-
Adenoid Cystic Carcinoma
My name is Debbie. I was diagnosed with ACC in March 2003. I had a large portion of my upper palate removed and now wear an obturator. I don't have anyone in my community that has gone thru this. I had 6 weeks of radiation. I just want to meet someone who has this disease and visit. I feel all alone out here.
-
liver regrowth after resection
I had a liver resection just over a year ago. I had read so many articles about how the liver grows back after having a liver resection & have heard people on this board talk about how theirs was growing back too. Interestly, when I asked my liver surgeon if he could see any liver regrowth on my CT scan, he said "not much,…
-
Uterine cancer symptoms
As I've posted before, my 78 year old mom was diagnosed with uterine cancer in January. Her only symptom was vaginal bleeding, similar to a period. I was wondering what other symptoms some of the other "maturer" women had. My mom had not been to a gyn in about 11-12 years and I feel a little guilty about not insisting she…
-
Chemo or No Chemo - Stage 1C1
Finding myself in the decision making stage for Chemo or No Chemo (Observance) for Stage 1C1. Single ovary cyst with recent surgery to remove cyst, ovaries, fallopian tubes. Spillage during surgery (due to cyst size, needed drainage prior to removal). Cyst results returned as Grade 1 mucinous carcinoma. All post-op CT…
-
What a journey!
I was diagnosed 9/11/2018. After two rounds of chemo and one radiation, my cancer has neither grown nor disappeared. I am now again, six years and three months later, seriously considering an esophagectomy. I am fearful, yes. But more than that, I consider such as invasive procedure to be an affront to my body. Does anyone…
-
11 month update
I thought I would provide an update since I have been quiet for a while. (I feel I owe all of you who helped answer my questions earlier) Brief recap ...gleason 3+4 1/5/24...gleason 4+3 at time of surgery 7/11/24...Nerve sparing surgery deemed successful. Continence returned at 2 months. But I ended up having a stricture,…
-
Prostate Treatment Post Radiation BCR
I just wanted to share some knowledge should anyone out there have a PCA recurrence in the prostate after radiation. I am post Proton and listen in on topics with my local specialists who are involved in various research. I heard from a Brachytherapist who is engaged in level 2 trials on what sounds like a terrific salvage…
-
Uterine papillary serous carcinoma
I was diagnosed with USPC in August 2024. Had total hysterectomy (stage 1b, no metastasis or lymph node involvement). I have had 3 rounds of taxol/carboplatin and should be starting external radiation after first of year. Other than neuropathy and some short term muscle pains, I handled the first three rounds of chemo ok.…
-
5-year ACC parotid survivor ---
Well, I've almost made it to my 5-year post op 'all-clear' status....question is....I had NO treatments after surgery, only 1 PET scan.....should my ENT have exercised more options of CT/PET/MRI to finalize my '5-year, all clear' status?
-
HLRCC or type 2 papillary??
Hi, I’m new and looking to see if there is anyone else with HLRCC or type 2 papillary kidney cancer on this forum. It’s rare and difficult to find research, information, or others to connect with for advice so I thought I’d give this a try. I had surgery 3.5 years ago to remove tumor, kidney, adrenal gland, and part of…
-
Pca information updates
Hey everyone, I am sure there have been past threads with good information for newly diagnosed, post treatment, recurrent disease,..., I have seen many questions regarding stage, grade, risk group, etc. In doing recent research I came across the NCCN Guidelines for Pca advanced and early stage. There is a lot of great…
-
Ureter Stents - My experience
Hello Everyone! Just thought I put a post out there because recently I have noticed that more and more of you are required or in need of a ureter stent so I thought I would share my experience with you. My experience with this started in February of 2014 when my CT Scan showed that I had moderate left-side hydronephrosis.…
-
Lung Mets
Has anyone been diagnosed with lung metastases ? I am stage 3C serous. They only do scans once a year here for some reason. I had some bleeding that they shrugged off and then my next visit they tried to but I basically insisted on a scan. The scan in December showed no issues in abdominial region, but found a new 6mm…
-
Avastin only for maintenance?
Hello, I posted this on the uterine board but only received one reply. I was hoping maybe someone here would be able to help. I'm on Avastin only for maintenance after going through chemo (carbo/taxol) 3x. I received my 11th infusion this week and have been doing well. My onc said my situation is a dilemma because the…
-
Erectile dysfunction ED conditions after Prostate cancer radiation treatment
Are there many? Or a few? Is there a resource for improvement? I am dealing with so many situations and experiences. Radiation treatment related? What are yours? Thank you.
