-
Flying and lymphedema
Planning my first trip in 2 years! Flight time is approx. 2-1/2 hrs. Should I worry about lymphedema? I think I had some slight swelling, gone now, doctors say they saw nothing. 18 Lymph nodes removed. Should I wear a compression garment, just in case? Thanks, Marlene
-
Germ Cell tumor - help needed
Hi is anyone suffering from germ cell embroynal carcinoma stage 3(2c) metastisez to brain lungs and abdomen and testis
-
Is it Lymphadema
good afternoon ladies, it's been a few weeks since I last posted here but I am again in search of your wisdom and knowledge. So, I completed 25 rounds of radiation on the 27th of Jan and it went fairly well with fatigue being the most significant issue. Towards the middle of the treatment I noticed swelling in the groin…
-
Got COVID and Did Not Feel Sick? Here's Why
Here is a video for your consideration. It is a bit technical for me but you may find the information in it interesting. Got COVID and Did Not Feel Sick? Here's Why. Dr.Been---Researchers from the University of California San Francisco (UCSF) have revealed a potential HLA gene (HLA B15:01) that helps create polyfunctional…
-
End stage nearing hospice
I am so scared. I have never had to go through anything like this in my life. I am the caregiver to my 62 year old husband. He was diagnosed 7 years ago and I feel so blessed to have had this time with him. At our last appointment we were told that there were no more treatment options and that the next step is hospice. I…
-
Mesothelioma of fallopian tube
Looking for anyone with experience with mesothelioma of fallopian tube.
-
Follow-Ups and Putting My Foot Down
I also second-guess myself but I put my foot down today and hope I made the right decision. I had my surgery last June and 5 brachy treatments too follow. I started my 3-month follow-up with my gynecologist oncologist last October (although she saw me a couple of times after surgery) and saw her in late January and will…
-
Radiation/uterine
I was diagnosed in May 2023 with Adenocarcinoma Endometroid . Lining of my endometrium very thick more than likely due to 1 mg of estrogen for many many years without progestogen. I am 75 yrs. old and have never had surgery anesthesia. I was beyond depressed and terrified. Long story short referred to Oncologist GYN who…
-
Types of Uterine/Endometrial Cancer
While I knew that I had an unusual type of uterine cancer when I was diagnosed, I later learned that there are a variety of uterine cancer types. And these types can be referred to in different ways, which was initially confusing for me when I first started reading this Board. So, for the benefit of our newer members, I'm…
-
Biopsy Sample Delivery
I had a biopsy of a retroperitoneal mass 8 days ago (7/18/23) in Southwest Florida. That was a Tuesday. The discharge notes stated that results are expected in 3-5 business days. This past Monday I called to check on them. That would have been 4 business days. The person I spoke with said they received the results and…
-
Help when diagnosed with a Rare Form of Cancer is very hard
I finally found a doctor in my state that knows about Carcinoid Cancer and i went to him yesterday for the first time only to be told we don't see patients here at this hospital or cancer clinic that does'nt have health insurance.I finally ended having to scrape up $100.00 just to be seen and talk with this doctor whom i…
-
newbe trying to function alone
I am trying desperately to get around this site and can't open anything. I try to post but don't think I am doing it right. Is there a certian thing to hit to get posted I may have missed. I am also dxed with lung cancer but have not been told anything about stage. Is there a blood test for lung cancer to keep up with. I…
-
Off Topic
When did this start happening? "Your comment will appear after it is approved." Is someone censoring the boards now?
-
Rhabdomyosarcoma relapse
Hi all.my little girl is 4 and has rhabdo. Relapsed after girst treatment due to cancer growing in her lungs after spine neck and lungs treated with radiotherapy too.not aloud anymore radio or first line treatment so she is on VIR course similiar to VIT. My questions are mainly about nigella sativa and anybody looked into…
-
Plain talk - I like it
I'm finding that I like the "flavor" of this board because people are speaking very practically about cancer and treatment, good and bad, etc. In real life, I don't have a spouse to speak this way with and I'm finding that family and friends, when I'm asked about what's next, are really put off by my matter-of-fact tone in…
-
My Mother-In-Law was just diagnosed
My Mother-In-Law was just diagnosed with stage 3 non small cell lung cancer (Squamous Cell Carcinoma) and she would like to talk to someone over 80 y/o that has gone through Radiation and Chemo to see how their experience was with the treatment.
-
Thymoma Survivors/Caregivers?
