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PSA rising after SBRT
I am 65, Gleason 4+3, localized 2 tumors. PSA 6.7; Had SBRT (4 sessions, 9.5 gray each) in early August 2024. Minimal GI and GU side effects; took 4 month Orgovyx. In 11/24 I had first psa test, result was < .01, testosterones was 13. 2/25 test shown psa rose to 0.4 and testosterone level rose to 384; 5/25 psa rose to 0.8…
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Stage 4a rectal with Mets to lung
35 yo diagnosed with rectal cancer last year. Had radiation, chemo and colon resection and had negative CT DNA bloodwork in January. Bloodwork came back positive in April have one spot on the right lung and one spot on the left lung. Have to meet with a thoracic surgeon interventional radiologist but they said no…
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zejula question
Hi everyone, This is my first post. I am on zejula for maintenance after Ovarian stage 2b diagnosis, surgery and 6 rounds of chemo.I began Zejula in fall 200 but was hospitalized for low platelets. Now and on 100mg and tolerating accept for sleep issues. I take it at 8 pm. Does anyone take their dose in the morning? I was…
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Trust after Cancer
It seemed to me as I was going through cancer there were really only 2 kinds of people. 1. Outstandingly generous people who were doing everything they could to help and were upset they couldn't do more. 2. People who didn't care at all. Maybe they would do a low effort thing, like a box of cookies in the mail for…
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My 28 year-old daughter had to leave us13 years ago. It’s still so painful.
(I also posted this in a reply to a woman whose husband developed Wilms tumor) Hello, I am a retired physician; now in a second marriage, after my first wife of 38 years left 2 years after the death of our daughter, Miriam. Her departure was also devastating. Miriam was a freshman in high school, age 15, when she was…
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Support Needed
Hi, I’m new here. I was diagnosed with metastatic adenocarcinoma with liver mets. The biopsy showed TTF-1 positive, so they first thought thyroid, but scans haven’t found a primary tumor anywhere—lungs, brain, pelvis, and bones are all clear on PET. I’m waiting six weeks for a second opinion at MD Anderson, and it’s been…
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Stage 4 cervical cancer survivor
Hello, I got diagnosed with stage 4 cervical cancer with 7 tumors at the age of 28 and I am 32 now but I went through 4 surgerys and chemo radiation and the cancer still came back so I had a pelvic exenteration and the outcome of it was having to wear a colostomy bag and a urostomy bag the rest of my life. It's been 2…
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The Unknown
Hello, I'm new here. I do not know where to begin. Last year, I did my pap smear, and it came back abnormal. I also did a family cancer screening that showed if I had a family history of cancer. That came back positive, and it stated that I had the BRIP1 gene, which is a higher chance of getting ovarian cancer, and I also…
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11.4 mm endometrium and worried
Hi everyone. I'm glad there are platforms like these to sound off on. I hope it's ok to post here although undiagnosed. I've been reading around and found some helpful posts. Ultimately, we just have to get checked the best we can and not take diagnosis online. I understand that. Purpose of this post, is to hear your…
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Any information about de-escalated adjuvant radiation therapy (DART)
This is a follow-on to an earlier topic that I started, but since this is focused on the de-escalated adjuvant radiation therapy (DART), I thought I would make this a new topic. I was diagnosed with early stage HPV+ cancer on my right tonsil. After conferring with my surgery, chemo and radiation doctors it was recommended…
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4.5 cm posterior left lower lung nodule
I am a 5 year tongue cancer survivor recently had a CT scan on abdomen and pelvis. 63 year old female findings on lower chest. The lower bases reveals centrilobular emphysema. Mild subsegmental atelectasis is seen in the lingula. Of 4.5 cm posterior left lower lung subpleural nodule is present. I don't know what all this…
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Fasting in conjunction with chemotherapy treatment
Hello, I am a colon cancer patient who is about to undergo folFox chemotherapy treatment. I've been doing a lot of research on chemotherapy and have found that fasting before during and after the chemo can negate a lot of the nasty side effects and also make the chemotherapy more effective. My question is has anyone had…
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Sharing my Stage 3 journey
I posted the following in response to another thread but since there are those that my not see that thread I will repost on a thread of my own and try to comment to those just starting this journey. I think the best that I can contribute is to tell my battle with Stomach Cancer and let you pick what information is helpful…
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My husband was diagnosed with Wilms Cancer, it usually occurs in children, does anyone else have Wil
My husband of 38yrs old was diagnosed w/ Wilms cancer, it is usually found in kids and not in adults... does anyone else have this? He will be starting Chemotherapy next week, hopefully...
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Financial assistance
hello my daughter’s boyfriend is a survivor of this type of brain cancer. I am trying to help them find financial assistance to help pay the bills. Are there help out there he could apply for?
