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Newly Diagnosed Cancer Patients: Questions To Ask Your Health Care Team
BY Rosemary Catallo Patients and their families often come into The Learning Center, where I work as a librarian, to seek information. After interacting with people for many years -- and from reviewing the large amount of information we have access to here --I've come to understand what information newly diagnosed patients…
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CT scan shows something on liver
Its been two years since my colectomy and completion of chemo for stage 2b CRC. This morning my 6 month CT scan showed a spot on my liver that the radiologist labeled "probable metastasis of previous cancer". Anyone else had this? Next step is PET scan next week. I'm trying to remain optomistic that this is something…
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DIM and Sulforaphane as an alternative to drugs
I was diagnosed in 2021 with estrogen + breast cancer. Lumpectomy and no nodes involved. I had 16 treatments of radiation and was put on arimidex. The results of the drug I was hospitalized for very high all over the place BP, fast heart beat, chest pain, it throw my thyroid off . I can’t take the other drugs because I may…
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Eight years later...
Hi everyone. I am eight years out of having breast cancer and I had all the things that go with it.. Chemo, radiation, etc.. I am now really suffering with osteoporosis, osteoarthritis and all the symtoms of fibromyalgia.. not to mention I have had insomnia since as well.. Is this common? Has anyone else suffered with…
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Concerning for malignancy on Liver ultrasound report
I’m new here and hoping to get some information. I recently had an abdominal ultrasound due to mild, off/on abdominal pain. everything was normal except a 3.4 cm mass on the left lobe of my liver. Ultrasound report stated, “concerning for malignancy” so needless to say I am a wreck. My doctor put through an “urgent” CT…
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CyberKnife as Treatment
Has anyone heard of or been through the treatment that uses CyberKnife. I'm only reading really good things about this noninvasive type of treatment. CyberKnife.com.
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Is post radiation heartburn common?
I’m 19 months post radiation for base of tongue cancer. Radiation killed the cancer as well as some taste buds and saliva glands. Because of dry mouth and that damn “velcro” at the back of my tongue I still have trouble eating most real food that seems to turn into sawdust and doesn’t want to go down. So I’m still living…
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Letrozole side effects? stage 1A
Hi - I'm new to the board and this is my first post. Was diagnosed with stage 1A, grade 2 endometrial cancer earlier this year. Had full laparoscopic hysterectomy early August (overall healing ok) - no spread, lymph nodes clean - but positive pelvic wash. Surgeon and hematologist have put out the option of taking letrozole…
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Roll call for Endometrial Adenocarcinoma any stage
No many active posts now, so I said let start this topic just for information, anyway the difference between Endometrial adenocarcinoma and UPSC is minimal. Thanks I'm Endometrial Adenocarcinoma Stage 4. Diagnosed in April 2015.
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Newly diagnosed
Would anyone care to comment on what kind of pain they experienced while waiting for surgery? A small amount of spotting and what felt like menstrual cramps at age 67 led me to see a gynecologist that did an US and a biopsy. The biopsy showed group 1 cancer cells. I have met with a gynecological oncologist and I am…
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Update or Progress?
Just got a call from the cancer dr.They want to see and meet me next Wednesday so this Friday I have 2 scans. . next Wednesday. I see the cancer doctor.. and then Thursday,I see the doctor that did My colonoscopy. Not sure of the process but here we go.. I'm only 1 week since diagnosis of colon cancer.
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Need Advice/Guidance
Hello everybody. I’ve finally gotten so desperate that I’m reaching out to anybody who can help me. I am the daughter of a cancer patient. My mom was diagnosed with stage 3 colon cancer in Feb of this year. She went through the surgery and recovery and started chemo in the beginning of April. First treatment went…
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Feeling came back!!!
[Left tonsil & lymph; HPV. Modified radical neck dissection (11/20), Cisplatin Chemo x7 and 33 radiation for 57 rads (1/21 - 2/21] Something weird happened to me last night ... I was scratching that chronic itch under my left jaw and I FELT IT!!!!! Here we are some 2.5 years post surgery and I finally have feeling back in…
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Peritoneal carcinomatosis
I have PC, and have had 2 surgies and countless chemo. Chemo before HIPEC surgery and after, still showing signs of cancer via blood tests, HIPEC surgery completed 10 months ago and they also reconnected my colon, removed spleen, gallbladder, ovaries, uterus, and scraped diaphragm 💙 on FU chemo and MVASI, anyone heard of…
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Arthritis after Chemo
I finished my chemo treatments in October 2010, A/C and Taxol. In the past two months, I've started to experience a lot of pain and stiffness in the thumb on my right hand as well as in my back. I'm taking therapy on my thumb but so far it hasn't improved. When I started my chemo treatments my oncologist told me that if…
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Has anyone ever just walked away mid-treatment?