My fiance was diagnosed with a thymoma 11/21 and has undergon 4 chemo cycles (PAC Regimen), the tumor shrank drastically and he will now be able to have surgery on 4/11. Is there anybody who is has been through or is going through the same journey? Just looking for support and information...Thank you!
-
Metastasized Lung Cancer (Osteosarcoma)
Anyone out there who is surviving metastasized lung cancer? My 25 yr old daughter was originally diagnosed with Osteaosarcoma Sep 2018. Had limb salvage surgery to remove tumor in her knee Jan 2019. 2 years later the tumor re-appeared further up her femur. She had a hip disarticulation Sep 2021, to remove her full leg. Feb…
-
Another set back
Hi everyone! I was hoping not to have to make another post with scary news but here we are. My dad was diagnosed with stage IIIb colon cancer and around this time like year his CEA level went up to 8 after it being normal for serval months. Thankfully all scans and colonoscopy came back clear and his CEA came back down on…
-
Traveling
Every single member of my cancer care team encouraged me/us to NOT cancel our family cruise scheduled next month to celebrate our daughter's 21st birthday. Now that it's just a few weeks away, I have a lot of mixed emotions. I know I can't do lakes, oceans, public pools, hot tubs, saunas, and I have to be careful about sun…
-
PET scan after 2 months of Hormone Theray
My mother had a PET scan done last Friday. This was about 8 weeks after starting the Hormone Therapy (Anastrozole). Hormone therapy was started on May 15, 2023 and she had the last chemo before on Feb 3, 2023. So essentially she did not have any cancer treatment about 12-14 weeks in between. The PET scan from last week…
-
Cramping from head to toe
I had BOT 4 years ago and side affects still persist. What I notice lately is my whole body getting cramps..arms, legs, feet, chest and head. My oncologist didn't seem to worried. My Primary care doctor had me try magnesium, electrolyte drinks, potassium, eat 5 bananas a week. etc. When I get the most cramping is in bed…
-
Suggestions please
need suggestions to put on weight 13 EGD procedures and esophagus is still about the size of a drinking straw i drink 10-16 bottles of Ensure per day mixed with milk,chocolate syrup,bananas,,instant breakfast and peanut butter work for me is about 3-5 hours per day and then I’m exhausted I honestly don’t want to purée food…
-
My life has changed, has anyone had this happen?
Had lumpectomy April 27, 2022. I was blessed, margins clear, no lymph node involvement. July 22, 2023 will be a year since my last radiation treatment. I have had PET scans and 3 D mammogram, (hurt like the devil) and surgeon did breast exam. No cancer. I suffer from anxiety and occasional panic attacks. I just want to get…
-
Please take a few minutes to watch this important video about PSMA scans
https://www.google.com/url?sa=t&rct=j&q=&esrc=s&source=web&cd=&ved=2ahUKEwjlgIKAhKOAAxW6m2oFHebnCNMQwqsBegQIEhAG&url=https%3A%2F%2Fwww.youtube.com%2Fwatch%3Fv%3D-ZXDohxylg0&usg=AOvVaw2YI7sJ0VG3QjqJ4p-w0qfm&opi=89978449
-
Possible secondary cancer post advanced stage Hodgkins Lymphoma w/ splenectomy. Depressed, worried
Is there a one else who may share a similar concern about my topic? It would be nice to chat w/ someone with same concerns:) I’m
-
Nerve damage from radiation
I am losing the use of my legs due to 'scar tissue' nerve/muscle damage from radiation. Doctor suggests high dosage (500 mg/week) methylprednis treatment. Has anyone ever experienced this?
-
Contamination from laparoscopic hysterectomy - Anyone else have this?
Hi, My 2nd occurrence was over almost 6 years ago. It was a tumor in my rectus abdominis muscle as a result of contamination in one of my scars from the laparoscopic hysterectomy. It occurred 6 months after chemo for the 1st recurrence (in 2 pelvic lymph nodes - which was found about a year and a half after the original…
-
Dry Mouth
Has anyone had a problem with a dry mouth well after chemo ended? I'm 4 months out from treatment and lately my mouth is sooooo dry I can't stand it. I thought it was from the menopause, but when I asked my gyn, he said he never heard of that before. I didn't have any mouth problems from the 5-FU while in treatment, but…
-
ACUTE LEUKEMIA SURVIVOR
I WANTED TO BE IN CONTACT WITH SOMEBODY WHO HAS HAD THE SAME EXPIRENCE OF ACUTE LEUKEMIA AND SIMILAR TREATMENTS.