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One year later
I am just weeks away from one year post chemo and I am having a tough time. The first few months post treatment I had such an appreciation for life. Now I feel like I have lost all the positive lessons I had learned from my cancer experience. Moreover, although my family has had their fun times return, I feel like after…
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Spring Is Starting-Spring Is Close
Once again here in Southeastern PA spring is and has been getting started. I am sure your part of the country varies from this location as per spring happenings Things are not totally bustin' out yet but after a few really warm days things will really get started. Every spring wherever you are at all things are new and new…
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Afraid it’s back..
Been in remission from EC for about 2 1/2 years. Beat it back with just chemo and proton radiation from Mayo Clinic. But now I’ve developed a small lump I can feel in the back of my throat. Having a CT scan this week but my gut feeling is that it is back. I know I should be more positive but what else would it be ? Don’t…
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Hi. I'm new here with a new diagnosis of endometrial cancer.
To start, last August I saw my PCP for my annual exam and wanted estrogen cream for dryness in my vaginal area. I was a medical transcriptionist for 40 years and did lots of OB/GYN reports with older women needing treatment. I asked to be referred to a gyn, but he said he could prescribe the cream if needed. I love this…
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Scared of liver lesions
Well, after weeks and weeks of pressure and fear, the unknown liver lesions have been definitively diagnosed as benign cysts! The liver MRI turned up 4, not 2....but my relief is permeating every cell in my body :) There are no words. One weird and concerning part of this is that it took until NOW for my PET scan from…
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Endometrial cancer - grade 1 can I get HRT
Hello all - I’m new here diagnosed March 13 with endometrial carcinoma endometriod type FIGO 1 ER 3+ and PR3+ p53 wild and p16 patchy - I’m having the total hysterectomy around April 11 - can I go back on HRT? I’m so scared about not being able to have it as when I started with perimenopause I got on estrogen / I was on it…
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Any long term survivors with stage 4
I have survived 1 year with Stage iv esophageal cancer. It spread to my bones and liver, and immunotherapy made my body attack itself too and I nearly died from liver failure as a result. I have also gone through many rounds of chemo that did nothing but make me sick and thin, as my cancer grew. However, I have always been…
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Hair loss/re-growth
Hello! I just joined CSN for ovarian cancer. I’m preparing for a total hysterectomy in a few weeks. That hopefully will be the last big hurdle. My question is about hair loss & re-growth. I realize everyone’s different but how long did it take for your hair to really grow back? I have peach fuzz & some stronger hairs…
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Anastrozole
Any thoughts or experiences taking Anastrozole?
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First treatment this week (rCHOP) - And Scared
I thought it might be helpful to post here. I am a 35 year old male with 2 beautiful daughters (3.5 and 1.5 Years old) and a most beautiful wife. I am scared that I wont get to see them grow up. I have a really good disposition on life and I am relatively healthy. I haven't had any symptoms from my Nodular Lymphocyte…
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Pleural Effusion and Draining
Has anyone here had pleural effusion and had to have it drained? How do they do it? Is it painful? Do you have to stay overnight in the hospital? Did it help you with your breathing once it was done? I have started having trouble breathing and the last xray a few weeks ago showed that I now have pleual effusion, so, I am…
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Anal cancer awareness day
I do not like that any of us were given this diagnosis. But today is ACA day. So get out there and advocate if that's your thing, be proud of yourselves for making it through the treatment! Keep fighting everyone. 💙💜💚💙💜💚
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Can you remove lymph nodes in neck area without radical dissection?
I just spoke to a friend at work who's husband has hodgkin cancer. She told me had had lymph nodes removed from his neck and he was in and out of the hospital. I have two lymph nodes that may need to be removed, can they remove them without radical dissection? Is this possible?
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Please HELP
I had a total gastrectomy 12/21/22. I don’t have stomach cancer but I needed the surgery for a different life threatening issue. Anyways, I had surgery 12/21/22, and it’s been a nightmare ever since. I’m beginning to get so discouraged. 1/1/23, they found out I had a leak where they connected my esophagus to my small…
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Alternative Doctors or Medical doctors who use natural medicine too
Hi, I just had a radical hysterectomy and now need to decide on the next course of action. My latest CAE showed 0.5 and my CA-125 showed 19. However, it is still recommend that the “standard of treatment” is 6rounds of Chemo. Taxol and Carbo? I was diagnosed with Stage3 Ovarian Cancer-clear Cell I would like a second…
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Just had my 6.5 years scan and it is NED!
