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cholangiocarcinoma

tmalinow
tmalinow CSN Member Posts: 3 Member
edited January 2024 in Liver Cancer #1

Just diagnosed with cholangiocarcinoma(bile duct cancer) had first chemotherapy October 30,2023

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Comments

  • tmalinow
    tmalinow CSN Member Posts: 3 Member
    #2

    I was just a few weeks ago diagnosed with stage 4 cholangiocarcinoma (bile duct cancer). I had my first chemotherapy October 30, 2023. I’m scared and worried every day. 66 years old and was in perfect health a month ago until a routine ct scan for my yearly physical showed some spots on my lung and liver. Now I’m devastated and feeling sick. I hope the chemotherapy helps me live better and longer.

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  • mcaarmend
    mcaarmend CSN Member Posts: 4 Member
    #3

    I've been fighting the same kind of cancer since 2020 ... during my chemo I received Y90 radiation (all but shrunk the tumor ... cancer not spreading but just started to grow ... just started ammunization therapy good for my body

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  • freelancenance
    freelancenance CSN Member Posts: 1 *
    #4

    Good luck to you both! A member fighting cholangiocarcinoma!!

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  • mcaarmend
    mcaarmend CSN Member Posts: 4 Member
    #5

    I'm 78 and I still got game ... protein shakes and no fried foods

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  • Bev2023
    Bev2023 CSN Member Posts: 3
    #6

    I am 65 and going on 2 years with cholangiocarcinoma. Doing my second round of chemo due to some lab work. Good luck to all. Keep on keeping on!!!

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  • StriderA
    StriderA CSN Member Posts: 3 *
    #7
    https://csn.cancer.org/discussion/comment/1710153#Comment_1710153

    So how are you faring with ur cholangiocarcinoma (bile duct cancer)? And what type of treatments did u and/or are currently receiving?

    I was diagnosed with this same exact cancer (cholangiocarcinoma - bile duct cancer) in Jan of this yr (2025). Currently, they are treating (or better put) torturing me with chemo. Afterwards, they intend to do immunotherapy on me. I don’t place much faith in either.

    Have u come across other potential solutions such as taking ivermectin, fenbendazole or other things?

    And does anyone know of a doctor who administers ivermectin or fenbendazole to his patients?

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  • Bev2023
    Bev2023 CSN Member Posts: 3
    #8
    https://csn.cancer.org/discussion/comment/1722045#Comment_1722045

    I’m doing good. Did chemo off and on Gemcidabin and Cisplatin for 2+ years. Had the durvalumab immunotherapy the first year. Just had radiation to the one lymph node that was hot. The radiation worked and is shrinking the lymph node.

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  • StriderA
    StriderA CSN Member Posts: 3 *
    #9
    https://csn.cancer.org/discussion/comment/1722046#Comment_1722046

    Thx for the quick reply and good to hear ur doing good. Ive had a couple of months now with the Gem, Cisplatin and Durva.

    Wouldn’t mind comparing notes privately if ur willing.

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  • Bev2023
    Bev2023 CSN Member Posts: 3
    #10
    https://csn.cancer.org/discussion/comment/1722049#Comment_1722049

    Sure. Lots of information.

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  • rbetanco
    rbetanco CSN Member Posts: 2 *
    #11

    Cholangiocarcinoma with Mets to lung and lymph nodes. 6 mos of gem/cis, 18 mos. Of Keytruda. Last CT SCAN “no evidence of metastatic disease. MSK NYC. Good luck and positivity your way.

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