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Normal CA125
Quick background: I’m 30 yrs old, 5’8 and 140lbs i noticed chronic bloating back in August and scheduled an appointment with my gynecologist. I had a 14cm cyst but radiology and CA125 were normal. It was a suspected dermoid cyst. I had the cyst removed and pathology came back stating it was 15% malignant (germ cell). i’m…
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Newly diagnosed and looking for support!
Hello everyone, I have been lurking for a few days and have finally decided to post. My name is Kirstin.. I am 47, diagnosed with stage 3b (T3N1M0) CRC on 1/19/23. The week prior, I had been experiencing sudden bloody diarrhea and unusual colicky pain (which was minimized by my PCP and GI for over a week until I insisted…
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colonoscopy
I have been cancer free for over 1 1/2 years from colorectal cancer I am due for my first colonoscopy since and I am looking for suggestions on how to stop the anxiety I am having for my upcoming test on May 24th. I just keep remembering the surgeon coming to me telling me I had rectal cancer. Thanks
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After coloctomy
My surgery is May 3rd and we are trying to figure out the after. We live on 3rd floor apt and have 40 lb pit puppy. I know I can't walk dog but will I be able to get up to our apt?my boyfriend thinks I should stay at my parents immediately after. I really don't want to but open to advice. Any other advice for immediately…
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My Mental Health
I had problems with bowel movements, kind of a constipation, but not really. It felt like every now and then a rock was preventing my bowel movements. I tried everything from changing my diet to drinking more water to taking diatery supplements, and nothing worked. About two months prior to my diagnosis of anal cancer, I…
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Radiation fatigue
Has anyone experienced extreme fatigue after full breast and node radiation? I am currently two weeks post radiation and still extremely fatigued. any advice would be greatly appreciated!
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Burning out my support system
After undergoing chemo and radiation in October of last year, my monthly chemo cycles go for another year through Nov '23. (Grade II Inoperable Brain Stem Astrocytoma.) I have good days and bad days, and feel as if I am burning out my support system (friends and husband) on my bad days. I know this is a "new normal". I…
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Anyone else having Severe All Over Body Pain Years out from Radiation?
I am a 2 1/2 year Metastatic / Invasive Breast Cancer Survivor. I Started having Severe All Over body pain with Radiation and it has Never Stopped. My Last Radiation was on March 3, 2021. I also have had Severe Exhaustion ongoing for that Long as well. It’s been Extremely hard to Walk, Stand, Sit, or Rest.
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Cancer or infection?
Hi - I’m 57 and In mid-February I began seeing symptoms of tea colored urine, increased frequency, weak stream which got worse over the next couple of weeks to include fever and an episode of night sweats and finally so much painful urination that I went to the urologist at the beginning of March. He found pus in urine and…
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Do You Need A New Normal?
Hello and welcome friends and fellow survivors. Today I am going to post an article made by a lady on the Inspire Network & Communities. Her screen name is Mandymuff and she is a mother and grandmother and lives in Canada. I contacted her and she happily said I can use her posting on CSN, she said "Thank you for asking!…
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Xeloda and nausea, please help!
My husband, recently diagnosed with Stage IV colon cancer, has been put on the Xelox regimen with 1 oxipalatin infusion every three weeks (he has only had 1 so far and it was well tolerated) and 2000mg of Xeloda AM/1500mg PM 5 days on/2 days off. He is only on his 3rd week of the Xeloda and he is having terrible stomach…
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Veteran with PTC
I returned from a deployment overseas Dec. 2021. October 2022, I started feeling very tired and unwell. My physical medicine and rehab doctor (from injuries obtained while deployed) finally convinced my PCP to take a look at my thyroid after my PCP kept saying it was my mental state and i was just anxious. They found a…
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cystoscopy - requirement
I'm considering an AUS after 5 years post RALP incontinence. A surgeon in my area (Raleigh) that does them scheduled me for a cystoscopy before he'd even talk to me about the AUS surgery. Is this normal? Actually, I'm more concerned about the cysto than the AUS at this point. Thanks.