Can't believe it is another 6 months already. Just want to share that I just had my 6.5-year follow-up. It has been 2 years since my last CT, so I felt more nervous than the last few US/X-ray follow-ups. But it is worth it as it is a NED visit, although it always picks up other issues... Life is uncertain, I wish everyone…
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hurt after bm
It's been two years since my last treatment for anal cancer. I had a very hard bm about 3 weeks ago, since then I hurt after every bm. Maybe hemroid? Anyone else go through this? I see my surgeon on Friday.
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Caregiver support-New Here
Good Afternoon Hope all is well! I am new here. My mom will be undergoing a surgical biopsy for ADH bordering DCIS and will need radiation afterwards. We received the news a week ago and we are trying to process it all. I am reading researching and feel overwhelmed. When the doctors ask “do you have any questions” I feel…
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Mom was newly diagnosed....
Good Morning Sending positive vibes to everyone on this first day of spring. My mom is due to have a surgical biopsy for ADH bordering DCIS. She will need to have radiation therapy afterwards. I am here for support to navigate this journey and find out ways to support her, find resources, find out what to ask at…
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VCP following surgery
July 2022, I had vats surgery upper line of left lung. Totally successful. No lymph node involvement. Very small nodule removed. My recurrent laryngeal nerve was damaged and is not going to regenerate. I have vocal cord paralysis which affects voice and breathing. Is this common? I may have thyroplasty surgery in future to…
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Vacmedix-A New Platform to Make Cancer and Viral Vaccines
Hello fellow CSN'ers, hoping you are all having the best day possible. I came across this article in my travels and thought it might interest some here on CSN H&N. it appears to be another group and this one I believe is in Britain, that is developing cancer vaccines and working on making immunotherapy better. You folks…
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saliva glands can they be transplanted
I had radiation to the head and neck and it fried 1 part of my saliva gland. All I have is the sticky part and it makes eveything hang in my throat. Although I have a feeding tube I cough alot because of that saliva. I found a doctor that can help me swallow food again by reconstructing my throat and removing my voice box…
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Survivorship
I'm in survivorship mode. Diagnosed 12/2021 with her2+ with <10% estrogen. Tumor 1.5 cm with lymph node spread. 6 rounds of chemo - taxotere and carboplatin along with target therapy injections of herceptin and perjeta which continued for 1 year. Cancer was apparently gone at time of surgery. Tumor removed and 4 lymph…
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Socialising physically with someone with an astrocytoma
I am a Ghanaian who have had a brain tumour surgery in 2020. I would like to have a personal encounter with someone in similar condition where we can exchange ideas and see if we going through the same pains
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New Problem: Radiation Recall?
Hello old friends, and new. The good news is that my husband's recent scans are all NED, five years out from treatment for SCC HPV+ cancer of tongue, mets to neck. Some of you will remember that we've had a few scares (episodes of new tongue dysplasia) handled by laser ablation. Happily, the state of his tongue has been…
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ess low grade
Anyone with ess low grade taking megace. I was diagnosed with ess 18 months ago and after surgery have been taking high dose megace. Wondering beside the constant hunger what symptoms are you having?
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Radiation side effects 1 1/2 year after treatment.
Good day all . My treatment 1 1/2 years ago was surgery followed by 33 days of radiation and 3 doses of chemo. Of course had the usual side effects....difficulty eating / lack of saliva / loss of taste etc but after 1 1/2 yrs I felt I had largely recovered maybe back to 80% normal. Now though, a new wrinkle and I was…
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Chemo for stage III colon cancer with BRAFV006 and MSS
Hi, Like everyone, I sure didn't expect to be here. Had surgery on 22 Dec. 2022, mass removed, 3/22 lymph nodes positive for metastatic. I'm 65, female, in pretty good shape. My fears over FOLFOX are numerous. I'm only just now feeling 'normal' again after having my appendix rupture (blocked by tumor) n the ER, then sent…
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Folfirinox failed to shrink my tumor
I had a scan on the 23rd after 2 months on Folfirinox and the tumor scarcely shrank--while inching closer to encasing the mesenteric vein. My oncologist did not give me my 5th Folfirinox on Monday but switches me to Gemcitabine/Abraxane tomorrow. My question is, why would Folfirinox not work? Did anyone else have that…
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Anxiety……
Treatment is over, cancer appears to be gone and I’m back to work. I have less to worry about than I have in a long time. But I find my anxiety getting worse every day, it comes on easier, stays longer. Ativan helps but I try not to take it often, thc helps but it’s not perfect. I can’t watch anything suspenseful or…