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First scans after immunotherapy
Hi just had CT scans after 4 treatments of ipi/nivo. I meet with the doctor on Thursday to discuss results. Need wisdom and hope for good results and how to go forward. Thanks for your support.
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Pregnancy after breast cancer
Hi all, I was diagnosed with stage II IDC with one lymph node involved in Feb of 2020 at age 28. We have a son that we welcomed via surrogacy in 2021. I’ve always dreamed of having a big family and am finding it difficult to let go of the dream. I’d love to give my son a sibling, but surrogacy is horribly expensive and due…
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First Day with No Hair!
I finally had to shave my head today. I knew this was coming, and I didn't want it to be a big deal, but it is. I really wanted to be one of those people who could just confidently rock the bald head, at least in my own home. My husband is out of town and I thought it would give me a couple days to make this normal for…
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What Else Can We Do For The Pain?
My 81 year Father was recently diagnosed with metastasis prostate cancer. It was shocking news and such a blow to us all. He completed a few radiation sessions and continues to take all his medications well. We are awaiting the start of his hormone therapy in a few weeks. Although he has prescription meds for his pain,…
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Myelofibrosis/blood cancer
I was diagnosed on 11/15/19 with myelofibrosis - it's a rare kind of blood/bone marrow cancer. I'm on a pill form of chemo - jakafi - and beginning the stem cell therapy transplant process. Having a 'rare' cancer is all kinds of frustrating. And it's isolating. As I've never had cancer before, maybe that's true for all…
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Pain
Has anyone else read about how common it is for bc survivors to continue pain two to three years after initial treatment? This is the article: Breast Cancer Treatment Leaves Patients With Chronic Pain Baltimore Sun, 2009 Nov 11 Persistent pain affects nearly half of breast cancer survivors for 2 to 3 years after completion…
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Peripheral neuropathy from Cytoxan/Taxotere - permanent?
Hi everyone, After my second round of Taxotere/Cytoxan, I am experiencing pain in my fingertips and some tingling in my toes. Is this peripheral neuropathy? If so, what does that mean? Is it permanent? Will it get worse? Does it mean I should stop the chemotherapy? Any thoughts appreciated. Eva
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Icing hands and feet to prevent peripheral neuropathy from carboplatinum, taxol, other meds
Just a reminder to newcomers here that this works. I was in for a completely unrelated treatment last week, and saw a woman beginning chemo who had been offered the scalp icing to save her hair, but had not been offered hand/foot icing, which I think is a terrible shame, since hair grows back quickly, but the pain of…
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4mm Gallbladder Polyp found in Ultrasound
Hi I was just told that I have a 4mm polyp in my gallbladder today. I have done some research and learnt that they can be cancerous once reached at 1cm. I was advised to remove my gallbladder. I am 36 years old, and confused what to be done. Sould I wait and monitor it or just go for the surgery? Can anyone share their…
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New here and so afraid
Hello. New to this group. Have not been diagnosed yet but fear the worst. I am 60, post-menopausal. Saw a doctor a month ago after two bouts of sharp pain on my right side while running. CT shows 9.4 cm “soft tissue mass.” No other symptoms but today I got blood work back - CA 125 of 287 though CEA and CA 19-9 were at…
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Galleri Blood Test--Blood Test For 50 Types Of Cancer Could Speed Up Diagnosis
In my search for information on the NavDX blood test for cancer, I also came across another Blood test to detect cancers as well. It is very similar I think to the NavDX test. I think these tests are clear examples of medical advances in the field of cancer testing. I think from what I am reading I am not sure if it is…
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Should You Wear A Medical ID Bracelet? Yes It Could Save Your Life And Avoid Problems
Hello, everyone, I hope you all are having the best day possible. I was recently at our local H&N support group and the meeting was over and I was talking to one of the nurse navigators and we covered a couple of things about my condition overall and I told her I should consider a medical ID bracelet maybe and she agreed…
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Bone pain- advice sought
Hi there, I had a 1.3 cm chromophobe (eiosinophilic variant) tumor removed by robotic partial neph in early 2021. No sarcomatoid features or lymph node involvement. My scans have been NED and this year my doctor said that I didn't need to do anymore scans or followup because he said it definitely wasn't coming back. Do you…
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Still losing weight from Esophageal Cancer.
