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Hi everyone
Idk where to start. But I will start with please pray for my family. My 31 yr old boyfriend was diagnosed with 3 different cancers almost 3 yrs ago its in his brain lung an bones. He has stage 4. He had full brain radiation about a yr ago. He struggles with remember anything . He thinks he can still do everything like…
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Testicular AND Prostate Cancer???
Hello: I'm new here. I wonder if anyone else has heard of this: my daughter's father had testicular cancer (was also in all in lymph nodes) 13 yrs ago; operated & chemo/etc, cancer free all these yrs, til now. He was just diagnosed with Prostate cancer. He told my dtr something about having "12 biopsies", or something like…
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Advice for after orchiectomy
Hi everyone, Well, it has been 2 weeks since my surgery to remove my left testicle. I had a CT a couple days ago and it showed that there was no "metastatic disease" anywhere in the area. Basically that means that I was clear of anything that might have spread around. The only thing that did show up was in my lungs. There…
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How to battle late effects
Hello, I’m new. It’s been validating to know I’m not alone even if the posts are old. Sadly I can relate to so many of them. I’m a survivor of leukemia over 5 years dealing with a ton of late effects of treatment. I’ve gone through chemo, radiation, and a BMT. And I vaguely remember a 3 page list, front and back, of oral…
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long term survivors
Are there any other long term childhood cancer survivors out there ? Does anyone need to talk to a long term survivor.
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What do you do to prevent recurrence?
Hello, I’m looking into what can I do to minimize recurrence risks other than eating healthy etc. and found this article suggesting that one should attack these specific types of cancer cells to ensure non-recurrence. Anyone care to comment? Do you know about this topic or do you follow a preventive regime that you can…
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Hoping this sneaky uterine serous/clear cell is not back, after almost 7 years
I had surgery, chemo, and radiation (IMRT to pelvic lymph node area) in 2018-2019. My Ca125 had been 36 at diagnosis, went down as low as 10 eventually after treatment, mostly ran in the low teens. Was 10 last time I checked it, which was about 20 months ago. Meanwhile, I realized that I've been losing weight over the…
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Duodenal cancer
Hi! Anyone out there with doudenal cancer? My husband was diagnosed with duodenal cancer (adenocarcinoma) in august 2018. When he was diagnosed he was already a stage IIIV, and the cancer had spread to his liver and skeleton. He recived chemo therapy, but had no effect of oxaliplatine. Last year he ha 8 rounds of FLIRI…
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Hello all, would you please help me with your pros and cons of IV versus Venous Port
Hello all, first of all, I want to thank those of you who have helped me so far on this frightening experience of endometrial cancer. It is very very comforting and extremely helpful hearing other's stories regarding their experiences. You all have showed great courage faced with this disease. I begin my 6x Chemo sessions…
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First chemotherapy treatment today
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Pump
I’m looking for some feedback on using the pump I am at the 24 month point and since summer I only use it once a week and have noticed a decrease in length of about 1/2” sound right? Haven’t had an erection since before the surgery, so I guess that’s it for me. Still taking the 5mg tadafill Any thoughts?
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My dad was just diagnosed with prostate cancer
Hi everyone, I have been so thankful to find this forum. It has brought me a lot of hope during one of the hardest moments in my adult life. I wanted to share my dad's story for some guidance on what to expect next: My dad- very healthy 69 year old male. Had all normal PSAs through his 50's; last one checked was 1.3 at age…
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aromasin (exemestane) and aches
Hi, after being taken off tamoxifen I've been on aromasin for about 2 months. Every morning my wrist, hands and fingers ache. Has anyone else having aches and pains while on aromasin? Thanks Linny
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Waldenstrom's
My name is Charles and Ihave been diagnosed with Waldenstrom's. Am interested in any persons or family memebers who are dealing with or who have delt with this type of disease. About to have Rituxan.
