-
Cancer Scare
After NINE years NED, I had a Cancer scare. My tail bone has become prominent and painful, and my White Blood Count tanked. I thought for sure the Cancer had spread to the bone. I tried my best to ignore it for a few months, but it got so bad, I had to go and visit my Oncologist, who examined me and ordered an MRI and…
-
Research article on resistant tumors
This is not specific to uterine cancer but is so interesting https://www.bbc.com/future/article/20230704-the-mystery-of-microbes-that-live-inside-tumours
-
Breast Papilloma
Has anyone had a situation like this; A small cluster of micro-calcifications were found on my annual mammogram that were not seen on my last Mammo or the annual MRI I had six months after mammo. There were two additional areas of micro-calcifications that were too small to biopsy. They biopsied the one cluster and it came…
-
Prostate recurrence 6 years after radiation ADT
Found out my PSA is 70 ng/dl. PSMa Pet scan lymph nodes from pelvis to cervical. Pelvic bone Mets and L1 bone Mets. No organ involvement. prescribed fermigan and abutamide. 51 years old. Do people go on disability with chronic ADT?
-
Recent Lab Results
Hello All, Would like your opinion and guidance on my recent labs. Alpha Fetoprotein, Tumor Marker 8.2 ng/ml. (high) Liver Isoenzymes 71 (high) Intestinal Isoenzymes 0% (zero) Alkaline Phosphatase Isoenzyme is normal at 39 Thank you.🙂
-
How long did chemo curls last?
How long did your chemo curls last? I was done with chemo last Aug and thought they would last about 6 months, but they are still here. Trying to decide if I should keep it short or let it grow. Don't want to suffer through the fro, only to have it start coming in straight again, and have to cut off the curls. My hair…
-
The New Normal
I hate that phrase, I don't need a NEW normal, I'd like my old normal back, please and thank you! What's caused this blip? My oesophagus (I cant spell) is now really small, as in REALLY small, as it took my over 5 minutes to get a 12.5 mm barium tablet down. Its around 1 cm.. I'm back on the roundabout, barium swallows,…
-
FIGO staging updates for endometrial cancer
Just came across this news. The FIGO stages now have a bit more detail in the breakdown. I hope this will help to improve treatment for anyone diagnosed in the future. Inclusion of the various histological types, tumour patterns, and molecular classification to better reflect the improved understanding of the complex…
-
Laryngectomy
I am about to undergo surgery for a full laryngectomy and am interested in connecting with others who have had this surgery and cancer of the larynx. Gracias!
-
CEA is rising
I was diagnosed 10 months ago with colon cancer. I had a colectomy and they removed a 6.5 centimeter tumor that had partially obstructed my colon. They removed some of my colon including the tumor and 32 lymph nodes (originally I thought the number was 21 but after reading the report I found it was more) All lymph nodes…
-
Wishing Everyone A Happy And Joyous Independence Day 2023
As we celebrate the 4th of July Independence Day. I wish you all a wonderful day filled with cookouts, family and friends, fireworks displays and the pure joy of unfettered freedom. May we remember the price paid for by our founding fathers to establish this nation. May we also consider the price paid by many Americans to…
-
vaginal burning
Hi everyone: I had intense vaginal burning months after my radiation treatments ended. i went to 4 different doctors, and none of them knew what to do. have you experienced it?
-
Dry Mouth
What is the bast thing to do for dry mouth. Has anyone used saliva substitutes? Radiation to his neck has caused my husband to have a dry mouth. He has a hardtime breaking down solid foods. Any info would be appreciated.
-
Pancoast tumor survivor
Hi there. My name is JP. I'm a pancoast tumor survivor. 2019. Stage 3. Anyone needing information or support, feel free to contact me.
-
Just need a motorcycle & a divorce - Anger & Shock, caregiver fatigue
I was diagnosed Stage IV prostate cancer in the ER after my primary care & urology docs refused to do a PSA test because I was one year too young. I had bone metastasis from my head to my feet. I was 49. The ER doc was in tears giving me the diagnosis. It’s been six years since then, I had to quit my high paying IT job &…
-
No Lupron side effects. Is this normal?
