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Stage 1 Endometrial Cancer - Now what
Hello everyone, I am new here. I just had surgery for Endometrial Cancer. The pathology report came back as stage 1. The GYN oncologist said I am cancer free and that I should return every 3 months for 3 years and then every 6 months for 2 years and then once a year for life. That is all he said. I feel like there should…
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Would you?
I am 81 years old. I tested positive for slight blood in my stools. I hate having a colonoscopy because of the prep. I know that the efficiency of screening declines at the age of 75 and is not even recommended at the age of 85. I will not get radiation, nor chemo therapy. Is there even a need to pursue it?
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Hello
Hi all. Just popping in to say hello. 12 years NED. I never adapted to the new format so I don't come on much. It used to he user friendly. It's really hard to follow on my phone. I have a lot of post cancer issues, deal with a lot of pain from the botched surgery but I bet a lot of us can sat that. I just keep on trucking…
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Stage 3 Rectal cancer Recurrence
Hi I am male with 37 years old I was diagnosed with stage 3 rectum cancer Aug 2023 about 6 cm tumor in my rectum and 8 cm distance to anal verge .I did first CT for checking metastas and it was clear. My oncologist decided 6 rounds of chemotherapy with folfox. After it was ended, I did my second CT and shows that tumor…
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9 Years NED Today
Hi all, I've been away and/or occupied most of this summer, so I haven't been by to check on the blog, for what has been the longest period I can recall. Finding out we've lost Abita, and reading some of the new stuff, reacquainting myself with the ongoing heartache and need in this place, is still quite emotional, which…
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4.5 cm nodule discovered by ultrasound
I was scheduled for a biopsy the initial biopsy showed atypia but had limited cellularity so they wanted to do a rebiopsy with pathology present to verify sample this came back suspicious for a follicular neoplasm hurthle cell type bethesda category 4 they recommend referral to ent which is scheduled what can i expect…
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Stomach cancer sucks
I just need to vent and get my grief out. My wife was diagnosed and died in less than a month. She had symptoms but were masked by medication. She had stomach cancer that apparently was leaking blood she was diagnosed as anemic so she started taking iron pills. If you look online and look up iron pill stools, they are very…
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Everolimus, Anastrozole, & Metformin for ER+ PR+ HER2- PIK3CA EC/UC
Anybody on this combo? What side effects are you having? This may be the next treatment for me. I know that I am just a voice in the wind, but I figured I'd ask here for the fun of it. The answers of course will come when I talk to people with breast cancer who have my molecular profile. BTW about 30 to 40% of ec/uc…
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Multiple skin cancer removals at once
I was recently diagnosed with 3 basal cell skin cancers. I’m feeling really anxious about the surgery as previous Mohs surgeries have been really painful. I was hoping to get all 3 taken care of at the same time, but most places around me only do one at a time. I did find one location that would do 2 at a time . I’m just…
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First Visit
Hello, I had my first meeting with the oncologist today for my endometrial cancer. She was very thorough and personable. My best friend and sister were with me. I do not have a husband or children. My one daughter passed away in 2020. I was happy to have their love and support. It was a very long day that started at 4:00…
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Treatment / Survivor Contacts
Hello All — I am trying to find out and speak to patients / survivors going thru treatment similar to me. I connected with several friends who went thru BC but each one had different stage or bio marker than mine. Any patient/survivor here with HER2 +ve bio marker who went thru chemo & TCHP before surgery?
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Still confused about Creatinine and GFR
This is a quote from the National Kidney Foundation website in answer to a question from somebody whose creatinine level was 1.58: "A creatinine level of 1.58 may be normal after removal of one kidney, especially if you are over 50 years of age. Removing one kidney always results in a decrease in total kidney function and…
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Why HER2 +/- Changed
Hi all, I was diagnosed with stage II breast cancer with two lymphnodes involved in Oct 2022..... PR negative, ER weak positive and HR2 borderline positive (and FISH test confirmed HER2 positive in Oct). With that diagnosis, I received Taxel and HER2 target drug Herceptin and Perjeta as neoadjuvant therapy before the…
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Leiomyosarcoma
Looking for people that have beat this rare cancer and what worked for treament etc. My sister is 30yrs old and had surgery to remove a large mass on her right ovary thinking it was ovarian cancer sarcoma. Pathology came back yesterday and it is leiomyosarcoma. She was able to keep her left ovary and uterus which seems odd…
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Metastatic Breast Cancer
Hello, I am new here, 64 yrs old, and was in remission for 15 years. Breast cancer stage II with hormone positive, her2 negative. I had a lumpectomy, chemo, radiation, and 6 years on tamoxifen. I was supposed to go on another hormone inhibitor for 5 yrs but refused. Side effects from tamoxifen was enough for me. I'm not…
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New lump on neck 14 years after treatment Hope its not recurrence Anyone with similar issue?
