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Small cell lung cancer
My husband has small cell lung cancer and is in his fourth "round" of chemo. For him, a round is a five hour infusion of two cancer drugs - usually carboplatin and taxol, of late. This time his platelet count was too low, so they just gave him taxol. I've never seen him so low. He was diagnosed three years ago, in an early…
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Biotene products hard to find
For those of us who suffer from dry mouth from our cancer treatments, rely on saliva substitutes . I have been using the Biotene products for over twelve years. Now I can't find it and if I do, retailers are asking high prices for it. I just ordered a new gel product. Hoping this will work. I use it when I go to bed so my…
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New to this
I was diagnosed two months ago. Am awaiting treatment. Chemo, surgery, radiation, and follow-up medication. I am the caregiver for my disabled husband, an elderly dog, a one-year old pup, and a needy cat. I have no support system. Our son is autistic and doesn't have a car so he can't get here to help. Our daughter, a…
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Radiation Recovery
On 9/8/22 I was diagnosed with low-grade glioma of the brainstem. I underwent surgery on 8/23. Resection was not possible. I completed 6-weeks of radiation treatment on November 11. I am seeking to understand what recovery looks like. I am still quite sick. Mornings are typically best, but by 1:00 pm I am 'sick'. It's…
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First week partial robotic had 3/07/23
hi im Jane today is the one week mark of the day I had robotic partial nephrectomy I can’t help but notice this yucky taste in my mouth. Has anybody experienced that? I go for post op appt. On the 20 th I’m 61. What is to be expected? Thank you
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Grade 3 papillary tumor of the pineal region
Hello, I’m new here. this is my first post so I will tell my story, I’m 27 and was diagnosed with a brain tumor in November 2022. In December I had a partial resection because of where the tumors are the doctor couldn’t safely remove because the main artery in my brain that Carrie’s blood to the brain is wrapped around the…
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Have to get a molar pulled
I am a thirteen-year survivor of nasopharyngeal cancer. Through the years, I have spent thousands on my teeth. I had a molar that had a crown on it. It decided to come loose and fall off. Now I need to have the root pulled out. My dentist has put me on two meds. Pentoxifylline and vitamin E to ward off osteoradionecrosis.…
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Tumor Deposit pn1c and Perineural Invasion - stage IIIA
I post couple weeks ago about my Robotic Assisted Sigmoid Colon Resection surgery. Now the surgery report came back. It brought back more bad news. My primary tumor is PTis-1. Meaning maybe Tis or T1. However they found 1 tumor deposit and Perineural Invasion. I guess no one can explain how it happens. Now based on the…
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carrot juice for headache
I found out that drinking carrot juice daily for cancer solved my problem with the headaches I have had since I was a kid. Thit is strange to me, but I don't take pain pill for headache for second week already even the headache got worse with the chemo. Maybe my discovery can help someone else.
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BPH treatment options years after external beam radiation.
I am 7 years post radiation treatment. My PSA has gone from an 11 to 0.19. I have recently experienced urinary retention, completely unable to urinate, requiring a trip to the ER to be catheterized. I have seen a urologist (my original one retired) and we are discussing treatment options. She stated that the "radiated"…
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Chemo induced Laryngitis
I have a doctor appointment with a Throat doctor to evaluate my condition. I have have chronic hoarseness or possibly laryngitis which I attribute to the Chemo drugs. My onocologist and the various nurses I have spoken with have claimed no knowledge of such a side-effect. How about all my fellow cancer fighters? Any…
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Radiation cause trismus
Hi all I am a 68 year old lady who had surgery this time last year, my ENT surgeon had to stop though as tumor that they think started on my left tonsil cT4 N1 HPV was big and wrapped around my carotid artery. So then underwent 7 weeks of radiation treatments 70 gy and 7 weeks of chemo Cisplatin. So far my scans have shown…
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Hurthle Cell Carcinoma
Need help in information for hurthle cell carcinoma. So much different info online, scary, confusing, etc. Do I need a Dr/sugeon that specializes Hurthle Cell Carcinoma?
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Myelofibrosis, post-ET, lab results?
What's kinda standard or common to see in a cbc/differential lab in someone with Myelofibrosis? Are nRBCs super common? Thanks.
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Side Effects switching from Tamoxifen to Anastrozole
I have been on tamoxifen for 4 years and it is now time to switch to an AI. If you have switched from tamoxifen to an aromatase inhibitor (specifically anastrozole), what was your experience? Did you gain weight? Pain? I've tolerated Tamoxifen pretty well, with the worst side effect being weight gain that will NOT come…
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How common is it to have cancer three times?