Been on a 3 month shot of Lupron for over a month. Scheduled for radiation latter this month. I have read all about the horrible side effects of Lupron that can occur. I have always been in good shape. I do 30 minutes of circuit weight trading on machines almost every day and hike with my dogs in the national forest for…
-
Cancer Survivorship Care Plans with Lynda Kwon Beaupin, MD-Video
Informational video on survivorship plans and thoughts for your survivorship moving forward. Take Care, God Bless-Russ
-
Biopsy results
Hello, Biopsy result shows 3 tumors, two are 3x3, and one is 3x4 for a total gleason score of 7. The report also says that cribriform pattern 4 was identified focally. A quick google search suggests that cribriform presence isn't a good thing, anyone have a similar? See the surgeon tomorrow for discussion on results. Thank…
-
Rang Out - Ding-Ding!
DING-DING, DING-DING, DING-DING 🔔 Senior Chief (Ret), Departing 🫡 Finished 35 Rads (60 Gray [Gy]) today. Finished 7 chemo's (carboplatin) last week Wednesday. Tomorrow starts my recovery period. So I'm thinking come this weekend I start enduring 'The Suck' 😕 Problem is, Saturday we are attending a 'Celebration of Life' for…
-
2 year old with clear cell sarcoma of the kidney (ccsk)
Hello my two year old is currently having treatment for ccsk it’s really hard to find anyone else who has this type of cancer would love to no if there is anyone else out there.
-
PSA Detectable 6 Months After RP Surgery
Hi all, Posting on my father’s behalf. My father had a prostatectomy in January. His PSA has been undetectable since then except for recently (6 months post RP) when it rose to 0.28. The doctor has ordered a PSMA PET/CT scan to determine the cause and where. Spoke somewhat about possible follow-up radiation therapy. Has…
-
My Husband's prostate cancer has come back after 15 years.
My husband was diagnosed in 2007 with prostate cancer. He was given hormone treatment, and radiation treatment. After being monitored by his consultant, and PSA level was coming down . I remember the last time his consultant said that his PSA level was undetectable, he was clear of cancer. Once every 6 months he would take…
-
Anvirzel Honduras
Has anyone heard of this drug from Honduras. Anvirzel is from the oleander plant, the non-poisonous type. It is said to help lung, breast and other cancers. Sounds like it is FDA approved for certain patients.
-
High Kappa Light Chains
I've been off and on sick since 2015. First in 2015 I woke up in extreme pain all over my body. Drs didn't know what it was. After about 9 months of being in pain I switched to a whole foods plant-based diet in early 2016 and I got better. About 2 years later I got sick again. A lot of body pain. Then I went on a super…
-
Extreme claustrophobia and need an MRI
Hope everyone here is doing well. I have a question. I have been diagnosed (by a biopsy) with breast cancer and now they want to do an MRI. I am being told it will be a closed MRI and I will be given two valium. I am EXTREMELY claustrophobic (had a donut CT scan and freaked out even on that) so am wondering if there are…
-
radical neph March 22. 2023
Good afternoon I felt like I had an obligation to sign up and post for this site helped me tremendously. I didn't have time to do it before surgery but now I am in the position to be thankful, grateful, and willing to help others. Here is my story and some tips for others> 62 years of age, history with uric acid stones…
-
Needing to decide on single vs bilateral mastectomy and doing reconstruction.
I was diagnosed with DCIS stage 0 in my left breast in July. I have to get a mastectomy due to how extensive it is. They want to know if I want to do a bilateral mastectomy, reconstruction. The single mastectomy with a lift on the other side. The other side shows no cancer and I have no genetic markers. I really have no…
-
Throat & Neck Cancer - HPV 16+
New post to share my story. Age 59 year old male, very overweight. I was diagnosed with throat and neck cancer hpv16+ Fall 2022. Started in my right tonsil and spread to my lymph nodes on right side of my neck. Doctors provided two choices for treatment they said about equal outcomes. First choice was radiation and chemo…
-
One Day Jaw Reconstruction Procedure & Dental Prosthetics Site W/ Video
Roswell Park Comprehensive Cancer Center is a cancer research and treatment center located in Buffalo, New York. Founded by surgeon Roswell Park in 1898, the center was the first in the United States to specifically focus on cancer research. Link-- One thing that is unique in Head and Neck cancer and a very unwanted…
-
Venting Caregiver
Hi first time poster. I’m THE support person for my husband. In 2018 he was diagnosed with HPV+ SSC of his right tonsil and 1 right lymph node in his neck. He had the TORS of his right tonsil along with right side neck dissection. Recovery time was about 7 weeks and no feeding tube. It was a success and doctors gave him…