am thinking about…
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Multiple myeloma
Anyone here been tested for MM and test negative, then years later test positive ?
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High LDL
I have been experiencing High LDL since 2008. I have ruled out its not Diet, Thyroid or Genetics. Statins do not lower my numbers and they cause muscle pain. Nexletol/Ezetimibe did not lower my numbers either. My last idea, is another late effect from chemo and radiation? Even So, what are the alternative options for…
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New to this
Hello. My mom was diagnosed with Stage 4 colon cancer with metastases in the liver and lungs back around Christmas 2022. Surgery was not an option due to many fistulas and cancer in her pelvis basically “sticking” everything together. She has been on chemo every other week since her port placement in January. Started with…
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Getting it together
I know that my mom is the one who has to go through the disease and I cant imagine what it is like inside her head and heart. Shes always been one to keep her feelings and fears and etc to her self. I have seen her fall apart half way twice since this diagnosis and I can be honest.... it was totally heart breaking. I am an…
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Has anyone had the "WHIPPLE " (PPPD) procedure completed?
Hello, My name is Jayda. I'm a 26 year old MBA student who works full time. My mother, who is 54 years old, is currently lying next to me at North Side Hospital in GA and has completed the CT, MRI, and MRCP scan. For the past week she is showing all the positive symptoms of pancreatic cancer. Grey stools, dark urine, itch…