SCC Base of tongue HPV positive with lymph node involvement, finished treatment Xmas eve 2009 (Radiation, Cisplatin, modified neck dissection to remove mass that was still there- sent to pathology and test came back as dead cancer cells) Everything has been fine since then outside of usual recovery from treatment ,but…
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For those of you with Leukemia
I just wanted to survey and find out how old you all were at diagnosis and what were your labs like? WBC? neutrophils? anything else abnormal? I don't really have any symptoms but I am seeing a hematologist/oncologist at the moment and recently had some elveated labs which is unusual for me as I never get sick, not even a…
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You Are NOT Alone
https://youtu.be/If3NnwjQ7KQsi=84SoiKTRxo4YFRnK At 19, I was diagnosed with Leukemia, and now, 17 years later I want to share my story to let others know they’re not alone. My hope is that by opening up about my journey, I can bring comfort, strength, and connection to anyone facing a similar battle. In the link, check out…
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Risk Calculation when the fallout of Tamoxifen intake
I am 29 and was diagnosed with early-stage breast cancer a year ago with a BRCA-2 positive mutation. I underwent bilateral mastectomy surgery and was treated with 19 sessions of chemotherapy therapy (4+15)(taxol). The tumor was invasive, not lobular, and the biggest part was 2 cm. Lymph nodes weren't involved; only…
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Biggest incision swells
hi all, Had a partial nephrectomy 10/23, RCC clear stage 2, feeling pretty good at almost 3 weeks post op, my concern in that my largest incision, one right below my left ribcage swells when I eat. I realize it’s right where my stomach and transverse colon is, could that be why? Should I be concerned? Anyone else have…
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Translocation RCC
Hi all, My younger brother ( 33 yo) was recently diagnosed with a 20cm left kidney mass after having a cough for two months and then suddenly night sweats and weight loss in Sept 2024, underwent left open radical nephrectomy. The pathology report showed mixed cell types and spread to nearby lymph nodes. After 4 weeks…
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My experience with Akeega
Akeega is the only FDA-approved treatment with BRAC+ metatstatic castration-resistant prostate cancer. In other words, if you are one of the 1% of men with the BRAC gene the chemical castration drugs will not work against your Prostate cancer. Check with your doctor to find out if you have the BRAC gene. Don't assume that…
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Feeling lonely and isolated
My husband was recently diagnosed with non Hodgkin’s lymphoma. He is being treated at Gibbs Cancer Center in Pelham, SC. I am his caregiver. The prognosis is good. We lost our daughter to breast cancer 7 years ago. My husband does not want his diagnosis to be public; only a few close friends know. We are new to the area…
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What if radiotherapy fails
Just about everything I've been reading indicates modern radiation treatments properly administered are statistically superior to Radical Prostatectomys concerning quality of life issues. Sounds like they're equally effective. I've now been advised by two different radiologists that 5 weeks IMRT is a good first course of…
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Parent of newly diagnosed son with cancer
my daughter n law and son do not want me at the hospital for his surgery, which is 2 hours away. If complications I cannot get there quickly.know my son is going through a lot but being there for him helps me too. We have always been close until he married. Thought I was gaining a daughter, but actually lost my so.. now…
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4th Recurrence
Hello, I'm Marchu from Buenos Aires. I have cervix cancer since 2017, when I had an histerectomy, then I had recurrences in 2018 and 2020 in which I received radio and chemotherapy. Then in 2023 I had a 3rd recurrence, and I received chemo and inmunotherapy which at first worked, but now that I'm receiving only…
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LMS- AGGRESSIVE RECURRENCE
Hi, brave and wonderful people! So happy to hear there are people who have managed to survive this extremely aggressive type of cancer. I want to send a big hug and thank you to you all, for your optimist and strength and may you stay strong and positive in order to win this battle. Reading your lines, i felt enouraged to…
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Stomach Cancer - Thoughts / Doctors / Etc
Hello, my mom was recently diagnosed with stomach cancer (adenocarcinoma) locally advanced. She just started FLOT and the plan is to do 4 treatments, surgery, and then do another 4 treatments. Starting to learn a bit more (HER2negative / MMR loss on MLH1 / PMS2 (testing for Lynch syndrome now which could change some things…
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Tumor is back
They found tumors on my left kidney in 2016 and performed a partial left nephrectomy. They’re back. Now they’re removing the entire kidney. My doctor hates me. They scheduled the procedure for March. I called once to ask if I could get an earlier date. I was worried it would spread. I went in to talk to my doctor in…
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URETHRA
I'm not sure if this is a new question, but I had my operation 2 years ago and I still do not feel anything in my urethra when I urinate. Has this happen to anyone else? Thank you