A friend of mine has survived leukemia twice. She's been in remission for nearly 10 years. She was just told that they've found masses on her liver, lungs and uterus and has to have a biopsy done. Is it possible that this could be something other than cancer? Are there long-term effects of treatment that could cause this?…
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Need treatment advice - especially regarding HIFU
Hi, Everyone. I'm 51 years old and was diagnosed with prostate cancer a couple weeks ago after an elevated PSA was found in my yearly checkup. This was the first time my PSA was ever tested. First test: 9.5, second time 9.7 with a 2.96 predicted value. Biopsy results came back with two positive results: one at 3+4 in right…
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Breast Cancer
I was diagnosed 1/18 /2021 of breast cancer I was in stage 3 A on 3/16 2021 I had a mastomey of my left breast started chemo 4 /2021 completed that 9/23/2021 started radiation in 10/2021 finished it 12/2021 everything moved so fast with all the rest of my treatment's and rest I was so scared over whelmed didn't know from…
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Boom Boom Radiation Therapy
What a dumb name and I refuse to use it from now on, but has anyone here had this type of low-dose radiation treatment (4Gy/2), presumably for some form of indolent NHL?
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Second Opinion on Needle Biopsy
Hi Everyone: My husband is scheduled for a targeted needle biopsy of the prostate next week (based on MRI results), we are in Calgary, Canada. Based on You-tube videos from the Prostate Cancer Research Institute in California, they recommend getting a second opinion for pathology and Gleason scoring on the samples. I don't…
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Lung cancer and plural effusion
I was diagnosed with lung cancer in 2021 treated with chemo and radiation. Now there is fluids in the lung with catheter to drain since August 2022. It is being drained three times a week and it has not stopped. Has anyone had the experience and how did you and your Dr handle or treat it. Bob777
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Encouragement and checking in
Hi everyone I often read and rarely post, but I wanted to update and hopefully have some words of encouragement. I have stage 4 metastatic cancer KRAS mutated G12C, TMB Low, MSS. My cancer was caught early at stage 2 and two years later returned in my liver, I was NED for a few months and then returned in my right lung.…
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My cytology says: Suspicious for high grade urothelial carcinoma
What does my cytology results mean by : Suspicious for high grade urothelial carcinoma?? I had a TCC in right kidney pelvis. The kidney was removed in Nov 2022. I am on Plavix so my urol doctor does not want to do a bladder scope yet. I am sheduled for a CT next month. All info is helpful. Thanks
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Cancer with a transplant organ
I'm searching out to see of anyone knows or is a transplant recipient with cancer. My husband (56 years old) had a kidney transplant in 2019 and was diagnosed with stage 3 kidney cancer 4 months later and then in 2020 was diagnosed with stage 4 as it progressed to his lungs. As of Feb 2023 it has progressed to his…
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Single mom in Dallas with Stage 4 Looking for Support & Friends
Hi All, My name is Shannon. I have stage 4 colon cancer metastasized to my liver. I'm a single mom of an amazing six-year-old boy. I had emergency colon tumor obstruction surgery at the end of December. Just completed chemo #12 with two more to go before I get another CT scan for liver surgery consideration. I look forward…
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Support Group
I have been trying to find an in-person survivor support group near me I live in Fort Scott Kansas and I having real trouble finding this would anyone know of anything place I could go or where I would even look for one? The discussion boards are great but I fill I need to connect with other people around me that have gone…
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T cell LGL leukemia
Hello everyone, so I’ve been trying to get to the bottom of my neutropenia. They picked it up in my routine blood work when I was pregnant. It’s been 3 yrs of limbo of not knowing what’s going on. My WBC and RBC are always low and my neutrophils are 150-400. I’ve had one bone marrow biopsy that showed the tcell gene…
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t-cell LGL leukemia... or not?
I'm sorry if I repeat this, I posted it 2 times as a comment on similar arguments, than I thought maybe is better to create a new topic. I'm new in the forum and I don't know how is better. Hallo, I'm a 43 y.o. male and I've been diagnosed of t-cell LGL leukemia... or maybe not! I can't still understand the mechanism of…
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Cyclophosphamide
Hello there, I have LGL Leukemia and im wondering if anyone can share their experience with oral cyclophosphamide. I’m going to start it here soon and was wondering how people handled it. I took methotrexate before and my side effects were mild, just really tired and little nausea. Cyclophosamide seems to have a longer…
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LGL T-Cell Leukemia
I am a 38 year old female just recently diagnosed with LGLL. I have a 17mo old little girl, so the statistics of 10 year life span and no cure are very upsetting to me. This is such a rare disorder. I am trying to stay positive but since this is so rare, it limits research. I would love to hear anyone elses story who may…