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Am I supposed to have learned something?
My mom had breast cancer and resisted testing, or even admitting that she was struggling for years. When she initially told me and my sister that she had found lumps in her breast I immediately asked what she needed or what was she thinking needed to happen next. Her response still haunts me. She said she was going to…
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Sharing my father's story
My name is Kiana Jones, and I am writing to share the story of my father, Mr. Sammie Jones, who passed away on November 21, 2024, due to kidney cancer. By sharing his story, I hope to advocate for families who have experienced similar situations. My dad was 68 years old when he passed away. He would have turned 69 on…
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NewPost New Member
Hi, I’m new here but I needed to post. I have stage 4 breast cancer that metastasize to my bones, brain and spine. I have 4 kids I’m a single mom and my kids father passed from a massive heart attack 7 years ago. All I do is cry 1am till I pass out, sleep and eat!! I stay up and cry feeling low! I haven’t really grieved…
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Should I divorce him now? Long post but I have no one to open up with
Hello everyone! I apologize in advance, this is long… but I’ve been holding all of this in for so long… I'm 33, and l've been married for 4 years to my 43 year old husband. I always said I wouldn't do long distance relationship, but life has a way of surprising us, right?.... I'm in the US, he's in the Caribbean. When we…
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4.5 cm posterior left lower lung nodule
I am a 5 year tongue cancer survivor recently had a CT scan on abdomen and pelvis. 63 year old female findings on lower chest. The lower bases reveals centrilobular emphysema. Mild subsegmental atelectasis is seen in the lingula. Of 4.5 cm posterior left lower lung subpleural nodule is present. I don't know what all this…
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PTSD?
hello I’m new here today and the reason for me joining was wanting to know how people have dealt with their PTSD when it comes to your scans and bloodwork coming back normal for the last year and a half after stage three colon cancer six months of chemo every time I get a bump or don’t feel right I have my mind just goes…
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Metaplastic breast carcinoma
Hello! I was diagnosed this week with metaplastic breast carcinoma. It is HER2 positive, weakly estrogen positive, and progesterone negative. I’m feeling overwhelmed and looking for others with similar diagnoses. I’m have an appointment at a cancer center later in December. Thanks for your help!
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Leiomyosarcoma
Looking for people that have beat this rare cancer and what worked for treament etc. My sister is 30yrs old and had surgery to remove a large mass on her right ovary thinking it was ovarian cancer sarcoma. Pathology came back yesterday and it is leiomyosarcoma. She was able to keep her left ovary and uterus which seems odd…
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Seeking guidance for Cervical cancer stage 3
I was diagnosed with stage 3 cervical cancer i completed definitive chemoradiation followed by CRT on sep 1 2023. then I underwent a cystoscopy and cervical biopsy on june 2024. which revealed moderately differentiated squamous cell carcinoma. I recently underwent robotic surgery for stage 3C cervical cancer, successfully…
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Radiation or no radiation
I just had my third surgery since May 2017. First surgery was to remove a liason on the floor of my mouth under my tongue. 2nd surgery (June 2018) was to remove my right neck lymph nodes. 3rd surgery (August 2018) was to remove my left neck lymph nodes. CT scan results were the reason for the right removal. Of 27 nodes…
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TNBC identified .Any suggestions?
Hello Everyone, I am writing on behalf of my mom (Age 61)who has just been diagnosed with breast cancer . Right breast .BCS Surgery has been performed and today I received final biopsy report which states : Invasive breast caricoma , NST . Grade II (7/9) TNBC ptNM stage - pT2 N0(sn) 4 lymph node free identified and all…
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Throat gets sore from talking too long
Three and a half years after radiation (last radiation 8/30/21) I’m still finding that if I talk too long my throat gets dry, I start coughing and stays sore for hours afterwards. I get CT scans once a year and continue to see my ENT every four months, my last appointment being just 5 days ago. CTs are always clear. Every…
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SURVIVOR....UTERINE CARCINOMA. STAGE 4-2b
Are we all a survivor of a very small percentage of people??? How long does a person stay in remission with a metastatic cancer??
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NavDX positive test
Hello, I have HPV related head and neck cancer. I've had three surgeries....a biopsy, radical tonsillectomy and a full neck dissection. I'm currently undergoing radiation treatments. I was told after removing the tumor from my tonsil that the margins were good and the cancer was removed. I recently had a NavDX test done…
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Joint pain
I’m receiving Keytruda infusions every 3 weeks. My knees and hips are hurting. I’ve read Keytruda can cause joint pain. I’m using cold / heat packs on my right knee which is swollen and difficult to bend. Any suggestions on how to reduce the joint pain?