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I am new here
I was diagnosed with diffuse large B cell non Hodgkin lymphoma 12/1/2024. I have just completed my 5 th of 6 RCHOP treatments. I have so many feelings and I just want to curl up and sleep. My family and friends have been praying for me which I appreciate, I just don’t know what to say. I am primary care provider and work…
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Well Differentiated Liposarcoma of Left Thigh
I was diagnosed with a Well Differentiated Liposarcoma that measured 18 X 10 X 4.5 cm. In September 2011, I noticed a strange lump in my left thigh and went to a doctor, I was told I had a pulled muscle. My leg didn't hurt, it just had this bulge was squishy and moved around in my thigh. Since I was told that the lump was…
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Have to get a molar pulled
I am a thirteen-year survivor of nasopharyngeal cancer. Through the years, I have spent thousands on my teeth. I had a molar that had a crown on it. It decided to come loose and fall off. Now I need to have the root pulled out. My dentist has put me on two meds. Pentoxifylline and vitamin E to ward off osteoradionecrosis.…
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Webinar: Head and Neck Cancer Survivors - Managing Function and Quality of Life
The National Coalition for Cancer Survivorship (NCCS) hosted a Cancer Policy and Advocacy Team (CPAT) webinar discussing quality of life for head and neck cancer survivors. The treatment of head and neck cancer (HNC) often involves surgery, radiation, and chemotherapy. This treatment is critical for controlling or curing…
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Radical Nephrectomy in Oct 2024 - Unsure of Next Steps
Hello, first off, let me start out by saying that I am grateful for this community and the courage you all display. I am hoping for some guidance on my cancer journey to better help me advocate for myself. In October 2024, I went to the emergency room after a month of seeing small traces of urine in my blood. I was…
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Mohs surgery shock and support
So glad to see this site. Support is so helpful for healing plus tips and advice. Yes I was in shock after seeing the stitches from Mohs on my nose and closure with a plastic surgeon. In my opinion it seems like it may be helpful if a Mohs Dr.’s have actual before and after pictures so that you can be prepared for any…
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Overwhelmed with my proposed treatment plan
Hi everyone, I had an appointment yesterday with a radiation oncologist to go over the treatment plan for my prostate cancer. I’m very grateful my spouse was with me—it was a lot to take in. I have a Gleason 9 diagnosis, and while the cancer is still contained within the prostate, the recommended treatment is androgen…
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4 YEARS OF LIFE!!
Hello all you Rockin' Semi-Colons pals!! August 6 is my four year anniversary!!! I AM ALIVE!! I love those words. As much as I love NED. I have a houseful right now and more coming this weekend so I just wanted to sneak in here really quickly and share this with you. Tomorrow I will be off to the berry patch picking fresh…
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Shoulder Pain and Dysfunction After Radiation
Remembering that I have had radiation twice, most will not run into this problem. But some will, and as I've not seen a reference to it before, thought I'd talk about this situaton. It has taken me awhile to figure out I had a problem. Beginning soon after my last radiation, I started having mild bilateral shoulder pain. I…
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Q: Cancers in senior citizens from thymus radiation as babies?
It's well known that those of us who misguidedly had their thymus glands irradiated as babies developed thyroid cancer in early adulthood. Now that I'm 69, I'd like to consider how many of us have developed other cancers in the area of the neck, chest, mouth, etc., as senior citizens. I've seen a few people, in this forum,…
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Rib pain
hi, anyone has any home remedies for rib pain? My mom has breast cancer with bone and liver mets, and she has been feeling pain in her right rib. If you guys could give me some home remedies or treatments for rib pain other than radiation that would be good! Thanks
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Overactive bladder from ADT and IMRT
Just finished the last of 40 IMRT sessions last week and have been on Orgovyx and Zytiga for about 3 months. Feeling OK with the exception of an overactive bladder including urinary urgency and frequency. I need to pee about every 1-1/2 hours. Very annoying especially during the night. Not getting adequate sleep. I…
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Thanks all
I want to thank those who tried to help me. I gave my best effort to try to deal with the side effects of treatment from this disease but learned today that ADT damaged my testicles and they are no longer working so I will never recover testosterone. I also learned ADT gave me osteoporosis and heart problems. This is not…
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Breast Cancer and TNF blockers
I am a two time breast cancer survivor (2003 and 2010) facing a difficult decision. In 2008 I was diagnosed with a rare and particularly aggressive form of rheumatoid arthritis, Palindromic Rheumatism that persists today. Unlike regular RA, this one does not cause joint damage but the attacks are more frequent and more…
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Asymmetrical fullness of the right lingual tonsil with effacement of the right vallecula
I am sorry in advance for being a pain I am just worried. CT scan showed Asymmetrical fullness of the right lingual tonsil with effacement of the right vallecula. PCP sent me to ENT. ENT says TMJ and reflux. I have had ear, throat and neck pain and swelling on the left side for over 3 months. Occasionally my lymph nodes…