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EMPD Extramammary Vulvar Paget’s Disease
Is there anyone out there with EMPD??
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Fighting Cancer Essentials
Hello! My mom was "diagnosed" with cancer this past week. Biopsy still to come. However, there is great confidence it is cancer as the PET scan showed hypermetabolic activity. My mom is going to fight! I am looking for a list of supplies every cancer patient should have. Food, items, essential oils, etc.; you name it! She…
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KEYNOTE 522
Is there anyone on the KEYNOTE 522 Regimen, or has been on it? I am searching everywhere to find someone to communicate with on this. I am recently diagnosed with TNBC and the KEYNOTE is now apparently the Standard of Care. Please answer if you can. Thank you. (Jan. 2025)
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Urinary Retention from Radiation Therapy
I'll be heading for 5 weeks of Radiation Therapy soon. Having had a bout of acute urinary retention (not being able to pee at all) after my IRE ablation procedure, I'm paranoid that it may happen again with the RT treatment. My doctor thinks it unlikely. He claims the radiation is much less likely to cause the kind of…
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First Transrectal Biopsy
I'm scheduled for my first prostate transrectal biopsy on Monday morning. I made the appointment months ago, but it’s been on my mind ever since. As an older man, I feel pretty anxious about everything, from the prep to the procedure and the results. Any tips for easing my nerves?
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Cea rise and covid just last week
CEA now 5.9 normal has been 3.5 to 4.0. My wife just tested positive for covid 2 days ago and yesterday all ok . Also had some stomach issues . Do we have update that recent covid infection cause a uptick in CEA Levels …Thanks for anyones update knowledge
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What do you wish you'd asked? + ED after more than 3 years
Hi all, I'm 56. Was diagnosed last year Gleason 3+3 and chose active surveillance. That has progressed this year to Gleason 3+4 in 2 cores with some cribriform patterning. Decipher is 46 with intermediate risk. I have to choose a treatment and hate all options. I find that doctors don't give you the whole picture and I am…
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Tram Flap and Complications
TRAM FLAP RECONSTRUCTION AND ABDOMINAL BULGE/PAIN I had the Bilateral Pedicle Tram Flap in 2012. Less than 3 months later, my abdomen began to grow larger and, very painful. After chemotherapy finished, I began to investigate...being an RN, it’s in my nature to look at online journals. I knew something was wrong, but what?…
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Pathology Report Question
Good afternoon, My father had robotic surgery to remove the prostate following a PIRAD 5 Prostate MRI (No lymph involvement) and a postitive biopsy showing Gleason 3+3 and Gleason 3+4. Surgery on 9/23/24, deceived the unfortunate news last week that there were positive margins. Conversation with the surgeon was a 2 minute…
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ER+ HER2+ breast cancee
hello all, I was diagnosed with ER+, HER2+ breast cancer this past September. 1A, grade 2. No lymph node involvement. Lumpectomy. I qualified for a trial that my oncologist recommended. No chemo, 20 rounds of radiation, Phesco shots every 3 weeks for approx a year, and Letrozole estrogen blocker for 5 years. I’ve completed…
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**** Vitale Cancer-Free After 4th Bout With The Disease In Just Over 3 Years
Head & Neck Cancer Defeated Again https://x.com/DickieV/status/1877012081594990846 **** Vitale said he’s cancer-free after his fourth bout with the disease in just over three years. The 85-year-old ESPN college basketball analyst announced Thursday on social media that he got the news after a morning scan. “SANTA CLAUS…
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A new battle
We all know what going thru H&N tx is like- a 2-month battle that drags on as long afterwards. A thought occurred to me with where I'm at now, almost 13-1/2 years since my last Rad session: first there was the battle of going thru treatment, and now there's the battle of dealing with the long term side-effects of C…
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finished radiation
i had prostate surgery in may of last year and then radiation and finished that in novermber just had a psa score taken and it came back at 0.25 do i need any further treatment
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Mental Health for Breast Cancer
What types of mental health therapy(ies) have helped you?
