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No Lupron side effects. Is this normal?
Been on a 3 month shot of Lupron for over a month. Scheduled for radiation latter this month. I have read all about the horrible side effects of Lupron that can occur. I have always been in good shape. I do 30 minutes of circuit weight trading on machines almost every day and hike with my dogs in the national forest for…
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Cancer Survivorship Care Plans with Lynda Kwon Beaupin, MD-Video
Informational video on survivorship plans and thoughts for your survivorship moving forward. Take Care, God Bless-Russ
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Biopsy results
Hello, Biopsy result shows 3 tumors, two are 3x3, and one is 3x4 for a total gleason score of 7. The report also says that cribriform pattern 4 was identified focally. A quick google search suggests that cribriform presence isn't a good thing, anyone have a similar? See the surgeon tomorrow for discussion on results. Thank…
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Rang Out - Ding-Ding!
DING-DING, DING-DING, DING-DING 🔔 Senior Chief (Ret), Departing 🫡 Finished 35 Rads (60 Gray [Gy]) today. Finished 7 chemo's (carboplatin) last week Wednesday. Tomorrow starts my recovery period. So I'm thinking come this weekend I start enduring 'The Suck' 😕 Problem is, Saturday we are attending a 'Celebration of Life' for…
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2 year old with clear cell sarcoma of the kidney (ccsk)
Hello my two year old is currently having treatment for ccsk it’s really hard to find anyone else who has this type of cancer would love to no if there is anyone else out there.
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PSA Detectable 6 Months After RP Surgery
Hi all, Posting on my father’s behalf. My father had a prostatectomy in January. His PSA has been undetectable since then except for recently (6 months post RP) when it rose to 0.28. The doctor has ordered a PSMA PET/CT scan to determine the cause and where. Spoke somewhat about possible follow-up radiation therapy. Has…
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My Husband's prostate cancer has come back after 15 years.
My husband was diagnosed in 2007 with prostate cancer. He was given hormone treatment, and radiation treatment. After being monitored by his consultant, and PSA level was coming down . I remember the last time his consultant said that his PSA level was undetectable, he was clear of cancer. Once every 6 months he would take…
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Anvirzel Honduras
Has anyone heard of this drug from Honduras. Anvirzel is from the oleander plant, the non-poisonous type. It is said to help lung, breast and other cancers. Sounds like it is FDA approved for certain patients.
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High Kappa Light Chains
I've been off and on sick since 2015. First in 2015 I woke up in extreme pain all over my body. Drs didn't know what it was. After about 9 months of being in pain I switched to a whole foods plant-based diet in early 2016 and I got better. About 2 years later I got sick again. A lot of body pain. Then I went on a super…
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Extreme claustrophobia and need an MRI
Hope everyone here is doing well. I have a question. I have been diagnosed (by a biopsy) with breast cancer and now they want to do an MRI. I am being told it will be a closed MRI and I will be given two valium. I am EXTREMELY claustrophobic (had a donut CT scan and freaked out even on that) so am wondering if there are…
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radical neph March 22. 2023
Good afternoon I felt like I had an obligation to sign up and post for this site helped me tremendously. I didn't have time to do it before surgery but now I am in the position to be thankful, grateful, and willing to help others. Here is my story and some tips for others> 62 years of age, history with uric acid stones…
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Needing to decide on single vs bilateral mastectomy and doing reconstruction.
I was diagnosed with DCIS stage 0 in my left breast in July. I have to get a mastectomy due to how extensive it is. They want to know if I want to do a bilateral mastectomy, reconstruction. The single mastectomy with a lift on the other side. The other side shows no cancer and I have no genetic markers. I really have no…
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Throat & Neck Cancer - HPV 16+
New post to share my story. Age 59 year old male, very overweight. I was diagnosed with throat and neck cancer hpv16+ Fall 2022. Started in my right tonsil and spread to my lymph nodes on right side of my neck. Doctors provided two choices for treatment they said about equal outcomes. First choice was radiation and chemo…
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One Day Jaw Reconstruction Procedure & Dental Prosthetics Site W/ Video
Roswell Park Comprehensive Cancer Center is a cancer research and treatment center located in Buffalo, New York. Founded by surgeon Roswell Park in 1898, the center was the first in the United States to specifically focus on cancer research. Link-- One thing that is unique in Head and Neck cancer and a very unwanted…
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Venting Caregiver
Hi first time poster. I’m THE support person for my husband. In 2018 he was diagnosed with HPV+ SSC of his right tonsil and 1 right lymph node in his neck. He had the TORS of his right tonsil along with right side neck dissection. Recovery time was about 7 weeks and no feeding tube. It was a success and doctors gave him…
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Double Mastectomy Pillow
Hello, I will be having a double mastectomy in two weeks and the nurse navigator recommended I get a mastectomy pillow. Can anybody please recommend a pillow? I’ve been looking online but there are so many I really don’t know what to pick. Thank you!
