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fibrolamellar hepatocellular carcinoma
I saw some talk about this from 2003 but nothing recently. Is there anyone dealing with this now ,especially someone young? My stepson has been diagnosed with this since Dec. 2003 (it came on very quickly) and this December has been given approximately six months. He is 21. He was told chemo would give him another couple…
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Wife just diagnosed with HCC
My wife has just been diagnosed with Hcc with one tumor 3.8 cm. It was found because of pain in her abdomen. It was discovered to be bleeding prompting lnterventional embolization. The treatment plan is for y90 because of the bleeding. Hearing that the bleeding has made her at a higher risk for metastasis. I'm looking for…
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Cea levels jumped fast.
Hello my father had surgery for colon cancer chemo and then chemo embolization procedure to one metastasis on liver. He was scanned and all showed cleared then put on remission. Three month follow up was last week and CEA jumped from 10 to a 400. He will have his petscan Friday. Has anyone experienced this before hoping…
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High CEA marker without symptoms or any sign of malignancy
Hi to everybody from Croatia! I am writing this in behalf of my father, 79 years, non smoker. He had heart infarct 12 years ago and since then he is OK wtih the help of medications. In one RTG after heart attack there was noticed one smal lung nodule 10x10 mm thaht has progrresed to 20x20 mm in this 12 years. Many CTs,…
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New diagnosis - Stage IV Nasopharyngeal Cancer metastasized to lymph nodes and lungs
Hello all, I am new here and I am hoping to gain a such insight so I can help my husband through this new journey and perhaps in turn, after we’ve been through it awhile, perhaps his experience might can be helpful to someone else. He is 55 years old, been retired from the military after 30 year when he was 48. In that…
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ADT Hormone therapy
I am 82 and love to ski! I was recently diagnosed with positive lymph nodes on my prostate. I’ve received one testosterone lowering shot and have to decide if I want to take the hormone therapy tomorrow. My ski resort opens on the tenth. Will I be able to ski if I go forward with this therapy? How bad are the side effects?…
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Anyone care to share their timeline?
Fairly newly diagnosed. 40 years old. I'm curious as to what everyone's timeline looked like? Mammo Sept 19 Biopsy Sep 23 Diagnosis Sep 28 Lumpectomy October 7 Margins were not clear, lymph nodes were but my medical oncologist appears to be leaning towards chemo, radiation and either mastectomy or another (larger)…
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Life after Eligard etc.
I had my supposedly last injection of Eligard a few months ago. My question is how long does it take to get this stuff out of the body and return to normal, or has it damaged the testicles beyond hope and the ED is permanent? Drugs like Viagra are expensive and not covered by most insurance. I guess they figure sex is not…
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PSA 25 at age 71, what to expect?
Hi, My dad was diagnosed with Prostate Cancer, and his PSA level 25. Need your help to understand what to expect going forward. I am worried.
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fallopian tube removal?
Have any females had their fallopian tubes removed during colectomy? My surgeon has given me the option and I'm wondering what others have experienced.
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Cytoreductive surgery
Hi! Anyone here had succesful cytoreductive surgery, with or without HIPEC (hyperthermic intraperitoneal chemotherapy) for peritoneal carcinomatosis? Stage 4... If in Canada, what hospital? Thanks!
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Side affects of Radiation / List up-date
Does anyone have the Full list of Radiation Side effects, it seams like every time I go to a doctor about a problem I am told it is Radiation side effects. At what point do they stop blaming it on the treatment and start being doctors again and looking. Just asking to see if anyone else is having this same problem.
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Numbess in chin and lower lip, left side
Calling all long-term survivors of HNC. Over the last 2 mos. or so I have developed numbness in my chin and lower lip, left of center. Coincidentally (or not?) my HPV16 positive HNC was on my left side (tonsil and lymph nodes). I am almost 4 years post treatments and doing great so I just chalked this up to another "new…
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Too much mucus and excessive cough
It's been 6 months post radiation of my throat and I'm just miserable. I have so much mucus I'm spitting up will it ever stop? And a constant cough nothing helps I can't use cough drops because now I have dysphagia so if my liquids aren't thick I choke n my food has to he mashed I feel Like I'm living in hell I have no…
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How long after prostate removed is cancer considered gone?
