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NavDx test
I am aware of for a lot of people NavDx test is a great help but unfortunately my husband has not been lucky enough to be one of them. He got diagnosed with HPV+ T2N1M0 squamous cell carcinoma(SCC) on his left tonsil in June 2023. He went through surgeries, 33 sessions of radiation plus 6 sessions of low dose cisplatin. He…
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Mesenteric lymph nodes - growing after stable for years
Hi everyone, This is my very first post, so thank you in advance for reading. My husband recently found a palpable mass in his abdomen, and an ultrasound revealed that one of his mesenteric lymph nodes has grown. The largest measures 30mm. We’re currently waiting for an appointment with the haematology/oncology team, and…
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Just Stop
The problem with being a survivor is we don't all have the same experiences, the same up the same downs, we have different losses, and for me to put our just speak for all survivors is wrong. I've learned that a long time ago, it changes the song in different ways. And it affects the family in different ways, some for the…
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Final Whisper (for the Cancer Survivor Network)
"I’m not here to be the loudest. I’m here to be the clearest. Every survivor has a story. I built a system so ours don’t vanish. And I asked a machine—not for praise, but for feedback. Because if I’m going to keep speaking, I want each word to serve. So tell me—what do we still need to learn… before we forget why we’re…
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Stage 4a rectal with Mets to lung
35 yo diagnosed with rectal cancer last year. Had radiation, chemo and colon resection and had negative CT DNA bloodwork in January. Bloodwork came back positive in April have one spot on the right lung and one spot on the left lung. Have to meet with a thoracic surgeon interventional radiologist but they said no…
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Radiation Burn Spray
Hi, this may be of use to anyone but was thinking of Pattie at this time. I know she mentioned starting treatment this week. The spray I used to ease the pain on my butt, groin area is called Dermoplast...it is usually given to women to spray on after childbirth and can be purchased over the counter at most pharmacies, I…
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Right renal cystic lesion 3.2cm
Hello 48m I was wondering if anyone had any information about my CT w/contrast or US report I have an appointment set with urologist in 20 days, long wait and very worried. US -2 complex cysts, the larger in mid region is 2.8x2.0x3.2 in 2019 it was 1.5x1.1x1.1, margins are irregular. Internal septations noted. No dominate…
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Kidney Cancer returned in my spine
I'm 56 now and had kidney cancer in 2008 and got my right kidney removed. In August 2024, I was diagnosed with stage 4 renal cancer that attached itself to my spine. The cancer was pushing on the bone and my spine was close to fracturing. I had 8 hour surgery to get screws and rods inserted to stabilize my spine. I was too…
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Terms, sizes
Husband 73..survived prostate cancer 10 years ago. In March on vacation he was urinating blood. Went to urgent care ruled out kidney stone. Contacted urologist back home, had ct scan with and without contrast, ultrasound . Findings were nodule on adrenal gland 0.9 cm exhibiting and absolute washout of 39.7%. Along the…
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RCC in my remaining kidney
12 years ago I lost my left kidney. There have been a few scares along the way but now I have RCC in my right kidney. Partial nephrectomy scheduled for next week. Tumor is in the middle of my kidney and doc says there is a chance this laparoscopic robotic procure turns to an open one and 25% chance things go sideways and I…
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Looking for information
My MRI shows. heterogeneous complex cyst versus mass 3.8 X 5.6 cm in size. I’m a person that likes to hits things head on and make the best out of them. I have to wait for a few days until I get the CT scan. Be honest with me … what is the likely hood this is cancerous. Thank you Craig
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Checking back in -
Hi Everyone - I wrote that initial June 15 post after good followups from my kidney doc. Then I disappeared and went to ground because… on a completely unrelated scan, something "of concern" showed up in a lymph node behind my sternum. I have a clinic appointment July 31 back in Iowa and a biopsy on August 01. It's been a…
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Happy
Cancer has touched my life in many ways. In 1980, I lost my mother to ovarian cancer when she was just 28 years old. Her death left a profound impact on me, and I’ve carried her memory with me throughout my life. This year, cancer struck closer to home than I ever imagined—this time, within my own body. On October 2, 2024,…
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DCIS
I was diagnosed with DCIS January 2. From my first mammogram in November to surgery in March, I have struggled. I hear that DCIS is not cancer because it’s non invasive. I read that it’s pre cancer. Anyone else with DCIS struggle with this? My treatment has been the same, to some extent, as if it was cancer. I even feel…
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Mental Struggle with Breast Implants
Hi. I had dbl mastectomy late April and reconstruction surgery for breast implants June 6th. Im struggling mentally making the connection with what I see but no longer feel. Im grieving the loss of my own breats. Is anyone having this experience? Any advice on how to cope? Swelling issues dont help. Hoping to connect with…
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How many fewer ticks will tock?