Somewhat of a rant (sorry) but frustrated (try to condense this): Stage 1 anal cancer. Doctors came up with my generic treatment before my scans were even done saying the "5 weeks of radiation and two weeks of chemo" are standard now for this (stages 1,2 and maybe more it seems). I don't see how one cookie-cutter treatment…
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Question on Finding
I got the below finding on a Triple Rule Out Scan yesterday. Haven't talked to my dr yet but anyone know what this means? MEDIASTINUM AND HILA: Scattered mediastinal or hilar lymph nodes which are not pathologically enlarged by size criteria.
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First scans after immunotherapy
Hi just had CT scans after 4 treatments of ipi/nivo. I meet with the doctor on Thursday to discuss results. Need wisdom and hope for good results and how to go forward. Thanks for your support.
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Pregnancy after breast cancer
Hi all, I was diagnosed with stage II IDC with one lymph node involved in Feb of 2020 at age 28. We have a son that we welcomed via surrogacy in 2021. I’ve always dreamed of having a big family and am finding it difficult to let go of the dream. I’d love to give my son a sibling, but surrogacy is horribly expensive and due…
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First Day with No Hair!
I finally had to shave my head today. I knew this was coming, and I didn't want it to be a big deal, but it is. I really wanted to be one of those people who could just confidently rock the bald head, at least in my own home. My husband is out of town and I thought it would give me a couple days to make this normal for…
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What Else Can We Do For The Pain?
My 81 year Father was recently diagnosed with metastasis prostate cancer. It was shocking news and such a blow to us all. He completed a few radiation sessions and continues to take all his medications well. We are awaiting the start of his hormone therapy in a few weeks. Although he has prescription meds for his pain,…
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Myelofibrosis/blood cancer
I was diagnosed on 11/15/19 with myelofibrosis - it's a rare kind of blood/bone marrow cancer. I'm on a pill form of chemo - jakafi - and beginning the stem cell therapy transplant process. Having a 'rare' cancer is all kinds of frustrating. And it's isolating. As I've never had cancer before, maybe that's true for all…
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Pain
Has anyone else read about how common it is for bc survivors to continue pain two to three years after initial treatment? This is the article: Breast Cancer Treatment Leaves Patients With Chronic Pain Baltimore Sun, 2009 Nov 11 Persistent pain affects nearly half of breast cancer survivors for 2 to 3 years after completion…
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Peripheral neuropathy from Cytoxan/Taxotere - permanent?
Hi everyone, After my second round of Taxotere/Cytoxan, I am experiencing pain in my fingertips and some tingling in my toes. Is this peripheral neuropathy? If so, what does that mean? Is it permanent? Will it get worse? Does it mean I should stop the chemotherapy? Any thoughts appreciated. Eva
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Icing hands and feet to prevent peripheral neuropathy from carboplatinum, taxol, other meds
Just a reminder to newcomers here that this works. I was in for a completely unrelated treatment last week, and saw a woman beginning chemo who had been offered the scalp icing to save her hair, but had not been offered hand/foot icing, which I think is a terrible shame, since hair grows back quickly, but the pain of…
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4mm Gallbladder Polyp found in Ultrasound
Hi I was just told that I have a 4mm polyp in my gallbladder today. I have done some research and learnt that they can be cancerous once reached at 1cm. I was advised to remove my gallbladder. I am 36 years old, and confused what to be done. Sould I wait and monitor it or just go for the surgery? Can anyone share their…
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New here and so afraid
Hello. New to this group. Have not been diagnosed yet but fear the worst. I am 60, post-menopausal. Saw a doctor a month ago after two bouts of sharp pain on my right side while running. CT shows 9.4 cm “soft tissue mass.” No other symptoms but today I got blood work back - CA 125 of 287 though CEA and CA 19-9 were at…
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Galleri Blood Test--Blood Test For 50 Types Of Cancer Could Speed Up Diagnosis
In my search for information on the NavDX blood test for cancer, I also came across another Blood test to detect cancers as well. It is very similar I think to the NavDX test. I think these tests are clear examples of medical advances in the field of cancer testing. I think from what I am reading I am not sure if it is…
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Should You Wear A Medical ID Bracelet? Yes It Could Save Your Life And Avoid Problems
Hello, everyone, I hope you all are having the best day possible. I was recently at our local H&N support group and the meeting was over and I was talking to one of the nurse navigators and we covered a couple of things about my condition overall and I told her I should consider a medical ID bracelet maybe and she agreed…
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Bone pain- advice sought
Hi there, I had a 1.3 cm chromophobe (eiosinophilic variant) tumor removed by robotic partial neph in early 2021. No sarcomatoid features or lymph node involvement. My scans have been NED and this year my doctor said that I didn't need to do anymore scans or followup because he said it definitely wasn't coming back. Do you…