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Radiation as a Child for Enlarged Thymus
As an infant I was radiated in 1946 for an enlarged thymus gland in the mistaken belief that this would prevent SIDS. The amount of radiation I absorbed was equal to ten common CT studies today. This treatment was commonly used in major hospitals and even pediatricians’ offices across the country. Thousands of infants and…
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Radiation in 1951 on Thyroid as a Baby
Has anyone heard of babies being radiated in the 1950s for enlargedd thymus glands. I recieved a letter years ago from the hospital where I was born about having radiation treatent as a baby and told to follow up with my doctor. My family doctor was not concerned, neiher was the endocrinologist. Now some years later my…
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Need Help Reading PET Scan
I received my mothers PET Scan results and I need it explained in terms that a non-doctor can understand...My mother had a 7lb sarcoma tumor taken out of her intensinal area on April 1, 2018 and it burst in her system...They did not take any procaution after the surgery just in case it came back. She was not feeling well a…
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Merkel Cell Carcinoma
Hello, My name is Audi and I was diagnosed with Merkel Cell Carcinoma 4 years ago. At the time of diagnosis I was considered a stage III and the progrnosis looked rather bleak. I am just wondering if there are any members here with the same Cancer. Merkel Cell is also referred to as neuroendocrin carcinoma, arises from…
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Parotid gland cancer
I’m 54 year old male. First diagnosed in 2024 Had the tumor removed, decided no radiation. It can back this year, had surgery in September. A full parotidectomy and 6 lymph nodes that it spread too. My doctor said i need radiation this time. Can someone please tell me how the radiation is, the side effects are a lot.
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does it get worse?
Hi i am sure this has been talked about before but i just want to ask. i have just started my oral chemo at home today. so no side effects yet but i know they are coming, but what i want to know is will these side effects get worse during each cycle? I am doing 8 cycles of 2 weeks on and 1 week off the meds. i want to…
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Advice about treatment options for a Mixed Adenoneuroendocrine Carcinoma (MiNEN)
Hello everyone, My cousin (37 years old) has been diagnosed with a Mixed Adenoneuroendocrine Carcinoma (MiNEN) located in the tail of the pancreas, measuring about 13x15 cm. The tumor is attached to the spleen, the ribs, and possibly some nearby areas. The pathology report mentions a neuroendocrine component, and there…
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New to breast cancer and acs support
After finding out in July, I was given a lumpectomy on Aug 6, radiation on Aug 19-27th; and started chemo treatment on September 26th, I’m ready to be over it ALL. The chemo put me in hospital 4 days and I’m still not recovered from only one chemo infusion. 2025 has got to Stop snowballing me !!!
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Advice on sleep meds anyone?
I'm in the midst of chemo and wondering how much sleep med. might be too much? I often walk around somewhat exhausted from lack of sleep, rather than take too much, but would love to hear some experiences from others...Am I wrong to think that taking Ambien or Atavan (generic name Lorazepam) more often now, could throw off…
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Chemotherapy Ineffective 97% of The Time
I'm not a doctor and I'm not giving medical advice. I found this article interesting: http://www.collective-evolution.com/2013/04/11/study-shows-chemotherapy-does-not-work-97-of-the-time/ "A study published in August 2003 revealed that of adult cancer in the USA and Australia, the use of chemotherapy, when looking at…
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Cobalt radiation as toddler for tonsillitis-Late rffects
I am an MD and practiced Pediatric Oncology. I have a story of my own to tell In the late 1940s and the 1950s, infants and children and teens were given Cobalt radiation for tonsillitis, acne, thymus gland, feet-for proper shoe fitting. All benign conditions I was 4 years old when I had Colbalt radiation to “shrink” my…
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Alk positive anaplastic lymphoma in brain
Are there any successful treatments for this? And what is the survival rate? My 19 year old was just daignosed. .He receieved first chemo treatment. Now doctors concerned it may be in his brain.
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Guided Missiles Targeting Tumor Cells - Cancer Breakthrough Research - OCT 27, 2025
European research has come up with a promising new cancer-fighting concept that targets a kind of antenna on the surface of the tumor cells. I believe mostly used in breast cancer for now. I believe it is slated to be tried in other cancers also. It seems there are many researchers all around the world working for answers…
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Possible cancer recurrence
I was treated for stage 3 tonsillar cancer in 2014. I had radiation for six weeks and have been cancer-free since. I recently noticed sudden weight loss, so I went to my regular doctor and he scheduled me for 3 CT scans with contrast from head and neck down to the pelvis. I feel confident that if cancer, it would be in the…
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Avastin and Avastin/Doxil Side Effects
Hi Everyone, I am contemplating either Avastin alone or Avastin/Doxil as my next step along this journey. The published side effect look awful. I am looking for first hand information from you ladies that you might be willing to share on how well tolerated these drugs are......thanks.