ACC , Adrenal Cortical Carcinoma

tisado Member Posts: 5 Member
edited October 2022 in Rare and Other Cancers #1

Anyone else recently been diagnosed/treated? I live near Seattle and seem to have great doctors at SCCA who "have a plan".

I had surgery then stereotactic radiation and now getting insurance approval for mitotane with hydrocortisone. Sounds like it is usual treatment. This is tier 5 drug so UHC only covers 75% . My cost will be just $200 a month. We can make that work, no choice.


  • CSNSupportTeam
    CSNSupportTeam admin Posts: 169

    Hi tisado,

    My name is Emily, I'm a member of the CSN Support Team. If you need help finding resources or support, please call the American Cancer Society at 1.800.227.2345. There are Cancer Information Specialists available 24 hours a day, seven days a week to answer your call. Or you can visit and speak to a specialist through the Live Chat feature Monday-Friday between 7am-6:30pm CST.

    Warm Regards,


    CSN Support Team

  • tisado
    tisado Member Posts: 5 Member

    Got my 6-month MRI and CAT scan done last week. Online results say no new tumors. Have telehealth visit with Dr, tomorrow. Fingers crossed that I am reading the report correctly.

    I suspect that they'll be upping mitotane as that level is 8.6 and she wants it about 14 or so.