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Letrozole and side effects
Does anyone know if the side effects of Letrozole are permanent? I’d rather take my chances than continue to be in pain for the next five to ten years. I have the joint pain, the chronic cough, the hot flashes and sweats. I already have osteopenia so what damage does this pill actually do besides lower estrogen? Curious
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How long can chemo continue?
Hi everyone, I am new here but been dealing with stage 4 rectal cancer that metastasized to my liver pretty bad with a few nodules in my lungs. I am fairly young at 29 and this has been my first real experience with healthcare. I have been in treatment for 9 months and have had good results so far with liver lesions…
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Terrified and can’t decide what to do. Precancerous, doctor tells I need full removal of everything
Hi everyone! my biopsy came back with borderline adenocarcinoma, and suddenly I was offered atomic bomb version - full removal of uterus, ovaries, cervix - all of it. Sounds a bit too excessive to me, and I am not sure what to do? They say it has 25% chance of developing cancer. I am 52, thin, fit, eating healthy and never…
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just diagnosed with endometroid adenocarcinoma stage 1
I was just diagnosed with stage 1 utereine cancer and have an appointment with a gyn/onc next week. I am so nervous about all this. .I am on HRT and they told me to just stop it.. I dont want to stop it cold turkey and I am hoping I can take it after surgery.. I wont be able to function without it. . has anyone else had…
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Pregnancy?
Hi everyone. I know I am a real anomaly here, as I’m only 39 and female and was diagnosed with bladder cancer in 2021 when I was 37. It was Ta, removed with TURBT, and follow up cystoscopies were performed every three months. I am now 39 and have had two small reoccurrences the past few months I also just found out I am…
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PSA Rising Fast after RP
PSA Rising I was first diagnosed with PC at the age of 53. My RP surgery was on 12/20/2020. A week and a half later, I was experiencing a lot of discomfort and morning erections from the catheter, so the doctor removed the catheter. The day after that (12/31/2020), my testicle grew 3x to its regular size, so my daughter…
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Update - Possible NED - Thoughts?
Hey all, It’s been some time but wanted to provide an update and get some perspective! My mother (61) completed chemotherapy (cisplatin) and radiation (70Gy) on 14 February. She had one full dose of chemo and then a 3/4th dose because she was pretty ill (hospitalized with peg tube placed) in later weeks of treatment. Three…
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Arimidex and Insomnia
Has anyone else experienced insomnia while on arimidex? If so, what, if anything, did you do to counteract it? I've only been on it for one week, but within two days of taking my first dose I started not sleeping? I'm just wondering if insomnia is a fast-acting side effect or just coincidental? I normally have no problems…
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xeloda, hand and foot syndrome, tips?
I am taking Xeloda pills (14 days on, 7 days off) as my chemo for recurrent breast cancer. One of the side effects is hand and foot syndrome. My feet become very red and tend to blister by the end of the 14 days. It becomes painful to walk the last day or two. My feet are starting to itch. Yeah, i do put on lotion every…
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On opting out of further hormone treatment
I'm 70 years old and was recently diagnosed with PC, Stage 4, Gleason 9. I've been on hormone therapy (Zytiga) for 6 months, with good results (PSA 0.08) but debilitating side-effects. Probably another 3 months, then radiography treatment. After this, I'm considering opting out of further hormone treatment. It's a quality…
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When am I considered a survivor?
I think I didn't look into these boards before because my treatment has not officially begun. I was diagnosed with invasive ductal carcinoma March 22nd and plunged into countless appointments/consultations for a few weeks and now I am waiting for my bilateral mastectomy May 11th. I lost my sister to ovarian cancer and my…
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I feel alone…
Hi, so I wanted to tell my story and maybe just get some advice. I was diagnosed with Endometrial Cancer at 22 years old. My doctor says I’m one in a million for this diagnosis.. I feel guilty for being diagnosed on my moms birthday, I feel like now she just connects her birthday with the day her little girls whole world…
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Leiomyosarcoma chat
I am searching for survivors of leiomyosarcoma and would like to chat about treatments. Sandra from Alaska
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Verzenio/Abemaciclib
Hi everyone- My oncologist wants me to take Verzenio in addition to hormone therapy and ovarian suppression. I’m not convinced I would benefit and have read about the potential adverse side effects. Was wondering who is on it, what your experience has been, and what your cancer staging/lymph node involvement/Oncotype etc…