ACC , Adrenal Cortical Carcinoma

tisado

Anyone else recently been diagnosed/treated? I live near Seattle and seem to have great doctors at SCCA who "have a plan".

I had surgery then stereotactic radiation and now getting insurance approval for mitotane with hydrocortisone. Sounds like it is usual treatment. This is tier 5 drug so UHC only covers 75% . My cost will be just $200 a month. We can make that work, no choice.

CSNSupportTeam

https://csn.cancer.org/discussion/325406/acc-adrenal-cortical-carcinoma

Hi tisado,

My name is Emily, I'm a member of the CSN Support Team. If you need help finding resources or support, please call the American Cancer Society at 1.800.227.2345. There are Cancer Information Specialists available 24 hours a day, seven days a week to answer your call. Or you can visit cancer.org and speak to a specialist through the Live Chat feature Monday-Friday between 7am-6:30pm CST.

Warm Regards,

Emily

CSN Support Team

tisado

Got my 6-month MRI and CAT scan done last week. Online results say no new tumors. Have telehealth visit with Dr, tomorrow. Fingers crossed that I am reading the report correctly.

I suspect that they'll be upping mitotane as that level is 8.6 and she wants it about 14 or so.

scott1968

Yes I have adrenal cortical carcinoma. It's a rare one isn't it? Mine was stage 3 and was removed last October. I have at nodule/tumor on the right gland also. But they say it is a benign adenoma.

tisado

https://www.facebook.com/groups/1046439086194860

This is a greats support group. way better than Cancer Society page. More active, links to current research etc. You will see me there as Sandy Subert

I've now had 3 surgeries, 2 series of radiation. Not looking good. Doc say to have fun.