-
R-EPOCH
Looking for anyone who has been through R-EPOCH chemo. My fiancé was just diagnosed. He will have six cycles of this chemo. He completed his first round a few weeks ago. Starts his second round on Friday. He will go 5 days in a row. Looking for personal experiences with this type of treatment - side effects, tips/tricks,…
-
What's Joe Tippen protocol
I'm 54 living in Omaha NE, in good health. My routine blood test brought out a PSA 7.3. Ending up to be a prostate cancer Gleason 7. I'm yet to decide what to do. My urologist is suggesting a surgical removal of prostate. I'm just doing my homework. Anyone can instruct me about "joe tippen protocol "? Thanks
-
help for the hopeless?
hi, everyone, joining this five years into caring for my sick dad (first it was covid, now it’s end stage metastatic head and neck cancer), maybe just to vent, but maybe someone here knows what to do in my situation. at the beginning, dad’s cancer diagnosis was positive and he was receiving care at the preeminent cancer…
-
radical prostatectomy after HOLEP - Is it possible?
I had a partial HOLEP after I was not able to urinate, and they found cancer - Gleason 3+4. An MRI showed that there was still cancer in my prostate. Everyone wants me to have radiation, but I would rather have another HOLEP operation and remove the rest of my prostate. My radiologist says that no surgeon would do this do…
-
Husband survivor of HPV throat cancer
My husband underwent intense treatment for HPV Throat cancer in may 2023 and while the cancer is gone, the after effects have been brutal:unable to swallow solids without choking, swelling due to radiation necrosis and lymphedema, sleep apnea. He’s become so discouraged and it’s so hard to just watch him give up. He won’t…
-
HIFU in Phoenix area
I had a partial HOLEP after I was not able to urinate, and they found cancer - Gleason 3+4. An MRI showed that there was PI-RADS category 4 suspicious mass, right posterior lateral basilar peripheral zone. I will get a biopsy in March. Everyone wants me to have radiation, but I would rather have HIFU. I would like to hear…
-
What do you do to prevent recurrence?
Hello, I’m looking into what can I do to minimize recurrence risks other than eating healthy etc. and found this article suggesting that one should attack these specific types of cancer cells to ensure non-recurrence. Anyone care to comment? Do you know about this topic or do you follow a preventive regime that you can…
-
Car T Cell Therapy
Hi everyone, My mom (61 years old) was recently diagnosed with DLBCL stage 4 and has undergoed 5 lines of chemo. Since it is so aggressive, she is no longer a candidate for a stem cell transplant. We are going to Dana Farber in Boston next week to talk about Car T cell therapy. Insurance is becoming a challenge and the…
-
Nodule
just was told 1.3 cm. Right upper lobe nodule was “ nothing, probably just infection “ I had no sign of lung infection ( fever, elevated WBC, etc) I think Dr is being too cavalier about it- what do other people think?
-
I've been fighting insurance and medical bills not cancer
In August 2024, I was diagnosed with renal cancer that had spread and attached itself to my spine. I work for myself, so I got private health insurance. They would only insure me for one year at a time. My insurance expired on November 7,2024, but that's alright because I got on my wife's company's plan. My old insurance…
-
Gleason score of 7
In 3 of 12 biopsies Dr wants to remove prostate ? Should I ? Or better options ?
-
newly diagnosed prostate cancer
I am 71 yo male in fairly good physical shape. Had an MRI done after an elevated PSA of 11.3 on early January 2025. The diagnosis as per UCLA was a Locally Advanced Prostate Cancer. I am scheduled for a biopsy on February 11th. I have visited with several different urologists to learn about my options. I am also looking…
-
My Latest MRI and Back Story
Figured I'd share the journey… Just had my first MRI while on Active Surveillance. My history is had rising PSA in Fall 2021 (from 4 in 2020 to over 5 in 2021), had an MRI then which identified a PIRADS 4 lesion, had a biopsy with 12 samples on a grid and 3 in the lesion. The 12 on a grid were normal, the lesion samples…
-
Looking for Kaiser MDs, Bay Area if possible
Hi, My husband, Jim has 4+3 Gleason score, PSA 10.4 (11/2024), PSMA PET is negative for spread, MRI showing the tumor is on the left side and "extracapsular". The treatment options presented to Jim are surgery or ADT/brachytherapy/external beam radiation. I've seen posts here from 2010 and 2014 naming some surgeons at…
-
Survivor's Anxiety
I am "cancer-free" now, but mentally I feel worse than during all the treatments! Has anyone else experienced this? I have tremendous anxiety over any possible situation and I wake up every morning in a panic attack. I am looking into therapy but does anyone else have any ideas for me? Thank you.
