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Humbly Asking for Guidance - Stage 4 Adenocarcinoma
On March, 24th, I sat with my dad at his oncologist's office. My dad sat in the patient's chair, and I sat next to him on a cold steel chair. My hands were sweaty and clammy...I was anxious, nervous, hopeful, scared, but all I could do was look back at my dad and ask, "Are you okay?" My dad was like always, calm & cool,…
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Free LE ( lymphedema ) Alert Bracelet
I have seen several posts on here about lymphedema and remembered that there was a site that many of us got free le bracelets. They were really bright pink, almost neon, for your wrist, but, you want it to get attention. They also have neon green for your ankle. I ordered one awhile back when I went in for some outpatient…
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chemoradiation w/5fu/Xeloda
Hi Everyone, For those of you being treated with radiation w/5fu do you receive your 5fu with the pump or do you take Xeloda (5fu in pill form). Also for those who do receive it with the pump any helpful tips for showering. Do they make waterproof bags in medical stores for the pumps.
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Hello. New here and cancer is back
Hello, New here and looking for knowledge from others on this board who might have similar circumstances. Original diagnosis 2014 - Prostate biopsy - Radical prostatectomy with Gleason of 4/3. 2016 rising PSA - MRI confirmed tumor on bladder - Scope of bladder confirms no perforation - 40 courses of radiation at MSK -…
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My marriage is falling apart since my husband's diagnosis
I swore that I would never join one of these group's and talk about my feeling with strangers but I need people who understand what I am going through and won't judge me. It all started in December of last year husband had not been feeling well for months and I kept begging him to call the doctor but he refused said it was…
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Dad is almost 2 years NED
I believe I started counting NED status for my dad based off of his follow up visit after having finished chemo, so technically if we go from surgery its been longer but I prefer to underestimate. I suppose I am just putting this out there for the timelines sake and also to let people know its possible. While I am so…
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T-Lymphoid markers positive
Hi Everyone, I am new to this forum. My brother (Age-32) who is in India had a Flow Cytometry test and the T-Lymphoid markers came positive.To be specific CD3,CD5,CD 7 -positive ,CD4,CD8- double positive ,CD 10 is positive The doctor ruled out Leukemia and is suspecting T cell Lymphoma. The CT scan report of the chest also…
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genetic testing and assays
There a few newer members here, and while I know the board has been on the quieter side, and these articles have been posted before, I wanted to share them so everyone can see that things are continually changing and getting genetic testing may discovered some of the new drugs are showing promise where the chemo/radiation…
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Here’s something to discuss
they say prostrate cancer it’s a second most deadliest cancer for men but the same time they say prostrate cancer is the most beatable treatable cancer. so with this being said would it be safe to say that what makes it so deadly is When men don’t catch it in time and it has spread distantly and that would be a sad thing…
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Enzalutamide, has anyone been on this?
My husband has now been told that he should take Enzlutamide tables. Lots of side effects with it. He has to sign to say that he has given his permission to use this. Has anyone on this discussion board been on this drugs?