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Myelofibrosis
I was diagnosed at 32 in 2002,and have had a splenectomy and I am currently in remission.is there anyone else out there that has this rare bone marrow disease? its also has other names one being Agnogenic Myeloid Metaplasia ,another is Idiopathic Myelofibrosis or Primary Myelofibrosis...I would like to meet other with…
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Clinical Trials
Wondering what the experience of others has been with finding clinical trials. My wife was diagnosed with Stage III CRC and has resection and 12 rounds of chemo. She was clear for 2 1/2 years then cancer showed up in some lymph nodes. 12 more rounds of treatment and she again had clear scans, but a positive DTDNA test.…
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“Spontaneous regression of cancer"
I talked with my oncologist this morning about the results of my CT scan. I was shocked when she not only said the cancer has not grown but it has shrunk. I asked how this was possible with no treatment. She said that my own immune system attacked the cancer. I then remembered a passage that shows below. For years my own…
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HAS ANYONE TRIED POLY MVA
Has anyone tried poly mva?
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searching for others w mm in Rancho Cordova, CA
I am now 40 & was diagnosed w multiple myeloma in July 2005. The disease had been causing bone damage & pain for at least a yr prior to my diagnosis. I grew up in Rancho Cordova, CA where I'm told others, of similar age, have also been diagnosed w mm. I am trying to determine if a cluster exists. If you can advise how to…
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My mom has Serous endometrial carcinoma
My mom just got her biopsy results back for serous endometrial carcinoma. I'm looking for advice on where to take her for treatment and what I should look for in the treating facility. What should I ask during the consult? I'm on the East Coast. Does anyone have any good recommendations for gyno oncologists? I'm only in my…
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CAR-T Therapy - My one year anniversary
My journey (Currently 46 yo - female) No medical history until…. January 2023 - diagnosed PMBL (diffuse large B Cell NHL) March 2023 - June 2023 : EPOCH R / Moffitt Tampa October 2023 - relapse February 2024 - CAR-T Therapy / Moffitt Tampa May 2024 - Remission September 2024 - Clean scan March 2025 - Scan in two weeks I…
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Poly-MVA-----Any experience with this?
Hello All... I am generally not a person that would investigate alternative supplements. I shared with my acupuncturist that my tumors had increased in size and number and she became very concerned. She paused for a moment and decided to tell me about a product by the name of Poly-MVA. She has been researching it and is…
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Now what?!?
I had radiation for G7. Doctor wanted six months of ADT. He told me it would wear off. It's now six months past the last time I took Orgovyx and my T only went from 7 to 26. My doctor said I'm the first patient under 60 he had on Orgovyx who did not get their T back. I don't trust him. Now he wants to do a cardiac workup,…
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Neck Burns Poll
Merry Christmas first of all! I don't want to jinx myself here, but I have been doing searches, and I'm having a hard time locating what I am looking for. I'm only really locating when the burns have gotten really bad for some people. What week/s for you did your neck noticeably start to turn red and burn on the outside?…
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Gleason 8 with PNI
Hi all. I have been diagnosed with Gleason 8 and PNI. I am scheduled for PMSA Petscan and Exactscan in two weeks to see if and where the cancer has spread. The cancer is too big for prostatectomy (unless it can be shrunk) and will get recommended treatment once the tests are done. Anyone had similar diagnosis and any tips…
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Grandulosa Cell Tumor Cancer.
On New Years I found that I had ovarian cancer for the 2nd time. In 2017 I was diagnosed as high risk Stage I GCTC patient. My left ovary, fallopian tubes, and lymph nodes were removed. Now I have multiple tumers a few, in my adrenal gland, nested between my kidney and my ureter and impacting my pancreas that are not a…
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Living with stage IV CRC
Very interested in hearing from those who are living with stage 4 CRC as a "chronic condition". My wife is currently in this situation - receiving FOLFOX and Avastin on an ongoing basis, tweaking the Oxaliplatin concentration and sometimes backing it of entirely when the side effects become too severe. She is currently NED…
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Spontaneous regression of cancer
I was diagnosed with Ampullary Cancer in Nov. 2024 after an Endoscope tissue sample showed it was Ampullary Cancer. My bile duct was blocked by the cancer so a stent was placed. I lost my appetite losing about 15 lbs. In early February I started getting my appetite back and I started feeling much better. A CT scan with…
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RADIATION FOR BRAIN CANCER
Hello to all of you Survivors out there! I began my blog back in 2000 with OVCA, and continued through 2006 with another bout with OVCA and in 2013 with breast cancer. This forum is invaluable for information, support and making new friends. And now I have some questions regarding my sister-in-law who is dealing with stage…