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Cancer returned
I was looking in the messages here for people I knew back when I first got my diagnosis back in 2012. I don't see a lot of familiar names. Not sure if that is a good sign or a bad sign. In 2012 I had my left kidney removed because of a massive tumor. At the time of of removal they told me that I was stage 3A. It was clear…
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Extreme Thirst on Tamoxifen
Hi. I was diagnosed with Stage 1 breast cancer at the end of February. I had genetic testing and I have no mutations for breast cancer. I had a lumpectomy with regular lymph nodes removed due to their thick appearance on a breast MRI, and I had 20 rounds of radiation. I did not not need chemo due to my low oncotype score.…
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Cancer Forced Me to Learn to Be Sick-Overview From A Cancer Patient
I am posting this because when we read some of these other people's stories we can say yes I know what you are going through or I know what you went through because I faced similar circumstances. The cancer may be different or in a different but many times the treatment is the same. The day we were told, "It is cancer".…
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ADT plus chemo
I have watched some videos with Dr. Schulz and he seems to recommend to go after the cancer recurrences strong and hard ADT and Chemo for recurrence plus radiation if needed. I went to Sloan and they did not recommend chemo for my disease burden. What says this community?
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Osteoradionecrosis of the Jaw and Medication Related Osteonecrosis of the jaw
Here is a video I came across and it shows the 2 ways we can have jaw problems. And there is an alternative treatment to HBOT which is good to have but no guarantee it will give you the healing you need. They are now utilizing pentroxiflline and tocopherol. This video in on the medical technical side so my understanding of…
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Yearly check up
Hi Everyone and especially my summer 2016 cohort, I had my annual trip to see my surgeon/oncologist/urologist (I love my 3-in-1 doc), annual physical, derm, etc and all is well with my kidney. Always a relief. I know there has been discussion here about creatinine and eGFR - mine came out this time at 1.23 and 46. Pretty…
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Hair loss and chemo question among other things.
Around the first of the year I was diagnosed with non Hodgkin’s lymphoma. In a few days I will start my 5th treatment. Each treatment is 21 days and I’m scheduled for one more If all goes well. Anyways, around my second treatment I noticed if I even touched my beard or hair that I would see hair coming out. It got so bad…
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Thought it was behind me
Stage 3 tongue cancer (spread to one examined/removed lymph node). Tumor removal, neck dissection and radiation. First, for anyone reading this who is currently going thru treatment I want to give you encouragement...you will make it thru! It is NOT easy, but it will end. That being said, I need advice as I'm…
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Looking for information on/experiences with conservative treatment (Mirena/levonorgestrel)
Recently diagnosed with endometrioid adenocarcinoma FIGO grade 1 and had a Mirena IUD placed due to being at high risk for complications from hysterectomy. Does anyone have experience with this? Approximately how long did it take for relief of symptoms (bleeding, discharge) with this treatment ? What side effects were…
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multiple myeloma
I've just recently been diagnosed with several types of cancer&"possible" cancers. Multiple myeloma--thyroid--jugular vein--large bowel--skin cancer. Can someone out there give me some info on any of them? I can't go through-chemo-radiation or bone marrow transplant.thanks. sonitikki@earthlink.net
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4.5 yrs out, 2 brief bouts peritoneal irritation, and Ca125 up
Hello to all. Since I completed surgery, chemo, and radiation for uterine serous/clear cell, 1a but isolated tumor cells found out in one sentinel node (surgeon only took one sentinel node on each side), I have only come on annually, to report that I've had no recurrence of the uterine serous. (I do also have an indolent B…
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Skin care/household products after cancer treatment
Has anyone switched up their skin care and household products? I'm trying to get better about using cleaner products to help reduce the chemicals, if possible. I have very sensitive skin so it takes awhile to switch. My daughter got on me about some of the things I was using, and she was right. Anyway, I switched body…
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Weight loss being Breast cancer survivor
Has anyone taken Modere or NAT Keytones after having breast cancer to help jump start weight loss?