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Advanced metastatic stage 4 PC triplet therapy
Hi, I’m looking for stories of successful triplet therapy for pc with Mets to lymph nodes, bladder and pelvic bones Gleason 8. I need some encouragement and help in my husband’s and my journey. thank you jo
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Lost of appetite
Hello everyone, I am going on my 3rd treatment of chemo I have no appetite this is the only bad side affect I have is there any medication they can give me to eat I drink lots of water, ensures and Naked juice please can someone answer my question Thank you 🩷
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Brain cancer - looking for caregivers
My husband has Oligodendroglioma grade III. just looking to connnect with other caregivers with this type of cancer
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Head & Neck
I am a caregiver for a head and neck survivor Would love to meet others
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Cough during/following radiation
Hey, I just wanted to give folks a heads up about the cough, pneumonitis, that can result from radiation for breast cancer treatment. I had a month's worth of radiation, and early on started to develop a mild cough. It got a bit worse as treatment went on, but the doc said it probably wasn't radiation-related. He said that…
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My moms cancer is recurring (for the second time) and I’m confused, please help
My mom is 56 years old, and the strongest woman I know. She had lung cancer when I was really young, and they cut out one of her lungs. I guess it wasn’t deemed necessary, but she didn’t go through chemo. 3 to 4 months ago she was diagnosed with uterine/cervical cancer. About a month ago, they noticed a growth in one of…
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https://m.youtube.com/watch?v=-ZXDohxylg0
Sure hope this video pops up the new PSMA scan is a major breakthrough they can actually use this technique while they are operating to help find any residual cancer cancer in certain lymph nodes it’s pretty amazing
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Support
I was diagnosed with tongue cancer about 5 months ago. I have been through surgery to remove the tumor and 28 lymph nodes 4 coming back with cancer. Been through chemo and radiation treatments. I'm 5 weeks in recovery from treatments and still having some difficulty I had to have a feeding tube placed during treatments my…
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On Pazopanib for 5 years with Stage 4 Renal Cancer
Hi to you all I was wondering if there are other people using Pazopanib for a longer time, my kidney with tumour was removed April 2011 and I was diagnosed stage 4 in December 2012. My oncologist used to ask me for feedback on my side effects to compare with other people in the USA who had been using the drug about 9…
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Husband Recent Diagnosis - Gleason 7
My 55 YO husband was recently diagnosed after high PSA (17), MRI showed spot, biopsy confirmed. Talking with surgeon tomorrow on treatment options. Does anyone have feedback on which treatments worked for them and has kept them cancer free? I have a list of questions for the doctor, but would love any specific questions…
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prostate hormone therapy
is hormone therapy necessary for those having received radiation? what are the pros and cons?
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Thyroid Tumor Markers from 3 Labs And All Different Results
Hello Everyone, Recent thyroid tumor markers from 3 labs have different results. I have a history of PTC with Mets to lymph nodes in 2008. Received RIA and no recurrence in 15 years. All thyroid labs tests have been undedectable and now all these different results. June 8th (Hospital lab) Thyroid Peroxidase Antibody,…
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VAERS: Are mRNA Adverse Event Reports Accurate? Dr. Jessica Rose w/ Dr. Kelly Victory – Ask Dr. Drew
Here is an interesting discussion on the VAER's Vaccine Adverse Event Reporting System (VAERS). A little over an hour, well worth the watch I guarantee you will get something out of it. These people have a good discussion on it and other situations surrounding the VAER's system, covid, and vaccines. I believe they are all…
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I have just found you folks!
My name is Thomas, and I had a complete Laryngectomy a yr and a half ago Now retired singer/ songwriter. I still play alot of Guitar, its been my life since I was very little. Since the operation I have watched friends and family just simply go away. It's been heartbreaking. So today I found you folks and I am hoping and…
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Suggestions on eating
Can anyone help me with some tolerable food choices that worked for you? My husband is on day 13 of 33 radiation and 3 of 7 for chemo. His taste buds are pretty much gone or make food taste horrible to the point of gagging. He is drinking High Calorie Ensure, and scrambled eggs are kinda okay. However, he really would like…
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Head and neck cancer
Hi, My husband has head and neck cancer with an unknown primary. He just had a feeding tube put in today. Tomorrow he goes for surgery to pull some teeth, because they are going to radiate his head and neck. Everything has taken so long to come about. In a couple of weeks he starts both radiation and chemotherapy. I am so…
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day 28
Hi.. Im on day 28 of steam cell transplant and still feel very weak....the MM took out my t11 on my back so I had a very long surgery . Im wondering is my overwelming weakness due to the transplant or the surgury. The only time Im feeling semi ok is when Im sitting. Is anyone else on day 28 ....am i babying myself because…
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Brain surgery
Anybody had met to cerebellum removed by surgery? Wondering why some do radiation and why some surgery.
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Just Tuning In - Still Going ;)
Like a couple of others, I am not around here as much with the new format. I take a look now and again but not do sign in often. Anyway, still in drug trial and it is still working. No more major reductions in tumors, but basically they are all stable, with the tumors that are being monitored with slight reductions. Since…
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Cancer Scare
After NINE years NED, I had a Cancer scare. My tail bone has become prominent and painful, and my White Blood Count tanked. I thought for sure the Cancer had spread to the bone. I tried my best to ignore it for a few months, but it got so bad, I had to go and visit my Oncologist, who examined me and ordered an MRI and…