My husband age 74 was diagnosed with Adenocarcinoma Cancer in May, 2022 after choking on food while on vacation. His treatment was 23 sets of radiation, 5 chemotherapy followed by a 13 hour Esophagectomy with Thoracic Esophagogastrostomy Creation. He was told after the surgery that the radiation/chemotherapy had removed…
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Recurrence of uterus cancer in vaginal cuff
I have asked questions before and everyone was so helpful. i was recently diagnosed with recurrence of my uterus cancer in the vaginal cuff. The standard care seems to be external radiation and brachytherapy? I went to Stanford and the Mayo Clinic and was basically given the same options? Has anyone out there had…
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HPV+ tonsil cancer
I was diagnosed with HPV+ tonsil cancer, which also involved two lymph nodes, in October. I finished chemo (Cisplatin) and radiation treatments in January. I had Pet scan in April which showed NED. Having cancer made me feel so alone, and isolated from everyone else around me. I came here to find other people who have been…
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High Resolution Anoscopy
I have a history with repianal HPV lasered in the past (the called it AIN 3 despite that my anal canal is clear) and yesterday i had an anoscopy. The doctor said everything was clear this time. Nevetheless this time i am very sore when i tried to go to th e toilet and i saw mucus coming out with the stoll. Is this…
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Funny story - port surgery
So I hadn't slept in a few weeks since cancer diagnosis, as many of you know is quite common after diagnosis. So the doctor comes up to me before my port surgery and seems very stressed. He states that I am on two medications that will interfere with twilight medicine and I'll be 100% fully awake during the procedure. He…
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Lymphedema
In the thread entitled "How many lymph nodes? (Includes Recap of Lost Posts)" ncg007 commented that she had developed lymphedema about 2.5 years. I've also developed lymphedema at about the same time post-surgery. After a deep vein thrombosis ultrasound to ensure that I didn't have any clots, I met with the occupational…
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Confused with Mother's treatment plan
Would like some help in managing my mother's treatment plan: My mother is 86 and has been diagnosed with Metastatic stage 4 endometrial cancer (uterus being the primary source). She had about 7 cycles of chemotherapy consisting of Carboplatin and Taxol from Aug 2022 to Feb 2023. The PET scan in Jan 2023 showed her 80% free…
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God I miss Paul Harvey
There was just something hearing, "And now you know the rest of the story", or "Good day." I grew up on a ranch and as a young boy (beginning at 6 years old) every morning about 0600 I would listen to Paul Harvey on the radio. I'd be sitting in my parent's truck with the heater on full getting ready to step out into an…
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How did I get here???
Hello all! I am a 53 yr old mother of 3 recently diagnosed with stage 2A SCC of the anal canal. My days since have been full of phone calls to insurance copanies and cancer treatment centers, doctor's visits, diagnostic testing, and an occasional breakdown. How I got from I think I broke a hemorrhoid to I have a tumor aka…
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Guardant Reveal
Has anyone had any experience with Guardant Reveal? For those not familiar, its a blood test after your done with treatment that will tell you if your cancer is likely to return. I finished chemo at the end of March (Folfox). I went to my post chemo appointment a couple weeks ago and my oncologist wanted to try the blood…
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Recovery from fatigue after radiation therapy
I completed radiation therapy for a skull cancer--the "mask business" with a Tomograph machine. I had NO chemo. Therapy lasted 7 weeks, 5 days a week. I got the max dose. I was told that the aftermath would be extreme fatigue. Yes, indeed. It was extreme. Also in the mix were hand cramps, coordination and thinking…
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Chemotherapy/ Immunotherapy Question
What to expect? This will be my first day. Any pointers on getting through it? I heard it makes you sick.
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Palliative Care Explained And Compared Along With Hospice-Things To Consider
This subject is not always easy to consider or talk about and many of us may never use it or Hospice for that matter. But it is good to have knowledge of options available should a major serious illness present itself in your life or a loved one. Also, the ability to have the knowledge and be able to have the most basic…
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My kidney cancer
In my profile I put my first scan as Apr 7th, but it was Mar 30th. I can't edit it for some reason. I was lucky, while I had soreness on the right side, I just thought it was due to stones. I went to the urologist because I hadn't been to one in a long time and I had a couple of things I wanted to get addressed. The NP…
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Best way to cure colonal cancer
My father is waiting for biopsy results, this is a first encounter of me and my family with such a disease. I am exploring different treatments online, also consulting to different doctors. Allopathy which includes chemo, radiation and other methods, There is immunotherapy, which includes Dostarlimab drug. There is…
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Dendritic cells therapy
How efficient this therapy is in case of colon cancer ?
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Going into the unknown with father
Hi everyone, Back in Nov my father started to have abdominal pain. After a few days he could not go to the bathroom at all. Went to the ER was admitted and rushed into surgery. Ended up discovering a stage 3 cancer tumor on his colon. Took out the tumor, part of his colon and his spleen. Now equipped with a colostomy bag.…