-
Passing
Have had the hardest couple of months, my father unfortunately lost his battle on September 2024. He was a strong man, who fought till the end. My heart is aching and broken. Currently battling with sadness, grief, anger, and guilt . I miss him everyday! Rip daddy!
-
Daughters Bone cancer
I am new at this so please bear with me. My daughter now has Stage 4 Bone Cancer. She was diagnosed with a rare uterine cancer in 2008. After years of medication, chemo, and radiation and a few years in remission the cancer has returned as bone cancer. When this was discovered she was already at Stage 3. She is a single…
-
Working out
I'm coming up on two months after my Prostatectomy and I see my Urologist on Jan 10th, 2025. My questions for you guys. 1. Have any of you been riding your bicycles any issues? 2. Do Any of you ride dirt bikes with any issues? I've only been walking and NO GYM at all! Note: I'm 66
-
What follow-up tests are done after chemo?
Hi OC Sisters: I finished 6 rounds of Carboplatin/Paclitaxol for ovarian endometriod carcinoma stage 2 a few weeks ago, and I am wondering what tests/scans are usually done to monitor recurrences. I am on a 3-month follow-up schedule for 2 years, then 6 months if I remain NED. What sort of follow-up have you had (PET, CT,…
-
Six weeks post chemo: Hair report
Just a hair report for future chemo grads ;) Ok..I have about 1/4 of inch of fuzz all over my head. It's white and soft, but I can feel stubble that is also growing in that I think is darker. It appears to growing in at a consistent length, so I guess that's good. Although, I have noticed about a dozen hairs that are…
-
Early Bladder Cancer Diagnosis & Feel Great
My 84 year old dad had not been feeling well, sickies, weak, coughing. Then, went to the hospital with lots of bleeding/clots and terrible pain almost two month ago. Had a cyso and TURBT in hospital and stayed about a week and a half to recover. Diagnosis of bladder cancer, high grade T2N1. Two urologists have explained as…
-
Father starting chemo soon, any advice?
My father is 67 and recently diagnosed with colon cancer after finding a partial obstruction due to a tumor. He already had the resection but 4 lymph nodes showed some cancer so now he will be getting a port next week and starting folfox soon every other week for 6 months. Any advice on what to do to keep side effects to a…
-
Heart Rate Increase
Hi I’m 25 years old and was diagnosed with High Grade B-Cell Non-Hodgkins Lymphoma stage 2. I recently completed cycle 4 and have 2 more to go. My PET scan showed no active cancer. I’ve experienced fatigue but mostly increased heart rate. I can be walking to the bathroom and my heart rate will reach 120s-160s. Was…
-
Chemo treatment experience /help
Hi - I am currently diagnosed with colon cancer. I have just had my surgery and now moving on to Chemo treatment. I had a choice of CAPEOX or FOLFOX. I am wondering if anyone can share their experience? I understand that for FOLFOX, a port needs to be implanted for the infusion. For CAPEOX, a port is not needed. But I am…
-
67 years old Gleason score (3+4) next
-
Signs of Life
Nearly 16 weeks since RARP and last night out of nowhere there was “a sign of life” as far as the ED is concerned. How or why I don’t know but suddenly had the closest thing to an erection since before surgery and there was pretty good sensation with it. Taking this as a good sign. Incontinence is greatly improving and…
-
Just wanting to be happy after cancer
Did You have a full life before you found out? How did you react to the news? Are you feeling defeated now that chemotherapy and radiation treatments are done? Are you struggling with what you used to look like vs how you look after cancer? If you are like me, I wish to talk to you about your journey and what you’re doing…
-
Proton vs IMRT
I know many of you have seen the results of the Partiqol study comparing IMRT to Proton. Generally the take away is that the treatments are equivalent. I agree with that assessment . I was reviewing some of the details in that study and the thing that really struck me was how good both treatments were. I personally think…
-
Hair loss ten years after chemo
Hi - I am posting this a bit greedy and needy as in I've just found this place and now I'd really like to gather some info I had breast cancer when I was 36. It has been a horrible 10 years but you get there. I don't think anyone really gets that. But anyhow, I can kind of cope with all the depression, anxiety, all that…
-
Radiation Proctitis Argon Plasma Coagulation treatment
I had radiotion treatments that ended in may of 2017, Started seeing blood clots in my stool. Turned out to be Radiation Proctitis..During Sigmoid oscopy they were able to see the bleading and there was a lot of damage and the Dr he basically lasered the whole area. I saw the photos... Has any one had any side effect from…