My question is how long after prostate removal is cancer considered to be gone? Are there specific medical studies that can tell me the length of time a doctor can determine cancer is cured? For example, after 3 years of PSA tests being less than .1 is the cancer considered gone? Thank you to all who respond. Nick
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Tamoxifen and hot flashes, ONCOTYPE score
Since I am on Tamoxifen (3 months), I have had hot flashes. How to get rid of them? Any ideas? How do I know Tamoxifen is doing its job? My ONCOTYPE score was 14 with a 4% possibility of recurrence in the next 9 years. What happens after 9 years?
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20 Years Cancer Free
Hello CSN Family, Today is certainly a Huge Milestone! For anyone just starting this journey I just wanted to give hope and encouragement. For me I had my surgery March 20,2002. Diagnosed Stage 3C, 10 out of 14 positive lymph nodes. Followed up with Chemotherapy & Radiation. At the time I was 40 years old with a 10 year…
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4 weeks out of treatments
Hi, I'm new to the group. My name is Scott and I was diagnosed in August of 2022 with Metastatic Squamous Cell pos. P16. It has been 4 weeks since I finished 35 rounds of radiation and 6 of chemo. I am wondering if there is anyone on here who have went through this and how they are doing after treatments.
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injections for ED after hormone therapy and IMRT
78 year old on Lupron since 12/22/2021. Will start 45 IMRT treatments this week. GS 4 (4+3) with 4 positive cores on biopsy staged at T3a and T3b because of neurovascular and seminal vesicle involvement. Has any tried trimix injections for ed?
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Trimix
I used trimix 6 months after surgery and it worked fine. The next time, 3 months later and ever since, it didn't work. Any ideas why?
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PARP Inhibitors for UPSC
Good evening. I need to make some insurance decisions during open enrollment, and I'm wondering if anyone on the board is on a PARP inhibitor for UPSC. I have a choice between private insurance through work and Medicare, and since I think PARP inhibitors are not yet standard of care for uterine cancer (although they are…
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How to find low-income, income-dependant housing
I can not, for the life of me, find any low income, income based housing! I need it for May 1st for me and my 'emotional support' dog. Mid-Atlantic, possibly West Coast (but hae to transport what's left of my stuff). Not the Federal Section 8 type in a project, bad area, or for families. I can't pay much on what I get for…
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Tongue radiation
I didn’t realize it would be so slow and every day would have new symptoms. The treatment stopped after 6 weeks and doctors said everything is owing great. I don’t feel so great. Every day it’s either my mouth is extremely dry or the next day it’s full of heart saliva. Does it get any better. It’s already seven weeks after…
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Yeast
I am a little past 6months from last radiation. Have been doing well eating. Just no spicy food. Friday after thanksgiving I lost my voice and ended up wit white spot under tongue and on inside of cheek. Throat started hurting also. Has anyone experienced anything similar?
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Recurrence stories
Ladies, Without a major symptom, how does one discover that they recur? Those of you who have recurred, how did you discover it? CT, PET, physical symptoms? Bleeding? Other? How soon after your last treatment did you recur? I am curious because of the very different opinions about scans that we get from our medical teams.…
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Looking for CML support groups in Portland Maine
I am lost. I don't know where to look in Maine. I was recently diagnosed with CML and just started treatment this week. Thanks, Julia
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LUMPECTOMY
I'm sure someone out there has had this done and i just want to know, what to expect and whats to come. i will also be having rad and chemo. I am having surgery in a couple of days, just want to know other peoples experience. thank you
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New Merkel diagnosis
Hi everyone, It sucks to even be on this website. I just found out my dad was diagnosed with Merkel cancel. His PET scan and surgery aren't scheduled until January 7th so we won't know anything for several weeks. I'm somewhere between shock, panic, feeling like i'm going to vomit, all the feelings i'm sure everyone on here…
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Back Pain...
Getting some right upper back pain after eating. Is this common after an esophagectomy? Could the back pain be a symptom of an esophageal stricture or dumping syndrome? The pain isn't from acid reflux. I will be seeing my doctor in a couple weeks. Or should i see the doctor immediately...?
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Second diagnosis of adenocarcinoma lung cancer
I had a lobectomy on my lower left lobe January 26, 2022. I ended up back in the hospital by ambulance twice after being released from the hospital. The cancer had not spread to my lymph nodes but in a CT scan after they did the lobectomy they found a suspicious growth in the lower right lobe and did a biopsy. That was…