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Newly diagnosed - looking for help and support
I am a 52yo single female just diagnosed with probable stage 3 colon cancer (adenocarcinoma that started in appendix). I'm told it's rare and aggressive. I'm still in the process of testing to determine stage and scope (CT today and Colonoscopy Friday), but trying to line up resources because I know things will need to…
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Interior Breast Staples
In late 1993 I had a lumpectomy and axillary dissection followed by 33 radiation treatments. Surgical staples were left inside my breast and underarm. Now, almost 30 years later, another doctor needs me to have an MRI (if possible) regarding a much different condition. My question: Does any other long-term survivor or…
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LOOKING FOR A.L.L survivors in their 30's
I AM LOOKING FOR ANYONE WHO WAS TREATED FOR A.L.L FROM THE MID 70,S THROUGH THE LATE 80,S. WOULD LIKE TO DISCUSS ANY LATE EFFECTS. I AM NOW 37 YEARS OLD, WAS DIAGNOSED IN 76 AND WENT THROUGH APP. 12 YEARS OF CHEMO/RAD "3 RELAPSES" ENDING IN 1988. I WOULD JUST LIKE TO COMPARE NOTES AND SEE IF ANYONE WITH A SIMILAR HISTORY…
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Endometrial carcinosarcoma cancer
I am in need of financial help so I can get my treatments. This is my 2nd time for cancer. I had Breast cancer in 2020. Having insurance isn't enough. Drs Office wants $2,000 down with $600 monthly payment till I have met my deductible, which is $6000. added to the $80 copay every time I walk into their office. My…
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Follicular Lymphoma - Rituxan and Bendamustine
Howdy - Anyone try this combination with anything close to Stage IV, Grade 2 follicular lymphoma?
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Chemo, when did you feel normal again?
Hi, I am posting this here since the OC board is pretty dead and I also had uterine cancer. For those of you who went through chemo, when did you feel back to your old self again in regard to energy, stomach issues etc...? Did it take weeks or months once treatment had finished? Also, has anyone here been on letrozole…
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Update on husband almost 6 years stage 4
It’s been a long time since I’ve posted. My husband was diagnosed in 2017 at 37 with stage 4. Many surgeries, an ostomy, too many chemos to count and radiation he is still here fighting and enjoying life! In between the 8 reoccurrence we’ve lived and enjoyed so much! Most recently he had 12 liver Mets removed, bile duct…
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Update and question (BRAF mutation)
Hello! My son (stage 4, liver Mets, BRAF) had a meeting with oncologist today. I mainly wanted to ask about a possible liver resection. He basically said it will never happen because he has many (small) tumors on both lobes of the liver and because his mutation (BRAF) which is very aggressive, makes surgery not only…
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Stage iv colorectal cancer
Hi, my husband was diagnosed with stage 4 cancer mets to the lungs and liver. He also has a peretonial carcenoma. He just finished 13 cycle of folfox. Everything has shrunk but they wont operate. They say the cancer will only travel more if we stop the chimio to operate. So continue chimio forever… should we get a second…
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Expected to keep a chemo port for 10 years.
I am so disgusted. I don't even know where to begin. I have been a cancer patient for 15 months already. I have survived 16 chemo treatments, my right breast being surgically removed, 5 lymph nodes removed, 18 radiation treatments. I could only tolerate my chemo port for 3 months. About a week after I got the chemo port, I…
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Ovaries removed under duress
Has anyone had a total hysterectomy planned and we decided initially to keep ovaries - then on the operating table the doctor talked me into taking the ovaries so under duress I agreed she could take them but that wasn’t what I wanted and now I’m so sad - I feel so empty and can’t stop crying
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anastrozole where it is manufactured??
I am looking for a drug company that manufactures "anastrozole" in the USA or the company is HQ in the USA that is FDA approved. Anastrozole is priced from 30ct for $18.00 to $250.00. Very Difficult to find the source location of some of the online places that is selling anastrozole.
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Abnormal ultrasound
I have very recently had an abnormal ultrasound of my uterus. I am trying to stay calm but I like to get as much information and advice as possible. So here it goes. Went to doctor for something totally unrelated and just happened to mention how my monthly cycles have been lasting longer than normal. I thought that I may…
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Personal care products with good ingredients
Thought we could start a thread for this where people can post the “good stuff” they have found. please post if you want to share. I have found a new foundation I like called DOLL10 by Doris Dalton. She is a breast cancer survivor herself and it is made with only good ingredients, no bad chems, etc. I now have that and…
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Struggles in Survivorship?
Hello, I'm new to this group, though I wish I'd joined years ago. I'd like to first say that I hesitate to post this question given the weight of so many recent posts about currently going through the diagnosis and/or treatment phase. However it is something that I have struggled with greatly and can't be the only one, so…
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breast cancer questions
I had my yearly mammogram. I have a history of breast cancer on both sides of my family. I was called back in a week to come in ASAP to have a diagnostic mammogrgam. This was done yesterday. Tech left and told me to wait. Dr came in and told me I had a close cluster of 5 calcifications on my left breast that were different…
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UC Davis anyone
Hello I am newly diagnosed with breast cancer and have yet to meet with my surgical oncologist. May 1st. I was very disappointed to realize that UCDavis medical center in Sacramento has no breast cancer support of any kind. I was hoping to see other breast cancer patients and waiting rooms and meet new people and join this…