-
Choices
Is anyone over 70, have alzeheimer's in family, and decide not to combat 3negative breast cancer? Not sure I want the battle and end up with alzeheimer's down the road. Dad had five sisters who had alzeheimer's end of life.
-
Have you been ghosted?
I feel like I have lost so many people since I told them about my cancer diagnosis. Friends and family both. I wish I could go back in time and not even tell them. It’s so painful to process that they haven’t even texted me a “how are you doing”. Cancer without any support is really horrible. Thanks for reading.
-
Weight loss from recovery ?
Hi, another question on how much weight might I lose during recovery from cancerous kidney removal ? I am 5' 11" only 140, (I lost 35 lbs this year due to a previous fissure surgery ) and am concermed about losing weight during my recovery. I am not underweight but am very close. Thanks again all, really appreciate all of…
-
VIN 3 - Partial Vulvectomy
I read these message boards before my surgery and I'm here for a little support. VIN3 doesn't seem to have much resources so like many women I thought this may be a good place for support. I'm early 40s, no HVP, never abnormal PAP, same partner for 20 years. VIN 3 was removed by partial vulvectomy. Home the same day.…
-
Aggressive atypical fibroxanthoma
Hello, I’m new here and just wondering if anyone else had a weird skin cancer diagnosis. Long story short I had a long and invasive slow MOHS to remove the tumor (?) and while they felt confident they got it all, they said that it was a cancer that hadn’t been identified before so they couldn’t predict what would happen…
-
Mucoepidermoid survivor
Hi! Could you help me? My husband is undergoing intermediate mucoepidermid treatment and I would like to have news about how it is to deal with the treatment, if there is a cure
-
New to this C and forum
Had my 3rd TURBT Op. on Monday, Dr. removed 2 Tumors and scraped a suspicious area, then I had 40 minutes of Mitomycin. This was all done at a Regional Urological Center who say they are up to date on C and might be affiliated with the U of Iowa. The bleeping C has come back twice, really, because the Dr. suspected he had…
-
Post Radiation Proctitis
I am hoping for some good feedback for those of you who had challenges recovering from RT. I had a very easy treatment with a Proton 28 fraction schedule. Typical improvement of limited symptoms until my second month, then I started to have some diarrhea once a week or so. Condition has not improved and maybe gotten a…
-
Cervical Cancer and Fatigue
I was diagnosed in April with cervical cancer. I've noticed that I get tried easily and now the past few days my body hurts. Today (5/9) I woke up and my whole body hurts. I'm normally very active and always on the go. I decided to run some errands yesterday and mow my front yard. I felt good till the afternoon when I…
-
Nausea with stint
Hi everyone. Will get final diagnosis this week but I have a resectable tumor at the head of my pancreas. I’ve had a couple of stints placed so far to open up bile duct. First was a larger metal one that caused terrible discomfort, had waves of “contractions “, then they replaced it with smaller plastic one that got…
-
NLPHL Diagnosis-Just wanted to say HI
Good morning!! I just recently got diagnosed, still going through staging, but it looks good so far. Seeing Dr. Jeffrey Barnes out of MA Gen in Boston!!! Hope everyone is doing good. A lot of the time I feel great, other times I get down in the dumps for a few minutes, then bounce back, LOL
-
Memorial Day May 26, 2025 We Honor and Remember our Fallen
Monday the 26th is Memorial Day, a day set aside to honor our country's servicemen and women who died in service to our country and who gave their all. These are the ones who gave their lives for their country-their last full measure. They deserve no less than the highest honor and respect. Participate in the National…
-
Anyone else get triggered like me?
I’ve noticed lately that I’m always seeing on tv shows or movies where they say so and so died of cancer. When they do this I always get a flood of anxiety all over my body like an adrenaline rush. It also happens on social media. I will see someone post about how their relative or this famous actor died of cancer and it…
-
Finally I've gotten some good news
After an IRE ablation procedure last year, then a few months of ADT so far, and 40 sessions of IMRT of the prostate and pelvic region for lymph nodes, my most recent blood work indicates a PSA level of .04 ng/ml. Down from over 9 ng /ml about six months ago. If I understand correctly, this is considered undetectable. I'm…
-
My partner may have Cancer because of me.
I didn’t know I had HPV when I was intimate with my partner. After I got the diagnosis, I was in tears. I got my HPV vaccination in my adolescent years. I was scared to let my partner know he might have it as well because of me. After telling him, he said nothing was going to change between us and everything will be ok.…