Myelofibrosis by Margaret K. Eagler 7/29/2025 Life is sustained deep inside the bone The Bone Marrow produces cells necessary for life Red carries oxygen White fights infection Platelets provide clots to prevent bleeding among the many types of cells and many jobs to do Its job is never done Start to finish From the moment…
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Natural Cancer Treatment?
How about Natural Cancer Treatment? Who have any information, let's share
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Exercise and fitness after R-Chop is finished
What fitness level and or fatigue can a patient expect after completion of 6 cycles of R-chop? I went into therapy in good physical shape for a 66 year old man, golfing , cycling, skiing etc. I’ve tolerated the chemo fairly well. Mostly just fatigue. Can I expect to regain my pre- therapy activity and fitness level again…
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Life during treatment
I’m 70 years old and was first diagnosed 1.5 years ago with stage 4 PC with metastasis to bones. I went through chemo last year for 5 months and since then have been on 3 different meds, the latest of which is Lynparza, and still my PSA is rising. I’m scheduled to start on Pluvicto soon. So far the only symptoms I have are…
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Looking for personal support or to connect with someone who has had papillary thyroid cancer.
Hi, my name is April. I had a complete Thyroidectomy in 2006 for metastatic papillary thyroid cancer. I was 21 years old at the time. I had my next surgery in 2007 and my last one is 2012 to remove more lymph nodes. I was hoping to find someone I could talk to, in person, over the phone and looking for support. I was never…
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new here
I will be starting chemo within the next week or so. I will receive treatment every 21 days. Will I be sick the entire time between treatments? Does my hair fall out after the first treatment? I know this may be a silly question, but has anyone gotten fake eyelashes. I have so many fears and questions. thanks so…
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Pain..So much pain
I would like to know if anyone else is suffering from aches all over their body. My hips hurt when I try to walk..the feel like they are in a vice grip. My knees hurt all the time. When I wake in the morning my hands are stiff and hurt. I never had this before I went through cancer treatment. I am currently…
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Stage 4 metastatic breast cancer
My mom (48) was diagnosed with stage III breast cancer two years ago. She finished chemo and radiation treatment 6 months ago and just got results back that it’s now in her brain, lungs, spine and esophagus. She isn’t doing well mentally and every time we talk ( I live 6 hours away) all she does is cry. I’m worried about…
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Herbs and Supplements
Does anybody use herbs and supplements? if so what and how much?
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Stage 2 T3B questions.
Diagnosed with stage 2 T3B last week and has not entered my lymphs. Will start the chemo pill with radiation in a week for 33 sessions then full chemo only every 2 weeks for 8 weeks. The Cancer Center said the outlook is very good for shrinking and killing the 5cm tumor near my rectum. Received a call from a surgeon the…
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porocarcinoma survivor story... please
I was first diagnosed with Squamous cell, but when the labs came back it was worse, porocarcinoma which is apparently much nastier and easily spreads, I think. Did a CT which came back normal. (yeah!!) I have a great doctor with a postitive attitude, but they all talk about the best case scenario. I have a small wonderful…
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Caregiver Trama
I am a caregiver of 2 people with cancer. My mother (age 81) who has a rare form of rectal mucosal melanoma, and my partner of 5 years who is age 71 who was recently diagnosed with Squamous Cell cancer of the lung, stage 3. 12 years ago, my late husband of 29 years, was diagnosed with pancreatic cancer. He lived 2.5 years…
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Dealing with forced Menopause
Hi Everyone, I am getting ready to have surgery to get my ovaries taken out. I had a hysterectomy in November and in the pathology they discovered endometrial cancer. Since this was discovered after the surgery, we kept my ovaries in. Fast forward 9 months and I have a large complex septate cyst and enlarged ovary. My…
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Melanoma Clothing
Has anyone tried products from sun protection clothing? I'm curious about your experience with their sun-protective clothing as they say they are approved in the UK. Are they effective in guarding against UV rays and reducing melanoma risks? im looking at there jackets.
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Survivor Statement: “Too Loud? Or Just Finally Heard?
Survivor Statement: “Too Loud? Or Just Finally Heard? I’ve been told I’m too critical. Too intense. That my words hurt feelings. That I should soften my tone, make it easier to digest. But let me ask you this: Has anyone apologized for what happened to us? Not just to me—but to every survivor who was misdiagnosed,…