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Peritoneal and colon cancer
My husband was diagnosed in late september 2024 with Stage IV colorectal and peritoneal cancer (lining of stomach). He was very sick and had lost a good deal of weight and had a tumor obstructing the bowel (partially). He was in pain and felt bad or very bad almost every single day. After 6 rounds of chemo (48 hours each…
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Financial resources for help with my cancer
I have stage 4 adenocarcinoma where I have a lung tumor, brain tumor, and metastisized to the lymphatic system. This was my diagnosis 2 yrs ago. With me the drug Ketruda is what I have to maintain the rest of what life I have left. The insurance companys quit paying saying they only would pay for 2 years. My heart broke…
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Port removal
the doctor surprised me at my last visit. In April of last year I had a tumor removed from my colon and a met just on the outside of the same area. 12 treatments later including 5fu pump Two positive lymph nodes after surgery of removing both I have not had a positive test. Two CT scans and tumor markers have all been…
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Looking for guidance on a 7.5cm lung mass found in my mom's lung.
Hello, yesterday my mom went to stat-care to treat a cough she has had since November. The Dr. ordered an X-ray, and the results showed her having a 7.5cm lung mass in her right lung with well-defined margins. The stat-care Dr. said it was probably cancer, given the size. A pulmonologist contacted her, and she has an…
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First Bite Syndrome
I am curious if anybody else has experienced this or knows anything about it. Ever since my Extended Radical Neck Dissection surgery in December, I have been experiencing First Bite Syndrome. It involves the first one or two bites of food at every meal, which triggers an intense, almost painful, sensation in the lower back…
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Hematomas after a double mastectomy
I had a double mastectomy two weeks ago, They put the prevena plus wound vac on me and when they took it off 6 days later I had developed hematomas! I got instructions to wash with soap and put silvedene cream on them twice a day. Can anyone give me any suggestions????? If this happened to you!
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Question About New Neck Lymph Node After Radiation/Chemo in 9/2023
Hi Russ and All, Only because I tend to be a little more pragmatic and intuitive instead of initially panicking, here I am again. My husband was diagnosed with Stage 1 base of tongue cancer (HPV+) in July 2023 (so a little over a year ago). He had 7 weeks of radiation to his left base of tongue and left 2 affected lymph…
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Still confused about Creatinine and GFR
This is a quote from the National Kidney Foundation website in answer to a question from somebody whose creatinine level was 1.58: "A creatinine level of 1.58 may be normal after removal of one kidney, especially if you are over 50 years of age. Removing one kidney always results in a decrease in total kidney function and…
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Catheter and Cystoscope
I need some advice. After spending a week with a catheter due to blood clots in my urine, it was removed and followed with a cystoscopy. Before the catheter was placed (after three attempts), I was able to urinate. However, now I’m having difficulty urinating—I feel a frequent urge but can only produce a trickle. I also…
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Ned 7 th year!
An update about our journey. Its been seven years since surgery. Did CT scan and results came clear. Ned since 7 years.Thank you all for positive vibes here.
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Results back from 4th U/S in almost a year and cyst still hasn't changed. Still unsure what to do.
I'll start by saying I'm 53 an have been in menopause for at least 1 1/2 years. Not sure exactly because I continued to take bc pills and my doctor told me stop to see if I was indeed in menopause. Took a blood test as well and it showed me very much in menopause, so I could have been for years. And my U/S results didn't…
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Caregiver
I am trying to find out how to be my little sisters caregiver she was diagnosed with stage four melanoma brain cancer metastatic a week after her 48 bday in November 2024 and since then she can’t work drive or be alone so I have had to quit my job and she now lives with me in my camper, and I have been told be several…
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Chemotherapy before or after surgery
Hi, I am new here. My father was recently diagnosed with NSCLC. It’s at least stage 2b. We have seen two oncologists in Northern Virginia. One suggested to have surgery now and do systemic treatment after. The other oncologist suggested chemo and immunotherapy before the surgery. Given my dad is 80 and qualify of life is…
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Newly Diagnosed Stage 3C1 endometrial cancer grade 1... what to expect?
Hi There, Well just a short 3 1/2 yrs ago I was my husband's caregiver for his colon cancer which he did pass away early 1021. Now I find myself in the same situation dealing with cancer but now I am living alone. One would think cancer would jump over me since I already had to deal with it so long prior . Started spotting…
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Dizziness after bone marrow transplant multiple myeloma
I had my bone marrow transplant 2 weeks ago and am home starting the long recovery now. My blood numbers are slowly going up which is great but the biggest issue now aside from the fatigue and the terrible metallic sour taste in my mouth due to the intense chemo is dizziness. Sometimes it is just background and other times…
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Testicular Cancer
Help!!! I was just diagnosed with testicular cancer and am having surgery on August 22 to have the testicle removed. If anyone has any info or has been thru this please contact me. I really need advice from someone that has been thru this..