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Pc
I was diagnosed with pc back in 2021 I was scared to find out so I wanted a year to find out and when I did I was full blown stage 4 my psa level was at 98.8 did 5 chemotherapy my psa got down to 1 started taken cancer pills went back now my psa is back up around .40 having to do 8 more rounds of chemotherapy my iron down…
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Breast Cancer Metastasis with newly developed Cholangiocarcinoma
Hello, My grandma has breast cancer metastasis to the bones and also the doctors have in the past two months discovered cholangiocarcinoma in her bile duct. The doctors have recommended against surgery for the cholangiocarcinoma due to her age and because she also has breast cancer metastasis. Is there anyone in a similar…
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Reconstructive surgery and blood tests
I had reconstructive Delayed DEIP surgery at the end of February(4 months ago) and my recent bloodwork shows anemia and my CEA number went to 4.5. I am still swollen and may have an incisional hernia. Has anyone else had similar problems after this surgery?
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3rd recurrence of papillary thyroid cancer with tall cell features
I had my original DX in 2017, a TT and neck dissection 7/2017, second surgery - neck dissection in 3/2021, and now looking a third neck dissection for this so-called “good” cancer🥴🙄I am very scared about a third surgery with all the scar tissue from the first two! It’s hard not research all the terrible post-op…
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Jeannie Hopper-An Inspiration To Us All
Here is a story for us to use as inspiration and remember we can do this no matter the challenge. It is a story of a lady that faced stage 4 tongue cancer. She had a great care team but there is a lot involved in her treatment and recovery as would be expected. Here she shares her story to help and inspire others from her…
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P16 s cell throat cancer
7 radiations in , water tastes like acid any suggestions , what to drink . Can still swallow
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stage 3a RCC at 43
Good morning. I'm new here. Last November i had my right kidney removed due to an 8cm tumor which turned out to be RCC. i have approximately a 10 inch scar. the cancer hadn't spread to my lymph nodes just a tiny bit to some adjacent fat. i am on keytruda as a precaution for a year and already had my first ultrasound 5…
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2nd time but different
Invasive Mammary Carsinoma. Any info.please
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Recently diagnosed with Gleason score of 9
My biopsy last week revealed a few fives and sixes but the ugliest was a score of 9. The strange thing though is my PSA score of 5 about six months ago. Because of the high Gleason score, my urologist suggested the DaVinci surgery and a second opinion. After numerous recommendations and a consultation with Dr. Kawachi at…
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Any more gallbladder cancer patients?
It is wonderful to connect with gbc patients, but there aren't many of us!
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Head and Neck Cancer Patients Share Their Stories
Here is a short video from a fellow who was diagnosed, he says with throat cancer, tumor base of tongue, with lymph node involvement. They told him his new job for the next year is to fight throat cancer. Take Care, God Bless-Russ https://www.youtube.com/watch?v=qWYqirykEzM
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acoustic neuroma
i was recently diagnosed with an acoustic neuroma, I have no hearing loss or tinittus, no facial paralysis, only slight vertigo. my tumor is 1.8 cm long, so not large yet, but it's touching the brain stem already. What are the risks connected with the tumor touching the brain stem? Does anyone know what the chances are of…
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Needing support
Hi, I am really hoping to find some support on here as no one in my life gets it. I am in my mid 20s and my mother's only caregiver. Most of our family has already passed and I am not getting a lot of support from friends.I also have a high stress job so I am starting to feel extremely burnt out in all areas of my life,…
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BRAVES FAN UPDATE
Hello everyone 1st of all. Thank you for all the words of encouragement. Met my new cancer doctor and learned a whole lot. Also met with my surgeon and I am going to be in GREAT HANDS! I have surgery scheduled July 11th. It's is in my upper descending colon (sigmoid??) Which is better Than rectal I have learned. I am…
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My journey
I have been reading, and wasn't going to, but figure there are others like me. Not diagnosed yet, but on the journey.. 49 (for a few more weeks anyway), otherwise healthy. Routine PSA, first time being checked, 5.4 ng/mL. 1 month later, 5.7 ng/mL with a PSA Free % of 9%. Was told I would get a urologist appointment in 12…
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mTNBC
Looking for others who have/had been diagnosed with mTNBC.
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New To All Of This - Overwhelmed
This is my first time on this site. I was recently diagnosed with endometrial cancer. I am scheduled for a hysterectomy and lymph node removal in six days. It's been a bit of a waiting game until that is done and I know exactly where I am as far as stages and how far the cancer has gone. I am feeling so overwhelmed with…